Gaucher Type 2, Eating, and Decision Making around a Feeding Tube

"The doctor explained that not doing a feeding tube isn’t the same thing as letting your child be hungry. "
• Gaucher Type 2, Eating...
The parents of an infant with Gaucher Type 2 talk about how the palliative care doctor and nutritionist helped them understand how to think about a feeding tube for their daughter -- not doing a tube didn't mean she was going to suffer or be hungry.
The parents find fun ways to concoct high calorie pureed food for her to eat orally, and ultimately never had to make the decision. "You never know what you're going to do until you actually do it. We never had to decide."
If your child has Gaucher Type 2 or another pediatric life threatening illness, hearing from these parents may help you find your way and see that you are not alone. Visit www.courageousparentsnetwork.org for more videos.