Joe has a RUclips channel you can subscribe to at ruclips.net/user/JoeSoochh He told me it is his goal to become a successful RUclipsr one day. Thank you for sharing your experience so openly and honestly Joe. I know it will help many people out there.
Nobody can blame Joe for hating his disability. He dislikes it and he is 100% entitled to feel that way. He's so well-spoken and genuine. I wish him the best.
Yeah. And i really like this sbsk episode because of that. Not juste there is love and, this is hard but we do the best... This is hurting and hard breaking but this is the brutal reality of living whith such disability, and when he talks about god.. Whaou.... Tks for the honnesty... And i wish him all the best.
I appreciate Joe not feeling pressured into toxic positivity, because chronic illnesses really suck and there is a lot of internal grief. I’m glad he’s at least able to be honest with the world.
Exactly. Toxic positivity is especially more common in the disability community. I felt like I never had true support because of it. And I think disabled people are so oppressed that they tell others what they want to hear to try to protect them. I wish more disabled people would be honest instead of portraying this image practically forced on disabled people.
@@gautamasiddhartha2072 Yes there is. Being too negative is bad because of depression and mental illnesses, and being too positive silences people from being able to vent and receive support through their struggles.
Having extreme disability and being like "yeah I'm content with this, it's fine" isn't healthy unless it's 100% sincere. It's kinda like giving up in a way as well. It's ok to be angry, sad and frustrated, those are all natural emotions that we shouldn't try to bury down, we're not robots
It’s refreshing to see a young man owning his frustrations. You don’t have to love yourself. You don’t have to accept your disability. You are allowed to be frustrated and angry. I always feel that society puts pressure on people with disabilities to be inspirational and accepting. Often it’s a act because their frustrations make us feel uncomfortable. They have enough to deal with without having to pander to societies expectations of them.
I totally agree. He is realistic about his life. Think about his daily pain and inability to do everyday tasks and see how we would react. I admire him and courage to face his daily struggles without falling to pieces.
Society still treats those of us with disabilities like something is wrong with us. Look, they're trying to erase the word disability because they don't like people with disabilities. You know why? Because disability destroys their equity goals.
Agree 👍🏻. I wish these videos would get more viral because I feel every words from the disability victims. I wish the whole world can understand that one may not be perfect
This dude is real. He’s spitting facts and not sugar coating ANYTHING. Hope he knows what an asset he is in a world full of people lying to themselves and others just to feel better. 🤘
@@TY-wy8nd he loves him as much as he does others, and god didn't give him that disease, the fall from the grace of god is human's fault, god doesnt want any disease
This is one of my favorites. Everyone is “normal” in a sense, but this guy for me seems to be most like cognitively normal. He doesn’t want to discuss the positive question of “how can someone be your friend if they want to reach out?” He thinks it’s cheesy, and mentions how he doesn’t want to accept his disability. This is the real, unfortunate reality of his disability to him. And a stark opposite from the upbeat, positive aspect of the interviews we typically see on this channel. Very interesting.
I think it’s because some disabilities are just the way you are. Like autism, it doesn’t hurt you nor get worse, it’s just how we see the world, therefore saying you wish you didn’t have it is kinda redundant. Whereas chronic illness is awful, it can get worse, it causes you pain and there is no upsides.
This feels like a very important interview for this channel - not to overshadow any other interview of course, but changing things up is essential for the theme that's carried across all these wonderful videos... and the brutal honesty here really hits. Joe just keeps it real but never makes it sound like he's feeling sorry for himself; just being upfront about what he's facing and tackling it all head-on. I can't help but feel that editing this must've provided a very reflective experience... wonderful work Chris, I especially loved the physical segment here. Please never lose your touch
I have ankylosing spondylitis and much of what he said was very true for me as well. Alot if times when I am describing my limitations people say its not because of my condition its just my attitude and that can be really hurtful when im genuinely giving it my all. That being said I think Chris is very brave for not rejecting criticism.
Agree 100% Antoni. Joe said it like it is, and I really respect him for keeping it real, open and honest. This interview opened up my eyes a lot. It was nice to see Joe and Chris engage the way they did. Thanks for sharing your story Joe. PS. I subscribed to your RUclips channel and wishing you much success with that.
Like you all, I agree. I was blown away by his honesty and I think a raw, things are not always going to be sunny view also needs to be seen. His story is as important and educational as everyone’s story.
As much as people like to learn about disabled people doing "amazing things" or being in relationships with typical people, Joe is right. These are few and far between. At least you, Chris, are introducing us to everyone and not just those who are celebrities or have accomplished something exceptional.
My son is 20 years old and has multiple disabilities including autism, severe anxiety, and PANDAS. He is now aware enough to understand that a lot of people do not have to go through what he does. I try to reassure him and say the things that might make him feel better. But I feel like it is okay for Joe and my son to not be happy about their disabilities or chronic health condition. I hope Joe is able to continue to take care of his mental health and know that he is entitled to any feelings he has. No one can tell him how to feel about his situation. I hope people reach out to him, and he gets to know more people. I do believe in God and have had to wrestle with my faith trying to understand why some people suffer more than others. I just have to believe that our suffering on Earth will bring us closer to God when we die. I think it is okay to challenge this belief, though, and respect Joe for his honesty in sharing what he goes through.
At the end of the day we have to be true to ourselves. Reality is not always sunshine and rainbows, this channel is one of the ways we recognize that. Im glad these people get to share their outlook and hope that they get as much joy as possible living their lives.
@@dorna2325 I’m not necessarily speaking on his videos (though I’m sure there’s lots). But just the idea that “I can do anything I want to do! Having a disability doesn’t suck at all! Don’t be sad just smile! Etc..” obviously with younger children you have to do that. It’s just nice to see someone be real about it is all :)
I have a progressively disabling disease, and it’s constant grief. Exactly as he said. You remember when you lose function of different body parts. You grieve the loss. Your purpose and self fulfillment slips away. We have our voice, but the world moves on around us. It’s constant.
I appreciate the Chris didn't invalidate his experiences by contradicting his criticisms of his disability. This interview gave me even more respect for him.
Absolutely! He just patiently listened and let him speak about his own experience without trying to interject or put a “positive” spin on it like society likes to do. Absolutely the right way to go.
My brother has cerebral palsy and he is almost 40 now. He has been angry at his disability his whole life and I think it's good to see someone with disability talk about that. Life isn't always fair and it sucks. Not everyone can find peace and strength in their hardship, and that is okay.
I'm 38 with CP and it's just severe enough to put me on the sidelines for most "normal" things in life, and it can be very hard sometimes. I try not to dwell on it too much, but I'm always the person that can't do what other ppl are doing, I mostly have to watch. Most of the time I enjoy watching ppl but it always hurts that I can't participate too.
Zach Anner has 'inspired' many people with CP with his comedic take on life, but I find that that also must be somewhat galling for anyone who is less of an extrovert than him because he makes it look so easy to engage with people and I know it isn't for many people. Myself included.
This dude is very real with himself and doesn't look for excuses. He calls his experiences out the way they are. I love how he gives crap for the first question, he seems fun. The burden he is carrying is being shared to millions and it's great to give that kind of alternative perspective.
This was his way of letting the world know he is extremely frustrated. I can feel the frustration through the screen and I mean that in the most sincere way possible.
He’s honest, he’s vulnerable, he’s tough, & he’s present. Most men can’t even do one of those attributes, so to me you’re a star. Thank you for sharing your story. I love you, man.
I don't at all mean this to be mean to other people interviewed on this channel but this guy is a breath of fresh air for me. I feel the same exact way as him and sometimes I just can't watch these videos because it's too hard to see people with loving families who love and support them and help them to succeed despite their disabilities (which is great!) because I never had and never will have that. I am a disabled survivor of childhood abuse and most everything I'm doing, I'm doing on my own. Thank you both for showing another side of disability that many, many of us live and struggle with every second of every day.
This was probably one my favorite interviews ever on the channel and I’ve been watching for years. I really appreciate your insight and honesty; for telling it how it is. I also appreciate that it must have been harder for you to face these concepts head on with no smoke and mirrors, and I really commend you for that! You’re entitled to not being happy with living with a chronic and terrible disease! Your emotions are valid, even if it’s not what people would hope for. You do deserve happiness, and I hope someday somehow you get it.
It is SO important to show this, too. The side of disability that tends to cause depression and hopelessness. It is quite absurd to take every disabled person as "role models" and "inspirational". Thank you for this honest interview.
Absurd and kind of dehumanizing. Disabled people are not here to inspire abled people, or to make others feel better about themselves. They’re here to do the same as everyone else: Trying to live a meaningful, fulfilling life and be treated as anyone else.
This guy is so smart, intelligent and intellectually questioning about himself and the universe. You see this deep in thought question about ‘why’? He understands the value and toxicity of society and it’s quite profound
He's so right about the personality not mattering when it comes to disabilities and how the wider world sees disabled people. It's why I always hated when people said "There's someone for everyone". There's not, and it's important to realize that. It's important to be real about how different people experience the world.
I don't think the reason is how you see disabled people. But being with someone who is disabled you will definitely be giving up some things depending on the severity, and to me it's fair that people don't want to do that.
It's so true, there is NOT a significant other in the future of each and every person, and I'm glad you said it. For those situations, the "hope" that everyone thinks is best for you to feel can actually be debilitating, and it can be waaaaaay healthier to just move forward in life instead.
I think it's important to be reminded that not everyone with a life changing condition like this is an inspiring success story. Not everyone can miraculously accept their hand in life and live in spite of it. Shoutout to this dude. Stay strong
This is such a profound interview. It’s so important to show the raw, hard, painful and lonely side of disability. Not only point out the upsides. Especially ended it comes to romantic relationships. Some of us have disabilities that are not compatible with romance and that’s often devastating. I feel such empathy for this brave man x
Joe, if you are reading this, I have a dear friend in Las Vegas who has the same condition you do. I have helped take care of her when her caregivers couldn't make it. There is NOTHING you did, or did not do, to deserve this. My friend in Vegas is one of the strongest people I know. She is bedridden, can't move her elbows, can't walk anymore, but she has this amazing heart, a wonderful person, just like you. I tell you this to remind you that you are not alone, you have so, so much to offer this world, you are stronger than you will ever know, and you do have a future. My friend in Vegas is around 55 ish. No signs of slowing down. You got this, hun. You are gonna beat this world.
Her name is Tisa. All around amazing woman whom I have the utmost respect for. She was the first person I ever met with FOP. She has an inner light that shines through, totally larger than life. My name is actually Jen, by the way, Fiona Rhiannon is my dog. It's wonderful to meet you. This youtube page is where I post videos of her.
@@JoeSoochh Hi Joe, I'm thankful I got to hear your story and hear you speak from the heart. The amount of perseverance you have is incredible. I was feeling a little down or frustrated myself, but knowing that you're pushing through, despite how challenging things have been, has inspired me to keep running my race. It's easy for people to tell you how to think and live your life, when they're not in your shoes. I can' only imagine how tearful and trying it's been for you. At the same time, I can tell you're a special person, and so can others who've watched this vid. You're helping more people than you know. I love you brotha, and others feel the same. From the bottom of my heart, thank you, Joe ❤❤❤
Good for you, Joe. Not every disabled person has to be happy and upbeat. You're an inspiration for all those who think they can't hate their disability.
I disagree with the commenter that said Joe didn’t accomplish anything exceptional in life. Joe is fighting every damned day to survive a debilitating disease that’s slowly taking over his body. In my opinion I think he’s exceptionally brave and very humble in face of adversity. Personally I’m inspired by his vulnerability and how he keeps it 💯 raw and real. Which most folks can’t handle listening to someone complaining about their disability let alone their disappointments in life. Society is so used to everyone whipping out their masks and pretending like everything is always honky dory. Joe I hope and pray for a miracle and for this disease to slow down. And I also hope you get to meet genuine and loving individuals through this platform ❤️
He's a beacon of light in the sea of chaotic thoughts and feelings. A strong rock to cling onto and ground and gather yourself. His life has achieved much more than billions of others out there. This interview really grounded me. I love his realistic approach to life and you can see he's done a lot of deep thinking.
Only 3 minutes in and already in love with the way he challenges everything around him without delving too deep into cynicism - even tackling the classic friend question! Really excited to watch the rest of the interview
@@JoeSoochh I think I know what that emoticon is implying but I can't be sure... either way, don't worry man - you spoke your mind freely and that's the best thing you could've done for this interview! Sometimes we can interpret other people's reactions completely wrong, so try not to dwell on silent or ambiguous reactions ;D
It's interesting because even though he didn't answer the question directly, he still answered the question. Clearly he prefers to be direct if a little brutally honest, and would want people interacting with him to do the same. Most likely to become friends if there's already a starting point, which is really the norm in most situations, so if people really wanted to know him they should find some common ground. Really it's a perfect answer, if a little roundabout, lol.
I'm so glad this video exists. It's so important to see people with disabilities that are not here for our "inspiration". Just the reality of struggling with a body that doesn't do what they want it to do.
In a way..it still a inspiration..cuz it can give others inspiration to appreciate more in life..and how sometimes we can take alot of things for granted,like having an able body,being able to walk and move,etc..
@@rubensanchezramirez7028 duh,I agree with that..but that still doesn't change what it makes some people's outlook on life..but I get what your saying,but that still doesn't mean it don't influence people's perspectives..
I have a genetic disorder that didn’t begin to break my body down until my 20s. I’ve watched myself lose things I used to have. Day to day my abilities can change dramatically. I get torn between wanting to put on a show for all the people around me who say “don’t give up, don’t let it define you” and the deeper more honest feelings I experience. I feel a constant, ever-changing sense of grief and loss. Toxic positivity doesn’t appear toxic to those around you. It looks like a good attitude. A good attitude is attractive and anything less than that is considered a weakness. I’ve been watching this channel for years. This particular interview felt so refreshing because I could relate to the feelings Joe has. It’s giving me permission to be honest, with myself and others. Thank you for this. Joe is absolutely spot on. You eventually just find a point of acceptance in order to carry on and keep moving forward. But gosh is it difficult when your condition is progressive.
Your comment is absurd, apparently you know nothing about Chris and his wife and the work they've put in to get this channel to where it is today. Chris is extremely genuine at all times. Yes the way he speaks to adults sometimes seems childish, cheesie but most of the people on his channel are teens, kids. Chris is an amazing human being and his channel helps millions.
@@edgarallenhoe4656 He doesn't need to change anything. Some people like it and some wont (Joe) and they will tell him. You can see Chris adapt to it. He's always very understanding and genuine towards everybody. You're comment is just kinda insensitive, it's obvious you don't know him or his videos well enough.
I have CP and I feel that it has robbed me of so much in life...I'm 38 and ppl always ask me why am I so bitter and unaccepting of myself. It's like being trapped in the prison of my own body. I'm glad to see a video about this side of things.
Oh gosh it took me a couple tries to realize you mean “cerebral palsy” when you said cp 😭 I hope you are doing as well as you are able to with your conditions.
I had a former student with this condition in my second grade class. She was pure sunshine- I could never bring myself to tell her to stop running in the halls like I would any other kid...because it was so important she run while she was able to. I hope she is doing ok now that she has graduated elementary. I think of her often. She too, was diagnosed after a surgery as a baby. Thank you for bringing awareness to this condition.
Probably unlike a lot of people, I found this interview and the perspectives in it refreshing. There have been so many times watching SBSK videos where I am completely blown away about people’s optimism and their faith and the things they are thankful for,… and yet I ask myself if I could ever have that attitude in their place. And I’ve always thought that no way, absolutely not, I would be dealing with increasing anger. Also, if someone asked me if there was anything I could change about my life (a standard question on SBSK), personally the number one thing would be whatever the disability or disease is. But almost no one says that in these interviews. So this was very different. Not better, not worse, just different and for me it felt more relatable.
I know he is soo strong mentally.. People probably go through mental illness and thoughts of why me initially but there must come acceptence at some point because he can't change it sadly and it's progressive too so he knows it's only going to get worse rather than better. I just can't even imagine living with some of the diseases on this page.. No one deserves this. A cure needs to be found. The boy John Hudson too video broke my heart as the pain he's in daily and constantly is horrendous. All my love to you and everyone..x❤️🙏
"Every mental health journey always is solo travel." So true. Fortunately, there are people along the way who can provide comfort or at the very least, healthy distraction -- peers, authors, poets, songwriters, artists, maybe friends & family. You are worthy of love and social interaction, Joe. I hope you become a public speaker to huge numbers of people. Could this and SBSK open up your social circle? Being exposed to your personality and point of view is extremely helpful to others who feel the same way or who love those who feel the same way. Cheers to your efforts and perseverance. Peace & comfort.
I like Joe's honesty. Like he said there are so many disabled people who live like him and have a realistic world view. He is showing the other side we don't see very often and that's really important to show.
This made me tear up. This is the first video I've seen on this channel that has actually been relatable. My disability is not nearly as restrictive as Joe's (I am non-verbal due to aphonia), but it really does cause me a lot of grief because it has robbed me from ever being able to live a normal, independent life. I wasn't able to finish school, I've never been able to get a job, and I've never been in a relationship. My mom always tells me that I'm "pretty" and "have a great personality" and that I'll "surely find someone someday", but the harsh reality is that the vast, vast majority of people would not want to date someone who they can't even have a normal conversation with. Anyway... thanks for being real, Joe. Thanks for showing that not every disabled person has made peace with their disability, and that that's okay.
Thank you for making me aware of aphonia, just googled it and never heard of it previously. You sound like a very articulate and compassionate person and I can see why your mum believes you will find someone! I'm 39 and had e/d issues since 15, finally found someone last year who sort of gets it but of course it's a learning curve for anyone. What I'm trying to say is eventually things can work out x
@@WillyEckaslike Please don't belittle my disability or make assertions about me/my life when you know next to nothing about me. ♥️ I know you were trying to be helpful but your comment comes off as very ignorant and naive.
@@WillyEckaslike There's a very big difference between being quiet and not being able to utter a sound. Every man who has ever gotten to know me online and shown interest has either ghosted me or become distant the moment I told them I'm non-verbal. By the way, the whole "men don't like women who talk too much" thing is misogynistic and simply untrue.
I really like this guy! I can tell he doesn't like being perceived as 'disabled' and is honest about how shitty it can be. I think that sort of attitude is a really respectful way of thinking in it's own right. Beyond all the struggles he faces, he fights against the desire to accept it as a good thing. I have nothing against any attitude that people may hold, but I find his really endearing. I'd love this guy as a friend!
This is the interview I've been waiting to see. It isn't overshadowed by toxic positivity. Joe brings up real things. The dark sides of a chronic illness, the dark thoughts that he's had, his fears. I think this is a very real interview. No cheesiness.
I like how chris didn't force joe into being a positive model or anything. He's just some dude, and sometimes our disabilities don't make us special, they make up disabled. Joe is a very interesting guy
This is probably my favorite interview out of the 50+ episodes of SBSK I've watched so far. I have 2 unseen chronic illnesses and I relate to Joe the most so far out of anybody on this channel mentally. Chris is amazing at listening and being empathetic and I wish this world had more people just like him.
Its interesting how Joe's frankness about his situation is interpreted as animosity. It didn't feel overly negative to me, just honest about the reality if the situation. I think the hyper positivity is a great approach with kids and with some folks with intellectual disabilities. For others, i think a more straightforward conversation like this is helpful.
I think this is such an important video. As someone with mental health struggles, I have experienced a lot of toxic positivity within the mental health community with people telling me I need to accept my diagnosis and love myself unconditionally. While I agree with this, sometimes it just feels overwhelming and scary, and I wish I could have someone who understands and admits that it just sucks sometimes. I really appreciate how Chris validates Joe’s experiences and doesn’t try to force him to think or view his situation differently. I absolutely adore this channel and each of its videos! Great video!
Videos like this are why I love SBSK, talking about the good and bad of disabilities not just the positive. I think sometimes we get so wrapped up in the motivational aspect and only good things in other content, we forget it's not easy and is an everyday struggle. It's great to have positive views but I appreciate when people like Joe are completely honest about life and the struggles.
I feel like Joe is a grown man and should be treated with the respect and synergy that matches his attitude. He is very realistic about his lived experience and he is right to speak his truth in grieving this journey while surviving it. Joe - thank you for sharing. I appreciate you and I enjoyed listening to you deeply. You are a bright individual. And you have the right to state your opinions and your preferences like everyone else regarding how you interpret life.speaking to a therapist will help any outlook on life. I hope you develop a relationship with a good therapist to guide you in this experience. Sending love there is always hope for a happy life Joe ❤️
He’s one of the realest and most honest people I’ve seen on this channel. He doesn’t allow society to sugarcoat his reality and tells you how it is straight up how it really is. He doesn’t want to be accepted by people who claim or act like his friend just because they feel sorry for his disability. And he’s absolutely right about relationships and not being like the others like the “famous TikTokers” with disabilities that have girlfriends. He knows that all of that is just for fame and clout and the girls are only there for those exact two reasons and that’s simply not what he would want in life. He’s just trucking life head on and I respect that.
This is the first time I see a person with this disease being so honest and not trying to embellish everything with false optimism. Very brave, love this guy
Yes to this interview. Yes to Joe. Thank you for being so honest and so completely normal. Progressive diseases are uniquely devastating, and it is 100% valid to experience anger, question God, and feel weird, misplaced guilt. In our culture of glossy, beautiful, and fantastical fakery, I appreciate this interview to the uttermost. Humanity is full of beauty, but also sickness. Joy and hope, but also sorrow and despair. We need each other, especially in the darker times. Thank you for letting people in, Joe. I’m praying for you. P.S. Thank you for giving us some insight into the caregiver role by having Chris help you onto your feet. Caregivers rock :)
Seeing this makes me realize how incredibly lucky I am to be fairly healthy and disease free. I can't even imagine the pain and anger this young man feels on a daily basis. I wish him the best. But I am at a loss as to what I could possibly say that could be seen as positive in this horrible situation.
Yeah I understand. But I guess sometimes not saying anything can be equally powerful as well. Just being a quite but empathetic listener can be helpful. I think that by "forcing" positivity into a sad situation can actually backfire. I have a friend with disability, and when he complains about it, the only comfort I can bring is just trying to be validating and accepting as possible. Sometimes even saying "man that really sucks" can be validating and give some relief.
@@Joseph__777 not blessed, lucky or fortunate. If you believe in that kind of thing, we are all blessed by god, god does not exclude any of his creations
I think it's important to remember that even though disabled and ill people can accomplish so much and live wonderful and happy lives, that much of our lives are spent in some sort of pain. It's hard to talk about the illnesses that I have sometimes because others interpret it as whining or as being too negative, but I can't help that I'm sick and I don't exist to inspire others. Thank you for sharing your perspectives on this, Joe.
This is a really unusual video for your channel. Often you’re talking to children, and it’s important to be positive with kids. This is an adult with a brutal disorder and he’s being honest about how much it sucks, and how he feels, he’s not sugar coating it for anyone. It’s not an easy or comfortable conversation, but it resonates for me. I think these are conversations that need to happen in order for us as a society to grow past our immature reaction to seeing differently abled folks, and learn some compassion, and tact. I wish I could meet this man, be friends with him. Not because I feel sorry for him, but rather because he’s clearly gotten a really shitty deal; and I like his honesty. That said, it’s important to decide what you most want to experience and what you want your life to be, and then figure out what you need to do to to make that happen. You aren’t going to the meet the love of your life if you never leave your house, and there are all kinds of people, programs and adaptive technologies to help do that.
What a badass. I loved this interview. He got real and honest. I cried. I just hope that he’ll find happiness in life. If not now, I wish that for his future. You’re strong dude. Thanks for sharing.
If I could take Joe's pain away, in a heartbeat I would, I believe we all would. I appreciated his honesty and believe he deserves every moment of happiness and gratefulness that he can find. What a warrior
@@Soma_3046 Not sure why there was a need to underline something so vague and unrelated that but sure whatever you want - Bird Aren't Real (look it up if you don't understand that statement)
My sister has cerebral palsy and now uterine cancer and it's good to hear from someone who is honest and doesn't sugar coat what it's like to go through illness and disability. Sad and so many unanswered questions, like "why me". It's hard when I can't give her any answers. She doesn't deserve what happened to her an neither does this young man.
1:35 Thank you SO MUCH. I have felt this way since my early teens. It is always so incredibly validating to hear people echo the feelings I’ve had for nearly a decade.
This interview was a tough reality check, it made me realize how some people are really living hell on earth. I absolutely appreciate Joe's perspective, I used to be religious, I now don't believe in anything if not what I can practically do to help people around me. I just rely on my own and other people's strength, something I can witness. I simply switched my faith on something I can do in real life. Joe, if you are reading the comments, I agree with you: it is a journey you do alone, it is a pain that only you can feel, and it also a perspective you only have and, in this case, is reaching and touching a lot of people. I'm really sorry about your condition, I can't imagine it, and I only have words to support you, nothing else. I'm a person who relies on hope, and your realistic point of view was something beautiful for me to hear, it is raw and straight and I really appreciate it. But I also would love to say to you that we are all loser for some people, and winners for others. Be a winner for yourself. You are already a winner for people like me, because of your wise words. I really wish you the best, I wish you to be able to think and do whatever you want and can, and I promise you it is all a matter of finding your own strength: your body may be fragile but your mind is strong-willed and wise, it is your weapon in this life! Keep fighting! A hug from Italy Ps: Chris, Thank you for another marvellous realistic interview, I'll never get tired to say it: youtube is filled with good content, but your channel is simply on another level of quality.
I really appreciate his honesty. We're always expected to be happy despite our disabilities, or to "not let it stop us", but sometimes that's just not realistic. My disabilities are much less severe, but I feel similarly- being disabled does suck a lot of the time. Thank you for being open and honest about your feelings and experiences, Joe. Much love to you.
I would’ve really enjoyed for this interview to be longer, being in a completely different situation than Joe but i still have a hard time understanding the unfairness of life, or if enjoying it is worth it at all. Thanks for the videos
My heart aches so much for this young man and all those who suffer from FOP .. I can’t imagine the psychological trauma of living with a condition that is going to take your life very young, knowing that there is no cure at the moment. He is such a strong young man, science needs to catch up on this condition. It’s heartbreaking to see a young man who can’t do all the things young guys do. Sending you hugs love and respect, I pray that one day they find a cure for FOP
I liked this interview a lot. Probably more than other videos. Most of them consist of people who accept their disability and see it as empowering in their own way. This guys is honest and shows distain towards his disability. He shows no bright side to his disability. When chris starts asking questions he immediately expresses answers that differ from most people I see. Example, the “friend” question. He IMMEDIATELY said it was cheesy and honestly I liked that a lot. He doesn’t want to lie and project some falsehood. He says “nah man I find that question cheesy. I don’t think this condition has a bright side.”
Very satisfying to watch, without the same forced optimism of some of the other videos. It's hard, but refreshing to see situations called for what they are.
I relate to what he says about every mental health journey, in the end, is a solo travel. It’s up to the individual to make their day present and meaningful. Really liked his honesty and his down-to-earth, factual manner, even if it’s not 100% my style.
I respect and appreciate Joe. His strength in content of character teach everyone the great value of strong, genuine, people. You are here for a reason, Joe. So many people need to learn from you. Thank you.
Something about the way Joe said longing just really hit me. We all long for certain things in our lives but to have something and lose something and then live in a situation where grief and longing becomes an eternal cycle is unimaginable to me. Joe seemed like a very pleasant guy and I hope he becomes a RUclipsr, I'd give him a sub.
This interview is very special to me. I pass my thanks to this dude for showing that religion doesn’t help everyone. For some, faith is the one thing that keeps them going. And for others, religion is uncomfortable and unhelpful. It doesn’t mean either side is wrong, it’s just a difference. Personally, religion has helped me through some of my hardest battles, but I get so tired of so many people in my community telling me dedicated worship will fix me.
I never had a good relationship with God until I realized how personal and intimate it was. It's not about religion. It'd about spirituality for me..so I understand what you're saying. Don't let man ruin God for you. God Bless!
I really like your comment, idk I feel like most others just try to really push that one side is wrong ,which you don’t and I somehow really appreciate that.
It’s all to easy to minimize the severity of disabilities. It’s important that people realize that these people are struggling, and despite that struggle they are able to persevere.
This is one of the best videos yet. Not to undermine ANY of the other participants and their stories, i love them all, but Joe´s raw attitude, his bitterness and sadness over it all and still being able to live through it, is just a pure sign of the strength a lot of people who has disabilities have. I am in deep admiration of his courage to still find some meaning in life despite his tough situation. And i wish him all the best plus that he will find at least an ounce of the wonderful joys that life still may be able to offer him.
We need more videos like this. Painting everything in a positive light is not always the way. For a lot of people, it's about accepting the reality, as brutal as it is, and then try to enjoy life when they can.
I like how he is authentic, sometimes in some of these videos people are so positive when then shouldn't be it makes me wonder if they brainwashed themselves into that somehow, to not say something else. So I don't comment anything because I would say something negative. But this guy has a more normal atitude.
I used to wonder that too but I've come to know all sort of people over the years. Some people have money, family and friends and hate themselves, and some people are alone in the world, teetering on the edge of homelessness and you can't break their smile. I think it's all about the person and not their surroundings, and potentially even their afflictions.
For me based on allot of videos on this channel and also reading other people's comments, i like this video because it shows the side of the disabled community who knows how they feel and are annoyed with other disabled people guilting them to change their opinions because they feel their feelings got hurt. The amount of times i've seen them shout down other disabled people just because they don't pretend that they love everything about their life or that they're happy as they are calling realism "ableism". Why does their feeling hold more weight over others? Last time i checked they're all disabled so i don't get why allot of them have this arrogance about them telling others that they should change their attitude. It's their reality and their opinions are shaped around it. They might call it negativity or "ableist" but it's their honest opinions based on their reality. Besides, if i was born in similar predicaments then i'm sure i'm entitled to feel the way i feel. Life's already inconvenient for them, why do they also take away their right to their own opinions, not even that they can have?
@@JoeSoochh hi Joe, I know this life can be really difficult. But just know that disabilities do not mean God is punishing you. Even though you may not feel it, God loves you and will walk with you in life. He gave you Jesus, His only Son. So you can hold on to that truth. Luckily, we can live in an eternal life of happiness with God in Heaven, free from pain. Thank you for sharing on this channel with us and have an amazing day Joe 💛
I found out last year that I have a rare degenerative spinal condition that is inoperable. I’m 64 and did a lot of physical labor at my job until then. My condition is very painful and causes nerve pain throughout my whole body. It’s so depressing to think that things will not improve and I could possibly end up paralyzed. You are so young to be going through this, and your fortitude is amazing! God bless you. ❤️
I hear you same with my job as a Nurse Aide..my spine just keeps on doing things like the last few years the only unaffected part of my spine got scoliosis. So I have stenosis, tumor remnants after two spinal surgeries and radiation, and scoliosis. Whole spine is under assault…lots of nerve pain and it’s a particular bad pain it doesn’t respond to. regular pain medication…..but just when I contemplated suicide my doctor prescribed Amitriptyline…..within minutes that nerve pain subsided some..it was like being reborn in a way…so over the years I have the right dose for me and I take before bedtime because it makes you pleasantly groggy..if you haven’t had Amitriptyline before please ask about it..it gave me back my life I still have pain but it responded to my regular pain medication. The nerve pain is tolerable now I’m so grateful for it. I’m 67 btw. Hope is alive.
I'm sorry to hear that, but isnt being 64 a "consolation" somehow?! I don't want to sound insensitive, insolent or anything! also I think that especially during those conditions (a lot of) activity can help to fight/improve it etc!.
@@kathyinwonderlandl.a.8934 I have tried amitriptyline in the past for depression but it messed my stomach up really bad. I’ve also used gabapentin but it doesn’t seem to do too much for my pain. Thank you for the tip.
It's okay to not be okay and I think we forget that. This interview is really refreshing. I have a chronic illness and well as mental disorders and my life hasn't been easy either. You do grieve a lot. It's nice to see people who are inspiring but there are a lot of people with negative feelings about what is happening to them and that's perfectly okay too. We're always pushed to be strong, positive and inspiring even and that's not always reality.
What I realized about SBSk is it didn't tell the whole story about people's lives. Without him standing up you would never know how his life sucks. I think hes brave for saying it like it is because you can see that Chris didn't want to hear it. It's not all happy - happy joy - joy when you're of special needs like this channel projects. There is a lot of pain in these people's lives that needs to be noticed. I just saw one girl named Sophia who passed away and she was brilliant. It made my hearts break when I found out.
Terrible disease….Joe is a real trooper, very genuine and laid back! ☺️ If I would have this debilitating disease, I don’t know if I would want to exist on this planet anymore!😢 Joe, I will check out your YT channel!🙌🏼 You are very well spoken and a true example for the people living with disabilities….No sugarcoating, just tell it like it is! God Bless you and I hope that someday love will finds it’s way to you…🇨🇦♥️🍀👋🏼🙏🏼
Such an immensely strong human being. He could’ve checked out so many times, but he hasn’t. I lost my mobility and my entire life for about 5 years due to a chronic back injury and I know EXACTLY what he’s talking about and exactly how broken you become. I used to watch out my window and cry watching everyone else living their life while I was in a dark hole and I wanted to check out so many times. You’re here for a purpose Joe ❤️
I think this is my favourite interview on the channel thus far. Joe is so forthright and eloquent in describing the harsh reality that so much is contingent on the capricious vagaries of chance, while at the same time counterbalancing that sentiment by noting the importance of personal agency
Joe is amazing for being this honest! It must be so freaking hard to live like this guy, there's no way to sugar coat it, he's great for telling it as it is. Thank you for ur honesty man, I'll subscribe to ur channel now!
This is quickly becoming a favorite channel of mine, learning about all kinds of people and their messed up conditions. I know it doesn't help anything but Joe seems pretty cool, the guy looks like good company
I really appreciate his honesty. He is entitled to feel about his disability in any way he chooses to feel. To me he is an incredible brave honest person. He has my admiration for all he has faced in life and has the courage to stand in front of a camara and tell his story.
Joe has a RUclips channel you can subscribe to at ruclips.net/user/JoeSoochh He told me it is his goal to become a successful RUclipsr one day. Thank you for sharing your experience so openly and honestly Joe. I know it will help many people out there.
I actually have fop too im happy to see it getting more awareness ☺️
Subscribe to Joe's channel everyone!
Your description has a typo. It's not "Some our" but "Some are".
You are so special and amazing, Jesus loves you and know you are never alone ❤️
You rock Joe!
Nobody can blame Joe for hating his disability. He dislikes it and he is 100% entitled to feel that way. He's so well-spoken and genuine. I wish him the best.
Exactly this
Really well spoken. Real cool guy despite a really really tough situation
This is exactly what I love about Joe. His absolute honestly and not being afraid to tell his truths, even if people don't agree.
Yeah. And i really like this sbsk episode because of that. Not juste there is love and, this is hard but we do the best... This is hurting and hard breaking but this is the brutal reality of living whith such disability, and when he talks about god.. Whaou.... Tks for the honnesty... And i wish him all the best.
I agree
I appreciate Joe not feeling pressured into toxic positivity, because chronic illnesses really suck and there is a lot of internal grief. I’m glad he’s at least able to be honest with the world.
Absolutely!
He's positive, genuine but also real about his illness.
It's really refreshing to see
Exactly. Toxic positivity is especially more common in the disability community. I felt like I never had true support because of it. And I think disabled people are so oppressed that they tell others what they want to hear to try to protect them. I wish more disabled people would be honest instead of portraying this image practically forced on disabled people.
@@gautamasiddhartha2072 Yes there is. Being too negative is bad because of depression and mental illnesses, and being too positive silences people from being able to vent and receive support through their struggles.
Having extreme disability and being like "yeah I'm content with this, it's fine" isn't healthy unless it's 100% sincere. It's kinda like giving up in a way as well. It's ok to be angry, sad and frustrated, those are all natural emotions that we shouldn't try to bury down, we're not robots
It’s refreshing to see a young man owning his frustrations.
You don’t have to love yourself.
You don’t have to accept your disability.
You are allowed to be frustrated and angry.
I always feel that society puts pressure on people with disabilities to be inspirational and accepting.
Often it’s a act because their frustrations make us feel uncomfortable.
They have enough to deal with without having to pander to societies expectations of them.
I totally agree. He is realistic about his life. Think about his daily pain and inability to do everyday tasks and see how we would react. I admire him and courage to face his daily struggles without falling to pieces.
Society still treats those of us with disabilities like something is wrong with us. Look, they're trying to erase the word disability because they don't like people with disabilities. You know why? Because disability destroys their equity goals.
Well said
yes, this mindset is ok, but only if you cant do ANYTHING about it
Agree 👍🏻. I wish these videos would get more viral because I feel every words from the disability victims. I wish the whole world can understand that one may not be perfect
This dude is real. He’s spitting facts and not sugar coating ANYTHING. Hope he knows what an asset he is in a world full of people lying to themselves and others just to feel better. 🤘
but god exists, that shouldnt stop him beliving
@@botoez2056 why shouldn't he? If God is all loving why would he give him that disease
@@TY-wy8nd he loves him as much as he does others, and god didn't give him that disease, the fall from the grace of god is human's fault, god doesnt want any disease
Exactly 💯 sometimes I feel positivity can be toxic if he is sad about it let him grieve what he's lost..
@@TY-wy8nd the Fall of Humanity introduced sin and disease. This is simply natural selection and has nothing to do with God’s love
This is one of my favorites. Everyone is “normal” in a sense, but this guy for me seems to be most like cognitively normal. He doesn’t want to discuss the positive question of “how can someone be your friend if they want to reach out?” He thinks it’s cheesy, and mentions how he doesn’t want to accept his disability. This is the real, unfortunate reality of his disability to him. And a stark opposite from the upbeat, positive aspect of the interviews we typically see on this channel. Very interesting.
Well said!
@@0NET0MB Agreed!
I think it’s because some disabilities are just the way you are. Like autism, it doesn’t hurt you nor get worse, it’s just how we see the world, therefore saying you wish you didn’t have it is kinda redundant. Whereas chronic illness is awful, it can get worse, it causes you pain and there is no upsides.
Fr
He seems like a normal guy who just happens to be turning into a statue
This feels like a very important interview for this channel - not to overshadow any other interview of course, but changing things up is essential for the theme that's carried across all these wonderful videos... and the brutal honesty here really hits. Joe just keeps it real but never makes it sound like he's feeling sorry for himself; just being upfront about what he's facing and tackling it all head-on. I can't help but feel that editing this must've provided a very reflective experience... wonderful work Chris, I especially loved the physical segment here. Please never lose your touch
I have ankylosing spondylitis and much of what he said was very true for me as well. Alot if times when I am describing my limitations people say its not because of my condition its just my attitude and that can be really hurtful when im genuinely giving it my all. That being said I think Chris is very brave for not rejecting criticism.
Agree 100% Antoni. Joe said it like it is, and I really respect him for keeping it real, open and honest. This interview opened up my eyes a lot. It was nice to see Joe and Chris engage the way they did. Thanks for sharing your story Joe.
PS. I subscribed to your RUclips channel and wishing you much success with that.
Agree and very well said.
Said it perfectly !!!
Like you all, I agree. I was blown away by his honesty and I think a raw, things are not always going to be sunny view also needs to be seen. His story is as important and educational as everyone’s story.
As much as people like to learn about disabled people doing "amazing things" or being in relationships with typical people, Joe is right. These are few and far between. At least you, Chris, are introducing us to everyone and not just those who are celebrities or have accomplished something exceptional.
My son is 20 years old and has multiple disabilities including autism, severe anxiety, and PANDAS. He is now aware enough to understand that a lot of people do not have to go through what he does. I try to reassure him and say the things that might make him feel better. But I feel like it is okay for Joe and my son to not be happy about their disabilities or chronic health condition. I hope Joe is able to continue to take care of his mental health and know that he is entitled to any feelings he has. No one can tell him how to feel about his situation. I hope people reach out to him, and he gets to know more people. I do believe in God and have had to wrestle with my faith trying to understand why some people suffer more than others. I just have to believe that our suffering on Earth will bring us closer to God when we die. I think it is okay to challenge this belief, though, and respect Joe for his honesty in sharing what he goes through.
@@mom2mmpt I dont see why God should make someone suffer significantly more? Character development?
At the end of the day we have to be true to ourselves. Reality is not always sunshine and rainbows, this channel is one of the ways we recognize that. Im glad these people get to share their outlook and hope that they get as much joy as possible living their lives.
And we don’t NEED to “accomplish” anything spectacular. We can just live life being the best we can be. That’s all just as wonderful.
You are so special and amazing, Jesus loves you and know you are never alone ❤️
I love his honesty. Sometimes excessive positivity can be toxic.
There comes a point where there's so much positivity that it starts feeling forced.
@@citrusbutter7718 exactly 👏🏻👏🏻
in which of his videos is there excess positivity? just curious!
@@dorna2325 I’m not necessarily speaking on his videos (though I’m sure there’s lots). But just the idea that “I can do anything I want to do! Having a disability doesn’t suck at all! Don’t be sad just smile! Etc..” obviously with younger children you have to do that. It’s just nice to see someone be real about it is all :)
true
That was incredibly refreshing. Finally someone who doesn’t act like “accepting your condition” isn’t a lifelong, exhausting battle.
I have a progressively disabling disease, and it’s constant grief. Exactly as he said. You remember when you lose function of different body parts. You grieve the loss. Your purpose and self fulfillment slips away. We have our voice, but the world moves on around us. It’s constant.
Your now Delivered from Ancestral in Jesus mighty name Amene!
@@williamahkoijr.3822 What?
Good on ya, can you tell me something about your hobbies?
@@supremegreaser2399 Prayers for you Amene!!
@@williamahkoijr.3822 I am confused by your answers.
I appreciate the Chris didn't invalidate his experiences by contradicting his criticisms of his disability. This interview gave me even more respect for him.
It's admirable. No "but you have X and Y and Z isn't that wonderful!" Just letting him express himself.
I like how Chris was so patient and accepting to lift him up on his feet and help him walk. I like Joe cross earrings.
Absolutely! He just patiently listened and let him speak about his own experience without trying to interject or put a “positive” spin on it like society likes to do. Absolutely the right way to go.
My brother has cerebral palsy and he is almost 40 now. He has been angry at his disability his whole life and I think it's good to see someone with disability talk about that. Life isn't always fair and it sucks. Not everyone can find peace and strength in their hardship, and that is okay.
I'm 38 with CP and it's just severe enough to put me on the sidelines for most "normal" things in life, and it can be very hard sometimes. I try not to dwell on it too much, but I'm always the person that can't do what other ppl are doing, I mostly have to watch. Most of the time I enjoy watching ppl but it always hurts that I can't participate too.
Zach Anner has 'inspired' many people with CP with his comedic take on life, but I find that that also must be somewhat galling for anyone who is less of an extrovert than him because he makes it look so easy to engage with people and I know it isn't for many people. Myself included.
💙💙💙🙏🙏
This dude is very real with himself and doesn't look for excuses. He calls his experiences out the way they are. I love how he gives crap for the first question, he seems fun. The burden he is carrying is being shared to millions and it's great to give that kind of alternative perspective.
My back hurts from this dope personality I have to carry around
This was his way of letting the world know he is extremely frustrated. I can feel the frustration through the screen and I mean that in the most sincere way possible.
@@cbreezy He has every right to feel frustrated and then some.
@@TheFracturedfuture are you a contrarian or what? I didn’t say he didn’t have the right. Your reply is not needed.
@@cbreezy 🤡
Gotta respect his brutal honesty. People that don’t even have to endure 1% of this pain end up completely broken.
He’s honest, he’s vulnerable, he’s tough, & he’s present. Most men can’t even do one of those attributes, so to me you’re a star. Thank you for sharing your story. I love you, man.
I don't at all mean this to be mean to other people interviewed on this channel but this guy is a breath of fresh air for me. I feel the same exact way as him and sometimes I just can't watch these videos because it's too hard to see people with loving families who love and support them and help them to succeed despite their disabilities (which is great!) because I never had and never will have that. I am a disabled survivor of childhood abuse and most everything I'm doing, I'm doing on my own. Thank you both for showing another side of disability that many, many of us live and struggle with every second of every day.
You hit it 💯
Thank you for being real.
I love your intro, left a lengthy response to your bunny video. Thank you for being you.
I hope your ok sending love ❤️
You're muvh more than a disabled survivor. You may want to read Robert Schwartz' book 'Your souls plan' ' 😉
Loved our conversation! Sorry for scarring you foreverrrrr.
You rock brother! 😂
Insightful interview. Thank you.
One of my favorite interviews thanks Joe
Joe, your interview was so refreshing because of your honesty!
This was probably one my favorite interviews ever on the channel and I’ve been watching for years. I really appreciate your insight and honesty; for telling it how it is. I also appreciate that it must have been harder for you to face these concepts head on with no smoke and mirrors, and I really commend you for that! You’re entitled to not being happy with living with a chronic and terrible disease! Your emotions are valid, even if it’s not what people would hope for. You do deserve happiness, and I hope someday somehow you get it.
It is SO important to show this, too. The side of disability that tends to cause depression and hopelessness. It is quite absurd to take every disabled person as "role models" and "inspirational". Thank you for this honest interview.
💯
Absurd and kind of dehumanizing. Disabled people are not here to inspire abled people, or to make others feel better about themselves. They’re here to do the same as everyone else: Trying to live a meaningful, fulfilling life and be treated as anyone else.
May he go home soon. Enough is enough
This guy is so smart, intelligent and intellectually questioning about himself and the universe. You see this deep in thought question about ‘why’? He understands the value and toxicity of society and it’s quite profound
He's so right about the personality not mattering when it comes to disabilities and how the wider world sees disabled people. It's why I always hated when people said "There's someone for everyone". There's not, and it's important to realize that. It's important to be real about how different people experience the world.
I don't think the reason is how you see disabled people. But being with someone who is disabled you will definitely be giving up some things depending on the severity, and to me it's fair that people don't want to do that.
It's so true, there is NOT a significant other in the future of each and every person, and I'm glad you said it. For those situations, the "hope" that everyone thinks is best for you to feel can actually be debilitating, and it can be waaaaaay healthier to just move forward in life instead.
I think it's important to be reminded that not everyone with a life changing condition like this is an inspiring success story. Not everyone can miraculously accept their hand in life and live in spite of it. Shoutout to this dude. Stay strong
Shoutout received!
i mean, even if he wanted, he cannot move. He is pretty much a quadraplegic. being realistic, there is almost nothing he can possibly do
This is such a profound interview. It’s so important to show the raw, hard, painful and lonely side of disability. Not only point out the upsides. Especially ended it comes to romantic relationships. Some of us have disabilities that are not compatible with romance and that’s often devastating. I feel such empathy for this brave man x
Agreed. I'm always going to be alone.
@@sthom4bad 😞😞😞
Joe, if you are reading this, I have a dear friend in Las Vegas who has the same condition you do. I have helped take care of her when her caregivers couldn't make it. There is NOTHING you did, or did not do, to deserve this. My friend in Vegas is one of the strongest people I know. She is bedridden, can't move her elbows, can't walk anymore, but she has this amazing heart, a wonderful person, just like you. I tell you this to remind you that you are not alone, you have so, so much to offer this world, you are stronger than you will ever know, and you do have a future. My friend in Vegas is around 55 ish. No signs of slowing down. You got this, hun. You are gonna beat this world.
What is her name? I probably know of her! Tell her I say hi!
Her name is Tisa. All around amazing woman whom I have the utmost respect for. She was the first person I ever met with FOP. She has an inner light that shines through, totally larger than life. My name is actually Jen, by the way, Fiona Rhiannon is my dog. It's wonderful to meet you. This youtube page is where I post videos of her.
@@JoeSoochh and I will tell her you said hi.
@@JoeSoochh Hi Joe, I'm thankful I got to hear your story and hear you speak from the heart. The amount of perseverance you have is incredible. I was feeling a little down or frustrated myself, but knowing that you're pushing through, despite how challenging things have been, has inspired me to keep running my race. It's easy for people to tell you how to think and live your life, when they're not in your shoes. I can' only imagine how tearful and trying it's been for you. At the same time, I can tell you're a special person, and so can others who've watched this vid. You're helping more people than you know. I love you brotha, and others feel the same. From the bottom of my heart, thank you, Joe ❤❤❤
Please, please send her contact information to chris and get these two to hook up.
Joe is eloquent, smart and honest. Bravo to him for telling it like it is. Great guy.
Good for you, Joe. Not every disabled person has to be happy and upbeat. You're an inspiration for all those who think they can't hate their disability.
I disagree with the commenter that said Joe didn’t accomplish anything exceptional in life. Joe is fighting every damned day to survive a debilitating disease that’s slowly taking over his body. In my opinion I think he’s exceptionally brave and very humble in face of adversity. Personally I’m inspired by his vulnerability and how he keeps it 💯 raw and real. Which most folks can’t handle listening to someone complaining about their disability let alone their disappointments in life. Society is so used to everyone whipping out their masks and pretending like everything is always honky dory. Joe I hope and pray for a miracle and for this disease to slow down. And I also hope you get to meet genuine and loving individuals through this platform ❤️
❤️❤️
agreed! the fact that he's surviving this is a HUGE accomplishment.
@@JoeSoochh hey Joe! You have a new sub 😊
He's a beacon of light in the sea of chaotic thoughts and feelings. A strong rock to cling onto and ground and gather yourself. His life has achieved much more than billions of others out there. This interview really grounded me. I love his realistic approach to life and you can see he's done a lot of deep thinking.
@@consuminglight who are you?? I recognize your imprint or energy.
Only 3 minutes in and already in love with the way he challenges everything around him without delving too deep into cynicism - even tackling the classic friend question! Really excited to watch the rest of the interview
Chris on the other hand was 🙃 inside
Yup same!
@@JoeSoochh I think I know what that emoticon is implying but I can't be sure... either way, don't worry man - you spoke your mind freely and that's the best thing you could've done for this interview! Sometimes we can interpret other people's reactions completely wrong, so try not to dwell on silent or ambiguous reactions ;D
@@JoeSoochh :)
It's interesting because even though he didn't answer the question directly, he still answered the question. Clearly he prefers to be direct if a little brutally honest, and would want people interacting with him to do the same. Most likely to become friends if there's already a starting point, which is really the norm in most situations, so if people really wanted to know him they should find some common ground. Really it's a perfect answer, if a little roundabout, lol.
I'm so glad this video exists. It's so important to see people with disabilities that are not here for our "inspiration". Just the reality of struggling with a body that doesn't do what they want it to do.
100% agree
In a way..it still a inspiration..cuz it can give others inspiration to appreciate more in life..and how sometimes we can take alot of things for granted,like having an able body,being able to walk and move,etc..
@@sillau9 Yeah but thinking about this people like that is kind of dehumanizing. Disabled people are not here to inspire others.
@@rubensanchezramirez7028 duh,I agree with that..but that still doesn't change what it makes some people's outlook on life..but I get what your saying,but that still doesn't mean it don't influence people's perspectives..
I have a genetic disorder that didn’t begin to break my body down until my 20s. I’ve watched myself lose things I used to have. Day to day my abilities can change dramatically. I get torn between wanting to put on a show for all the people around me who say “don’t give up, don’t let it define you” and the deeper more honest feelings I experience. I feel a constant, ever-changing sense of grief and loss. Toxic positivity doesn’t appear toxic to those around you. It looks like a good attitude. A good attitude is attractive and anything less than that is considered a weakness. I’ve been watching this channel for years. This particular interview felt so refreshing because I could relate to the feelings Joe has. It’s giving me permission to be honest, with myself and others. Thank you for this. Joe is absolutely spot on. You eventually just find a point of acceptance in order to carry on and keep moving forward. But gosh is it difficult when your condition is progressive.
Your now Delivered from Ancestral in Jesus mighty name Amene Amene Amene!!
You are gorgeous I’m sorry you have to go through that💙
I love that Joe immediately called out Chris on his cheesiness. Hence, for the rest of the video Chris was refreshingly genuine and real for a change.
I love these videos but I agree, I personally would get annoyed if someone asked me what to do to be my friend, I'd find it somewhat infantilizing.
Yeah he needs to change his approach when it comes to adults , he can’t expect to treat them the same way he treats children lol
@pinkdostoyevsky exactly
Your comment is absurd, apparently you know nothing about Chris and his wife and the work they've put in to get this channel to where it is today.
Chris is extremely genuine at all times. Yes the way he speaks to adults sometimes seems childish, cheesie but most of the people on his channel are teens, kids. Chris is an amazing human being and his channel helps millions.
@@edgarallenhoe4656 He doesn't need to change anything. Some people like it and some wont (Joe) and they will tell him. You can see Chris adapt to it. He's always very understanding and genuine towards everybody. You're comment is just kinda insensitive, it's obvious you don't know him or his videos well enough.
I have CP and I feel that it has robbed me of so much in life...I'm 38 and ppl always ask me why am I so bitter and unaccepting of myself. It's like being trapped in the prison of my own body. I'm glad to see a video about this side of things.
Your now Delivered from Ancestral in Jesus mighty name Amene Amene Amene!!
Jess you're gorgeous
Oh gosh it took me a couple tries to realize you mean “cerebral palsy” when you said cp 😭 I hope you are doing as well as you are able to with your conditions.
Ever tried some strong CBD products? Might sound cliche but I've seen them work wonders for a treatment
"Yes officer, this comment right here"
I had a former student with this condition in my second grade class. She was pure sunshine- I could never bring myself to tell her to stop running in the halls like I would any other kid...because it was so important she run while she was able to. I hope she is doing ok now that she has graduated elementary. I think of her often. She too, was diagnosed after a surgery as a baby. Thank you for bringing awareness to this condition.
:C
Has to be one of the saddest diseases I've ever seen
I think this might be one of your best videos. He really told it like it is. He's 100 % right about the love and relationships thing.
Probably unlike a lot of people, I found this interview and the perspectives in it refreshing. There have been so many times watching SBSK videos where I am completely blown away about people’s optimism and their faith and the things they are thankful for,… and yet I ask myself if I could ever have that attitude in their place. And I’ve always thought that no way, absolutely not, I would be dealing with increasing anger. Also, if someone asked me if there was anything I could change about my life (a standard question on SBSK), personally the number one thing would be whatever the disability or disease is. But almost no one says that in these interviews. So this was very different. Not better, not worse, just different and for me it felt more relatable.
Okay
"Unlike a lot of people." The majority of people commenting on this video share the same sentiment as you, this isn't a hot take or something.
I know he is soo strong mentally.. People probably go through mental illness and thoughts of why me initially but there must come acceptence at some point because he can't change it sadly and it's progressive too so he knows it's only going to get worse rather than better. I just can't even imagine living with some of the diseases on this page.. No one deserves this. A cure needs to be found. The boy John Hudson too video broke my heart as the pain he's in daily and constantly is horrendous. All my love to you and everyone..x❤️🙏
❤
"Every mental health journey always is solo travel." So true. Fortunately, there are people along the way who can provide comfort or at the very least, healthy distraction -- peers, authors, poets, songwriters, artists, maybe friends & family. You are worthy of love and social interaction, Joe. I hope you become a public speaker to huge numbers of people. Could this and SBSK open up your social circle? Being exposed to your personality and point of view is extremely helpful to others who feel the same way or who love those who feel the same way. Cheers to your efforts and perseverance. Peace & comfort.
I like Joe's honesty. Like he said there are so many disabled people who live like him and have a realistic world view. He is showing the other side we don't see very often and that's really important to show.
This made me tear up. This is the first video I've seen on this channel that has actually been relatable. My disability is not nearly as restrictive as Joe's (I am non-verbal due to aphonia), but it really does cause me a lot of grief because it has robbed me from ever being able to live a normal, independent life. I wasn't able to finish school, I've never been able to get a job, and I've never been in a relationship. My mom always tells me that I'm "pretty" and "have a great personality" and that I'll "surely find someone someday", but the harsh reality is that the vast, vast majority of people would not want to date someone who they can't even have a normal conversation with.
Anyway... thanks for being real, Joe. Thanks for showing that not every disabled person has made peace with their disability, and that that's okay.
Thank you for making me aware of aphonia, just googled it and never heard of it previously. You sound like a very articulate and compassionate person and I can see why your mum believes you will find someone! I'm 39 and had e/d issues since 15, finally found someone last year who sort of gets it but of course it's a learning curve for anyone. What I'm trying to say is eventually things can work out x
be more positive about yourself...there are many more qualities a man finds attractive over constant talking from a woman...eg..a good heart
@@WillyEckaslike Please don't belittle my disability or make assertions about me/my life when you know next to nothing about me. ♥️ I know you were trying to be helpful but your comment comes off as very ignorant and naive.
@@AetherealGirl i understand but as a man i can tell that men dont like women who are confrontational
@@WillyEckaslike There's a very big difference between being quiet and not being able to utter a sound. Every man who has ever gotten to know me online and shown interest has either ghosted me or become distant the moment I told them I'm non-verbal.
By the way, the whole "men don't like women who talk too much" thing is misogynistic and simply untrue.
I really like this guy! I can tell he doesn't like being perceived as 'disabled' and is honest about how shitty it can be. I think that sort of attitude is a really respectful way of thinking in it's own right. Beyond all the struggles he faces, he fights against the desire to accept it as a good thing. I have nothing against any attitude that people may hold, but I find his really endearing. I'd love this guy as a friend!
I also thought he would be a great friend. Sad to think that such a real and smart guy could be lonely and in pain by himself.
I thought the same
Me too..
This man speaks truth. There’s strength in owning your vulnerability.
I believe this why I get you man understand this tottaly.
This is the interview I've been waiting to see. It isn't overshadowed by toxic positivity. Joe brings up real things. The dark sides of a chronic illness, the dark thoughts that he's had, his fears. I think this is a very real interview. No cheesiness.
@persephoneblack888 - Unfortunately, this is not a chronic illness, but a progressive one. And this man is acutely aware of the difference.
Keep making the world a better place, Chris.
That's very kind of you. The world needs more people like you
You are so special and amazing, Jesus loves you and know you are never alone ❤️
@@jesussavedme6260 stop.
@@jacobus57 Why? Just because you're not religious doesn't mean that's being said with ill intent
@@Artanicman 👍💯💯
I Appreciate this guy's honesty
I like how chris didn't force joe into being a positive model or anything. He's just some dude, and sometimes our disabilities don't make us special, they make up disabled.
Joe is a very interesting guy
Absolutely brutal. I admire him for keeping his mind in the bounds of reality. Very difficult thing to do when faced with a reality so hard.
This is probably my favorite interview out of the 50+ episodes of SBSK I've watched so far. I have 2 unseen chronic illnesses and I relate to Joe the most so far out of anybody on this channel mentally. Chris is amazing at listening and being empathetic and I wish this world had more people just like him.
Its interesting how Joe's frankness about his situation is interpreted as animosity. It didn't feel overly negative to me, just honest about the reality if the situation. I think the hyper positivity is a great approach with kids and with some folks with intellectual disabilities. For others, i think a more straightforward conversation like this is helpful.
Yes, I didn't interpret it that way either. I sensed most strongly his frustation and struggle.
I think this is such an important video. As someone with mental health struggles, I have experienced a lot of toxic positivity within the mental health community with people telling me I need to accept my diagnosis and love myself unconditionally. While I agree with this, sometimes it just feels overwhelming and scary, and I wish I could have someone who understands and admits that it just sucks sometimes. I really appreciate how Chris validates Joe’s experiences and doesn’t try to force him to think or view his situation differently. I absolutely adore this channel and each of its videos! Great video!
Videos like this are why I love SBSK, talking about the good and bad of disabilities not just the positive. I think sometimes we get so wrapped up in the motivational aspect and only good things in other content, we forget it's not easy and is an everyday struggle. It's great to have positive views but I appreciate when people like Joe are completely honest about life and the struggles.
I feel like Joe is a grown man and should be treated with the respect and synergy that matches his attitude. He is very realistic about his lived experience and he is right to speak his truth in grieving this journey while surviving it. Joe - thank you for sharing. I appreciate you and I enjoyed listening to you deeply. You are a bright individual. And you have the right to state your opinions and your preferences like everyone else regarding how you interpret life.speaking to a therapist will help any outlook on life. I hope you develop a relationship with a good therapist to guide you in this experience. Sending love there is always hope for a happy life Joe ❤️
I appreciate your honesty, Joe please don't give up hope
Well he's 29 after all
He’s one of the realest and most honest people I’ve seen on this channel. He doesn’t allow society to sugarcoat his reality and tells you how it is straight up how it really is. He doesn’t want to be accepted by people who claim or act like his friend just because they feel sorry for his disability. And he’s absolutely right about relationships and not being like the others like the “famous TikTokers” with disabilities that have girlfriends. He knows that all of that is just for fame and clout and the girls are only there for those exact two reasons and that’s simply not what he would want in life. He’s just trucking life head on and I respect that.
This is the first time I see a person with this disease being so honest and not trying to embellish everything with false optimism. Very brave, love this guy
Joe is the exact kind of friend I need in life. He just cuts through all the bs. He seems pretty chill, too. I like his attitude and demeanor.
Yes to this interview. Yes to Joe. Thank you for being so honest and so completely normal. Progressive diseases are uniquely devastating, and it is 100% valid to experience anger, question God, and feel weird, misplaced guilt. In our culture of glossy, beautiful, and fantastical fakery, I appreciate this interview to the uttermost. Humanity is full of beauty, but also sickness. Joy and hope, but also sorrow and despair. We need each other, especially in the darker times. Thank you for letting people in, Joe. I’m praying for you. P.S. Thank you for giving us some insight into the caregiver role by having Chris help you onto your feet. Caregivers rock :)
What a brave intellectual deep thinking guy. I hope he gets into philosophy. He has a deep understanding of life from his experience.
Seeing this makes me realize how incredibly lucky I am to be fairly healthy and disease free. I can't even imagine the pain and anger this young man feels on a daily basis. I wish him the best. But I am at a loss as to what I could possibly say that could be seen as positive in this horrible situation.
Not lucky but blessed
Yeah I understand. But I guess sometimes not saying anything can be equally powerful as well. Just being a quite but empathetic listener can be helpful. I think that by "forcing" positivity into a sad situation can actually backfire. I have a friend with disability, and when he complains about it, the only comfort I can bring is just trying to be validating and accepting as possible. Sometimes even saying "man that really sucks" can be validating and give some relief.
@@Joseph__777 More like privileged. Blessed also implies someone else isn't blessed.
@@Joseph__777 not blessed, lucky or fortunate. If you believe in that kind of thing, we are all blessed by god, god does not exclude any of his creations
I love that Joe is assertive in his needs and guiding Chris in helping him. I also love his honesty about his opinions.
I love how honest he is about his opinions on life situations and his personal beliefs. He’s also very handsome and a seems like cool guy!
I think it's important to remember that even though disabled and ill people can accomplish so much and live wonderful and happy lives, that much of our lives are spent in some sort of pain. It's hard to talk about the illnesses that I have sometimes because others interpret it as whining or as being too negative, but I can't help that I'm sick and I don't exist to inspire others. Thank you for sharing your perspectives on this, Joe.
Joe I appreciate your blunt honesty. Some people want the happy disabled warrior, and that storyline doesn't work for everyone.
This is a really unusual video for your channel. Often you’re talking to children, and it’s important to be positive with kids. This is an adult with a brutal disorder and he’s being honest about how much it sucks, and how he feels, he’s not sugar coating it for anyone. It’s not an easy or comfortable conversation, but it resonates for me. I think these are conversations that need to happen in order for us as a society to grow past our immature reaction to seeing differently abled folks, and learn some compassion, and tact. I wish I could meet this man, be friends with him. Not because I feel sorry for him, but rather because he’s clearly gotten a really shitty deal; and I like his honesty. That said, it’s important to decide what you most want to experience and what you want your life to be, and then figure out what you need to do to to make that happen. You aren’t going to the meet the love of your life if you never leave your house, and there are all kinds of people, programs and adaptive technologies to help do that.
What a badass. I loved this interview. He got real and honest. I cried. I just hope that he’ll find happiness in life. If not now, I wish that for his future. You’re strong dude. Thanks for sharing.
Honesty is honesty....raw and sometimes not pleasant to hear. It takes guts to verbalize this.
If I could take Joe's pain away, in a heartbeat I would, I believe we all would. I appreciated his honesty and believe he deserves every moment of happiness and gratefulness that he can find. What a warrior
You would, but god won't. What does that say about the imaginary being so many worship out of naivety?
@@grattata4364 There is no god.
@@Soma_3046 Did my former comment suggest that i believe in god?
@@grattata4364 No not at all. Just wanted to underline that again.
@@Soma_3046 Not sure why there was a need to underline something so vague and unrelated that but sure whatever you want - Bird Aren't Real (look it up if you don't understand that statement)
My sister has cerebral palsy and now uterine cancer and it's good to hear from someone who is honest and doesn't sugar coat what it's like to go through illness and disability. Sad and so many unanswered questions, like "why me". It's hard when I can't give her any answers. She doesn't deserve what happened to her an neither does this young man.
Prayers for your Sister Amene!
Man I feel for him. He doesn’t bother sugar coating anything. I wish him nothing but the best.
1:35
Thank you SO MUCH. I have felt this way since my early teens. It is always so incredibly validating to hear people echo the feelings I’ve had for nearly a decade.
This interview was a tough reality check, it made me realize how some people are really living hell on earth. I absolutely appreciate Joe's perspective, I used to be religious, I now don't believe in anything if not what I can practically do to help people around me. I just rely on my own and other people's strength, something I can witness. I simply switched my faith on something I can do in real life.
Joe, if you are reading the comments, I agree with you: it is a journey you do alone, it is a pain that only you can feel, and it also a perspective you only have and, in this case, is reaching and touching a lot of people. I'm really sorry about your condition, I can't imagine it, and I only have words to support you, nothing else. I'm a person who relies on hope, and your realistic point of view was something beautiful for me to hear, it is raw and straight and I really appreciate it. But I also would love to say to you that we are all loser for some people, and winners for others. Be a winner for yourself. You are already a winner for people like me, because of your wise words. I really wish you the best, I wish you to be able to think and do whatever you want and can, and I promise you it is all a matter of finding your own strength: your body may be fragile but your mind is strong-willed and wise, it is your weapon in this life! Keep fighting! A hug from Italy
Ps: Chris, Thank you for another marvellous realistic interview, I'll never get tired to say it: youtube is filled with good content, but your channel is simply on another level of quality.
I see you!!
I really appreciate his honesty. We're always expected to be happy despite our disabilities, or to "not let it stop us", but sometimes that's just not realistic. My disabilities are much less severe, but I feel similarly- being disabled does suck a lot of the time. Thank you for being open and honest about your feelings and experiences, Joe. Much love to you.
His comments are so true: "Every mental health is a solo travel" totally agree, this interview is so honest!
Respect to him for keeping it real.
To the content creator; thank you guys so much for doing this. ❤
Kind spirits. The world needs to see and hear.
I would’ve really enjoyed for this interview to be longer, being in a completely different situation than Joe but i still have a hard time understanding the unfairness of life, or if enjoying it is worth it at all. Thanks for the videos
subscribe to my channel for more dialogues on a bunch of different topics!
My heart aches so much for this young man and all those who suffer from FOP .. I can’t imagine the psychological trauma of living with a condition that is going to take your life very young, knowing that there is no cure at the moment. He is such a strong young man, science needs to catch up on this condition. It’s heartbreaking to see a young man who can’t do all the things young guys do. Sending you hugs love and respect, I pray that one day they find a cure for FOP
Same here
I liked this interview a lot. Probably more than other videos. Most of them consist of people who accept their disability and see it as empowering in their own way. This guys is honest and shows distain towards his disability. He shows no bright side to his disability. When chris starts asking questions he immediately expresses answers that differ from most people I see. Example, the “friend” question. He IMMEDIATELY said it was cheesy and honestly I liked that a lot. He doesn’t want to lie and project some falsehood. He says “nah man I find that question cheesy. I don’t think this condition has a bright side.”
Very satisfying to watch, without the same forced optimism of some of the other videos. It's hard, but refreshing to see situations called for what they are.
I relate to what he says about every mental health journey, in the end, is a solo travel. It’s up to the individual to make their day present and meaningful. Really liked his honesty and his down-to-earth, factual manner, even if it’s not 100% my style.
I love his honesty and realism. He's got a great personality
This guy gave the hard take on disability and i appreciate the uncut honesty.
I respect and appreciate Joe. His strength in content of character teach everyone the great value of strong, genuine, people. You are here for a reason, Joe. So many people need to learn from you. Thank you.
Something about the way Joe said longing just really hit me. We all long for certain things in our lives but to have something and lose something and then live in a situation where grief and longing becomes an eternal cycle is unimaginable to me. Joe seemed like a very pleasant guy and I hope he becomes a RUclipsr, I'd give him a sub.
This interview is very special to me. I pass my thanks to this dude for showing that religion doesn’t help everyone.
For some, faith is the one thing that keeps them going. And for others, religion is uncomfortable and unhelpful. It doesn’t mean either side is wrong, it’s just a difference.
Personally, religion has helped me through some of my hardest battles, but I get so tired of so many people in my community telling me dedicated worship will fix me.
I never had a good relationship with God until I realized how personal and intimate it was. It's not about religion. It'd about spirituality for me..so I understand what you're saying. Don't let man ruin God for you. God Bless!
I like your story too!
I really like your comment, idk I feel like most others just try to really push that one side is wrong ,which you don’t and I somehow really appreciate that.
What a stunning person this man is
It’s all to easy to minimize the severity of disabilities. It’s important that people realize that these people are struggling, and despite that struggle they are able to persevere.
This is one of the best videos yet. Not to undermine ANY of the other participants and their stories, i love them all, but Joe´s raw attitude, his bitterness and sadness over it all and still being able to live through it, is just a pure sign of the strength a lot of people who has disabilities have. I am in deep admiration of his courage to still find some meaning in life despite his tough situation. And i wish him all the best plus that he will find at least an ounce of the wonderful joys that life still may be able to offer him.
We need more videos like this. Painting everything in a positive light is not always the way. For a lot of people, it's about accepting the reality, as brutal as it is, and then try to enjoy life when they can.
I majorly respect this guy's stoic approach to things, a warrior in his own right. Good luck to you brother
This channel is such a great thing. I'm left speechless after every video. Count your blessings, love those in your life.
I like how he is authentic, sometimes in some of these videos people are so positive when then shouldn't be it makes me wonder if they brainwashed themselves into that somehow, to not say something else. So I don't comment anything because I would say something negative. But this guy has a more normal atitude.
I find these 'positive" people a little deranged too. It is not sustainable, but of course we do not know how they are when the doors ate closed.
I used to wonder that too but I've come to know all sort of people over the years. Some people have money, family and friends and hate themselves, and some people are alone in the world, teetering on the edge of homelessness and you can't break their smile. I think it's all about the person and not their surroundings, and potentially even their afflictions.
@@YourInASoulTrap I already lost a lot of life. How much more do I need to lose?
For me based on allot of videos on this channel and also reading other people's comments, i like this video because it shows the side of the disabled community who knows how they feel and are annoyed with other disabled people guilting them to change their opinions because they feel their feelings got hurt. The amount of times i've seen them shout down other disabled people just because they don't pretend that they love everything about their life or that they're happy as they are calling realism "ableism". Why does their feeling hold more weight over others? Last time i checked they're all disabled so i don't get why allot of them have this arrogance about them telling others that they should change their attitude.
It's their reality and their opinions are shaped around it. They might call it negativity or "ableist" but it's their honest opinions based on their reality. Besides, if i was born in similar predicaments then i'm sure i'm entitled to feel the way i feel. Life's already inconvenient for them, why do they also take away their right to their own opinions, not even that they can have?
@@JoeSoochh hi Joe, I know this life can be really difficult. But just know that disabilities do not mean God is punishing you. Even though you may not feel it, God loves you and will walk with you in life. He gave you Jesus, His only Son. So you can hold on to that truth. Luckily, we can live in an eternal life of happiness with God in Heaven, free from pain. Thank you for sharing on this channel with us and have an amazing day Joe 💛
Only 11 minutes? This is one of the best interviews on this channel, I could hear him talk all day long. ❤️ love from Cape Verde
I love how honest this guy is. Lots of respect to him
I found out last year that I have a rare degenerative spinal condition that is inoperable. I’m 64 and did a lot of physical labor at my job until then. My condition is very painful and causes nerve pain throughout my whole body. It’s so depressing to think that things will not improve and I could possibly end up paralyzed. You are so young to be going through this, and your fortitude is amazing! God bless you. ❤️
That sucks, must be hard to go from so active, to so stationary. Wishing you positivity, and peace through this next stage.
I hear you same with my job as a Nurse Aide..my spine just keeps on doing things like the last few years the only unaffected part of my spine got scoliosis. So I have stenosis, tumor remnants after two spinal surgeries and radiation, and scoliosis. Whole spine is under assault…lots of nerve pain and it’s a particular bad pain it doesn’t respond to. regular pain medication…..but just when I contemplated suicide my doctor prescribed Amitriptyline…..within minutes that nerve pain subsided some..it was like being reborn in a way…so over the years I have the right dose for me and I take before bedtime because it makes you pleasantly groggy..if you haven’t had Amitriptyline before please ask about it..it gave me back my life I still have pain but it responded to my regular pain medication. The nerve pain is tolerable now I’m so grateful for it. I’m 67 btw. Hope is alive.
I'm sorry to hear that, but isnt being 64 a "consolation" somehow?! I don't want to sound insensitive, insolent or anything! also I think that especially during those conditions (a lot of) activity can help to fight/improve it etc!.
@@forrestcollective9184 Thank you.
@@kathyinwonderlandl.a.8934 I have tried amitriptyline in the past for depression but it messed my stomach up really bad. I’ve also used gabapentin but it doesn’t seem to do too much for my pain. Thank you for the tip.
Remember when RUclips decided to take down the comments on this BEAUTIFUL channel? So thankful to have the community back
ME TOOO or how else could I express my love.
It's okay to not be okay and I think we forget that. This interview is really refreshing. I have a chronic illness and well as mental disorders and my life hasn't been easy either. You do grieve a lot. It's nice to see people who are inspiring but there are a lot of people with negative feelings about what is happening to them and that's perfectly okay too. We're always pushed to be strong, positive and inspiring even and that's not always reality.
What I realized about SBSk is it didn't tell the whole story about people's lives. Without him standing up you would never know how his life sucks. I think hes brave for saying it like it is because you can see that Chris didn't want to hear it. It's not all happy - happy joy - joy when you're of special needs like this channel projects. There is a lot of pain in these people's lives that needs to be noticed. I just saw one girl named Sophia who passed away and she was brilliant. It made my hearts break when I found out.
Terrible disease….Joe is a real trooper, very genuine and laid back! ☺️ If I would have this debilitating disease, I don’t know if I would want to exist on this planet anymore!😢 Joe, I will check out your YT channel!🙌🏼 You are very well spoken and a true example for the people living with disabilities….No sugarcoating, just tell it like it is! God Bless you and I hope that someday love will finds it’s way to you…🇨🇦♥️🍀👋🏼🙏🏼
Such an immensely strong human being. He could’ve checked out so many times, but he hasn’t. I lost my mobility and my entire life for about 5 years due to a chronic back injury and I know EXACTLY what he’s talking about and exactly how broken you become. I used to watch out my window and cry watching everyone else living their life while I was in a dark hole and I wanted to check out so many times. You’re here for a purpose Joe ❤️
I think this is my favourite interview on the channel thus far. Joe is so forthright and eloquent in describing the harsh reality that so much is contingent on the capricious vagaries of chance, while at the same time counterbalancing that sentiment by noting the importance of personal agency
Joe is amazing for being this honest! It must be so freaking hard to live like this guy, there's no way to sugar coat it, he's great for telling it as it is. Thank you for ur honesty man, I'll subscribe to ur channel now!
This is quickly becoming a favorite channel of mine, learning about all kinds of people and their messed up conditions. I know it doesn't help anything but Joe seems pretty cool, the guy looks like good company
I really appreciate his honesty. He is entitled to feel about his disability in any way he chooses to feel. To me he is an incredible brave honest person. He has my admiration for all he has faced in life and has the courage to stand in front of a camara and tell his story.