Thanks for being you. I was diagnosed in February, but i probably had it for years. Im 64 and stage one. Forgot my laptop password for the first time today. Parkinson’s? It’s the daily question. Was this Parkinson’s? Was that Parkinson’s? The unknown of what’s to come. On the bright side, working out has me in shape!
That’s the tricky part: deciding what is PD and what is just aging. Looking back, I now see a definite trail of odd symptoms leading up to my diagnosis. Keep exercising, dude! Thx for watching, too!
Yeah, dude, you posted this just when I'm going through a shit time right now. Meds don't feel like they're working, sleep is shit, its 9438 degrees out and my car AC decided to fizzle, I can't remember what day it is. Its not like we can wake up and suddenly start feeling better. But like Ricky says below, they're doing so much now, so many advances, that I truly expect to wake up one day and see some remarkable news. In my city, they're already doing FUS (focused ultrasound), so who knows, maybe I'll be posting someday about it. And I journal. And from going over my journal in the past, I've seen that I've had downtimes like this before and I always bounce back. Its always transient, like a bad storm, it will eventually pass.
You are so right! Oh, to just wake up and not feel like death warmed over. I am such a zombie in the morning. It can be difficult just to have a conversation cause I’m so exhausted. Hang tough, bro!
We all love you, Jeremy. Your honesty and vulnerability really hits home, especially for those of us just starting out on this journey. It can be so difficult, feeling trapped inside a body that no longer responds in the most basic ways, leaving us feeling so frustrated and betrayed. I agree with the sentiment that we need to do as many things on our bucket list as we can, while we still can, but the reality is that we often don't have the energy and stamina to undertake new challenges. I don't know what the answer is but just know that you are not alone, we are all dealing with and feeling the same things you are, and if it wasn't for Parkinson's we would never have met so many wonderful friends like you. God bless you, Jeremy 🥰
kindest things! I tell people that ask me to come visit that it’s not just getting there and back. It’s actually enjoying my time with them. I need to find a way. My wife is always bugging me to travel. I gotta find a way!
I know what you mean! I have about a 3 hour window of energy and then I have to lay down and rest. It's especially hard if you're not in your own home!! We don't want to be rude but we absolutely have to have breaks in order to continue to function. My wonderful mother passed away last week and with all the arrangements to be made and trying to support my father and my children, I have lost all coordination and dexterity and am moving at a snail's pace. With stress and anxiety we lose what little energy we have, just when we need it the most! Maybe before planning your visits, let friends and family know what your limitations are and what you will need in order to visit. I'm sure they will be very happy to make the necessary arrangements just for the opportunity to be with you!
Yeah I totally agree with you. And even though I’m married and have a family with grandchildren I feel so alone at times. That only another parki would understand. Keep strong
It is hard but there are good things too. As you said, you meet great people, and be thankful for what you do have. It’s ok to be crabby…it’s the PD challenge! I keep myself up through my gratitude to Jesus. Take care, thanks for your honesty..I have felt like you do too.
Jeremy - I am newly diagnosed with this but have probably had it over the last couple years and my life has changed a lot too. I played in R&R bands for 30 years and didn't know what actually happened a few years ago but I had to bow out - my life's passion! I agree 100% with you - the "just stay Positive" line is for people who can walk away and go home to a normal life!! I am 3 months into C/L and am getting more used to it but I saw similar things happen to both my folks as they approached 80 and accepting that this is 'As Good as it Gets' now is not easy!! Maybe for a Buddhist monk or Shaman or medicine man, but not for a regular modern man like me! lol Anyway, thanks for telling it like it is and letting me bitch a little - 'Keep on Truckin'!
I'm glad you've got all these cool people, I know they help. Yes it sucks and is a big adjustment. You will figure it all out as you go along. Nobody's expected to be cheerful all the time. I do admire your sense of humor and ability to to find the positives. Sherry Springfield MO PS HANG IN THERE, THIS IS TOUGH STUFF.
When I need to feel optimistic, I watch videos from the University of California, San Diego where they're doing stem cell research to investigate replacing the dopaminergic brain neurons we've lost. It's really exciting and is by no means fanciful. May not get here in time for me, but you're much younger. Not blowing smoke, just saying there really is hope for young men like you. And maybe even for old guys like me.
Hey Jeremy. Thanks for the video. I too am in St. Louis and 10 years diagnosed. It can be very lonely so I can relate to that too. Be thankful you have a wife. I am not having a lot of luck in that area. I'm thinking most single people my age don't want to start a relationship with someone with Parkinson's. I'll be looking forward to your next video though. Good luck.
Bro!! I was like “Australia “😆😆😆👏🏼👏🏼👏🏼❤️❤️❤️All good in the hood buddy! I hear ya..it’s a bad thing to deal with..I went to ride today..took my meds at 11:03am…didn’t kick in until 12:40!! So..didn’t ride. Bummer. It’s one day at time. All we can do..I’m still waiting for the hair clipping video 👁👁
Thanks for being so open. I’ve been trying to stay positive as well but it does get hard. I feel like I need to do everything I can now before there comes a point where I can’t do certain things. It’s almost like a feeling that I’m going to die soon, so I need to travel and live it up before it’s too late. One thing is for sure…watching you, Jen, Dave and other’s videos has really helped. I always look forward to your videos. Keep it going!
I used to feel like I was going to die soon as well. That feeling goes away after awhile. Definitely travel while it’s still enjoyable! I might just have to break down and drive to some of the places I want to go. Maybe just rent an RV or something. As always, you guys keep me going!
Heyas Jeremy! Damn, as I'm sitting here kicking myself for cancelling a golf outing with some buddies who I used to golf with 1-2 times a week...I talked my self out of it..this fear..anxiety...some sort of Jedi mind trick...lol So I start looking at possible vacation places then the feeling is there too..Then low and behold i come here and BAM! it's a mutual kind of thing. The struggle IS real....Things that were never a 2nd thought...I feel ya bro! When Today, right now, isn't the right time maybe in a few hours or....All I know is The Mrs needs her vacation, and I do too! Maybe I'll start small, closer to home...Then go BIG! haha If anyone ever feels the need to come to Idaho....yep I said Idaho lol you have a guide! Thanks for the vid as always!! The positive Trains a coming..ALL ABOARD!!! wooooohoooo! ;) Cheers all
Great advice, Chris! I’ve decided to take the risk and plan some trips. So, I have some rough spots. I’ll always remember the good times and forget the bad.
Today I was at the grocery store and had 10 minutes of off time. I started to think to myself as I slowly maneuvered my cart how bad would it have to get for the tears to flow at this moment...I thought it but fought those thoughts and focused like a jedi on just my steps, the steps I now need to take because someone faster than me cut me off and parked their cart right in front of me....focus how to get around it....step, step, step. The thoughts of how bad would it have to be went away. I am with you on the traveling, it drains me, but I've got some more adventures in me, as you do too :)
I hear you Jeremy. It's a @#$& of a disease. And it never gets better. All we can do is keep moving. Dragging your arse out of bed day after day, trying not to eat shitty sugar laden crap. And exercising as much as possible. And after that staying positive lol. Take care Jeremy. Your a good man.
Hi Jeremy it’s your friend David from middle Earth(Canada). Great video. I always like to say to my wife, you and me to the end baby whatever and that may be.
Yeah bro i got parkinson at 33yrs old now im 40yrs i understand you 100% meds barely work i miss playing music i m self taught keyboard player and self taught accordion player i had a goood singing voice i miss working i miss driving i miss driving to other states i miss doing what i want . Its been really tough theres times i just want to throw in the towel ...
Thanks for the truth , but you have to have hope too . I am researching alot ..... photoboltic therapy , stem cell , laser (external) treatment , these gloves I just seen last night ( they shock and or frequencies ) , B1 high dose , diet ( heard the craziest thing about big milk drinkers getting PDism from the weed killer through the dairy cow . Also that weed killer evaporates in the ground in the ground water and rises up like Radon Into your house . Hopefully they find something soon for all . Stopping the paraquate is important they say . We all should vote for that to be banned . Jeremy , I definitely feel the pain of the changes of life right now . And still think I am 30 in my head or will one day do things that a 30 year olds does . Hope it cools down for ya . I can't take that heat at all anymore , I was a 30 year HVAC tech , so i once was able to hack the heat better than most , and the cold . Just can't do it no more between poor breathing and rigidity .
Thx for the encouragement, Jerry! You are right about all the things in the pipeline. I’ve just found myself being very impatient with my limitations. And yes, I hope it cools down, too!
Видеоклипы
Thanks for being you. I was diagnosed in February, but i probably had it for years. Im 64 and stage one. Forgot my laptop password for the first time today. Parkinson’s? It’s the daily question. Was this Parkinson’s? Was that Parkinson’s? The unknown of what’s to come. On the bright side, working out has me in shape!
That’s the tricky part: deciding what is PD and what is just aging. Looking back, I now see a definite trail of odd symptoms leading up to my diagnosis. Keep exercising, dude! Thx for watching, too!
Yeah, dude, you posted this just when I'm going through a shit time right now. Meds don't feel like they're working, sleep is shit, its 9438 degrees out and my car AC decided to fizzle, I can't remember what day it is. Its not like we can wake up and suddenly start feeling better.
But like Ricky says below, they're doing so much now, so many advances, that I truly expect to wake up one day and see some remarkable news. In my city, they're already doing FUS (focused ultrasound), so who knows, maybe I'll be posting someday about it.
And I journal. And from going over my journal in the past, I've seen that I've had downtimes like this before and I always bounce back. Its always transient, like a bad storm, it will eventually pass.
You are so right! Oh, to just wake up and not feel like death warmed over. I am such a zombie in the morning. It can be difficult just to have a conversation cause I’m so exhausted. Hang tough, bro!
We all love you, Jeremy. Your honesty and vulnerability really hits home, especially for those of us just starting out on this journey. It can be so difficult, feeling trapped inside a body that no longer responds in the most basic ways, leaving us feeling so frustrated and betrayed. I agree with the sentiment that we need to do as many things on our bucket list as we can, while we still can, but the reality is that we often don't have the energy and stamina to undertake new challenges. I don't know what the answer is but just know that you are not alone, we are all dealing with and feeling the same things you are, and if it wasn't for Parkinson's we would never have met so many wonderful friends like you. God bless you, Jeremy 🥰
Jeannine, you always say the
kindest things! I tell people that ask me to come visit that it’s not just getting there and back. It’s actually enjoying my time with them. I need to find a way. My wife is always bugging me to travel. I gotta find a way!
I know what you mean! I have about a 3 hour window of energy and then I have to lay down and rest. It's especially hard if you're not in your own home!! We don't want to be rude but we absolutely have to have breaks in order to continue to function. My wonderful mother passed away last week and with all the arrangements to be made and trying to support my father and my children, I have lost all coordination and dexterity and am moving at a snail's pace. With stress and anxiety we lose what little energy we have, just when we need it the most! Maybe before planning your visits, let friends and family know what your limitations are and what you will need in order to visit. I'm sure they will be very happy to make the necessary arrangements just for the opportunity to be with you!
@@JeremyMcdonald a❤❤😂
You nailed it! It's the same for me... comforting to know someone understands!
Thx, Wanda!
Ty for saying what I feel today.
Thx for watching, Linda!
Yeah I totally agree with you. And even though I’m married and have a family with grandchildren I feel so alone at times. That only another parki would understand. Keep strong
Thx, Cabmaker!
It is hard but there are good things too. As you said, you meet great people, and be thankful for what you do have. It’s ok to be crabby…it’s the PD challenge! I keep myself up through my gratitude to Jesus. Take care, thanks for your honesty..I have felt like you do too.
Thx for the encouragement!
Jeremy - I am newly diagnosed with this but have probably had it over the last couple years and my life has changed a lot too. I played in R&R bands for 30 years and didn't know what actually happened a few years ago but I had to bow out - my life's passion!
I agree 100% with you - the "just stay Positive" line is for people who can walk away and go home to a normal life!!
I am 3 months into C/L and am getting more used to it but I saw similar things happen to both my folks as they approached 80 and accepting that this is 'As Good as it Gets' now is not easy!! Maybe for a Buddhist monk or Shaman or medicine man, but not for a regular modern man like me! lol
Anyway, thanks for telling it like it is and letting me bitch a little - 'Keep on Truckin'!
If ya can’t bitch about Parkinson’s, when can you? Thx for watching!
Frustration
I'm glad you've got all these cool people, I know they help. Yes it sucks and is a big adjustment. You will figure it all out as you go along. Nobody's expected to be cheerful all the time. I do admire your sense of humor and ability to to find the positives. Sherry Springfield MO
PS HANG IN THERE, THIS IS TOUGH STUFF.
Thank you, Sherry! I will indeed hang in there! And I’m glad you dig my sense of humor.😂
Yes I am so sick of being limited and it is tough thank you for sharing what I am feeling it is lonely having Parkinson’s
Thank you, Jacqueline, for taking the time to watch and comment!🙂
When I need to feel optimistic, I watch videos from the University of California, San Diego where they're doing stem cell research to investigate replacing the dopaminergic brain neurons we've lost. It's really exciting and is by no means fanciful. May not get here in time for me, but you're much younger. Not blowing smoke, just saying there really is hope for young men like you. And maybe even for old guys like me.
I needed to hear that today! Thx for the pick-me-up!
Hey Jeremy. Thanks for the video. I too am in St. Louis and 10 years diagnosed. It can be very lonely so I can relate to that too. Be thankful you have a wife. I am not having a lot of luck in that area. I'm thinking most single people my age don't want to start a relationship with someone with Parkinson's. I'll be looking forward to your next video though. Good luck.
Wow, a fellow St. Louis native! Awesome! I can’t even imagine being single with PD. Talk about intimidating!
Bro!! I was like “Australia “😆😆😆👏🏼👏🏼👏🏼❤️❤️❤️All good in the hood buddy! I hear ya..it’s a bad thing to deal with..I went to ride today..took my meds at 11:03am…didn’t kick in until 12:40!! So..didn’t ride. Bummer. It’s one day at time. All we can do..I’m still waiting for the hair clipping video 👁👁
I thought about re-shooting the Australian part, but then was like, “What the hell”! I knew you would think it was funny.
@@JeremyMcdonald great call to leave it in!!
@BE I knew I had an Aussie out there!
Thanks for being so open. I’ve been trying to stay positive as well but it does get hard. I feel like I need to do everything I can now before there comes a point where I can’t do certain things. It’s almost like a feeling that I’m going to die soon, so I need to travel and live it up before it’s too late. One thing is for sure…watching you, Jen, Dave and other’s videos has really helped. I always look forward to your videos. Keep it going!
I used to feel like I was going to die soon as well. That feeling goes away after awhile. Definitely travel while it’s still enjoyable! I might just have to break down and drive to some of the places I want to go. Maybe just rent an RV or something. As always, you guys keep me going!
@@JeremyMcdonald I hope it does go away. You should definitely start with scheduling a trip…now. 😁
@@SDWP I do have several friends with Parkinson’s who live on the West Coast. I could go on tour!
@@JeremyMcdonald let me know when you’re touring the East coast!
@@SDWP I have been to Manhattan twice.
Heyas Jeremy! Damn, as I'm sitting here kicking myself for cancelling a golf outing with some buddies who I used to golf with 1-2 times a week...I talked my self out of it..this fear..anxiety...some sort of Jedi mind trick...lol So I start looking at possible vacation places then the feeling is there too..Then low and behold i come here and BAM! it's a mutual kind of thing. The struggle IS real....Things that were never a 2nd thought...I feel ya bro! When Today, right now, isn't the right time maybe in a few hours or....All I know is The Mrs needs her vacation, and I do too! Maybe I'll start small, closer to home...Then go BIG! haha If anyone ever feels the need to come to Idaho....yep I said Idaho lol you have a guide! Thanks for the vid as always!! The positive Trains a coming..ALL ABOARD!!! wooooohoooo! ;) Cheers all
Great advice, Chris! I’ve decided to take the risk and plan some trips. So, I have some rough spots. I’ll always remember the good times and forget the bad.
Today I was at the grocery store and had 10 minutes of off time. I started to think to myself as I slowly maneuvered my cart how bad would it have to get for the tears to flow at this moment...I thought it but fought those thoughts and focused like a jedi on just my steps, the steps I now need to take because someone faster than me cut me off and parked their cart right in front of me....focus how to get around it....step, step, step. The thoughts of how bad would it have to be went away. I am with you on the traveling, it drains me, but I've got some more adventures in me, as you do too :)
I like the Jedi reference. Jen. If I’ve got some more adventures left, one of them would have to be meeting you in person!😊
@@JeremyMcdonald awe thank you! Likewise!
I hear you Jeremy. It's a @#$& of a disease. And it never gets better. All we can do is keep moving. Dragging your arse out of bed day after day, trying not to eat shitty sugar laden crap.
And exercising as much as possible. And after that staying positive lol. Take care Jeremy. Your a good man.
Well said! And thank you!
The worst part is that nobody understands, not even the doctors, best to you
Thx for understanding, Frank!
Hi Jeremy it’s your friend David from middle Earth(Canada). Great video. I always like to say to my wife, you and me to the end baby whatever and that may be.
The road goes ever on and on...
Yeah bro i got parkinson at 33yrs old now im 40yrs i understand you 100% meds barely work i miss playing music i m self taught keyboard player and self taught accordion player i had a goood singing voice i miss working i miss driving i miss driving to other states i miss doing what i want . Its been really tough theres times i just want to throw in the towel ...
It is a daily battle to stay positive, isn’t it? I can get overwhelmed, too. Thx for watching!
Mantap kawan sambil istirahat kayuh sepedah tetap nyimak keren❤️
Terima kasih telah menonton, teman!
I can so relate only recently my husband asked me if I will have this forever
Unfortunately, yes.
I’m planning to go to Paris when there’s a cure.❤❤❤
Awesome!
Thanks for the truth , but you have to have hope too . I am researching alot ..... photoboltic therapy , stem cell , laser (external) treatment , these gloves I just seen last night ( they shock and or frequencies ) , B1 high dose , diet ( heard the craziest thing about big milk drinkers getting PDism from the weed killer through the dairy cow . Also that weed killer evaporates in the ground in the ground water and rises up like Radon Into your house . Hopefully they find something soon for all . Stopping the paraquate is important they say . We all should vote for that to be banned .
Jeremy , I definitely feel the pain of the changes of life right now . And still think I am 30 in my head or will one day do things that a 30 year olds does .
Hope it cools down for ya .
I can't take that heat at all anymore , I was a 30 year HVAC tech , so i once was able to hack the heat better than most , and the cold . Just can't do it no more between poor breathing and rigidity .
ruclips.net/video/4KkkktLnRHo/видео.html
Just seen this one after commenting here
Thx for the encouragement, Jerry! You are right about all the things in the pipeline. I’ve just found myself being very impatient with my limitations. And yes, I hope it cools down, too!
Be praying for you , because you keep me inspired . Have a great week
@@jerrym1070 Many thanks, bro!
I hate it when people say you look fine. It sucks.
It can be so frustrating!
What do you think about DBS?
It scares me to death.
Dr john bergman has treated Parkinsons...look up his videos. He is in Huntingdon Beach, ca.
Thx
I got the diagnostic 1 month ago, I m so depressed 😔.
I know the feeling. It takes awhile to sink in. Give yourself some time.
Benfotiamine which is B1 with magnesium helps alot
@@rexeverything6249 I have heard that!
Thank you for helping us all...I'm a former professional Broadway Dancer here in NYC recently diagnosed..
I was in NYC about ten yrs. ago to see Chicago on Broadway and had a great time! Keep in touch, Ross!
Check out the “keto diet”…there is a lot of research going on re: Parkinson’s. Best of luck to you.
Will do!
Hey I’m right where you are
It’s a blast, isn’t it?
Hey brother, it’s whiskey Scott. Give me a call some afternoon this week need to catch up it’s been a while.
Will do!