'Struggling to be me with chronic pain'
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- Опубликовано: 28 дек 2024
- This is a short film based on a synthesis of 77 qualitative studies exploring the experience of over a thousand adults with chronic musculoskeletal pain.
The script is drawn from peoples' own words about what it is like to live with chronic pain and is performed by an actor.
This project was funded by the National Institute for Health and Care Research Health and Social Care Delivery Research (NIHR HSDR) Programme (09/2001/09).
Visit the NIHR website for more information. The views and opinions expressed therein are those of the authors and do not necessarily reflect those of the HSDR programme, NIHR, NHS or the Department of Health.
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You are NOT alone. I suffer with physical pain too. Minute by minute. Second by second. It's so tiring. I pray one day I'm in heaven and I get a new body. This does NOT mean i WANT to die. I want to live and I do the best I can every day. But, hey, the thought of having "no physical pain" is a sweet one.
Hi Rocky - I know it's been a year since this comment - I hope you receive this message. I think about heaven like you do, hoping that someday I will have a new body. Begging that this is true. While I never wish bad things upon others, I do wish sometimes that I could unzip my skin and have my doctors and family/friends live inside my body for JUST A FEW DAYS so they an understand what this live I live is all about. Again - wouldn't wish this on anyone but do wish more people could actually understand. Everything everyone has said on this stream is so real, so relatable to me. It's been 24 years of agony. Wishing you and everyone else on here the best.
Robyn
Pain makes me feel lonely and guilt. Ridden. You are so right.
I hope you don’t mean that. We have one life to live and there is no guarantee in a possible afterlife. Strive to improve everyday and live life to the fullest.
Zylork0122 hard to live life to the fullest when every second is painful and you give up everything you love
I understand you too. I dream of to have some money to pay someone to finish it. I had enough of this thing we can call life. I can not finish myself I am too weak for this. I am tired. 😣
Wow it's like every chronic pain patient has the exact same story! Invisible illnesses are so difficult to manage
Often the injuries are obvious, like having four vertebra broken by a drunk driver.
The reason that severe chronic pain patients in the US are treated as we are invisible because of the so called opioids crisis....
@@davidhollenshead4892 You are EXACTLY right about that. 1,000%!!!
Yes ❤🙏
Honestly, for me, it's not hard to manage if I could get the right pain pills, but the government wants to make us suffer.
@@hastyhillfarmand4x480 I really don't understand their rationale. I have 5 herniated discs and take absolutely no pain medicine. No relief whatsoever... I'm living in a waking nightmare at this point, just awash with unremitting pain. Why do they want us living like this? Was talking to my pharmacist after I accidentally cut off the end of my finger and had to have it cauterized. I mentioned to him that they didn't even give me any pain medication (believe me it hurt). He told me that he broke his wrist and they refused him pain medication. A cast and a pat in the head to go forth and suffer... I'm at a loss.
Chronic pain, I lost my friends, my family, I even lost myself. I used to be the life of the party. Now I have no life.. how I miss the old me, now in just alone and old. Just home with my pain meds that don't do much, I have many days with tears in my eyes, im tired of being tired, im tired of being in pain.. im tired period..... 😓
That's the worst being alone! Only the cat listens even she gets tired of it though! At least she comes back after a short break! More than my family does
Hey Cheri how are you feeling now, I actually have 2 chronic pains too, if you wanna talk I'm here you seemed very lonely:)
Same...same):
so sorry for your suffering. Sending you best wishes
It is nice to talk with people who understand our pain. Try to interact with someone. We are at the same boat.
Watching this whilst lying in bed, having taken a strong dose of pain meds, on a Saturday afternoon June 2022. Fellow pain warriors, even though we will never meet let us all mentally hug one another.
🫶🏼
🫶 NE OHIO TORTURED W CHRONIC INTRACTABLE PAIN 💔 😭
@@anneturner8439 Hugs
@@thewisepowerchair2369 : 🫶 (((Hugs)) back my fellow human suffering needlessly 💔😢
Hugs don’t help.
Winston Churchill once said, "If you are going through hell, keep going." That statement has kept me from ending it all.
Agreed. If I sound whiny in this stream, I apolgogize ...... I really just want people to know all is not what it seems. Went out for Christmas with our two younger kids (27, 23 years) and our wonderful daughter’s boyfriend. I was hurting very badly but didn’t complain. I will be in bed for a few days following this night out with them and my husband. I love them all so much, I kept my pain to myself and we bonded. A true bond? Wish I could say what’s really going on and that I’ll likely be in bed for the rest of the weekend to make this night happen. It’s ok - it’s what living this life is all about at times.I just feel so fake sometimes - "Oh, ya, we saw Robyn. She looks great so she must be doing better." I can't even tell the people I love the most the truth because I don't want to be alone. So I smile and go into the bathroom and grimace for a while. Hear from others, "Wow, you don't look 40" (I'm 54) and then go to the bathroom and cry a bit more. Looks can be deceiving.
Bobbie Johnson just read your post you sound like me have to stay strong for grandkids keep going stress triggers mine and cold weather but now trying alternative meds been on them all tramadol naproxin gaberpentin plus anti depressants trying cbd oil and cream want to stay around a bit longer lost my grandson 2018 so been horrific 18 months 🙏
I respect to you to no end for pushing through. For all your pain, you have so much strength.
Bobbie Johnson, I thought that I was a very strong lady. But unfortunatly I find out I am not. I can not hide my feelings, I struggle really bad with pain and it is killing the sparkle of life I had one day. I sometimes wished never to talk about my problems, but it is too hard to hide. It is expressed in my face, body and soul. Everybody can see I am hurting, doesnt matter if I put make up. It hurt really bad. To force a smile, no, I can not.
I admire your strengh.... hope you keep positive for long you need to be strong.
I am not seeing myself going too far. I am dead inside . I have a 9 years old daughter she is an angel and I love her with all my heart, thats why I am holding around in this world. Otherwise I wouldnt be here at all.
@@cazespino290 I hope you don’t mind me asking about your grandson. Did you lose him to suicide? I’m asking because I think of it myself. And I wonder if he struggled with pain. Sending you my love ❤
As an RN, I wish more of my coworkers would watch this. I think it should be shown in nursing school and to new employees in healthcare. Well done.
All healthcare workers should understand neuroplasticity and the science of pain. So many people suffer every day with pain.
Yes! Please!
As I sit in the Hospital after 15 years of Chronic back pain, I'm actually getting treated for my pain and not being treated like a drug addict. Funnily, exactly 1 year to the day from last year after a pain flair up and my body is yet again humbled and has a mind of its own. The Injured Soul is Hurt. Simple as that and it Hurts to be accused to be Otherwise 🙏🏻💙✌️💜
I was a nurse,Have Type 2 CRPS.I agree with you.I got this disease from a pressure sore,from a hospital acquired injury.Discharged,no aftercare.
As fellow RN I completely agree! I am a chronic pain sufferer, too.
Thank you for this! So many of us suffer with disabilities that include chronic pain and if people do not see a wheelchair or crutches, they think you are fine. Living this way takes so much more strength then anyone can imagine.
I use a wheelchair due a car accident 1978 and paralyzed from the waist down still hard to have pain medication. The DEA and CDC have bullied the Dr.s and fear losing their license to practice the yrs of med school to help not HARM patients. So scared of what comes next!
Its just terrible everytime I begin to acknowledge it I cry.
@@alicehervan9845 reading your response made me cry
I'm sorry you feel so bad
I suffer myself
Have for 25 years now
So I'm not typing empty words
I honestly and sincerely hope that you feel even a tiny bit better...
@@paramomrolling6930 hang in there
You aren't alone my friend..
@@johnfranke1374 Start of lockdown, I was using My mobility scooter, normal sized one, and was barred from even entering a supermarket, They said, only letting people in, nice eh? So what am i? Well, they lost out on spending with them, never even been near since, and I couldn't get home deliveries, so many able bodied had taken up all the slots, the last time i did manage to get one, was for Iceland, and the delivery guy threatened to beat Me up. :(
Chronic pain is hell and suffering. Surviving chronic pain is surivivng hell! To all of you with pain, I love you. It's not your fault and you don't deserve to be in pain.
I have chronic back pain as well! I lost body muscle, I lost strength, and I felt weak. I started getting back into exercising little by little. Push-ups, jumping Jack's and sit-ups is how i first started. Even though I exercise, I still feel pain, and I still feel limited. I started using resistance bands for arm workouts and body workouts. I am working on fully recovering from this back injury I am facing. I feel like my body wants to get better, but the days when i stop exercising are the days i feel pain the worse. It's only the days i work out that i dont really notice the pain. I figured that working out would lessen the pain. Im confident that continuing to exercise without wight lifting will fully heal me within a few months. I want to be the hope to all those who are going through this same situation! With the right diet and workouts and a positive mentality is what's going to keep me going! Don't give up, and stay strong, you can make it through!!!❤
@utwerps I've seen miracles, my friend. Dr's told a guy he will never walk again after a major accident. After years of practice and overwhelming training he began to walk and then soon or later he started running again. It wasn't perfect form but slowly he progressed. So with that I just want to tell you my friend " life is about never give up in life, no matter how hard the circumstances are. Take life as it gives it to you and make the best and most of it. If your hurting don't just lay around and think that's it. Move your body keep your blood flowing and moving. Strech and keep your body healthy and that is just half the struggle. Other half is your mental strength, fight through the pain, fight for your life, fight mentally and do it." Hope this helps understanding what I had to go through. Oh and I'm healed now my friend.
In tears... I totally relate. I'm 32 and have been this way most of my life. I look healthy and suffer silently. I do my best to appreciate and look at the bright side. But anyway.. Thank you for making this film. It really resonates with me and many more I'm sure. Much love.
Sabrina, your post really resonated with me. Wow!! Most of your life. I have had chronic pain for 8 yrs. After a severe whiplash injury. I had just earned my Bachelor's degree, but now, I can barely work part time. Its a nightmare! Ive studied CP for a while, and have learned its due to a damaged central nervous system. Its also humiliating to be so "weak". We are STRONG every day. I hope you are feeling better and finding ways to manage it. God bless u. V, Colorado
Giacomo Ferrario, thanks for sharing your experience. I'm sorry for the loss you suffered due to chronic pain. My whole spine is affected and I have endured 6 spinal surgeries and many procedures. I hope the pain pump and spinal cord stimulator will help me have a better quality of life. Even so, I still am in pain 24/7. Anyway, I wish you and all the chronic pain sufferers out there the very best.
vee herrera I'm laying here in 10/10 pain debating on if I should go to the hospital. I have Crohn's and Ankylosing Spondylitis. And a ton of scaring/adhesions. I hate this. Thanks for replying with love. God bless you too. And All who suffer.
@@SabrinaArmani I wish you all the best and hope you find some relief
This stuff shouldn’t exist.
She speaks for me. Anyone that does not have chronic pain could ever understand. With an acute problem people are there for you, they bring casseroles and empathy. With chronic pain it becomes normal to EVERYONE, but the person experiencing it. Talk about it and you lose friends, family. They don’t want to hear it. It doesn’t help anyway. I pray to be taken from this world often.
Your comment made me cry. So true in every way
I pray to and I wake up in pain everyday. Keep calm and carry on.
I relate to this on so manly level
It's insane
She spoke truth of my life. 8 years of constant pain all over. Functioning is nearly impossible. I'm exhausted trying to get through each day. I know pain.
People just don't understand. Then they try to compare you to someone who lost a limb. Chronic pain is never ending.
I'd be better off without the limb
This is so true. As a chronic pain sufferer, I share 95% of experiences mentioned here! Well done!
Its like someone read my thoughts and feelings...almost word to word!
I completely agree.
I agree! I thought the same thing,word for word!!!
Agree ❤
Me too
I'm here too
I have Paget's disease of the bone, multiple joint replacements, a meningioma on my spine, & chronic pain/fatigue/fibromyalgia & I gotta say, it has absolutely ruined my life. I've spent most of my 20s, all of my 30s & now most of my 40s (I'm 46 now) suffering every day w/ very loud, unrelenting pain. My heart goes out to all of you out there suffering. I know how you feel
I'm replying to an old comment, so you may not read this... Do you get any sympathy from extended family. I've been suffering since 2003. I've basically been told to shut up. Practically told I'm faking. I'm not faking. My life has been stolen by this fatigue, widespread muscle pain, brain fog. I wake up exhausted every single day.
I'm so sorry for you. I've had joint problems since I was 20 years old, I'm now 33, the past 13 years have been hell. I am so scared that soon I'll be in my 40s and it will just be the same. My whole youth, gone, my whole life, gone.
how are you Now?
Oh wow y’all I never got any notifications till today.
Yes it’s isolating & frustrating when no one listens or even worse, accuses you of lying.
There’s a fibro treatment trial going on rn in California headed by Dr Bruce Gillis. They’ve found unusually low levels of certain immune cells in ppl w/ fibro, and are testing a possible treatment. Look up FM/a blood test
thank you for explaining to people what living with chronic pain is really like.
She took the words out of my mouth. I'm only 38, I've had fibromyalgia since 33...The pain has overtaken my life :(
Hello from Canada, Fibro sufferer here.
Powerful! I'm in tears....because I'm her. Nobody cares. God forbid someone asks me how I'm doing. I don't need to worry about that because no one ever asks. My doctor told me she doesn't know what else she can do for me. She said she'd refer me to pain management. Then she said pain management doesn't believe in Fibromyalgia. I've been real close to calling it a day . I pray every night that I don't wake up the next day. What I'm going through isn't living
@Anna-Maria thank you so much 🙏
You know what they say. Out of sight, out of mind. No one can see your pain. I am 67. Been in chronic pain most of my life. Fibromyalgia. Now osteoarthritis. Nothing stops the pain. I am in tears crying every day. Some days are worse than othĝers. I can't sleep for the pain. Gp,s should be held accountable for the cruelness to thier patients. Thank you for this video.
I have heard "well, you look alright " by so many Drs !! I'm sick of hearing it. I stay home and suffer in silence most the time. I would love to have a boyfriend or even a friend! I would be happy just having someone sit by me. There are so many things people my age and much older are getting to do but I can't. This video is my life and I pray everyday and night for it to be over. I'm nothing like the happy, carefree, energetic person I used to be. I'm not important and I know I wouldn't be missed. I'm already not missed. If I died, nobody would even know I was dead until half my body was rotted away. Oh wait, manager would probably find me, wanting rent money! I'm so very sorry for anyone in pain every day and night. I wish more people would at least try to understand how horrible it makes us feel and how draining it is both physically and mentally! I'm always praying for my peeps in pain!! 💝💙🌹🙏
Malisa Hey.. are you still alive? Worried about you.
I understand I really do and I’m so sorry you do too.
I asked my attorney if i should gain a few stone so people will believe I'm ill!
Hey I hope u are much better love
Same here I would really like to meet someone and have a girlfriend but I don't know in this day in age it's not easy and I like to be friends first I always try and be friends first
Same here Malisa. I feel the same way, and it's a very lonely life. Knowing you'll be alone forever, no one understands invisible pain. It ruins our lives. I don't have friends or a relationship either. No one gets it. This is no life for anyone.
I've lived with pain for 8 years due to a neck injury. It stole my life! I can't travel, work productively, and my social life is in the pits. Its hard because if we talk about it, then we're focused on it and pitiful. Well, we need to talk about it!! Fibromyalgia is a condition in which the cells and nerves are registering pain pain PAIN! I hope to be well one day. In the meantime, I'm in pain meds that help much of the time, but I'm still in pain. THANK U FOR POSTING. God bless all of us
Hi Vee
My name is Ace McDermott
I am a professional Mentalist specializing in Pain Management
I would be more than happy to teach you how to tap into your subconscious and become Pain Free within minutes
If you care to contact me on my FB page
Pain Management Guru
BTW its FREE
Cheers
Ace
God bless you too, little warrior.
I had a neck injury also and I developed CRPS/RSD.
Yes the meds just make the pain bearable. Without them I would probably live in bed and that’s just not me.
as a chronic pain sufferer i wish i could make people understand how we feel most people have no clue
Nobody truly understands our daily hell of pain. Unless the live it.
26 years old, 3 buldging disks in my neck (no prior neck injury). Never thought I’d be in this position, chronic pain for 2 years now. Life changing
Please check out John Ernest Sarno Jr. if not already. Stay well.
I've been told, "You're always in pain", as if it's an inconvenience for them.
My house used to be bustling,food and booze parties every weekend,anyone's birthday or any celebration was held there because of my cooking. Now its crickets,the once place to be is now avoided. Rice krispies and chips are about all I can manage. Even people close have looked with disgust at my condition because they think I'm exaggerating. It sucks.
I started having pain at age 19. I never knew that it would get worst. I see the comments here and I see I am not alone. This is the first time I have seen anything that has acknowledge everything I am going through now at age 41. Its nice to know that I am not crazy nor lazy. We need more eyes on this in the medical community. This video is on point.
Felicia Griffiths I am 13 and I suffer I have been for three years and I feel you
Thank you, very much appreciated. She is the voice of most of us.
Millions of us !
Agree ❤
I've been dealing with chronic pain in multiple places for 5 years now. I am beyond thankful to have a support system that loves me, that never makes me feel like a burden. If anything, they have their own health issues, so we all support each other however we can. I've learned to accept the pain, and honestly, I don't think I've ever been happier in my life to simply just be. Trying to resist the pain made me depressed, so I stopped trying and just surrendered to it. There is nothing I can do, so might as well make friends and try to take care of myself as much as I can. Surrendering control gave me everything that I needed, and I now live day by day.
it's sad how the pain affects so many aspects of our lives that the only thing we start looking forward to is the relief of death.
we're quite literally being tortured by our own bodies, how cruel is that...
This is spot on. Thanks for giving us a voice!
Suffering from FMS for 30 yrs but diagnosed 3 yrs ago, I've lived with pain 24/7 i knew It wasn't 'in my head ' .people stop and say 'you look good' and I was actually in agony, because that day I'd made the effort to,make up on and dress well, even tho most days i cant hold anything I feel like screaming.. But you smile and say ' yes I'm fine thank you ' this video says it very well.. And simply. Thank you xx
I suffer with it as well. It can be a living hell. It changes you over time. Like carrying around a demon inside you that always want's to get out and be angry at people. Little things can trigger bad social reactions as folks don't realize you are already clenching your teeth in pain and trying to be calm.
LOL! I've broken two teeth already! Holding in the screams! But i get no credit for it!
Exactly! Sitting on hard chairs for an hour waiting for the doctor can set it off. I always look very angry and have a pinched face from clenching my teeth because it's all I can do. Then it escalates me going into an appt angry because I'm already in so much pain from just waiting. Chairs without armrests are horrible too.
TechWith Todd I am 13 and have suffered for 3 years and I feel you thx for being there
Thank you, as if you’re living my life 🙏
Severe, unrenting pain, exhaustion and migraines are going to finish me off ...just 'waiting' for for elderly mum to pass on, and then I'm going to go too. They put animals to sleep if they are in this much pain, but they won't do it if you are a human being! You have to do it yourself.
Gd...I feel exactly the same way. I hope you have found peace..💗
are you ok now?
I feel the same way 😭I just dont know what to do with my life anymore 😔
It's so hard :(
It’s tough, but we have to stick together and stand strong for each other, because only we understand what it’s like.
Two dogs and a cat! Responsibilities! Otherwise, I'm done!
I'm 55 and suffered with chronic back and leg pain for over 8 years. Everything in this video is true for me. It's like she's talking about me. I haven't been able to work for years and friends have just gone by the wayside. I'm not able to stand or sit for any length of time and at times feel absolutely useless. The worse part is that nobody can see what is wrong to fix it. I feel that most of the time I exist from day to day rather than live. I'm still willing to try anything that I can find to help ease the pain. This video tells a story of someone like me and many others living with chronic pain and I am thankful it's available for everyone to see. Thanks
Went out for Christmas with our two younger kids (27, 23 years) and our wonderful daughter’s boyfriend. I was hurting very badly but didn’t complain. I will be in bed for a few days to have a night out with them and my husband. That's something they don't need to know. Obviously hubby will be in on the fascade, but that's ok because he can handle it by now (it's been 24 years). I love them all so much, so I kept my pain to myself and we bonded. Wish I could say what’s really going on and that I’ll likely be in bed for the rest of the weekend to make this night happen. But It’s ok - it’s what living this life is all about at times.
A very honest look at a situation that I unfortunately share. Yes, there are good pain clinics which offer multi-disciplinary support to sufferers of chronic pain, but they are few and far between. The hardest part is needing to reconcile with the fact of having something that is sometimes undiagnosable, 'chronic', incurable and invisible that robs you of who you were and forces you to accept a new reality which is full of pain and limitations. 'Old before my time' definitely resonates. Thank you for posting this video.
from what I understand pain clinic means many trips to town like once a week to start. I do not have the energy or desire to drive 45 min to town.
I have suffered almost my entire life like this and it has only gotten worse as I get older. I'm 49 now and haven't been able to work in over 5 years. It's such a sad existence. Somehow it helps a bit to hear others going through the same struggles because being in pain is being trapped in your own body, alone, and this makes me feel like I'm not alone. Good Luck to anyone reading this, I hope you get your miracle, your answers, relief, and happiness. I will always search for insight and answers. I still have hope that someday I will be able to wake in the morning and tackle my dreams. I will play with my grandkids and meet new people and walk my dog as long as I want, in the fresh air, planning my days and crushing my goals.
This film really touches my heart. I have been in chronic pain over 25 years and sometimes feel like giving up. Everything I feel is here in the actress' words.
I am sad that "I" am not here anymore.
As a 32 year chronic pain person I never think that deeply. My thoughts are all superficial and limited to what's absolutely necessary.
This is my greatest fear being realized
I’m 23 and experience this every day of my life for the past 2 years… and it’s a extreme struggle but from what I’ve learned this is actually a form of depression.
Visit Doctor Ani John on RUclips channel his herbal medication is the best and permanent solution to all kinds of virus disease and STDs contact him now for help he cured mine..
Chronic pain is not a form of depression. I have a genetic connective tissue disorder that causes extreme, chronic pain which started over 20 years in early adulthood. I never had depression until I had to live in a torture chamber24/7/365 and lost my career, financial independence, friends, family, free will, etc. I had a great life until this disorder I was born with got triggered by a "sick building" I worked in for a month prior. It would be better if my disorder were terminal and I would not wish this on anyone. Perhaps you have depression which causes some aches and pains, but when you throw up all day from severe pain and have a dozen comorbid conditions, are a double transplant recipient, visually impaired, and on and on, it is definitely not just depression.
you are not alone, we live in the same world with all the pain the doctor's cant fix as we would need a all new spine. hugs
I can truly relate to this. Thank you for this honest and upfront portray of living with chronic pain on an everyday basis. It's really sad when people and sometimes even your friends or family start seeing you as a constant drag (and that's how you start feeling yourself after some time after experiencing rejection, misunderstanding, losing friends, feeling like you cannot meet other's and your own expectations, falling behind physically and eventually also emotionally and psychologically, living in a perpetual state of uncertainty, being sucked up by the negative thoughts of your own mind...so many aspects to consider and work on to live a more or less normal life) as if you were supposed to be cheerful all the time in the first place. Understanding how someone with a chronic condition feels and what s/he experiences is difficult and also very burdensome for the one having the condition due to the recurring feeling of confusion, the feeling that you don't really belong, that you are not yourself, losing the sense of self all together, falling into despair and depression and withdrawing from life and people even more. Living with chronic pain requires a lot of energy and strength, qualities that most of the time just go unnoticed, while all you crave for is a bit of understanding and compassion and not having to explain yourself all the time. Hopefully, as more awareness is drawn, people's perception will change with time.
💜🙏
I hear you 100%. I'm sorry.
Thank you so much for this! I've been struggling with chronic pain for 21 years now. I'm having a particularly rough week due to weather, a mistake with a med refill, and waiting on approval for my infusion due to an insurance change (USA problems). Everything struck a chord with me, and while I wouldn't wish this on anyone, the small comfort of the reminder that I am not alone really does help. It's crazy that I feel more seen and heard watching a video than I do by my actual health professionals. Thank you. To all that helped with this video, and those reading this comment, I hope you have more good days than bad!
Thank you, Thank you , Thank you for this honesty. I feel so alone being rather young and having Chronic pain as well as other problems. This gives me hope that some people in the world do understand.
I can totally understand your pain and how the pain makes you feel.I am hoping and praying for you to have some relief.
Not gonna happen! #opiatewitchhunt
Thank you so much for this. I obviously know there are people out there that struggled. But I feel so alone and this video reminded me that there are people out there that understand. Thank you
Great video. I am living this life. So hard, but the shift I believe is possible. The surrender must take place in the mind. When this happens with time and self compassion I think it is possible to live a life of value with the pain. Good luck to all who feel pain.
16 years of pain and fatigue that has me on the edge of darkness every day. No one has been able to prescribe a drug or a treatment that has worked to help me. I know that people don't believe me. Even my loved ones don't take me seriously. I force myself to do things otherwise I'd be homeless if I didn't work, I'd be living in squalor because I didn't clean. Thank god for take out food, I'd starve, because I can't cook most of the time. Oh but I look so good. Whatever. I'm dying inside.
You have to know I UNDERSTAND. I'm 54 and people think I look under 40. But that's not the real story - what's going on inside is nothing anyone would ever want. Outsides do NOT match insides. I've often said to my husband, "Maybe if I had a big, gaping wound, someone would take me seriously for God's sake," I'm sorry you're going through this horrible time - I've been dealing with this for 24 years. Send me a note (camjjaj@comcast.net) and I can maybe help with finding a good doctor. I'm serious, I will respond and try to help as much as I can! Take care,
Bobbie
Mindy Reed Jones those who don’t take you seriously aren’t loved ones
OMG Yes this video speaks so much about what I have been through in the last eight years!!
This hits nail on head totally. 😫 suffered with long term chronic pain for over 10 years
I've had Chronic pain since 2005, but chronic pain no longer has me. Managing pain takes years of dedication, but it can be done. Don't lose hope.
Absolutely spot on
This is the best video on chronic pain I have seen. This is exactly how it is. Thank you.
Wow that hit home. Could not have described it better. Going through absolute hell right now. Thank you for reminding me I’m not alone.
I’ve been using CBD for a few yrs and do find it helps at night with melatonin so I get some decent sleep. Can’t afford to take the amount I need to during the day as well unfortunately 😕. Doesn’t do much of anything for the pain but definitely helps with my anxiety which is sometimes more crippling so I’m thankful for that! Ty for reply!
Chronic pain sufferer for 23 years. What gets me the most is the exhaustion that comes with battling it constantly. Family tell me, oh my back hurts too, my feet hurt too l know what you mean. But l can see they don’t have a clue. They compare their pain to mine and then walk 2 miles, or take a week long trip etc. they don’t have a clue.
🧡
EXACTLY! I JUST CAN'T STOP THINKING ABOUT THE OLD ME HOW I WAS BEFORE THIS WAY THAT I AM NOW! WANTING SO BAD TO JUST TAKE TIME BACK INTO THAT TIME AGAIN WITH NO SYMPTOMS BUT BEING WHOLE AND LIGHT AGAIN
You are saying everything I feel all the time... doctors have been the biggest disappoinment to me...i know I have 2 choices... try to be as happy as I can as this version of myself or live miserable, sad and angry...the second hurts the me inside even more so I try to give myself the love and happiness I've lost because of the CONSTANT pain... it's hard... you and everyone suffering from chronic pain lives in my heart every single day...I know I'm not alone and I wish I could give you all a miracle
Same I'm 12years old and I was in a car accident it was last year and I'm still struggling with this pain until now they're saying it's normal and just me growing it's affecting my life
@@unknownukhtiii wow!!! My heart is with you 💝... what can I do to support you... for now I work hard at asking for strength since freedom from pain hasn't happened yet but some days strength is harder to find than others... I send you strength and love and peace my friend
@@michelledelling7648 thank you and I hope you will recover yes it's very hard
Thank You for saying what your saying.I have the same monkey on my back for almost 30 yrs. I don't know who I am anymore,and everyone in my life has either died or left me because they can't deal with a half a man...I don't have to tell you what that feels like.I have a pain Dr. and he has helped me a lot but the pain never leaves it just changes and then back to the same old monster. P.S. I can look at your face and see your pain ( not meaning you).I know what your going through..I considered suicide but just can't give up for some reason.I haven't figured that out yet.
You pulled the words from my mind... Im 23 and live in chronic pain from sciatica, had surgery 3 years ago which reduced the pain for a while but lately its intensified... Ive had to go through so much for someone my age... I just dont feel i have the energy to carry on anymore...
Hi Nathan,
My name is Ace McDermott AKA The Pain Management Guru
I am a professional Mentalist that specializes in Pain Management.
Over the past 2 years I have taught 4652 people how to tap into their subconscious and become PAIN FREE in minutes.I would be more than happy to help you FOR FEEE.
Please check out my testimonials of my FB page Pain Management Guru and send me a message
Cheers
Ace
I feel you 100%, I'm 24 now. Been dealing with sciatica for the last 2-3 years and the longer it goes on i've lost all hope.
I cried so hard when I first watched this, thank you
I have widespread pain which is getting worse and worse 😞 the joys of Ehlers Danlos syndrome. So many people act like mine couldn’t possibly be that bad because I’m “too young” when I bring it up to older members of my family they treat it like a competition of who’s in the worst pain.
I know exactly how she feels
good morning
So do I
Carol Ossai-Nwosu me too 😔
Yep me too
This is so sad but so true. But they can see my crippling Rheumatoid arthritis but won't treat my pain.
Why would they not treat your arthritis?
This is so true ! I have suffered with Fibromyalgia for about 30 years and in constant pain. I have seen everyone from doctors issuing various tablets, physio, homeopathic doctor, acupuncture, chiropractor, support groups and spent an absolute fortune !!!! For me, I have found coming off all tablets (as they gave me headaches) pace myself, keep myself occupied, listening to music, healthy diet, catching up with friends for a coffee (nothing too tiring) has been the best remedy. Its certainly not easy, but lets not give up we can do this ! x
When chronic pain comes through the front door quality of life goes right out the back!
I know EXACTLY what you mean Jack_knife,
Not always. We help people get their quality of life back. Pain is processed and managed in the brain.
Everything you said was so true, and the judgment be others, whether medical personnel or friends, family, colleagues, etc, has only gotten worse nowadays!
Omg. I feel you. I am sorry for your struggle. Depression has set in for me now. Life is passing me by. There is no joy because pain took its place. I injured my back being a nurse for decades. I gave my heart and soul to help others and it has robbed me of being able to dress myself, shower and use the bathroom even, by myself. I wake up crying almost in a coma state wondering if the pain has killed me or if I'm still alive. I cant cook or clean. I cant sleep some days. I just breathe and wait for death. The first few years I tried every treatment I could find and therapy and pill and oil and exercise and stretching and heat and bemer, electro magnetic therapy and oxygenation and infra red light therapy and raising my frequency and needles and anti inflammation diet etc etc etc....therapy to trick my brain into believing what I tell it. Prayer, meditation, music, massage .....I have lost hope and friends and dignity. I am wheeled in a chair if I go out and am treated like I'm retarded and I am called THE DISABLED .....Its not something I ever thought would be my story. After being a basket ball player and on the swim team and jogging the 10k monthly and always hiking and loving gardening and being active. I would jog in the rain as a younger me and think about how the rest of the world was missing out.....now I'm the one gaining weight and inches desperately wishing I could have my old life back waiting for the silver lining of this tragedy... wondering why, too overtaken by my pain to survive. Now terrified of the ending....
Fully aware that pain can be intense enough to stop my heart...and wonder as I move in and out of consciousnesses if I'm ready to cross over spiritually but knowing I cant hang on anymore physically....
My heart goes out to every person that knows this type of pain....may there be peace at the end of the journey
💜🙏🌸
Wow! This is such an accurate account of living in constant pain.
Wow, thank you so much for putting it into words! I just say I'm making it when asked. I push myself to keep from being criticized by some that do not understand.
That broken arm analogy is what I always think about, how nice it would be if that the case instead of this chronic pain.
This is a wonderfoul resource for not only people with chronic pain but also all those who are connected or involved in their lives. The video, in my mind, makes 'sense' a complex condition which requires a sensitive, individualised and informed approach. Wish it was made during my physiotherapy training.
I'm sending it to everyone I know. EVERYONE. I don't care anymore - they have to know what it's like to live this ilfe.
I envy people who come home from a long day n say,"ooh i need a lie down"n they hv d most restful sleep n wake up feeling great. I stay under a hot shower most hours of d day just to lull myself to sleep.but i wake up from d pain anyway.i miss my old self.i dont wana say stay strong coz u tell urself that everyday.i just want to say i know how it feels n im sorry this is happening to u too
Thank you for sharing… I am dealing with chronic pain for 14 Yrs, then had an accident last yr, debilitating… I should be in a wheelchair or with an assistive device. I so identify with your story, everything… absolutely, everything…The only one who stuck by me was my husband.
Found something that gave me a lot of relief. I wish you pain free living, soon. Would love to hear how you are doing?
FINALLY, someone who "gets it"! I cried through half of this. I've had fibromyalgia for many years. But 3 years ago, a new pain started, first my hip, then shoulder, low back. And now it's in my upper shoulders and neck, and it's unbearable at times! I've seen specialist after specialist. My white cell counts swing up,then back down repeatedly. No one has an answer. And friends have just stopped coming around. At times, I feel like it's hopeless, and I worry I may be dying and they won't figure it out because doctors are tired of me. Everything she said, I've felt!!
I am really touched by this video, I was in a motorcycle accident 10 yrs ago I snapped my pelvis 8 cm and I have two plates in it I had to learn how to walk again and,i am a truck driver by trade..I thought going back to work right away was the best thing because I had a family to support and my ex wife wasn't the working type so I made the decision to go back, I started out taking 3-4 pain pills a day,now I'm up to 15-20 I spend most of my money on them so I'm working to support my habit,im depressed everyday and I keep thinking of taking my firearm and ending it all I'm never happy and I honestly don't think that it's going to get any better for me,if anyone reads this I pray for you that you don't go through what I have been
I am really sorry to hear about what you have gone through and what you continue to suffer with. You definitely aren't alone but I'm sure none of that matters to you because the pain is overwhelming regardless. I am reluctant to give you any kind of advice on taking pills but I personally take 4-6 10/325 Percocet pills a day along with 9 pills of 300mg gabapentin and 2 10mg baclofen pills and I've been doing that for years all for about 25% pain reduction. It really sucks. I can't enjoy life. I have no social life and I can barely spend any time with my teenage son. It is terrible to feel so useless. I've been like this for about 8 years now. Doctors have been mostly useless. My liver is now getting damaged from all the pills I take. I worry about my liver going out and being the thing that kills me. I know it is a hard thing to consider but try to find other ways to deal with your pain than only pills. I don't know what you are taking but most drugs will affect some organ in your body. Pain pills usually affect the liver. I will pray for you and I hope that one day you will find some relief from the pain you suffer from. 🙏
@@issaciams I thank you for for letting me know that I'm not alone,yes the pain is just too much to bare but I have to work in order to survive, there's days I cannot get out of bed all the things you take I also take funny reading your post had me looking in the mirror I will pray for you because I also don't have the opportunity to spend time with my children or grand kids and they're young so they don't understand if it's ok with you I would like to exchange emails so we can keep in touch and keep each other motivated mine is blew4630@gmail.com...good bless you and thank you for replying
Try curcumin pills. Eat more pineapple. It contains en enzyme that helps with pain. Eat fresh ginger and take ginger pills. Research plants that ease pain.
Good bless you all for replying and advice I'm just trying to make it work but I know eventually something is going to happen, people who are not going through what I am judge me every chance they get but the same ones are either alcoholics or worse I go to pain management to find other alternatives but it's all about surgery that would help this,I just want to live a normal life again but, I am grateful for good saving mine and my son's life the night and I'm blessed that I got the worst end of the accident and not him, so we are all part of a club and I will be here for all of you anytime you need to talk
She's a wonderful actress with such a soothing voice!
Thanks to the producers of this film - this is a very, VERY real situation!!!
This is very real thousands of adults have this same experience daily and suffer in silence as they sit alone with the ever present pain~passing them selves she says at the end all that means is missing out on what used to be called life~☼~
This is most everyone's reality living with chronic pain, no matter where in the world we find ourselves.
Yup, me too. Passed on a date today AND lay at the pool with my sister. I am in bed and can't even get comfortable to sleep at night. It is literally a living hell.
Beautifully done. This is so me, I really appreciated this film very much. I posted it on my facebook page too. Still it is frustrating to go to doctor after doctor.....like you are not worthy of more investigation to find the problem and cure. That is when you are all alone again.
I'm Living with Central Pain Syndrome. Without a visible physical injury, nobody believes the pain, the fire and burning of an entire left side. The medical industry doesn't understand and do put you in the category of Mental Health instead of listening and learning to the patient with chronic pain. Good video.
Kelly Chastain I'm so glad my hand therapist give me this site I have burning skin and chronic pain on my left shoulder to my hands my wrist and fingers to my knuckles have stopped moving for over six years now and we are trying different pain relief now to try and control my daily pain of plus 10 ,I find it hard to cope with most days and people don't understand as they don't see my problems ,great video
So sorry you feel this way - my Ankylosing is difficult to detect on any type of X=ray, MRI, CT Scan an even my ANA, CRP and SED RATE can be ok and I'm absolutely miserable. We need doctors who believe us as people, not ml/oz or whatever other chart they use to determine our pain. They need to listen and believe what we say. Who in their right mind would want to go to all of these humiliating, stressful appointments if there wasn't anything wrong? We're in pain, not crazy.
Bobbie Johnson Exactly.
Excellent video! So true & I totally hear you ... Passing it on!
I don't know if this is what I have, but I do hope it helps my husband understand what i'm going through. Thank you. I think you have helped more people than you know.
this is 8 years old but wow I’ve never felt so seen or heard by her and the people commenting. I burst into tears
After numerous surgeries and injections and every other kind of treatment I’ve come to the reality that my life is now going to be different. It has to be. I am retiring early from elementary education and doing what the video suggests doing. Things that make me happy. I will enjoy the days that my body will allow and take care of my body on the days it hurts. It’s been a long journey to get to this point but making the decision has brought me some relief.
Well said....that’s my life to. 😌
I've been going through this for a few years now and it feels like you're alone and you're exactly right I'm being pushed around from Doctor to doctor with no real help I feel so alone thank you for this video
You summed up my life in ten minutes. You are not alone.
Giving up what you love is so hard. I can't be who I was meant to be.
People lack empathy. Unless they suffer, they don't know
Those who see this and are living truly in constant full body pain...would tear up. Period. 😖
I wake up to and it puts me to bed. It's my companion that I can't shake except a few glorious moments once in a while
This is so spot on. You slowly loose your best of friends, the people you have worked with for so long and even your family. The worst of all is that they turn against you. You hear the snickers in the background and comments just out your reach of hearing. You slowly get to the point where what you used to be able to hide, can’t be hidden anymore. Don’t ever give up or look for sympathy, but realize that everyone is looking out for number one. And you are indeed number one, only second to God.
There is no god.
This is me to a exactly. I was born with it and struggled my whole life. When I was little they were worried about my development, when I was a child they called it growing pains. When I was a teen I was diagnosed with klifelter's but they called the pain unrelated. In college they called it stress. In graduate school depression and anxiety and in the work places after 10 jobs in 6 years they call it fibromyalgia and tell me to change my lifestyle. Today is a bad day. Cant get out of bed. Have no energy to even lift a glass. I'm not depressed, I'm not stressed and it is not in my head. Bc I want more than anything to run, to work. To play. I'm stuck only physically not mentally for in my mind and with the internet to connect I am free. Thanks for this video. It helps to know I'm not alone.
This is a perfect representation of what we all feel
Thank you so much for this video! After 16 years of living with chronic pelvic pain, severe back pain, nerve pain and so on i finally found a doctor who diagnosed me with symptomatic Tarlov cysts. After 18 years they also found out i have small fibre neuropathy. Most doctors have never heard of these ilnessess and some still think it is not a big deal. I also have a lot of pain every day and every night. Doctors don't always know the cause of someone's pain but it is definitely not ok if they tell patiënts that it is psychological when they don't know the cause. Gaslighting causes severe damage on top of the physical pain. A video like this is very important to make people understand. Have courage ❤
Truly, this is spot on. Thank-You for sharing. :-) Indeed, living with chronic pain is unbelievable. (impo / experiences) - Chronic Pain beyond most anything, even the most horrible of occurrence, chronic pain is relentless. Prayers, love blessings & hope to each & every soul dealing with such. My thoughts are with all of us - please let us know we are not alone; although it quite feels that way much. Blessings - many Blessings!
First accurate description I have heard that I relate with in full. My heart goes out to anybody with this condition.
Me too. Eleven years now and counting. I don't know if they'll do the surgery this year and fix my hip. Then there's the cracked lower spine. The pain is that severe I can barely function. I've lost my identity. My heart goes out to all having to live this way, with pain.
Hi Faith
My name is Ace McDermott
I am a professional Mentalist that specializes in teaching people how to tap into their subconscious and become Pain Free within minutes without meds or surgery
I have contacted alot of people on this Chanel with the same offer.
Contact me on my FB page Pain Management Guru and Ill help you for FREE
Cheers
Ace
I have heard a number of these comments in clinical practice on numerous occasions, very thought provoking.
Thank you. Exactly how I feel every moment of every day. So difficult and heartbreaking silent burden to carry and the only solution seems to be pain meds which have been the downfall of many as they change personalities and steal away ambition. There has got to be a better way.
This is the most helpful video I have ever seen. I was diagnosed with RA 7 years ago. I haven’t had a pain free day since.
Thank you so much for this video it explains everything I couldn’t articulate and get out and explain to people
This is rather accurate.