The Heart Questions: Zecia’s Story, Gaucher Disease
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- Опубликовано: 2 окт 2019
- Nine-year-old Zecia has Gaucher disease, a rare disease where her body does not produce an enzyme to get rid of a specific type of fat. Only a handful of children in Singapore have been diagnosed with this ailment.
To manage her condition, Zecia requires fortnightly enzyme replacement therapy for life, which costs her family more than S$24,000 a month. Without treatment, her liver and spleen will swell progressively, affecting her health and life. Further accumulation of the fatty substance in her bone marrow and brain can eventually prove fatal.
Your contribution to the Rare Disease Fund could go a long way to alleviating Zecia and her family’s financial burden, giving her an opportunity to live a relatively normal life.
For more information about the Rare Disease Fund, please visit www.kkh.com.sg/rarediseasefund
#RareDiseaseFund
I was in tears .
she’s in my school lol ! she’s doing amazing
Oml same!
May God bless you Zecia ^^
you probably dont give a shit but does anybody know a tool to get back into an instagram account?
I was dumb lost the account password. I love any assistance you can give me.
@Omar Omari instablaster =)
@Otis Clyde thanks so much for your reply. I got to the site on google and I'm in the hacking process atm.
Looks like it's gonna take quite some time so I will reply here later when my account password hopefully is recovered.
@Otis Clyde It worked and I finally got access to my account again. Im so happy!
Thank you so much you saved my account !
@Omar Omari happy to help =)
9살의 어린소녀에게 글루코세레브로시데이즈 효소에 유전적인 이상이 생겨서 고셔병이 발병하였다는 사실이 정말 안타깝습니다. 9살 소녀에게는 치료를 견딘다는 것이 버거운 일이겠지만 이렇게나마 댓글로 응원을 보내고 이 응원이 힘이 되었으면 합니다.
Madam Sir,
We require injection for a 18 months patient on Gaucher disease type 3.
Hi my daughter was diagnosed gaucher disease
My daughter have same this disease she is 3 years old goverment of punjab pakistan funding her for enzyme injection which name is vpriv 1year treatment is about 18000$ to 20000$.
How's she doing now