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Good contribution. I hope for more Happy Days for all. Your father😊❤

Good contribution. I hope More Happy Days for all. Your father

Good contribution, more happy days for all. Your father.

How can i get help for my doughter? She have type of unkowing leucodystrophy, on study. Help

I have a 3rd copy of LMNB1. My father donated his brain for research after passing. I am currently involved in the initial phases of "testing". If there are any studies, I would like to be involved.

Thank you so much for posting this❤️ as someone with ALSP, I appreciate the time and focus everyone put into this presentation. I feel more and more hope every time I see such brilliant minds together

❤❤❤❤❤❤❤❤

يوجد لدينا طفل في مصر عنده متلازمة الكسندر هل ممكن المساعده؟

Thank you for what you have done to honor your son. My grandson was opted in to the pilot screening in MA and was clear of ALD. We also did not know of the disease when my son was born. Thank you again.

What I have experienced in my CADASIL journey (diagnosed in 2017) was that I was never approached to talk about genetic counseling. Furthermore, When I was approved for the first NIH Cadasil protocol study by Dr. Bohem, i was never approached about genetic counseling. Things are changing so fast that Im sure it wasnt a big thing back then?

My two years baby mld

Mem i am from bangladesh my son is 16 years old he is suffering from leukodestophy disease i am very poor how can i get your help

Thanks for good information.. my son has pmd.. Nearly 2 months back we did stem cell therapy... we hope to can heal..

Com tradução. Obrigado! Parabéns!💐

Very useful

Need help please

Poderia fazer um resumo em português, por gentileza?

Sugestão. Poderiam deixar uma tradição resumida do vídeo em português.

Thanks Dr.Vander Knapp . Kindly let us know when treatment of MLC will be available in any form.

Please let us know if Any medication is available?

You amaze me.

My partner has been adult onset leukoencephalopathy with axonal spheroid and pigmented glia due to CSF1R mutation

How does covid19 effect mlc?