Spencer's MS Story
Spencer's MS Story
  • Видео 20
  • Просмотров 215 210
9 Years Since Multiple Sclerosis Diagnosis - My MS Story
Details on diagnosis, optic neuritis, nerve pain, my anti-inflammatory diet, and LIVING WELL with MS.
I'm also on:
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✯ Facebook ➠ metaspencer
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✯ My other RUclips channel: ruclips.net/user/metaspencer
Просмотров: 2 336

Видео

My MS Story ... 8 Years Since Diagnosis!
Просмотров 10 тыс.Год назад
My annual "My MS Story" video update about living with Multiple Sclerosis. My previous annual updates are in this playlist: ruclips.net/video/zw5pPojRFRU/видео.html If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ metaspencer ✯ Facebook ➠ facebook.com...
My MS Story 23 Year In -- My 7th Annual Update
Просмотров 4 тыс.2 года назад
Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. This is my annual "My MS Story" video update about living with Multiple Sclerosis. My 1st/2016 "My MS Story" video: ruclips.net/video/zw5pPojRFRU/видео.html​ My 2nd/2017 "My MS Story" video: ruclips.net/video/qhQLzv67Nlc/видео.html​ My 3rd/2018 "My MS Story" vide...
My MS Story, 6th Annual Update
Просмотров 1,7 тыс.3 года назад
My annual "My MS Story" update about living with Multiple Sclerosis. 22 years in. My 1st/2016 "My MS Story" video: ruclips.net/video/zw5pPojRFRU/видео.html​ My 2nd/2017 "My MS Story" video: ruclips.net/video/qhQLzv67Nlc/видео.html​ My 3rd/2018 "My MS Story" video: ruclips.net/video/7I0ujnOqDfk/видео.html​ My 4th/2019 "My MS Story" video: ruclips.net/video/28CJb48KAjw/видео.html​ My 5th/2020 "My...
Covid, MS, and my Diagnosis Anniversary
Просмотров 1,1 тыс.4 года назад
Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ metaspencer ✯ Facebook ➠ metaspencer ✯ My other RUclips...
McArdle's Sign for Multiple Sclerosis Explained
Просмотров 7 тыс.4 года назад
McArdle's Sign for MS explained in simple language. Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ metaspencer ✯ Fa...
21 Years With MS! My MS Story continues
Просмотров 3 тыс.4 года назад
Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. My 1st/2016 "My MS Story" video: ruclips.net/video/zw5pPojRFRU/видео.html My 2nd/2017 "My MS Story" video: ruclips.net/video/qhQLzv67Nlc/видео.html My 3rd/2018 "My MS Story" video: ruclips.net/video/7I0ujnOqDfk/видео.html My 4th/2019 "My MS Story" video: ruclips....
Slacklining with MS, #4
Просмотров 3194 года назад
Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ metaspencer ✯ Facebook ➠ metaspencer ✯ Amazon shop: www...
Slacklining with MS 3
Просмотров 2774 года назад
Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ metaspencer ✯ Facebook ➠ metaspencer ✯ Amazon shop: www...
Slacklining with MS, 2
Просмотров 2514 года назад
Chronic disease got ya down? Try something new. Anything new. It might be refreshing. Check out the other videos on this channel for my perspectives on living with multiple sclerosis. If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ metaspencer ✯ Face...
Slacklining With MS 1
Просмотров 2634 года назад
Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ metaspencer ✯ Facebook ➠ metaspencer ✯ Amazon shop: www...
How to Find a GOOD Multiple Sclerosis Doctor
Просмотров 7185 лет назад
You've gotta be your own advocate. My perspective on finding a good doctor to help you with MS. The website I mention in the video is projects.propublica.org/docdollars Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a co...
Day of Eating on an Anti-Inflammatory Diet
Просмотров 7 тыс.5 лет назад
A typical day of eating on my anti-inflammatory diet for multiple sclerosis. If you want to support or follow me online: ✯ MS blog ➠ metaspencer.blogspot.com ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ metaspencer ✯ Facebook ➠ metaspencer ✯ Amazon shop: www.amazon.com/shop/metaspencer ✯ My other RUclips channel: ...
Newly Diagnosed
Просмотров 1,4 тыс.5 лет назад
Thoughts on being newly diagnosed with a life altering disease. ➠ I blog about MS @ metaspencer.blogspot.com Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. If you want to support or follow me online: ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ instagram....
9 Reasons Diets Fail
Просмотров 1,3 тыс.5 лет назад
My thoughts on why it can be challenging to stick to a diet longterm. ➠ I blog about MS @ metaspencer.blogspot.com Check out the other videos on this channel for my perspectives on health, wellness, fitness, and living well with multiple sclerosis. If you want to support or follow me online: ✯ Buy me a coffee ➠ www.ko-fi.com/metaspencer ✯ Patreon ➠ www.patreon.com/metaspencer ✯ Instagram ➠ inst...
A Book About MS: Ann Romney's "In This Together, My Story"
Просмотров 4225 лет назад
A Book About MS: Ann Romney's "In This Together, My Story"
5 Multiple Sclerosis Signs
Просмотров 165 тыс.5 лет назад
5 Multiple Sclerosis Signs
My MS Story - 20 Years In
Просмотров 6 тыс.5 лет назад
My MS Story - 20 Years In
3 Cooling Tricks to Beat Summer Heat with MS
Просмотров 7335 лет назад
3 Cooling Tricks to Beat Summer Heat with MS
Making An Exacerbation Timeline for Multiple Sclerosis
Просмотров 1,2 тыс.5 лет назад
Making An Exacerbation Timeline for Multiple Sclerosis

Комментарии

  • @KiaNooriComedy
    @KiaNooriComedy День назад

    So would you advise against Ocrevus? I've read a lot of people do well with that and experience no side effects

    • @SpencersMSStory
      @SpencersMSStory День назад

      I think everyone has gotta make their own decisions. For me, I don't see any reason to take a powerful drug like that with lots of potential side effects (more infections, PML, Colitis, etc.) given the fact that diet and Vitamin D and low stress have completely surpassed the disease for me. But maybe that's just me. Hang in buddy!

  • @adsDLF
    @adsDLF 3 дня назад

    Hey man, can you outline the diet specifically I’m worried I might got this and don’t want to wait for a diagnosis just want to start eating better.

    • @SpencersMSStory
      @SpencersMSStory 3 дня назад

      Hey buddy that makes perfect sense! the thing about eating an anti-inflammatory diet is that it's good for you either way. Basically I avoid potentially inflammatory foods (no gluten, dairy, refined or added sugars, booze, smoking, and processed foods) and focus on veggies, Whole Foods, and simple ingredients. A lot of people focus on anti-inflammatory foods too like turmeric, berries, etc. Check on "Best Bet Diet for MS" or the "Overcoming MS" diet for guidance. There are others too

  • @golub1marko
    @golub1marko 5 дней назад

    I am drowning in cheese and milk and I can say that is all I eat and I have MS since 2011. or CIS had in 2011. ,first realaps in 2015...I couldn't walk or use my right hand at all and I mini relaps in 2017. with nistagmus and today I;ve got EDSS 1.5 .On vitamin D since 2015. and that's it.Since I was 16 years old when I got first contact with this ,now 28,I have erectile disfunction since first day also. I adopt to live without girls in my life for 7 years so far and it's not nice but what can I do...I can use viagra but I have some heart issue and I can but in the same time I can't.

    • @metaspencer
      @metaspencer 5 дней назад

      Why eat the dairy bro?

    • @golub1marko
      @golub1marko 5 дней назад

      @metaspencer I know that dairy is higly inflamatory food but I can do against myself because cheese is 80% of everything I eat....I don't eat any kind of meet or fish and my blood is almost perfect for years.Only AST and ALT is above normal because in the time ,I was on rebif,now I am not and even ALT and AST is normal for last 4 months,everything else is in the perfect half beyond low and high.Just cholesterol is slightly above but without rebif ,that would be perfect also.

    • @SpencersMSStory
      @SpencersMSStory 4 дня назад

      Interesting to hear. I hope things work out for you and that MS becomes insignificant in your life

  • @shaunaleessnackidies
    @shaunaleessnackidies 9 дней назад

    I know this is old, but I love these kinds of videos, great job!

    • @SpencersMSStory
      @SpencersMSStory 9 дней назад

      my research on MS has focused on 1) avoiding inflammatory foods and 2) eating highly nutritious foods ... so yeah, fruit is great stuff

  • @Alpinetowing
    @Alpinetowing Месяц назад

    I was diagnosed in 2017. It's good to hear others stories and experiences.

    • @metaspencer
      @metaspencer Месяц назад

      Hang in! Lots of good living to do

  • @vickidaniel2807
    @vickidaniel2807 2 месяца назад

    Thank you , great presentation :) best I've seen yet.

  • @rebmedina2835
    @rebmedina2835 2 месяца назад

    I'm grateful for your honesty about symptoms others won't talk about

    • @SpencersMSStory
      @SpencersMSStory 2 месяца назад

      thanks for that -- yeah, I think sharing info is always valuable

    • @rebmedina2835
      @rebmedina2835 2 месяца назад

      @SpencersMSStory I wasn't offered DMTs. Just auto immune suppressants, painkillers, and anti-inflammatory. But living in a country there isn't anything else. If I lived in the city there would be more option. But I'm a farm girl and could never leave my town

    • @SpencersMSStory
      @SpencersMSStory 2 месяца назад

      @@rebmedina2835 from my perspective it's a good thing to avoid the drugs, as they don't work as well as an anti-inflammatory diet, rest, and vitamin D

  • @rebmedina2835
    @rebmedina2835 2 месяца назад

    Yes I get the heat intolerance. When I had my 1st bout the nurses were going to put me in a hot bath. 20yrs later they finally diagnosed me. I can't wear too much even in winter. Even a .2 increase on the thermometer can cause a bout

    • @SpencersMSStory
      @SpencersMSStory 2 месяца назад

      sounds like you've figured out what works for you -- that's half the battle!

  • @TheDetoxCureGuide
    @TheDetoxCureGuide 2 месяца назад

    I had many of the symptoms and recovered by detoxification. I made a video about how environmental pollutants can worsen or trigger it.

    • @SpencersMSStory
      @SpencersMSStory 2 месяца назад

      I'm glad to hear your MS is in remission

  • @michelletodd4893
    @michelletodd4893 2 месяца назад

    Had 17 years. Optic neuritis finally damaged optic neve to atrophy and thinning and blindness. Friggin cognitive. Forgeting words, its in my head but never makes to mouth. I can tell you in detail the birth of both my daughters, but I keep forgetting the name of the salon we've used for 10 years. Legs are getting weak. Sleeping too much. And i'm not depressed. I've had doctors ask what medicine are you on. I ask which ones work. I have microvascular disease, so already had that first heart attack and brain shrinkage from that and MS. Keep it up. Anti inflammatory diet is diet I've always bern on. Do suppliments. B12, D3. Tumeric, ginger & and black pepper. Spinal tap was okay.

    • @SpencersMSStory
      @SpencersMSStory 2 месяца назад

      Sounds like you've had some challenges! I'm sorry to hear about the struggle and hope it stabilizes soon

  • @anmolk4909
    @anmolk4909 2 месяца назад

    My brain MRI report says Few puctuate areas of T2/flair hyperintense signal intensity without diffusion restrictions are seen involving cerebral white matter bright spot of unknown clinical significance.....is it MS??? And in impression column - it says no significant abnormalities is seen in cranial MRI study

    • @SpencersMSStory
      @SpencersMSStory 2 месяца назад

      You'll have to have an MS specializing doctor read those scans for ya

  • @Sam-ci8bp
    @Sam-ci8bp 2 месяца назад

    Do you take LDN? Do you know if it's helpful for MS? Thnx

    • @metaspencer
      @metaspencer 2 месяца назад

      I don’t take it or any drugs but have heard some do

  • @katherineoregioni9815
    @katherineoregioni9815 2 месяца назад

    Thank you for a positive story. My daughter most likely has MS. So mRI scans say. Neurologist will confirm. ❤

    • @metaspencer
      @metaspencer 2 месяца назад

      She’ll do great on the diet

  • @SarahOwens77
    @SarahOwens77 3 месяца назад

    Thanks for your videos. Newly diagnosed with MS and Lupus and before i go to all the specialists i am being sent to i went to the woods and had a good scream and cry and spiritual grounding.I went to the beach and appreciated the life i have had. I found a great therapist. I have read everything i can get my hands on watched a thousand videos and found small group online that i feel comfortable asking questions. I am taking this one day at a time. Doctors in my opinion are giving their suggestions on what i should or shouldn't do. It is my decision. Now i am ready to fight for me!

    • @SpencersMSStory
      @SpencersMSStory 3 месяца назад

      You sound incredibly well informed and self directed. That's so great. Without self direction the doctors and their pharmaceutical bosses will take over. I hope you get that inflammation down soon, and in fact I know that you will. Lots of living is ahead of you ... good living!

  • @dmoney668
    @dmoney668 3 месяца назад

    You're the man You're a soldier respect!

  • @Timefor8B
    @Timefor8B 3 месяца назад

    Are you taking treatment or all natural???

    • @SpencersMSStory
      @SpencersMSStory 3 месяца назад

      All natural diet and vitamin D ... the treatments never appealed to me

  • @CypeltResortAustralia
    @CypeltResortAustralia 3 месяца назад

    Very interesting! Most people with MS are sensitive to heat and cold at 5-10 degrees feeling. I have Uhthoff only with heat only and it’s about 15 degrees celcius hotter for me and now I black out. We call it thermo irregularity here in Perth Western Australia. The ice rink is my happy place- no issues in up to -8 degrees when in Czech. Heat only screws me up big time

    • @SpencersMSStory
      @SpencersMSStory 3 месяца назад

      Sounds like you've found a way to work it out! that rink sounds nice

  • @ИринаЛатышева-ц8в
    @ИринаЛатышева-ц8в 3 месяца назад

    Hello! Been just diagnosed with MS. I am 25 years old. It sucks having such a disease. Nonetheless, I want to say thank you for sharing your experiences throughout these years. I myself noticed if I eat a lot of carbs, sugars, dairy, gluten, I get sick. I feel like I burn inside. Also I noticed if I stress over something, things again get worse. I have not been on any drugs yet, still waiting to get them, but I will be surely following your approach: diet, no stress, lots of rest, vitamin d and other supplements. Hope it will reduce my symptoms. Thank you!

    • @SpencersMSStory
      @SpencersMSStory 3 месяца назад

      You've got a lot to think about and deal with for sure! Being diagnosed can be a challenge and a blessing. I say blessing because now you know the road forward. I first had symptoms at 27 ... hang in there and I'd recommend the anti-inflammatory diet. It's done wonders for many of us along with vitamin D

    • @kevinward7498
      @kevinward7498 3 месяца назад

      Have you ever tried detoxing heavy metals? I eat a diet that's very similar to yours because I have to avoid heavy metals and glyphosate contamination in food which gives me a lot of different symptoms, some of which are very similar to MS. ​@@SpencersMSStory

  • @alanscott7681
    @alanscott7681 3 месяца назад

    Hi Spencer, So glad to hear how well you have done with your diet and lifestyle changes! You should talk to my friend that had amazing results of her body healing, not just symptoms decreasing! As a social worker I love to see people's lives changed for the better! Let me know if you would like to talk to my friend. All the best. - Alan

    • @SpencersMSStory
      @SpencersMSStory 3 месяца назад

      No need for me to seek assistance since I'm at 100%, but thanks for checking out the video

    • @alanscott7681
      @alanscott7681 3 месяца назад

      @@SpencersMSStory I understand, just was hoping for even further help for your residual symptoms. The body can do amazing things! Take care.

  • @flowerpower9541
    @flowerpower9541 3 месяца назад

    Great video. Ive watched many more, but your way of speaking is intelligent,thorough, yet easy mannerism. Im years out from when you first posted, this just popped up for me, so I'll look at your page. Thankyou

  • @flowerpower9541
    @flowerpower9541 3 месяца назад

    I had a brain scan like 7 years ago, no signs of lesions, but im really thinking this could be my issue. Im a "mystery" ive been treated for lupus, seizures (absent complex partial) neuropathy, gastroparethesis, and i had scary disturbing visual anomalies that are not detectable with complete eye exams, had spinal tap over 20 years ago didn't show anything. Im ready to just stop talking to drs about it...

    • @SpencersMSStory
      @SpencersMSStory 3 месяца назад

      Sorry to hear about your struggles but the good news is that MS is entirely controllable for many of us just with an anti-inflammatory diet and keeping vit D levels up .. hang in!

  • @donnapower9020
    @donnapower9020 4 месяца назад

    Great info...👍🏼 I was diagnosed in 2019 with MS and looking back was experiencing symptoms for over 30yrs. Here's what I've learned so far... 1. I am infested with parasites and imo are the root of many diseases (had dogs my entire life) 2. My body is highly acidic (acidosis) and a diet change is helping that... 2. The sun is an acid and heat is acidic. Can't handle the heat on an already acidic body. Cool temps are more alkaline hence why it cools the body down (not just because it's cold) 3. My kidneys and lymph systems have not been working properly for years to move the waste from my body. Detoxing (herxing) is brutal... 4. Highly toxic from the amount of chemicals in everything...food, air, water Tested positive for mercury, lead, cadmium and high amounts of ammonia (parasite waste that is staying in my body) 5. Mercury from fillings and lots of damage from dental work over my lifetime 6. 30yrs of drinking aspartame in diet drinks (and this neuro toxin is in everything- can't even buy a pack of gum without it in it) 7. Stress is huge and you don't even realize how much it affects you til it's reduced. 8. EMFs/smart meters have been brutal with me. This type of radiation also affects mold growth as well as parasites... I could probably add more but sharing because the doctors certainly don't talk about any of these things and I've have had it out with my neurologist more than once. In my opinion and experience, doctors have tunnel vision and just push big pharma... You have to be your own advocate!!!

    • @SpencersMSStory
      @SpencersMSStory 4 месяца назад

      interesting ideas and perspectives ... hang in there!

  • @MoonlightGaming64
    @MoonlightGaming64 4 месяца назад

    I love this video I just love it... my younger sister just referred to me as "handicap" and I suddenly feel like "I don't want to be referred as that" and now I stumbled on this vid 🥰

    • @SpencersMSStory
      @SpencersMSStory 4 месяца назад

      YEAH you've gotta work to define yourself. Good thinking!

  • @youmarc11
    @youmarc11 4 месяца назад

    A lot of carbs/sugar ?

    • @metaspencer
      @metaspencer 4 месяца назад

      Could be do you do less?

    • @youmarc11
      @youmarc11 4 месяца назад

      @@metaspencer Way less. Like under 20 grams/day.

  • @14sgs
    @14sgs 4 месяца назад

    For me it is therapeutic to listen to other people tell their MS story. I think I've seen all your vids. Thank You for sharing. My Initial nerve pains I thought I might have diabetes. The Story: I was diagnosed 2.5 years ago at 54 (male) and it was determined via MRI (no ST). I have a heavy burden of lesions in the brain and spinal cord. It's been a tough 2 years but now it all makes sense. They changed my initial diagnosis from RRMS to PPMS on year 2 assessment. I have numbness in hands and feet 100% of the time. Keep on trucking, I guess. I know I can do better in foods and exercise ... But will I? I do practice Intermittent fasting now though. See ya next year!

    • @SpencersMSStory
      @SpencersMSStory 4 месяца назад

      Good to hear from ya even if things are tough. I appreciate your honesty and openness about the diet stuff -- it's definitely not for everyone to do this strict anti-inflammatory thing. Be well buddy!

  • @sharonhenderson9906
    @sharonhenderson9906 4 месяца назад

    Ms

  • @shanasigler274
    @shanasigler274 4 месяца назад

    Good stuff!!! What area do you post from? Looks a little PNW. My MRI showed lesions in 2016. It official diagnosis 2021 after a ton of stress. I’m still healing my upper body. No meds for me. Tried them under pressure then changed my mind. Thanks for sharing 😊

    • @SpencersMSStory
      @SpencersMSStory 4 месяца назад

      I lived in the PNW for many years but am now out East. Oh yeah, I know about that "pressure" you mention regarding medication. But sounds like you've found a productive way through things. Hang in! Healing up is the way to go for sure with this dang disease

    • @shanasigler274
      @shanasigler274 4 месяца назад

      @@SpencersMSStory cool. Yes I’ll keep hanging in there. I want to find a nice set up on some land. To enjoy projects and easy living. Focus on health, activity, and food. I’m in Phoenix currently. Tried Seattle area but the humidity was too much. Now thinking of Oregon, east of the mountains.

  • @shanasigler274
    @shanasigler274 4 месяца назад

    Great video. I like your style. Thanks for sharing.

  • @mjwin8913
    @mjwin8913 4 месяца назад

    hey! do you still want an excel spreadsheet for this? if so, I got you

    • @SpencersMSStory
      @SpencersMSStory 4 месяца назад

      thanks for that offer! but with no new exacerbations in almost a decade, I haven't had to track much ... fortunately! nice of you to offer

  • @stonz42
    @stonz42 4 месяца назад

    My spinal tap also sucked. I blacked out during my procedure from the vagal response as well. I was diagnosed 3 years ago after having symptoms for 16 years prior and been on Ocrevus for 2 years. I also modified my diet and exercise routine to combat inflammation and happy to report no new symptoms or lesions since my diagnosis. My vision has improved but I do have permanent vision loss in one eye after having neuritis in both. Right eye is considered legally blind now unfortunately. That was also the worst of my symptoms. Glad you’re well after all these years without a DMT. You give us MSers hope for the future.

    • @SpencersMSStory
      @SpencersMSStory 4 месяца назад

      And the thing that annoys me is that the spinal tap isn't even necessary to confirm MS if the doc knows your symptoms and has lesions on the scans. Oh well, the good thing is that we SURVIVED the dang process and I'm glad to hear about the diet working for ya. I also have some vision loss that's permanent (not as bad as yours) but seem to have gotten used to it. Stay healthy!!

    • @stonz42
      @stonz42 4 месяца назад

      @@SpencersMSStory In my case, and maybe yours, my symptoms were kind of generic and not typical of MS. Although, the MS doc ordered a ton of blood tests that ruled out the other things. I did have bands on the tap, but no active inflammation on my MRI or eye exam, which led to the tap. Glad I'll never be doing that again. I've also gotten used to my poor vision in the bad eye, but never had double vision. I had very bad contrast vision at diagnosis. Although, I did have a difference in color vision in that eye since I was a teenager and suspect that's when my first neuritis hit. Unfortunately, my annual eye exams didn't show anything abnormal and I could read the eye chart consistently until I couldn't and that's when my local neuro-ophthalmologist first diagnosed my MS. The tap was done at an MS center with my MS neuro after my local diagnosis. Your MS story videos were some of the first I saw after my diagnosis and that led to me exploring the anti-inflammatory diet, so thanks again for being public about your MS journey and supporting all of us newbies.

  • @clairebear1808
    @clairebear1808 4 месяца назад

    Mine turned out to be Neuromuscular Scoliosis

  • @hilarykerr7383
    @hilarykerr7383 4 месяца назад

    Great video. 😊

  • @wendyfield7708
    @wendyfield7708 4 месяца назад

    Thanks for clarity.

  • @Summerbreeze537
    @Summerbreeze537 5 месяцев назад

    You haven't aged at all.

  • @dorwinnicholas1485
    @dorwinnicholas1485 5 месяцев назад

    Amazing video, best wishes to you Spencer-thank you 😊

  • @annipsy2185
    @annipsy2185 5 месяцев назад

    age 53? goddamn sir you really have been taking good care of yourself

  • @jonesomar8754
    @jonesomar8754 5 месяцев назад

    DR ALAHO OLU on RUclips Channel you’re indeed a great and trusted traditional and holistic herbalist, he cured me and my wife from Multiple Sclerosis, he also has cure for HPV, HSV, HIV, FIBROID, ALS, CANCER, LUNGS DISEASES..

  • @Add_Account485
    @Add_Account485 5 месяцев назад

    Ive woken up with pins & needles in my face. That's freaking me out a bit.

    • @SpencersMSStory
      @SpencersMSStory 5 месяцев назад

      there are many things that could cause that -- don't stress! rest! relax!

  • @KittyKeypurr
    @KittyKeypurr 5 месяцев назад

    A question about the zapping experience. Is it a straight zap or do you sometimes/often feel like a poke somewhere else on your body around the same time?

    • @SpencersMSStory
      @SpencersMSStory 5 месяцев назад

      If you're talking about the L'Hermitte's sign, that's up in the upper neck and shoulders region. At least as far as I've experienced and heard.

    • @KittyKeypurr
      @KittyKeypurr 5 месяцев назад

      @@SpencersMSStory ok thank you 🙂

  • @ivanmartin5673
    @ivanmartin5673 5 месяцев назад

    Clonus . So thats what its called thanks much :)

  • @LindseysWhimsyCrochet
    @LindseysWhimsyCrochet 5 месяцев назад

    Thank you for this! Positive Hoffman, Positive Babinski, hyperreflexia, balance issues, all over pain, etc. Neurologist in July :(

    • @SpencersMSStory
      @SpencersMSStory 5 месяцев назад

      after the MRI of brain and spine, that doc should have some answers for you. and if they don't mention the importance of vitamin D and an anti-inflammatory diet, you might wanna look into it. hang in there!

  • @HansonZab
    @HansonZab 5 месяцев назад

    McArdle’s sign

  • @mardaripaul5382
    @mardaripaul5382 5 месяцев назад

    Your approach is a very good one. Are you still on the Swank diet? I have MS since 1997 (I was 3) and was diagnosed correctly, but then MS was discarded because "it resolved fast". During the years, they kept saying that I have herniated discs, probably sarcoidosis, depression, maybe psychiatric disorders, etc. I'm the opposite version of you. I ate fast food, had a sedentary life, and smoked maybe 3 packs a day. The MRI is something out of a nightmare. There were probably as many as 100 lesions on the brain (T1 and T2) and 15 on the spine; some of them disappeared, and some of them regressed in size on both the brain and the spine. However, EDSS is 1.5 (because of a decrease in left eye visual accuity from the last relapse). I'll switch to an antiinflammatory diet, and I'll also finish translating into Romanian the "Best Bet Diet" book, so other people impacted by this disease should know what to do. Hugs!

    • @SpencersMSStory
      @SpencersMSStory 5 месяцев назад

      1997 was when it started for me, too -- but I'm much older. Hang in there my friend! Yes I'm still following a strict anti-inflammatory diet, but not the Swank diet. Swank just focused on avoiding saturated fat. Be well friend

    • @谢特妈惹法克
      @谢特妈惹法克 6 дней назад

      Were you diagnosed with MS at the age of three? How are you now? You only have DSS is 1.5. Have you never taken any drugs? You are great.

  • @SallyFrancis
    @SallyFrancis 5 месяцев назад

    Can it affect your breathing..

    • @metaspencer
      @metaspencer 5 месяцев назад

      Not the most common symptom

  • @mrsm482
    @mrsm482 6 месяцев назад

    Thank you for posting. We wish you well.

  • @forevershann9129
    @forevershann9129 6 месяцев назад

    I’m shan and im 30 i just found out that i have MS !!! And i dont know how i feel i had all the symptoms for 1 year and i didnt know what was going on with my body but today may 8 /24 it’s confirmed i have it and im lost i am glad i found you page because you motivate me to change my life completely in a positive way !! Keep dropping these videos !!!

    • @SpencersMSStory
      @SpencersMSStory 6 месяцев назад

      Hey Shan! That's some tough news to take in and digest ... but I think that over time it can become a whole lot less shocking and overwhelming. Stay positive! There are many of us who have had MS for decades and are doing GREAT without drugs. If you haven't looked into anti-inflammatory diets for MS you might find it interesting. Hang in there! You've got this :)

  • @katv.2303
    @katv.2303 6 месяцев назад

    hello, thanks for sharing your experience. I have been diagnosed just recently but I have had some mild symptoms since 8 years, mostly surrounding vision problems. No relapse, no debilitating situations, no tingling, ... I think it's because I have been a long term vegan ! Can you please tell me how much vitamin D you take ? Stay healthy !

    • @SpencersMSStory
      @SpencersMSStory 6 месяцев назад

      Go vegan! I completely agree with you on that point as I was also vegan and vegetarian for many years before being diagnosed, and my MS didn't get all that bad (comparatively). so hang in there! Also the cool thing about your diet is that shifting to an anti-inflammatory protocol shouldn't be that big of a step. Anyway yes, that D is important. I take 5k units a day and get my level checked annually. I thought that high amount of D would jack up my levels, but they've stayed in the middle of the healthy range for years. I also take D with K as that's supposed to help with absorption and something else I'm forgetting :)

  • @brandicalhoun5132
    @brandicalhoun5132 6 месяцев назад

    Spencer.. how did you stop freaking out after your diagnosis? I am so scared and I can’t calm down. Constant anxiety

    • @SpencersMSStory
      @SpencersMSStory 6 месяцев назад

      Don't rush yourself -- it can take TIME to come to terms with any big life change like that. The thing that helped me the most, and I'm not sure if this will be as meaningful to you, was simply realizing that it's not a life ender and that there are sooooo many people living well with this disease. For me, thinking "It's over" was the thing that made me freak out and when I recovered my optimism I calmed down. Are you don't the important things to stay chill like exercising, eating super healthily, sleeping, minimizing stress, etc? Let me know what works!

    • @brandicalhoun5132
      @brandicalhoun5132 6 месяцев назад

      I just started on the wahls diet.. I have been doing guided meditations, and breathing exercises. I’m so exhausted and my legs are stiff and tingling for a month now.. it’s hard to get out of bed. I cry a lot

    • @SpencersMSStory
      @SpencersMSStory 6 месяцев назад

      @@brandicalhoun5132 that diet is a great step! give it time to kick in, make sure your vitamin D levels are up there, and stay positive. You've got a lot of living to do!

    • @brandicalhoun5132
      @brandicalhoun5132 6 месяцев назад

      Thank you so much❤️ you have inspired me today

  • @Billster1955
    @Billster1955 6 месяцев назад

    So glad you are still doing well brother.

  • @juaniglesias6375
    @juaniglesias6375 6 месяцев назад

    I'm impressed you don't have slurred speech. Have I had relapsing-remitting multiple Sclerosis for 2 years and slurred speech and unbalance have been the symptoms for the neurologist to find that I have it.

    • @SpencersMSStory
      @SpencersMSStory 6 месяцев назад

      I'm sorry to hear you're struggling with those symptoms! MS is so variable that some of us have tingling in the legs and others have speech issues. So many ways it can affect us! I'm guessing you're on an anti-inflammatory diet and Vitamin D ... hang in there!