SIGNS YOU MIGHT HAVE MULTIPLE SCLEROSIS | MS SIGNS & SYMPTOMS
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- Опубликовано: 30 июл 2019
- This is a video about MY own signs and symptoms that I had Multiple Sclerosis or MS, if you have any or all of these symptoms it absolutely does not mean that you definitely have MS, please consult your doctor if you suspect you have MS.
Links...
NHS Multiple Sclerosis Info - www.nhs.uk/conditions/multipl...
Multiple Sclerosis Society - www.mssociety.org.uk/about-ms...
![Multiple Sclerosis Diagnostic Criteria [Neurologist Explains]](http://i.ytimg.com/vi/Ixns85V95-Y/mqdefault.jpg)
Yup, we have to diagnose ourselves and then pay a doctor for it...just great
OMG. This is the he best quote I have ever read. You need to put that quote on a coffee cup. It's beyond true and you worded it perfectly. Lol. Thank you, I never knew how to explain it. (That's what's been happening with me lately). :)
YES! Exactly how I feel lately.
Damn.. if this isn’t the truth🥳
yup and most GP are all idiots, and scared to refer you for a neurologist to get a mri. I bet they don't even know what ms is
I’m fighting right now to be diagnosed!! And I can’t walk right now smh
I’ve had symptoms most of my life, always dismissing them.
At age 42, the heat started bothering me. The fatigue was kicking my ass; considering how high energy I’ve always been.
The skin itch in my right shoulder began keeping me up all night. Then I began feeling that vibrating electrical sensation in my feet. Then my face....the face was horrific pain. The muscle spasms wouldn’t stop. They began causing stiffness and severe pain. My balance was a mess, and I began falling a lot.
It took doctors 3 years to diagnose me, even though my brain MRIs were showing lesions and they growing.
After 10 years of diagnosis, my left leg is having a message problem because I can’t get my hip to left my leg without me having to swing my leg around.
Back pain is my daily pain.
I have such terrible dizziness that I literally feel sick to my stomach from it.
MS had attacked my heart twice. Making it impossible to lay down during an attack.
I have PPMS....and the symptoms never stop.
But ...I’m still walking on my own...even though my lesions say I should be in a wheelchair.
Keep up the fight!
This could have been written by me, i mean the symptoms are so similar to me! Im 29 and symptoms started when i was 23. Doctors haven't tested me for ms even though i have asked many times.. 😒 i live in a country where healthcare is paid by taxes but the treatment is not good anymore..
I'm having all these symptoms and now on a walker. Left hip and leg doesn't wanna function and I have fallen twice due to my leg giving way
This could be written by me too x
vi x2 - I hope everyone feels better. My dad was diagnosed with chronic MS when I was in 4th grade I’m now 40. He died of it.
If any questions I’ll probably know the answer I’ve seen it all. 💁🏻
@@lamppuu1 so sorry you live under that healthcare hell! I lived under that healthcare nightmare too. Americans are clueless about how horrible government control healthcare is.
You stay strong and keep fighting!
As a couple of others have mentioned, this is also an indication of B12 deficiency. It mimics MS because B12 is required to keep the protective sheath around the nerves healthy. Without it, it disintegrates and the damage begins. I experienced all of these symptoms, along with a ton of others. I could barely walk, fell constantly, was developing dementia symptoms, couldn't physically speak at times, severe vertigo, on and on. They thought I had MS, but when the scan was clean they didn't know what to do. Months later, when I literally felt like I was weeks from death, one doctor realized they'd missed doing a few blood tests. Severe B12 deficiency. With treatment, I had some improvement, but was left with permanent nerve damage. While off work trying to recover, I developed a severe neuroimmune disease and have been almost completely disabled since. Fast forward 14 years, I've been experiencing new symptoms so I just had more MRIs done. I've got damage and lesions on my brain stem. Since so many months passed between the initial MRI and discovering the B12 deficiency, and because there was no second MRI done, I don't know if it's damage from the deficiency or if I've developed MS now, too. Waiting for further testing to determine the answer. Long story short, B12 deficiency is extremely serious. It does the exact same damage as MS, and people are sometimes mistakenly diagnosed with MS when it's actually a deficiency that can easily be treated. For some reason, a lot of doctors neglect to test for B12. I was shocked when I was told this was what was initially making me so incredibly ill, but I've since learned a lot about it. The past 14 years have been medical chaos for me. This young lady is very right.... don't rely on doctors to automatically know the answer. You know your body. If something doesn't feel right, don't stop until you find a doctor who will help you.
I have chronic amemia but I have some ms symptoms which I’m freaking out about I’m having my monthly blood test tomorrow so I’m going to ask how low my b12 is if it’s not that low I’m going to get tested for ms
What form of B-12 do you take? As with many supplements sometimes certain forms don’t get as easily absorbed.
Do you have pernicious anemia? Because your story is exactly spot on like my mother's and she has pernicious anemia. I had to double check your username!
My blood tests have shown B12, iron and D3 deficiency. I've been taking the supplements for 2 months but my improvement has hit a wall and I've been getting symptoms that might be MS hug and Lhermitte's so I had a full spinal MRI, which showed a hotspot on my neck. Now I need a contrast brain/cervical spine MRI. So nervous.
@@4estdweller4ever I do B12 injections, and use sublingual tablets. Sublingual dissolve under the tongue and go directly into the bloodstream.
You are one heck of a brave lady. Thank you for doing this video. I will keep you in my prayers.
Thanks for sharing ❤️ I’m 10 years diagnosed now too. Yes I get the electric guitar strum!
I got diagnosed three years ago. Thank you for sharing your story and letting people know how to advocate for themselves and what to look out for.
Thank you so much for this video. To sit with you and hear your storey helps with my fear and frustrations in this process of getting down to what’s happening with me. My Dr’s are on it and for sure it takes time to get diagnosed. Love your videos on this .
Thanks so much for your video and explanation. I may have the start of MS after a brain MRI showed lesions. It’s a sneaky disease and I love the way you filled in the lines between the dots. Your positivity and bubbly personality have filled me with the confidence to persevere with the specialist! Thanks again 🙏
Thank you for you video 🙏 I find some many things related as a young mom . I’m in the stage of having symptoms & finding answers / test . You are a light of hope for whatever it happens 💙
What an amazing young lady. This video will help so many people. God bless you and sending good wishes for the future. xx
Your description of symptoms at 4:50 are a perfect first hand account of Lhermitts Sign a huge indicator for MS 👍
Thank you for sharing - the symptoms sound very subtle in the beginning and that really helps to know and hear about. Wishing you well!
Thanks, Rhian - your MS journey sounds a little like mine - not exactly the same symptoms, but the isolated onset of “unrelated” symptoms which in hindsight can be connected by joining the MS dots is EXACTLY what I went through. Thank you for sharing your journey - I am sure it will provide others (both diagnosed and undiagnosed) with some peace of mind. Well done.
I'm trying to figure out what's wrong with me now and MS has come up a few times. It's scary but I'm glad I found your video. It was really informative for someone like me trying to find some answers!
Thank you for your videos. It has given me courage to see my doctor because I’m having similar symptoms. I hope you are doing well! I noticed that you haven’t posted a video in awhile 🙂
I'm really scared that this may be the path that I am headed down. I already have a bunch of health issues and have noticed over the last few years of things progressing this way. I applaud your strength in sharing your story with such grace.
I have secondary progressive M.S and the twanging of the body feels like a pull back /let go catapultation of all my muscles and nerves so your guitar string description is another cool way of describing it, bless ya! ...❤️
I really relate to this so thank you for posting. I was diagnosed seven months ago and like you I was relieved it was MS and not a brain tumour.
Thanks for the video. It helps people relate and seek help. The earlier you get diagnosed is the key. All the best for the future.
Thanks for sharing glad to here you talk about again we with Ms suffer every day its a struggle thanks!
Selma Blair. The famous actress went through the same exact thing. She had MS for years and no doctor would do a thing until she physically fell in front of her doctor because she couldn’t stand. Then she was diagnosed. Watch her story if you are interested. It sort of frightened me as I suffer from health anxiety so I try my best to stay away from these types of videos but it shocks me how doctors cannot connect these dots.
I'm currently in a spiral of health anxiety (convinced I have MS)... Too scared to go to the drs :((
@@eruusky same here
I think they do connect the dots, but because of their greed they wait until they are like 92% sure that the symptoms indicate a certain illness before they do any diagnostic testing/imaging, in an effort to reduce wear & tear of resources & equipment. They even train us to do this in the healthcare field (fraud waste and abuse training). It’s the reason people on Medicaid & Medicare have to wait constantly on approval by insurance b/c of too much wear & tear & waste of materials in the past for patients who’s symptoms were mild. Which is BS because they misdiagnosed people & dismiss ppl constantly all in an effort to protect “the equipment” that could easily be replaced but someone prefers to pocket funds used for that
@@eruusky Same 😑
Selma, it would be frightening. Did you have any sort of chronic itch next to your spinal column? I have and before I knew it the info went right into MS. WHAT????? I need to see a Neurologist I guess, what do you think? Thanks Janice
My mommy had ms and I miss her so much everyday ugh :( ppl with ms are truly the strongest ppl on this planet I pray for everyone 💗💗
🥰🤗✨💛✨🕊️🙏🏻Sending Love... 💗
Thank you for explaining this so well. Bless you ❤
Hiya Rhian I've now been suffering with MS now for 23 years and have been on various MS treatments and because of PML I was taken off of the previous treatments but I'm now on gilenya which is doing its job by keeping me Relapse free,
I know what you're talking about when u described the tingling feeling from the top of your spine to the bottom of it when u look down,
I've been in & out of my wheelchair to many time's to remember which isn't a hard thing to do as my memory has got really bad over the past few year's. I really hope you find the right treatment for yourself, your video has been most helpful to me so thanks a bunch please keep them coming ✌ peace✌ from Dulwhich London
Hey Rhian..great to hear your story. Have you heard about NMO? NMO more commonly has spine lesions. You can always ask your neurologist for a NMO anti body and MOG anti body test
The comment section feels like such a support group❤️... Thank you for creating the platform for us to share our experiences. God be with us through this
This is a very good video to remind us that every diagnosis is unique. Thank you for making. Hope you are doing well! 🧡🧡🧡
Thank you for sharing your story and making this video.❤️
Your video encouraged me to go to the doctor and push for an MRI. No one thought I had MS. But I do. This was at the end of May. I’ve seen an amazing neurologist and am doing the paperwork and bloodwork etc to prepare for my first MS therapy - Ocrevus. Thank you so much for sharing. You literally are saving lives and getting people to seek out answers. ❤️
I’m so happy you advocated for yourself. I worked with a dr in Texas who blamed all my symptoms on Chronic EBV. Now I live in Oregon and I just did blood work and will go over it with the Dr. then we will schedule an MRI.
I think I might have ms, all the different symptoms I have, in the last 8 to 10 yrs in my mind point to it. I keep asking my Dr if all the individual symptoms I have could possibly all add up to 1 main illness but they treat 1 complaint each time, ignore the rest. But blinding headaches, numbness, tingling, eye pain, twitching, vertigo are getting worse and they won't listen. At this stage I think my own family think I'm exaggerating. With covid, it's getting impossible to be sent for tests, but I'm going to ask to be sent for mri. I'm even having panic attacks now, I'm just so fed up. It's great having videos like this, make you aware of what to look out for. Thank you
@@coolgirls4855 Definitely push for an MRI. With contrast to show any lesions and if they’re active or not. 🙏🏻
Just had my follow up from my MRI 2 lesions on my brain. Spinal cord is clear. Going through all the extra blood work to check for infections that mimic MS & getting a referral to the MS neurologist. So it begins…
@@kristabrown2675 I’m glad you got some answers. Yes, get other things checked and out of the way. Mine was caught relatively early. No idea exactly how many lesions on my brain but only one that was active. I’m scheduled for spine and thoracic MRIs in the spring. 🤞🏻
Thanks for this. I am 61 years old and have been having symptoms since a bout of measles when I was 25. Only one doctor joined the dots and sent me for an MRI when I was 53. Unfortunately I had a major panic attack and the MRI didn’t happen. Then I had to move due to domestic abuse. Now all these years later I am still battling to get a doctor to take my concerns seriously. In December 2021 I had an episode where my right leg decided not to walk anymore and I was hospitalised. An MRI on the spine showed nothing contributing to that problem. I went to see my doctor who has referred me to a neurologist as I told him I was worried it could be MS. However it’s nearly May and still no appointment. But your video has spurred me on to make a detailed list of symptoms. Thanks for the inspiration xx
Hey Rhian thank you so much for the guitar string description 😊 iv been having difficulty describing that sensation as i also have ms diagnosis 18mts ago and like yourself seemingly have had ms for 10yrs plus undiagnosed. Thanks for ur videos ❤ take care ❤
Huge respect your way my MS showed its there during a lifeboat shout 1 night when my vision went wierd and then i awoke weeks later totally blind in left eye, fast forward i founded and rune group cqlled Bikers With MS which is my way of helping folks so your way of helping does help othhers respect and well done
I'm being referred to a neurologist as I over the last few months have had to have a suprapubic catheter fitted as I don't feel the sensation to wee until my bladder has alot of urine in it. Also I have difficulty sometimes getting out of my mouth what I want to say correctly. And keep laughing at things I don't usually find funny. I. Dont know if it's stress or neurological but seeing this makes me feel more not alone like. Hope your feeling better and great video.
Thank you for your video. I think as women we have so much to do Sometimes we ignore Our own symptoms
Thank you!! I've just been told I've got MS and it scared the hell out of me. This has helped me to see it can be ok.
I was dx in Feb 2008 - dr thinks I have had it for 20 years. I love your channel!
My sister has had so so many investigations for her autoimmune stuff and it’s debilitating. Every symptom she has, they put it down to mental health or chronic fatigue syndrome. She’s even spent £300 on a private appointment with a neuro. He referred her for bloods, MRI spine and MRI of the brain. Sadly no more information was found although MS was ruled out because there were no brain or spinal lesions. She’s 31 and doesn’t leave the house much due to pain and mobility issues despite being very slim. I’m so happy you managed to get diagnosed and get treatment that’s working for you ❤
Thanks so much for sharing your story! May I ask did you have to get a spinal tap (Lumbar puncture) in order to get diagnosed?
Yes, am a fighter MMA, and coach for more than 29 years experience, now dealing with MS and Paraneoplastic syndrome,,, similar symptoms and I still keep my track going to the gym and others,,, but it really hit you, I mean I know I have it when I try to do normal things always do, and my body shoot down,, thank yoj for info, be strong be champ
You are a very brave and strong woman than you for sharing your demeanour and approach to the situation is inspiring.
Thank you. Just catching it now October 2019.
I’ve just watched this. I’m at the point of waiting for mri for suspected brain tumour or ms. I had a diagnosis of fibromyalgia about 7/8 years ago and have been on medication to control it but new things are appearing and they are not associated with fibro. Especially the problems walking, like walking through waist deep water or treacle. So much effort. Other things I’d put down to peri-menopause but I’m questioning it all now. Was helpful to hear your experience. X
Thanks, This was a great video. Very well presented.
Thank you for the video. ❤
Ooh, girl! Low back pain is awful. I have many of these symptoms but after paying so much money with no answers and insurance rejecting all of the tests doctors want, and I feel better... I'll just have to stay focused on hydration, spinal alignment, anti inflammation diet/ lifestyle I'll have to crack on with life.
I had a brain MRI and was told I have a beautiful brain. They only did an mri in my low back and neck, no lesions.
They couldn't tell me what caused me to lose vision completely in my left eye for about 45 minutes. They said I have chronic migraines. The guessed that the reason I couldn't walk or stand was due to a Herniated disc. They were quick to suggest back surgery but after I scolded that idea, they sent in another doctor that retracted the suggestion because I was young. She already knew I wouldn't go through with the surgery (too many I've met have had more issues within 5 years of back surgery than before they had the surgery).
This video makes me feel less isolated about everything. I tend to ignore alot of smaller things that go on mainly because they feel normal to me. I first got an mri done because i had optic neuritus and they done the scans as a precaution only. They found lessions in my brain and had lumber puncture which tested positive for ms markers. They dont want to give me full diagnossis and treatment as they say its not progressed. But i feel it coming and going in sometimes diffrent ways and i know its this so i feel pretty alone with it all. Im havung a bit of a bad day of it today so looked on youtube for what others have experianced . It all concerns me as i work a pretty physical job in construction and dreading that day i cant do it any more 😪. Thanks for the video its good to see others experiances and know im not alone
I hope you are well. Please get a referral to see an MS Neurologist, if you haven't seen already.
I definitely agree with your advice that you should write down all of your symptoms and bring the list to the consultation. And get those pathology diagrams and draw all the parts of your body where you're feeling tingles, pains, or numbness. If you show it to them it will be quicker than explaining everything. Very often GPs or specialists will want to rush you out of the room before you've finished explaining, because they treat you like you're 'whinging' or won't shut up about all the stuff that you are feeling. So they'll miss connecting the dots and delay diagnosis.
Writing it down will also help you keep a record of progress and potential triggers, such as exercise, heat, cold, etc.
Hi. What happened to you? I used to love your channel. I've been looking for it for a while and finally found it to notice you haven't posted a video in 3 years. And now it's all about MS. I have MS too. Been living with it for 11 years.
Thank you for sharing! It helps to hear what other people went through/ are going through.
Katheryn Hauser Thanks Katheryn, that means a lot ❤️
your description about the guitar string vibration is perfect😊 hope you are doing well nowadays dear.
Sneha Paudel I’m doing really well. Thank you so much, I hope you’re well too 🙂
Sneha Paudel That’s a well-known MS symptom called Lhermitte’s Sign. It’s pronounced ler-meets.
Thank you for sharing your story. You are so poised. I hope to be just as strong as you. ❤️
Thank you so much! You explained your early symptoms very well! I have them so I know what you mean. I am not diagnosed yet as my MRIs are clear.
Thank you for your video, loved it! I completely agree on going to the doctor as soon as possible, however, they don't always take you seriously as you said. We gotta fight for our health!💖
I have Hyper Ehlers Danlos Syndrome.... symptoms are very similar to MS. ( it can sometimes be diagnosed before an MS diagnosis )
If youre Doctor is saying you dont have MS but you know theres something wrong .... ask them to look into EDS ( Ehlers Danlos Syndrome).
Best of luck , love and light to you all .
I also suffer serious fatigue and have bad “brain fog”. Sad that MS have such a HUGE effect on memory and cognitive ability but I am SOOOO grateful for all the different meds that are now available and that they get more affordable every couple of years.
Hello new subbie thanks for sharing your story I'm also an MS patient. Following your journey.
Holy sh*t, the guitar strum is exactly how I describe it. I don't see it as an "electrical shock" as it's come up in other resources. Really interesting video, thank you for sharing
Did you had a headache before everything starts. I am really depressed I was always healthy. 4 months ago everything started with headache, now I feel my legs super heavy and my head feels super tired everyday. And doctors can’t help me 😩.
I’ve been having these symptoms after I had a heat stroke at work last year. They can’t figure it out. But the more I research the more point out to MS.
Great video and great personality,I really enjoyed watching the video and the way you explained the ms so beautifully and simple,wishing you all the success and please continue doing your videos because this the best cure for you ,thanks again ❤❤❤❤❤❤❤❤❤❤
Me …Ms since 2002 …. My sister died from uro-sepsis due to ms .the heat or any temperature change kills me the burning skin and itch u can’t scratch and fatigue . I had covid and now long covid. She describes things beautifully
Thank you for sharing all this. It helps to hear from other MS'ers about their symptoms, to remind me I'm not going nuts :-)
Judee Moonbeam Thank you. I was actually relieved when I was diagnosed because it confirmed that I wasn’t crazy 😂🙈 which seems strange to thing about.
I hope you’re doing well 🙂 x
@@rhiangibson1544 The neurologist who diagnosed me said that was a very typical response....relief/vindication....
Just found your page and I was just recently diagnosed with ms this year and had a 3 month flare up I’m really glad to see that it looks like your living a good life ❤️I’m scared to see where life with ms is going to take me but I’m going to document it on my channel !
I was diagnosed in the last year mind started with ocular neuritis so I started to lose vision in my left eye but thankfully I got steroids in time and my eyes back to normal. I find being open honest with everyone even complete strangers 🤣is a good way to keep you mentally strong and make it more normal to you
The bending neck thing I had for months and did nothing about it . It was horrible!!
Thanks for talking about the learning aspect. I too have those issues and missed my psychiatrist appointment because of covid restrictions
I was diagnosed March 2018
It's called the lhermitte sign
My mom started having symptoms in her mid thirties, her equibrim and numbness and she went blind in one eye temporarily. She never drank alcohol but had trouble with balance. She had the worst case scenario, she lost weight to 90 pounds at 5 foot 6 inches tall and she passed away really young. The numbness in her legs was extreme and physical therapy was one of the last things we tried. Sending positive thoughts and I’m glad that there’s a lot more advancements in modern medicine. Hope you’re doing the best and thank you for this video. 🙏 my mom I miss her, she was basically paralyzed waist down and couldn’t walk, the depression was so bad before she passed.
Thank you for this video. My GP thinks I have MS and has referred me to a neurologist. The symptoms you described are exactly what I have been experiencing and not knowing how to describe. Thank you so much!
How did it go? Did you get MRIs done?
Thank you for this. Your video just popped up and it’s weird because I have an MRI next Friday. I have had symptoms for years and recently just put them all together!
@Gymlife Academy what were the results of your MRI? Hope you are ok.
Leesie thank you so much for asking. My mri was negative. So I’m back to square one of what is going on. Had a very mild relapse a couple of weeks ago and this time had some bad eye pain. My doctor got laid off from all this covid 19 debacle so I guess I will just live with it until another occurrence happens and go back to the doctor when the symptoms are there. Thanks so much for asking❤️
@@gymlifeacademy1738oh no!
Could it possibly be herpes virus related? Hash*moto's, ch*cken p*x, f*bromyalgia (the list goes on) are all different viruses.
This is my integrative care practitioner.
medium.com/@evelinavivianne
Thanks for sharing, really well-spoken, I am currently going through the diagnostic process in Bristol England, hopefully I should get an answer in next few weeks
Keep your journal. Don't forget to keep it up to date. Doctors and neurologists need time to diagnose. Stay healthy and keep yourself safe.
What was you diagnosis ? Hope you are ok
How did u get on?
Thanks for sharing your information details, you are very brave and very good communication skills, be confident and enjoy your work!!! Sincerely!!!
Such an open and honest account of your MS journey. Well done for sharing Rhian. Sometimes, just being able to put a name to something helps reduce the stress of not knowing. xx
Lisa Dixon Thanks Lisa ❤️ that’s exactly it, it felt like a relief when I was diagnosed. I know you’ve had your own health struggles so thank you so much for your comment - it means a lot ❤️
Hope you and bubs are doing well xx
@@rhiangibson1544 Rhian, how are you now?
God bless n hugs.
From Europe
I was diagnosed 3/2021…. I didn’t take it serious because I was hit by a car at age 8…. Never told anyone because I was afraid of hospitals, my mom etc. So Now at age 47
Things at getting worse at a rapid pace… I always had pain while standing for a long period of time… I thought it was due to the accident…. I was walking fine in January or before then I was on a cane for months, now I’m on a walker….. Still haven’t received my first dose of medication for PPMS…. I’ve had every vaccine known to men COVID, booster, TB, Shingles etc. I can’t remember them ALL…. Pray for me that everything gets better…. I was a School bus driver for 20 years off and on and the doctor stopped me from driving because she said it was too dangerous….
I have MS! Great analogy with the guitar string!!
Omg. Most symptoms u said.. i totally relate to. Xxx. Been to neuro told i have essential tremor but i know deep down it will progress into somethinf like ms
I’m catching this one year later- I too had a long hard discovery journey. I fired 2 neurologist for pure stupidity- shame on them for not referring you to the MS Society for better up-to-date info. Bravo for sharing- my MS is now 21 years since diagnosis. After one year of Drs. and prescription drugs I found an alternative healing with raw foods, exercise and acupuncture- do your own research and find a support group as every MS case is personal. ♥️
Can you please share diet details
Cheers to you for keeping on those doctors!! My father was diagnosed when he was 45. He is now 89 and was able to stay out of a wheelchair until he was 80. He followed a special diet (fish, chicken, low fat, and took cod liver oil supplements). He has lived a very healthy life until his age caught up with him in the last few years. I sure know what you mean about doctors not listening though! I had slipped discs in my neck--suffered with tingling in my finger tips for 6 years and thought I had MS. My Chiropractor figured it out. I had the surgery to repair the slipped discs and got the feeling back in my left hand and most of my right hand. Life is unpredictable! Good luck and thanks for the great video!
Hello
I am not diagnosed of MS by any doctor.
My symptoms though points MS.
Age 24, buzzing sensation in feet, internal tremor from hip to sole, blurred vision (for seconds) in right eye, itching all over body.
I feel like i walk on bubble wrap, may be because of neuropathy.
I read about your father being fighting quite impressively with MS. This made my anxiety disappear, you got to believe me on this 😅.
Still i have a question, how is your father's vision? Is it still alright?
@@adivarma95 My dad experience blindness on one eye on occasion, but his vision was very good up til the end. Sadly, we lost him on August 12, 2020 at the age of 89. My sister and I went to see him one last time and he died within minutes of us seeing him. He is dancing in heaven! He was able to walk until about 10 years ago. My mom's brother also had MS and died at age 86. He walked up til the end!
@@andreameeuwsen6060 i am so sorry to hear that.
May his soul rest in peace.
Never met him but he still inspires me and other people who will read your comment!
Thanks for the reply, really appreciated!
@@andreameeuwsen6060he was waiting for you guys, I know it! The same happened with my grandma and when my mom came home from having to go out somewhere, when she heard her voice and mine, she left us. But honestly in my opinion it couldn’t have been more perfect timing. If my mom wasn’t there with her at her time of passing I would’ve felt so entirely guilty. ❤️🩹
Yes cheers to you for getting diagnosed
Such Great information, thank you
Stay strong! I’ve been living with MS since ‘09.
How hard is it and is ms progressive? Will this just get worse?
Thank you so much. I realised just today actually that my latest symptom is difficulty swallowing. Haven't been offically diagnosed yet but, ja, I've basically had symptoms my whole life. My appointment with the neurologist is next week 11 May.
Good news. MRI shows I don't have MS but doctor says I have fibromyalgia.
Thank you for the upload and sharing. I got diagnosed with ms in 2012. My first symptones was quiet a bit. It started with having vertigo symptones..went to the doctor and got told that i had crystals in one ear. But it became worse, then the right side of my mouth started to hang from time to time and had troubles to talk. It was horrible because people looked at me weird and didnt know on whats going on. Then i couldnt move my right leg. I got send directly to a neurologist and then i got diagnosed with ms relapsing remitting. And i do have it too when i look down...it feels that my head weights heavy then. And yes i still struggle with balance problems but it got improved by actually doing weight training. I can talk and walk normal again. Hearing you talking about it really makes me emotional. Stay strong 💕 youre a ms warrior queen. Lots of love towards you and your family
Miss Nathalie j
I am a newly diagnosed MS person I am older 79ys young. Your vedio was every informative. Thank you I will continue to get your info.
Thank you for your video on MS. I'm 62 and believe I've had it undiagnosed since 27. Miserable and sick all this time.
I’m 66 and had symptoms on and off since I was around 30. No answers always blame it on something else or they try and google! Two episodes lasting 30 mins each time where I couldn’t put a sentence together led me to an MRI. Lesions demyelination indicate maybe MS with a follow up recommended in 6 months. My GP says he doubts that I would have MS.
On and off, I’ve been dizzy, lately terrible balance that can’t just be weak hip flexors and ankles, blurry vision, over my lifetime, autonomic nervous system changes, migraines, more blurry vision, odd peopioception and tripping often. Sometimes even breathing issues that aren’t asthma. Twitches in feet. And in general, sleeping issues, persistent urination and extreme lethargy. Either depression or something else, but ADd meds and coffee don’t even help anymore…. I totally get the pins and needles, but only after sitting. I’ll stop because it could be a lot of things and yet definitely sounds like remitting relapsing. I just pray that they find a cure for this thing 🙏
I also have rr Ms I sometimes have a hard time dealing with it but am learning more & more about it to help me though it Thank You So Much For sharing your experience !
Wow, that is so interesting, thank you for sharing! I had exactly the same symptoms that eventually led to my DX: numbness & tingling and Lhermitte's Sign. I totally agree that you need to track your symptoms because otherwise some will eventually be forgotten. And doctors are just not equipped to piece everything together for you over the years. You have to be your own advocate.
Currently waiting for a neurologist appointment and spent the afternoon in A&E with the stroke team since my entire right has altered sensation.
Thank you for sharing your experience. I was just diagnosed with MS this year to noticing the numbing in my right hand. The year before I was also diagnosed with a pituitary tumor after dealing with migraines for 13 years. I know I should of went sooner but after last year I had enough because they were getting worse. Seems like I was having symptoms long before and didn’t know because I had trigeminal neuralgia, which is nerve pain in the face. I also had visual disturbances in my left eye. Light would seem brighter than the other eye.
Artistic Wolf Prints Bizarrely I also have Trigeminal neuralgia but mine is very mild - I have so many mild symptoms I sometimes forget about all of them. I struggle to brush my hair due to scalp sensitivity and get shooting pains. I can’t imagine having the same in your face ❤️
I’ve never had visual disturbances which I am thankful for. I’m so sorry you have all of that to deal with ❤️ sending you love and I hope you’re doing well
Rhian Gibson thank you for replying! I am taking gabapentin to stop the nerve pain in my face. I haven’t had pain since last year. It was pretty bad. I was in the bathroom beveling over the sink with a warm compress after every time I ate anything. The light flare part of that would happen then too. I too had the hair sensitivity but not too bad. The told me I probably never noticed the tingling in my hand until I asked to cut back on the Gabapentin doses. Thank you for sending your love, means a lot! I am doing better, just mostly tired a lot. I hope your doing well yourself. Sending you my love as well. 🤗
This is so interesting. I have a large cyst on my pineal gland. It needs to be checked out as it is large and could be a tumor.
I have many ms symptoms, but my MRIs were clear from lesions. It is interesting that your diagnosis story did not end to the diagnosis of pituitary tumor! You are in good hands!
@@SatumainenOlento ahh it is quite possible that the lesions aren’t showing because the Pineal Glad could be covering it. Like mine was. Once the tumor shrunk that’s when they noticed the lessons. Definitely go get it checked out. Don’t wait years like I did. Best of luck to you.
I'm currently in the process of diagnosis and I'm pretty certain I have ms. I'm 29 with a 4 and almost 3 year old. I definitely relate to a lot of things. Thanks so much for sharing your experience. I'm lucky my Dr has referred me and hopefully I'll see them in the next 2-4 months
What were your results?
What symptoms did u had
Thanks for sharing your story.
Hi I just stumbled across you channel, I told my Dr to day that I went to be tested for MS, I have every single symptom. I was diagnosed in 2010 with ovarian cancer had full hysterectomy and chemotherapy after and they put the numbness down to the chemo. I also have t2 diabetes so it has been hard to conniving the Dr something else is going on. Balance issues, had vertigo, my face get pins and needles, I have been slurring my words, memory is shot, having trouble putting together sentences. I have suffered with what I think is restless legs pain in feet and back which is now started in my upper back. He has told me to get my blood test and get my eyes tested, then maybe MRI, I have several accidents in the last month all happening on the left inside stubbed and broke toes. Walked into a metal plate injured my shin, all my left side from my back to my pelvis was so painful. Now I have that same pain in my. Thank you very much for sharing.
From Canada here. Sorry about your delay in diagnosis. Yes, MS is elusive, but your symptoms combines with your young age, should have set off alarm bells with the doctor, they are so classic. Glad you know and have treatment.
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Wanted to add that trauma as in child birth releases benign MS. Mine came from a traumatic head injury-
Good luck in your healing journey ♥️
I think the trauma of them vaxing new moms, pregnant moms and giving young woman so many shots.
Sometimes I wonder what's wrong with me as I have some weird yet mild symptoms - it doesn't look like anything you're describing though. Maybe I'm just getting old. lol Loved your video and wishing you all the best in your fight. Have you thought about adjusting your diet perhaps? Research it and see if this yields any positive results as they may vary from person to person.
TY for sharing Mrs. Gibson! 😉 So crazy how over a period of 10 years of having MS you get diagnosed. Coarse the Rubbish Doc didn't help. I have a great doc, just I also have Dercum's Disease (hard to describe, please look up) which puts pressure on nerves. She feels its causing fibromyalgia. Like X.Y., Thru research I believe it's MS. An MRI has been ordered.
I pretty much had the same symptoms plus a couple more. Doctors are a joke. So I cleaned up my diet. Got rid of processed foods and sugar and I’m never looking back. I feel so much better. My symptoms have gone away. Try cleaning up your diet first.
I had no symptoms before being diagnosed with MS the one and only symptom I had was I woke up and lost sight in my left eye, once that happened it took 3 months of tests and I was diagnosed..
I even had an MRI three years prior( for an unrelated reason) of being diagnosed and my neurologist told me that there was no signs of MS whatsoever at that point
What a great video really helpfull. Thank you .
The guitar strum vibration (or electrical jolt) you feel down your body is called lhermitte's sign and can be caused by a number of different things. It's best to get a referral to a neurologist as a primary care physician won't do anything for you. You are 100% correct when you say that a physician will not connect the dots if you've experienced multiple subtle symptoms over the course of years.
Hey what are some of the causes for it?
Literally the best MS video I’ve ever watched!🙌 Thank you.💕 God bless you.🙏✝️
im 70 and had symptoms about 6 months.
My colleague with MS told me to contact my doctor as was concerned about my symptoms. I’ve always had periods numb/ hands, fingers and sometimes legs. Often when I look down I get a shooting electric pain in my lower back. I had awful back pain in February and couldn’t even shift my weight in bed, was given painkillers and figured it was a trapped nerve. My legs were wobbly, I was off balance. I’m always clumsy and off balance but my legs felt very shaky. Ive also been very lightheaded and dizzy every day. It hasn’t completely gone away, got really bad again on Friday and for the last few days and I have been in pain. I also was diagnosed with adhd this year for brain fog, confusion, lack of focus etc
Not sure if this is anything and is a bit embarrassing but for the last few months I can’t seem to empty my bladder fully. I’ll start to go and then it stops like I’m done but I can tell I’m not! Anyway, will mention these things to physiotherapist on Friday x well done for pushing and for getting diagnosed x I hope you’re well and this video is very helpful xxx
Really love your video! You spread so much positivity despite the fact that you‘d have enough reasons not to be. I got my Diagnose for MS in September 2017 when I was 17. it was terrible for me especially the extraction of cerebrospinal fluid (I don’t know if you say it like this in English, I am from Berlin but I try my best with my English😁) It was so painful. But I survived. Prior to my diagnose I also thought that I just got a piched nerv but it wasn’t and there was one good thing.. my doctor knew exactly what to do. She transferred me to neurology in the hospital where I stayed for one week. To put a long story short, i first got a daily injection but I got the next symptom and so on. A half year with 4 exacerbation (everytime right before my exams in school, it was my last year and I wanted to reach my a levels.) so my doctor changed my therapy into lemtrada. My first injection was last year in September and I got infected by MRSA. It was a hard time for me and I was sick very often but know, I am fine. Next week, the second and hopefully my last injection will start and I really hope that lemtrada is my ultimate healing.
What I originally wanted to say is that I really enjoy watching your videos and it spread hope and love and I want you to know that it really helps me to look at you being so positive about your own situation! It gives me the strength that I really need now because I can’t be that positive like you. Maybe it takes time and a few years and then I can be like you. Because you are my idol from every point of view. Hold on, I love you 💕❤️
Hi I think I have ms as I have all the symptoms and sometimes I get so scared but seeing your comment makes me feel better but I am having flashing lights in my eyes and hope to not go blind do you know if steroids can help alot? And has your treatment work 100%?
I was diagnosed yesterday. I’m waiting for my care plan and to start treatments.