I have been married to my husband for 15 years He looks after me so so so well I am truly blessed So I know how you feel Yet we are worthy of the men in our lives They wouldn’t be with us if they didn’t want to be
That is so beautiful. I have great anxiety that my boyfriend will leave when times will become very difficult. And to hera from other people that stayed together gives hope!
Hanna Baum Each relationship is different. Yet take each day as it come. Try not to stress about the future Enjoy the present Your boyfriend is with you because he wants to be I am Always here if you want to chat
I clicked on this video so fast after I saw the title! Something I really struggle with is guilt. I went from a tiny hyper energetic loud fireball- mommy to 3 children with special needs who are the light of my life and married to my high school sweetheart who is the love of my life- to having to be cared for with every little thing while paralyzed for a few months and now 11 years later I can walk most days but I get sick non stop and have excruciating pain non stop so I feel like a big burden!!! I don't feel like me! But my hubby is the best ever- 19 years married this july and he's truly my knight in shining armor and I have 3 compassionate empathetic teenagers who are incredible. Yet I still struggle so much with guilt that almost cripples me and anxiety about things I want to do and should be doing etc etc. But that I can't... .....its tough. But on the other hand- .....i'm so incredibly blessed because of this. All 3 of my kids have told me at separate times that they are glad it happened because they like me better this way etc. Im always around to talk too or hang out with, we aren't running around non stop and trying to give them every single experience in the world that was actually overwhelming them..... I have good bonds with my children and my hubby and I are crazy close. It's really beautiful. I try to be so grateful for everything I have and try to just do what i can without making myself sick lol- that's a hard balance. But im sti'll trying and I'm not giving up and I think that says something about all of us with chronic illnesses etc- we keep going ❤❤❤
Yes you do deserve Tom, you are such a lovely person, why would he not want to be with you? You are good to him too, and I am glad you both found each other, much love from Canada xo
F*** Dr phill!!! people like Tom are amazing and there’s not enough people in the world like him, and everyone deserves to be loved girl. I look forward to the wedding tehe💕💕
Bleck. "Dr." Phil is a total idiot. He's a narcissistic egocentric asshole. I can't stand him. Did you see the episode when he told the inter-abled couple the girl either needed to be his caretaker OR his girlfriend but she can't be both? Get real. That's not even possible in that kind of relationship and he was SO MEAN to them. He asked Squirmy and Grubs to be on that show and they said no. That dude is just mean to everyone and he thinks he knows everything but he's wrong half the time. And he instigates all his guests and you can see him put words in their mouths and twist things around to make them look as bad as possible. I can't say enough bad stuff about him. He isn't even a doctor. He got his doctorate writing a thesis on rheumatoid arthritis! What a quack.
I was diagnosed with fibromyalgia a few months ago by my doctor (who is horrible and doesn’t help whatsoever aka I need a new family doc lol) and I’ve been having this terrible pain for THREE years now, just after I graduated high school. My boyfriend and I have been together 7 years in October, and I don’t know what I’d do without him. He’s loved me and supported me through EVERYTHING, all my illness’ and struggles he’s there. He never complains, he always takes care of me. You reminded me just how thankful I am to have him 💜
I have had severe chronic pain along with a myriad of other ailment for the past 18 years and they have only got really bad over the past year. I moved in with a new roommate in Sept. 2018 and he has been so kind and helpful to me. He is just a friend, but he still chooses to take care of me and I can't be more thankful. I also feel that I don't deserve to be loved by anyone because I am such a mess and sick more often than not. I am so happy that Tom is there for you and loves you every day, through ALL the good AND the bad. You have a true soulmate there Amy. God Bless you both ❤🙏
I've just watched this video, and it touches me so much when your talking about how you don't know why you've been so lucky to found Tom, and I cried, you are the sweetest person ever, I'm a carer for my fiance, she also suffers from alot of conditions and she always says that she doesn't know how she was lucky to find me, I always say that I'm the lucky one to have found her and to have her love, thank you for this video Amy! Keep fighting xx
The heart wants what it wants. I have an amazing husband who has stood by me for 22 years of falling apart physically. He had a stroke 6 weeks ago. He has my support for the rest of my life. We will come through this stronger than before. God bless.
How sweet is Tom man!! There's a massive outbreak of really bad flu in the UK atm aswell, flu jab always makes me ill for about 3 days but its needed! Look after yourself hunny. You make my chronic illness look like a breeze! Keep doing what you're doing😍💗
You are so worth everything that you receive. You are the only you in the universe...no more Amy if you're gone. You're such an encouragement. I live in the U.S. in a small Michigan town, and if you didn't have the courage, strength and caring nature we would have never connected. Dealing with chronic illness is so hard, I deal with it daily too. Thank you & your loved ones for sharing your journey. Tom knows you're so worth it😊💕
Keep on going, Amy. You are wonderful and blessed. Thank you for spreading love and inspiration. May God bless you more ❤❤ Love lots from the Philippines
I can definitely relate with you. I suffer badly with my mental health and tend to be very emotional and irrational at times, and I ask myself the same questions about my boyfriend, like “why be with me when you can be with someone who’s easier to deal with?” Or “you could be with someone who is ‘normal’” yet he stays, and he tells me it’s because he knows my mental illness ISNT me, but A PART of me, and something he’s willing to work with me through and be by my side. It’s because Tom loves you that much and he knows your chronic illness is just a part of you, but doesn’t define you. You guys just support each other no matter what, whether he’s concerned about a doctor’s appointment or you’re having a rough day and need to rest.
I truly empathise with you, I’m chronically ill and have chronic pain. This has set me back so far in life and I always feel like I’m a ‘burden’ to the people I love, especially my parents and my amazing boyfriend. He gets so upset when I refer to myself as a burden and I always think how incredibly lucky I am to be blessed with such an amazing man who I love to pieces ❤️
I have just recently started watching your videos. First impression you do not look like a chronically ill person. And I truly think it's more your attitude and personality. With all the stuff you have to do to just live every day but you still stay upbeat. Even when you say you are having a bad time you still don't come off like most when they are sick. And you do so much for yourself it amazes me. And you and Tom just click. And he never seems burdened by your illness at all. It really seems like a partnership with you two. And I think you both have an amazing relationship and are happier than a lot of couples that don't have to deal with any problems at all. And I truly believe you can't choose who you love. And when you love someone and it just clicks things like your illness just become like normal daily activities that you do because you are happier doing it than you were with out that person in your life. Just being with that person makes it worth it all. That's what I see with you and Tom. Sorry it was so long I was having trouble wording what I was thinking. Lol But keep smiling and don't lose that spirit you have. Its amazing to see.
You had me in tears. I feel So bad every day from my illness. I’m a mom to older children but it started when they were young and I have/had so much guilt. My husband has stayed with me through it all. When you find the right person who loves you for you it’s wonderful. Just keep telling him thank you. 🥰🥰
You stop talking that way! He loves you to bits and you are very worthy of his love, we all have our issues but you are amazing and stay so positive and happy, it’s easy to see why he loves you to bits and back♥️‼️
Amy I know exactly what you mean about wondering what you've done to deserve someone so great. I feel the same way! This past year has been the hardest year for my husband and I. I was diagnosed with POTS and EDS and my health has just really declined. But I am getting myself back on track....well as on track as my new normal is going to be. My husband and I have been together for 18 years and married this coming July for 16 years. He works everyday so I can stay home and be with our children and has done this since we got married. He said he just wanted to take care of me for the rest of my life. I always tell him that they broke the mold after they made him. I seriously wish that you and I lived near each other Amy because I just feel like we would get along so well and I feel like you understand me and what all I am going through. I have been watching your videos for a year now and they are helping me more than you will ever know! Much love to you from Tennessee!
Sophie and Jamies singing is 👍🏼. I didn't know croc flops were a thing. Think I'm going to get a pair, I need new flip flops. Sorry Amy! But they look so comfy. 😂
As someone who lives with chronic illness, I know how important it is to feel support from our partner. When I was younger, my partner struggled to understand how to beat take care of me, but we’ve now been married 20 years, and he is amazing at taking care of me, even when I worry I’m not worth it
Amy just so you know I don’t think you’re not normal, you’re a human being with tubes inside you that doesn’t make you any less human - you’re an inspiration as well. Tom is very lucky to have you 💞
Yes, you truly are blessed with a wonderful man in your life 💜! My husband has stood by me for years as I live with Lupus SLE and Achalasia plus a slew of other illnesses mixed in. He helps me so much but mainly by supporting me and helping me with my feeds, appointments and mainly laughter! I can be in the hospital in pain and he’ll comment on something funny and make me laugh, which in turn makes me feel better. Takes a truly special significant other to turn my “frown upside down....” 🙄 as he says. Lol! But I deal with so much guilt thinking why does he stay with me, I’m such a burden or we could be on vacation but instead he’s at work and I’m useless. He NEVER complains. You and Tom are so cute together and you both are good for each other!! 💜
It is truly a blessing to have sweet men in our lives! I cam relate to your feelings about Tom. My husband has been the sweetest care taker as I recover from Labrynthistis. Been unable to drive and do life for almost 2 months now. All we can do is show our love amd apperciation for them!! ❤
Hey Amy, I’ve been watching your videos for sometime now but I never comment. This video was my life. I became chronically ill in 2016 and have a lot of similar medical problems as you do. I am SO happy that you have Tom and he loves you unconditionally. You do deserve him, you deserve every single happy moment in your life! I really do wish every chronically ill person had someone to snuggle them when they don’t feel well, wipe their tears during the hardest times, and accept that we aren’t going to live ordinary lives but be 100% okay with that. I wish I had someone like that today..
Amy, I have been with my partner for 9 years. I am not chronically ill but have severe rheumatoid arthritis. He has been there for me and stuck by me through my deterioration. Although I still find it hard to ask for help. How did you overcome this? Btw, I dont know how I found you but I have been binge watching from the beginning during my flare up. You are an inspiration.
I messed up my knee pretty bad and my boyfriend has been helping me to class and sometimes carrying me because I haven't had crutches to help me, but he's so amazing. Not only in this situation, but also with my chronic stomach issues. He sometimes gets frustrated with it but it's understandable and he does his best.
Tom is just a natural caregiver. He is very sweet. And when you feel unworthy just look at the number of subscribers to your channel. You must be pretty terrific too. ❤️
Tom's shoes definitely look navy to me!! 😂😂😂 y'all r so cute together!!! 💜💜💜 Tom is such a good man to you!! You guys are meant to be with each!! You make him complete and he makes you complete. 💜💜 definitely need to start appreciating my husband more... Thank you for the words of wisdom today!!! 💜💜💜
Although being chronically ill is so rubbish, remember that all you and Tom have been through must have brought you together so much more than other couples. It’s plain to see how much you adore each other ❤️
i have gastroparesis and spent about 2 months last year in perth children’s hospital because of it. one of the teachers at the school in the hospital happened to be the author of zac and mia!!
I have my own “Tom” but he’s called brad. A month into our relationship I had a 8 month hospital stay 2 hours from our home. He came to visit every day on the train! We now have a little girl (the pregnancy was hell) and have been together 9 years! He does everything around the house, has just trained in tpn to give me a break when I need it and does the school runs etc. We are super lucky !
I have chronic health issues and my health took a nose- five a few years ago and it was very stressful. My husband is wonderful and I too am amazed that I have such a person in my life
I totally understand how you feel I have told my husband many of time what have I’ve done to deserve him for me my Robert is my everything! And with my heath has been a roller coaster the last 3 years and still is. And my hubby always say no matter what happen he will always be there and we will get though this I feel so blessed to have him and I understand how you feel.
Someone may have mentioned this, but I use old feed bags as drainage bags! I'm not sure if you have any lying around but it works well, you just need to alter it a little :) Happy to help if you don't know what I'm talking about Oh also, if it helps, I have an efit-to-cath adapter. I can see if I can send it to you! I use it for the urine drain bags when I run out of my extra feed bags. My urine bags are 500 mL so it's super manageable
this video has helped lifting my spirits, i havent been well at all for the past few weeks and ive been vomiting but i also get quite nauseous and it really is the worse thing, I've had doctors not worry about me as its only nausea and i havent been throwing up as much as they would like. I hope you start to feel better soon though xox
Tom is wonderful but you should definitely listen to the song You & me by You+me (P!nk and Dallas Green Collab). Noone is perfect but you are perfect for each other. It warms my heart to watch you two. X Ps. I have my perfect man too and we played that song at our wedding last year ❤️
Thank you Amy 😀 Yes all things considered I am doing ok. 1-26am here Listening to my husband and all our fur babies snoring lol Waiting for my pain medication and steroids to kick in Crocheting and listening to My vlogs I love I hope today has been a better day for you and Tom Love and blessings to both you and Tom ❤️❤️
Tom and you are ment to be together and you can totally see how much you love and care for each other. I am so happy that you have found each other. Some people go there whole lives and never find there true soul mate, chronic illness or not. I don't think Tom would trade his life that he has with you, just to so that he could say he was living a "normal" Life with a "normal" Girlfriend. This is his normal and you can definitely see that he loves his life the way it is... I totally understand where those feeling could from cause I have them all the time and I'm not in a relationship but I can definitely say that it keep me from being in a relationship cause I always have this feeling that I don't want to get into a relationship with someone and my illnesses bring there life down or make it so they are not living a "normal" Life. I hope that you both start to feel better soon and that you and your whole family are able to not get the flu this year. Sending you lots of hugs and love from Oregon
I know what you mean when you ask yourself about your partner. I have the same feelings alot of the times with my husband. I have MS and it can be very rough on him. My mood changes from a minute to minute. But he always says than he doesnt want anyone else. So keep him close. He does you good.
I think the coat looks cool with the badges!! And I also knew about the thanos thing it's like so big in my school right now lol and I am a massive marvel fan lol
Tom is truly amazing and so are you!!! I know exactly what you mean , my husband is the same way with me and man it’s a good feeling!!!! I’m so happy for you both!!! I’m so amazed how you live your life it’s almost effortlessly!!! And you do it with a smile!!’ You are a very strong young lady and I’m very proud to know of you and to see your day to day life!! Thank you for sharing yourself with the world!!!!!❤️❤️❤️
You deserve the best things in life and Tom is one of them! You are amazing and kind even with all your complications you don’t let it effect your mood and Tom is so so sweet! Ps you always look pretty!
Sometimes I think why do I faint as much as I do and why do I dislocate as much as I do and have as much seizures as much as I do. Sometimes I think back to when I was like 5 or 6 (even though I can hardly remember those days😂😂) and back then the biggest thing was who got the last sweet 😂😂. I sometimes I want a break and to have a day where I can like run a marathon, man alive I miss running. But stuff changes. I would never have got as close to my friends if I hadn't have got ill and I would have never have been as determined as I am now. Tom is the NICEST man and I am so happy for you to have him. Nausea is the WORST 😭😭😭
I've just watched your video, could you not customise a drainage bag? You could cut the original end off, put the attatchement in that would for your tube and then use heat to melt the bag snug around the end? Just a suggestion, maybe worth a try? Love your vids!!
You and Tom are amazing #couplegoals.. I have spent so many years saying to my hubby he would be better off being with someone “normal” as they say. My insecurities get the better of me a lot and I always feel like I’m a burden on him and a crap mum to Isla and Lachlan. But my children are so understanding and my hubby is amazing and shows me he loves me and makes me feel better and here we are, nearly 14years later, still going strong. Hope you’re both feeling better soon, Sending loads of love from the uk 🇬🇧
If I knew the exact type you needed I'd PO Box you a shipment of them. Also you can likely buy your old drain bag brand on Amazon as they sell drain bags and other supplies (insurance in the US will cover only some purchases. I'm not sure the policy in Australia). General search tag is drain bags medical. More specific info in the detailed search can help you find it. Also your supply company might be able to acquire your previous brand. Since we both use the same company Baxter some of my supplies come from Canada to my current address in the USA.
I'm so glad you have someone like tom :) my boyfriend is the same he's absolutely amazing and tolerates all my bs :') I understand what you mean about moving out, me and my bf have been together 5 and a half years and hopefully only getting round to move out this year 🤞 I'm so excited to have our own place :')
I know what it's like to feel like your health issues are too much. I have a heart problem and I can't even stand up without my heart going nuts. But my husband takes such good care of me. I'm so incredibly lucky!
I feel ya! I have so many health issues and my husband deserves a healthy wife who can work and keep up with him, but he doesn’t want that. He loves me for me, illness and all. I definitely got so lucky with him. We have been together 17 years and married 16. Oh and crocks are awesome! Not the weird looking ones, but love all of their regular shoes. I have severe RA and they help my feet! The only flip flops I can wear!
I just tried the Thanos search - it's amazing 😁. Thanks for the Tip, it's really fun and Made my day❤. And I think you really deserve Tom and your beautiful relationship ❤❤. I'm Single for ten years now and I wish I would find someone as caring and loving.
Amy, please never feel that you're not worth it, you're strong, beautiful, and highly intelligent. I truly hope that you both are always happy. Tom, loves you with all his heart. Stay strong you got this. Your friend Devon LaCava Wakefield MA. 💖💖
Have you tried Sorbitol for your dry mouth? It is in sugarless candy like Mentos. However I do not know whether you can digest candy. You could leave them in your mouth for a while and then spit it out. The other possibility are gum with sorbital because no one swallows gum. I hope you helps Gruessle Barbara
Waaahh you guys are just so cuuuuute I can't with you guys! I've got an amazing other half too, he's stuck with me through so much! They really are few and far between, we're lucky gals!
Awwwww seriously love the bones of you two 🥰🥰. You’re both lovely people who deserve each other. I always feel guilty but my hubby just makes me laugh instead of feeding my “pity party😂”. Just love each other and don’t take life too seriously, like us you two laugh and that’s how it should be but then don’t feel guilty when things get tough, that’s a relationship!! We are loved and we deserve that, also we love them and they deserve that, it’s called true love and being good people we deserve that. Keep being you Amy and never apologise for being a beautiful, loving person 🥰🥰
Just FYI each years flu vaccine is to prevent a new / different strain. So technically your only covered for this years expected strain and can catch any other type of strain if it's going around, I work in a hospital and get my flu vaccine each year but 2 years ago ended up with the flu and had strain A for example and was vaccinated with strain B for example.
Oh my lord I can’t with Tom he is the sweetest! When he came back because he forget something and said you looked pretty 😍🥰 bless his heart. Xx
I know I’m so lucky! ❤️
I have been married to my husband for 15 years
He looks after me so so so well
I am truly blessed
So I know how you feel
Yet we are worthy of the men in our lives
They wouldn’t be with us if they didn’t want to be
That is so beautiful. I have great anxiety that my boyfriend will leave when times will become very difficult. And to hera from other people that stayed together gives hope!
Hanna Baum
Each relationship is different.
Yet take each day as it come.
Try not to stress about the future
Enjoy the present
Your boyfriend is with you because he wants to be
I am Always here if you want to chat
I clicked on this video so fast after I saw the title! Something I really struggle with is guilt. I went from a tiny hyper energetic loud fireball- mommy to 3 children with special needs who are the light of my life and married to my high school sweetheart who is the love of my life- to having to be cared for with every little thing while paralyzed for a few months and now 11 years later I can walk most days but I get sick non stop and have excruciating pain non stop so I feel like a big burden!!! I don't feel like me! But my hubby is the best ever- 19 years married this july and he's truly my knight in shining armor and I have 3 compassionate empathetic teenagers who are incredible. Yet I still struggle so much with guilt that almost cripples me and anxiety about things I want to do and should be doing etc etc. But that I can't... .....its tough. But on the other hand- .....i'm so incredibly blessed because of this. All 3 of my kids have told me at separate times that they are glad it happened because they like me better this way etc. Im always around to talk too or hang out with, we aren't running around non stop and trying to give them every single experience in the world that was actually overwhelming them..... I have good bonds with my children and my hubby and I are crazy close. It's really beautiful. I try to be so grateful for everything I have and try to just do what i can without making myself sick lol- that's a hard balance. But im sti'll trying and I'm not giving up and I think that says something about all of us with chronic illnesses etc- we keep going ❤❤❤
Yes you do deserve Tom, you are such a lovely person, why would he not want to be with you? You are good to him too, and I am glad you both found each other, much love from Canada xo
I’d die for a boyfriend like Tom 🥰 so supportive and loving ❤️ couple goals
Me too!
F*** Dr phill!!! people like Tom are amazing and there’s not enough people in the world like him, and everyone deserves to be loved girl. I look forward to the wedding tehe💕💕
Cocaina X agreed and maybe one day 😅💖
Bleck. "Dr." Phil is a total idiot. He's a narcissistic egocentric asshole. I can't stand him. Did you see the episode when he told the inter-abled couple the girl either needed to be his caretaker OR his girlfriend but she can't be both? Get real. That's not even possible in that kind of relationship and he was SO MEAN to them. He asked Squirmy and Grubs to be on that show and they said no. That dude is just mean to everyone and he thinks he knows everything but he's wrong half the time. And he instigates all his guests and you can see him put words in their mouths and twist things around to make them look as bad as possible. I can't say enough bad stuff about him. He isn't even a doctor. He got his doctorate writing a thesis on rheumatoid arthritis! What a quack.
Six Mercer could not agree more
I was diagnosed with fibromyalgia a few months ago by my doctor (who is horrible and doesn’t help whatsoever aka I need a new family doc lol) and I’ve been having this terrible pain for THREE years now, just after I graduated high school. My boyfriend and I have been together 7 years in October, and I don’t know what I’d do without him. He’s loved me and supported me through EVERYTHING, all my illness’ and struggles he’s there. He never complains, he always takes care of me. You reminded me just how thankful I am to have him 💜
I have had severe chronic pain along with a myriad of other ailment for the past 18 years and they have only got really bad over the past year. I moved in with a new roommate in Sept. 2018 and he has been so kind and helpful to me. He is just a friend, but he still chooses to take care of me and I can't be more thankful. I also feel that I don't deserve to be loved by anyone because I am such a mess and sick more often than not. I am so happy that Tom is there for you and loves you every day, through ALL the good AND the bad. You have a true soulmate there Amy. God Bless you both ❤🙏
The crocs 🤣 I loved both your reactions 💖👌
I've just watched this video, and it touches me so much when your talking about how you don't know why you've been so lucky to found Tom, and I cried, you are the sweetest person ever, I'm a carer for my fiance, she also suffers from alot of conditions and she always says that she doesn't know how she was lucky to find me, I always say that I'm the lucky one to have found her and to have her love, thank you for this video Amy!
Keep fighting xx
The heart wants what it wants. I have an amazing husband who has stood by me for 22 years of falling apart physically. He had a stroke 6 weeks ago. He has my support for the rest of my life. We will come through this stronger than before. God bless.
Sittin here crying like a baby at the end 🥰😭 you two are so cute my heart melts
How sweet is Tom man!! There's a massive outbreak of really bad flu in the UK atm aswell, flu jab always makes me ill for about 3 days but its needed! Look after yourself hunny.
You make my chronic illness look like a breeze! Keep doing what you're doing😍💗
You are so worth everything that you receive. You are the only you in the universe...no more Amy if you're gone. You're such an encouragement. I live in the U.S. in a small Michigan town, and if you didn't have the courage, strength and caring nature we would have never connected. Dealing with chronic illness is so hard, I deal with it daily too. Thank you & your loved ones for sharing your journey. Tom knows you're so worth it😊💕
Keep on going, Amy. You are wonderful and blessed. Thank you for spreading love and inspiration. May God bless you more ❤❤ Love lots from the Philippines
Its sucks feeling like a burden😦❤
I can definitely relate with you. I suffer badly with my mental health and tend to be very emotional and irrational at times, and I ask myself the same questions about my boyfriend, like “why be with me when you can be with someone who’s easier to deal with?” Or “you could be with someone who is ‘normal’” yet he stays, and he tells me it’s because he knows my mental illness ISNT me, but A PART of me, and something he’s willing to work with me through and be by my side. It’s because Tom loves you that much and he knows your chronic illness is just a part of you, but doesn’t define you. You guys just support each other no matter what, whether he’s concerned about a doctor’s appointment or you’re having a rough day and need to rest.
I truly empathise with you, I’m chronically ill and have chronic pain. This has set me back so far in life and I always feel like I’m a ‘burden’ to the people I love, especially my parents and my amazing boyfriend. He gets so upset when I refer to myself as a burden and I always think how incredibly lucky I am to be blessed with such an amazing man who I love to pieces ❤️
I have just recently started watching your videos. First impression you do not look like a chronically ill person. And I truly think it's more your attitude and personality. With all the stuff you have to do to just live every day but you still stay upbeat. Even when you say you are having a bad time you still don't come off like most when they are sick. And you do so much for yourself it amazes me. And you and Tom just click. And he never seems burdened by your illness at all. It really seems like a partnership with you two. And I think you both have an amazing relationship and are happier than a lot of couples that don't have to deal with any problems at all. And I truly believe you can't choose who you love. And when you love someone and it just clicks things like your illness just become like normal daily activities that you do because you are happier doing it than you were with out that person in your life. Just being with that person makes it worth it all. That's what I see with you and Tom. Sorry it was so long I was having trouble wording what I was thinking. Lol
But keep smiling and don't lose that spirit you have. Its amazing to see.
You had me in tears.
I feel So bad every day from my illness. I’m a mom to older children but it started when they were young and I have/had so much guilt.
My husband has stayed with me through it all.
When you find the right person who loves you for you it’s wonderful.
Just keep telling him thank you.
🥰🥰
You stop talking that way! He loves you to bits and you are very worthy of his love, we all have our issues but you are amazing and stay so positive and happy, it’s easy to see why he loves you to bits and back♥️‼️
I am so lucky that I have a Tom as well. He helps me with my migraines and pain. I thank him so much, I don’t feel worthy most days eitherz
Amy I know exactly what you mean about wondering what you've done to deserve someone so great. I feel the same way!
This past year has been the hardest year for my husband and I. I was diagnosed with POTS and EDS and my health has just really declined. But I am getting myself back on track....well as on track as my new normal is going to be. My husband and I have been together for 18 years and married this coming July for 16 years. He works everyday so I can stay home and be with our children and has done this since we got married. He said he just wanted to take care of me for the rest of my life. I always tell him that they broke the mold after they made him. I seriously wish that you and I lived near each other Amy because I just feel like we would get along so well and I feel like you understand me and what all I am going through. I have been watching your videos for a year now and they are helping me more than you will ever know! Much love to you from Tennessee!
You are not more trouble than you are worth!!!!! My hubby is like Tom. I am grateful for him everyday.💜
Sophie and Jamies singing is 👍🏼. I didn't know croc flops were a thing. Think I'm going to get a pair, I need new flip flops. Sorry Amy! But they look so comfy. 😂
DarkBlue Matter booooo😂😂
It’s funny because I have suspected EDS and I’m always impressed by my ability to wash my back by myself 😂
I love Tom!! He’s amazing! Everyone deserves a good beautiful man! I love you guys together!💕
As someone who lives with chronic illness, I know how important it is to feel support from our partner. When I was younger, my partner struggled to understand how to beat take care of me, but we’ve now been married 20 years, and he is amazing at taking care of me, even when I worry I’m not worth it
Amy just so you know I don’t think you’re not normal, you’re a human being with tubes inside you that doesn’t make you any less human - you’re an inspiration as well. Tom is very lucky to have you 💞
Yes, you truly are blessed with a wonderful man in your life 💜! My husband has stood by me for years as I live with Lupus SLE and Achalasia plus a slew of other illnesses mixed in. He helps me so much but mainly by supporting me and helping me with my feeds, appointments and mainly laughter! I can be in the hospital in pain and he’ll comment on something funny and make me laugh, which in turn makes me feel better. Takes a truly special significant other to turn my “frown upside down....” 🙄 as he says. Lol! But I deal with so much guilt thinking why does he stay with me, I’m such a burden or we could be on vacation but instead he’s at work and I’m useless. He NEVER complains. You and Tom are so cute together and you both are good for each other!! 💜
It is truly a blessing to have sweet men in our lives! I cam relate to your feelings about Tom. My husband has been the sweetest care taker as I recover from Labrynthistis. Been unable to drive and do life for almost 2 months now.
All we can do is show our love amd apperciation for them!! ❤
The flu has been bad in Queensland as well! It’s been a month long cough and one and off fevers.
Stay safe Amy 💜
Hey Amy,
I’ve been watching your videos for sometime now but I never comment. This video was my life. I became chronically ill in 2016 and have a lot of similar medical problems as you do.
I am SO happy that you have Tom and he loves you unconditionally. You do deserve him, you deserve every single happy moment in your life!
I really do wish every chronically ill person had someone to snuggle them when they don’t feel well, wipe their tears during the hardest times, and accept that we aren’t going to live ordinary lives but be 100% okay with that.
I wish I had someone like that today..
Amy, I have been with my partner for 9 years. I am not chronically ill but have severe rheumatoid arthritis. He has been there for me and stuck by me through my deterioration. Although I still find it hard to ask for help. How did you overcome this? Btw, I dont know how I found you but I have been binge watching from the beginning during my flare up. You are an inspiration.
I messed up my knee pretty bad and my boyfriend has been helping me to class and sometimes carrying me because I haven't had crutches to help me, but he's so amazing. Not only in this situation, but also with my chronic stomach issues. He sometimes gets frustrated with it but it's understandable and he does his best.
Tom is just a natural caregiver. He is very sweet. And when you feel unworthy just look at the number of subscribers to your channel. You must be pretty terrific too. ❤️
Tom's shoes definitely look navy to me!! 😂😂😂 y'all r so cute together!!! 💜💜💜 Tom is such a good man to you!! You guys are meant to be with each!! You make him complete and he makes you complete. 💜💜 definitely need to start appreciating my husband more... Thank you for the words of wisdom today!!! 💜💜💜
Although being chronically ill is so rubbish, remember that all you and Tom have been through must have brought you together so much more than other couples. It’s plain to see how much you adore each other ❤️
I hope you feel better soon hun. Tom is so lovely how he looks after you. Xxx
I love the way Tom speaks, it makes me giggle!
You both deserve the best in life ❤️❤️ you’re so sweet to each other and it’s clear that you care for each other, it’s so precious
Thank you Amy's for be there and make my day give me hope God bless you you are beautiful couple
things that make you go HMMMM.
why do they call a hamburger a hamburger... when it is beef not ham..? HHHMMMMM
angel christine there’s actually a good answer to this and it’s because the hamburger was based on a beef dish from Hamburg in Germany!
i have gastroparesis and spent about 2 months last year in perth children’s hospital because of it. one of the teachers at the school in the hospital happened to be the author of zac and mia!!
I have my own “Tom” but he’s called brad. A month into our relationship I had a 8 month hospital stay 2 hours from our home. He came to visit every day on the train! We now have a little girl (the pregnancy was hell) and have been together 9 years! He does everything around the house, has just trained in tpn to give me a break when I need it and does the school runs etc. We are super lucky !
I have chronic health issues and my health took a nose- five a few years ago and it was very stressful. My husband is wonderful and I too am amazed that I have such a person in my life
I feel guilty all the time for being sick. I often feel like I’m a failure to my kids and husband even though they never say anything like that.
I totally understand how you feel I have told my husband many of time what have I’ve done to deserve him for me my Robert is my everything! And with my heath has been a roller coaster the last 3 years and still is. And my hubby always say no matter what happen he will always be there and we will get though this I feel so blessed to have him and I understand how you feel.
You are a wonderful couple. The perfect team. 😙
Never say you are not worth it, you are an an amazing person, happy and inspirational for us all. Tom and you are so lovely with each other!
Someone may have mentioned this, but I use old feed bags as drainage bags! I'm not sure if you have any lying around but it works well, you just need to alter it a little :) Happy to help if you don't know what I'm talking about
Oh also, if it helps, I have an efit-to-cath adapter. I can see if I can send it to you! I use it for the urine drain bags when I run out of my extra feed bags. My urine bags are 500 mL so it's super manageable
this video has helped lifting my spirits, i havent been well at all for the past few weeks and ive been vomiting but i also get quite nauseous and it really is the worse thing, I've had doctors not worry about me as its only nausea and i havent been throwing up as much as they would like. I hope you start to feel better soon though xox
You two make me smile. Thank you.
That song gave me chills😱😱 you look so fluffy and comfy🤗 love you❤️❤️
Tom is wonderful but you should definitely listen to the song You & me by You+me (P!nk and Dallas Green Collab). Noone is perfect but you are perfect for each other. It warms my heart to watch you two. X
Ps. I have my perfect man too and we played that song at our wedding last year ❤️
Natalie Sinead aww this is so so sweet of you! ❤️❤️❤️
Thanks, Amy. Been watching you for a year. I used to live near you and now I'm in the UK 😉 take care lovely 😘
I should explain the reason I comment as I listen
Is because I am blind
I have the worst memory
So I type as I listen
I hope that’s ok
Cath Coll of course that’s okay! Hope your okay ❤️
Thank you Amy 😀
Yes all things considered I am doing ok.
1-26am here
Listening to my husband and all our fur babies snoring lol
Waiting for my pain medication and steroids to kick in
Crocheting and listening to My vlogs I love
I hope today has been a better day for you and Tom
Love and blessings to both you and Tom ❤️❤️
you guys are the cutest. Hope you're both feeling better c:
Tom and you are ment to be together and you can totally see how much you love and care for each other. I am so happy that you have found each other. Some people go there whole lives and never find there true soul mate, chronic illness or not. I don't think Tom would trade his life that he has with you, just to so that he could say he was living a "normal" Life with a "normal" Girlfriend. This is his normal and you can definitely see that he loves his life the way it is... I totally understand where those feeling could from cause I have them all the time and I'm not in a relationship but I can definitely say that it keep me from being in a relationship cause I always have this feeling that I don't want to get into a relationship with someone and my illnesses bring there life down or make it so they are not living a "normal" Life. I hope that you both start to feel better soon and that you and your whole family are able to not get the flu this year. Sending you lots of hugs and love from Oregon
I know what you mean when you ask yourself about your partner. I have the same feelings alot of the times with my husband. I have MS and it can be very rough on him. My mood changes from a minute to minute. But he always says than he doesnt want anyone else. So keep him close. He does you good.
I think the coat looks cool with the badges!! And I also knew about the thanos thing it's like so big in my school right now lol and I am a massive marvel fan lol
Tom is truly amazing and so are you!!! I know exactly what you mean , my husband is the same way with me and man it’s a good feeling!!!! I’m so happy for you both!!! I’m so amazed how you live your life it’s almost effortlessly!!! And you do it with a smile!!’ You are a very strong young lady and I’m very proud to know of you and to see your day to day life!! Thank you for sharing yourself with the world!!!!!❤️❤️❤️
You deserve the best things in life and Tom is one of them! You are amazing and kind even with all your complications you don’t let it effect your mood and Tom is so so sweet! Ps you always look pretty!
I'm so glad flu season is over here
Amy EVERYONE deserves to be loved.
It's true love Amy and everybody deserve that including you. I'm happy you have a sweetheart like Tom.
I know what you mean. My husband is so awesome!! He takes his vows very seriously. I am a very lucky woman💜
Sometimes I think why do I faint as much as I do and why do I dislocate as much as I do and have as much seizures as much as I do. Sometimes I think back to when I was like 5 or 6 (even though I can hardly remember those days😂😂) and back then the biggest thing was who got the last sweet 😂😂. I sometimes I want a break and to have a day where I can like run a marathon, man alive I miss running. But stuff changes. I would never have got as close to my friends if I hadn't have got ill and I would have never have been as determined as I am now. Tom is the NICEST man and I am so happy for you to have him. Nausea is the WORST 😭😭😭
I love crocs, they are so comfy.
I've just watched your video, could you not customise a drainage bag? You could cut the original end off, put the attatchement in that would for your tube and then use heat to melt the bag snug around the end? Just a suggestion, maybe worth a try? Love your vids!!
Have you thought about draining into a container, that way you can do it bedside? Like a tub or something. Even a bedpan.
You and Tom are amazing #couplegoals.. I have spent so many years saying to my hubby he would be better off being with someone “normal” as they say. My insecurities get the better of me a lot and I always feel like I’m a burden on him and a crap mum to Isla and Lachlan. But my children are so understanding and my hubby is amazing and shows me he loves me and makes me feel better and here we are, nearly 14years later, still going strong. Hope you’re both feeling better soon, Sending loads of love from the uk 🇬🇧
Your so strong for having to go through all of the things that you have to go through keep going!❤
I think the pins would look good if both on same side..ok, back to the vid :)
I think the poppy goes on your left lapel close to your heart ♥️
I pray that one day you will make a video when everything is good and nothing bad is happening in your life..
Seriously you guys are the cutest and funniest pair ever 😭😭💕 i hope you'll last forever! 💕
If I knew the exact type you needed I'd PO Box you a shipment of them. Also you can likely buy your old drain bag brand on Amazon as they sell drain bags and other supplies (insurance in the US will cover only some purchases. I'm not sure the policy in Australia). General search tag is drain bags medical. More specific info in the detailed search can help you find it. Also your supply company might be able to acquire your previous brand. Since we both use the same company Baxter some of my supplies come from Canada to my current address in the USA.
I'm so glad you have someone like tom :) my boyfriend is the same he's absolutely amazing and tolerates all my bs :') I understand what you mean about moving out, me and my bf have been together 5 and a half years and hopefully only getting round to move out this year 🤞 I'm so excited to have our own place :')
I know what it's like to feel like your health issues are too much. I have a heart problem and I can't even stand up without my heart going nuts. But my husband takes such good care of me. I'm so incredibly lucky!
I feel ya! I have so many health issues and my husband deserves a healthy wife who can work and keep up with him, but he doesn’t want that. He loves me for me, illness and all. I definitely got so lucky with him. We have been together 17 years and married 16.
Oh and crocks are awesome! Not the weird looking ones, but love all of their regular shoes. I have severe RA and they help my feet! The only flip flops I can wear!
I just tried the Thanos search - it's amazing 😁. Thanks for the Tip, it's really fun and Made my day❤. And I think you really deserve Tom and your beautiful relationship ❤❤. I'm Single for ten years now and I wish I would find someone as caring and loving.
It’s fine with both badges
You and Tom are just sooo adorable.. Lotsa 💚 from Cape Town, South Africa.. 💚Your vids
Tom now knows you hate his crocs 😂😂
The thanos thing is awesome!!!
You and Tom are goals! My bf is pretty good at handling my chronic illness thankfully. You guys are so cute!
the singing was so beautiful!
P. S. I'm more of a DC fan myself. I figured you would be too considering you and Wonder Woman have so much in common.
The poppy always goes over your heart. I even have a poppy on my visor in the car to remind me of my great grandfather.
I've read zac and mia and absolutely loved it!
Amy, please never feel that you're not worth it, you're strong, beautiful, and highly intelligent. I truly hope that you both are always happy. Tom, loves you with all his heart. Stay strong you got this. Your friend Devon LaCava Wakefield MA. 💖💖
I think put the pins on the same side
Have you tried Sorbitol for your dry mouth? It is in sugarless candy like Mentos. However I do not know whether you can digest candy. You could leave them in your mouth for a while and then spit it out. The other possibility are gum with sorbital because no one swallows gum. I hope you helps Gruessle Barbara
Love you 😍from Jordan 🇯🇴
Stay strong please ❤️
Waaahh you guys are just so cuuuuute I can't with you guys! I've got an amazing other half too, he's stuck with me through so much! They really are few and far between, we're lucky gals!
Awwwww seriously love the bones of you two 🥰🥰. You’re both lovely people who deserve each other. I always feel guilty but my hubby just makes me laugh instead of feeding my “pity party😂”. Just love each other and don’t take life too seriously, like us you two laugh and that’s how it should be but then don’t feel guilty when things get tough, that’s a relationship!! We are loved and we deserve that, also we love them and they deserve that, it’s called true love and being good people we deserve that. Keep being you Amy and never apologise for being a beautiful, loving person 🥰🥰
He is super but so are you! 🌷💕
My husband is the same!
Hope you feel better on Friday! 🎀
love you so much you and Tom make my day
Just FYI each years flu vaccine is to prevent a new / different strain. So technically your only covered for this years expected strain and can catch any other type of strain if it's going around, I work in a hospital and get my flu vaccine each year but 2 years ago ended up with the flu and had strain A for example and was vaccinated with strain B for example.
The Flu is slowly going away in the US, since the summer is right around the corner. It was bad this year but didn’t seem as bad as last year.