I am just recently diagnosed with this. The doctor's that I have seen thought MS. In which I researched and read and obtained a lot of information about. I have seen the same group of neurologist since later part of 2017. This is when they suggested that and spoke of MS I obtained a copy of reports from the Neuro visit end of January 2023. This is when I very first heard of this Leukodystrophy(s). It's a lot to take in. Now I am trying to research and obtain information about Leukodystrophy. This video is very informative. Thank you and have a wonderful day. * Please excuse any of my grammer errors in my comments.
My partner has been adult onset leukoencephalopathy with axonal spheroid and pigmented glia due to CSF1R mutation
I am just recently diagnosed with this.
The doctor's that I have seen thought MS. In which I researched and read and obtained a lot of information about. I have seen the same group of neurologist since later part of 2017. This is when they suggested that and spoke of MS
I obtained a copy of reports from the Neuro visit end of January 2023. This is when I very first heard of this Leukodystrophy(s). It's a lot to take in. Now I am trying to research and obtain information about Leukodystrophy.
This video is very informative.
Thank you and have a wonderful day.
* Please excuse any of my grammer errors in my comments.
@@deannakeenanboykin5891 My neurologist suspects that I have leukoencephalopathy but we're not sure which type, he said it's definitely inherited.
@@user-ib2hx5mu5eHello!😊 Have you had a brain MRI. Thats how mine was diagnosed.