So thankful for people like you. And you are forthcoming and to take the time to come here and explain this to help others surely shows the character that you have. So intelligent and caring. It was hard for you to have to go through so much to find answers to what you have and the MS should have been noted by the medical field, but it is true it is often dismissed and not looked at as a whole and just taken by each dr piece by piece then lose the whole picture this way. Like a puzzle they need all the pieces to diagnose. So, when all of these various things happening including sort of a dizzy feeling and off balance, plus maybe throat problems and just so many various things as no control of face movements and it is upsetting by neurologist should know about it. MS is hard to diagnose and they cannot always just find it in blood and if they cannot find it this way, they often just jump to conclusions that nothing is wrong. But one must not ever give up when they really know it is not normal what is doing on for them anyway. It may take time, but they will finally send you to the proper physician and you will be able to be diagnosed in the proper way. Am so glad you now are getting help and are doing okay and sharing with others as you know we all can have problems and we just may let them go and think maybe it is just that we think we have problems? We do not take it serious as the Dr's may send us home ignoring it all until it get too bad. You are a very special person, and it is nice you are able to come forward to help so many. try to be sure they are finally sure they either get diagnosed or have answers for what is going on with them in some way.
Thank you so much for your kind words, Carol 🥰 there really is a need for patients themselves to be more aware that this condition exists so they raise their fears with their doctors 🙏🏻🧡
@@lisamoroney3036 What? lol Are we speaking about Tea Bags or waking up early?( That can be very hard for many)! St the right time of day Tea may be a pleasure, if one likes it.
My wife became symptomatic at age 37 ...she was finally diagnosed with MS at age 39 . She has the slow progressive type for which there is no treatment. She gradually became quadriplegic except for some use of the left hand. I have been her 24/7 caregiver as she requires a catheter and toileting for the past 20 years. She now has decubitus ulcers on her buttocks and I can no longer care for her at home. She has been in an Hospice house for the past 2 months. She is now 82 and I am 83...it has been a long haul. Unfortunately we still do not have any good remedies for progressive neurological diseases .Although she has lived a long life...her quality of life has been very poor ...I still will miss her terribly.
George you guys are the real deal. that is a level of love ad commitment most people cant even dream to understand. My wife has a ostomy due to rectal cancer at age 23 and if yo look in the comments you can read the 4 page essay I wrote about my health. But She is my Rock and vice versa. God bless you George for your share and testimony. I know one thing is for sure... The two of you know the lord and have some real faith. 🙏🙏🙏🙏🙏🙏❤❤
I was diagnosed a month ago. I'm 51. There is a core of sadness that I've been going to the doctor for neurological symptoms since my early, 20s. Unfortunately, it was put down to mental health and a bad back. The joys of hindsight.
Been dealing with this since 2006-2007. Found lesions on brain. Treated as a mental health patient. Was on so many pills, benzos, opiates...was so overmedicated I almost died. 5x!!! 2019 I came off 3 meds on my own. Docs were no help. Withdrawals almost did me in. My Rheumatologist just throws pills instead of listening. I fired him. Waiting after new year to go to better hospital...been in a flare & just pray I will make it. 60 yrs old. Don't get Healthcare in Az!! They SUCK. 😢
I am sorry about that. My diagnosis was a long journey. Doctors thought I had anxiety only! and maybe a little crazy. Finally, we got the definitive diagnosis and felt relief that there was an explanation for all the crazy symptoms that ms showed us. I wish you the best on this journey
It's not all doom and gloom. Usually we only hear the worst stories and rarely about the people who do well. If you haven't already done so I would advise you to look up George Jelinek - overcomingmultipleslerosis and Trevor Wicken - the MS gym. Good luck.
I'm currently trying to find the cause of my symptoms after years of quietly suffering because when doctors see my health history I'm relegated to a typecast. My latest brain scan was abnormal but when my Dr. consulted neurology they decided that it would be too "difficult to neurology to tease through any neurodegenerative process which is less likely.." I'm told that I don't have inflammation because the blood test for it shows normal ranges. After getting all of theses tests done then going to follow up appointments I find months and years down the road that certain information that should have been given to me was never acknowledged. At this point I feel like why bother. I just don't understand the system and attempts to clarify end up making Dr appear irritated which just compounds things..Any suggestions?
I had my first indication When I was 19and newly married. Lost the vision in my right eye. Went to hospital after a week they said there was nothing wrong with me. I was 52 before I was diagnosed. But I knew that I had MS long before because of episodes like you describe Seb. 86 now and still doing OK. ❤️
that's amazing and i'm glad you are doing well. not saying this to scare anyone, but i've not in my area heard of anyone living with MS more than 20 years. I am happy for you.
@@LifeofSebMS brings hope to me! My daughter had optic neuritis at age 18, 1 month. THey found a lesion a year later and was diagnosed with MS. She recently turned 21 and seems "fine" but as her mother, i am so afraid for the future. @MatidaJane, you give us hope!!!!
@@debraindxb hope your daughter does well. The worst part about it for me was that my then husband thought I should take a pill and get on with it while I thought I was going a little crazy. The retro bulgur neuritis was a definite indication but after a week in hospital with a lumbar puncture and umpteen blood tests I was told I had never had retro bulgur neuritis. But I had had it opticians saw that I had years later. Then I had a second neuritis attack 35 years later. So it is no hurry. Try to cope stop moving as fast as you need to. That helps. A few days and it passes until next time. Or that’s what I do. Good luck to you all out there struggling with this. ❤️
I have been diagnosed since 2003. I have tried beta interferon , Tech fadera. Here I am 23 years later. No meds walking , talking living life. Eat healthy and have a positive outlook. Focus on life and not the desease.
Hi Seb, I diagnosed myself at the age of 42, I had. Many symtoms which as in your case came and went and it wasnt until I experienced a year of unremitting symtoms including one leg feeling shorter than the other, face tingles over one side of my face and loosing my sense of taste , extreme fatigue and many more. I went to the doctor who told me I was neurotic. I then devloped severe double vision and took myself off to casualty and the hospital took me in for tests as by looking in my eyes they knew there was someting wrong. I suddenly started joining all the dots and said to them I think I have MS and they said I am sorry to confim your diagnosis is correct. I am now 76 and am still walking with the aid of crutches , don' t allow this ilness to define you or your life.
It's encouraging you're holding on. My quality of life has changed as a result of MS. I was diagnosed October of 2020. My physical health is so different. Plus, my mental health has changed too. I've researched You Tube videos frequently upon being diagnosed. I've learned that black seed oil and The Terry Wahls Protocol have been life changing natural alternatives to Improve as an MS fighter. Have you used anything that helps to manage this mysterious condition which sucks? Stay 💪
I'm 54, I was diagnosed at 33, I had exactly the same symptoms as you, along with severe lower back pain, and what I now know as ice pick headaches. I had all these symptoms for at least 10 years before I was diagnosed, I was brushed aside and told it was stress.
Ice pick headaches,I have; one tendon in my neck as tight as a violin string,since childhood, I have a PTSD like stare, numbing on 1/2 of my face, I wonder, cry myself to sleep with muscle pain
I have ice pick headaches, tingling left ankle bone area, sometimes left side of face, double vision at times, severe fatigue, sometimes forget how to swallow. Years of lower back pain. It’s driving me insane. I don’t know if I have ms or if it’s anxiety. No one listens.
@@julieannemiller6563 It certainly sounds like MS, especially if you're having difficulties with balance. Get to see a neurologist, Leave the Cat scans alone, get an MRI of your brain and spine, a Neurologist would order this. A lumbar puncture may be needed too. Yes sometimes we really have to push to be heard. I hope you're successful and they are able to diagnose and treat whatever condition you have. I wish you well.
@@LifeofSebMSthe uk m.s trust says m.s gets diagnosed with spinal tap but it's a lot of the time b12 pernicious anemia very under diagnosed b12 deficiency/pernicious anemia also thiamine ttfd or benfotiamine
Hi Seb I distinctly remember my first M.S. symptom it was when I was in Turkey on holiday with my wife. I was laying on my bed when I felt my right thigh had a slight tingle feeling wich went on for 2 weeks then went so I forgot all about it, then a few months later I was having a wee in my local pub when suddenly my right arm flew up and really started to hurt so the following morning I went straight to the hospital and over a period of 6 months I had loads of checks done I.e. M.R.I. scans an E.E.G. scan, loads of bloods taken from me and finally a lumber puncture done and was finally told I had M.S. so thats my diagnosis story. I have now had M.S. for 22 years and im still walking around but sometimes need my mobility scooter so seb good luck to you in health & life ✌ PEACE✌
10 years ago I lost my vision in my left eye. My optic nerve was so swollen they didn't think I would ever recover. Spinal taps showed my opening pressure at over 50 and I had 13 lesions on an MRI. For 10 years things got worse. Headaches, vision problems, constant pain. I was forgetting everything, I can barely hold anything and losing my balance constantly. I went to all appts and was prescribed hydrocodone for the terrible pain but nothing for the actual MS. They kept me running in circles. I went last week for a regular eye exam and both nerves are so swollen they don't know how I am not blind. I had an immediate MRI and over 40 new lesions. My vitamin d level is 0.02. It's almost non existent and now they are rushing everything. Infusions and tests and finally, FINALLY AFTER 10 LONG YEARS they are putting me on an MS med. It's a hard disease to diagnose but medical treatment is not one size fits all and I wish they saw it that way. They don't understand that their 7 years of college and reading on what symptoms are will never ever replace our years of actually feeling it, experiencing it. I am so glad we live in an age where we have access to resources and other people to reach out to. I hate that so many have gone through it but a chronic illness is terrible in itself but feeling like no one understands makes it worse. I am a full time caregiver to both of my parents, a wife, a mom and I just felt like I needed to fix everyone else. But I didn't want to get out of bed. MS is not my only health issue and I was pretty much born sick but being looked at like I was crazy or you are only 26, you can't be that sick, I surprised myself holding on this long. I am praying this new medicine breathes life back into me and I might finally get to live a normal life at 36. But I still am most grateful for the community that exists, that listens and understands. You are all my true heros and lifesavers. I am thinking of and praying for all of you.
Thank you posting this video. I pray that it will help someone who needs some encouragement to speak up about their early signs of MS. My daughter Lacy had several occasions where her face was numb or her leg would feel numb. The doctors didn’t take her seriously until the day she took a nap on a Sunday afternoon because she was abnormally tired and woke up with no sight in her left eye. Her eyesight never returned. They finally took her seriously and ran enough tests to diagnose her with MS. She was 25 years old in unfortunately her health deteriorated. About a year later she suffered a stroke. The artery that supplies blood to the brain near the back of her neck collapsed causing the stroke. She survived and spent over a month in the hospital and a few weeks in a nursing home for therapy. Due to the effects of all the steroids prescribed for her MS episodes and the stroke the arteries to her hip joints atrophied causing her hip joints to crumble. She had one hip replaced and a year later had the other one replaced. Unfortunately she passed away in her sleep one night when her heart just stopped beating. She was 28. I find myself wondering if she might have done better if they could have diagnosed her MS sooner. Thank you again for your efforts.
I am so so sorry Shawn… I have no words. One does hope that people will feel encouraged to address their symptoms as soon as possible. Thank you for sharing your daughter’s story with us here 😢🧡
I had all these symptoms. But years of MRIs showed nothing! Turned out I had a wheat allergy that went toxic! If I eat wheat or come in contact with the plant, I start experiencing MS symptoms and my general blood work indicates leukemia. Unfortunately, the damage is very real. I'm grateful it's not MS or leukemia. That was the most difficult journey to experience! May you all be okay.
Wheat is usually sprayed with glyphosate just before harvest (to reduce the moisture) which remains in the flour or grains you eat. Most people don't realise that this is actually what they can't tolerate as opposed to gluten. Glyphosate is heavily used in the US.
As someone with Fibromyalgia, I can see how doctors tell you that nothing is wrong. I can understand if it’s one strange symptom, but as many strange symptoms as you have had, they should have taken you more seriously. I’m so sorry you’re going through this. The fatigue is no joke! Many MS symptoms are found in Fibro. It scares me to think that my doctors might be missing something.
I too have fibro, but what has helped me is cutting out the sugary junk and getting more walking in. Also, less caffeine and more healthy foods. Salads and lean meats. Made such an improvement !
I’ve had fibromyalgia since 2016 and I’m now housebound and if I go anywhere I’ll sleep for 2 days and the pain was so bad and nothing helped I feel for this young man so much and everyone who’s suffering from these diseases take care and godbless 🙏🙏🙏🙏🙏🙏🙏🙏🙏
Hi Seb, i too can relate to the fatigue that seems to be induced with concentrated communication. I have been watching you ramble for about a year now (next week is my one year anniversary of my PPMS diagnosis) and wanted to take this moment to let you know how much you and others sharing has me come to grips with my MS. Thank You!
I have so many of the things you and other people describe as early ms symptoms.. I have been suspecting for a few months now that my numbness, tingling, spasticity, pain and speach impediment has everything to do with ms. Hope you are doing well, Seb, thank you for sharing your experiences with us, it really, really helps!
I have four autoimmune disorders, including MS. Oddly, MS is the fourth diagnosis (2020). I was in an abusive relationship, in 2019, when symptoms began. In December 2019 the entire right side of my body went numb, save for a few spots. I was dizzy every time I got up to do anything and experienced fatigue. It was difficult to balance and I would knock into things often. Slips and falls occurred. I experienced an extreme tingling and buzzing when I would lower my chin to my chest and look down. It went straight down the base of my head and the whole of the back of my neck. Some of these symptoms began much earlier than 2019 but I didn’t pay much attention to them. I went to a neurologist in 2020, had a multitude of MRI’s done, as well as sensory tests and a spinal tap. I have very low B12 vitamin in my body and have to get injections monthly. The fortunate thing is that there’s only tearing on my spine and I don’t have anything on my brain. My neurologist says MS had been dormant in my system for years, undetected. I’m handling it all pretty well and have decided not to go on a biologic medicine for the time being. Wishing all the best to anyone who suffers from MS and other autoimmune disorders. 💚
I truly wish it wasn’t SO FUCKING IMPOSSIBLE to find a doctor that actually wants to be helpful, understanding, & just do their job as a healthcare provider. Mine has me trapped right now; refuses to help me at all, but refuses to let me go anywhere else to get help. What a nightmare health problems in the US are…
You should have rights to another or 2nd opinion? But I know what you mean. They can say one thing and then write another in portal ,and yet not tell you to your face what is exactly going on , you read it in portals online! They wait until last minute to really do the test that could have been done first to get to bottom of things. Health care has changed and now short of help and it is just not going as it should. Depending where you live you should have the 'Patients Rights' some place for patients? Maybe online for your State? Or country or county?
@@carolweaver3269 I’ve tried tirelessly to get more done, the patient’s rights person in my area is buddy-buddy with my PCP, so he can do no wrong 🙄 I’m working with another medical centre that’s a 4+ hour drive from me to try to get more things tackled, but it’s the same story with them as well. I’ve exhausted all of the docs in my area, in my entire county, even in the entire vicinity, to basically no avail. I live in a verrrry teeny tiny rural area, & because I have tons of tattoos & “look weird” I’m treated horribly everywhere I go, especially considering I have a lot of chronic pain diseases & require pain meds; I’m just assumed to be obviously just popping pills & high constantly 🙄 it’s very frustrating & exhausting, so I have to take extended breaks from trying every 6 months or so, otherwise I would actually just take a whole bottle of my meds & do a big sleep. These “medical professionals” have worn me down so much, it’s unbearable. Sometimes I’d rather just endure all the suffering, bc at least it’s less traumatizing than what docs put me through 😵💫
How can a doctor refuse to let you go? It’s your choice! You can fire any doctor you don’t want! Do it. Get your health insurances help for a different doctor.
I was diagnosed when I was 28 (I'm 39 now). Here is my list of starting symptoms: 1. My hand would get tingles and kind of numb. Not badly but like if my hands were just falling asleep. 2. Got a "fuzzy" dot near the center of my vision in my left eye. This dot did get bigger to the point of were it was like looking through a spider web crack made of wax paper. I went to an eye doctor who said I probably scratched my eye and it will get better (it did). 3. My feet and legs started not cooperating with me and as I was walking my foot would just not pickup for the next step and I would stumble or fall. I didn't think much of this because I'm just a clumsy person. 4. It getting harder and harder to read. I would begin reading and my eyes would suddenly start to vibrate (left eye mostly) and I could not make out words or pictures. These 4 starting symptoms would last for about a week or 2 and them for the most part go away but they would and still do linger. I've been diagnosed with RRMS (relapsing remitting MS) and the progression has slow to a stop.
Mines been calm the last 9 months. Its terrifying. I often wonder what will happen. I am still getting strange numbness and others but that's all the time. But I haven't had anything major in 9 months. My unable to handle heat went away too. I can finally take hot showers again without getting sick or worse. My nystagmus has been calm too. My MS hugs haven't been near as many either. After 7 years this has been crazy that it calmed so much all of a sudden.
This was an excellent video for someone who fears they may have some of these specific symptoms of MS to look into. My paternal grandmother had MS, after getting hit by an out of control driver on her work lunch break with her co-workers crossing the street in 1949. Car accidents to the body can bring it on, she had a broken back and more. Thank you, and God Bless. ❤
My first symptoms: lost ability to taste, difficulties walking, numb lower legs, fatigue, feeling heavy-- not dx until 15 years after what I think was first attack. Myself AND doctors disregarded the signs. Pay attention to your body and be your own advocate when it comes to your health! Especially now that there are so many effective MS meds. I'm now in SPMS at 45.
The problem is that when doctors disregards your symptoms you automatically trust them and convince yourself it's nothing serious. I'm sorry you progressed to SPMS, wish you all the best.
@@lw5682 Exactly! I was so reassured by doctors that I didn't worry a bit about half my face being numb and strange feelings on the legs. Looking back that was very idiotic, but I don't think it was our fault.
Can I ask what the initials you said about your disease means? I’m so sorry it took so long to be diagnosed. That’s just terrible. I pray you’re doing well now.
Thank you for sharing your MS journey. Looking back, I remember little things that were off. When I had a seizure in a grocery store, that should have been a red flag. However, I was more concerned about my pregnancy and the health of my son. One morning, out of nowhere, I stepped out of bed and my right foot was numb and paralyzed. The plethora of neurologist gave me the “it’s in your head,” since the MRI and Spinal Tap were negative. Each ignored my obvious symptoms leaving me hopeless. Finally, I found an MS specialist. My MRI showed various plaques. It was actually a relief receiving a diagnosis, as treatment options were available (not as many as today.) I’m secondary progressive, and my symptoms have increased in number and intensity and have become stranger: Extreme fatigue, pain, tremors, difficulty pronouncing words, finding words, seizures, migraines, depression, anxiety, frequent bouts of diarrhea, decreased balance and ambulation, lack of filter at times, spasms, sleep disturbances, weird coloration on my legs and feet, etc. There’s more, but that was enough for now. I miss nursing, but I can’t hold down a job…that’s the worst. But I know I’m not the only one. God Bless You and everyone who fights this disease daily.
@@LifeofSebMS You have an amazing attitude, and are empathetic to the MS community. Sometimes it’s difficult to share symptoms that aren’t exactly sexy…lol. It’s refreshing not to be ridiculed, but understood by a compassionate person, like yourself, who’s also trying to decipher unusual symptoms that present out of nowhere, in addition to the “usual” symptoms dealt with daily. I just subscribed to your channel. Take care for now and God Bless You!
Hi Denise! 😮 thank you for sharing your story. I thought I was the only one with that amount of symptoms which I experience every day. I also suffer from fatigue, dizziness, migranes, numbness on the left half of my body and my face, tingling, difficulties with walking and balance, muscle weakness, stomach issues, vision problems,muscle spasms, sleep problems. But what is more intresting- is that I also used to be a nurse before I fell completely sick in 2022. And just like yourself - I miss my job so much... it is hard to be the one who needs care now, while all you wish for is to be there for others. I was finally diagnosed with MS this August 2023. Just wanted to say hi and thank you , hope you are doing well ❤
Hi Seb, I don't think you have to feel guilty for disregarding your first symptoms. I developed MS at around your same age, I saw several doctors but I was always disregarded as an anxious person, or told that female hormones were the culprit. Unfortunately a lot of doctors see a young person and think it cannot be anything serious, and thus we have to wait until something very bad happens. I remember years ago before being diagnosed that I really thought I was crazy and I was considering starting taking psycodrugs, because apparently I seemed ok but I had so many different kinds of pain, numbness, vertigo and fatigue. You are right that we should push more, but I believe doctors approach must change as well. In the past MS was seen mainly in people around their 40s, now most people start developing it at a much younger age, so they definitely must check this as well.
Yes its true ....younger people r now being diagnosed with various autoimmune conditions N ITS DIFFICULT.... N they r stressed to the limit to take care of their elderly yet they won't be able to take care of themselves HOW SELFISH R THESE OLDER GENERATIONS...THEY HAD THEIR FUN N LIVES LIVED TO THE FULLEST N NOW THEY DEPEND ON THEIR SICKLY KIDS....HOW LONG THE KIDS GONNA SURVIVE IS THEIR FEAR TIMES HAVE CHANGED ....PEOPLE MUST UNDERSTAND .....
It's a long story, and I currently have a migraine, so I won't get into the whole thing. But I understand how horrible it is to be treated like your crazy and blown off by doctors . I had one sit me in his office and tell me I was young and healthy to go live my life. Mind you at this point I had , had a ongoing migraine for 6 months and spent my days violently throwing up. Not to mention he never even talked to me before that day, I met with his rude nurse Practitioner.
@@stuffwelike7184 Some have a "god" complex and no real empathy, they think they are all knowing. So sorry you had to endure such agony, that is just awful!
My first symptoms was when my legs became increasingly tired and were taking long to recover. At first I through it was due to excessive exercise but after some rest they only mildly began to recover. I've always had cognitive issues with MS, even at school they stated that I have a high level of intelligence, but for some reason I pick things up a lot slower than the rest of the class. Today I mostly follow the Jelinek diet along with taking Vitamin D. I was diagnosed in 2020
I have to say I have done well on low carb diets! I’m currently avoiding grains and trying to limit carb intake while upping my fruit and vegetable intake 🙏🏻🧡
Thank you Seb for this. It’s a very personal journey and takes much courage to speak openly like this. I appreciate your down to earth approach. So much information here and it’s a great help for people like myself who are waiting on a diagnosis.
This video is making me tear up 😢 I’ve had many vague neurological symptoms since age 17. I’m now 32, almost 33. Over the years, talk has been floating around from various doctors I’ve been to - the possibility of MS. But then nothing else more was said, because my scans were always clear. But I’ve heard of people having MS that went undetected due to scans appearing clear. I’m not giving up, I will find my answer. I have so many of the symptoms. I know there is something off about how I’m feeling. Looking around at various doctors near me. May my path be lit and guide me to the right place. I wish the same for all of you, that you will get your answers, and feel better. ❤
Your explination of that first string of fatigue and never feeling the same again resinated so much. Im 5 years into my journey for a dx. They are quite positive its ms but they call me a special case lol hes sending me for a better mri 6 hours away to find any slight changes because hed rather start treatments sooner than later. Im glad i found your channel. Thanks for all your videos ❤
This video was so informative. I have had most, if not all, of these symptoms. I've been diagnosed with a pinch nerve, sciatica, arthritis in my knee, low vitamin d, and carpal tunnel syndrome. I'M 53 yrs old and have never needed glasses. At 49,I had to get bifocals, and my eye doctor was baffled .My last episode was over a yr ago... now I'm experiencing several simultaneously. I was diagnosed with scoliosis when I was nine, and my right leg would lock up while sitting, and it was an excruciating pain. Mom always said it was growing pains....now most of my problems are on my right side. Thanks for sharing your journey
I’m 28, and had an episode of optic neuritis about six weeks ago, initially I just went to my optician to check if my glasses prescription was wrong! They were excellent and immediately referred me to the hospital for tests the next morning with ophthalmology. They diagnosed optic neuritis and said that it might be an early sign of MS. I’ve been dealing with fatigue, joint pain and tingly hands for a long time and was investigating the potential of fibro with my GP - now I’m not so sure! I have a follow up in a few days with a consultant and honestly I’m terrified, but watching your videos over the past few days has really helped, as has seeing people in a similar situation support each other in the comments. I don’t know what will come, but I know I’ll just take it a day at a time, and I hope all reading this can do the same, and that each day is as wonderful as it can possibly be.
LORD JESUS I COME TO YOU RIGHT NOW PRAYING FOR MY FRIEND SEB, I PRAY THAT ALL SICKESS AND DISEASE GO FROM HIM, RIGHT NOW ,IN THE NAME OF JESUS !!!! BY HIS STRIPES YOU ARE HEALED SEB. AMEN
I’m so sorry you are dealing with this. But am grateful to have found this video. I literately have been going through the same symptoms since I was younger but usually disregarded them. Now all of a sudden now I’m 41 things have dramatically gotten worse and am actively seeking medical care as it’s gotten too much. The one with your speech is kind of mind blowing as I went a long while just mixing up words or forgetting how to say something but it went away so I ignored it. The foot thing also happening where doctors said possibly a pinched nerve as well as the random tingling sensation. I see doctor tomorrow and will specifically ask about MS as I couldn’t understand what is happening. Hope you are doing ok still. Thank you for putting this out there.
Like the drop foot which was like once every week I would trip over my toes. My dad passed away from MND and a flare up 6 months ago I got a few more symptoms and I demanded neurological investigation and the MRI turned up suspected RRMS. A lot of times we ignore things that are not particularly disabling and the symptoms are so slight. So, yes, all the symptoms you list are a good list and even the slightest symptom could be worthy of investigation
@@LifeofSebMS I am still mobile and am handling it okay. The drop foot was so slight for 25 years, it was not a concern. Then I got the massive fatigue and the foot drop exacerbated in a flare-up. But I am walking fine and only need a cane when extremely fatigued and may need balance assistance.
I've had the blinking with my eyes already closed problem for 3 years now, it happens randomly. It started in 2018 with a bunch of other neurological symptoms but all my tests were inconclusive. Then everything started to get better and I convinced myself they were all just symptoms of panic attacks and stress. Now in 2021, I'm having temporary vision loss, weakness and numbness in my legs, and headaches among other things, so I am pursuing doctors again. They keep telling me there is nothing wrong, but I know there is. No idea if it could be MS or something completely different, but my body is screaming at me that something isn't right. I just wish people would take me seriously.
@@SelfReflective still having flare ups of symptoms and periods of normalcy. My neurologist appointment is in a month so maybe I’ll find something out then /:
@@LifeofSebMS would you believe me if I said I /just/ got accepted as a new patient for a neurologist? Only took 5 months of calling people back and forth… I have my appointment in the end of November. So hopefully its productive and something comes from it… /:
I will be 43 soon and from 41 243 I have went from being able to walk and get around to using a Rollator and wheelchair God bless you for dealing with it for so long much respect sir
Thank you for posting this-I think that anyone with MS needs the encouragement. They say it can be hard to diagnose but and my experience is that a lot of drs can blow it off. The symptoms can be so odd, that a person with no knowledge (all of us before we had it) don’t connect them. I probably had pre symptoms and didn’t know-I knew that something was happening. And then the first symptoms came in a little pack, double vision, speech problems, fatigue, and some others. Thankfully I found a great neurologist. Thank you, and God bless all of you who are living with this.
Thank you Debbie 🙏🏻 your journey sounds a whole lot like what many people have to go through before being diagnosed: confusion, loneliness and being ignored. Take care 🤗🧡
I started having symptoms that was on and off and after researching they aligned with MS. I'm not a person that goes to the doctor until it's really bad. Since it let up after getting symptoms I never got checked. Thing is, after changing my diet they all went away. I was about 90% vegetables 10% animal. The more I changed to higher animal lower vegetable the better I got. I'm now ketovore with no symptoms of MS and digestive problems relieved also.
@@LifeofSebMS Allo Seb , I'm also MS and as bin on the carnivor diet 9 month now and as Rebecca who as a podcast on youtube describ her journey, to heal herself , by eating no carb high fat carnivor and staying far from high frequency on internet HELPS her very much to get ride of the symptom of MS * ruclips.net/video/cqma4WZiFF8/видео.html Take care *
Im dealing with all of these. I was told i may have MS then told it was two other things then not and now im getting more checks. This was a comforting video thank you.
There was a study done Years Ago by a gentleman that is 17 year old son had come down with MS. He studied the world and found that anywhere that there was more than 4,000 vitamin D a day like near the equator nobody had Ms or diabetes. He put his son on high doses of Vitamin D 5000 units a day and his Ms stayed in remission
People usually over do vitamin D because it takes several weeks or months to show up in your blood work, someone will start at 5000 iu then jump to 10k iu, D is a fat soluble so to avoid saturation of D take it before a meal and with a trace mineral, so it can absorb properly in the blood stream and not throw your liver enzymes out of whack.
I lived very close to the equator for years (Indonesia and Brunei) as a foreign teacher and unfortunately many of the local people had diabetes due to inappropriate diet and lack of exercise.
My mother was treated for numerous seemingly unrelated things….prednisone injections for shoulder issues, headaches, fatigue. It was an ophthalmologist who told her she had MS and sent her to a neurologist. What a horrible disease it is.
I was incredibly fortunate that I was diagnosed before I had my first known symptoms. I hit my head at work and after a month my scalp was still very tender so they sent me for an MRI to make sure I didn’t have a skull injury. They discovered signs of lesions and referred me to a neurologist. I didn’t have symptoms until 2 years later…a numbish feeling from the waist down and feeling like I was walking through concrete and it was an effort to lift my feet so I met with the neurologist again and started treatment. I’ve done really well until 8 years ago when I developed vertigo and had to stop working. Now I have some cognitive issues, and balance issues.
Thank you for this video. It solidifies in my mind that I know something is definitely off in my nerves / wiring, just as I’ve told numerous doctors and all just seem to look right through me and dismiss me. I want to go to another and request other / more tests (they have only done the normal routine ones thus far) and I’m concerned they will file me as a hypochondriac, which I most certainly am not. What I am is worried about all these weird issues going wrong at once within my body and mind. Sensations and tingles or numbness or cramping or whatever is planned for the day. I never know but I too can’t get much done due to fatigue and soreness. Just a few years ago I could clean for 6 hours straight but now I need to lay down after vacuuming two rooms. I know, just waiting for the white coats to acknowledge the truth. Peace to everyone on their journey. You watched this video for a reason, like I did. Love.
This video resonates with me so much. I have been experiencing symptoms for years. recently I had a bad attack. Insomnia, foot drop, muscle spasms, extreme fatigue, tremors with use of my limbs, headaches, eye pain, double vision and a whole lot of pain. For years I have tried to get help but am just disregarded. Went to a neuro recently and he did a whole eval and told me I'm just stressed. I have been to the E.R. twice in three weeks for these symptoms. Trying to get an MRI through a private clinic. so i can maybe finally have help. It gets so hard to deal with and not have something to point to. To miss weeks of work because you cant get out of bed or open the blinds or eat or sleep. When your partner breaks up with you because your situation is affecting him too deeply. The family history of M.S. looms over it all. Fingers crossed I wont have to wait 18 months for an MRI, its been long enough I'm so tired.
Thank you for this. My mom has MS. Her sister has MS. Whenever I’ve had an issue, the doctors would test me for MS; granted I’ve had some weird ones like optic neuritis. I’m 40 now. I don’t have MS, but I still regularly watch videos like this.
Symptoms are so different for so many people... I wish I could have gotten doctors to listen to me sooner! But what's done is done... I'm 20 years in now 😊
@@LifeofSebMS I'm not blaming the doctor, but if they would have listened a little bit more then brushing me off I could have been diagnosed a lot sooner started medicine a lot sooner ... I'm blessed, my grandfather when he was diagnosed with MS they didn't have any medicine at all... I'm just saying I regret that the doctors didn't listen to me and I didn't push it harder, it took me moving out of the state I was in and finding a new doctor.
I've been told about my "pinched nerves" too many times. Spend way too much money on chiropractic and led me to believe that a lot of what I was feeling was just a pinched nerve.
@@user-wt6hw5mi5q I thought I had MS, but turns out I have pernicious anemia. It's very common, not recognized by medical professional because they are taught B-12 deficiency is not possible today. It is and it's raging.
You have this energy about you that's very intriguing. I hope you realize how intelligent and smart you are! I'm really concerned that I might have MS but I'm pretty sure that my doctor is dismissing my concerns. I'm going to follow your channel for sure. Thank you for sharing :)
Wow, thank you for the compliment ☺️ keep insisting until you feel like you’re being heard properly. Be patient and don’t get frustrated! Let me know how it goes 🤗🧡
I’m have horrible migraines. I went to a neurologist, and they found “lesions” on by brain (usually seen in MS.) They did another MRI of my spine to see if they were there, but thankfully they weren’t. I’m still being monitored. Next step if the lesions grow, is a spinal tap to rule out MS. I have fatigue, tingling in my feet, migraines, I’ve had floaters and have ocular migraines. I’ve also started having twitches in my hands and feet. Next MRI will be in a few months. 🙏🏼
I'm so sorry to hear that AP! But your symptoms seem extremely similar to mine, so I hope you don't mind me reaching out to you through this comment! How are you? Aside from the second MRI, are they doing something else? If they want to rule out MS, what else do they possibly think it is?
@@sofienummers I went back in and had shots for my migraines in my head and neck. I was put on another medication that they said would help my twitches among other things. They said they could be from stress, because I’m dealing with the deaths of close family members. They said the lesions could be from severe migraines or MS. My next MRI should tell more of which it is since it will be over a year since my initial scan with this doctor. If any changes occur, they will do a spinal tap.
@AP-1983 Thank you for your quick response! First of all, I'm very sorry to hear about the loss of your family members 🙏 It could be that stress activated something in your body/brain, but I think sometimes doctors are too quick to blame stress... I'm glad you got shots for your migraines and medicine for the twitching. I hope you are feeling/will feel a bit better because of this, and I hope you have more knowledge after your next MRI! I never knew lesions could be from severe migraines! Our bodies are so complicated, and our medical field, although way more advanced nowadays, is still limited. Waiting and dealing with health problems is tough...
My good friend has been diagnosed, but only after years of misadventures with several doctors. I'm on RUclips now trying to learn more about other people's experiences with MS.
Seb. Have you looked into infusion type medications? I believe MS isn't fought aggressively enough, earlier on. We have to think of us, 30 years from now... Been following you for a few years. Proud of you from a distance 💗
Vision was my first problem I could not renew my driver's license and drove around for about a year-and-a-half without them I still thank God for keeping me safe
Sounds so very similar to B12 deficiency / pernicious anemia. My sister suffered optic nerve damage and at her worst, was in a wheelchair. She now regularly self injects B12, as do I (I was diagnosed with B12 deficiency after tests showed I had polyneuropathy. Since injecting, my symptoms have fortunately disappeared.
My wife was diagnosed with relapsing remitting MS 22 yrs ago. In August of that yr, we went on a motorcycle rd trip and everytime I stopped to fuel up I noticed my wife taking one of her boots off and shaking it out, then pulling any wrinkles out of her sock. I asked her, what's going on? She said it felt like she had pepples in her boot, but none were there. Later after we returned home, she got a stigma in her left eye and had to wear a contact lens in that eye, then her legs started to go numb. The definitive test is the spinal tap. Mylin was found in the fluid. She was put on Avonex and has enjoyed a pretty good life. The eye stigma went away, although she now has prescription glasses. She gained some extra weight over the yrs. She has recently found a life style dietary change program that has helped her loose weight. We have riden the motorcycle from the Midwest to the east coast, to the west coast over the past 22 yrs since the diagnosis. We feel Blessed that it hasn't been as bad as others have experienced, after the initial shock.
Great video and thank you for sharing your experience! I also feel warm in my face when I experience these symptoms: Muscle aches, joint pain, weakness in arms I can't lift them longer than 15 to 20 seconds before they start hurting and getting tired, muscle spasms, balance issues when walking, cog fog, speech difficulties where I stumble over my words and have trouble recalling words, nap straight after work, tremors when I'm feeling cold and not cold, tingling crawly feeling like a bug is crawling on me, cold feet and sometimes hands . I also have ADHD just diagnosed. I had an evaluation done in 2015. I was 21ish and saw a neurologist. He did the needle test on me where he stuck me with needles and tested different parts of my body to check my nerves (I forgot what that test is called). The only thing he found was my left side of my body is weaker than my right but nothing significant. Nothing happend after that. Now this whole week I'm experiencing all same symptoms I mentioned earlier again to the point where I was crying last night from the pain and overwhelming sensations. My mom suggested I'm probably dehydrated and that helped a little drinking water/ electrolytes. Can dehydration really cause all the symptoms I'm experiencing? Is this enough to seek another evaluation from a different neurologist? Should I see a different specialty doctor? I'm lost on what or if I should do something about this. Sorry this is long and thank you for anyone who can guide me 😊
Hey there, thanks for sharing your story. In my humble opinion, you should definitely ask another doctor! It sounds like you are being taken seriously enough 🙏🏻🧡
Yes, I would definitely see another doctor. I would request blood tests for an auto-immune disease and specifically a blood test for MS if you think the symptoms fit what you have researched about MS. Advocate for yourself and do some research. Try not to do too much, can cause unnecessary anxiety, just enough to know what illnesses fit your symptoms. Don't let them dismiss you. God bless, heal, & give you strength. 🙏❤
Also, your family doctor can probably order these blood tests, but a Rheumatologist will know better how to analyze the tests and treat you, if it is an auto-immune illness. It may not be, so don't get nervous before you know anything. A Naturopath or Functional Medicine Dr. will be able to help you figure out what's going on also. Stay strong! God is with you!🙌😊
@@UrConvictionsR-All-UHave2581 Thank you! I'll probably have to find a neurologist as that's what my GP has reccomended to me. If I request blood tests will the doc just know what tests are associated with auti immune diseases?
I began having MS symptoms after the second jab. Got diagnosed with fibromyalgia but something tells me that it's not that. I see my dreams fading away more everyday. If I could message you Seb and ask you a couple questions I'd be grateful.
I have had bad drilling-like headaches for the last 5 months which is a strange and new feeling to me, both knee joints pain, both side hip and legs pain, feet and toes tingling, and both hands fingertips tingling. I don't know what's happening in my body. I have IBS. It's before 14 years since my anxiety and depression started. I am not happy with my life. I overthink. Many many things and worries happened in the last 6 to 7 years. Im 35 now. I want to get married and have a baby. Im fearing for my future.
Feels. My first symptoms were numbness on my upper left arm but it was only there for a day or 2 and I also disregarded it. A few weeks later, I woke up with double vision one morning and it didn't go away for 2 days. I went to the ER and after an MRI, I got my MS diagnosis. That was on June 5th, 2013 😢
My first symptoms started when I was 3, which I still have now at 59, and MS specialists agreed that was a clear start. My mom ridiculed me for every symptom I had, school teachers too, so I just shut up fast. When I lived on my own at 21, I went to a specialist whenever I had an obvious issue. Well over a 150 different specialists later, being insulted and ridiculed so often, I finally found a specialist who did the tests for MS at the age of 42 and it was confirmed. By then I personally knew I had it, as I read online in detail about MS, but kept it quiet because of all the insults. The fact that I mostly had a-typical symptoms, the fact that specialists only see the scope of their specialty and not beyond, the fact that specialists are trained to treat horses and not zebras, the fact that neurologists always ask the same few questions and never dive in deeper, made it take this long to get diagnosed. So, I did go and see many specialists and it still took 39 years before 1 recognized what I had and put 2 and 2 together. And when a new medical issue arrived, as it did a few times, the whole circus starts right over to find help. But, they are not wearing me down, never. Be your own advocate when instinct says there is a serious problem, as I always did.
I woke up 1 morning with tingling in the tips of my left index finger & thumb age 20. Next day didn’t go away so went to docs. Progressively got worse over course of 2 weeks, spreading up my arm then to my head & docs kept telling me I was experiencing stress. Kept making doctor appointments every 2 days & demanded the doc do something. Kept telling me I was under stress and worrying about nothing. Was under no stress apart from knowing something up & being told by a doc it wasn’t. Arm stopped working & then was immediately taken to hospital after the latest doc appointment. Spent 2 weeks in hospital and felt like a lab rat. Was diagnosed with MS 2 months later & had the conversation after with my gp that didn’t trust her anymore. Got transferred to another GP in the practice cos she was obviously too ashamed to treat me anymore. I didn’t ask her to do it but no love lost. When u know something is wrong then u know. Share the sentiment with yourself Seb that don’t take no off a doctor if u know something is wrong. If I didn’t demand doctors appointments it could have spiralled worse for all I knew
Does anyone experience constant muscle burn while using any/all muscles? Even chewing, brushing my teeth, walking, etc. It burns like a tough workout: 3rd set, 12th repetition when I use any muscle.
@@LifeofSebMS Thank you for your reply. Do you only feel muscle burn when you exercise like a non MS person would? Or, do you have more burning than the average person?
@Life of Seb I hate that for you. Thanks for taking time to reply. When I first became seriously ill, neurologists suspected or diagnosed: cancer, Myasthenia Gravis, Amyotrophic Lateral Sclerosis, Lupus, etc. It was terrifying. I was once a Div. 1, full-ride athlete, stayed in shape my whole life, mother of 2 boys, hosted a morning radio show in one of the biggest markets in Texas, owned a business as a private instructor, etc. However, I still don't have definitive proof that I have MS. No lesions as of 3 years ago. My general practitioner has always "known" it is MS. Whatever it is, (excuse my language) REALLY SUCKS!
It really sucks when you had a bright future ahead of you that suddenly has to be redefined, doesn’t it? Take good care of yourself until you get a diagnosis and stay strong 💪🏻🧡
My son (27yrs) was diagnosed with MS by the medical establishment....he was six months away from being in a wheelchair....we sent him to a naturopath, who sent off blood work to Germany to test for Lyme, sure enough it came back positive. He went to another naturopath to treat it naturally, it took about 2 years, but he is Lyme free, although he still has some nerve damage in his hands and back, the symptoms will eventually fade away....he feels great now, and is back to his old self! MS is and can be mistaken for Lyme!!!
@@socratese5 BIE clinic in oakville, please call them and they can discus with you, there is also a video on youtube that discusses their treatment...although they do it mostly for alergies, its an odd treatment, but works.
I can identify with some of your symptoms but with MS there are just so many different kinds you can get. My first one (I believe) was a hand tremor. I had no idea what was going on so I just tried to hide it so no one would think I was a drug addict. I had many others since. I refused to have the drugs my Neurologist wanted me to have preferring to deal with secondary progressive MS in other ways (exercise, eat well etc) and I have no regrets. I guess it is a matter of personal choice and for me I did not see me sitting on the end of a needle for the rest of my life as a viable option. I think the best thing to do if you get MS is to do your own research and be informed. Then you can make proper decisions about what you should do.
Hi Seb i. 57 soon to be 58 in August. I'm taking Ocrevus. I've had ms since Nov 2021 . Nov.of 22 was my 1st relapse. My speech was affected where ad S disarthria came about . I take my ocrevus on 7/17 I can tell my speech is a little more slurred and I think because exercise quite a bit my walking is ok but I can tell as I've read I'm ready for my next ocrevus infusion . Do think that the infusion help with slurring of my voice because it seems it a little more the closer it gets to my infusion date?
My MS symptoms are related to diet. I removed beef, pork, and to some extent wheat and dairy. I read a paper about "molecular mimicry " were the intestinal/blood barrier is comprised causing macro proteins of said food to leech into blood. The immune system mounts an antibody response to these proteins that then cross react with the mylen sheathing on nerve cells. Worked for me so give it a shot!
Please look into the “medical medium” protocols. Some people have reduced symptoms of autoimmune problems after following his protocols and drinking specific juices etc and cutting certain foods out of their diets.
You are such a great essence to have on this platform to teach others about that this horrible disease is like. Lately my hands feel somewhat unresponsive to my writing, words getting jumbled idk if its stress or MS. But it runs in the family so I'm getting an MRI very soon. I hope it gives me the clear, but if not at least I ruled it out and urge others to get checked if they have these symptoms.
☼ It is so hard not to write everything off as anxiety. Especially w/the cost of MR, and risk of Dx momentum in someone young. And the first MR probably wont show anything. Until the drop foot and blinking attack, w/the lethargic history - im not sure any doctor COULD* have treated it much differently. (*'Should' is an open question). Great vid man.
The costs of medical is very high My whole family has various autoimmune conditions n the costs r very high ....we r struggling to survive on limited meds n tolerate the emotional pain ,anxiety n positively continue as normal as possible.....
I’m in this place of finding a diagnosis for my symptoms. A lot of my symptoms are looking like ms now and when you mentioned low vitamins levels I almost cried. I’m having to supplement my vitamins right now and was told my body doesn’t absorb folic acid on its own. I meet with my neurologist real soon who is the one person who’s actually helped me get anywhere and I’m going to ask her if we can test for ms. It may be too early but then again my fatigue and some other things started 5 years ago so maybe I’ll get an answer even if its no
@@LifeofSebMS ebv causes glandular fever, then leads to multiple sclerosis.. Live attenuated vaccinations are not recommended for people with MS.. Can you imagine how many people at risk, not knowing this, have gone to a country that entails getting a live virus vaccine (eg yellow fever vac) ? This is all part of a 40-year study and can be found in PubMed studies.
Does a brain MRI rule out MS? I only have one lesion. My neurologist said I do t have MS, but I have similar symptoms. I’ve seen so many doctors but nobody has figured it out. I’m to the point now where my feet and legs are always numb, tingly, or cramping and painful. I get that tingling on my face too. Also, I struggle with speech sometimes. That part comes and goes. I’m so frustrated with doctors, I’m losing hope.
I think i have MS and my doctor keeps discarding all my wierd symptoms and says that it's just panic attacks. But i don't have medical insurance so i can't afford to go to another doctor outside of the free clinic. I'm scared what will happen to me.
Make a list of all your symptoms when you can remember them. I fear I might have it too but writing everything down is helping me. I've been feeling like my skin is wet when it isn't, vertigo attacks, bladder pain randomly, weakness and fatigue, and at one point difficulty chewing and swallowing. Also mild clumsiness. Oh yeah, and tingling in my brain. Honestly I feel like I'm crazy. But the more I document the more I know I'm not exaggerating. Whatever it is, it's not imaginary. At my next Dr appointment I'm going to bring it up in detail.
![I.N "HALLUCINATION" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/n5B5q1Hwt_U/mqdefault.jpg)
So thankful for people like you. And you are forthcoming and to take the time to come here and explain this to help others surely shows the character that you have. So intelligent and caring. It was hard for you to have to go through so much to find answers to what you have and the MS should have been noted by the medical field, but it is true it is often dismissed and not looked at as a whole and just taken by each dr piece by piece then lose the whole picture this way. Like a puzzle they need all the pieces to diagnose. So, when all of these various things happening including sort of a dizzy feeling and off balance, plus maybe throat problems and just so many various things as no control of face movements and it is upsetting by neurologist should know about it. MS is hard to diagnose and they cannot always just find it in blood and if they cannot find it this way, they often just jump to conclusions that nothing is wrong. But one must not ever give up when they really know it is not normal what is doing on for them anyway. It may take time, but they will finally send you to the proper physician and you will be able to be diagnosed in the proper way.
Am so glad you now are getting help and are doing okay and sharing with others as you know we all can have problems and we just may let them go and think maybe it is just that we think we have problems? We do not take it serious as the Dr's may send us home ignoring it all until it get too bad.
You are a very special person, and it is nice you are able to come forward to help so many. try to be sure they are finally sure they either get diagnosed or have answers for what is going on with them in some way.
Thank you so much for your kind words, Carol 🥰 there really is a need for patients themselves to be more aware that this condition exists so they raise their fears with their doctors 🙏🏻🧡
@@LifeofSebMS Very true! 😇🙏🥰
If you’re waking me up every early morning- you deserve the tea bags !!!
@@lisamoroney3036 What? lol Are we speaking about Tea Bags or waking up early?( That can be very hard for many)! St the right time of day Tea may be a pleasure, if one likes it.
Who's here since they found out that the COVID 19 jibby jabby causes MS?
My wife became symptomatic at age 37 ...she was finally diagnosed with MS at age 39 . She has the slow progressive type for which there is no treatment. She gradually became quadriplegic except for some use of the left hand. I have been her 24/7 caregiver as she requires a catheter and toileting for the past 20 years. She now has decubitus ulcers on her buttocks and I can no longer care for her at home. She has been in an Hospice house for the past 2 months. She is now 82 and I am 83...it has been a long haul. Unfortunately we still do not have any good remedies for progressive neurological diseases .Although she has lived a long life...her quality of life has been very poor ...I still will miss her terribly.
I’m so sorry to hear that George 😞🧡
I’m sorry for you George.
Prayers of comfort & light to you George! 🙏
George, i wish you peace. What an honorable act of love…
George you guys are the real deal. that is a level of love ad commitment most people cant even dream to understand. My wife has a ostomy due to rectal cancer at age 23 and if yo look in the comments you can read the 4 page essay I wrote about my health. But She is my Rock and vice versa. God bless you George for your share and testimony. I know one thing is for sure... The two of you know the lord and have some real faith. 🙏🙏🙏🙏🙏🙏❤❤
I'm crying after watching this and thinking about my eldest brother. MS took him when he was only 50. He fought for 25 years. I miss him dearly.
So sorry for your loss 😞🧡
@@LifeofSebMS Keep up the fight.
I’m very sorry to hear that. I hope you find solace and healing.
Sorry for your loss too.❤
But I'm not dead yet 😆
I was diagnosed a month ago. I'm 51.
There is a core of sadness that I've been going to the doctor for neurological symptoms since my early, 20s.
Unfortunately, it was put down to mental health and a bad back.
The joys of hindsight.
It’s so sad that it’s often like that 😞🧡
Been dealing with this since 2006-2007. Found lesions on brain. Treated as a mental health patient. Was on so many pills, benzos, opiates...was so overmedicated I almost died. 5x!!! 2019 I came off 3 meds on my own. Docs were no help. Withdrawals almost did me in. My Rheumatologist just throws pills instead of listening. I fired him. Waiting after new year to go to better hospital...been in a flare & just pray I will make it. 60 yrs old. Don't get Healthcare in Az!! They SUCK. 😢
I am sorry about that. My diagnosis was a long journey. Doctors thought I had anxiety only! and maybe a little crazy. Finally, we got the definitive diagnosis and felt relief that there was an explanation for all the crazy symptoms that ms showed us. I wish you the best on this journey
It's not all doom and gloom. Usually we only hear the worst stories and rarely about the people who do well. If you haven't already done so I would advise you to look up George Jelinek - overcomingmultipleslerosis and Trevor Wicken - the MS gym. Good luck.
I'm currently trying to find the cause of my symptoms after years of quietly suffering because when doctors see my health history I'm relegated to a typecast. My latest brain scan was abnormal but when my Dr. consulted neurology they decided that it would be too "difficult to neurology to tease through any neurodegenerative process which is less likely.." I'm told that I don't have inflammation because the blood test for it shows normal ranges. After getting all of theses tests done then going to follow up appointments I find months and years down the road that certain information that should have been given to me was never acknowledged. At this point I feel like why bother. I just don't understand the system and attempts to clarify end up making Dr appear irritated which just compounds things..Any suggestions?
I had my first indication When I was 19and newly married. Lost the vision in my right eye. Went to hospital after a week they said there was nothing wrong with me. I was 52 before I was diagnosed. But I knew that I had MS long before because of episodes like you describe Seb. 86 now and still doing OK. ❤️
Thank you for sharing Jane! Hopefully this brings hope to other patients reading you 🙏🏻🧡
that's amazing and i'm glad you are doing well. not saying this to scare anyone, but i've not in my area heard of anyone living with MS more than 20 years. I am happy for you.
@@LifeofSebMS brings hope to me! My daughter had optic neuritis at age 18, 1 month. THey found a lesion a year later and was diagnosed with MS. She recently turned 21 and seems "fine" but as her mother, i am so afraid for the future. @MatidaJane, you give us hope!!!!
🙏🏻🧡
@@debraindxb hope your daughter does well. The worst part about it for me was that my then husband thought I should take a pill and get on with it while I thought I was going a little crazy. The retro bulgur neuritis was a definite indication but after a week in hospital with a lumbar puncture and umpteen blood tests I was told I had never had retro bulgur neuritis. But I had had it opticians saw that I had years later. Then I had a second neuritis attack 35 years later. So it is no hurry. Try to cope stop moving as fast as you need to. That helps. A few days and it passes until next time. Or that’s what I do. Good luck to you all out there struggling with this. ❤️
I have been diagnosed since 2003. I have tried beta interferon , Tech fadera. Here I am 23 years later. No meds walking , talking living life. Eat healthy and have a positive outlook. Focus on life and not the desease.
Hi Seb, I diagnosed myself at the age of 42, I had. Many symtoms which as in your case came and went and it wasnt until I experienced a year of unremitting symtoms including one leg feeling shorter than the other, face tingles over one side of my face and loosing my sense of taste , extreme fatigue and many more. I went to the doctor who told me I was neurotic. I then devloped severe double vision and took myself off to casualty and the hospital took me in for tests as by looking in my eyes they knew there was someting wrong. I suddenly started joining all the dots and said to them I think I have MS and they said I am sorry to confim your diagnosis is correct. I am now 76 and am still walking with the aid of crutches , don' t allow this ilness to define you or your life.
Thank you so much for sharing! That is truly inspiring 💪🏻🧡
What kind of test/exam should detect MS?
An MRI and a spinal tap 🙏🏻🧡
Same as me! I just keep going with all my health issues! We got this 👌🙏🤜🤛👊❤️
Yes we do 🤩🧡
I admire you. I'm so tired of our health care system in the US! I've been going in circles for about 5 years now. My fight is wearing out!
It's encouraging you're holding on. My quality of life has changed as a result of MS. I was diagnosed October of 2020. My physical health is so different. Plus, my mental health has changed too. I've researched You Tube videos frequently upon being diagnosed. I've learned that black seed oil and The Terry Wahls Protocol have been life changing natural alternatives to Improve as an MS fighter. Have you used anything that helps to manage this mysterious condition which sucks? Stay 💪
I'm with you on this
Pray you received the care you needed ❤️
Did you get a diagnosis yet
Dude blacked seed oil come on it ain’t gonna help do your research on stem cell therapy as a cure
I'm 54, I was diagnosed at 33, I had exactly the same symptoms as you, along with severe lower back pain, and what I now know as ice pick headaches. I had all these symptoms for at least 10 years before I was diagnosed, I was brushed aside and told it was stress.
Wow, thanks for sharing 🙏🏻🧡
Ice pick headaches,I have; one tendon in my neck as tight as a violin string,since childhood, I have a PTSD like stare, numbing on 1/2 of my face, I wonder, cry myself to sleep with muscle pain
I have ice pick headaches, tingling left ankle bone area, sometimes left side of face, double vision at times, severe fatigue, sometimes forget how to swallow. Years of lower back pain. It’s driving me insane. I don’t know if I have ms or if it’s anxiety. No one listens.
@@julieannemiller6563 It certainly sounds like MS, especially if you're having difficulties with balance. Get to see a neurologist, Leave the Cat scans alone, get an MRI of your brain and spine, a Neurologist would order this. A lumbar puncture may be needed too. Yes sometimes we really have to push to be heard. I hope you're successful and they are able to diagnose and treat whatever condition you have. I wish you well.
Have you birth to a child? Is it possible to have a child?
God bless you son. I’m living with MS for 20 years now. My prayer is for a cure for the young people. I got to have a nice life for 45 years.
🙏🏻🧡
@@LifeofSebMSthe uk m.s trust says m.s gets diagnosed with spinal tap but it's a lot of the time b12 pernicious anemia very under diagnosed b12 deficiency/pernicious anemia also thiamine ttfd or benfotiamine
Hi Seb I distinctly remember my first M.S. symptom it was when I was in Turkey on holiday with my wife. I was laying on my bed when I felt my right thigh had a slight tingle feeling wich went on for 2 weeks then went so I forgot all about it, then a few months later I was having a wee in my local pub when suddenly my right arm flew up and really started to hurt so the following morning I went straight to the hospital and over a period of 6 months I had loads of checks done I.e. M.R.I. scans an E.E.G. scan, loads of bloods taken from me and finally a lumber puncture done and was finally told I had M.S. so thats my diagnosis story. I have now had M.S. for 22 years and im still walking around but sometimes need my mobility scooter so seb good luck to you in health & life ✌ PEACE✌
@@gsusmakama STOP TROLLING!
How are you doing now?
ms is curable reversible diet gut heal heal heal look into peptides
Thank you for sharing 🙏🏻🧡
Is it possible to have a child while you have an MS? Will the child inherit it?
10 years ago I lost my vision in my left eye. My optic nerve was so swollen they didn't think I would ever recover. Spinal taps showed my opening pressure at over 50 and I had 13 lesions on an MRI. For 10 years things got worse. Headaches, vision problems, constant pain. I was forgetting everything, I can barely hold anything and losing my balance constantly. I went to all appts and was prescribed hydrocodone for the terrible pain but nothing for the actual MS. They kept me running in circles. I went last week for a regular eye exam and both nerves are so swollen they don't know how I am not blind. I had an immediate MRI and over 40 new lesions. My vitamin d level is 0.02. It's almost non existent and now they are rushing everything. Infusions and tests and finally, FINALLY AFTER 10 LONG YEARS they are putting me on an MS med. It's a hard disease to diagnose but medical treatment is not one size fits all and I wish they saw it that way. They don't understand that their 7 years of college and reading on what symptoms are will never ever replace our years of actually feeling it, experiencing it. I am so glad we live in an age where we have access to resources and other people to reach out to. I hate that so many have gone through it but a chronic illness is terrible in itself but feeling like no one understands makes it worse. I am a full time caregiver to both of my parents, a wife, a mom and I just felt like I needed to fix everyone else. But I didn't want to get out of bed. MS is not my only health issue and I was pretty much born sick but being looked at like I was crazy or you are only 26, you can't be that sick, I surprised myself holding on this long. I am praying this new medicine breathes life back into me and I might finally get to live a normal life at 36. But I still am most grateful for the community that exists, that listens and understands. You are all my true heros and lifesavers. I am thinking of and praying for all of you.
Thanks for sharing 🙏🏻🧡
What is the medicine?
Have they ever suggested that you may have Intracranial Hypertension?
Thank you posting this video. I pray that it will help someone who needs some encouragement to speak up about their early signs of MS. My daughter Lacy had several occasions where her face was numb or her leg would feel numb. The doctors didn’t take her seriously until the day she took a nap on a Sunday afternoon because she was abnormally tired and woke up with no sight in her left eye. Her eyesight never returned. They finally took her seriously and ran enough tests to diagnose her with MS. She was 25 years old in unfortunately her health deteriorated. About a year later she suffered a stroke. The artery that supplies blood to the brain near the back of her neck collapsed causing the stroke. She survived and spent over a month in the hospital and a few weeks in a nursing home for therapy. Due to the effects of all the steroids prescribed for her MS episodes and the stroke the arteries to her hip joints atrophied causing her hip joints to crumble. She had one hip replaced and a year later had the other one replaced. Unfortunately she passed away in her sleep one night when her heart just stopped beating. She was 28. I find myself wondering if she might have done better if they could have diagnosed her MS sooner. Thank you again for your efforts.
I am so so sorry Shawn… I have no words. One does hope that people will feel encouraged to address their symptoms as soon as possible. Thank you for sharing your daughter’s story with us here 😢🧡
💜
Oh my goodness ((hugs))
Oh 😢 this is so sad. I am so-so sorry for your loss Shawn.
I'm am so sorry for your loss
I had all these symptoms. But years of MRIs showed nothing!
Turned out I had a wheat allergy that went toxic! If I eat wheat or come in contact with the plant, I start experiencing MS symptoms and my general blood work indicates leukemia.
Unfortunately, the damage is very real.
I'm grateful it's not MS or leukemia. That was the most difficult journey to experience!
May you all be okay.
🙏🏻🧡
Gluten and wheat they spray chemd on the wheat they are trying to speed up death to lower the population.
😂😂😂😂
Wheat is usually sprayed with glyphosate just before harvest (to reduce the moisture) which remains in the flour or grains you eat. Most people don't realise that this is actually what they can't tolerate as opposed to gluten. Glyphosate is heavily used in the US.
As someone with Fibromyalgia, I can see how doctors tell you that nothing is wrong. I can understand if it’s one strange symptom, but as many strange symptoms as you have had, they should have taken you more seriously. I’m so sorry you’re going through this. The fatigue is no joke! Many MS symptoms are found in Fibro. It scares me to think that my doctors might be missing something.
I hope not 😞🧡
I too have fibro, but what has helped me is cutting out the sugary junk and getting more walking in. Also, less caffeine and more healthy foods. Salads and lean meats. Made such an improvement !
A healthy diet does help! 🙏🏻🧡
Know what you mean by fibro. CFS and MCS has been listed an a neurological illness in the medical text books
I’ve had fibromyalgia since 2016 and I’m now housebound and if I go anywhere I’ll sleep for 2 days and the pain was so bad and nothing helped I feel for this young man so much and everyone who’s suffering from these diseases take care and godbless 🙏🙏🙏🙏🙏🙏🙏🙏🙏
God Bless You!
My sister battled MS for 15 years. She was misdiagnosed for four years and then it was too late 😢
She passed away on 3/1/21
So sorry for your loss 😞🧡
@@LifeofSebMS
Thank you so much ❤️
Hi Seb, i too can relate to the fatigue that seems to be induced with concentrated communication. I have been watching you ramble for about a year now (next week is my one year anniversary of my PPMS diagnosis) and wanted to take this moment to let you know how much you and others sharing has me come to grips with my MS. Thank You!
Love and light Trevor. This disease is so different for all of us. Hope your DMT is going well and working
Thank you for the gratitude and I really hope that you are doing okay 🙏🏻🧡
I have so many of the things you and other people describe as early ms symptoms.. I have been suspecting for a few months now that my numbness, tingling, spasticity, pain and speach impediment has everything to do with ms. Hope you are doing well, Seb, thank you for sharing your experiences with us, it really, really helps!
Im in Iraq .....7years MS
Hello there, how are you doing now? Hopefully better
Me too buddy.
Please get it checked out! 🧡🙏🏻
Buna Alexandra. Cum ești?totul bine intr-un final?si eu oarecum în aceiași postura.
I have four autoimmune disorders, including MS. Oddly, MS is the fourth diagnosis (2020). I was in an abusive relationship, in 2019, when symptoms began. In December 2019 the entire right side of my body went numb, save for a few spots. I was dizzy every time I got up to do anything and experienced fatigue. It was difficult to balance and I would knock into things often. Slips and falls occurred. I experienced an extreme tingling and buzzing when I would lower my chin to my chest and look down. It went straight down the base of my head and the whole of the back of my neck. Some of these symptoms began much earlier than 2019 but I didn’t pay much attention to them. I went to a neurologist in 2020, had a multitude of MRI’s done, as well as sensory tests and a spinal tap. I have very low B12 vitamin in my body and have to get injections monthly. The fortunate thing is that there’s only tearing on my spine and I don’t have anything on my brain. My neurologist says MS had been dormant in my system for years, undetected. I’m handling it all pretty well and have decided not to go on a biologic medicine for the time being. Wishing all the best to anyone who suffers from MS and other autoimmune disorders. 💚
Thank you for sharing your journey with us 🙏🏻🧡
L’Hermittes’s disease I had that and kept telling doctors they checked me for all manner of things but to no avail. But it is an indication of MS.
Abusive relationships will do it. Thyroid tumor removed when I was 22, not long after finally going no contact with my toxic mother. 🤔
"puff out your cheeks and smile...😅"omg the doctor stories chronically ill people have ...
My cousin was diagnosed with MS, he even was in a wheelchair and he helped himself with clean eating and diet. Look into it please.
You are so good looking and there is something pleasant and calming in your voice even when you talk about scary stuff
Thank you so much 😘
I truly wish it wasn’t SO FUCKING IMPOSSIBLE to find a doctor that actually wants to be helpful, understanding, & just do their job as a healthcare provider. Mine has me trapped right now; refuses to help me at all, but refuses to let me go anywhere else to get help. What a nightmare health problems in the US are…
It really is terrible 😞🧡
And also in the UK.
You should have rights to another or 2nd opinion? But I know what you mean. They can say one thing and then write another in portal ,and yet not tell you to your face what is exactly going on , you read it in portals online! They wait until last minute to really do the test that could have been done first to get to bottom of things. Health care has changed and now short of help and it is just not going as it should. Depending where you live you should have the 'Patients Rights' some place for patients? Maybe online for your State? Or country or county?
@@carolweaver3269 I’ve tried tirelessly to get more done, the patient’s rights person in my area is buddy-buddy with my PCP, so he can do no wrong 🙄 I’m working with another medical centre that’s a 4+ hour drive from me to try to get more things tackled, but it’s the same story with them as well. I’ve exhausted all of the docs in my area, in my entire county, even in the entire vicinity, to basically no avail. I live in a verrrry teeny tiny rural area, & because I have tons of tattoos & “look weird” I’m treated horribly everywhere I go, especially considering I have a lot of chronic pain diseases & require pain meds; I’m just assumed to be obviously just popping pills & high constantly 🙄 it’s very frustrating & exhausting, so I have to take extended breaks from trying every 6 months or so, otherwise I would actually just take a whole bottle of my meds & do a big sleep. These “medical professionals” have worn me down so much, it’s unbearable. Sometimes I’d rather just endure all the suffering, bc at least it’s less traumatizing than what docs put me through 😵💫
How can a doctor refuse to let you go? It’s your choice! You can fire any doctor you don’t want! Do it. Get your health insurances help for a different doctor.
I was diagnosed when I was 28 (I'm 39 now). Here is my list of starting symptoms:
1. My hand would get tingles and kind of numb. Not badly but like if my hands were just falling asleep.
2. Got a "fuzzy" dot near the center of my vision in my left eye. This dot did get bigger to the point of were it was like looking through a spider web crack made of wax paper. I went to an eye doctor who said I probably scratched my eye and it will get better (it did).
3. My feet and legs started not cooperating with me and as I was walking my foot would just not pickup for the next step and I would stumble or fall. I didn't think much of this because I'm just a clumsy person.
4. It getting harder and harder to read. I would begin reading and my eyes would suddenly start to vibrate (left eye mostly) and I could not make out words or pictures.
These 4 starting symptoms would last for about a week or 2 and them for the most part go away but they would and still do linger. I've been diagnosed with RRMS (relapsing remitting MS) and the progression has slow to a stop.
Thanks so much for sharing! 🙏🏻🧡
Mines been calm the last 9 months. Its terrifying. I often wonder what will happen. I am still getting strange numbness and others but that's all the time. But I haven't had anything major in 9 months. My unable to handle heat went away too. I can finally take hot showers again without getting sick or worse. My nystagmus has been calm too. My MS hugs haven't been near as many either. After 7 years this has been crazy that it calmed so much all of a sudden.
This was an excellent video for someone who fears they may have some of these specific symptoms of MS to look into. My paternal grandmother had MS, after getting hit by an out of control driver on her work lunch break with her co-workers crossing the street in 1949. Car accidents to the body can bring it on, she had a broken back and more. Thank you, and God Bless. ❤
🙏🏻🧡
So sorry about your illness. 💔💔 May you find people who are able and willing to help you along your long, tough journey.
Thank you 🙏🏻🧡
My first symptoms: lost ability to taste, difficulties walking, numb lower legs, fatigue, feeling heavy-- not dx until 15 years after what I think was first attack. Myself AND doctors disregarded the signs. Pay attention to your body and be your own advocate when it comes to your health! Especially now that there are so many effective MS meds. I'm now in SPMS at 45.
The problem is that when doctors disregards your symptoms you automatically trust them and convince yourself it's nothing serious. I'm sorry you progressed to SPMS, wish you all the best.
@@kara7197 I agree! It all makes sense looking back, but not while it was happening
@@lw5682 Exactly! I was so reassured by doctors that I didn't worry a bit about half my face being numb and strange feelings on the legs. Looking back that was very idiotic, but I don't think it was our fault.
Can I ask what the initials you said about your disease means? I’m so sorry it took so long to be diagnosed. That’s just terrible. I pray you’re doing well now.
SPMS
Thank you for sharing your MS journey. Looking back, I remember little things that were off. When I had a seizure in a grocery store, that should have been a red flag. However, I was more concerned about my pregnancy and the health of my son. One morning, out of nowhere, I stepped out of bed and my right foot was numb and paralyzed. The plethora of neurologist gave me the “it’s in your head,” since the MRI and Spinal Tap were negative. Each ignored my obvious symptoms leaving me hopeless. Finally, I found an MS specialist. My MRI showed various plaques. It was actually a relief receiving a diagnosis, as treatment options were available (not as many as today.) I’m secondary progressive, and my symptoms have increased in number and intensity and have become stranger: Extreme fatigue, pain, tremors, difficulty pronouncing words, finding words, seizures, migraines, depression, anxiety, frequent bouts of diarrhea, decreased balance and ambulation, lack of filter at times, spasms, sleep disturbances, weird coloration on my legs and feet, etc. There’s more, but that was enough for now. I miss nursing, but I can’t hold down a job…that’s the worst. But I know I’m not the only one. God Bless You and everyone who fights this disease daily.
Hey Denise, thank you for sharing your struggle with us. Hopefully now that you’re diagnosed the treatment will help slow down further progression 🙏🏻🧡
@@LifeofSebMS You have an amazing attitude, and are empathetic to the MS community. Sometimes it’s difficult to share symptoms that aren’t exactly sexy…lol. It’s refreshing not to be ridiculed, but understood by a compassionate person, like yourself, who’s also trying to decipher unusual symptoms that present out of nowhere, in addition to the “usual” symptoms dealt with daily. I just subscribed to your channel. Take care for now and God Bless You!
Hi Denise! 😮 thank you for sharing your story.
I thought I was the only one with that amount of symptoms which I experience every day. I also suffer from fatigue, dizziness, migranes, numbness on the left half of my body and my face, tingling, difficulties with walking and balance, muscle weakness, stomach issues, vision problems,muscle spasms, sleep problems. But what is more intresting- is that I also used to be a nurse before I fell completely sick in 2022.
And just like yourself - I miss my job so much... it is hard to be the one who needs care now, while all you wish for is to be there for others.
I was finally diagnosed with MS this August 2023.
Just wanted to say hi and thank you , hope you are doing well ❤
I have many of the same symptoms, they are alleviated by vitamin D high magnesium (3 type) lionsmane mushroom, NAC and folate and iron!
Hi Seb, I don't think you have to feel guilty for disregarding your first symptoms. I developed MS at around your same age, I saw several doctors but I was always disregarded as an anxious person, or told that female hormones were the culprit. Unfortunately a lot of doctors see a young person and think it cannot be anything serious, and thus we have to wait until something very bad happens. I remember years ago before being diagnosed that I really thought I was crazy and I was considering starting taking psycodrugs, because apparently I seemed ok but I had so many different kinds of pain, numbness, vertigo and fatigue.
You are right that we should push more, but I believe doctors approach must change as well. In the past MS was seen mainly in people around their 40s, now most people start developing it at a much younger age, so they definitely must check this as well.
Yes its true ....younger people r now being diagnosed with various autoimmune conditions N ITS DIFFICULT....
N they r stressed to the limit to take care of their elderly yet they won't be able to take care of themselves
HOW SELFISH R THESE OLDER GENERATIONS...THEY HAD THEIR FUN N LIVES LIVED TO THE FULLEST N NOW THEY DEPEND ON THEIR SICKLY KIDS....HOW LONG THE KIDS GONNA SURVIVE IS THEIR FEAR
TIMES HAVE CHANGED ....PEOPLE MUST UNDERSTAND .....
So true sister 🙏🏻🧡
It's a long story, and I currently have a migraine, so I won't get into the whole thing. But I understand how horrible it is to be treated like your crazy and blown off by doctors . I had one sit me in his office and tell me I was young and healthy to go live my life. Mind you at this point I had , had a ongoing migraine for 6 months and spent my days violently throwing up. Not to mention he never even talked to me before that day, I met with his rude nurse Practitioner.
Sounds horrible 😔🧡
@@stuffwelike7184 Some have a "god" complex and no real empathy, they think they are all knowing. So sorry you had to endure such agony, that is just awful!
Just continue with your life--MS is important to monitor and treat, but you have much life to live!
We try 🙏🏻🧡
My first symptoms was when my legs became increasingly tired and were taking long to recover. At first I through it was due to excessive exercise but after some rest they only mildly began to recover. I've always had cognitive issues with MS, even at school they stated that I have a high level of intelligence, but for some reason I pick things up a lot slower than the rest of the class. Today I mostly follow the Jelinek diet along with taking Vitamin D. I was diagnosed in 2020
Hey thanks for sharing. How are you doing today? 🙏🏻🧡
Ketogenic diet is now recommended to lessen symptoms per latest study along with D3.
I have to say I have done well on low carb diets! I’m currently avoiding grains and trying to limit carb intake while upping my fruit and vegetable intake 🙏🏻🧡
Take magnesium supplements with D3. Works like taking vit C with iron supplements.
Thank you Seb for this. It’s a very personal journey and takes much courage to speak openly like this. I appreciate your down to earth approach. So much information here and it’s a great help for people like myself who are waiting on a diagnosis.
This video is making me tear up 😢 I’ve had many vague neurological symptoms since age 17. I’m now 32, almost 33. Over the years, talk has been floating around from various doctors I’ve been to - the possibility of MS. But then nothing else more was said, because my scans were always clear. But I’ve heard of people having MS that went undetected due to scans appearing clear. I’m not giving up, I will find my answer. I have so many of the symptoms. I know there is something off about how I’m feeling. Looking around at various doctors near me. May my path be lit and guide me to the right place. I wish the same for all of you, that you will get your answers, and feel better. ❤
Keep pushing sister! If you feel something isn’t it right trust your gut feeling 🙏🏻🧡
Yes, if there's no a good/knowledgeable person reading the scans, MRIs then a patient won't be diagnosed.
😢
I'm in the same boat right now, mri scans have been clear, but the symptoms are there. 😢
Your explination of that first string of fatigue and never feeling the same again resinated so much. Im 5 years into my journey for a dx. They are quite positive its ms but they call me a special case lol hes sending me for a better mri 6 hours away to find any slight changes because hed rather start treatments sooner than later. Im glad i found your channel. Thanks for all your videos ❤
This video was so informative. I have had most, if not all, of these symptoms. I've been diagnosed with a pinch nerve, sciatica, arthritis in my knee, low vitamin d, and carpal tunnel syndrome. I'M 53 yrs old and have never needed glasses. At 49,I had to get bifocals, and my eye doctor was baffled .My last episode was over a yr ago... now I'm experiencing several simultaneously. I was diagnosed with scoliosis when I was nine, and my right leg would lock up while sitting, and it was an excruciating pain. Mom always said it was growing pains....now most of my problems are on my right side. Thanks for sharing your journey
Thanks for your comment 🙏🏻🧡
I’m 28, and had an episode of optic neuritis about six weeks ago, initially I just went to my optician to check if my glasses prescription was wrong! They were excellent and immediately referred me to the hospital for tests the next morning with ophthalmology. They diagnosed optic neuritis and said that it might be an early sign of MS. I’ve been dealing with fatigue, joint pain and tingly hands for a long time and was investigating the potential of fibro with my GP - now I’m not so sure! I have a follow up in a few days with a consultant and honestly I’m terrified, but watching your videos over the past few days has really helped, as has seeing people in a similar situation support each other in the comments.
I don’t know what will come, but I know I’ll just take it a day at a time, and I hope all reading this can do the same, and that each day is as wonderful as it can possibly be.
💪🏻🧡
LORD JESUS I COME TO YOU RIGHT NOW PRAYING FOR MY FRIEND SEB, I PRAY THAT ALL SICKESS AND DISEASE GO FROM HIM, RIGHT NOW ,IN THE NAME OF JESUS !!!! BY HIS STRIPES YOU ARE HEALED SEB. AMEN
🙏🏻🧡
Beautiful
Amen
I’m so sorry you are dealing with this. But am grateful to have found this video. I literately have been going through the same symptoms since I was younger but usually disregarded them. Now all of a sudden now I’m 41 things have dramatically gotten worse and am actively seeking medical care as it’s gotten too much. The one with your speech is kind of mind blowing as I went a long while just mixing up words or forgetting how to say something but it went away so I ignored it. The foot thing also happening where doctors said possibly a pinched nerve as well as the random tingling sensation. I see doctor tomorrow and will specifically ask about MS as I couldn’t understand what is happening. Hope you are doing ok still. Thank you for putting this out there.
@@darksoulsaiyan you’re welcome
“Go home, you’re fine.” I can definitely relate to that. Diagnosed in 2016 and doing well with medication. MS is not cheap *cries in American
😩🧡
Which medication is working for you?
@@socratese5 I’ve been taking Copaxone 40 mg/ml since 2016.
I would agree Seb... I am lucky that I have just been diagnosed at 48, but I can now reflect on some of the small things I have had since 25.
Like the drop foot which was like once every week I would trip over my toes. My dad passed away from MND and a flare up 6 months ago I got a few more symptoms and I demanded neurological investigation and the MRI turned up suspected RRMS.
A lot of times we ignore things that are not particularly disabling and the symptoms are so slight.
So, yes, all the symptoms you list are a good list and even the slightest symptom could be worthy of investigation
Sorry to hear that’s brother… the longer the diagnosis the more painful it becomes
@@LifeofSebMS I am still mobile and am handling it okay. The drop foot was so slight for 25 years, it was not a concern. Then I got the massive fatigue and the foot drop exacerbated in a flare-up. But I am walking fine and only need a cane when extremely fatigued and may need balance assistance.
@@LifeofSebMS but I have very little pain, sometimes a slight burning sensation.
I also had the dropped foot all the time would trip with my right foot. :(
Stay strong my fellow MS warrior ❤
You too!! 💪🏻🧡
I've had the blinking with my eyes already closed problem for 3 years now, it happens randomly. It started in 2018 with a bunch of other neurological symptoms but all my tests were inconclusive. Then everything started to get better and I convinced myself they were all just symptoms of panic attacks and stress. Now in 2021, I'm having temporary vision loss, weakness and numbness in my legs, and headaches among other things, so I am pursuing doctors again. They keep telling me there is nothing wrong, but I know there is. No idea if it could be MS or something completely different, but my body is screaming at me that something isn't right. I just wish people would take me seriously.
How are you doing now?
Did they give you an answer?
@@SelfReflective still having flare ups of symptoms and periods of normalcy. My neurologist appointment is in a month so maybe I’ll find something out then /:
@@LifeofSebMS would you believe me if I said I /just/ got accepted as a new patient for a neurologist? Only took 5 months of calling people back and forth… I have my appointment in the end of November. So hopefully its productive and something comes from it… /:
@@cheyennedeal4153 I wish you the best. I'm past worrying about MS (I don't think I have it), now I am scared of ALS!! I live in hell.
I will be 43 soon and from 41 243 I have went from being able to walk and get around to using a Rollator and wheelchair God bless you for dealing with it for so long much respect sir
Darn brother, so sorry to hear that 😞🧡
@@LifeofSebMS thank you so much that's love
Thank you for posting this-I think that anyone with MS needs the encouragement. They say it can be hard to diagnose but and my experience is that a lot of drs can blow it off.
The symptoms can be so odd, that a person with no knowledge (all of us before we had it) don’t connect them.
I probably had pre symptoms and didn’t know-I knew that something was happening.
And then the first symptoms came in a little pack, double vision, speech problems, fatigue, and some others. Thankfully I found a great neurologist.
Thank you, and God bless all of you who are living with this.
Thank you Debbie 🙏🏻 your journey sounds a whole lot like what many people have to go through before being diagnosed: confusion, loneliness and being ignored. Take care 🤗🧡
Hi Debbie how are you being treated and how is it working for you?
I started having symptoms that was on and off and after researching they aligned with MS. I'm not a person that goes to the doctor until it's really bad. Since it let up after getting symptoms I never got checked. Thing is, after changing my diet they all went away. I was about 90% vegetables 10% animal. The more I changed to higher animal lower vegetable the better I got. I'm now ketovore with no symptoms of MS and digestive problems relieved also.
Hey Kelle, that is really interesting! I’m also trying to limit carbs and so far happy with how I’m feeling 😌🧡
@@LifeofSebMS Allo Seb , I'm also MS and as bin on the carnivor diet 9 month now and as Rebecca who as a podcast on youtube describ her journey, to heal herself , by eating no carb high fat carnivor and staying far from high frequency on internet HELPS her very much to get ride of the symptom of MS * ruclips.net/video/cqma4WZiFF8/видео.html
Take care *
What a beautiful young man! I pray for all the best for you.
🙏🏻🧡
Recently diagnosed and this really hit home.
Stay strong 💪🏻🧡
Im dealing with all of these. I was told i may have MS then told it was two other things then not and now im getting more checks. This was a comforting video thank you.
🙏🏻🧡
There was a study done Years Ago by a gentleman that is 17 year old son had come down with MS. He studied the world and found that anywhere that there was more than 4,000 vitamin D a day like near the equator nobody had Ms or diabetes. He put his son on high doses of Vitamin D 5000 units a day and his Ms stayed in remission
Amazing! 🙏🏻🧡
Dangerous to take so much.
People usually over do vitamin D because it takes several weeks or months to show up in your blood work, someone will start at 5000 iu then jump to 10k iu, D is a fat soluble so to avoid saturation of D take it before a meal and with a trace mineral, so it can absorb properly in the blood stream and not throw your liver enzymes out of whack.
@@irisbristow2977 I literally take 30,000 IUs I do blood work and have been doing so for a few years.
I lived very close to the equator for years (Indonesia and Brunei) as a foreign teacher and unfortunately many of the local people had diabetes due to inappropriate diet and lack of exercise.
My mother was treated for numerous seemingly unrelated things….prednisone injections for shoulder issues, headaches, fatigue. It was an ophthalmologist who told her she had MS and sent her to a neurologist. What a horrible disease it is.
😞🧡
Makes me really glad I went to the hospital yesterday and now have an neuro referral despite being 21
I was incredibly fortunate that I was diagnosed before I had my first known symptoms. I hit my head at work and after a month my scalp was still very tender so they sent me for an MRI to make sure I didn’t have a skull injury. They discovered signs of lesions and referred me to a neurologist. I didn’t have symptoms until 2 years later…a numbish feeling from the waist down and feeling like I was walking through concrete and it was an effort to lift my feet so I met with the neurologist again and started treatment. I’ve done really well until 8 years ago when I developed vertigo and had to stop working. Now I have some cognitive issues, and balance issues.
Wow, you were definitely very lucky then! 🙏🏻🧡
@@LifeofSebMS I feel like God had a hand in it.
@@Lwah0812I would say so. Stay close to Him 🧘♂️ 🙏 ☯️
I just came across your video young man. Thank you. Very useful information.
Thank you very much 🙏🏻🧡
Thank you for this video. It solidifies in my mind that I know something is definitely off in my nerves / wiring, just as I’ve told numerous doctors and all just seem to look right through me and dismiss me. I want to go to another and request other / more tests (they have only done the normal routine ones thus far) and I’m concerned they will file me as a hypochondriac, which I most certainly am not. What I am is worried about all these weird issues going wrong at once within my body and mind. Sensations and tingles or numbness or cramping or whatever is planned for the day. I never know but I too can’t get much done due to fatigue and soreness. Just a few years ago I could clean for 6 hours straight but now I need to lay down after vacuuming two rooms. I know, just waiting for the white coats to acknowledge the truth. Peace to everyone on their journey. You watched this video for a reason, like I did. Love.
Hey there, you should probably start fresh with another doctor and hope to get tested… 🙏🏻🧡
NAC and lionsmane mushroom
This video resonates with me so much. I have been experiencing symptoms for years. recently I had a bad attack. Insomnia, foot drop, muscle spasms, extreme fatigue, tremors with use of my limbs, headaches, eye pain, double vision and a whole lot of pain. For years I have tried to get help but am just disregarded. Went to a neuro recently and he did a whole eval and told me I'm just stressed. I have been to the E.R. twice in three weeks for these symptoms. Trying to get an MRI through a private clinic. so i can maybe finally have help. It gets so hard to deal with and not have something to point to. To miss weeks of work because you cant get out of bed or open the blinds or eat or sleep. When your partner breaks up with you because your situation is affecting him too deeply. The family history of M.S. looms over it all. Fingers crossed I wont have to wait 18 months for an MRI, its been long enough I'm so tired.
I hope you get an answer soon! 🙏🏻🧡
Hey, did you get the MRI?
I know three people with MS They are all doing great
You are helping so many people. Thank you for your good advice!❤
Thank you Mary 🤗🧡
My son was diagnosed with MS at 17, Can so relate to your story. Thank you for sharing it,
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What were his symptoms?
Thank you for this. My mom has MS. Her sister has MS. Whenever I’ve had an issue, the doctors would test me for MS; granted I’ve had some weird ones like optic neuritis. I’m 40 now. I don’t have MS, but I still regularly watch videos like this.
Thanks for watching 🙏🏻🧡
Symptoms are so different for so many people... I wish I could have gotten doctors to listen to me sooner! But what's done is done... I'm 20 years in now 😊
They really are very different and unpredictable, so come to think of it: can you really blame doctors for struggling to diagnose it? 🙏🏻🧡
@@LifeofSebMS I'm not blaming the doctor, but if they would have listened a little bit more then brushing me off I could have been diagnosed a lot sooner started medicine a lot sooner ... I'm blessed, my grandfather when he was diagnosed with MS they didn't have any medicine at all... I'm just saying I regret that the doctors didn't listen to me and I didn't push it harder, it took me moving out of the state I was in and finding a new doctor.
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My first symptom, before being DX'd, was tinnitus (ringing in my ears). Never went away.
That sucks 😔🧡
Ugh, me too.
Me too the tinnitus is horrible
I've had all of these without the blinking that I can recall
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I've been told about my "pinched nerves" too many times. Spend way too much money on chiropractic and led me to believe that a lot of what I was feeling was just a pinched nerve.
Classic… 💪🏻
This is such valuable information. Thank you so much for sharing your experience
Thank you for watching! 🙏🏻🧡
When I get angry I get internal jitters. It's weird. It helps me in many ways to calm the eff down. It's like an internal thermometer for my mood.
Same!
@@LifeofSebMS Do you have any weakness in your limbs. I have it in my right arm.
Hmm interesting.. I've noticed huge mood changes ever since my ms diagnosis.. I feel easily annoyed n like everyone around me are idiots lol
OMG. I've had internal tremors a few times. It sounds similar to this and is associated with MS.
@@user-wt6hw5mi5q I thought I had MS, but turns out I have pernicious anemia. It's very common, not recognized by medical professional because they are taught B-12 deficiency is not possible today. It is and it's raging.
You have this energy about you that's very intriguing. I hope you realize how intelligent and smart you are! I'm really concerned that I might have MS but I'm pretty sure that my doctor is dismissing my concerns. I'm going to follow your channel for sure. Thank you for sharing :)
Wow, thank you for the compliment ☺️ keep insisting until you feel like you’re being heard properly. Be patient and don’t get frustrated! Let me know how it goes 🤗🧡
I’m have horrible migraines. I went to a neurologist, and they found “lesions” on by brain (usually seen in MS.) They did another MRI of my spine to see if they were there, but thankfully they weren’t. I’m still being monitored. Next step if the lesions grow, is a spinal tap to rule out MS. I have fatigue, tingling in my feet, migraines, I’ve had floaters and have ocular migraines. I’ve also started having twitches in my hands and feet. Next MRI will be in a few months. 🙏🏼
I’m so sorry to hear that you have a go through this… be strong 💪🏻🧡
I'm so sorry to hear that AP! But your symptoms seem extremely similar to mine, so I hope you don't mind me reaching out to you through this comment! How are you? Aside from the second MRI, are they doing something else? If they want to rule out MS, what else do they possibly think it is?
@@sofienummers I went back in and had shots for my migraines in my head and neck. I was put on another medication that they said would help my twitches among other things. They said they could be from stress, because I’m dealing with the deaths of close family members. They said the lesions could be from severe migraines or MS. My next MRI should tell more of which it is since it will be over a year since my initial scan with this doctor. If any changes occur, they will do a spinal tap.
@AP-1983 Thank you for your quick response! First of all, I'm very sorry to hear about the loss of your family members 🙏
It could be that stress activated something in your body/brain, but I think sometimes doctors are too quick to blame stress...
I'm glad you got shots for your migraines and medicine for the twitching. I hope you are feeling/will feel a bit better because of this, and I hope you have more knowledge after your next MRI!
I never knew lesions could be from severe migraines! Our bodies are so complicated, and our medical field, although way more advanced nowadays, is still limited. Waiting and dealing with health problems is tough...
Please watch “Under My Skin”. Hope you are well.
My good friend has been diagnosed, but only after years of misadventures with several doctors. I'm on RUclips now trying to learn more about other people's experiences with MS.
Sorry to hear about your friend. Hopefully you’ll find sufficient information here! 🙏🏻🧡
Seb. Have you looked into infusion type medications? I believe MS isn't fought aggressively enough, earlier on. We have to think of us, 30 years from now... Been following you for a few years. Proud of you from a distance 💗
I am on an inufsion type medication! It’s the strongest there is, so I’m hoping it will keep me stable for a long time 🙏🏻🧡
Unfortunately, many of us have a tendency tend to look at small health issues from an "ignore it and it will go away" approach.
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Thank you Seb, my son also diagnosed with MS, great advice.
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Vision was my first problem I could not renew my driver's license and drove around for about a year-and-a-half without them I still thank God for keeping me safe
That was lucky! I rode a bike with one eye closed to control my double vision 😅🧡
Sounds so very similar to B12 deficiency / pernicious anemia. My sister suffered optic nerve damage and at her worst, was in a wheelchair. She now regularly self injects B12, as do I (I was diagnosed with B12 deficiency after tests showed I had polyneuropathy. Since injecting, my symptoms have fortunately disappeared.
Several people have told me that, so I’m trying a B complex now 🙏🏻🧡
Mine do also! When I take b12!
Same here. Been diagnosed with small fiber neuropathy.. my b12 was low now it’s within range. Had a skin and nerve test.
My wife was diagnosed with relapsing remitting MS 22 yrs ago. In August of that yr, we went on a motorcycle rd trip and everytime I stopped to fuel up I noticed my wife taking one of her boots off and shaking it out, then pulling any wrinkles out of her sock. I asked her, what's going on? She said it felt like she had pepples in her boot, but none were there. Later after we returned home, she got a stigma in her left eye and had to wear a contact lens in that eye, then her legs started to go numb. The definitive test is the spinal tap. Mylin was found in the fluid. She was put on Avonex and has enjoyed a pretty good life. The eye stigma went away, although she now has prescription glasses. She gained some extra weight over the yrs. She has recently found a life style dietary change program that has helped her loose weight. We have riden the motorcycle from the Midwest to the east coast, to the west coast over the past 22 yrs since the diagnosis. We feel Blessed that it hasn't been as bad as others have experienced, after the initial shock.
What a beautiful story, Stan! Thanks for sharing 🙏🏻🧡
I was adopted by a man with MS. It was difficult. Watched him get worse as I grew up
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Thank you for sharing your journey and experience. 💐 Wishing you all the grace and strength you need 💐💐
Great video and thank you for sharing your experience! I also feel warm in my face when I experience these symptoms: Muscle aches, joint pain, weakness in arms I can't lift them longer than 15 to 20 seconds before they start hurting and getting tired, muscle spasms, balance issues when walking, cog fog, speech difficulties where I stumble over my words and have trouble recalling words, nap straight after work, tremors when I'm feeling cold and not cold, tingling crawly feeling like a bug is crawling on me, cold feet and sometimes hands . I also have ADHD just diagnosed. I had an evaluation done in 2015. I was 21ish and saw a neurologist. He did the needle test on me where he stuck me with needles and tested different parts of my body to check my nerves (I forgot what that test is called). The only thing he found was my left side of my body is weaker than my right but nothing significant. Nothing happend after that. Now this whole week I'm experiencing all same symptoms I mentioned earlier again to the point where I was crying last night from the pain and overwhelming sensations. My mom suggested I'm probably dehydrated and that helped a little drinking water/ electrolytes. Can dehydration really cause all the symptoms I'm experiencing? Is this enough to seek another evaluation from a different neurologist? Should I see a different specialty doctor? I'm lost on what or if I should do something about this. Sorry this is long and thank you for anyone who can guide me 😊
Hey there, thanks for sharing your story. In my humble opinion, you should definitely ask another doctor! It sounds like you are being taken seriously enough 🙏🏻🧡
Yes, I would definitely see another doctor. I would request blood tests for an auto-immune disease and specifically a blood test for MS if you think the symptoms fit what you have researched about MS. Advocate for yourself and do some research. Try not to do too much, can cause unnecessary anxiety, just enough to know what illnesses fit your symptoms. Don't let them dismiss you. God bless, heal, & give you strength. 🙏❤
Also, your family doctor can probably order these blood tests, but a Rheumatologist will know better how to analyze the tests and treat you, if it is an auto-immune illness. It may not be, so don't get nervous before you know anything. A Naturopath or Functional Medicine Dr. will be able to help you figure out what's going on also. Stay strong! God is with you!🙌😊
Yes! Get evaluated again! I'm definitely NO EXPERT, but you should not feel that way. Unfortunately, it can take years to get a diagnosis.
@@UrConvictionsR-All-UHave2581 Thank you! I'll probably have to find a neurologist as that's what my GP has reccomended to me. If I request blood tests will the doc just know what tests are associated with auti immune diseases?
I hope your sharing these many different symptoms will help others..👍👍👍
That is my deepest wish 😌🧡
Thank you for sharing your story. This is so very helpful.
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Thanks for your video Seb
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I began having MS symptoms after the second jab. Got diagnosed with fibromyalgia but something tells me that it's not that. I see my dreams fading away more everyday. If I could message you Seb and ask you a couple questions I'd be grateful.
I'd look at jab detox protocols
Hey Jonathan, you can book a session with me here: www.life-of-seb.com/mscoaching.html#/ 🙏🏻🧡
Jonathan - you may want to look at fasting to detox after the jabs. It worked wonders for my neighbor.
@Pat Bournes is there a specific protocol? I do realize when I don't eat I feel better.
@@jonathanmolina2490 FLCCC protocols
I have had bad drilling-like headaches for the last 5 months which is a strange and new feeling to me, both knee joints pain, both side hip and legs pain, feet and toes tingling, and both hands fingertips tingling. I don't know what's happening in my body. I have IBS.
It's before 14 years since my anxiety and depression started. I am not happy with my life. I overthink. Many many things and worries happened in the last 6 to 7 years. Im 35 now. I want to get married and have a baby. Im fearing for my future.
Feels. My first symptoms were numbness on my upper left arm but it was only there for a day or 2 and I also disregarded it. A few weeks later, I woke up with double vision one morning and it didn't go away for 2 days. I went to the ER and after an MRI, I got my MS diagnosis. That was on June 5th, 2013 😢
Thanks for sharing ☹️🧡
Thank you for sharing your life. Much appreciated
My pleasure 🤗🧡
My first symptoms started when I was 3, which I still have now at 59, and MS specialists agreed that was a clear start. My mom ridiculed me for every symptom I had, school teachers too, so I just shut up fast. When I lived on my own at 21, I went to a specialist whenever I had an obvious issue. Well over a 150 different specialists later, being insulted and ridiculed so often, I finally found a specialist who did the tests for MS at the age of 42 and it was confirmed. By then I personally knew I had it, as I read online in detail about MS, but kept it quiet because of all the insults.
The fact that I mostly had a-typical symptoms, the fact that specialists only see the scope of their specialty and not beyond, the fact that specialists are trained to treat horses and not zebras, the fact that neurologists always ask the same few questions and never dive in deeper, made it take this long to get diagnosed. So, I did go and see many specialists and it still took 39 years before 1 recognized what I had and put 2 and 2 together.
And when a new medical issue arrived, as it did a few times, the whole circus starts right over to find help. But, they are not wearing me down, never. Be your own advocate when instinct says there is a serious problem, as I always did.
So true!! You have to be strong in this journey 💪🏻🧡
Thank you for this informative video. 🤗
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I woke up 1 morning with tingling in the tips of my left index finger & thumb age 20. Next day didn’t go away so went to docs. Progressively got worse over course of 2 weeks, spreading up my arm then to my head & docs kept telling me I was experiencing stress. Kept making doctor appointments every 2 days & demanded the doc do something. Kept telling me I was under stress and worrying about nothing. Was under no stress apart from knowing something up & being told by a doc it wasn’t. Arm stopped working & then was immediately taken to hospital after the latest doc appointment. Spent 2 weeks in hospital and felt like a lab rat. Was diagnosed with MS 2 months later & had the conversation after with my gp that didn’t trust her anymore. Got transferred to another GP in the practice cos she was obviously too ashamed to treat me anymore. I didn’t ask her to do it but no love lost. When u know something is wrong then u know. Share the sentiment with yourself Seb that don’t take no off a doctor if u know something is wrong. If I didn’t demand doctors appointments it could have spiralled worse for all I knew
I’m so happy you managed to be taken seriously 🙏🏻🧡
Aloha Seb, thank you for sharing.
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Thanks Seb for sharing
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Yes, you are your own best advocate !
Does anyone experience constant muscle burn while using any/all muscles? Even chewing, brushing my teeth, walking, etc. It burns like a tough workout:
3rd set, 12th repetition
when I use any muscle.
Wow, not as you describe it, however I do experience muscle burning… 🙏🏻🧡
@@LifeofSebMS Thank you for your reply. Do you only feel muscle burn when you exercise like a non MS person would? Or, do you have more burning than the average person?
When walking up the stairs for example I feel like I need to rest more often because the muscles become “worn out” and hurt…
@Life of Seb I hate that for you. Thanks for taking time to reply. When I first became seriously ill, neurologists suspected or diagnosed: cancer, Myasthenia Gravis, Amyotrophic Lateral Sclerosis, Lupus, etc. It was terrifying. I was once a Div. 1, full-ride athlete, stayed in shape my whole life, mother of 2 boys, hosted a morning radio show in one of the biggest markets in Texas, owned a business as a private instructor, etc. However, I still don't have definitive proof that I have MS. No lesions as of 3 years ago. My general practitioner has always "known" it is MS. Whatever it is, (excuse my language) REALLY SUCKS!
It really sucks when you had a bright future ahead of you that suddenly has to be redefined, doesn’t it? Take good care of yourself until you get a diagnosis and stay strong 💪🏻🧡
My son (27yrs) was diagnosed with MS by the medical establishment....he was six months away from being in a wheelchair....we sent him to a naturopath, who sent off blood work to Germany to test for Lyme, sure enough it came back positive. He went to another naturopath to treat it naturally, it took about 2 years, but he is Lyme free, although he still has some nerve damage in his hands and back, the symptoms will eventually fade away....he feels great now, and is back to his old self! MS is and can be mistaken for Lyme!!!
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How was he treated can you give any info? Thank you
@@socratese5 BIE clinic in oakville, please call them and they can discus with you, there is also a video on youtube that discusses their treatment...although they do it mostly for alergies, its an odd treatment, but works.
I can identify with some of your symptoms but with MS there are just so many different kinds you can get. My first one (I believe) was a hand tremor. I had no idea what was going on so I just tried to hide it so no one would think I was a drug addict. I had many others since. I refused to have the drugs my Neurologist wanted me to have preferring to deal with secondary progressive MS in other ways (exercise, eat well etc) and I have no regrets. I guess it is a matter of personal choice and for me I did not see me sitting on the end of a needle for the rest of my life as a viable option. I think the best thing to do if you get MS is to do your own research and be informed. Then you can make proper decisions about what you should do.
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Hi Seb i. 57 soon to be 58 in August. I'm taking Ocrevus. I've had ms since Nov 2021 . Nov.of 22 was my 1st relapse. My speech was affected where ad
S disarthria came about . I take my ocrevus on 7/17
I can tell my speech is a little more slurred and I think because exercise quite a bit my walking is ok but I can tell as I've read I'm ready for my next ocrevus infusion . Do think that the infusion help with slurring of my voice because it seems it a little more the closer it gets to my infusion date?
I'm just hoping it will improve a little bit..
My MS symptoms are related to diet. I removed beef, pork, and to some extent wheat and dairy. I read a paper about "molecular mimicry " were the intestinal/blood barrier is comprised causing macro proteins of said food to leech into blood. The immune system mounts an antibody response to these proteins that then cross react with the mylen sheathing on nerve cells. Worked for me so give it a shot!
Thanks for the suggestion! 🙏🏻🧡
Please look into the “medical medium” protocols. Some people have reduced symptoms of autoimmune problems after following his protocols and drinking specific juices etc and cutting certain foods out of their diets.
A friend who was diagnosed about 10 yrs ago also has allergies to gluten, dairy and fructose. Seems to be a common problem.
I don't think it is diet. People on Ll meat say they get better on carnivore ??? I don't eat pork or beef and I have horrible symptoms.
@@Artsylady2030 you should read "plague" by Judy Mikowitz
Have been diagnosed since early 2010… surprises I’m still kicking
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You are such a great essence to have on this platform to teach others about that this horrible disease is like. Lately my hands feel somewhat unresponsive to my writing, words getting jumbled idk if its stress or MS. But it runs in the family so I'm getting an MRI very soon. I hope it gives me the clear, but if not at least I ruled it out and urge others to get checked if they have these symptoms.
Thank you for sharing 💖 stay strong, don’t stress and I hope you get an answer soon 🙏🏻
☼ It is so hard not to write everything off as anxiety. Especially w/the cost of MR, and risk of Dx momentum in someone young. And the first MR probably wont show anything. Until the drop foot and blinking attack, w/the lethargic history - im not sure any doctor COULD* have treated it much differently. (*'Should' is an open question). Great vid man.
Do you mean you had an attack of repetitive blinking? Because I get that
The costs of medical is very high
My whole family has various autoimmune conditions n the costs r very high ....we r struggling to survive on limited meds n tolerate the emotional pain ,anxiety n positively continue as normal as possible.....
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Thank you Seb, and God bless! 🙏🏼
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I’m in this place of finding a diagnosis for my symptoms. A lot of my symptoms are looking like ms now and when you mentioned low vitamins levels I almost cried. I’m having to supplement my vitamins right now and was told my body doesn’t absorb folic acid on its own. I meet with my neurologist real soon who is the one person who’s actually helped me get anywhere and I’m going to ask her if we can test for ms. It may be too early but then again my fatigue and some other things started 5 years ago so maybe I’ll get an answer even if its no
Hoping you do soon! But you’re already one step ahead by asking to get proper MS testing 🙏🏻🧡
I have only one acronym for you... M.R.I. Insist on it!
Vitamin D3 recommended.
Wow, great upload thank you for your story😊
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@@LifeofSebMS ebv causes glandular fever, then leads to multiple sclerosis..
Live attenuated vaccinations are not recommended for people with MS.. Can you imagine how many people at risk, not knowing this, have gone to a country that entails getting a live virus vaccine (eg yellow fever vac) ?
This is all part of a 40-year study and can be found in PubMed studies.
Does a brain MRI rule out MS? I only have one lesion. My neurologist said I do t have MS, but I have similar symptoms. I’ve seen so many doctors but nobody has figured it out. I’m to the point now where my feet and legs are always numb, tingly, or cramping and painful. I get that tingling on my face too. Also, I struggle with speech sometimes. That part comes and goes. I’m so frustrated with doctors, I’m losing hope.
@@oscarvasquez7408 asshole you dont know if she has ms quit scaring her
Dozens of Dr's ers ..I'm fed up scheduled open mri after 2 months of me pushing arguing et ..thry are brushing me off
@@valeriealv7503 did they do the mri yet
Stacie gulizia how you doing?
I think you need to get more tests done, but an mri will give you a pretty clear indication that it could be ms 🙏🏻🧡
Thank you. Good, good luck!
Uruguay
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I think i have MS and my doctor keeps discarding all my wierd symptoms and says that it's just panic attacks. But i don't have medical insurance so i can't afford to go to another doctor outside of the free clinic. I'm scared what will happen to me.
Make a list of all your symptoms when you can remember them. I fear I might have it too but writing everything down is helping me. I've been feeling like my skin is wet when it isn't, vertigo attacks, bladder pain randomly, weakness and fatigue, and at one point difficulty chewing and swallowing. Also mild clumsiness. Oh yeah, and tingling in my brain. Honestly I feel like I'm crazy. But the more I document the more I know I'm not exaggerating. Whatever it is, it's not imaginary. At my next Dr appointment I'm going to bring it up in detail.
Oh dear, please make it sound worse than it is!! 🙏🏻🧡