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00:01 The founder's personal experience with ME/CFS and their motivation to develop the app. 02:02 Discovering impactful treatments through research 05:55 Difficulty in assessing the validity of potential treatments and clinical trials 07:54 Struggle with diagnosis and finding support without social media 12:04 Transitioning from ME/CFS to resting and exploring health practices 14:11 Utilizing an app for navigating health information 18:14 Using user feedback to guide treatment insights 19:55 Ensuring quality research data and trials on the platform 23:38 Challenges in healthcare access and treatment development 25:12 Bridging the gap in knowledge translation for treatments and interventions 28:48 Developing a comprehensive app for ME/CFS patients 30:41 The platform provides daily access to new breakthroughs and professional insights. 34:23 Lack of research on a popular low-risk home-based therapy for cerebral palsy 36:05 Looking forward to following the story Crafted by Merlin AI.

whats that medication called, what was leveling you up to 60%? :)

I got Covid March 2020, and LC since, so much of what you went through is what ive been dealing with. Orthostatic hypotension, dysautonomia, so much fatigue and ao many symptoms across my system. I was very active prior, hiking, running in the mountains, rollerblading, biking, weights, organic keto diet and my job also required me to walk about 5 miles a shift, outside in the AZ heat, worked 3 jobs. That , to iI couldn't getout of bed to shower, or that was the big effort of the day. Slowly tried to increase activity, would see progress then crash. Then, got the JJ, had an immediate reaction of fever, flop sweat, Covid symptoms all over again but worse. I do all the things,so many supplements, methylene blue, nac, vinegar, iver, yoga nidra for nervous system, carnivote diet...cant keep any progress, it feels like i have multiple autoimmune diseases at once, definitely do not feel like its my body. And the feeling like you're dying because every cell in your body feels poisoned. No Dr has been helpful, bounced around from specialist to specialist, no help.

What is a microclot test ???

Seems like A mild post virus infection this one. Alot of cases and sympoms are way more difficult and terrifying than being described here.

👎👎👎👎👎

I reconice the feelings that i have long covid in this part of the world en not for example in India where you dont have food when you not working. I have long covid for more than 4 years and i m luckily a positive person . Stay positive and learn from this.😊❤

Alan Gordons work is great, huge help for any mind-body symptom.

isn’t cold exposure over stimulating the nervous system for a person with LC?

Thanks for the content. Can I ask about your eye problems? Did you have eye floaters?

I think it's really irresponsible for her to say she doesn't believe in pacing/spoon theory. Even if it is to do with mind/body disregulation you still need to listen to your body before you've done the work and it's safe to start doing more

Thanks for answering my comment on the approach to research. For meditation apps Insight Timer is great and it has lots of content. My favorite are Yoga Nidra meditations.

Did we know at what tissue temperature did SARS COV2 better replicate ? Why ? Because german virologist Christian Drosten suggest that SARS COV2 better replicate at lower tissue temperature (at TWiV 659 at min29) Theoretically higher mucouseal respiratory temperature protect us against Covid19.

Regarding vaccines, sure standard protein vaccines have been around for decades but not MRNA. Pfizer’s was the first to get FDA approval for covid. And now if you follow latest publications like from merogenomics channel. He was part of research on psuedouridines, showing the synthetic additives could be responsible for speeding up cancer cells. Point being that’s just one example of new science that was forced upon us without enough research or understanding of the long term consequences and more stuff like turbo cancers are now being discovered. It’s not good! I would argue against that commenter that there aren’t researchers looking at MRNA vaccines, that’s simply not true.

This disease is just like she said. I can relate to the same neurological symptoms! When she said straight up dementia, I totally get it! From being disassociated, to tremors, to disautonomia! Insidious! I had from Aug 21 to March 2022 ish. Fast forward to now, I’m 7 weeks in again. This is horrible. Just when you recover it can happen again. Lord Jesus help us all.

This man is super hard to understand. Video needs subtitles

Until last year, I thought this was all just slow recovery from cancer and a stem cell transplant. Now I'm realizing something more is at play. age 56

in 2021 I underwent a stem cell transplant for lymphoma. (lots of Chemo) in 2022 I got Covid and could not shake the active infection for 4 months. I am now just recently understanding that my symptoms when I try to bike or work are probably not the recovery from cancer but the recovery from long covid.

Great for Rachel. However, I would consider this a very "mild" case of long covid.

America and Britain must be held accountable for paying china to make Covid in a lab in gain of function research but no one says a thing about that

I'm not sure about this theory. You've said previously that charities will likely be the main source of funding. Most people donate to charities for purely emotional reasons, not because of cold, rational economic analysis. I think we need much more emotive advertising to draw attention to the very worst suffering of long-COVID/ME/CFS

Vaccine injury is not a conspiracy, please never call it that Harry

Can we all sue Beijing ?

Thanks for the videos. It would be helpful to have a video on what you did that worked to get you to where you are today. Thanks

4 months of being bedridden with long covid sure left me decoditioned. Always an athlete. I even had to rebuild my breathing muscles. It was horrid

100% true and a smart way to advocate. Tall task but keep at it. We appreciate it.

I found this really hard to follow. My experience of LC is that I am the calmest I've ever been. I don't see how relaxing any more So she was very very sick for a long time .... visualised being healthy .... and then was healthy? Huh.

Thanks guys I got a lot from this. I don't know how it works. I can watch youtube for hous on end but when I do a few hours of graphic design I get symptoms the next day. How does that make sense? I'm not stressing whe n I'm doing it. Is it just because I'm using my mind more?

I hope that people will be open to listening to her recovery story. "Brain training" is a great tool, especially at our lowest point.

Did we know at what tissue temperature did SARS COV2 better replicate ? Why ? Because virologist Christian Drosten suggest that SARS COV2 better replicate at very low tissue temperature (34-35C)(at TWiV Nr 659 at min29)

But Harry any drug is just going to mask symptoms ! It won't address the root cause! Drugs don't heal! People need to change their mindset about popping a pill it dosnt heal and what about side?affects! It's a money making industry like cancer! Sick people are big business!

I've had severe LC symptoms since March 2020 - about 5 weeks ago I saw a Dr on youtube say AUGMENTED NAC had been shown to break down the virus in LC (I'd already tried regular NAC with no improvement) so I googled, bought some, not holding out a lot of hope, and 5 weeks on I am seeing big improvements. I felt worse before things started to improve though - ( very feverish, cough coming out and sleeping loads for the first couple of weeks) . Still going with it and hopeful it might take me to 100% recovered. Thought I'd share in case it might help someone else suffering.

Hi Harry, just found you and thanks for your channel! Did you have the covid jab? I think it’s really important to talk openly about this as it could be the the elephant in the room! I’m a mother of two grown up children I tried so hard to get them to think critically about the jab but they got sucked into the mind control of the fear based propaganda! They didn’t listen to me and I was devastated! 😢

The jab contains spike proteins that wreak havoc on immune system! I wish people had thought critically about the covid jab!😢

long convid vs long vAxXiNE

I wasn't an athlete but I was in decent shape with strong arms and legs...I am exhausted after the smallest exercise. I takes me a day or two to regain energy for regular tasks. Something is lingering in my system. It's been 3 years.

Id love to share my story. These helped me to have some hope

That is by no means the worse it can get. My daughter cannot leave bed at all not even to use a toilett chair directly beside the bed for months now. She can do nothing, she cannot even endure my silent presence. That is a horrible horrible sickness.

Great interview I have a very similar story to this. I lived for training and it was my meditation and religion (something I put all my faith and hope in). Even before I started endurance events I loved the outdoors. Now I can't walk more than 500 steps without PEM. I think it's very interesting that long COVID came after the second infection. It would be interesting to know what Craig did differently or what was different witht the secone infection? I explain it to other athletes is that it feels like an extreme BONK that lasts much longer and rest plus food will not make it improve

People got sinus allergies usually experience sensitivity in the brain and it affects the equilibrium when ears are being affected. Before Covid, this kind of symptom wasn’t really much of a concern. It exhilarated when happened to be associated with “fearful”memory in the brain- alongside, “guilt” of something you didn’t have a choice, but you are in the loop. Your brain still believes you’re in hijack. If there is fear, there comes an obsession. Obsession causes burnout. Once your body’s burnt out, it creates too many different symptoms. It’s where you focused your energy on. It’s not the sinus that creates fear, but the sensation I. E. off-balance, head pain, earache, eye ache, etc…that heightens your perception, and constantly feeling dizzy or disoriented and blurry vision. Sooner or later, it just comes and goes, until your brain realises it’s a repetitive pattern, that you’re not actually broken and you’re still here. Therefore you are safe. Wake up…that you even say a mantra back to it: boring, boring…uninterested, then it eventually subsides. For some people who experienced other trauma, they may have exactly the same response.

I've always wondered what is the difference between people for whom this brings results and for whom it doesn't. I see one key element many times over (probably not the only one though ) and that is support and environment. It seems like majority of recovery stories are women who have support from their partners, family, etc... I don't know how exactly it was in her case but she mentioned her boyfriend couple of times. I bet he took care of most stuff (albeit probably very hard). Not saying that men don't recover, neither that they don't get this support. But it's more about how does this work on average. There is more nuance to this, of course, but comment section isn't the best place for it. :)

Thank you for this interview ❤

I have post vaccine syndrome and long covid. i got post vaccine syndrome sep 2021 and then long covid dec 2023.

Apparently, I have done all the things that this woman has done but I am 3 1/2 years end of severe fatigue I'm not getting any better at all. It seems odd that some people get better from the simplest things and other people like myself do everything possible and they're not getting better

Thank you for this podcast! What is her name? And how long did it take to get back to her normal active lifestyle?

Why aren’t these ‘programs’ freely accessible? It really fucks me off!

Gupta programme won't help my seizures from long covid

This is a good idea when working with pharma, but it will likely take years, it will not involve patients enough, and it will end with a medication that is quite expensive and with a patent to keep the price high. There are already lots of existing, generic medications with years of safety data that are on the market which can be tested very quickly and for much less money... but the lack of financial benefit means that pharma will not pay for these trials.

Got my diagnosis: post viral fatigue syndrome, this week :(