♡ Why I Need a Medical ID for Ehlers Danlos Syndrome ? (19th-21st.04.19) | Amy's Life ♡
HTML-код
- Опубликовано: 11 сен 2024
- ♡ Why I Need a Medical ID for Ehlers Danlos Syndrome ? (19th-21st.04.19) ♡
Check out American Medical ID: www.americanme...
They also serve customers from the UK, Canada, & Australia through their other site, www.universalm...
Stainless Steel Heart Link Charm Medical ID: www.americanme...
Rose Gold Medical ID: www.americanme...
CHECK OUT MY MERCH & Help Support My Channel!
Amy's Life (Classic Logo):
www.bonfire.co...
Amy's Life ( 'AL' Plain Logo): www.bonfire.co...
Amy's Life ('AL' Zebra Design): www.bonfire.co...
TTMYGH (White Text): www.bonfire.co...
TTMYGH (Black Text): www.bonfire.co...
PAYPAL ( if you would like to donate to help me out, as it was highly requested for me to leave my details) : amyleefisher96@hotmail.co.uk
My Website: www.amyleefish...
Want To Send Me Mail?
PO Box 62
Willetton
WA
Australia
6955
Find Me On the Net!
►MAIN CHANNEL: / @amyleefisher52
►INSTAGRAM: / tomharris.95
►INSTAGRAM: / chronically.ams
►INSTAGRAM: / _amieelee
►TWITTER: / amyleefisher
►SNAPCHAT: @Amyleefisher96
♡ MORE INFO ABOUT MY HEALTH ♡
• HKPP: medlineplus.go...
• POTS: www.nhs.uk/cond...
• M.E/CFS: www.nhs.uk/cond...
• FIBRO: www.nhs.uk/Cond... Fibromyalgia/Pages/Introduction.aspx
• EDS: www.nhs.uk/Cond...
• GASTROPARESIS: www.nhs.uk/cond...
• MCAD: www.ukmasto.org...
----------------------------------------
Amy: ‘It makes sense right?’
Tom: ‘The good people of RUclips will explain...’
😂😂😂😂
Instablaster
Groin is one of those exceptions in the English Language like Deer, Sheep, Fish the singular and plural is the same.
I went to the doctors and was diagnosed with POTS because of how you described your symptoms and I realised that was how I felt-thank you Amy ❤️
Also-Tom:how could you not have a hot cross bun before!!!
xmynameslucie x I literally caught a POTS episode on a holter monitor and still nothing for me. 😅
Hope you get a diagnoses soon. It is so reliving getting a POTS diognoses. It makes life so much easier. Sending support, fellow POTSie!
MysticalAmber it can. POTS stands for Postural Orthostatic Tachycardia Syndrome. So any change of posture/position can trigger the tachycardia. Some ppl can tolerate all positions apart from standing and some ppl can’t even sit up right.
I got diagnosed with POTS recently too, on top of fibromyalgia and hypermobility - Amy was one of my reasons for persevereing with my doctors :)
Oooh, I was about to agree with Tom but the linguist in me needed to research this and I think it should be "groins" plural if both hurt. Like "loins"...That would make the most sense. Amy wins again!
My medical ID is from the same website, but I have one that you can set up an IHR (interactive health record) with. It’s basically an online equivalent of the wallet card you showed and you can add whatever extra information you think is relevant. Then on the alert bracelet itself it had a logon that emergency response can use to access all the information.
“Can you not call it an invalid badge” 😂 love it I’m going to call mine that from now on 😅 thanks for the idea Tom 👌🏼😂
Honestly am so pleased that you share your story in so much detail it makes me understand how a little thing can make someone so unwell but nevertheless you will still post on insta and RUclips to entertain us you truly have a heart of gold 💛
I have quite a few medic alert bracelets and at least 2 of them fell in the toilet 😂
Maggie Dawkins omg in the loo 😂😂😂
I lost mine down the toilet at uni 🤦🏼♀️ I was NOT sticking my hand in a public loo 😂
sense I have 11 chronic illnesses including pots syndrome and SVT( another heart condition), a fatal lung disease, allergic to 36 foods and 11 meds and a fall risk i wear a medical alert bracelet that says " I AM FALL RISK, DO NOT TREAT ME SEE FULL MEDICAL PAPER IN WALLET" it has saved my life lots of times
I think that Tom has definitely been accepted into the family, awwwww!
When I was first suspected of having EDS, I figured I would only get an ID if I had vascular type. When I was then diagnosed with a vascular type CTD (Loeys-Dietz Syndrome) I figured I'd wait till I started to develop aneurysms. Now I'm waiting till the aneurysms are big enough to warrant an ID. I may never actually decide to get one haha.
Sooo like are you ok ? Did you ever get a bracelet ? Did the aneurysms burst?
First hospitalization, watching your videos always cheers me up. ♥️
Hope you'll be alright!
Looks like Tom and your dad get along great. Glad you had a nice Easter. Hope you get your tube fixed soon.
That bracelet ID should be also available in my country!
That time of fun fight and laugh with the family was great! :D
😅 i'm totally with you Amy. Right groin and left groin! Like... groin area total... but then also you could specify right groin and left groin.
Now that I think about it, maybe that is a thing?
Ask a doctor next time you see one. Ask what if I said my left groin hurt, would that be weird?
Also, charmin blue toilet rolls. Softest strongest best toilet rolls.
Danielle Rom 😂😂😂
I love how you say "Love hearts" in America we just say "hearts" but I think I'm going to start saying love hearts!!!
I feel like I had asked about this a couple days ago on Instagram and Boom, found this on RUclips. Thank you for providing this info to all of us out here. ❤️
I have the exact same medical ID love being able to change the colors according to whatever color I am feeling that day!
In medical jargon, it's: groin, right inguinal area, and left inguinal area. I 🌹
so you would say my right inguinal area hurts? Lol :D
@@Chelle8847 Strangely enough, yes. 😂
@@fallendroplet 🤣🤣 it sounds so funny lol
Rest in peace Amy
Your a true inspiration with serious medical those issues , your fighter keep on fighting
we stand together with you & your journey keep up the inspiration work your awesome keep up the incredible fight everyday you’ll get stronger you can to this #teamfighter your amazing keep on fighting sweetheart stay postive 😀🇦🇺
If I had one like that i would just put 'check medical ID card' and then like the location on my person of the card
Kleenex cottonelle is the BEST-especially if you have tummy issues!!! I buy in bulk when on special!
I'm still working on getting diagnosed but I probably should look into getting an ID instead of caring a list of my issues in my wallet. Love from America
Your hair looks so healthy now!! Looks amazing!?
you just made me get a med ID necklace and bracelet! I'm excited to get it lol
how much are they?
I got them for a little over $70
I am watching you on my tv screen and it’s so cool to be able to see everything bigger than my iPhone screen allows. Love these reviews because I feel you are giving your 100% honest opinion. Thank you so much for sharing!!!
I have a medicalert bracelet that's essentially identical to the one you showed off here with all the interchangeable colours. Nothing fancy. Take mine swimming at physio too with no dramas. I'm sure yours is similar just different brand as far as how simple it is to maintain.
Hi Amy, I missed some videos do to I have a two year old. It just hit me, how long have u and Tom been together? Still so happen to see the love between you guys and that he stays by your side. Lots of love from Sweden :) 😍
Love your Mum and Dad!! You have an amazing family as far as I see. :)
I really like my medical alert bracelet. I’ve never had to use it, but better safe than sorry.
Your dad on Tom!😂😂😂...true love.
I haven't found a decent medical Id bracelet in the UK so that rose gold one is fab as like you I have some serious allergies and illnesses so will have a look thankyou for posting x
You and Tom can go ahead and get married now, your dad already loves him 😊
That was no ordinary man juggling chainsaws that was space cowboy :)
Ahha....So that’s where our IGA stores went! Lol When I was a young girl, all we had were IGA’s, like everywhere! Amy, have the stores always been there?
Mary Reynolds not always they’ve come over the last 8 years or so xx
I was thinking the same! My husband's family owns one in our town (in Indiana), I guess they're pretty rare!
Thanks for reminding me ...
I do need an updated medical ID
Your so lucky to have found such a great man like Tom. Happy Easter! Thanks for the medical alert bracelet info I need to get one. 💜💜💜💜💜💜🦄🦄🦄🦄🦄🦄🥰🥰🥰🥰🥰🥰🥰🐶🐶🐶🐶🐶🐶
That is awesome if you get hurt I have 24 diagnosis and have a medical bible that the dr can see online i have an update version to put up but those ids are great thank you for sharing that cheers from My trip to Edmonton Alberta Canada
Thank you for the information about the medical alert bracelet. I like how you found custom ones
I had a great one that is actually an SD card you plug in and fill out all your info. However, i found out from the emergency department that they won't use them because they coukd have viruses and dataminers etc. on them. So, after i watched your video i ordered one like you have. I just recived it. I love it. Its perectly wonderful and fits great!
AMY I LOVE your hair like that!!!!!!!! Good length on you
I love you and your vlogs soooo!! And I’m going to order your Amy’s life mech but I’ve had some bullying happening to me at work and lost my job, but promise to purchase as soon as I can!! ♥️♥️
Also you are amazing, you are so strong and positive and reallyreally inspirational with every thing you have to deal with Xx
i think i agree with tom on this dispute only. 😂😩
Happy belated Easter Amy and Tom! Love you guys! ❤
Oooh I just got my first medical IS bracelet!!!!! It looks really cool!!! Interesting video.
What about a pair of glasses or a pair of Jean's. It's just one on both. Drives me nuts. I agree groins
This was the year Easter was on my birthday!! 20th birthday 🎂 😊
I think medical bracelet are important I have some health issues too I feel I need one sometimes I also the bracelet with hearts I love jewelry I agree wearing them important
I've got my medical stuff on my phone's emergency screen and my med id bracelet (that I literally just leave on all the time) I do like four lines of text thats like four conditions, a name and a number and its like, perfect
Could you add a link for your other medical Id videos!
m.ruclips.net/video/MHdoHxBwINg/видео.html ❤️❤️❤️
Your so strong keep fighting Amy were all supporting you #teamamy xx
I hope this is an okay question to ask😳 But have you ever passed out by yourself in public before? The medical ID seems like such a good idea in case this ever happens in future, i just wondered if it has happened before and what you did without the ID?x
Yes
Ok, so I played the portion about groins to my husband to get his opinion. He and I both agree it should be groins not groin. However, groins just sounds weird and maybe that's why we don't say it. But she's right Tom!!
I know the period pain all to well. My periods were so bad that a hysterectomy was warranted. I do not recommend a hysterectomy unless absolutely necessary
But Amy we wont to prank call Tom early in the morning for a laugh.....just kidding
Its so annoying rn with doctors... She straight up asked me if im able to eat and im like im doing my best but not much... And still no help... Anyone else struggling to get help and if you have doctors that wont believe you, how did you get through it?
Get a new doctor.
It took me 5 years and dozens of tests and doctor to get help. They literally would not believe me until one lucky day, they actually caught my issue on a test (manometer showed esophageal motility issues), and then they gave me a feeding tube. It didn't matter how underweight I was or how dehydrated. They were just like, TRY HARDER... I was like, I am trying as hard as I can. Then they would indicate they thought it was just anxiety or mental issues, and they would send me home. 5 years not being believed and told I was crazy. I barely survived that, mentally I came so close to ending things, physically, my body was declining. My only advice is never give up. Keep getting tested. One day, there is going to be a test that shows what's wrong or a doctor that actually believes you without needing test results. I hope it doesn't take 5 years for you. 💙
@@darkbluematter1753 im in the same situation right now. Im glad that you got help! And do you mind me asking what was the diagnosis in the end? Thank you so much for the response, it does really give me hope that some day ill get help. It might not be today or even the next month but maybe the help will come some day.
Allouise B the diagnosis was IEM (Ineffective Esophageal Motility) which means my esophagus muscles were not sufficiently contracting to perform peristalsis or sometimes not contracting at all--i.e. I would swallow the bolus, and top worked but then nothing happened after that, the esophagus muscles just sat there instead of contracting all the way down. No idea why it stopped working right--no underlying diagnosis yet. I don't have EDS. Doc tried stretching my esophagus as a last ditch effort but that didn't help. So now I have a gtube.
@@clairecheney i live in finland so it means that it is more than hard for me to get one unfortunately. And if i do they will most likely just say that go back to the doctor that isnt helping at all
You didn’t include seizures. In America they wouldn’t let you drive on the pain medicine/pain patch and and because of your seizures. I just got my letter in the mail.
In swedish there are two groins, they are called ljumskar
It does make sense-but technically-from an anatomy perspective, it’s groin-not the plural-groins. Sorry Amy!!!
I love your nails amy! Are they acrylics or is it gel polish on your natural nails?
All person who works as a emt should be trained to check medical alert bracelet
Your my inspiration to take good care of myself❤️
Hi! ☺️
Happy Easter!!!🐣🐰🐇
Hi
I am from America love watching you
I feel a bit silly saying this but I didn't know we had two groins xD but if there's two, it should be plural 😂😂 idk lol. Love you guys
3ply all the way lol 😂 xx
I'm from northern ireland and I've never had a hot cross bun either 😂😂
You are a wonderful person 💕💕
Haha! I work at the IGA in my town!!!
I have the same argument about sheep. You get a cow, or cow's, pig or pigs, but sheep or sheep, should be sheep's but that's not correct, I think it should be 😂😂.
I say sheepies, cos it's cute! Look at all those sheepies!! Hahaaa
@@Chelle8847 same! 😊 I always say ooooh look! Sheeps haha! Love it
Amy it makes sense
Unfortunately the numbers of eds types have changed, right now hypermobile is 5
It makes sense to me!!! Groins!!!
Orhhh Tom is so sweet even though he will hate me for saying that.😂. I was wondering if it’s just people with chronic illness and allergies etc that usually get medical ID bracelets or if people with mental illnesses get them too?
I am getting a small one for my ID bracelet I don't have a lot of issues I am allergic to one type of medication and I'm thinking about getting they have rings now and I'm thinking about getting a ring I think that's a really smart idea but maybe not because there's ID bracelets so maybe I won't get the ring but just let everybody else know that if they're harder to find but there are rings that you can get
I have to get one because of one of the meds I am on.
Omg I also have a medical ID bracelet
does it not mention HKPP in ur bracelet?
Hi are you originally from Australia? You sound like you have northern English accent.
in live in england in cirencester glouestershier
Omg Amy I love you. You’re so funny.
Amy how do you handle negative comments. I posted a comment on another video about a shark that I know nothing about people are evil sending laughing stupid emojis that made me so sad... I love ❤️ you thou
💜
I was not sure what you were saying with toilet roll. We call it toilet paper or just TP where I am from. I had never heard it called toilet roll. For a fraction of a second I thought maybe it was something medical you used. Lol
Each person is only given ONE groin.
❤️❤️
I think for women it make sense to have groins. But for men it doesn't
Do you have a patreon account?
groins rhyme with loins!
It's just groin lol
hey amy lol i think theirs just one groin lmao
Sorry. It’s just groin
Sorry Hunny this nurse says one groin lol
Noooo you should have picked the Kleenex toliet paper.... its the best toliet paper 😂
How tall is tom im guessing about 6ft 3 possibly
Tight Lines 6ft 5 😂😂
Wow hes tall I'm 5ft3 and my partner is 6ft 3 so hes quite tall