5 Multiple Sclerosis Signs
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- Опубликовано: 22 май 2024
- A discussion of five multiple sclerosis signs: Lhermitte's Sign, the Babinski reflex, Uhthoff's phenomenon, Clonus, and Hoffman's sign.
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Thank you so much for sharing your story and your research!! I have heard of these signs throughout schooling, but it is extremely helpful to learn from people who are unfortunately experiencing some of these signs first hand. Your level of explanation is something others simply cannot teach if they haven't ever experienced it. I wish you the best, Spencer!
Nice to have a comment on the video from ya ... good luck with your continued education and thanks for checking out the video
@@SpencersMSStory Hi Spencer. I've had what sounds like L'Hermittes sign in my neck since 1988. I've told many doctors about this since, yet no one seems at all concerned or gives me a reason for this "taser." It's worsening now where new positions can cause it. I'm very worried that it will continue to worsen and spread until I'm even more affected than I now am.
Have you found anything that helps? Thank you.
** Just remembered I've had two doctors and one physical therapist who could not elicit a knee reflex on either knee with several tries.
@@Rollwithit699 Since 1988! That's a long time to deal with it for sure. I have no idea what may work for you, but for me these things tend to help: avoiding postures and positions that make it worse, cooling (especially at the back of the neck), stretching, rest, low stress ... But for me it's episodic so whatever is impinging your nerves back there may be different than for me. I've got lesions on the nerves. Not sure what is causing yours
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
Positively So called Multiple Sclerosis (M$) is/HAS been the Biggest at best one of BIGGEST scam of a sham autoimmune theory con jobs to have ever existed!!!
@SpencersMSStory If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
Positively So called Multiple Sclerosis (M$) is/HAS been the Biggest at best one of BIGGEST scam of a sham autoimmune theory con jobs to have ever existed!!!
My beautiful 53 year old sister who had MS for 40 years, died shortly after the second Covid injection that was forced upon her in the nursing home she lived in. She was bright, smart and an incredibly determined. She suffered tremendously throughout her life but carried on with strength and tenacity.
Oh my gosh, I'm so sorry to hear about your loss. Covid hit people with MS pretty hard, and that nursing home situation sounds like an added challenge
My condolences on the loss of your beloved sister 💔
I'm so sorry. It's a crime.
So sorry to hear that .. the Covid Mrna vaccines are doing that to alot of people with MS but the Dr's are not connecting of course. Most autoimmune diseases can be effected and worsen. In the trials people with those type of diseases were not allowed to take part. Just like myself as I have had analphylactic shock or people who take epi pens. So sad and people with dementia have gone down really quick even if they hardly had any symptoms yet. People should be jailed
This is Terribly sad news,
I know it will not bring your sister back,
but I would be contacting a lawyer 👍 they studied the vaccines years before and they found that the vaccines were known to not help with the COVID virus they knew this many years before, this is a fact 👍
absolutely horrible what went on. Horrible, they should not get away with this with no repercussion this was purposely done 😞 so sorry 😔
Thank you for making this video. Also it kicks ass that you're willing to say, "that sucks!" I feel like so many people aren't willing to admit that symptoms can be awful & it kinda makes me feel like I'm just a negative person or whatever. I don't really mind but it feels isolating.🥺
Thanks for the feedback and good to hear from ya. Hang in!
@outoftheklosset. My beautiful sister who had MS most of her life suffered tremendously from the disease, like no other. The symptoms and exacerbations can be extremely difficult to endure. God bless you. Praying for you🙏
"Kicks ass" 🤭 You must've been a teen in the 80's. 😎
@@MoonPhaze5 lol I was an 80's baby
Facts. I feel the same.
I,was convinced that I had MS, and had a suspicious lesion in my MRI. But it turned out to be Systemic Lupus, with poly neuropathy in my feet which causes foot drop on one side, as well as balance issues causing falls. I,also,have osteoporosis fractures, T5in my spine and ribs from doing up,my shoes, caused by Cortisone for the Lupus. My best wishes to you. I have to have my son as my carer, not the life I want for him, but I couldn’t live alone otherwise. I just get frustrated having to use a stick. My saving grace is my garden, I find peace in my soul there. ❤️
I hadn't heard of lupus presenting that way -- sorry to hear of your challenges but I've gotta say that your attitude and point of view sound pretty up beat and positive! hang in there
@@SpencersMSStory thank you very much for your kindness. I hope that things are going well for you with your MS. Best wishes from Australia
❤
Yes, my son has lessions on his neck and brain. He lost vision in 1 eye then woke up with numbness down his waist. Now, hes having numbness in his leg. He also can't stand the heat at all. He was diagnosed by a neurologist a year ago. Believe me you don't want this horrible disease.
I'm sorry to hear he's struggling! Many of us have had MS for decades and are doing quite well, so there's hope for him
Lets hope new effective treatments will come since a cure is still far away
Thank you. Fantastic video
Thank you for posting. We wish you well.
Really helpful. Thank you.
Thank you for your very valued input.
THANK U MR. SPENCER 4 YOUR INSIGHT ❣️
I couldn't stop watching the dogs playing football. I get Lhermitte's sign and Uhthoff's. And whatever the "too cold" version of Uhthoff's is. It's a bit of a sweet spot temperature situation.
Oh how they love that game, but the football is now in shreds and they've moved on to a soccer ball. :) Dang temperature gets me too -- hang in there!
Thank you for this detailed information. P.S. Your dogs are wonderfully happy❤️🤗❤️
Thank you for sharing. Any help and advice is so greatly appreciated.
You bet!
Heat is soothing to me. It helps my pain.
Good to hear! everyone is a little different
Thank You so much.
Thank you. Well researched.
Thanks for checking it out!
You are doing great, signs and all!
Yep! Going strong and steady :)
Very informative, thank you 😊
good to hear
Very informative! Love the cute pups playing in the background 😊🐕
Big thanks!
Thanks it's helpful to know other people are going through the same things, makes me feel less weird.
Absolutely! It's great to know we're not alone
OMG l'hermitte's sign is rare, and even rarer to see a patient video about it! Thank you!! I've had this on and off for over 10 years. Uthoff's too! I just explain it as temperature sensitivity to avoid my mispronunciation :)
Good to hear you're getting some answers.Hang in there!
You are very informative on MS and You have great personality
:) thanks
This was an awesome video! very informative. Thanks for sharing
Thanks for checking it out!
@@SpencersMSStory You're welcome
Thank you ! All my heart 💜
Take care
Thank you!
Thank you for this! Positive Hoffman, Positive Babinski, hyperreflexia, balance issues, all over pain, etc. Neurologist in July :(
after the MRI of brain and spine, that doc should have some answers for you. and if they don't mention the importance of vitamin D and an anti-inflammatory diet, you might wanna look into it. hang in there!
I have noticed many times that my foot will just bounce up and down if I'm sitting on the potty a certain way and have my foot in a flexed position, it's so bad and irritating I have to change positions (my toilet sits really high lol😂), as soon as I move my foot it stops, it never hurts when it's bouncing, I always thought it was just a reflex because of how I was sitting. Thanks so much, will definitely mention this to my neurologist. I was diagnosed with MS 8 years ago but they changed the diagnoses to Lupus and I have been in constant hell for 8 years because no meds were working. I had the worst attack/flare up about 3 weeks ago and I have nene felt so much pain in my Entire life, I had so many symptoms on a level 30 from scale 1-10. This turned out to be a 1 of the biggest blessings of my life because now I know what's wrong and they are going to be starting meds/treatments for MS and I pray that I get some life back. I turn 50 in May and I'm Literally watching my life go by, I have 2 grandchildren and 2 children of my own that are young adults and I'm missing everything. I have learned to never take anything for granted and that you can't sweat the small things and just live each day as if it's your last. Prayers to you and everyone else fighting awful auto immune diseases. 🙏
Hang in there! I've never heard of any meds working for MS while the anti-inflammatory diets work wonderfully along with vitamin D. Be well!
Thank you so much. Back to neurologist next month, no official dx. I was paying attention but it was nice to watch your dogs dig and run around. Good luck to all.
Good luck a the neuro
Thanks for sharing
You bet. Thanks for checking it out!
Best wishes to you
FOUND YOUR MS SITE!!!! I was diagnosed in 2012 and I'm positive for all your sign's except the Hoffmans. I can recall as a young man (I'm 60+) getting the Lhermitte's sign. I would flex my neck caused I thought it felt 'cool'.
Anyways, thanks for posting. I've sub'ed and set the alert. Waiting for you next annual update.
Great to hear from you! Lhermitte's sign can be mildly annoying to downright horrible, depending on what's going on. Take good care!
Your dogs playing with that ice was so unusual. Never seen dogs do that, very cute.
They love the stuff! We always see them pulling pieces off the tops of frozen puddles
That’s a very interesting video 😊
thanks for checking it out
Thank you for your help. God bless you. 🙏
Be well
Tres bien Dude!
Thanks for checking it out!
Thank you. I love amusing dogs.
Thanks
I will watch your m and s video
Good luck in the future 👍
You should look into McArdle's sign. There is a very strong correlation between MS and McArdle's sign that does not present with other neurological issues. It's the one sign that doesn't cross over to other conditions.
Cool, thanks for the tip. It's interesting that flexion would be related
After looking into it, as you suggested, I ended up posting a short video on McCardle's Sign ... thanks for the tip! ruclips.net/video/YFg02z_ySEQ/видео.html
Cool!
Interesting Spencer
\
I have 4/5 of these... Delt with them for years sometimes separate sometimes all... And I'm finally putting it together. Headed to the doctor Monday! Thanks for sharing, it really helps!
Trip to the doc sounds like a good idea ... I hope ya get some answers! Good luck
@@metaspencer Hey I appreciate the reply! I go for MRI scans on the 14th, hope I get some answers!
@@thetruejay20 Answers! That's what I'm hoping you find
You ok?
@@truno7 Yeah MRI showed no signs of MS. But now I'm chasing a mystery illness...
Thanks appreciate you!!!
Thanks!
I love these videos
Big thanks!
I thought it was my neck injuries
But that can cause MS
Thank you for the information!
Hot and cold!!! Most of those 🥺
hang in!
I have massive neck injuries too. But they say most MS is caused by Epstein-Barr Virus (which something like 98% of people have) ugh.
Very interesting
Thanks
Hi Spencer. This was really interesting. I have Raynaud’s and I am sensitive to cold. In the heat, like I live in hot Oklahoma, but I flare from the heat too. It’s had a lot of new symptoms this year and that’s been hard. I wonder if you can have that Uthoff with other autoimmune issues. I had a very several brain and spinal injury, so I’m sure my autoimmune crisis is trauma induced. Hope you’re surviving the summer heat this year. 😊
Hey good to hear from you! Raynaud's sounds like a tough one, but I'm hoping you're managing to make the most of it. The thing with MS-related signs is that they can all be caused by other things that cause damage to the central nervous system. So yeah, MS symptoms can all be caused by other factors ... but that is not to say that MS is not a distinct disease in how it damages the central nervous system. Anyway: be well! :)
Hoi..ii feel tingling and low voltage in legs everytime i bend my neck is that what you are talking about ?
k@SpencersMSStory
Yesssss!!
I'm impressed you don't have slurred speech. Have I had relapsing-remitting multiple Sclerosis for 2 years and slurred speech and unbalance have been the symptoms for the neurologist to find that I have it.
I'm sorry to hear you're struggling with those symptoms! MS is so variable that some of us have tingling in the legs and others have speech issues. So many ways it can affect us! I'm guessing you're on an anti-inflammatory diet and Vitamin D ... hang in there!
L’hermitte in middle ear -felt like a lightning rod in my head seizing entire right side of body but no seizure Praying for it to never happen again
Wow, inside the ear! That sounds really tough man
TO HELP PRONOUNCE L´Hermitte´s Sign: The H is silent and the L runs together with the "er." So try saying "Lur-MEAT's" sign running the syllables together. Hope that helps.🥰
Sounds like it might be one of them European languages! :) thanks buddy
I get the buzzing throughout my whole body and feel like I'm jacked up on caffeine... and it usually starts after I have a random ache in the side of my neck suddenly. Then buzzing, feel drunk, off balance then wrists and ankles get numb which causes a drop foot. Do you ever get numbness/fuzziness feeling in your low back but just a small section? I had it yesterday and hours later it was intense pain. Thank you for making videos about this, very helpful
I've had allllll kinds of numbness and tingling, but that doesn't mean that you have MS. What you're describing could be caused by a number of things. If you have the chance to see a neurologist an MRI should give you some answers. Hang in there!
I haven’t got m s I will still watching the m s videos
Works for me! I do the same with videos about other conditions and challenges, as it's valuable to me to see how people respond to challenges. Be well!
All the best to you and thanks for sharing. My friend was a red head and stayed out of the sun and did not eat properly and she got progessive MS her first sign was optic neuritis if she got hot. Another friend has MS but she takes lots and lots of omega 3 and takes cucurmin and she is doing really really well. Just took the vaccine ( covid) and is now worse which DR's and scientists were warning it could happen. Eat well stay away from carbs and take your vit D and omega 3's Take care
Poor people don't even get checked for ms. Diagnosis of fibro myalgia b/c poor people are mad. ;/
@lindamorgan2678 I'm very sorry about your friends. I'm a nurse and the height of COVID was forced to take the jabs. I presented with virulent signs of MS and dx three weeks after I took the 2nd jab. I agree the omega 3, turmeric and VD3 +K2 make a positive difference. I purchase mine through Canada to make sure its pure no fillers.
So sorry to hear that happened to you. I just found out a friends daughter just got MS after the jab last year too. Do you scans show MS ? My one friend who got it that is doing well first showed up 20 years ago and it was in her spine and then she was symptom free ( basically) for over 10 years. But the last 5 it has come back and that is when I suggested the omega and curcumin that really worked for her. I also know someone who works for the MS society here in Canada his brains scans are horrible and based on them he should be in terrible shape but he does not have ANY symptoms and has not for over 15 years. MS is funny that way I guess. I also know a neurolgist and years ago they sometimes did not tell a person it was MS or suspected as they would go downhill FAST. This was 30 years ago. My friend that did horribly and would not take anything or eat probably was totally doomed "
Dr said nothing I can do will just get worse and worse she had "progressive" or so the idiots said @@colleenstack210. All the best to you and stay away from inflammatory foods also and there are many
I found riding a bike long distances and sweating improves things quite a bit.
Sounds like you're staying in shape
The heat flipping sucks for people with MS I know this for fact👼👼👼
Nice name dude 👌
Yeah, we Spencers need to stick together! :)
Great video. I cannot tolerate heat at all. It sux
Thanks for checking it out ... stay cool!
I had drop wrist seven years ago, it was completely paralyzed for almost a year. I can't wear a brah because the feeling around my chest is unbearable. My muscles jump randomly and twitch. If I put my arms slightly up or to the side I feel electricity that's painful. In the last six months I've had three different occasions I've been on my cane for a couple weeks at a time. It's day eight of being unable to walk because of severe pain and jelly legs! Sometimes I just randomly almost fall over as if a foot just goes off on its own. I'm only 37 and I don't have insurance. I'm praying I find a way to I get this figured out. Currently my heart is broken because I'm feeling useless and like a terrible mom😔
Wow, that sounds really challenging and hard. I'm assuming you've gotten your vitamin D levels checked and are taking D3 if they're low, and I'm assuming you know all about the anti-inflammatory diets for MS (Wahls, Best Bet for MS, and Overcoming MS diet). I hope you get some relief soon. For me, the D and diet has kept MS away entirely for almost 10 years now. Hang in!
@@SpencersMSStory no I haven't taken enough vitamins. I'm agnostic about a ms diet. I will get my vitamins out and start the D. I think that the disability aspect has made me a bit lazy and given me a case of the give ups! Any diet suggestions are greatly appreciated!
@@alissahhodges5854 Even if you're agnostic on the anti-inflammatory foods, low D is widely documented a problem for people with MS. Getting yours tested is pretty cheap and easy
My children were 1, 5 and 6 when I was diagnosed with MS. Chasing a diagnosis can be extremely frustrating. I live in Canada with free healthcare and while chasing a diagnosis is ‘free’ it still took time and was incredibly frustrating. A MRI is the diagnostic test today. It identifies lesions and rules out MS in 95% of cases if no lesions are found. I recommend you cut to the chase and get an MRI skipping the frustrating chase of each of your symptoms to obtain a diagnosis.
Although healthcare in Canada is free that also means access to an MRI was delayed and there is no ability to pay for your own here. It would have saved me time and anxiety had I found out sooner.
About your children…..I planned my life around what I could do to be there for my children. I knew others in the support group I joined who didn’t and then complained they had nothing left for their families because they tried to do it all.
If you ever want to connect about this I can share my experiences as a young mother with MS.
I get the first one now and then. But I suspect that was the result of an auto accident injury I sustained in my 20s. I’m 40 and it’s just getting worse
When I get that one it can be mildly annoying until it really kicks in ... with your situation, I wonder if there is a way to get any swelling down in that area? Might help to alleviate the nerve pressure ... hang in man
@@SpencersMSStory like I said mine was from a rear end collision. My head cranked back then got thrown in the other direction when I got pushed into the other car in front of me. My headaches are the result of TMJ issues thankfully. Now that’s no fun either but it sure bears MS. Still i ought to see a doctor and be sure
Was listning to u thinkin u lying but yeah i used to get it wen i look down wen i pee in tiolet x
I have not been tested for ms although I have alot of signs. Is having spasms in your body trunk around ribs also spasms in hands, legs, and feet a sign of ms? The fatigue and also widespread body pain is something I have. Thanks for sharing your video.
You've gotta realize that MS can show up in a lot of ways. These "signs" aren't really diagnostic of MS anymore. You need an MRI of the brain and spine to really see lesions from MS. Seeing an MS specializing neurologist can help. Spasms like what you have can be caused by a lot of things -- even dehydration.
Honestly I know exactly how you feel, but I Have CIRS!
Sounds like fybromyalgia my.mum.had severe ms I have fybromyalgia
I keep feeling paralyzed and so weak. Vision issues. Face burning jaw feels locked. I'm so scared cant do anything so weak. My Aunt had it after illness.
Wow, that sounds really challenging! I'm hoping you find some answers and better health soon
Thank you. I am having a lot of neurological symptoms. From hands twitching especially in early morning or late at night. As I start getting tired my body has jolts of electric that runs trough it. I often feel out of breath and worn out like my muscles have been pressing weights or working so hard they are just worn out. I will feel like someone is squeezing my torso ight to. Now I am having double vision and my left eye will lag behind the right eye some. Many or most of this when I am hot or fatigued badly. I have had OAB for years du to IC but now i has became incontinence and my fecal too has super urges I just get and do not realize I even had to go. Like I am in diapers24/7 and the neuro I have seen so far just dismissed it all like I am nuts. I also have Gastroparesis that the vegas nerve to the stomach is damaged and I get super sick and my stomach will back up. I am told it is idiopathic meaning they do not know why.. As a result I had to have a gastric pacemaker put into my stomach to help it empty. But it is not MRI Safe. So I an not have any MRI's. I know there is not one or two thing that MS can not mimic. But I got rid of the idiot I was sent to and see a new neurologist the end of Aug. my memory fog has gotten so bad and the fatigue has some days I cant do anything. I do not care what it is good or bad at this point. I just want to know. If anyone here has experience with ay of my symptoms and this disease please let me know. I do know bladder and bowl control issues are pretty common.
Sounds like you have some real challenges! Following a Whole Foods diet, exercising, and maintaining a low BMI just might help ... hang in there
@@SpencersMSStory Thanks for the reply. The one big issue I have is I can't have fiber. I am on a very low fiber diet due to the gastroparesis.
@@jvmiller1995 Check out different diet options. Some are low in fiber.
Look up Walsh protocol, AIP-diet, Paleo autoimmune protocol, ketovore and carnivore diets.
More plant based diets are: Swank-diet and Best bet diet.
And there is more. If tou have trouble with some food items due allergies/sensitivities look up AIP as a starting point to discover what foods you can tolerate. It is a journey to figure out what your unique body needs to heal, but you got this! It is 100% sure that you find some easing out of your symptoms by finding what works for you. If you find being confused, you are not alone. Also, naturopath can give you good ideas about the right direction for your body. Just find a good one. Good luck! You got this!
Your dogs playing 🎴
For the first one, Can it be a burning/extremely uncomfortable feeling throughout neck and down back especially when putting head down?
That sounds like Lhermitte's sign, but keep in mind that everyone who has it experiences it a bit differently.
Kind of like it feels warm? and you get naseaus?
Watch for snakes in that tire! 😬😭
Waiting on the official stamp. It's this or myasthenia gravis.🥳😒
Good times.😭😂
Whateva life, bring it.
I'm a warrior.💪👊😘
Thank you for this vid.
Subbed.🥰😘
I hope you get some answers
Do you get head tics too? Like my neck randomly spasms
I've heard of this but haven't experienced it
What if the toes won't move at all at the babinskis test? Did they fail?
As I understand it, the test is about how they move, not if they move.
I had a patient with M.S., and also had cancer. Can one’s luck being any worse?
sounds pretty rough
Chronic fatigue, I have, vision in left eye just went goofy 3 weeks ago. Small white spots in my brain. Depression like symptoms, spinal tap I had, pressure in the brain fluid put stress on my optic nerve. Interesting. No diagnosis yet
I'm assuming you've gotten your vitamin D levels up and have adopted a strict anti-inflammatory diet ... hang in there !
@@SpencersMSStory not sure, just probably 8 out of 10 random symptoms of it. Was just put on ACETAZOLAMIDE 250MG two tabs morning and 2 evening.
@@joeyholthusen6495 wow a diuretic ... good luck buddy
@@SpencersMSStory yes, I'm on vitamin D and calcium. Plus about 3 different inhalers, 3 blood pressure medications, sleep apnea, wegovy 2.4, metformin. Ect.... list goes on. And no I didn't use any tobacco or smoke ect...
@@joeyholthusen6495 wow sounds like a lot to deal with! hang in man. I hope you get all that inflammation down soon and get in really good shape
Them puppies in the backyard spencer look like they’re having a good time 🇦🇺👍
You betcha! They're big dogs now and still wild fun lovers
I've had the lhermittes sign for years but have damage to my neck. Wear and tear on every cervical cord. When it happens I always describe it as like hot lava going up ur head and down ur back. Lasts only seconds with me. But it has locked before I turned my neck to quick and the pain was so bad constant for hours eventually it went away. So never done that again. I am in middle of investigation for ms I have brain lesions and 3 weeks ago got lumber puncture I get drop foot tremours only twice eye problem lasted seconds tingling numbness and facial tingling and sharp pains. Getting so many infections kidney pneumonia utis that was never me. I don't get alot of spasms but do get them anf leg moving without trying. I hope if this is ms I get some treatment soon as its a struggle physically and mentally. But hope they find out soon 😊
hang in there! many of us with MS are doing great on vitamin D and an anti-inflammatory diet
I have had some of these symptoms and was diagnosed with Transverse Myelitis
I have symptoms that mimick other neurological issues. I have not been treated as of yet I worry that I have been misdiagnosed. Maybe I just worry too much.
There are a lot of different causes of the same neurological issues -- so I wouldn't worry too much. An anti-inflammatory diet may be an option for you as it does wonders for MS
Hey do lesions mean Ms? I got a MRI and my neurologist said I have 2 lesions in my brain but she said it's normal to get them when you have migraines. I have a gate problem and fingers twitch
From what I've read some lesions are caused by things other than MS and some people with MS do not have lesions. However, lesions (which are really just damaged parts of the central nervous system and myelin) are hallmark signs of MS. Good luck with those migraines!
When you say gate, do you mean wide when talking?
@@SpencersMSStorywhy don't some folks have lesions or us this early on
@@tomsale5142 visible lesions on an MRI represent significant damage -- such damage is not always visible or legible via the scans
I totaly have the Utoffs. When I'm hot, I lose my voice. It's bizarre.
Oh wow, your voice! That's wild. For me, heat makes me woozy and slow and physically blah. Let's stay cool then! :)
@@metaspencer yeah, I get physically exhausted but the first thing to go is the voice. I got stuck at the bottom of a hill during a hike once. took me three hours to get maybe a half mile. I was laying in the mud gasping for air like a guppy. then I would walk as far as I could. legs would give out and then back to the mud.
@@whattowatchrightnow woah, man. crazy. I try to do a lot of pre-cooling (ice water, cold shower) and then wear "cool" stuff and drink cold water while I'm out there. helps a bit
@@metaspencer good advice. this was before I suspected. can you beleive I'm still waiting for "an official diagnosis"? the doc told me he wanted to see the lesions in my brain change over time. I told him I probably wasn't born with them. I dont think he likes my mouth.
The only sign I have is Lhermitte’s I really hope it’s nothing major maybe a b12 deficiency
From the reading I've done Lhermitte's sign can be cause my a wide range of things. For me, rest and stretching, along with postural changes, can make it go away
@@SpencersMSStory Thank you. I also keep agitating it to see if its gone away. Google can be a dangerous thing. Keeps bringing me back to MS. I'm glad you are doing well with it
Can you get this in your arms? Woke up from a dead sleep with insane electrical buzzing going through both arms. Now they feel weak and I'm getting twitches all over, mostly legs oddly.
That sounds like you slept on them, lost circulation, or pinched a nerve. MS can affect sensation and movement anywhere in the body, but isn't really in your arms ... it's a disease of the central nervous system. Be well!
Thank u for your story. I have been experiencing numb lips, tip of tongue n chin, both hands mainly fingers n back of scalp are numb. I wear goretex gloves the last few days. Cuz my fingers are so numb n veryyy cold. My balance is horrible, very clumsy n 65yrs old with 6 heart stents n just feel so weak all the time. I don't know what to do, cus I can't afford to go to the ER. Any thoughts? Thanks Ty
It can be spine related. I had this and had nerve conduction studies done, and it was related to the upper spine. Dont let your symptoms be dismissed by anyone .. including drs .. ask for referrals to specialists until you find answers.
@Spencer's MS Story MS can affect arms.
Look into B1,Biofentamine, magnesium b6,potassium. This is a deficiencys
Is hip an legpain a symptom?
MS affects the central nervous system, so all kinds of symptoms are possible ... hip and leg pain is likely caused in that area of the body
What does it mean when your foot is done like that and nothing happens your feet don’t move at all
It could mean a lot of different things. Could be muscular or related to nerves. Note that these signs are not diagnostic anymore.
Can it affect your breathing..
Not the most common symptom
Can these signs quickly worsen over time
Oh yeah they can intensify and lessen -- depends on many factors
I have such heat intolerance, I have to keep my house at 61 to 63 degrees all year. . I have spine problems and severe weakness, exhaustion, numbness, tingling and crawly feeling. I don't know what's wrong. I am just searching for an answer.
sounds like a real challenge! Keeping in great shape with a low BMI surely helps, though I'm sure you know that ... hang in!
@@SpencersMSStory I am in good shape weight wise. I always have been. I really have no explanation as to why I am so heat intolerant except possibly an underlying disease.
With MS, heat often brings on old symptoms as lesions get activated ... that might be different from the heat intollerance you're experiencing
I have had awful heat intolerance so much so that I get vertigo, nausea and lately I've been getting involuntary jerks out of the blue. The baltimore humidity is not my friend. My doctor says it's nothing.
@@veraspresser5503 sounds rough! sounds like you need a lot of strategies for this summer
I have every sign and syptom but negative lumbar puncture. I have neuro lyme. 5 out of 5 MS patients on autopsy have spirochetes. So rule it out which is extremely difficult because the testing is a joke for lyme
Lumbar puncture is a pretty old-school diagnostic tool. MS is diagnosed these days with an MRI of the brain and spine.
What test did you get for Lyme are you hypermobile
which is most common of these?
Just guessing I'd say L'Hermitte's sign (the electric feeling at the back of the neck/upper back)... but that's just a guess
Is severe neuropathy related to this too?
yes but there are many other causes of neuropathy
@@metaspencer well I’m going to ask my pain management to check further, I have trouble swallowing now & then & also bladder control problems to go along with so many other issues with the inner tremors my Primary calls essential tremors
Is it possible to have MS without any of these?
Yes absolutely. As I think I mentioned, these are not diagnostic for MS. MS is diagnosed these days via MRI of the brain and spine and the doc will be looking for visible lesions along with MS symptoms.
@@SpencersMSStory okay. This is my 3rd MS scare in 6 years. Previous brain and cervical MRIs have come back clean, getting another round next week. Really hoping it’s just my anxiety..
@@aneetavedula7624 There are certainly a lot of things that can cause problems that seem like MS. Be well!
I have heat intolerance I have cerebral palsy and have been going through possible premature that cause polyneuropathy progressing
That sounds challenging ... with the heat intolerance I have I find that cool drinks, shade, and light clothing help a lot. Good luck!
Beer kegs by the fence lol
Good eye! Yeah, I used them in my workouts
L'hermitte's sign is pronounced "Lairmitte." the 'h' is silent.
Sounds like it might be ... French!
2:39 electric shock feeling where? All over? Arms? Neck?
it depends but tends to be neck, shoulders, sometimes arms
Sorry but this info is all over the place. Not trying to be rude just trying to understand. Like what are the heat symptoms???
With MS, heat tends to lead to such things as fatigue, numbness, sensory problems ... whatever problems each person with MS has will sometimes come out in the heat. But there is no simple answer to your question because MS is so variable
Craptastic!😂😂 so right!
Why do i know of people who have cured their ms up with a plant based diet? So why am i hearing of so many who have this illness and dont want to look at their diet?
For some people changing a diet is next to impossible given things like family pressure, habits, cost, etc. I wish it was easier because the benefits of an anti-inflammatory plant based diet is so clear!
You can’t cure MS you can only send it into remission so flares don’t happen ..flares are what cause the damage/lesions to new places in your body.
The MS diet has helped a lot of people however it is extremely restrictive and a lot of people choose to enjoy their life instead. Also it depends on what type of MS you have …some type is so progressive it just continually gets worse with no breaks . The best chance of success with diet is having the type of MS that goes into remission and gives you breaks between flares.
Are you doing the bus up for living in the bus all the time
I kind of doubt we'll live in the bus full time, and that's for several reasons. But we travel a lot, almost exclusively on the road, so I think it'll be a great travel mobile that we can live and work out of. It's also possible that we'll get some land and build another house ... if we do that, the bus would be a great home base during the construction. So we'll have to see how it goes!
Have ever taken solu Medrol dose ? Cortisone 😢
No I've never taken any drugs for my MS. I haven't had the need to as I'm doing so very well with an anti-inflammatory diet
What anti-inflammatory diet do you follow, please?
My foot doesn’t react at all 😅
No reaction! It could be a bunch of different things ...
You are already slam those 3 kegs of beer ?
it was a busy morning :)
I am hard of hearing in my left ear
That must be frustrating!
I was born with this and they didn’t know until I was 14 I have got used to it
Hope you’re ok ❤️
It's worms, everyone has worms.!!! I got rid of mine recently.
worms!
Worms