I got out of bed just to look up nerve zinger. I get them from my shoulder up my neck. I am becoming more homebound. Good to see you are pushing to keep your boundaries more towards freedom. I put on my facemask and went out for a walk in the below zero weather tonight.
Thanks for posting. I definitely see improvement! Like you I have not been practicing due to....well everything; cold, snow, ice, flare of symptoms, busy at work.... lack of discipline. You have inspired me to get back up on the line and taking one more step....
I am doing well! Having some flares of symptoms but no apparent progression. I also favor my right leg as my left foot is the numb one, the spastic one, the ... untrustworthy one. Still it gets me from point A to point B and back again so there is no reason to believe it can’t do it on a slack line. ;-)
Well, over a year later I'm still thinking about dirt bikes but haven't bought one ... every time I see your collection I start drooling. :) So it'll happen!
Hey Spencer, you look to be doing rather fine, have you had any actual MS issues with mobility or balance? I definitely can relate to this -- personally I'm trying to learn the hardest guitar solo's possible currently due to threat that MS could affect my fine motor skills.. :P. Which hasn't been affected yet though..and finger crossed ever will never be affected.
I've had the disease over 20 years now, so yeah: I've had various exacerbations over the years that have limited by abilities to move, balance, and function. I suppose the most debilitating problems were vision loss. Fortunately, I'm very close to 100% in most ways and my lingering symptoms are things I can usually cope with. That approach to the guitar sounds pretty good! Be well
So cool! I really need to get more active. I've been thinking about using ankle weights around the house to combat drop foot and maybe get a pair of roller blades 😅 I used to love them as a kid and I want to get that balance back. I would love another video of you 'chatting' with us followers if you're up to it. 😁 -Samantha
That darned drop foot is annoying. I have just a touch of it on the right side, but it drives me crazy. I'm not sure if the weights would help, but it's worth a try! I'll definitely do another "chatty" video soon ... thanks for the encouragement! :)
@@SpencersMSStory I only have a bit of it on the left but when I overdo it (it doesn't take much), it comes out more. I figure, if I get in better physical shape, it'll take more to get to that point. Here's to hoping anyway.
I got out of bed just to look up nerve zinger. I get them from my shoulder up my neck. I am becoming more homebound. Good to see you are pushing to keep your boundaries more towards freedom. I put on my facemask and went out for a walk in the below zero weather tonight.
Way to go on that walk! I find that fighting the cold is tough but always worth it. Hang in there and be well. ;)
Thanks for posting. I definitely see improvement! Like you I have not been practicing due to....well everything; cold, snow, ice, flare of symptoms, busy at work.... lack of discipline. You have inspired me to get back up on the line and taking one more step....
I figure it may take a few years, but it's a cool process to experience training the body and mind for something new. Anyway .... I hope you're well!
I am doing well! Having some flares of symptoms but no apparent progression. I also favor my right leg as my left foot is the numb one, the spastic one, the ... untrustworthy one. Still it gets me from point A to point B and back again so there is no reason to believe it can’t do it on a slack line. ;-)
Good balance
Slacklining is tough enough, but you do it with Millie pulling ay your pantleg. Well done.
Yeah it drives her nuts :)
Win! When are we going to get you on a dirt bike?
Well, over a year later I'm still thinking about dirt bikes but haven't bought one ... every time I see your collection I start drooling. :) So it'll happen!
Hey Spencer, you look to be doing rather fine, have you had any actual MS issues with mobility or balance?
I definitely can relate to this -- personally I'm trying to learn the hardest guitar solo's possible currently due to threat that MS could affect my fine motor skills.. :P. Which hasn't been affected yet though..and finger crossed ever will never be affected.
I've had the disease over 20 years now, so yeah: I've had various exacerbations over the years that have limited by abilities to move, balance, and function. I suppose the most debilitating problems were vision loss. Fortunately, I'm very close to 100% in most ways and my lingering symptoms are things I can usually cope with. That approach to the guitar sounds pretty good! Be well
So cool! I really need to get more active. I've been thinking about using ankle weights around the house to combat drop foot and maybe get a pair of roller blades 😅 I used to love them as a kid and I want to get that balance back. I would love another video of you 'chatting' with us followers if you're up to it. 😁
-Samantha
That darned drop foot is annoying. I have just a touch of it on the right side, but it drives me crazy. I'm not sure if the weights would help, but it's worth a try! I'll definitely do another "chatty" video soon ... thanks for the encouragement! :)
@@SpencersMSStory I only have a bit of it on the left but when I overdo it (it doesn't take much), it comes out more. I figure, if I get in better physical shape, it'll take more to get to that point. Here's to hoping anyway.