Trust me from experience it's heart breaking and frustrating. I've never done illegal drugs, I don't drink and, thanks to the drug heads, doctors assume were all drug heads.
I AM!! Every month by my pharmacy. My Dr is afraid to prescribe what is needed, Florida not only has the PDMP but NarxCare which has access to your medical records (HIPPA?), Dr's you see, meds you're prescribed, filled and where. If you use a different pharm because yours is out you run the risk of being black flagged and being prevented from getting ANYTHING. A lot of hospitals are no longer using pain meds after surgery, imagine that? I could go on but this is long enough...
Everyone in pain is treated like an addict. Opioids are for moderate to severe pain. Apparently they think nobody has moderate to severe pain any more. I stoppe going to the doc or ER for excruciating migraines years ago. I can't deal with their abuse.
Does anyone else dread going to the doctor, because you feel like they’re judging you? I cringe every time I refill my medication. At this point they have cut it back to 1 pill every other day... pain relief for 4-6 out of every 48 hours. I wonder how many people could function if they felt the intensity of pain that we feel!
I’m so sorry that this has been happening to everyone for the past few years....And the anti drug folks Often don’t realize that people aren’t able to go to multiple doctors anymore to get multiple prescriptions - there’s a database that SHOWS All opiate prescriptions and you aren’t allowed to do that anyways!!! The new “belief” sold to us is that only “hospice and terminal cancer patient” should be using opiates at all...Such idiocy. It’s absolutely inhumane. Alcohol and THC are so incredibly inexpensive and yet so incredibly mind altering at the same time. But a chronic pain Saffer gets treated as though hydrocodone or the weakest version of Percocet is = to High dose of morphine or fentanyl. And - in California where I can place an order right now and go down to the marijuana dispensary and get whatever I want recreationally IF I could tolerate it..... ABSURD!
Oh yes Melissa. I went to the ER a few months ago with a fever, flu symptoms rapid weight loss, and never have I ever asked for pain medication. The doc looked at my chart and asked me why I take oxycodone.(I have advanced RA). They discharged me immediately and sent me home with information about Drug and Alcohol treatment. I had a serious staff infection. Pain patients are dying from lack of treatment and sociopolitical pressure. Hang in there Melissa. You are in my prayers.
Keep a mask like Jason 😷.. k to his low back, give him a taste, just don’t waste him, when he in that pain he’ll be lookin for his own way out….and maybe think about his patients
"We (patients w/chronic pain)are not ADDICTS! We are patients who did NOT ABUSE & who are in great pain as a result of this "debacle"! When addicts use drugs, their lives decline. When chronic pain patients take their medications their functionality & quality of life excels!
Exactly! Well said! But even if you look good & put on makeup, the Drs just say “Oh you don’t look sick” Yet I have proof of my injuries & my health problems? I’m just being treated like a paycheck.
@@lynettelaroche8868 I am 81 yrs old as of 12/11 and I am so SICK of hearing that #1 I don't look sick and #2 that I don't look a day over 69 or 70 so I am not treated with the respect due a crabby old lady in pain!! I haven't used makeup or cared a damn about my looks since I was taken off meds! However, after 2yrs of horrific suffering & suicide attempts (not very good at it or the pills just don't work), for some unknown reason I am now Rx'd Norco and sleep med. Before they said they were afraid to give them to me because they were afraid at my age I would fall. GO FIGURE!
My doctor prescribes me painkillers. But drug stores will often not fill out the prescription. Just outright refusal.And make me feel like I am a bad person, a criminal. I've worked my whole life, served my country and obey the law. It feels really unfair.
I've had that happen at CVS they said I had to get ALL my RX's filled there to get schedule II & explained I just got this AFTER refills they said well to bad go there come back here next month with all of them, I didn't. I bet it's some idiotic ratio of schedule II they are allowed to fill monthly. Damn nosey government how many ppl eat &/or drink they self to death every month they are grown adults. Nixon THE CRIMINAL war on drugs is keeping the drug cartel in business I hurt so bad but quit getting pain meds from doctors I'm working on an intrathecal pump that administrators snail toxin into your spin cord to block 🚫 pain I cannot take it 15 years at 8-10 24-7 because it even wakes me, something HAS to be done. Why are we allowing this they're a lot of us & a few of them.
And that our government lied with those numbers and conflated prescribed deaths with the much greater number of illicit deaths to make it appear as if prescription deaths are the driver of this, the news guys repeat this propaganda without checking with advocacy groups who have the correct numbers that show that this is crisis is driven by illicit fentanyl and it has NEVER been a prescription pain med issue! Our government lied for greed $$$$
I have cancer and have a lot of pain in my back and feet. When I called to get my oxy refilled before a holiday weekend they didn't want to give it to me because I had 4 pills left😒it's one thing if you medically don't need it but when you have chronic pain due to things like cancer we are the ones treated like addicts🥺
"That's Why You Sign a Pain Agreement " MRI, X-ray can show what's really going on etc ..... "You Law Makers , 'Come On Where All Gonna Die Someday,' DON'T Make These Pain Patients Suffer With Your Controlling Laws. IT'S INHUMANE!!!! SMDH👎
sweety love this is absolutely true to some extent but not 100% foolproof as with back pain and discs it takes a very long time for any significant physical proof to show up on an X-ray machine and I know I am proof of this and neither does fibromyalgia that I have in fact it took me two years to be diagnosed correctly because they can only go by what you tell them you feel so that's not true in many cases
@@rluc3634 oh OK. Well i hope your doing good after being diagnosed w/ fibromyalgia, my aunt had that she said it hurt when someone just touched her. God Bless you on your journey to Wellness & living a life without government getting in the Way of your Treatment. 💜📿
These contracts a pain sufferer is FORCED to sign are tyranny in and of themselves. Please note these contracts are all written for the benefit of the Doctor. Nothing in those contracts allows for the one who suffers severe pain to have ANY leverage to endure they are treated properly.
Notice he said “people that abuse” NOT responsible using people. I would love for someone to come to my home and interview me. Let them see the reality. I used to be, what my husband and others have said, a very attractive woman. I used to never leave the house without makeup on and hair done. I haven’t been able to get out and get a haircut in 2 years (RUclips has pretty good videos on cutting your own hair.) If they could see me now. With greasy hair because I can only shower once or twice a week. And that’s a really big deal. To put on clean pj’s and go back to bed, on clean sheets if I have the energy to change them, which usually takes me almost an hour because of the pain and breaks I have to take. I live in what I call my “pain cave” They need to know how this has effected marriages (mine’s been up and down, with a few separations in 27yrs.) They need to know how families treat you like you no longer exist, because you are unable to go to family functions. How it feels to spend the holidays alone now, because you’re no longer included, or invited. Not even a call to wish you “Happy Holidays”. If you’re really lucky, you might get a text on your birthday. How your husband comes home after a 12-14 hour day at work, and the dishes aren’t even done. And a home cooked meal?? The closest thing to that is pizza delivery. The look of disappointment on your husband’s face because you promise him you were going to try to get out for a bite to eat. Even tho he says he understands, just knowing that you’ve let him down, again, makes you think, how much longer can you go on like this. Oh, don’t forget to mention the days like today, when the pain is so bad you’re vomiting, and thanking god that the bathroom is only 5 feet away. And also, the times your husband is out of town on business, and your pain is so bad you want to go to the hospital. But, you can’t drive yourself, no family members are around to take you, you don’t want to call for an ambulance, so you call for a taxi, but you have to cancel it because you can’t make it out the door. Fuck you, CDC and DEA, come and spend a week with me, and see if “taking an aspirin” is going to help you.
Reading your piece was like you opened my head and read my mind. 4 yrs of neglect. I have stopped all care for my condition. The quality of my life leaves me not wanting or seeking quantity.
The thing is, regulating prescriptions for legit chronic pain patients, does not stop people who recreationally use opiates. People that recreationally use, are still going to do what they need to do to get their High, whereas those of us with chronic pain are just stuck with whatever dosages our doctors prescribe us.
You got it Friend-feels like we are living in the Middle Ages with superstition running rampant.Yes we had a government run by a lout and his imbecile family only to find our state governments full of fascists, viz. Trump in the former case and Missouri government in the latter case.
Patients need to change their expectations about living with pain??? That is utter nonsense. These folk torturing Chronic Pain Sufferers need elimination. We have a right to defend ourselves and this should absolutely fall into self protection.
@@finchrollah8656 Two Witnesses foretold in Revelations Chapter 11 are soon to take center stage. They understand what Severe Chronic Pain Sufferers are going through AND at least one of them HATES that treatment enough to campaign against it. No weapons forged by man will they need or use. Their words are more than sufficient. Once their time begins there will be no do-overs, no take-backs, it will simply be time for the tables to turn. This is not a guess.
Exactly! If cognitive behavioral therapy is the "miracle" they say it is, then perhaps the opioidphobes should go do cognitive behavioral therapy to change the way THEY THINK about what another person puts in their OWN BODY. Much love and support to all of you out there living this nightmare.
Theres plenty of help out there for people in pain! I had my Dr install a Stim-Wave for my neck pain, plus he gives me oxycodone 15mg x 5 and óxycontin 40mg ER X 3, That's plenty for my pain, plus I'm having him install a Fentanyl Flowonix pain pump and also lm getting a SCS H-10 installed in my spine! Some Drs don't give much on pain meds, so find a new one, but pain pills are a small part, I use Hot pain patch and l use Gabapentin pills for pain, plus I use a $5000 H-Wave for tight muscles. Plus I use a back maxi rub massager, find on eBay for $30 to $50 nicely used! Plus Hemp and Chai seeds mixed in yogurt for inflammation, so if just pain pills good luck, we have so much more to use, that gentleman
So true! I used to be able to function, but I'm practically bed ridden now. I've had nerves burnt out in my back and nothing helps. I know exactly how he feels.
Same here. I can't sleep in bed thanks to a botched spinal cord surgeon. Now doctors only want to do a spinal cord stimulator...i had one and it gave me hell so it was removed or, shots that have never worked. I'm stuck in a recline and most days I'm in so much pain I hate having to move around.
Same here, I cant go on like this anymore. Since they cut me off pain medication I went from being functional to bedridden and in a wheelchair , started smoking again as I don't want to even live anymore. In my opinion this is a violation of my constitutional rights as a human being to force me to live like this. Maybe we should file a class-action lawsuit. I thought there were laws against cruel and unusual punishment. We are being punished, and our doctors are being threatened, and jailed, not for anything we have done wrong but for the actions of others. Is this right to do this?
I am so sorry this happened to you, it’s not right and I want you to hang on because we are working hard to turn this thing around and you need to be here to appreciate it.
@@shermac246 It is not just me it is happening to millions of chronic pain patients. They put out propaganda also as most people who die do not die due to the drug but because they are mixing them with alcohol and tranquilizers, and taking way more that prescribed. More are dying now due to adulterated pills laced with Fentynal and now something called tranq. What are you doing to try and turn it around? We do not get high from taking them as your body builds a tolerance which is one thing that is bad about them. Actually when I first started them they made me feel very sick and nauseated . I just wish they would find something new that works.
@@Thundralight you don’t have to convince me of anything thunders, I am also a pain patient and like so many of you, I was already traumatized & mistreated prior to the 2016 guidelines, it just got exponentially worse after the government got the propaganda full steam ahead because so many greedy grifters got on board like Kolodny, Chou…you know the story. Since 2016, I’ve been deprived of IV pain medication after and a grueling and excruciatingly painful cardiothoracic surgery that left me screaming and moaning in-patient for two days in another state an hour plane ride away, all alone; I’ve been force tapered twice, the list goes on, I’m so heartbroken seeing all your stories and am so sorry for all the suffering. I am an old political organizer, in real life which was my career before I had children and I happen to believe things are beginning to turn a bit for us, it’s very slow but it’s happening because I see glimmers of it in the public discourse. And I do know the suffering but also know things can change overnight, after my second force taper in 8 months, I had little left but thankfully I didn’t do anything permanent because I was able to find a compassionate provider just when I was at my very worst emotionally. I don’t want people to feel depressed after anything I write so I want to let people know that if anyone is out there at their lowest ebb, please know things can change, you can’t predict the future; I never would have predicted what happened to me which took place within about 20 minutes of meeting someone on Twitter who happened to have a name of a prescriber where I live who only takes 30 patients and happened to be taking some when I needed her help. This happened so fast and that’s how things can change for many of us so please keep fighting however you can and if that’s just reading these words than that’s awesome. Take care
omg like hearing my own words...pain feels like an abscessed tooth in my back..nerve and chronic muscle pain...our pain makes us prisoners....the long years of pain that I have been fighting have me exhausted and drain... leaving me with little fight left...I pray for just one good day a year..btw...that rubber stamp...on the forehead...I think I have one too...God Bless all of you who are suffering...I pray for you to have peace of mind and pain free bodies
Same here. Im 38 and walk around like a 90 year old. I had an elderly gentlemen tell me "Wow, finally someone I can walk faster than." It wasn't funny to me considering the pain I was in. It is literally like being in a prison. My mind wants to do what my body no longer can.
THIS MAN SHOULD NOT EVER HAVE TO SUFFER SO MUCH BECAUSE IF SOMEONE OUT IN THE STREET SOME PLACE. STREET ABUSE DOPE JUNKIES HAVE DONE US WRONG ITS OUR RIGHT TO LIVE A BETTER LIFE. SUICIDES ARE BECAUSE WE ARE IN NEED PAIN PATIENTS SHOULD NEVER HAVE TO GO THREW TH IN S BECAUSE OF A JUNKIES DOING BAD THINGS CHRONIC PAIN PATIENTS ARE BEING ABUSED BY THE BACK ASS LIES.
I’ve seen so many pain patients desperate, faking serious addictions so they are able to go to the methadone clinic and get painkillers (they give those addicts literally as much methadone as they want). It’s twisted that they have to do stuff like that or risk their freedom going to the streets
No actual pain patent wants methadone We need meds that work. I'm surprised there hasn't been more suicide because living in pain is like being torcherd to near death everyday
So sad, and covid has only made things worse. I wish all of you the best. I am in full-blown tears because it wears on you after 20 years. I feel like a nuisance, a burden, yet this runs in my family and it’s hereditary. I had to take care of my sick mother for almost 10 years and I neglected myself in the process. Worst mistake I ever made. She’s well now, but not the same as before sickness. You are all in my prayers and I feel for you. It’s good to know I’m not alone
Every drug needs to be sold the way alcohol is sold. Their prohibition is just causing immeasurable suffering for those with addiction and those without.
I’m going through the same exact thing right now. I was put on a pain pump 5 years ago & am now bed ridden, walk like I’m 90 yrs old, limping, can’t do any type of activity. Even going to the store 15 min and I’m in excruciating pain, I need a break. I not only have chronic back pain for 12 years but I also suffer from a blood cancer called Myelofibrosis. It causes me bone pain, abdominal pain, enlarged organs, severe headaches & anemia which also causes extreme exhaustion. I also have arthritis now as well as high blood pressure & high heart rate. I do everything my dr wants me to do. I just had another 3 rounds of back injections(steroid, cortisone & facet injections) My back locks up on me at times where I can’t move & Im screaming in pain. I’ve been with this same Dr for over 10 years & have never failed a urine test or saliva test. I’ve had multiple tests done where it shows proof of my problems/symptoms. I just had my 5th bone marrow biopsy as well. Like this man said, the abusers are ruining it for people who are really injured, sick & in pain! I’m scared to death to die suffering in pain, and death is just around the corner for me. We are dying a slower death for sure. My heart just can’t take it anymore.
@@jeffreycabanellas8113 No I still have my pain pump , but my meds have been cut down, so have my breakthrough meds. Currently I’m dealing with ofher health problems related to my Cancer. But soon I will be having my surgery to replace my pump. They are only good for about 5-6 years, mine is coming up on 6 years in December.
@@lynettelaroche8868 Good luck and you have my prayers/I will suggest Eastern yoga studies on the structure of what we call the”self “as in point of fact the self transcends our physical bodies and the very act of psychological transcendence can helped us endure suffering if not pain.I refer you to Arsha Bodha of the Vedanta Society.It is free and should not offend.I am not a religious nut but thought I might share my last best hope.Peace
@@lynettelaroche8868 I guess you tried edible the?Small doses can help with appetite and it can relieve malaise and distract your mind from the pain.I personally dislike it:/should you try it.check first with your doctor.I mentioned it but do not recommend it.
@@jeffreycabanellas8113 Thank you! Yes I’ve tried edibles. Didn’t help my pain & just felt groggy. Didn’t like them either so I just take Benadryl if needed for sleep. Just helps a little. Also I am currently in physical therapy & have started yoga👍
I can’t tell you how frightening my last 8 years have been hell. I am 74, have a large loving family. I want to die. Sadly, my condition won’t kill me! This is criminal !! Our government has no business in the health care system! If we sufferers can’t even fight for ourselves! We’re suffering too much to fight!
I have CRPS and live with horrible burning crushing pain every day. Us pain patients suffer more than anyone should have to. They are going to see a large rise in suicide deaths amongst pain sufferers who can’t stand the pain and who don’t have the strength to fight the medical system any longer. So in making ignorant regulations they are killing the innocent trying to save the folks who are abusing the system. It’s not right! As pain patients waiting for a tomorrow that may never come when yesterday is to late!
4:39 .... an excuse? NO NO NO Lady... pain patients have a very long history of being guinea pigs for so many procedures, numerous surgeries under our belts, numerous injections, numerous "alternative" therapies that haven't worked... by the time you need 24/7/365 lifelong opioid care you've exhausted ALL options.
We also have CT scans & MRI's that SHOW and prove what the hell is going on. In my case: at 20 years old I was diagnosed with DDD, major back surgery, major back surgery again at 25 years old with over 100 spinal injections and "alternative" therapies prior to the 2nd FAILED surgery and my 3rd back surgery left me with more pain than I'd ever imagined (anterior and posterior spinal fusion at 27 YEARS OLD). Formerly diagnosed at 30 years old with: 1. Severe Degenerative Disc Disease L1-L5/S1 2. Severe spinal stenosis (compression of the fluids in the spinal cord) from L1-L5/S1 3. Hypertensive Crisis Pain Patient (pain so severe it makes the patient immobilized with extreme pain, so extreme that my blood pressure reaches levels of 140/220 and I'm 5'8" 110 lbs 😮 do it's NOT from being overweight or having high blood pressure. 4. Osteoarthritis of the spine
I have degenerative disc disease, 2 bulging discs for over 15 years. I have been on Hydrocodone that entire time. I have never abused them, gave them to people or sold them. Now, because other people abuse them I am the one getting punished. Trust me, the addicts are still getting pain pills on the street. They arent in pain but the people who depend on these to have somewhat of a quality of life are just forgotten about. My doctor stopped giving me my meds cold turkey with no substitute or anything. So, not only was I in constant pain but then I had to deal with the withdrawals. I haven't been on my meds since August. I cannot find any doctor who will help me. I no longer can do family outings because after 15 min or so my back hurts, pain shoots down my legs and then my legs go completely numb. I have gained about 30lbs since Aug because I cannot enjoy doing much activity like talking a simple walk. Plus like this gentleman said, the guilt you have of not being able to help around the house is tremendous. My mother has to clean, cook and run errands while I lay on my side to ease the pain. It 100x makes you feel so useless. This is pure torture and something must be done! This is NO way to live. To those who dont have chronic pain, you will never understand the struggle. Patients who take this medication, do not get this "high" that addicts get. We use it for one purpose and that's to try and give the best life we can. Do we not deserve the same quality of life as non chronic pain patients?!?
@@pursedelighted9020 I am being cut off from pain meds suddenly because I have a positive urine test. I don't abuse anything, use nothing illegal. Nobody cares what I will go through with withdrawal and back to severe pain.
Just got fired from my dr yesterday and don’t have a clue why. Just a letter saying that they will no longer treat me only four months out of surgery. Maybe they picked up kratom or thc from cbd oil. Not sure but there shouldn’t be enough thc from that stuff to even show up and kratom is legal.
@@skidmark7845 My positive test was probably due to CBD oil. I was tested again, found clean, and my meds were restored for a couple of months. Then the Doc again balked and held back my meds, demanding another urine test. I complained that I might not survive the withdrawals, as I had a bad heart. Doc relented and gave me back a one month prescription, but I have to go for yet another urine test and it had better be clean or no more pain meds! The trouble is, I have never been in any trouble. I have never abused drugs or alcohol or prescriptions, and I don't have any bad records. I told them about the CBD oil, but they denied that it could trigger a positive test. This system is cruel. They say that the active ingredient in Robitussin greatly helps the withdrawals. I keep Robitussin gelcaps in my house just in case I lose my meds, which can happen again at any time.
No pun intended, but I do really feel your pain and the pain of all of us chronic suffers. Before the crackdown I had a "life". I was able to walk, drive and get the necessities of life done, with tolerable discomfort. Now I too am bedridden. Shame on our legislature for committing such political malfeasance!
How ya doing brother? I've had multiple back surgeries and the last 1 i had they fused my lower back together. They put in disk spacers pins plates rods and screws. I got all the pain you have bro. I can't hardly do anything and on good days i walk with a cane and my bad days a walker. I live in indiana and doctors here help you with your pain. To the people who say it's an excuse go through the surgeries that we had and live with the pain we have to live with you would shut your mouths and cry because the pain your in and you would expect you dr to give you something to help.
I'm in bed crying and moaning. Intractable pain. Lord please take me gently in my sleep. God Lord Holy Spirit help us all please. Please someone pray for me to keep the strength to go on.
Please change doctors immediately. I would highly recommend an implanted hf40 nevro pain stimulator,as well as,another pain management doctor. Run dont walk. You deserve quality care.😊🎉❤
Thank you for interviewing a chronic pain patient. This is not within our control. It's pain that you wouldn't wish on your worst enemy. No one knows UNTIL it's YOU. Then it's too late; good luck getting any real quality pain medication to help you. Steve should be on 300 mme/ day of pain relief per day and yet here he's only on 90 mme/ day or less per day. 😢 Of course he's bedridden. Intractable pain patients should've been grandfathered into and been exempt from this crap going on in the DEA and CDC/State laws 🙄
this is what I was afraid of. Because some people are prone to addiction and because of some greedy doctors, you have the majority now have to live with severe pain. It's less then 10% of people who take pain medication that have problems with addiction. Even Percocet is restriction now. I took this over 35 years ago, many times after surgery and never had an issue of becoming addicted. Once I recovered from the pain, and the prescription was finished, I didn't crave more of it. Anyone who had has acute and/or chronic pain that is severe enough, you WILL eventually go insane and will not want to live anymore.
The way 'health practitioners' make you feel guilty for having pain and needing meds is absolutely horrible. You can get help for diabetes and heart conditions, but not for chronic pain. Go figure
I know two people that ended their life because of this . Imagine that healthcare professionals that don't do pain guess they want healthy patients . I don't have long myself if something is not done soon . Obumer care was bad this is the nail in the coffin . Germany did the same with the disabled and elderly in WW2 . No compassion no mercy .
Yes, the Nazis killed the developmentally disabled CHILDREN first by starvation or poisoning, then the mentally ill the same way. They even had propaganda fliers distributed in movie theaters calling them “Not worthy of life!”. A drain on government obtained tax money that the wanted to put into the war effort. Seems it always comes down to money, and making the vulnerable communities suffer first for it. Unless of course they can use them to enrich themselves, as they are trying to do with poor whites with addiction.
I struggle every month trying to get my pain meds. I do urine tests monthly and, have had recent MRI showing my spine is damaged beyond repair. Yet, the pharmacies give me hell refilling and, my doctor wants me to do shots that have proven to not work multiple times. Not all of us are drug heads. I wish I didn't have to take the meds but, I have no choice. The actions of the drug heads are taking a toll on us who honestly need the help. I don't go out anywhere anymore. I can't stand, I don't go om vacations, I can't sleep in a bed, I can't do the stuff I use to love. I'm stuck sleeping on a recliner and I go put maybe once or twice a month.I wish politicians had to feel our pain and, then be denied the meds so they can see how it feels.
I have issues with every single refill. It's ridiculous. Something like 2-8% of people become addicted when they have prescribed opiates. The other 92% of us have to suffer because of that and the new rules have done nothing to reduce the opiate crisis.
I have issues almost every month with either my pharmacy, my insurance company or my prescriber who’s narcissism is off the scales and she’s so out of touch that she often blames me when I have trouble with the above and she will threatens to drop me for it which is completely out of my control; or she asks me to cash pay so I don’t have to deal with insurance companies; yeah, as if I have that kind of $$$; all of her abuse does wonders for the ptsd she diagnosed me with due to previous medical trauma thanks to 2016 CDC GLs. I often want to die instead of deal with the abuse and when I share that with my husband, he freaks out and shuts down, but the anxiety wears me down
How does the doctor/patient's Medical Care for horrifyingly Dieseases become a Public Opinion, to judge, and decide who looks like thier in pain, without Medical Education now in the position of practicing medicine? Hospital's preforming surgeries, post-op, send the patients home without means for pain control... C-SECTIONs, Appendectomy, Gallbladder, Hip- Replacements.
The crackdown on scripts is due to the wrong focus. Prescriptions are not the problem. The problem is *illicit* drugs, not prescription meds. For God's sake what the hell is wrong with the establishment? Pain patients aren't addicts. Stop this madness.
Brutal watching journalists feign concern. “What would you tell lawmakers”…Caught in the middle”. This guy needs help. Life ruined by back surgeries then can’t get the only thing that provides any substantial relief by the very same practitioners that put him where he his.
I feel for Steve. Agree with the pillow between the knees. Pennsylvania is now doing the same thing. They want everyone off opiods. I've been on the same dose for many years and am already pretty much bedridden. I have advanced RA...Sometimes the pain is so horrendous that you just pray that you don't wake up. Now I guess it will be more than sometimes.Prayers for Steve and all of us who are suffering from the "opioid crisis".
I think i saw this guy talking about Kratom. He said it made a big difference. If it's legal in your state, look into it. Make sure you find a reputable company.
I tried Kratom . Only certain strains work effectively (usually a red strain). I found the capsules are best because you don’t have to taste the stuff that way. It does require as many as four to ten capsules and you have to start off low levels to see what works for you. If you get the powder (which basically is ground up leaves like what’s in a tea bag), you have to mix it with something to hide the taste. I found chocolate milk or ensure drink or even coffee works best. It works, but you just have to experiment with it and give it a chance. Some people get good at it and start selling it in order to pay for their own. Side effects are way less than opioids but it take a little longer to work.
Being a cancer survivor plus having epilepsy for over 34 year's and having extensive medical documentation I cannot get prescribed the benzodiazepine and Narcotic meds I used too. I was moving normally as I could, excellent BP, 99% pulse ox, just some issues with constipation. It was Duragesic/Fentanyl patches prescribed from Pain Management and Ativan. I did not recklessly use any meds, but now I am Suffering...No pain meds and low Ativan to cover Anxiety and Seizure's. We were more advanced 20-30 year's ago with pain management than now. ..where is the best state to live in for a person with debilitating pain? It seems to be a state issue....this is ridiculous...I Pray for those Suffering and Advocacy Groups. This Shouldn't be.
My best friend and I both have chronic pain. She had decided to get off of narcotics in 2020 after being prescribed narcotics since 2004. She had to move to Syracuse, N.Y after her mother passed away and decided to go off of them. It ended up being a mistake because when she tried to find a doctor to get back on she was shut out because Syracuse is a hotbed of drug activity. She's moving to Texas where she will be given a pain pump. I pray that it works for her. As for my chronic pain, I'm on Suboxone. It relieves about half the pain but better that than none at all.
Always. Ask any black person. Now thousands of chronic pain patients have died but the government and media pretends we don’t exist because they want their giant money grab. Gotta pad those treasuries and pay heroin addicts that never touched a pill!
GREAT NEWS JEFF SESSIONS IS GONE THANK GOODNESS THAT IDIOT WAS THE ONE THAT STARTED ON THE SICK CHRONIC PAIN PATIENTS CANCER PATIENTS ALL OF US TAKING HEAT OFF THAT ASSHOLE. ( JEFF SESSIONS IS GONE)
@@steveglass8906 And yes true and that JEFF SESSIONS WAS RELENTLESS ON HIS STUPID ATTACKS ON CHRONIC PAIN PATIENTS AND CANCER PATIENTS AND ALL PATIENTS THAT SUFFER GREAT PAIN FROM SURGERY S THAT FAILED AND SO ON
JUST A HEADS UP . I NEED TO KNOW IF NAYBE THINGS ARE GETTING LESS PRESSURE ON THE CHRONIC PAIN PATIENTS AND CANCER PATIENTS AND HAS IT LIGHTENED UP MUCH? IVE BEEN TAKING A BREAK THE STRESS MADE ME SO SICK THAT I WAS ADVISED TO TAKE A HEALTH BREAK. SO IM JUST TRYING TO KEEP IN TOUCH WITH THE HUMAN RIGHTS GROUP AND IM TRYING TO UP DATE YOU ALL OR JUST ANYONE THATS LISTENING . IF OR HAVE ANYTHING GOT BETTER AT ALL
Wait , steve has long hair and facial hair like me. I was told that meant I had stopped grooming myself , big red flag for abuse! I told them No, it just means i'm an OG Hippie and that means NOTHING!!!
I have lost all respect for doctors i had rods and screws put in my back 4 years ago and not a single dr its 5 now, would help me,,,,the last one i went to, a pain management dr,,,,,where i could hardly even make an appointment they argued with me about i had to have a doctors referral i said i did , went to see him he asked what do i want, i said to quit hurting he said go back to my shots at 900 per visit , i gave up, that was last summer , , its crazy that a 62 year old man cant be trusted for anything,,,i hope they have to go thru what we have to
I'm living the nightmare left by Dr. Jayen H. Patel. He never connected the pain pump & kept forcing medications into me for 10 months. It's been over 3 years of absolute nightmares. The pain is beyond words. 💔 I'm judged. It's sad that we, the patient gets treated like a druggie. But the doctor gets away with this. I'm not tge only patient he's done this to.
Before the cancer diagnosis , i asked about small dose, 1x 10mg opiod, for breaks from the pain. They all say, take a tylenol. Most of my dealings with doctors and PAs have to do with tests, not therapy, cures or relief. Imagine having level 8-20 varying pain and the doc justs sets you up with tests. No relief. I felt like I lost the opportunity for a painless death by surviving my operation. I told the medical staff that i would start drinking alcoholic drinks to smother pain. I prefer Taylor Port wines.
Either fake an addiction and get suboxone or become a criminal like the rest of us who would like to survive without agony everyday. Free Men Dont Ask. Stop asking for permission to something that will never be granted. Make it happen yourself and be ready to fight to keep it
I have cancer, just had an operation. Sent home from the hospital with a blood filled cath bag after 12 hours. No new meds. When I was asleep in surgery i recieved Fentanyl and another opiod. In the short hospital stay of about 12 hours i was give pain meds at least 3 times. I do not recall if i actually recieved my last dose. The nurse said she was getting one but i think I was being discharged. Since leaving the hospital. Nothing.
You and me both I'm fucked right now ! All of a sudden my Dr today decides to not fill my prescription today that I have, Been talking for 20 years I think by this time tomorrow I'm going to wish I was Dead ! I know I won't even be able to get up to eat . Fuck it I'm screwed !
A control group of politicians should be surgically given permanent disabling nerve related conditions. This would help to find better solutions to this situation. Wait... does this sound a bit over the top, cruel, or crazy? Hmmm
I can only lay down all day because when I go up I have too much pain. This is causing multiple lung emboli that I have warned about that I will die off
This is government overreach. I don't use that term often, but in this case it applies. I'm about to find out what this man is going through in two weeks as my last prescription runs out. I have multiple chronic illnesses that are not curable and likely will get worse as I get older. Because of a relatively low risk narcotic I have some quality of life but that won't last long if I'm untreated. No chronic pain patient should be criminalized because of the symptoms of their disease. This is a human rights abuse! Things are getting so ridiculous in this country that people are being assumed addicts until proven innocent and treated that way. They are actually creating a bigger problem by not treating pain which results in worsening disability and needless suffering.
It's not the pain patients that are dying, it's those who can't get meds, or those who are addicted who buy stuff off the street, and we don't know what it is that we got.
The non existent opioid crisis isn’t about Vicodin or Oxycodone, it’s about illegal street drugs. It’s not our problem that some a-holes are abusing pain meds. It still doesn’t give people the right to take away meds for legitimate pain patients.
My husband has had 3 back surge and hid back is degenerative. He is in constAnt pain That will leave him bedridden. He ha s been to the VA but they can not give him any opiodes. They has put him on subunit but that does not help him with his p a in thAt much. He has been on Oxy for 15 + years. Someone needs to step I. Open thier eyes and hearts for these sufferer. My husband is 69 with multiple health issues. Him having to fight this regulation now with his pain meds are only making what time he has left miserable.He can get them on the street but who knows what you get and the money to pay for these come from house hold budget. Please help.
The VA primary care doctors can prescribe and with history of spine surgery should but they will not likely give more than 50mg equivalent morphine dose which is 7, 5 mg oxycodones
I don’t get sleep anymore because I’m in pain all of the time and my meds are being lowered so I’m sleep deprived and I lost my face and mind from no sleep, we need help badly!!!
I’m supposed to get ready for a surgery that will happen in about 6 months or longer because I’m also have been in the process of quitting smoking before doctors left me and other doctors taking my meds by weaning me before my surgery instead of waiting until after my surgery to wean me, it makes no sense at all to have to wean me off before my surgery and then give me back my meds just to make me suffer again by weaning me off again, this is stupid!!! I have severe scoliosis and degenerative disc disease with nerve shit going on and I have nothing for pain at night so I suffer and I don’t get sleep, I’m completely exhausted and deprived of sleep because of my pain, I have lost my life because I can only sit in my chair with my back massager that I have burned out about 4 to 5 times, I can’t remember exactly & my memory is getting worse because I don’t sleep good at all and I ended up in the hospital and I had a car accident because of my pain and sleep deprived and the stress from having my pain meds being weaned off for no reason at all and I need them badly so I can function again but I’m getting worse and they needed to at least give me something at night and up my pain meds during the day just a little bit not too much more than what little i had in the first place and I was on the lowest doses too and I asked for help just to have all doctors turn their back on me and let me suffer, I’m very tired.
@@michellestjohn1608 I take oxycodone for pain four times a day, and one doctor tried weaning me off of it before my nose surgery. I was like, "No, that isn’t going to help me." "I have Addison's disease, and I’m in a lot of pain." So I waited 5 days later to see my other doctor, who was out of town. The other guy said, "Well, after surgery, if it's bad, I'll give you some extra." Until then, wait. So I waited five days and called them, saying, "Can you get me in with her?" I need to talk to her. She offered to give me extra to help me through surgery, not wean me like he did. Well, that's what we usually do. I said, "How is that going to help?" Then I told him all my problems, and he was like, "Wow, now I feel bad." So I told her that just last week, she brought me to four pills instead of three a day, and I've been doing better on four with all the stress of a muscle biopsy and getting a restraining order against my dad, who threatened me with a knife and choked me. She understands pain and cares. I function better with medications. Without them, I can’t do the things I do. I used them for pain, not to get high like some people. You deserve a better life. I didn't like that guy. They say I'm too young or that my pain is from the medications, bro. I'm 30 years old and have a rare condition with nerve pain. No one is too young for pain. Try being in our bodies. I'm not 18. They get paid tons of money to treat us like numbers and take away something that helps us. Yes, it's not a permanent solution, but it definitely helps us.
I am in the same boat! Also as a female, I am discriminated against as men can smoke pot and women best not and I haven't but demerol gives a false positive for cannibus, so what are we supposed to do besides make our funeral plans.
When you have had chronic pain for many years, your body becomes accustomed to the pain level. In many cases your vitals will seem normal. Vitals don't always tell the whole story.
I have CRPS and have for years refused to take opioids. It's getting to the point where I don't think that's going to be an option anymore. I have a hell of a time doing anything without being in complete agony. It used to be in just my leg. It's into my spine now. Even writing this while sat in my patrol car because I have to work is unbelievably painful.
people that DON"T need it ,get all they need to get high, pain patients are cut off ,because we have obeyed the law , yeah put a security fence around the congress , because we've had enough , .?
My life is just like Steve's,if the medical staff or those who made the law those who judge others or don't believe,if they could just experience chronic pain for a minute The doctors will be willing to give patients what they need. Sometimes, I feel like I'm next to death. I am judged by one doctor who told me , I needed to get drug rehab, one PA mocked me and said where is your cane. Taking opioids,you can't tell the patient is in pain. I believe this is the reason some people including doctors don't think some people need the opioids It's devastating,Only God is helping me it's difficult it's hard. I don't plan this , but I believe people are going to start committing s--- Just as I am ,people are in their homes crying . I am only able to lift 1/2 gal, drive or walk very short distances. I don't know how, but something needs to change. Patients can Sign a form saying if I die,it's my own fault No lawsuit can be filed
horrible way to treat americans , every doctor i've seen in michigan has treated me like a criminal and dr hayward in bridgman even told me i'm not religious enough for him to treat and the pain is all in my head
Since i have a endroot nerve Begnign tumors in and around my spinal cord, it has been founded that for someone like me will eventually have more ruptures and cause more scar tissue. So it is not recommended for someone like me. Its all about control over drugs are out there.
![I.N "HALLUCINATION" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/n5B5q1Hwt_U/mqdefault.jpg)
Imagine being an intractable pain patient and being treated like an addict.
I am that person and I tell everyone that they may someday be in the same situation.
Trust me from experience it's heart breaking and frustrating. I've never done illegal drugs, I don't drink and, thanks to the drug heads, doctors assume were all drug heads.
That's the way people are treated. Like as if they just want to get high. Such a shame
I AM!! Every month by my pharmacy. My Dr is afraid to prescribe what is needed, Florida not only has the PDMP but NarxCare which has access to your medical records (HIPPA?), Dr's you see, meds you're prescribed, filled and where. If you use a different pharm because yours is out you run the risk of being black flagged and being prevented from getting ANYTHING. A lot of hospitals are no longer using pain meds after surgery, imagine that? I could go on but this is long enough...
Everyone in pain is treated like an addict. Opioids are for moderate to severe pain. Apparently they think nobody has moderate to severe pain any more. I stoppe going to the doc or ER for excruciating migraines years ago. I can't deal with their abuse.
Does anyone else dread going to the doctor, because you feel like they’re judging you? I cringe every time I refill my medication. At this point they have cut it back to 1 pill every other day... pain relief for 4-6 out of every 48 hours. I wonder how many people could function if they felt the intensity of pain that we feel!
I’m so sorry that this has been happening to everyone for the past few years....And the anti drug folks Often don’t realize that people aren’t able to go to multiple doctors anymore to get multiple prescriptions - there’s a database that SHOWS All opiate prescriptions and you aren’t allowed to do that anyways!!! The new “belief” sold to us is that only “hospice and terminal cancer patient” should be using opiates at all...Such idiocy. It’s absolutely inhumane. Alcohol and THC are so incredibly inexpensive and yet so incredibly mind altering at the same time. But a chronic pain Saffer gets treated as though hydrocodone or the weakest version of Percocet is = to High dose of morphine or fentanyl.
And - in California where I can place an order right now and go down to the marijuana dispensary and get whatever I want recreationally IF I could tolerate it..... ABSURD!
I have cancer and other medical problems. The doctors all tell me to take a Tylenol.
Oh yes Melissa. I went to the ER a few months ago with a fever, flu symptoms rapid weight loss, and never have I ever asked for pain medication. The doc looked at my chart and asked me why I take oxycodone.(I have advanced RA). They discharged me immediately and sent me home with information about Drug and Alcohol treatment. I had a serious staff infection. Pain patients are dying from lack of treatment and sociopolitical pressure. Hang in there Melissa. You are in my prayers.
Keep a mask like Jason 😷.. k to his low back, give him a taste, just don’t waste him, when he in that pain he’ll be lookin for his own way out….and maybe think about his patients
😢@@jamespmullin21753
"We (patients w/chronic pain)are not ADDICTS! We are patients who did NOT ABUSE & who are in great pain as a result of this "debacle"! When addicts use drugs, their lives decline. When chronic pain patients take their medications their functionality & quality of life excels!
Exactly! Well said! But even if you look good & put on makeup, the Drs just say “Oh you don’t look sick” Yet I have proof of my injuries & my health problems? I’m just being treated like a paycheck.
@@lynettelaroche8868 I am 81 yrs old as of 12/11 and I am so SICK of hearing that #1 I don't look sick and #2 that I don't look a day over 69 or 70 so I am not treated with the respect due a crabby old lady in pain!! I haven't used makeup or cared a damn about my looks since I was taken off meds! However, after 2yrs of horrific suffering & suicide attempts (not very good at it or the pills just don't work), for some unknown reason I am now Rx'd Norco and sleep med. Before they said they were afraid to give them to me because they were afraid at my age I would fall. GO FIGURE!
Well said 💯
My mom is a fucking nut job
Honestly this is happening with adhd meds!!
My doctor prescribes me painkillers. But drug stores will often not fill out the prescription. Just outright refusal.And make me feel like I am a bad person, a criminal. I've worked my whole life, served my country and obey the law. It feels really unfair.
So sorry. Praying for you 🙏
i'm also a vet in impossible pain for me to manage
if only they could feel our pain for 30 seconds
🙏
I've had that happen at CVS they said I had to get ALL my RX's filled there to get schedule II & explained I just got this AFTER refills they said well to bad go there come back here next month with all of them, I didn't. I bet it's some idiotic ratio of schedule II they are allowed to fill monthly. Damn nosey government how many ppl eat &/or drink they self to death every month they are grown adults. Nixon THE CRIMINAL war on drugs is keeping the drug cartel in business I hurt so bad but quit getting pain meds from doctors I'm working on an intrathecal pump that administrators snail toxin into your spin cord to block 🚫 pain I cannot take it 15 years at 8-10 24-7 because it even wakes me, something HAS to be done. Why are we allowing this they're a lot of us & a few of them.
So SUPER TRUE I wish the entire country heard about us that need it
Well said
And that our government lied with those numbers and conflated prescribed deaths with the much greater number of illicit deaths to make it appear as if prescription deaths are the driver of this, the news guys repeat this propaganda without checking with advocacy groups who have the correct numbers that show that this is crisis is driven by illicit fentanyl and it has NEVER been a prescription pain med issue! Our government lied for greed $$$$
I have cancer and have a lot of pain in my back and feet. When I called to get my oxy refilled before a holiday weekend they didn't want to give it to me because I had 4 pills left😒it's one thing if you medically don't need it but when you have chronic pain due to things like cancer we are the ones treated like addicts🥺
"That's Why You Sign a Pain Agreement " MRI, X-ray can show what's really going on etc ..... "You Law Makers , 'Come On Where All Gonna Die Someday,' DON'T Make These Pain Patients Suffer With Your Controlling Laws. IT'S INHUMANE!!!! SMDH👎
sweety love this is absolutely true to some extent but not 100% foolproof as with back pain and discs it takes a very long time for any significant physical proof to show up on an X-ray machine and I know I am proof of this and neither does fibromyalgia that I have in fact it took me two years to be diagnosed correctly because they can only go by what you tell them you feel so that's not true in many cases
@@rluc3634 oh OK. Well i hope your doing good after being diagnosed w/ fibromyalgia, my aunt had that she said it hurt when someone just touched her. God Bless you on your journey to Wellness & living a life without government getting in the Way of your Treatment. 💜📿
God bless you
These contracts a pain sufferer is FORCED to sign are tyranny in and of themselves. Please note these contracts are all written for the benefit of the Doctor. Nothing in those contracts allows for the one who suffers severe pain to have ANY leverage to endure they are treated properly.
Tissue damage doesn't show up on imaging!!!
This is so sad that the goverment is doing this to us chronic pain people
How did you vote? You did it to your self if you supported the alt right or hypocritical left.
Notice he said “people that abuse” NOT responsible using people.
I would love for someone to come to my home and interview me. Let them see the reality. I used to be, what my husband and others have said, a very attractive woman. I used to never leave the house without makeup on and hair done. I haven’t been able to get out and get a haircut in 2 years (RUclips has pretty good videos on cutting your own hair.) If they could see me now. With greasy hair because I can only shower once or twice a week. And that’s a really big deal. To put on clean pj’s and go back to bed, on clean sheets if I have the energy to change them, which usually takes me almost an hour because of the pain and breaks I have to take. I live in what I call my “pain cave”
They need to know how this has effected marriages (mine’s been up and down, with a few separations in 27yrs.)
They need to know how families treat you like you no longer exist, because you are unable to go to family functions. How it feels to spend the holidays alone now, because you’re no longer included, or invited. Not even a call to wish you “Happy Holidays”. If you’re really lucky, you might get a text on your birthday.
How your husband comes home after a 12-14 hour day at work, and the dishes aren’t even done. And a home cooked meal?? The closest thing to that is pizza delivery. The look of disappointment on your husband’s face because you promise him you were going to try to get out for a bite to eat. Even tho he says he understands, just knowing that you’ve let him down, again, makes you think, how much longer can you go on like this.
Oh, don’t forget to mention the days like today, when the pain is so bad you’re vomiting, and thanking god that the bathroom is only 5 feet away.
And also, the times your husband is out of town on business, and your pain is so bad you want to go to the hospital. But, you can’t drive yourself, no family members are around to take you, you don’t want to call for an ambulance, so you call for a taxi, but you have to cancel it because you can’t make it out the door.
Fuck you, CDC and DEA, come and spend a week with me, and see if “taking an aspirin” is going to help you.
@@CurlyMedic03 I'm curious, since here we are a year later, how the pain pump worked out for you?
Your story is a mirror of mine. I have MS and can’t get help. There is only so much one person can take. Hope you are well.
Reading your piece was like you opened my head and read my mind. 4 yrs of neglect. I have stopped all care for my condition. The quality of my life leaves me not wanting or seeking quantity.
try some kratom ,it works !
@@edwarddunlap7344 illegal in my state.
This man is legit.
The thing is, regulating prescriptions for legit chronic pain patients, does not stop people who recreationally use opiates. People that recreationally use, are still going to do what they need to do to get their High, whereas those of us with chronic pain are just stuck with whatever dosages our doctors prescribe us.
If any
You got it Friend-feels like we are living in the Middle Ages with superstition running rampant.Yes we had a government run by a lout and his imbecile family only to find our state governments full of fascists, viz. Trump in the former case and Missouri government in the latter case.
Patients need to change their expectations about living with pain??? That is utter nonsense. These folk torturing Chronic Pain Sufferers need elimination. We have a right to defend ourselves and this should absolutely fall into self protection.
I gotcha on that one lol give it a few more years of this bullshit
@@finchrollah8656 Two Witnesses foretold in Revelations Chapter 11 are soon to take center stage. They understand what Severe Chronic Pain Sufferers are going through AND at least one of them HATES that treatment enough to campaign against it.
No weapons forged by man will they need or use. Their words are more than sufficient. Once their time begins there will be no do-overs, no take-backs, it will simply be time for the tables to turn. This is not a guess.
Exactly! If cognitive behavioral therapy is the "miracle" they say it is, then perhaps the opioidphobes should go do cognitive behavioral therapy to change the way THEY THINK about what another person puts in their OWN BODY. Much love and support to all of you out there living this nightmare.
Theres plenty of help out there for people in pain! I had my Dr install a Stim-Wave for my neck pain, plus he gives me oxycodone 15mg x 5 and óxycontin 40mg ER X 3, That's plenty for my pain, plus I'm having him install a Fentanyl Flowonix pain pump and also lm getting a SCS H-10 installed in my spine! Some Drs don't give much on pain meds, so find a new one, but pain pills are a small part, I use Hot pain patch and l use Gabapentin pills for pain, plus I use a $5000 H-Wave for tight muscles. Plus I use a back maxi rub massager, find on eBay for $30 to $50 nicely used! Plus Hemp and Chai seeds mixed in yogurt for inflammation, so if just pain pills good luck, we have so much more to use, that gentleman
So true! I used to be able to function, but I'm practically bed ridden now. I've had nerves burnt out in my back and nothing helps. I know exactly how he feels.
Same here. I can't sleep in bed thanks to a botched spinal cord surgeon. Now doctors only want to do a spinal cord stimulator...i had one and it gave me hell so it was removed or, shots that have never worked. I'm stuck in a recline and most days I'm in so much pain I hate having to move around.
Try Prialt
This is the truth. My meds have been cut a ton! My quality of life has gone backwards, it's horrible!
Same here, I cant go on like this anymore. Since they cut me off pain medication I went from being functional to bedridden and in a wheelchair , started smoking again as I don't want to even live anymore. In my opinion this is a violation of my constitutional rights as a human being to force me to live like this. Maybe we should file a class-action lawsuit. I thought there were laws against cruel and unusual punishment. We are being punished, and our doctors are being threatened, and jailed, not for anything we have done wrong but for the actions of others. Is this right to do this?
I am so sorry this happened to you, it’s not right and I want you to hang on because we are working hard to turn this thing around and you need to be here to appreciate it.
@@shermac246 It is not just me it is happening to millions of chronic pain patients. They put out propaganda also as most people who die do not die due to the drug but because they are mixing them with alcohol and tranquilizers, and taking way more that prescribed. More are dying now due to adulterated pills laced with Fentynal and now something called tranq. What are you doing to try and turn it around? We do not get high from taking them as your body builds a tolerance which is one thing that is bad about them. Actually when I first started them they made me feel very sick and nauseated . I just wish they would find something new that works.
@@Thundralight you don’t have to convince me of anything thunders, I am also a pain patient and like so many of you, I was already traumatized & mistreated prior to the 2016 guidelines, it just got exponentially worse after the government got the propaganda full steam ahead because so many greedy grifters got on board like Kolodny, Chou…you know the story. Since 2016, I’ve been deprived of IV pain medication after and a grueling and excruciatingly painful cardiothoracic surgery that left me screaming and moaning in-patient for two days in another state an hour plane ride away, all alone; I’ve been force tapered twice, the list goes on, I’m so heartbroken seeing all your stories and am so sorry for all the suffering.
I am an old political organizer, in real life which was my career before I had children and I happen to believe things are beginning to turn a bit for us, it’s very slow but it’s happening because I see glimmers of it in the public discourse. And I do know the suffering but also know things can change overnight, after my second force taper in 8 months, I had little left but thankfully I didn’t do anything permanent because I was able to find a compassionate provider just when I was at my very worst emotionally. I don’t want people to feel depressed after anything I write so I want to let people know that if anyone is out there at their lowest ebb, please know things can change, you can’t predict the future; I never would have predicted what happened to me which took place within about 20 minutes of meeting someone on Twitter who happened to have a name of a prescriber where I live who only takes 30 patients and happened to be taking some when I needed her help. This happened so fast and that’s how things can change for many of us so please keep fighting however you can and if that’s just reading these words than that’s awesome. Take care
omg like hearing my own words...pain feels like an abscessed tooth in my back..nerve and chronic muscle pain...our pain makes us prisoners....the long years of pain that I have been fighting have me exhausted and drain... leaving me with little fight left...I pray for just one good day a year..btw...that rubber stamp...on the forehead...I think I have one too...God Bless all of you who are suffering...I pray for you to have peace of mind and pain free bodies
Right there with you
Same here. Im 38 and walk around like a 90 year old. I had an elderly gentlemen tell me "Wow, finally someone I can walk faster than." It wasn't funny to me considering the pain I was in. It is literally like being in a prison. My mind wants to do what my body no longer can.
THIS MAN SHOULD NOT EVER HAVE TO SUFFER SO MUCH BECAUSE IF SOMEONE OUT IN THE STREET SOME PLACE.
STREET ABUSE DOPE JUNKIES
HAVE DONE US WRONG
ITS OUR RIGHT TO LIVE A BETTER LIFE. SUICIDES ARE BECAUSE WE ARE IN NEED
PAIN PATIENTS SHOULD NEVER HAVE TO GO THREW TH IN S BECAUSE OF A JUNKIES DOING BAD THINGS
CHRONIC PAIN PATIENTS ARE BEING ABUSED BY THE BACK ASS LIES.
I’ve seen so many pain patients desperate, faking serious addictions so they are able to go to the methadone clinic and get painkillers (they give those addicts literally as much methadone as they want). It’s twisted that they have to do stuff like that or risk their freedom going to the streets
YEP #Truth
How can they fake a piss test. They check them.
No actual pain patent wants methadone
We need meds that work. I'm surprised there hasn't been more suicide because living in pain is like being torcherd to near death everyday
So sad, and covid has only made things worse. I wish all of you the best. I am in full-blown tears because it wears on you after 20 years. I feel like a nuisance, a burden, yet this runs in my family and it’s hereditary. I had to take care of my sick mother for almost 10 years and I neglected myself in the process. Worst mistake I ever made. She’s well now, but not the same as before sickness.
You are all in my prayers and I feel for you. It’s good to know I’m not alone
For the record methadone is a poor pain medication. I have been through it all.
Every drug needs to be sold the way alcohol is sold. Their prohibition is just causing immeasurable suffering for those with addiction and those without.
4:40 “For the public to go….”
Um, mam, the “public” is not my physician. The “public” has no right to decide what treatment I should receive.
I’m going through the same exact thing right now. I was put on a pain pump 5 years ago & am now bed ridden, walk like I’m 90 yrs old, limping, can’t do any type of activity. Even going to the store 15 min and I’m in excruciating pain, I need a break. I not only have chronic back pain for 12 years but I also suffer from a blood cancer called Myelofibrosis. It causes me bone pain, abdominal pain, enlarged organs, severe headaches & anemia which also causes extreme exhaustion. I also have arthritis now as well as high blood pressure & high heart rate. I do everything my dr wants me to do. I just had another 3 rounds of back injections(steroid, cortisone & facet injections) My back locks up on me at times where I can’t move & Im screaming in pain. I’ve been with this same Dr for over 10 years & have never failed a urine test or saliva test. I’ve had multiple tests done where it shows proof of my problems/symptoms. I just had my 5th bone marrow biopsy as well. Like this man said, the abusers are ruining it for people who are really injured, sick & in pain! I’m scared to death to die suffering in pain, and death is just around the corner for me. We are dying a slower death for sure. My heart just can’t take it anymore.
Are you saying you no longer have a pain pump and do not have a script from a pain doctor?If this is so you got to ‘shop” for a pain control doctor.
@@jeffreycabanellas8113 No I still have my pain pump , but my meds have been cut down, so have my breakthrough meds. Currently I’m dealing with ofher health problems related to my Cancer. But soon I will be having my surgery to replace my pump. They are only good for about 5-6 years, mine is coming up on 6 years in December.
@@lynettelaroche8868 Good luck and you have my prayers/I will suggest Eastern yoga studies on the structure of what we call the”self “as in point of fact the self transcends our physical bodies and the very act of psychological transcendence can helped us endure suffering if not pain.I refer you to Arsha Bodha of the Vedanta Society.It is free and should not offend.I am not a religious nut but thought I might share my last best hope.Peace
@@lynettelaroche8868 I guess you tried edible the?Small doses can help with appetite and it can relieve malaise and distract your mind from the pain.I personally dislike it:/should you try it.check first with your doctor.I mentioned it but do not recommend it.
@@jeffreycabanellas8113 Thank you! Yes I’ve tried edibles. Didn’t help my pain & just felt groggy. Didn’t like them either so I just take Benadryl if needed for sleep. Just helps a little. Also I am currently in physical therapy & have started yoga👍
I have had 7 back injury's over the years so I know his pain all to well!.
I can’t tell you how frightening my last 8 years have been hell. I am 74, have a large loving family. I want to die. Sadly, my condition won’t kill me! This is criminal !! Our government has no business in the health care system! If we sufferers can’t even fight for ourselves! We’re suffering too much to fight!
I have CRPS and live with horrible burning crushing pain every day. Us pain patients suffer more than anyone should have to. They are going to see a large rise in suicide deaths amongst pain sufferers who can’t stand the pain and who don’t have the strength to fight the medical system any longer. So in making ignorant regulations they are killing the innocent trying to save the folks who are abusing the system. It’s not right! As pain patients waiting for a tomorrow that may never come when yesterday is to late!
This came to pass 😢
4:39 .... an excuse? NO NO NO Lady... pain patients have a very long history of being guinea pigs for so many procedures, numerous surgeries under our belts, numerous injections, numerous "alternative" therapies that haven't worked... by the time you need 24/7/365 lifelong opioid care you've exhausted ALL options.
We also have CT scans & MRI's that SHOW and prove what the hell is going on. In my case: at 20 years old I was diagnosed with DDD, major back surgery, major back surgery again at 25 years old with over 100 spinal injections and "alternative" therapies prior to the 2nd FAILED surgery and my 3rd back surgery left me with more pain than I'd ever imagined (anterior and posterior spinal fusion at 27 YEARS OLD). Formerly diagnosed at 30 years old with:
1. Severe Degenerative Disc Disease L1-L5/S1
2. Severe spinal stenosis (compression of the fluids in the spinal cord) from L1-L5/S1
3. Hypertensive Crisis Pain Patient (pain so severe it makes the patient immobilized with extreme pain, so extreme that my blood pressure reaches levels of 140/220 and I'm 5'8" 110 lbs 😮 do it's NOT from being overweight or having high blood pressure.
4. Osteoarthritis of the spine
I have degenerative disc disease, 2 bulging discs for over 15 years. I have been on Hydrocodone that entire time. I have never abused them, gave them to people or sold them. Now, because other people abuse them I am the one getting punished. Trust me, the addicts are still getting pain pills on the street. They arent in pain but the people who depend on these to have somewhat of a quality of life are just forgotten about. My doctor stopped giving me my meds cold turkey with no substitute or anything. So, not only was I in constant pain but then I had to deal with the withdrawals. I haven't been on my meds since August. I cannot find any doctor who will help me. I no longer can do family outings because after 15 min or so my back hurts, pain shoots down my legs and then my legs go completely numb. I have gained about 30lbs since Aug because I cannot enjoy doing much activity like talking a simple walk. Plus like this gentleman said, the guilt you have of not being able to help around the house is tremendous. My mother has to clean, cook and run errands while I lay on my side to ease the pain. It 100x makes you feel so useless. This is pure torture and something must be done! This is NO way to live. To those who dont have chronic pain, you will never understand the struggle. Patients who take this medication, do not get this "high" that addicts get. We use it for one purpose and that's to try and give the best life we can. Do we not deserve the same quality of life as non chronic pain patients?!?
When doctors fail u, dealers wont
Your doctor was supposed to gradually decrease the dose.I am very blessed that I have never been to a doctor that would do something like that .
@@pursedelighted9020 I am being cut off from pain meds suddenly because I have a positive urine test. I don't abuse anything, use nothing illegal. Nobody cares what I will go through with withdrawal and back to severe pain.
Just got fired from my dr yesterday and don’t have a clue why. Just a letter saying that they will no longer treat me only four months out of surgery. Maybe they picked up kratom or thc from cbd oil. Not sure but there shouldn’t be enough thc from that stuff to even show up and kratom is legal.
@@skidmark7845 My positive test was probably due to CBD oil. I was tested again, found clean, and my meds were restored for a couple of months. Then the Doc again balked and held back my meds, demanding another urine test. I complained that I might not survive the withdrawals, as I had a bad heart. Doc relented and gave me back a one month prescription, but I have to go for yet another urine test and it had better be clean or no more pain meds! The trouble is, I have never been in any trouble. I have never abused drugs or alcohol or prescriptions, and I don't have any bad records. I told them about the CBD oil, but they denied that it could trigger a positive test. This system is cruel. They say that the active ingredient in Robitussin greatly helps the withdrawals. I keep Robitussin gelcaps in my house just in case I lose my meds, which can happen again at any time.
Trust me you'll know if you have chronic pain it won't ever leave your body
No pun intended, but I do really feel your pain and the pain of all of us chronic suffers. Before the crackdown I had a "life". I was able to walk, drive and get the necessities of life done, with tolerable discomfort. Now I too am bedridden. Shame on our legislature for committing such political malfeasance!
How ya doing brother? I've had multiple back surgeries and the last 1 i had they fused my lower back together. They put in disk spacers pins plates rods and screws. I got all the pain you have bro. I can't hardly do anything and on good days i walk with a cane and my bad days a walker. I live in indiana and doctors here help you with your pain. To the people who say it's an excuse go through the surgeries that we had and live with the pain we have to live with you would shut your mouths and cry because the pain your in and you would expect you dr to give you something to help.
I'm in bed crying and moaning. Intractable pain. Lord please take me gently in my sleep. God Lord Holy Spirit help us all please. Please someone pray for me to keep the strength to go on.
I agree with Greg I also lost my quality of life and medicine
Let's c if the drs can live one weekend in chronic pain maybe then they will wake up.!!!!!!!
Please change doctors immediately. I would highly recommend an implanted hf40 nevro pain stimulator,as well as,another pain management doctor. Run dont walk. You deserve quality care.😊🎉❤
Thank you for interviewing a chronic pain patient. This is not within our control. It's pain that you wouldn't wish on your worst enemy. No one knows UNTIL it's YOU. Then it's too late; good luck getting any real quality pain medication to help you. Steve should be on 300 mme/ day of pain relief per day and yet here he's only on 90 mme/ day or less per day. 😢 Of course he's bedridden. Intractable pain patients should've been grandfathered into and been exempt from this crap going on in the DEA and CDC/State laws 🙄
this is what I was afraid of. Because some people are prone to addiction and because of some greedy doctors, you have the majority now have to live with severe pain. It's less then 10% of people who take pain medication that have problems with addiction. Even Percocet is restriction now. I took this over 35 years ago, many times after surgery and never had an issue of becoming addicted. Once I recovered from the pain, and the prescription was finished, I didn't crave more of it. Anyone who had has acute and/or chronic pain that is severe enough, you WILL eventually go insane and will not want to live anymore.
It’s actually around 1% of pain patients who addict, and it’s easy to screen for with patients, every single one of my physicians screened me for SUD
It's 2024 and things are much worse for people with severe chronic and intractable pain. Shame on our government and doctors.
The way 'health practitioners' make you feel guilty for having pain and needing meds is absolutely horrible.
You can get help for diabetes and heart conditions, but not for chronic pain. Go figure
I know two people that ended their life because of this . Imagine that healthcare professionals that don't do pain guess they want healthy patients . I don't have long myself if something is not done soon . Obumer care was bad this is the nail in the coffin . Germany did the same with the disabled and elderly in WW2 . No compassion no mercy .
Me too
My best friend took her own life because of sub-par & (a move towards) non-treatment of her chronic pain... she just couldn't take it anymore 😥
Yes, the Nazis killed the developmentally disabled CHILDREN first by starvation or poisoning, then the mentally ill the same way. They even had propaganda fliers distributed in movie theaters calling them “Not worthy of life!”. A drain on government obtained tax money that the wanted to put into the war effort. Seems it always comes down to money, and making the vulnerable communities suffer first for it. Unless of course they can use them to enrich themselves, as they are trying to do with poor whites with addiction.
I manage to just make it to the bathroom; kitchen on good days. Lost 35 lbs.since opiate "crisis". Such BS! God help us! This is a DEBACLE!
sorry trump you lost my vote
I struggle every month trying to get my pain meds. I do urine tests monthly and, have had recent MRI showing my spine is damaged beyond repair. Yet, the pharmacies give me hell refilling and, my doctor wants me to do shots that have proven to not work multiple times. Not all of us are drug heads. I wish I didn't have to take the meds but, I have no choice. The actions of the drug heads are taking a toll on us who honestly need the help. I don't go out anywhere anymore. I can't stand, I don't go om vacations, I can't sleep in a bed, I can't do the stuff I use to love. I'm stuck sleeping on a recliner and I go put maybe once or twice a month.I wish politicians had to feel our pain and, then be denied the meds so they can see how it feels.
I have issues with every single refill. It's ridiculous. Something like 2-8% of people become addicted when they have prescribed opiates. The other 92% of us have to suffer because of that and the new rules have done nothing to reduce the opiate crisis.
I have issues almost every month with either my pharmacy, my insurance company or my prescriber who’s narcissism is off the scales and she’s so out of touch that she often blames me when I have trouble with the above and she will threatens to drop me for it which is completely out of my control; or she asks me to cash pay so I don’t have to deal with insurance companies; yeah, as if I have that kind of $$$; all of her abuse does wonders for the ptsd she diagnosed me with due to previous medical trauma thanks to 2016 CDC GLs. I often want to die instead of deal with the abuse and when I share that with my husband, he freaks out and shuts down, but the anxiety wears me down
How does the doctor/patient's Medical Care for horrifyingly Dieseases become a Public Opinion, to judge, and decide who looks like thier in pain, without Medical Education now in the position of practicing medicine? Hospital's preforming surgeries, post-op, send the patients home without means for pain control... C-SECTIONs, Appendectomy, Gallbladder, Hip- Replacements.
The crackdown on scripts is due to the wrong focus. Prescriptions are not the problem. The problem is *illicit* drugs, not prescription meds. For God's sake what the hell is wrong with the establishment? Pain patients aren't addicts. Stop this madness.
Why don't they talk about the street drugs and sedative and alcohol mixed with it.that is the main problem.let's tell the whole story.please!
Seems like legitimate chronic pain patients have become roadkill in the anti-opioid crusade.
Brutal watching journalists feign concern. “What would you tell lawmakers”…Caught in the middle”. This guy needs help. Life ruined by back surgeries then can’t get the only thing that provides any substantial relief by the very same practitioners that put him where he his.
Listen pain relief is a human right
I leave the house once or twice a month, thats all I can manage and having to go to the doctors office is a trip to hell!.
If they want to know who isn't faking it just look at our pain medical record. CDC can you read?
Funny how they don't do this with Adderall becuase all I here is people talking about abusing it
They are doing it to stimulants now, the difference is our politicians are demanding the DEA change course; whereas, it’s crickets for us
I feel for Steve. Agree with the pillow between the knees. Pennsylvania is now doing the same thing. They want everyone off opiods. I've been on the same dose for many years and am already pretty much bedridden. I have advanced RA...Sometimes the pain is so horrendous that you just pray that you don't wake up. Now I guess it will be more than sometimes.Prayers for Steve and all of us who are suffering from the "opioid crisis".
Since the government started telling doctors how to do their jobs, overdoses have reached historic numbers.
My grandfather prescriptions were cut by 1/4. The new doctors are being indoctrinated to give less and less.
finally hearing things that is happening to me its terrible !!!!!!!!!!!!!!!!!!
Some people really need it. The junkies have made it really hard for people who truly need pain meds.
Of course they enact this law 1 year after relocating to TN!! So I have to go to GA for my pain meds!
I think i saw this guy talking about Kratom. He said it made a big difference. If it's legal in your state, look into it. Make sure you find a reputable company.
I tried Kratom . Only certain strains work effectively (usually a red strain). I found the capsules are best because you don’t have to taste the stuff that way. It does require as many as four to ten capsules and you have to start off low levels to see what works for you. If you get the powder (which basically is ground up leaves like what’s in a tea bag), you have to mix it with something to hide the taste. I found chocolate milk or ensure drink or even coffee works best. It works, but you just have to experiment with it and give it a chance. Some people get good at it and start selling it in order to pay for their own. Side effects are way less than opioids but it take a little longer to work.
@@skidmark7845 I have been using kratom for 4 years, and it works better ,but you don't get high, it just kills PAIN !
It helps a little bit with pain, but for those of us with severe nerve pain it’s not as effective, but that’s just me and it’s worth a try for sure!
Thanks goodness my injuries are so severe and caused my combat. Id be so screwed otherwise. I hope thkse struggling get some relief
Being a cancer survivor plus having epilepsy for over 34 year's and having extensive medical documentation I cannot get prescribed the benzodiazepine and Narcotic meds I used too. I was moving normally as I could, excellent BP, 99% pulse ox, just some issues with constipation. It was Duragesic/Fentanyl patches prescribed from Pain Management and Ativan. I did not recklessly use any meds, but now I am Suffering...No pain meds and low Ativan to cover Anxiety and Seizure's. We were more advanced 20-30 year's ago with pain management than now. ..where is the best state to live in for a person with debilitating pain? It seems to be a state issue....this is ridiculous...I Pray for those Suffering and Advocacy Groups. This Shouldn't be.
Count me in, I’ve had 24 surgeries and live in constant pain. Everyone in our situation is a victim of fear of overdose
My best friend and I both have chronic pain. She had decided to get off of narcotics in 2020 after being prescribed narcotics since 2004. She had to move to Syracuse, N.Y after her mother passed away and decided to go off of them. It ended up being a mistake because when she tried to find a doctor to get back on she was shut out because Syracuse is a hotbed of drug activity. She's moving to Texas where she will be given a pain pump. I pray that it works for her.
As for my chronic pain, I'm on Suboxone. It relieves about half the pain but better that than none at all.
When Did This Country Become A Inhumane Place!
TRUMP STARTED THE UGLY WORDS AND HIS NASTY PREJUDICES AGAINST MANY DIFFERENT PEOPLE IN THE WORLD. AND ONE HE MAKES UGLY JOKES IS HANDICAP FOLKS
Aaron Zywicki as long as rich old white men are in control, inhuman will be the status quo...
@@bonnieplastino4923 Thank you tRump will get his someday. ..you can't just torture people. .hell has a place for tRump.
@@humbleone6405 You said it thank you for the COMMENT
Always. Ask any black person. Now thousands of chronic pain patients have died but the government and media pretends we don’t exist because they want their giant money grab. Gotta pad those treasuries and pay heroin addicts that never touched a pill!
GREAT NEWS JEFF SESSIONS IS GONE
THANK GOODNESS THAT IDIOT WAS THE ONE THAT STARTED ON THE SICK CHRONIC PAIN PATIENTS CANCER PATIENTS ALL OF US TAKING HEAT OFF THAT ASSHOLE.
( JEFF SESSIONS IS GONE)
Bonnie Plastino it actually started with Obama letting the cdc run rampant, but yes the other idiots fell in line.
@@steveglass8906 And yes true and that JEFF SESSIONS WAS RELENTLESS ON HIS STUPID ATTACKS ON CHRONIC PAIN PATIENTS AND CANCER PATIENTS AND ALL PATIENTS THAT SUFFER GREAT PAIN FROM SURGERY S THAT FAILED AND SO ON
@@steveglass8906 HUMAN RIGHTS GROUP ARE INVOLVED I WAS FORTUNATE TO SPEND SOME TIME WITH THEM IN AN INTERVIEW
JUST A HEADS UP . I NEED TO KNOW IF NAYBE THINGS ARE GETTING LESS PRESSURE ON THE CHRONIC PAIN PATIENTS AND CANCER PATIENTS AND HAS IT LIGHTENED UP MUCH?
IVE BEEN TAKING A BREAK THE STRESS MADE ME SO SICK
THAT I WAS ADVISED TO TAKE A HEALTH BREAK. SO IM JUST TRYING TO KEEP IN TOUCH WITH THE HUMAN RIGHTS GROUP
AND IM TRYING TO UP DATE YOU ALL OR JUST ANYONE THATS LISTENING .
IF OR HAVE ANYTHING GOT BETTER AT ALL
@@bonnieplastino4923it’s MAYBE*
Wait , steve has long hair and facial hair like me. I was told that meant I had stopped grooming myself , big red flag for abuse! I told them No, it just means i'm an OG Hippie and that means NOTHING!!!
Medical Malpractice, horrible violation of the Hippocratic Oath. Infuriating and heartbreaking at once.
I have lost all respect for doctors i had rods and screws put in my back 4 years ago and not a single dr its 5 now, would help me,,,,the last one i went to, a pain management dr,,,,,where i could hardly even make an appointment they argued with me about i had to have a doctors referral i said i did , went to see him he asked what do i want, i said to quit hurting he said go back to my shots at 900 per visit , i gave up, that was last summer , , its crazy that a 62 year old man cant be trusted for anything,,,i hope they have to go thru what we have to
I'm living the nightmare left by Dr. Jayen H. Patel. He never connected the pain pump & kept forcing medications into me for 10 months. It's been over 3 years of absolute nightmares. The pain is beyond words. 💔 I'm judged. It's sad that we, the patient gets treated like a druggie. But the doctor gets away with this. I'm not tge only patient he's done this to.
Before the cancer diagnosis , i asked about small dose, 1x 10mg opiod, for breaks from the pain. They all say, take a tylenol. Most of my dealings with doctors and PAs have to do with tests, not therapy, cures or relief. Imagine having level 8-20 varying pain and the doc justs sets you up with tests. No relief. I felt like I lost the opportunity for a painless death by surviving my operation. I told the medical staff that i would start drinking alcoholic drinks to smother pain. I prefer Taylor Port wines.
Either fake an addiction and get suboxone or become a criminal like the rest of us who would like to survive without agony everyday. Free Men Dont Ask. Stop asking for permission to something that will never be granted. Make it happen yourself and be ready to fight to keep it
how about it ! its time for a law firm with GUTS for pain patients ?
I have cancer, just had an operation. Sent home from the hospital with a blood filled cath bag after 12 hours. No new meds. When I was asleep in surgery i recieved Fentanyl and another opiod. In the short hospital stay of about 12 hours i was give pain meds at least 3 times. I do not recall if i actually recieved my last dose. The nurse said she was getting one but i think I was being discharged. Since leaving the hospital. Nothing.
Im in bed constantly too....id rather be dead
You and me both I'm fucked right now !
All of a sudden my Dr today decides to not fill my prescription today that I have,
Been talking for 20 years I think by this time tomorrow I'm going to wish I was
Dead ! I know I won't even be able to get up to eat . Fuck it I'm screwed !
A control group of politicians should be surgically given permanent disabling nerve related conditions. This would help to find better solutions to this situation. Wait... does this sound a bit over the top, cruel, or crazy? Hmmm
I can only lay down all day because when I go up I have too much pain. This is causing multiple lung emboli that I have warned about that I will die off
Does that mean that people are going to have to change your expectations what's that mean
I was wondering that too. Probably means "forget about getting pain medication and get over it."
This is government overreach. I don't use that term often, but in this case it applies. I'm about to find out what this man is going through in two weeks as my last prescription runs out. I have multiple chronic illnesses that are not curable and likely will get worse as I get older. Because of a relatively low risk narcotic I have some quality of life but that won't last long if I'm untreated. No chronic pain patient should be criminalized because of the symptoms of their disease. This is a human rights abuse! Things are getting so ridiculous in this country that people are being assumed addicts until proven innocent and treated that way. They are actually creating a bigger problem by not treating pain which results in worsening disability and needless suffering.
Yep,and ppl turn to the streets to self medicate
I'm in pain,2 years ago my meds discontinued because my doctors office had a change of policy,now they only give it to drug addicts,what can I do ?
The pain controls your quality of life.....
He is lucky to get that dose
I can’t get nothing
& still nothing is done we just stay in bed & wake up screaming everyday wishing we hadn't 😢
some get it . some don't ,some Dr,s perscrib ,others don`t , may be a law ,Idon`t know !
Help!
It's not the pain patients that are dying, it's those who can't get meds, or those who are addicted who buy stuff off the street, and we don't know what it is that we got.
The non existent opioid crisis isn’t about Vicodin or Oxycodone, it’s about illegal street drugs. It’s not our problem that some a-holes are abusing pain meds. It still doesn’t give people the right to take away meds for legitimate pain patients.
My husband has had 3 back surge and hid back is degenerative. He is in constAnt pain
That will leave him bedridden. He ha s been to the VA but they can not give him any opiodes. They has put him on subunit but that does not help him with his p a in thAt much. He has been on Oxy for 15 + years.
Someone needs to step I. Open thier eyes and hearts for these sufferer. My husband is 69 with multiple health issues. Him having to fight this regulation now with his pain meds are only making what time he has left miserable.He can get them on the street but who knows what you get and the money to pay for these come from house hold budget. Please help.
The VA primary care doctors can prescribe and with history of spine surgery should but they will not likely give more than 50mg equivalent morphine dose which is 7, 5 mg oxycodones
For those of you who suggested Kratom, does this still stand as of 10/14/21?
I don’t get sleep anymore because I’m in pain all of the time and my meds are being lowered so I’m sleep deprived and I lost my face and mind from no sleep, we need help badly!!!
I’m supposed to get ready for a surgery that will happen in about 6 months or longer because I’m also have been in the process of quitting smoking before doctors left me and other doctors taking my meds by weaning me before my surgery instead of waiting until after my surgery to wean me, it makes no sense at all to have to wean me off before my surgery and then give me back my meds just to make me suffer again by weaning me off again, this is stupid!!! I have severe scoliosis and degenerative disc disease with nerve shit going on and I have nothing for pain at night so I suffer and I don’t get sleep, I’m completely exhausted and deprived of sleep because of my pain, I have lost my life because I can only sit in my chair with my back massager that I have burned out about 4 to 5 times, I can’t remember exactly & my memory is getting worse because I don’t sleep good at all and I ended up in the hospital and I had a car accident because of my pain and sleep deprived and the stress from having my pain meds being weaned off for no reason at all and I need them badly so I can function again but I’m getting worse and they needed to at least give me something at night and up my pain meds during the day just a little bit not too much more than what little i had in the first place and I was on the lowest doses too and I asked for help just to have all doctors turn their back on me and let me suffer, I’m very tired.
How are you now?
@@michellestjohn1608 I take oxycodone for pain four times a day, and one doctor tried weaning me off of it before my nose surgery. I was like, "No, that isn’t going to help me." "I have Addison's disease, and I’m in a lot of pain." So I waited 5 days later to see my other doctor, who was out of town. The other guy said, "Well, after surgery, if it's bad, I'll give you some extra." Until then, wait. So I waited five days and called them, saying, "Can you get me in with her?" I need to talk to her. She offered to give me extra to help me through surgery, not wean me like he did. Well, that's what we usually do. I said, "How is that going to help?" Then I told him all my problems, and he was like, "Wow, now I feel bad." So I told her that just last week, she brought me to four pills instead of three a day, and I've been doing better on four with all the stress of a muscle biopsy and getting a restraining order against my dad, who threatened me with a knife and choked me. She understands pain and cares. I function better with medications. Without them, I can’t do the things I do. I used them for pain, not to get high like some people. You deserve a better life. I didn't like that guy. They say I'm too young or that my pain is from the medications, bro. I'm 30 years old and have a rare condition with nerve pain. No one is too young for pain. Try being in our bodies. I'm not 18. They get paid tons of money to treat us like numbers and take away something that helps us. Yes, it's not a permanent solution, but it definitely helps us.
I am in the same boat! Also as a female, I am discriminated against as men can smoke pot and women best not and I haven't but demerol gives a false positive for cannibus, so what are we supposed to do besides make our funeral plans.
A simple EEG would show whether someone's pain is real. No excuse.
Also their blood pressure will be elevated.a nurse told me that
When you have had chronic pain for many years, your body becomes accustomed to the pain level. In many cases your vitals will seem normal. Vitals don't always tell the whole story.
I have CRPS and have for years refused to take opioids. It's getting to the point where I don't think that's going to be an option anymore. I have a hell of a time doing anything without being in complete agony. It used to be in just my leg. It's into my spine now. Even writing this while sat in my patrol car because I have to work is unbelievably painful.
people that DON"T need it ,get all they need to get high, pain patients are cut off ,because we have obeyed the law , yeah put a security fence around the congress , because we've had enough , .?
Yeah WE are...
My life is just like Steve's,if the medical staff or those who made the law those who judge others or don't believe,if they could just experience chronic pain for a minute The doctors will be willing to give patients what they need. Sometimes, I feel like I'm next to death. I am judged by one doctor who told me , I needed to get drug rehab, one PA mocked me and said where is your cane. Taking opioids,you can't tell the patient is in pain. I believe this is the reason some people including doctors don't think some people need the opioids
It's devastating,Only God is helping me it's difficult it's hard. I don't plan this , but I believe people are going to start committing s--- Just as I am ,people are in their homes crying . I am only able to lift 1/2 gal, drive or walk very short distances. I don't know how, but something needs to change. Patients can Sign a form saying if I die,it's my own fault No lawsuit can be filed
How many are taking their lives due to chronic pain and no meds I bet it’s so much more. And a slower death
Read “unlearn your pain” by Dr Howard Schubiner
We should be able to sue our doctor because they gave it to us. How can a doctor. Who see us once know as much as a doctor of ten years.
If only I could double my daily amount. I could live about 99% normal. Now Im living 5%
horrible way to treat americans , every doctor i've seen in michigan has treated me like a criminal and dr hayward in bridgman even told me i'm not religious enough for him to treat and the pain is all in my head
Michigan = Draconian 99.9% of the time - I’m sorry. I lived there for about 20 years and could not wait to get out.
Since i have a endroot nerve Begnign tumors in and around my spinal cord, it has been founded that for someone like me will eventually have more ruptures and cause more scar tissue. So it is not recommended for someone like me. Its all about control over drugs are out there.