Finding Out My Son Is Autistic - Life Will Never Be The Same
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- Опубликовано: 8 сен 2024
- You don't plan to have an autistic child, but that's the reality for some of us. And you don't sign up to have an autistic mom, but that's the case for my kids.
I'm a 39 year old late diagnosed autistic mom of a 5 year old diagnosed autistic boy. Learning about his diagnosis changed my life forever.
In this video I talk about how we found out, and the emotional stages I went through after finding out about my son's autism diagnosis.
As a person trying to go through the process of getting an autism diagnosis, thank you for sharing your experiences. It warms my heart knowing how much you’ve done for your son while having your own journey as well 💜
Thanks so much for your support and your sub.
Have you self-diagnosed already? can you share that journey? And also the professional diagnosis journey?
@@NeurodivergentMom I guess it wasn’t something I thought about until my late teens/now early twenties. During my high school years, my mental health plummeted, and though I started seeking out the help of my family and a counselor, I knew there was a part of the picture that was missing that would explain my experience, it just wasn’t something anyone (including myself) in my life could clearly identify at that time. I would explain it to other people, but they didn’t seem to get what I was saying or maybe assumed I was exaggerating because it didn’t match up with what they know. After I graduated high school, I stumbled across a couple of autistic content creators, and though I watched them at first out of curiosity, it lead me to start on my own research and learning more about myself. After a lot of reading and talking to my friends (most who are also autistic) I found that it was something that heavily resonated with me. I started being less hard on myself for needing to accommodate my needs and I’m still learning to this day about how to navigate life as an autistic person.
Trying to find a place or people that do assessments for autism has proven to be difficult- because unless you want to pay like $4000(USD) out of pocket, then you have to go on a scavenger hunt just to find one place that takes your insurance. My GPs and the insurance company itself most of the time have no clue where to find these services. (at least from my experience) The insurance ended up giving me like ten different numbers that were either out of order or from people that do nothing related to what I was looking for. Sooooo, it has been several months and I am still just trying to get my foot in the door 🥲
I guess I didn’t think about it until my late teens/now early twenties. During my high school years, my mental health plummeted, and though I started seeking out the help of my family and a counselor, I knew there was a part of the picture that was missing that would explain my experience, it just wasn’t something anyone (including myself) in my life could clearly identify at that time. After I graduated, I stumbled across a couple of autistic content creators, and though I first watched out of curiosity, it lead to my own journey of researching and learning about myself. After a lot of reading, (and talking to a lot of my autistic friends), I found that it deeply resonated with me and my experience. I started being less hard on myself for accommodating my needs and I’m still learning to this day how to better navigate life as an autistic person.
Trying to find a place or people that do assessments for autism has proven to be difficult- because unless you want to pay like $4000(USD) out of pocket, then you have to go on a scavenger hunt just to find one place that takes your insurance. My GPs and the insurance company itself most of the time have no clue where to find these services. (at least from my experience) The insurance ended up giving me like ten different numbers that were either out of order or from people that do nothing related to what I was looking for. Sooooo, it’s been several months and I am still just trying to get my foot in the door 🥲
Good for you on putting your foot down with not having your son go through ABA. Proud of you for that. FYI the end screen did not show up.
thanks for the heads up. Fixed 💚
I'm so sorry you had to go through that with the pediatrician. We had a really hard time with my daughter. She was denied the diagnosis from a fairly big children's hospital because she had a conversation in the waiting room the day of the evaluation. It took us 2 years after that to finally get a super special appointment with a developmental pediatrician and we finally got an official diagnosis. I knew, I had been telling other people she was for at least 2 years. Still, the day we got an official diagnosis, and I made my official post to my family & friends on Facebook, I cried. I didn't "want" that to be the truth, I knew she was in for a long road, and she is such a bright, fun, happy kid. I totally get the phases, I get the spectrum of emotions. We didn't do ABA either, and I'm super grateful for that. Accommodation is HUGE. I am always telling people, our family just needs special accommodations, I want my daughter to have whatever kind of life she wants, I don't want her to be denied any opportunities because people think she "can't" I just want her to realize she really can do and be pretty much anything she wants to be, as long as she accommodates herself :) Great video, thanks for sharing
Thanks for sharing your story and sorry you also had to wait so long to get a diagnosis. We CAN give our kids the kind of life they want to live and teaching self-accommodation and self-advocacy to our kids is also so important! 🫶🏽
7:26 - 7:28 I also have problem with angles in room 🥲, the same style "go, stop , move body to next direction , go". It would trigger my curiosity in a second.
hah, didn't think of it that way... 👍