The brain is a masterpiece. Her mama is right. Neuro plasticity is AMAZING. May she regain what she’s lost, and may nothing but happiness, peace, and contentment follow this sweet family for their years to come❤️
A traumatic brain injury in 2007 left me with seizures, memory loss and other difficulties. It took until 2020 for me to heal up enough to be even close to where I was before. Keep the faith she's young and still growing, you never know how far she can come.
Amen. God bless you for sharing your personal testimony & progress. This entire family literally touched my heartstrings tonight. What an incredible family filled with so MUCH LOVE. 🙏🙏🙏🙏🤗🥹❤️♾️
I would hang with this Mom all day, every day. What a complete delight she is. That mother will make all the difference in her child’s life. Just an incredibly joyful, strong young woman. The dad is no slouch either. Kind, gentle and present. These two parents have an emotional IQ through the roof. I thoroughly enjoyed this interview. Amazing upload.
Aislynn is trying to smile. She's holding eye contact. And she's listening. Without a doubt she would know her mom, dad and sister by their voices, non-verbal cues, smells feel. She's not brain dead; she's just working at a lower capacity. Such a terrible diagnose to have but there is hope. The mom was right about neuroplasticity especially relevant in children. I hope they get help with Aislynn's ongoing needs and therapy. It's good they're mindful of their own needs. The sister is a sweetheart. Blessings from afar.
Wow, it's not common to see two parents with such a high level of emotional intelligence and maturity. Just the fact that they could open up and speak freely about the negative emotions they face (and, let's be real, we all face as parents of special needs children or as a person with special needs themself) shows how secure and grounded they are. Sending them hugs from Argentina!
My son that's in my profile picture has Severe Hypoxic Ischemic Encephalopathy. They said he would never walk, talk, or smile. My wife had Uterine rupture at birth and he was out of her uterus with no cord attached for around 40 minutes. So all that time with no oxygen. He had to be brought back, and thats when they told us he'd never walk, talk or smile. He would be a newborn development for life and had a 60 percent chance of passing before the age of 2. He is doing SO well for his level of injury.
Doctors realky dont know as much as we are led to believe. I have defied odds countless times! I had severe heart failure and against all expectation my heart is now essentially "normal." Now i have end stage kidney disease too and because my heart is improved i can possibly get a kidney transplant. Anyway, they truly dont know and literal miracles happen every day. ❤❤❤❤❤
I love “you’re safe” as a grounding statement for any child. My son has such high anxiety and doesn’t enjoy a lot of things, but if he’s feeling out of control I always tell him he’s safer ❤
as a mom of 2 'bad babies' who are always causing trouble this mom taught me to feel grateful. Sometimes you don't realize how precious something is until its gone.
She's so pretty. She's IN THERE ! I'm not a Dr. but anyone who has a eye's & a soul can see that this little girl IS in there ! You can see that she's responding. You can see that she's doing everything that she can to focus and communicate, even to the point of mouthing word's that won't come out. I Believe that with massive, intensive non stop therapy there will come a time when you tell people her story & how she was so ill at 1 point in her life she almost died, people won't believe you ! Best of Luck. May God watch over & provide for you Always.
I was so caught off guard when the mom described Aislynn as a bad kid and then had to do a double take when her mom was happy about it and didn't mean it as an insult.
there's something really heartbreaking and also really beautiful about that answer near the tail end about how much aislynn understands; you want to know that she knows how loved she is and what's going on, but you can't know, and you can't assume either, and you love regardless
I have a nephew who is blind, nonverbal and has no voluntary movement. He can’t communicate at all. But I’ve always believed he has learned to understand what people are saying, to some extent. He’s 25 and everyone talks to him. There’s no way to KNOW but that’s all the more reason to keep talking and being there for him.
Absolutely. Ultimately, that unconditional love you should have as a parent is what matters. It's not about whether or not your child has the ability to truly "recognize" you as their parent. She knows that's her baby, and that's all the reason needed to give Aislynn all the love and care she deserves. She seems like a wonderful woman, and her family is lucky to have her!
I know you can’t be sure, Aislynn probably doesn’t recognizes her as her mom (or maybe yes! Who knows), but what makes me feel sure about, while watching her interact, is that she can difference between people, she know who is this amazing woman that’s always by her side comforting her, and that to me is like her definition of mom. It’s a little bit like dementia, people forget their loved ones but there is something a pattern, emotions, sounds, smells that deep down makes you never forget completely. There is always a print we leave on people, it can be perceived differently but it is there.
@@WendyDarling1974there’s really no telling how much he could understand. He could understand absolutely everything or he could just recognize familiar voices but not understand language. What is his disability?
After a seizure in children, comfort and reassurance afterward are essential. She understands this. This mom is too much. A true angel warrior. Bless her heart.
I've known for years to try to avoid telling a kid "you're okay," but I'm not sure I'd ever identified "you're safe" as a wonderful, true alternative. There are a ton of great takeaways in this video, and this is one that is beneficial with every child.
I haven't read all the comments but I'm sure other people have said how much they appreciate the father's honesty. It came from a really real and broken place and I recognize that from seeing it in myself and my brother. It really gives me hope that yes things are really hard but you can keep going!! Especially since your kids really depend on you and want you.
Same here! I love the light and joy in mom and dad. They are superstars and great role models for all of us on living joyfully and authentically regardless of your challenges in life.
When her Dad held her it looked like she was mouthing dad over and over. With peace and love on her face. Best interview in awhile. What a loving, knowledgeable and caring family. New neural pathways ❤❤❤ healing and mending in action!!!!
Her older sister is so very very sweet. Make sure you grant her enough space for rest, growth and self-discovery too. ❤ Her kindness shouldn’t drain her, keep it safe.
I'm sure they do that there's lots of kids in UK and USA who are carers for a parent often very young kids maybe aged eight or nine as parents are single mums in some cases both parents have disabilities the children have to grow up quick
16:40 so great to hear that he and his wife recognized that to help their daughter they had to help themselves. If everyone had parents like them, the world would be a much better place.
I admire the father for being so open about his feelings. As a boy was raised to believe that feelings are not important. Now that I am an adult I believe that a "real" man is able to acknowledge his fears. You have a wonderful daughter and seeing your love for her makes my day!
Wow, I just “Googled” this condition and it specifically talks about Aislynn and shows her and Mom’s photos. They’re so adorable. I pray 🙏🏽 God will continue to bless them 🙋🏽♀️💕🕊
The seizure she had at 7:45, wow...😯 Poor thing, looked distressed and scared, because she cried. 😢 Broke my heart. 💔 She's such a sweet little girl ❤ Her sister is sweet too, and their parents. ❤️❤️
I’ve been watching for years and these parents are the best ones yet! They didn’t let this steal any joy from them! Mom’s laugh and smile, Dad being a protective loving teddy bear brought me to tears! Aislynn is so beautiful and she has the thickest shiny head of hair! Mom and dad I hope you see this and know that you are mind blowing! 🥰🥰
I love that when you asked her big sister, "what is special with your sister?" She told you all the things she loves to do with her sister and what she loves about her 😍. What a wonderful family ❤️.
That is how you love unconditionally. Taking care of and loving a person whether or not they may or may not remember you or even having a consciousness. WOW.
I greatly appreciate the parents discussing their mental health and the importance of opening up about it and prioritizing it. The kids are remarkable and you can tell the family all love each other so much.
How heartbreaking. As a type 1 diabetic I have had my blood sugar drop while sleeping and while it usually wakes me up, it is a horrible feeling. One time it dropped so low that if I hadn't had my family around and had emergency glucose pens, I would have died because all I could do was scream for help. Couldn't even sit up. I can't imagine that as a little baby and unable to know or verbally express what's happening or how you feel. It must have been such a shock having a normal day go to the polar opposite. You can tell her parents really love and care for her. ❤
I have a nephew who at 25 has far less function than this, owing to a premature birth, birth defects and a birth injury. His parents have been and will always be completely devoted to his happiness and wellbeing . He’s been a part of every family outing, get together, vacation, trips to the store, going out to parks and gardens. SBSK has resonated with me over the years because it resonates so much with what I’ve seen demonstrated in my nephew’s life. For example I always assume he can understand me (he can hear but not speak or communicate otherwise, no voluntary movement) and just talk to him like anyone. And talk TO him not about him. The main thing you can get out of him is knowing when he’s happy (parents around, music playing, people singing) and when he’s upset (lonely or uncomfortable). And I think just trying to maintain that happy face, his happy (though blind) eyes, is enough.
I’m a retired AAC SLP (alternative and augmentative communication speech language pathologist). It’s amazing how much communication we can do without words!
Aislynn is such a sweetie, I want to give her the biggest hug. Wish I could be friends with this whole family, they are incredible. I didn’t start crying until sister started talking. Her desire to comfort Aislynn is so beautiful. I’m so glad the parents are prioritizing their mental health. Big love to this family ❤
Mom and Dad are amazing and well educated about their daughters needs and condition. They are doing the very best they can to make the quality of her life as comfortable as possible. Wishing the whole family nothing but best wishes ❤
I don’t say you’re okay because I don’t know if she’s okay. She might not feel okay and I don’t want to invalidate how she’s feeling so I always just say “you’re safe”. You might not know what’s going on but mommy’s got you. I know what to do, I can take care of you, so you’re safe.
I have worked with people who are in comas. I spent lots of time at night. And I’d do range of motion. I’d read her cards people sent to her. I’d sing ask her questions. Then one day I’d volunteer for a double and was helping people eat. I chatted away and Alma would slowly turn toward my voice as someone who is catatonic . When our eyes met she’d turn away. But as she heard me talk she’d slowly turn to the sound of my voice. It shocked me that my talking should affect her so. So I am sure that you daughter recognizes her family especially her mother. She imprinted on your voice before she was born and that can’t be taken away, of that I am sure! ❤❤❤ thanks! Such a lovely story. I hope you have many children!
These parents are truly amazing. I feel like the dad has put his discomfort about mental health to be able to be there for his daughters, and the mum’s answer on not neurologically knowing but just wishing she’s happy. Such genuine and selfless answers. Really lucky kids to have such great partners. I wish this family all the best!❤
Bless this family. Mom dad sister are all so wonderful. Never give up hope the world or medicine is changing and advancing each minute. This family will be in my prayers. Love you all. God bless.
Shes content, she definitely knows she is safe with you, your love just surrounds her. You calm her and bring her peace. She listens to what you say.. I know without a doubt she knows you're her mama and loves you so. God bless you and your family❤
Thanks again for the work that you do! I have epilepsy also, small myoclonic seizures. So it's very frustrating when people freak out and call EMTs. I am more afraid of people's reactions to my seizures than the actual seizures. The light you shine into these situations is amazing. Thank you!
I love Ayslinn, her sister generosity, her dad honesty and care for his family, and how amazing and clever her mom is, how respectful is for her children! What an incredible family!
This family is cool AF. I love the mom and dad's parenting style, laughter, smiles, and natural (not forced) positivity. Your kids will become well adjusted adults if you keep the positive and encouraging vibes coming their way. Also, mom, huge ups at 21:39 when you share you simply want them to be happy. That is a great goal, and its a goal I have built my life around as someone who is differently able and has a rare medical condition that is not clearly defined or with a clear treatment pathway. I hope you read this because I am inspired by your grateful attitude and the positive environment you purposefully choose to create for your kids. We need parents like you and humans like you, as life is sometimes unpredictable and many situations are outside of our control. We have to proceed living a good life even as we encounter challenges and extend ourselves and others grace when a typical goal for other people is outside of our (or others') capability. I cannot always walk, so if I cannot because of my body and a physical limitation, I roll. I see that you all "get" this in a very real way and celebrate the little wins with your girls - which is 💯 they way to live well and happily. Celebrate every success 🙌 🎉. Wishing this family all of the best in the future.
What an amazing couple. They were so transparent and honest with their struggles. I cannot begin to imagine how it they feel. My heart just goes out to them.
What a beautiful sweet girl 💖. Her momma is a wonderful amazing mother and very beautiful also. The love the parents has for their daughter ....the dad is one of a kind as well. 💯❤❤❤❤🙏
The brain is amazing. May she continue healing! God bless this sweet family ❤️ my husband has a brain injury. We were told he'd never walk or talk. Drs were wrong. He walks and talks, not like he used to, but 11 years later he still improves.
What an amazing family! ❤ There are many ways in which children can recognise their mom. It's not only on a neurological level. They have a deep imprint and cellular memory. I wouldn't worry about that mom. I'm 100% sure that your girl knows who you are 😊
I was born in 1965..grew up in germany.... auf dorf and my best friend had a brother with the same symptoms as your daughter...i am glad today that we had integrated ingo normally into our lives back then...because when he died he was relaxed and somehow happy
What a wonderful family. Adelaide is a special person and an incredible sister. She’ll be a terrific doctor one day. Chris you are magical with these kids.
Absolutely incredible. My daughter went into cardiac arrest in the heart cath lab during a procedure when she was 8 weeks old. 62 minutes of chest compressions before she was successfully put on ECMO. 4 days later she had open heart surgery to repair her severe aortic stenosis. Seizures started immediately. We didn’t know what the extent of the damage done to her brain was at that point. I now know it was because they did not expect her to survive such a catastrophic event. After we finally got an MRI of her brain it showed that she had quite a bit of right sided damage done in her brain. We had no idea what that meant for her or what her life would look like. Junie has Hypoxic ischemic encephalopathy from those 62 minutes of chest compressions. Neuroplasticity is truly an incredible thing. She and her twin are now 4 years old. Junie has mild cerebral palsy with left sided hemiparesis. Cognitively there does not seem to be any deficits thus far. I believe having a twin (Jemma) has played a huge part in Junie’s progress. So much love and respect to you, your girl and all of your family.
![BLACK BAG - Official Trailer [HD] - Only in Theaters March 14](http://i.ytimg.com/vi/Du0Xp8WX_7I/mqdefault.jpg)
As an overwhelmed mom to two toddlers, thank you for reminding me that them being "rotten" is a good thing.
❤️So true
Yep, enjoy your inquisitive rascals. 😂 Finding out the power of opposable thumbs is incredible.
I thought that same thing! My nearly 2 year old is always emptying every cupboard and drawer he can. That's an absolute blessing ❤
Let’s not be delusional would you eat rotten? food no.
alright lil bro
The Mom explaining why she says "You're safe" instead of "You're ok" is just a-class parenting. Absolutely wonderful parenting right there!
I always tell my daughter… you are safe… I got you … you okay
The difference that changing just that single word makes is incredible. 💖
Love that
the mother is a high level communicator.
Buuuut she’ll call her a “bad baby” ??
The brain is a masterpiece. Her mama is right. Neuro plasticity is AMAZING. May she regain what she’s lost, and may nothing but happiness, peace, and contentment follow this sweet family for their years to come❤️
Amen!!!
God Bless 🙏 this amazing family!!❤️❤️❤️❤️
🥹🙏🙏🙏❤️
A traumatic brain injury in 2007 left me with seizures, memory loss and other difficulties. It took until 2020 for me to heal up enough to be even close to where I was before. Keep the faith she's young and still growing, you never know how far she can come.
❤🙏🏻
Praise God for your healing and recovery! Thank you for sharing!💜
Yes!!!🎉🎉🎉
Amen. God bless you for sharing your personal testimony & progress. This entire family literally touched my heartstrings tonight. What an incredible family filled with so MUCH LOVE. 🙏🙏🙏🙏🤗🥹❤️♾️
❤✨️👏🏾👏🏾 You kept the faith up and worked hard, and you healed ! CONGRATS! ❤
I would hang with this Mom all day, every day. What a complete delight she is. That mother will make all the difference in her child’s life. Just an incredibly joyful, strong young woman. The dad is no slouch either. Kind, gentle and present. These two parents have an emotional IQ through the roof. I thoroughly enjoyed this interview. Amazing upload.
alright lets talk about the kid lil bro
Yah! Great attitude. And quiet acceptance of their little girl the way she is. ❤
Totally agree. They are delightful.
I completely agree with you! 😊
She’s an awesome woman. I’d definitely want to be friends with her.
When her mom’s holding her, it’s like she’s holding a little doll of herself. ☺️
❤
They're identical. Both mom and daughter are cute as buttons.
Same cute button nose ^_^
She is her moms mini me❤❤❤
Haha, yes!
Aislynn is trying to smile. She's holding eye contact. And she's listening. Without a doubt she would know her mom, dad and sister by their voices, non-verbal cues, smells feel. She's not brain dead; she's just working at a lower capacity.
Such a terrible diagnose to have but there is hope. The mom was right about neuroplasticity especially relevant in children. I hope they get help with Aislynn's ongoing needs and therapy. It's good they're mindful of their own needs. The sister is a sweetheart. Blessings from afar.
Mom mentioned her therapies.
Wow, it's not common to see two parents with such a high level of emotional intelligence and maturity. Just the fact that they could open up and speak freely about the negative emotions they face (and, let's be real, we all face as parents of special needs children or as a person with special needs themself) shows how secure and grounded they are. Sending them hugs from Argentina!
Both parents are so articulate. They are doing awesome with an impossible situation. Praying for Aislynn.
It's not impossible at all, it's their child.
My son that's in my profile picture has Severe Hypoxic Ischemic Encephalopathy. They said he would never walk, talk, or smile. My wife had Uterine rupture at birth and he was out of her uterus with no cord attached for around 40 minutes. So all that time with no oxygen. He had to be brought back, and thats when they told us he'd never walk, talk or smile. He would be a newborn development for life and had a 60 percent chance of passing before the age of 2. He is doing SO well for his level of injury.
hugs man, you all deserve the best
❤️🫶❤️
Great to hear. That is impressive
Doctors realky dont know as much as we are led to believe. I have defied odds countless times! I had severe heart failure and against all expectation my heart is now essentially "normal." Now i have end stage kidney disease too and because my heart is improved i can possibly get a kidney transplant. Anyway, they truly dont know and literal miracles happen every day. ❤❤❤❤❤
❤
I love “you’re safe” as a grounding statement for any child. My son has such high anxiety and doesn’t enjoy a lot of things, but if he’s feeling out of control I always tell him he’s safer ❤
I wish my parents did that for me growing up
as a mom of 2 'bad babies' who are always causing trouble this mom taught me to feel grateful. Sometimes you don't realize how precious something is until its gone.
She's so pretty. She's IN THERE ! I'm not a Dr. but anyone who has a eye's & a soul can see that this little girl IS in there ! You can see that she's responding. You can see that she's doing everything that she can to focus and communicate, even to the point of mouthing word's that won't come out. I Believe that with massive, intensive non stop therapy there will come a time when you tell people her story & how she was so ill at 1 point in her life she almost died, people won't believe you ! Best of Luck. May God watch over & provide for you Always.
I agree. And she knows exactly who her mother is.
Amen
My son also has Tango2 and I'm so happy that 3.5 million people have had the chance to learn about it.
I was so caught off guard when the mom described Aislynn as a bad kid and then had to do a double take when her mom was happy about it and didn't mean it as an insult.
Dear Mama, Your daughter knows how you hold her, what you smell like, how your heartbeat sounds. She knows you and she is HAPPY that you’re her mama!
there's something really heartbreaking and also really beautiful about that answer near the tail end about how much aislynn understands; you want to know that she knows how loved she is and what's going on, but you can't know, and you can't assume either, and you love regardless
I have a nephew who is blind, nonverbal and has no voluntary movement. He can’t communicate at all. But I’ve always believed he has learned to understand what people are saying, to some extent. He’s 25 and everyone talks to him. There’s no way to KNOW but that’s all the more reason to keep talking and being there for him.
Absolutely. Ultimately, that unconditional love you should have as a parent is what matters. It's not about whether or not your child has the ability to truly "recognize" you as their parent. She knows that's her baby, and that's all the reason needed to give Aislynn all the love and care she deserves. She seems like a wonderful woman, and her family is lucky to have her!
I know you can’t be sure, Aislynn probably doesn’t recognizes her as her mom (or maybe yes! Who knows), but what makes me feel sure about, while watching her interact, is that she can difference between people, she know who is this amazing woman that’s always by her side comforting her, and that to me is like her definition of mom. It’s a little bit like dementia, people forget their loved ones but there is something a pattern, emotions, sounds, smells that deep down makes you never forget completely. There is always a print we leave on people, it can be perceived differently but it is there.
@@WendyDarling1974there’s really no telling how much he could understand. He could understand absolutely everything or he could just recognize familiar voices but not understand language. What is his disability?
I appreciated the dad's vulnerability to talk about their mental health and how important open communication is. I admire them both.
After a seizure in children, comfort and reassurance afterward are essential. She understands this. This mom is too much. A true angel warrior. Bless her heart.
Absolutely god bless these people
I've known for years to try to avoid telling a kid "you're okay," but I'm not sure I'd ever identified "you're safe" as a wonderful, true alternative. There are a ton of great takeaways in this video, and this is one that is beneficial with every child.
This mom would make an amazing pediatrician. Kudos to this family for their strength and fortitude, they’re a total inspiration.
Absolutely agree with this comment. She's humanizing, intelligent & motivated to take beautiful care of Aislynn.
I haven't read all the comments but I'm sure other people have said how much they appreciate the father's honesty. It came from a really real and broken place and I recognize that from seeing it in myself and my brother. It really gives me hope that yes things are really hard but you can keep going!! Especially since your kids really depend on you and want you.
"You're safe" - absolutely beautiful and a great alternative to 'you're ok'.
0:48 Mom’s laugh is so contagious and I wish we could multiply it 1 billion times. ❤
Same here! I love the light and joy in mom and dad. They are superstars and great role models for all of us on living joyfully and authentically regardless of your challenges in life.
When her Dad held her it looked like she was mouthing dad over and over. With peace and love on her face. Best interview in awhile. What a loving, knowledgeable and caring family. New neural pathways ❤❤❤ healing and mending in action!!!!
Omg I just noticed, what an absolute darling
This girl is so sweet and has the most GORGEOUS hair! Looks like her mama ❤ The parents are doing an awesome job.
Yes
I noticed how stunning her hair was straight away! Xx
❤ Doesn't she look just like Mama's. ❤
Aislynn and her family are absolutely beautiful!!
A cute little family they have there. ❤
Adelaide is precious… what a great big sister and wonderful parents. ❤
Exactly, such a cutie!🥹
Her older sister is so very very sweet. Make sure you grant her enough space for rest, growth and self-discovery too. ❤ Her kindness shouldn’t drain her, keep it safe.
I'm sure they do that there's lots of kids in UK and USA who are carers for a parent often very young kids maybe aged eight or nine as parents are single mums in some cases both parents have disabilities the children have to grow up quick
16:40 so great to hear that he and his wife recognized that to help their daughter they had to help themselves. If everyone had parents like them, the world would be a much better place.
Very true
I admire the father for being so open about his feelings. As a boy was raised to believe that feelings are not important. Now that I am an adult I believe that a "real" man is able to acknowledge his fears. You have a wonderful daughter and seeing your love for her makes my day!
These parents are saints. She is incredibly lucky to have them. I hope she lives an incredible and filled life life. My heart goes for her
She looks just like her Mom. I can tell she really wants to be able to talk.
Wow, I just “Googled” this condition and it specifically talks about Aislynn and shows her and Mom’s photos. They’re so adorable. I pray 🙏🏽 God will continue to bless them 🙋🏽♀️💕🕊
The seizure she had at 7:45, wow...😯 Poor thing, looked distressed and scared, because she cried. 😢 Broke my heart. 💔 She's such a sweet little girl ❤ Her sister is sweet too, and their parents. ❤️❤️
I’ve been watching for years and these parents are the best ones yet! They didn’t let this steal any joy from them! Mom’s laugh and smile, Dad being a protective loving teddy bear brought me to tears! Aislynn is so beautiful and she has the thickest shiny head of hair! Mom and dad I hope you see this and know that you are mind blowing! 🥰🥰
I love that when you asked her big sister, "what is special with your sister?" She told you all the things she loves to do with her sister and what she loves about her 😍.
What a wonderful family ❤️.
*She knows you Mama! She knows you!! I promise, her soul knows EXACTLY who you are XO*
That is how you love unconditionally. Taking care of and loving a person whether or not they may or may not remember you or even having a consciousness. WOW.
I greatly appreciate the parents discussing their mental health and the importance of opening up about it and prioritizing it. The kids are remarkable and you can tell the family all love each other so much.
I’m sorry baby girl… she’s beautiful
Phenomenal parents, lovely children. Aislynn looks like both her mom and dad. I wish them all the best.
Aw. I went to school with Mom. Much love to the family. Glad they’re able to tell Aislynn’s story.
She laughed when you blew the raspberry. She smiled with her eyes. ❤
How heartbreaking. As a type 1 diabetic I have had my blood sugar drop while sleeping and while it usually wakes me up, it is a horrible feeling. One time it dropped so low that if I hadn't had my family around and had emergency glucose pens, I would have died because all I could do was scream for help. Couldn't even sit up. I can't imagine that as a little baby and unable to know or verbally express what's happening or how you feel.
It must have been such a shock having a normal day go to the polar opposite. You can tell her parents really love and care for her. ❤
I’m glad you could get through that, and I hope you stay healthy ❤
The way she studies Chris, you know she's making a connection.
This child has wonderful positive parents. They are so great. What a fortunate child. Keep up the good work.
Hello big sister!!! You are kind, beautiful, and smart. I have two cats. 😊 You will make a great doctor.
I agree, she will be an amazing doctor.
Absolutely 💯❤🎉
I have a nephew who at 25 has far less function than this, owing to a premature birth, birth defects and a birth injury. His parents have been and will always be completely devoted to his happiness and wellbeing . He’s been a part of every family outing, get together, vacation, trips to the store, going out to parks and gardens. SBSK has resonated with me over the years because it resonates so much with what I’ve seen demonstrated in my nephew’s life. For example I always assume he can understand me (he can hear but not speak or communicate otherwise, no voluntary movement) and just talk to him like anyone. And talk TO him not about him. The main thing you can get out of him is knowing when he’s happy (parents around, music playing, people singing) and when he’s upset (lonely or uncomfortable). And I think just trying to maintain that happy face, his happy (though blind) eyes, is enough.
I’m a retired AAC SLP (alternative and augmentative communication speech language pathologist). It’s amazing how much communication we can do without words!
My cousin has CP, and various other diseases. She can communicate with her beautiful blue eyes. Allie is amazing!❤
Aislynn is such a sweetie, I want to give her the biggest hug. Wish I could be friends with this whole family, they are incredible. I didn’t start crying until sister started talking. Her desire to comfort Aislynn is so beautiful. I’m so glad the parents are prioritizing their mental health. Big love to this family ❤
I don’t cry usually watching your videos, but this one has me sobbing. What a brave kid and loving family.
Mom and Dad are amazing and well educated about their daughters needs and condition. They are doing the very best they can to make the quality of her life as comfortable as possible. Wishing the whole family nothing but best wishes ❤
I don’t say you’re okay because I don’t know if she’s okay. She might not feel okay and I don’t want to invalidate how she’s feeling so I always just say “you’re safe”. You might not know what’s going on but mommy’s got you. I know what to do, I can take care of you, so you’re safe.
Who are you talking about?
@@YoMama9021 They are repeating what mom said
As a sister, I’m crying over their bond 🥹 it’s so apparent and so sweet. Sister love is a STRONG thing!
She is an absolute sweet pea!🥰 She's so beautiful! 😍🙏🏽
Now that I'm seeing Mom, I know why she's so cute!!!
What a sweet older sister to decide she wanted to be in the same room as Aislynn to help her!
🩷💕💞💜
I know isn’t that beautiful
I have worked with people who are in comas. I spent lots of time at night. And I’d do range of motion. I’d read her cards people sent to her. I’d sing ask her questions. Then one day I’d volunteer for a double and was helping people eat. I chatted away and Alma would slowly turn toward my voice as someone who is catatonic . When our eyes met she’d turn away. But as she heard me talk she’d slowly turn to the sound of my voice. It shocked me that my talking should affect her so. So I am sure that you daughter recognizes her family especially her mother. She imprinted on your voice before she was born and that can’t be taken away, of that I am sure! ❤❤❤ thanks! Such a lovely story. I hope you have many children!
These parents are truly amazing. I feel like the dad has put his discomfort about mental health to be able to be there for his daughters, and the mum’s answer on not neurologically knowing but just wishing she’s happy. Such genuine and selfless answers. Really lucky kids to have such great partners. I wish this family all the best!❤
Every single cell in her body knows you’re her mom, rest assured. 💜 She can feel it.
I'm really proud of these parents discussing the depths of their despair that I'm sure most families have to go through, but isn't often discussed.
Lovee this family, the parents have a great perspective and she's just so sweet (and the exact mix of her mom and dad's faces)
Mom as Chris said...do you realize how much Aislynn responds to your voice? I see that she know you and your voices and Aislynn is happy. God Bless
Bless this family. Mom dad sister are all so wonderful. Never give up hope the world or medicine is changing and advancing each minute. This family will be in my prayers. Love you all. God bless.
Amen🙏🏻
The “you’re safe” explanation has me in tears, what a wonderful pair
Shes content, she definitely knows she is safe with you, your love just surrounds her. You calm her and bring her peace. She listens to what you say.. I know without a doubt she knows you're her mama and loves you so. God bless you and your family❤
Thanks again for the work that you do! I have epilepsy also, small myoclonic seizures. So it's very frustrating when people freak out and call EMTs. I am more afraid of people's reactions to my seizures than the actual seizures. The light you shine into these situations is amazing. Thank you!
What a beautiful child. …and amazing parents. They were both so eloquent regarding such a difficult topic.
“You are safe” GREAT parenting.
Wow. They're both such amazing parents and people. Both little girls are beautiful. Saying "You're safe" and not saying "You're ok" is brilliant. ❤
9:35 this. I love this. Making her feel seen and secure without invalidating anything she may be feeling at the time❤
I love Ayslinn, her sister generosity, her dad honesty and care for his family, and how amazing and clever her mom is, how respectful is for her children! What an incredible family!
I love how mom explains she's safe to not invalidate her kids' experiences. ❤
This family is cool AF. I love the mom and dad's parenting style, laughter, smiles, and natural (not forced) positivity. Your kids will become well adjusted adults if you keep the positive and encouraging vibes coming their way. Also, mom, huge ups at 21:39 when you share you simply want them to be happy. That is a great goal, and its a goal I have built my life around as someone who is differently able and has a rare medical condition that is not clearly defined or with a clear treatment pathway. I hope you read this because I am inspired by your grateful attitude and the positive environment you purposefully choose to create for your kids. We need parents like you and humans like you, as life is sometimes unpredictable and many situations are outside of our control. We have to proceed living a good life even as we encounter challenges and extend ourselves and others grace when a typical goal for other people is outside of our (or others') capability. I cannot always walk, so if I cannot because of my body and a physical limitation, I roll. I see that you all "get" this in a very real way and celebrate the little wins with your girls - which is 💯 they way to live well and happily. Celebrate every success 🙌 🎉. Wishing this family all of the best in the future.
You interact so well with these families and the questions you ask are so thoughtful and profound.
What a kind individual!!! Wish here the best in life!!!
adelaide’s love for aislynn is incredibly touching
i just want her to be happy !! What an amazing Statement .God bless you all
Very impressive as a couple, too. Working on their own mental health together. God bless them all, and Chris for bringing them to us.
These parents are such strong, compassionate educators. Thank you for sharing so much with us!
What an amazing couple. They were so transparent and honest with their struggles. I cannot begin to imagine how it they feel. My heart just goes out to them.
What a beautiful sweet girl 💖. Her momma is a wonderful amazing mother and very beautiful also. The love the parents has for their daughter ....the dad is one of a kind as well. 💯❤❤❤❤🙏
The brain is amazing. May she continue healing! God bless this sweet family ❤️ my husband has a brain injury. We were told he'd never walk or talk. Drs were wrong. He walks and talks, not like he used to, but 11 years later he still improves.
What an amazing momma! ❤
May God bless and protect beautiful angel, Aislynn and her loving family.
she looks so much like her mother
Aislynn is so sweet! And her moms laugh is contagious
Thanks!
1 million?
I love this guy. I've been following the channel for quite some time and he is so good with people!
What an amazing family! ❤
There are many ways in which children can recognise their mom.
It's not only on a neurological level. They have a deep imprint and cellular memory. I wouldn't worry about that mom. I'm 100% sure that your girl knows who you are 😊
Aislynn is a pure, beautiful light. She shines so bright with those around her. It's clear that she is loved and cherished.
I was born in 1965..grew up in germany.... auf dorf and my best friend had a brother with the same symptoms as your daughter...i am glad today that we had integrated ingo normally into our lives back then...because when he died he was relaxed and somehow happy
What a beautiful conversation. I appreciated the authenticity and honesty of these parents. ❤
What a beautiful sweetheart!
You are so kind and loving with the children! Bless her and her whole family. ❤
Besides the obvious, she’s a lucky little girl to have 2 such amazing, loving, patient, compassionate, attentive, hands on parents!!!
She has the most beautiful family. The perfect family for her ❤
What a wonderful family. Adelaide is a special person and an incredible sister. She’ll be a terrific doctor one day.
Chris you are magical with these kids.
What a beautiful way of saying, "I adore you!" that mom and Dad have!!!!
Absolutely incredible. My daughter went into cardiac arrest in the heart cath lab during a procedure when she was 8 weeks old. 62 minutes of chest compressions before she was successfully put on ECMO. 4 days later she had open heart surgery to repair her severe aortic stenosis. Seizures started immediately. We didn’t know what the extent of the damage done to her brain was at that point. I now know it was because they did not expect her to survive such a catastrophic event. After we finally got an MRI of her brain it showed that she had quite a bit of right sided damage done in her brain. We had no idea what that meant for her or what her life would look like. Junie has Hypoxic ischemic encephalopathy from those 62 minutes of chest compressions. Neuroplasticity is truly an incredible thing. She and her twin are now 4 years old. Junie has mild cerebral palsy with left sided hemiparesis. Cognitively there does not seem to be any deficits thus far. I believe having a twin (Jemma) has played a huge part in Junie’s progress. So much love and respect to you, your girl and all of your family.
She's precious, and she looks just like her Daddy. I wish the best for Aislynn and her family 💗.
Oh, she’s definitely in there! I can see her joy to play along. Precious ❤
May god bless this family. All the love, from a stranger.