Gaucher Type 2, Adapting to the Diagnosis: No heroics. Focus on quality of life.

"The best I could do as a parent is give her the best time I could in the time that we had."
The dad of an infant diagnosed with Gaucher Type 2 shares that he knew he wasn't going to be the parent who focused on a cure in her lifetime -- it is such a rare disease, that moves so fast, and there wasn't a cure on the horizon. Quality of Life was the goal.
If your child has Gaucher Type 2 or another pediatric life threatening illness, hearing from these parents may help you find your way and see that you are not alone. Visit www.courageousparentsnetwork.org for more videos.