Gaucher Type 2, Parental Bereavement: Now I can have the long view about research.

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  • Опубликовано: 15 окт 2024
  • "Now I can have the long view towards finding a treatment or cure."
    The mom of an infant diagnosed with Gaucher Type 2 reflects on how she focused on quality of life during her daughter's short time. But now that her daughter has died, she can look out towards the long road to a cure.
    If your child has Gaucher Type 2 or another pediatric life threatening illness, hearing from these parents may help you find your way and see that you are not alone. Visit www.courageousparentsnetwork.org for more videos.

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