"Dear Scleroderma" Chanel's Story
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- Опубликовано: 16 окт 2022
- "Dear Scleroderma" is a documentary series that portrays the physical, mental and emotional struggles of Scleroderma patients who are battling this difficult disease.
Scleroderma is a rare, incurable, autoimmune disease that causes a hardening of the connective tissue and can cause a wide range of life altering symptoms such as: difficulty swallowing, painful tightening of the skin, painful changes to the muscles and joints, difficulty breathing, painful sores on finger tips, and many more. When internal organs are involved this disease can be life threatening.
Awareness is crucial on the road to finding a cure. Please share this video and help educate others and inspire support of scleroderma research!
For more information about scleroderma and to support Project Scleroderma's ongoing efforts to raise awareness please visit: www.ProjectScleroderma.com
To support scleroderma research please visit: www.srfcure.org
My mother lived and died with Scleroderma. No one ever knew what I was talking about
"Taking shower and pulling out chunks of my hair" and "tired all the time". Yes. 😢
You are so strong and so inspirational. 💪
When I got my Scleroderma diagnosis, I tried to do everything to disprove it. Be anything else, I thought. As a single parent with two kids, I begged..." Please be anything else." I understand that depression that comes with having the diagnosis...you are a really inspirational person. Your words inspired me and give me hope (not hope to heal, but hope that I can be happy and live with this).
Please scientists find a cure or better treatments! 🙏🕯️ There are more and more people each time with this terrible disease.
I too have MCTD with the same diseases. … it attacked my lungs and now I have pulmonary fibrosis… the hardest part is ppl are uncaring because you don’t look sick
It really is cruel that they don’t believe you or think we exaggerate
Yes so true e😢
Is hard to see à loved one .sick😥🙏🌺🌻
It's a horrible sickness suffering it's not nice I hate that word of that sickness as a Mother I went through that it's horrible with my daughter suffering no cure
Keep your head up u r beautiful in strong I also have scleroderma im 37 with five children
Yay Chanel. Such a nice person.
Love love love
Just watched your video and I'm inspired by your approach to this disease...keep pushing, keep sharing and keep empowering ❤
My mother had Sclerodema. She died and now I wish they would discover a cure for it. No one should ever have to experience it.
As soon as I saw you, I knew you were the tube -fed wife. You're so beautiful and I followed you for a long time ❤
I remember reading her blog when I first was diagnosed with MCTD. It definitely helped me through.
What's her blog? Do you have Scleroderma too?
Warm regards. I have limited Scleroderma.
Please scientists, createe a medication for our skin!! We could remain active despite the disease. A medication that controls the collagen over production. Please 🙏🏼🕯️🕯️🕯️🙏🏼
Why there's no a cure? But Why there aren't yet better treatments!??? Why do we have ti suffer tooo much? From this terrible, crazy, horrible, killing, limitating disease.
😞😢
Please scientifics, pharmaceuticals, support us, we want to live instead suffering. 🙏🏼🙏🏼
It looks like you are in Seattle area. I am also and I have limited scleroderma. With fibromyalgia. I am always looking for a good rheumatologist. I’ve seen someone at UW but wasn’t pleased.
♥♥♥
how old are you? can you walk us through your journey how you found out? im nervous
How bad were your levels?
When the body says no - gabor mate and neurofeedback
There’s no treatment. It’s a complete joke. But she’s amazing. I’d like an update! How do I find her channel
It's not a joke there is no cure for it. My wife is also suffering from sceloderma
@@ganeshnasina7291 I think she meant that it’s a joke that the doctors haven’t figured this out when there should be more focus on finding what works
Steem cell transplant
@@manyaofficial684 can you tell me more please. What country do that therapy?
I am from Greece I diagnosed 2020. I didn't hear that here in Greece
Chanel you are beautiful. Beautiful eyes
What is the treatment?
Incurable
I understand autoimmune disease sucks!
So what the heck is IT? smh
Pᵣₒmₒˢᵐ