11 ways that make MS an invisible illness
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- Опубликовано: 10 сен 2021
- MS is often ignored because of how it is invisible to other people. But here are 11 reasons why these symptoms most often escape the untrained eye.
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" RUclips channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Развлечения
![4 Common Foods that Make Multiple Sclerosis Worse [AVOID THIS]: Gut Health Expert](http://i.ytimg.com/vi/1yvbtpQUDzI/mqdefault.jpg)
May God help you and all MS patients 💕
😘
Thank you (one of ms person).
Thank you so much! ❤
Thank you
❤
That is because we are masters at hiding all of those awful symptoms!
Correct
Haha yes we are
Insomnia please add this as I’m tired of people thinking it is a choice to not be able to sleep
Ah yeah, insomnia… have that too 🙏🏻🧡
Try the Huberman cocktail look it up . Stet away from melatonin! Look it up Huberman cocktail it suppose to help rebuild synaptic connections in the brain as we sleep . What we need more than anyone else !! Your welcome 🤗
Yep bed at 10pm tried melatonin didn't really help, now sleeping tablets give me 4 hours, your not alone.
@@stevewildeagle965 hey, did ur doctor give u amitriptyline?
Have had MS for 7 years now and this year alone is the first for me to be having major issues. It is amazing and helps alot to know that i am not alone in this crazy journey. Thank you so much.
You’re most welcome dear 🙏🏻🧡
@@LifeofSebMS
You are an inspiration, i pray you know that you are making a difference
Your all Warriors. I had Optic Neuritis but not MS so I can relate that much as I'm left with poor vision in one eye. I see you all as Warriors getting on with your lives.
Thank you!
Thank you for putting this out for all to see about MS because it's terrible to us.
🙏🏻🧡
Thalnkyòu .Seb, I've experienced all those symptoms that you pointed out. Unfortunately a lot of people that don't have MS have no clue what we go through to get through the day. As always thank you Seb.
Thank you dear Robert 🤗🧡
You never know what your body is going to do or not do and always looking for a public bathroom everywhere you go
True 🙏🏻🧡
My brother just got diagnosed with MS today. It was hard for me to understand what he’s been going though (symptom wise). I appreciate you putting this out her on social media to help me get a better understanding. Much love!
So glad to hear that this is helping you understand our condition! 🙏🏻🧡
Thanks for highlighting all these symptoms. My son who is now 34 has MS and have all those except pains. His depression and anxiety is so bad that he don't want to get out of bed. Happy to see you looking so great, keep on fighting.
Sorry to hear 😢
You just basically said the point that he is making. Someone can look really good but they often do not feel good at all.
Hope that a cure
comes for us within reasonable time. We have no normal future like this.
Everything stands stil in life.😫
Yes, let’s hope they find a cure soon 🙏🏻🧡
I was diagnosed yesterday. Finally. I have a reason why I feel like I do. ❤
Sorry to hear that 🙏🏻🧡
Good to see that you are doing well. Take very good care of yourself. I have MS and was diagnosed 11 years back. My symptoms are mainly, Depression/Anxiety and Numbness/tingling. Sometimes double/blur vision. I even had relapses almost every year, but by god's grace doctors could pull me out of those phases and could walk normally now. I pray for everyone who is an MS patient. Give them courage and strength to fight with it strongly 🙏
🙏🏻🧡
Hello. From where u r doing your treatment. I have prblm in walking. Want to consult with your doctor. Please reply.
@@tasneemsheikh6917 I take allopathy (priscribed by my neurologist) only when there is an episode. Otherwise, i am on homeopathy medicine (Dr. Anil Habbu, from Pune, India). I have heard that he has cured MS patients, if not cure but have definitely helped them have a normal close to healthy life. Very simple medicine to take and no food restrictions and it doesn't even clash with your other medicine, if any. Also there is this Curcumina (non- processed turmeric) tablet that I take daily empty stomach in the morning. This is good for any autoimmune disorder(specifically Cancer, MS, Artritis, etc.)
Hope this helps.
May the Great Spirit Bless you, your keeping Awareness about MS alive, Afternoon Fatigue & nightly leg spasms 😩. ATM I've a purple right foot from where my legs just turned off for a split second, but enough to go down like a rock onto it. Some people expect you to park your car then fall out and crawl to prove an illness they can't see.
Keep doing what your doing, your Soul shines through your works.
❤️🌈🙏🏼🌀🦅
Thanks for sharing 🤗🧡
My mom also has relapsing - remitting MS diagnosed in March of 2011 and like you said it's invisible until it isn't
🙏🏻🧡
😮 Thank you for sharing! I subscribed to your channel because I have a good friend that has MS. I wish and pray for healing for all.
Thank you❤ I feel normal and validated
🤗🧡
Great job with this video. MS warriors stay strong!
☺️🧡
Loved your vdo and nailed it right to the cross for me because unfortunately I’ve been diagnosed with Tumefactive MS. Thank you for posting how I /we all go through and more.
Thank you! Stay strong 💪🏻
Because we are the best at hiding pain💪
For sure 🙏🏻🧡
I have RRMS and work part time in retail. I’ve been in customer service in some capacity for over 20 years now. Customers (especially the difficult ones - they’ll smirk because they think they have me rattled when it’s not the case at all) often think I’m new at the job because I can’t remember where things are sometimes, or my hands will shake, or a stutter or can’t find the words I’m looking for. Part of me wants to say, “I have MS, I’m not new”…but it’s none of their business. The only ones I tell are the colleagues I’m closest to, or the ones I train…because I will forget their name and they notice my difficulties and are concerned they’re being trained by someone who doesn’t know what they’re doing. It’s frustrating. It’s tiring. Some days I’m just over it and want a body transplant.
I totally feel you 😩🧡
Thank u for this ive gotten yelled at for using my cane in public because i quote "dont need it" by a stranger, I've been struggling so this meant so much
That’s terrible! 😢🧡
You are absolutely right! For me, constant dizziness from a brainstem lesion is right up there with them.
Ah yea, that all-too-present and constant dizziness… 😆🧡
Hey there im sorry😢 i have that too and it flares up so badly during relapses. Im having a mjor relapse at the moment but cant take steroids because of an infection. May i ask do u take any meds to control ths symptom🙏 its a nightmare i cant do basic things bless u i hope ur doing well.
@@LifeofSebMSdear seb🙏 im still learning about ms from u and ppl with similar symptoms because my drs. Have no solution for my constant dizziness. I was jst told recently that i have a brainstem lesion and it was mentioned in my mri that i have several cerebellar peduncles. Ppl ask me if i work but i dont. I dont leave home. Ths symptom specifically ruined my life. How do u control ths symptom? Are there meds for it because its risky now im worried about even tryng to get out of bed😢
@@lararose9106 My condolences on the shared affliction. I wish I had found something that helps, but I haven’t. I hope your infection clears up soon so that you can use the steroids for the exacerbation. Solu-medrol helps somewhat with the dizziness. I feel less affected for awhile after a five day infusion of it, but the spins just don’t stop.
@@tinksspixiedust im so sorry i can imagine how u feel i dont do well on steroids for dizziness as well but after my infection i might need solumedrol to calm any inflammed lesions whether old or new. Do you get a heavy head feeling like sonething is literally moving in the head and like ur being pulled to the side? I have ths internal vertigo nonstop too..used to be controlled with betaserc tablets but now its a relapse so if the infection is the cause ill have to wait and see🤷♀️ are u on dmts? The last neuro said it wont go away unless i take a dmt but i never knew dmts work on symptoms from previous lesions.
I got diagnosed 2 years ago at 29. Honestly those are all scary as I never took the time to list them all. My biggest fear is to lose my only left half broken fortune : my body.
Take the best care of it you can 🙏🏻🧡
My director at work ‘oh, but you look so good’ 🤮 meanwhile I’m 🫨😰
Ugh 😔🧡
This is a great video. You explained multiple Sclerosis so well.
Glad you think so! 🙏🏻🧡
Right here with you my brother.. I try to hide it the best I can .. until I fall... Or I am walking and my legs decide to stop on their own. Can handle heat.. Forget a word sometimes ..Like I have 3 degrees embarrassing. & I will be LIVE on my channel or doing Hypnotherapy with someone. I wake up one day & I cannot see words... Thank you for doing this video.
Spot on, thanks Seb🥰
Thank you :)
I have had so many moments where I look at myself in the mirror and I have no idea how I don’t look like I’m dying and it’s actually disturbing to me sometimes, do you ever have that feeling?
Yeah I do feel that dissociation when looking in the mirror especially thinking about how young I look and yet…
@@LifeofSebMS LOL I feel more like a 90 year old cat lady/pro athletes/war vets because I got the severe symptoms of MS from TBIs from my ex....
it was wild how a few months made things accelerate but I was 25 in a diaper.....
Life is a wild journey and I see how we can all learn from each other if we share more. Thank you for sharing your truth and if you ever have the time maybe we can learn from each other, you might find something you need from my videos as I do from you.
I send you love and hope you cope well with the challenges you face today 💖
Sometimes yes and other times I can see it. ❤️🩹 sending love to all MS & autoimmune patients 🙏🏼
You nailed it!!!
🤗🧡
Fatigue for me is the worse, I have other issues but the fatigue is just taking over my life
There is a way to overcome fatigue and brain fog with whole foods plant based diet while also adding seafood. I started it and cut out gluten and dairy (OMS diet, Dr.Jelinek) this is very important. It made a huge difference for me. Just thought I would share cause it might help someone...
I have MS, it's my speech and swallowing problems, I don't think I could handle anything more. Take care
Stay strong 💪🏻
I just got diagnosed with ms in Feb well majorly Confirmed after many tests. These are all very spot on
Very well represented
🙏🏻🧡
As recently diagnosed with MS. It’s an emotional roller coaster. I am waiting for the balance ❤
This is everything I get especially the brain fogs and numbness , vision is getting worse then ever. I may have diagnosed myself on RUclips! zzzz I'm going to get checked.
🙌🏾This is the absolute truth!!!!! 🙏🏾
🤗🧡
Thank you so much. 💓
My daughter is treating me badly. But i should not complain and i am not complaining. Her life must be so terrible. 2 very young children and MS
❤ , thank you for this video , I was diagnosed in 2022.
🙏🏻🧡
AND YOU ARE ABSOLUTELY RIGHT JUST DON'T LET IT GET TOO YOU!
No way 🙏🏻🧡
Thanks ❤this is amazing to show to my friends and colleagues, whom haven't got a Clue 😮 xx
Spread the knowledge! 💪🏻🧡
I hate having MS and it's hard definitely because people look at you and they can't always see it and they think you're full of s***
Indeed 🙏🏻🧡
I really think I have it but I’m scared to do anything about it. Having confirmation well be extremely validating, but the reality will also be depressing. I don’t think my doctor or anyone will believe me, I have been called a hypochondriac before I don’t know how to get anyone to take me seriously. I see floaters, I get double vision, I have spasms, I get tingling sensations in random parts of my body, I get twitches in my body, random and explicable, pains, anxiety, and depression. Most of these symptoms come with no rhyme or reason.
The symptoms are very similar to MG symptoms, the double vision and speech difficulties are just horrible :((
My girlfriend was diagnosis 10 days ago and I’ve witnessed all of the symptoms
😕🧡
Thank you for helping me feel not alone
🙏🏻🧡
Soo true 💕
Haha thanks
I suffer from difficulty breathing and the use of steroids damaged my bones density, I just had a total knee implant waiting to do the other, nothing compared to what MS patient go through.
You are stronger than what you think that's why you know ,how to hide it !
🙏🏻🧡
Good work getting those hand movements. I would have been slapping myself in the face 7 seconds in 😅
Hahaha I struggled with syncing the movements with the beat 😅🧡
My mom was diagnosed with this yesterday. I don’t know how to feel. I am 15 years old and a male. I don’t know how fast she’ll progress, and if I will have this disease. I am worried for the both of us
So true its the pain takes its toll with me and difficulty with swallowing so fatigued but pain keeps u awake painful spasms especially in my groin isn't fun. Well done seb to do this video ms isn't fun at all. Hard to keep positive sometimes ❤
It’s hard, but we’ve got this 💪🏻🧡
May Allah help you deal with this horrible disease.
I feel for you and all others but I want you to listen only to
Quran it will ease the pain.
There's audio with English translation.
🙏🏻🧡
Hot weather is hard to bear. Heat gives me migraines. And no pain killer works on my. Doctor gave me sumitryptan and i got horrible reactions from this medication. Dont know how to deal with so much pain in my body
😞🧡
I feel seen - im turning 20 this month and i have ms for 3 years now
🙏🏻🧡
What medications do you take and how did they make you feel
Awesome!
Thanks!
Facts‼️💯
What are your tremors like? Shaking when working out?
This mantra of medicine buddha can help
May all livinf beings suffering illness swiftly recover 🙏🙏🙏❤️
Totalmente. Gracias x visibilizarlo😘
🙏🏻
i can relate Seb Here are My diagnoses cut and dry epilepsy which I am seizure free but it caused sensory processing disorder asberger like behavior but I am not on the ASD or identify with ASD ADHD low gross and fine motor tone developmental delay anxiety i have had Occupational Therapy PT speech i have had EEGs also known electroencephalogram (EEG) is a test used to find problems related to electrical activity of the brain and adaptive gym
after class i am so tired i sleep. my hands shake due to being used so i avoid lifting. and my feet specifically my ankles give out if i run or walk for too long
Not to mention because of epilepsy i have SPD. due to SPD i do not know where my body is in space. I do not know where my arms or legs are in space my legs will be blue because i will forget that my legs are in a certain position and i did not feel them go to sleep this can be startling but that is my body
My hands and feet belong to someone else"s today.
Sorry to hear that 😢
This is a great video
🤗🧡
I am fine
🙏🏻🧡
yep......
🙏🏻🧡
Pray!! Ive had since i was 31, now 56 and only took meds for 8 months abd God said ive got it! Had 25 lesions on beain and spine! 6 yrs ago went to a doc to xray. 24 gone on my spine! Thank u God!. Doc said thats not possible. I said yes it is with God, and now he is working on my brain ❤
Amen Amen, with GOD all things are possible, if you only believe!
GOD bless you! 🙏🏾🙌🏾🌟🙌🏾🙏🏾
Es que tu eres otra cosa Sebastian.
Espero que lo sepas. Iluminas el dia de cada persona que te ve.
🤗
Gracias!!
I'd like to add nerve and stroke risk! Fan fave :p
The swallowing is my latest and it’s scary
Sorry to hear that 😔🧡
I usually get an aura migraine before I'm headed for a relapse. The migraine last up to 3 days. I have severe fatigue before that happens. And then I know a relapse is coming
Wow, thanks for sharing 🙏🏻🧡
Spot on
Haha thanks
Pain at fore front
😔🧡
i myself dont notice the symptoms mentioned or even know them well
diagnosed rrms 2005
Im curious can someone develop progressive MS with out having Remiting and relapsing ms?? And have no evidence on MRIs and nerve tetsm even tho they have physical symptoms of muscle weakness, muscle fatigue, muscles that cant be engaged anymore. Muscle twitches, burning in the muscle, an allergy after eating cold sensative skin on parts where the muscle/neves are being affected. Bladder, rectum, swallowing problems. Random stinging pain on firearms, its a challenge/struggle to work, and exercise now.
My mom has MS and I’ started showing a lot of symptoms recently, I’m going to get tested this week😔
So sorry to hear that 😕🧡
My mum has bad ms she is in a lie back wheelchair and can't move herself much so it's bad but I try keep positive about it
Lots of strength to you and warm thoughts to your mother 🙏🏻🧡
@@LifeofSebMS thanks
Subtitles are too low for me to read.
Thanks for spreading AWARENESS.
1Day@AX 👏
🙏🏻🧡
I was diagnosed 10 years ago I had severe pain and symptoms and my legs half my tongue would go numb I had shooting pain electrical pain tingling like ant bites now years later even though time has passed by in between I've only had very few episodes but now for the last six or eight months many times out of the blue I have been control movement my head will turn to the side and Shake and then later we'll be okay I haven't symptoms hard to eat and I sometimes choke it doesn't happen everyday but something does I do have other conditions heart failure COPD degenerative disc disorder all the things I've been through and I'm going through it's nothing compared to what some Ms patients are going through it is so sad but it's true that it can be so much worse than what I'm going through right now
Let me correct uncontrollable movements
That’s terrible… yeah, we’re all very different, and yet somehow very similar 🙏🏻🧡
You just said everything i feel in this video..and everyone thinks i look great.
I totally agree of course..i do look great and so are you 😉😂
Hahaha isn’t great how great we look? 😆🧡
@@LifeofSebMS it really is..hope you still doing ok and looking forward to a New video🥰🥰
@@LifeofSebMSi used to take care of myself and look cheerful i still joke around and like to make ppl smile but ms has affected my physical appearance and i get bad comments😔 one dr. Recently said i gained so much weight and my face changed. Ppl can be really mean she knows i have ms and cant move around and take steroids so obviously im not that model that these ignorant ppl think i am. Someone i know saw me with a cane and instead of asking whats wrong she said u gained so much weight. I dont understand y ppl expect us to look a certain way. Im a 36 year old female with aggressive ms out of nowhere. At least im not rude to ppl and i never try to show some1 im down but ppl always have a way of letting us down. I cant pretend that it doesnt affect me. Im still me. I jst have ms. I still respect ppl. And im learning to accept that thngs r different even if its the way i look🤷♀️
True🤝
🙏🏻🧡
In one word…its a Hell specially customised for you.
Systemical body Detox can help. Im nutritionist with 14 years experience.
Please do a second one of these
I will! 🙏🏻🧡
Any cures yet?
exactly....man it sucks..I also have Lupus, RA and shogrens syndrome to boot lol the double vision is the newest issue lol
What a cocktail! 😳🧡
So true👍💪🥰
Thanks!
Looking good 👍
🤗🧡
Migriane nerve pain
I obviously have it!
Sir mara 11 yr boy ko Bhat stress h wo some Tim khata h mhjy left eye cy gry nzar ata h lkn Kuch hi second m teehk ho jata h
Love you Seb, I hope you're doing well ❤️🩹
Thank you, means a lot. 🤗🧡
You forgot one very important symptom. One that plagues my life on a daily basis.
Which one is that? 🙏🏻🧡
@@LifeofSebMS erections lasting longer than 3 hrs.
Yes! 😢 invisible
😕🧡
So true cause I have MS
Eyes shaking randomly. Vertigo.
😔🧡
❤💪🏾✊🏿👊🏾
🙏🏻🧡
Add to that that we…um…eh….oops, I forgot what I was gonna write.
Hahaha 😝🧡
😢😢😢
🙏🏻🧡
Where are the 11 ways???.
It’s in the video! 🙏🏻🧡