Symptoms: My First MS Attack
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- Опубликовано: 11 сен 2024
- It's the anniversary of my first Multiple Sclerosis (MS) attack. This past year has been tumultuous and scary. I've never been so beaten down by life-MS being only part of the story. I've also never known myself so well. Life is so much more fluid and changeable than we like to admit-and so are we. We can all change. We don't have to be defined by our past, by our circumstances, by our health. The especially difficult, defining moments don't have to be confining. I see all of these difficulties as opportunities to define myself anew.
I choose not to be defined by my diagnosis.
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Please note that this video is about my story, my symptoms. I'm not a medical professional. This is not to be used to aid in the diagnosis, treatment, etc. of MS or any other disease. No medical advice here-please seek professional medical advice for your needs.
By watching this video or reading any comments, you agree that I am not responsible for any health-related decisions you make as a result of this content. Any reliance you place on the information in this video is strictly at your own risk.
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Join the Not Defined Facebook Group:
/ notdefinedms
Please note that this video is about my story, my symptoms. I'm not a medical professional. This is not to be used to aid in the diagnosis, treatment, etc. of MS or any other disease. No medical advice here-please seek professional medical advice for your needs.
By watching this video or reading any comments, you agree that I am not responsible for any health-related decisions you make as a result of this content. Any reliance you place on the information in this video is strictly at your own risk.
Disclaimer out of the way, I so appreciate the experiences that have been shared here in the comments. For anyone struggling, I'm with you, I mourn with you, I cry with you. Thanks for hanging in there with me.
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!! #CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!#CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!#CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown 56that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
HELP facilitate research in the treatment and understanding of Neurovascular Disease like recognized Medical condition CCSVI significant causative factor in the Symptoms of so called Multiple Sclerosis! #CCSVI
Postingn in FB Group: MultipleStenosisSociety are preferred to be Circulatory or Blood pressure/flow constriction related! Information outside this criteria can best made available in Facebook group:
MS Nation CCSVI Pro-active
facebook.com/groups/191328180934162/?ref=share
Postingn in FB Group: MultipleStenosisSociety are preferred to be Circulatory or Blood pressure/flow constriction related! Information outside this criteria can best made available in Facebook group:
MS Nation CCSVI Pro-active
facebook.com/groups/191328180934162/?ref=share
So called Multiple Sclerosis is/HAS the BIGGEST at best one of the BIGGEST scam of a sham autoimmune THEORY CON JOBS to have ever existed!
One thing I think that’s important to note is that everything is always justified and brushed off as something normal until one day you just can’t excuse it anymore and you have a moment where you finally accept that something is wrong
I stumbled onto a great find. I had earplugs in both ears. My neighbor came up to my porch to chat and i only took ONE earplug out. When I went back in my house, I realized my vertigo/dizziness was SO MUCH BETTER! I've been wearing ONE earplug almost all the time now. I CAN'T BELIEVE how something so little can make such big difference!
You have ms ?
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!! #CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!#CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!#CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown 56that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
HELP facilitate research in the treatment and understanding of Neurovascular Disease like recognized Medical condition CCSVI significant causative factor in the Symptoms of so called Multiple Sclerosis! #CCSVI
Postingn in FB Group: MultipleStenosisSociety are preferred to be Circulatory or Blood pressure/flow constriction related! Information outside this criteria can best made available in Facebook group:
MS Nation CCSVI Pro-active
facebook.com/groups/191328180934162/?ref=share
Postingn in FB Group: MultipleStenosisSociety are preferred to be Circulatory or Blood pressure/flow constriction related! Information outside this criteria can best made available in Facebook group:
MS Nation CCSVI Pro-active
facebook.com/groups/191328180934162/?ref=share
So called Multiple Sclerosis is/HAS the BIGGEST at best one of the BIGGEST scam of a sham autoimmune THEORY CON JOBS to have ever existed!
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!! #CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!#CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!!#CCSVI
If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely!
Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI
OK what it is............ Multiple Sclerosis is/HAS been an unproven autoimmune THEORY. Neurologists who treat the condition are the so called experts that 'TREAT' the so called UNPROVEN autoimmune affliction. Studies have shown 56that MS Pharmaceuticals Neurologists prescribe are only 20-40% effctive, DO not slow progression and often have harsh corrosive side affects sometimes Death.
This could be due to the fact that the cause of the unproven autoimmune THEORY is unknown (according to Neurologists). YET! MS Pharmaceuticals that 'TREAT' (according to Neurologists) an unknown autoimmune THEORY disease. Has no known cause comprises a $14-60Billion w/ a. B industry according to Studies.
Possibly you are familiar with Vascular component to the Multiple Sclerosis affliction. Which the Stenosis Condition CCSVI being Scientifically Proven and Confirmed, as Causative factor, in the Pathology of so called Multiple Sclerosis!
HELP facilitate research in the treatment and understanding of Neurovascular Disease like recognized Medical condition CCSVI significant causative factor in the Symptoms of so called Multiple Sclerosis! #CCSVI
Postingn in FB Group: MultipleStenosisSociety are preferred to be Circulatory or Blood pressure/flow constriction related! Information outside this criteria can best made available in Facebook group:
MS Nation CCSVI Pro-active
facebook.com/groups/191328180934162/?ref=share
Postingn in FB Group: MultipleStenosisSociety are preferred to be Circulatory or Blood pressure/flow constriction related! Information outside this criteria can best made available in Facebook group:
MS Nation CCSVI Pro-active
facebook.com/groups/191328180934162/?ref=share
So called Multiple Sclerosis is/HAS the BIGGEST at best one of the BIGGEST scam of a sham autoimmune THEORY CON JOBS to have ever existed!
my balance is crap! i am going to order earplugs right now!! which side do i put earplug? On the side with hearing issue??
Oh man, this is so relatable. I'm on the first 3 days of this same thing and just got discharged from the ER - am getting my MRI tomorrow. Great video!
How are you doing?
@@NotDefined I have needle pins on toes and fingers sensation, pain on both knees, fatigue and heavy eyes like she described on video some days. I did brain and whole spine mri, brain was normal, the spine i have 2 herniated discs one on neck other on lower back. Could this be MS or maybe the herniated discs? I am 25yo male
@@rodl6759 I'm so sorry to hear you're experiencing that. I'm not a doctor, so I have no idea what would be the cause of your symptoms.
If it were me, I would definitely get some advice from a doctor or neurologist (1st priority) and maybe a physical therapist (2nd priority) if you're able to do that. Getting your MRIs to them should help them understand your situation.
It helps a lot to have a copy of your MRIs on a disc (you should be able to get that from the clinic or hospital where you had your MRI). That way if you're going to a doctor for the first time, you can have them pull it up right there in your consultation.
What was your diagnosis
@@rodl6759, with normal MRIs and a lumber puncture -spinal tap no. Get checked for Coeliac disease, magnesium and vitamin B insufficiency etc.
I'm not sure why I teared up...
You are so strong and simply incredible!
Thank you for this video 💖
I'm trying to get doctors to listen to me about what I'm experiencing. The dizziness/numbness/weakness comes in waves and lasts around 1 or 2 hours. But I'm fatigued and in pain all the time. They keep saying it's a vitamin D deficiency and giving me tablets. But I can just feel it, that there's something else wrong. A nurse I saw recently said to just go through the motions of what the doctors are saying, and keep pushing for further tests. So that's what I'm going to do. At this point I'd be relieved to have any kind of diagnosis. There's nothing worse than feeling this way and not knowing why...
100% it is the worst to be in that gray area of not knowing. I'm so sorry you've had to go through it for so long. I wish you the best and that you'll get some answers soon.
Thank you so much for the comment. You've got this! We're all rooting for you.
I have been in that gray area 2,5 years now. It does get easier as you realise; your life has changed no matter what and you need to adjust and accept. The diagnosis does not change those facts.
And also you start being more and more sure that something is wrong and you stop believing the gasligting of your doctors. It does help to stop the spinning of the mind and gives you confidence over your own symptoms.
It does not matter if all the bloodtests come back normal. It does not mean that something is not wrong.
Also, concept; you can also gaslight yourself! Do track your symptoms well for a month or two. And then after that when there is sudden increase of symptoms from the baseline.
Also, give life examples to the doctors how the symptoms effect your life; example: "Fatigue is so bad that I sleep x amount of time etc. Or can not go for walks or can not do basic tasks etc."
Anyway, I wish that you get out of that gray area soon!!! It is maddening to be in this limbo. It is not your fault and eventually you will find the answers!
Check B12 absorption too.
MS really sucks! I was only 17 when I started with optic neuritis. Nearly 25 and I’ve had optic neuritis multiple times, numbness down one side, diplopia, had issues dragging my leg behind me when walking. It just seems like one thing after another! Luckily I’m currently pretty “normal”. I’ve tried Rebif (didn’t work), Gilenya was working amazing but I was JC virus positive and at higher risk of PML so been on one course of Mavenclad so far.
This video was so well made!🥰 and I hope everyone stays as healthy as possible!
I feel you, there! I'm so sorry that you've had to experience all of that-and PML is super scary! I hope you can find something to keep you stable, that really stinks to have to change up medication that was working.
Thank you so much-I hope you stay healthy and continue to find success with your treatment!
Thank you for sharing your story. You inspire me on days when I’m just exhausted of being sick. Especially as I’m still trying to find a true diagnosis.
I'm so sorry! It's the worst when you don't have a clear diagnosis. Makes everything so much harder and frustrating.
I cried when I read your comment--I feel for ya and I wish the absolute best for you.
Tough story, but I like the way you tell it with the voice-over and video combo ... really nicely done! I connect so much with that appearance of numbness. Dang MS! :) hang in
Thank you so much. I really appreciate the kind words! Good luck with your journey, too!
Sending all the love. We’re all here with you 🧡
Thank you so much! It really means the world!
I'm the same all the Time, Thank you for cheering God bless you 😘
Thank you for sharing such a scary, life altering time in your life.
Wow I thought I was going crazy for awhile. My doctor kept looking at me weird. They eventually did a referral to a neurologist. The symptoms you had are some of what I had.
I'm so sorry to hear that. It is so frustrating when you can't seem to get answers about what's happening or why it's happening. I hope you're able to get some clarity on the symptoms you've had.
You have my best wishes!
Have you ever taken a Flouroquinolone Antibiotic ?
I'm going through the same symptoms with nerve damage, history of spinal osteomyelitis, and lupus I just wish weakness and the fatigue would go away! 🙏🏽
I'm so sorry you have to go through that! It is amazing how much these kinds of symptoms impact our lives. It's really tough and really wears on you.
Thank you so much for sharing something so hard and personal. Please keep me updated on how you're doing.
I changed my diet to ketovore/paleo and I had reduction to my fatigue. So there is ways to manage the symptoms better. Keep searching what works for you!
You are very creative. Your pictures and narration reveal who you are, not just what you have. Thanks. I really liked this.
Thank you so much, that made my day!
Bless you. I wish for you a complete and quick healing and send you love, compassion and strength. God bless.
You mentioned Cinco de Mayo. My birthday is Cinco de Mayo! My major symptoms started 3 days after my 60th birthday in 2022 but looking back I can now see I've had mild symptoms for YEARS! I have Ankylosing Spondylitis and some symptoms were similar and made it harder to notice the initial signs.. I now must use a walker, can't drive anymore and am now incontinent. I've watched a lot of MS videos and no one mentions the incontinence. I'm thinking not everyone experiences it. It's one of the most life altering components for me! That and not being able to drive! So isolating!
My life was difficult before because of the Ankylosing Spondylitis and the death of my husband in 2005. If karma is real I must have either been really evil in a past life or I'm just a crappier person than I thought I was!
I became very independent after my husband died and I've worked hard dealing with depression and single parenthood. Every time I think my life is stable, some new challenges pop up. But hey, I'm doing a LOT better than 6 months ago. At least I'm not passing out and falling all the time anymore. My daughter has been a life saver! She lives with me and has adjusted her life to be my care taker. I struggle but I'm still here. My best to all fighting the battle!❤
I'm really late to reply, but I just wanted to thank you for sharing. These kinds of diagnoses really are life-altering as you say, and it can be SO tough. The mental battle is a huge component for me-it's easy to slip into a depressive spiral when your body just won't cooperate or you start wondering if it means something (is it karma? Am I being punished? etc).
I feel ya and I also wish you the absolute best. ❤
i'm 62 and diagnosed 2 months ago. but i've 'known' for years, and lied to myself for years before 'the knowing' i kind of think i've seen your comments before, as i hunt thru info about ms. anyway, i can relate for sure!
That numbness really sucks. Keep fighting. 🧡🧡🧡
Thank you, I really appreciate the encouragement!
Omg I just came across your video,
Got me emotional, I’ve occasionally started dropping things which has never happened. I’m going to the ER in the morning to get tested x
I hope you've been able to get some answers and that you're doing well. Best wishes ❤️
I'm here because this happened to me last night. Almost word for word. I've been having severe eye twitching the past few days. I don't drink caffeine. I'm making a doc appointment in the morning. Thank u for your story.
I'm so sorry you're going through this. I wish you the absolute best of luck. I hope the doctor can help you get answers quickly.
@@NotDefined Neurologist appointment and MRI is set up. Thank you again.
@@teabag3854 Good luck, share the results then if you want. I also had severe eye twitching for maybe 4 days without stopping. Also was wondering if all these weird symptoms perhpas could be a long covid.
I get this all the time
Eye twitching likely nerve related and maybe an MS symptom.
An awfully tough diagnosis to ever have to hear, but you were diagnosed fast if they found that out at one ER trip, other stories I have heard it has taken years with a watch & wait type of approach. I have been getting worse for years, first signs 20 years ago, gradually getting closer now between flare ups. Don't know what is wrong yet, having tests in June. It fits with MS though. Sorry to hear you have it, but glad you weren't pissed about by doctors for years.
Yes! I was really, really lucky to get such a quick diagnosis.
I hope you're able to get more clarity for what you're experiencing. I can think of nothing more frustrating than dealing with symptoms like these and not having a clear diagnosis from doctors.
I'm currently going through the process of finding out what's wrong with me. My doctors just keep slapping me with Vitamin D tablets and calling it a day 😪 I saw a nurse yesterday at an urgent care centre and she said I just need to go through the motions of listening to doctors, taking the tablets and then go back and demand further testing if symptoms don't improve. Its so frustrating. I know it isn't just low levels of vitamin D. My symptoms have been going on too long for it to be that.
I too find it to be a very rare occurrence for anyone with MS to be diagnosed at the ER after just one trip. If ever. That's incredible luck. Especially with the symptoms being described. The ER's main priority is to make sure you're not suffering from an immediate life-threatening emergency. Stroke. Heart Attack, Embolism, etc. They don't automatically assume MS ever. If you're dropping your phone, falling, feeling numbness and weakness in limbs, eye pain, blurred vision, chest pains, etc; They default to signs of a stroke or heart attack. And they'll do a CT scan of your brain, and CT Angiography w/runoff, chest x-rays, EMG tests, and a whole slew of blood tests (CBC w/differentials, glucose, TSH, Troponin, etc). MRI's are extremely expensive and 100% of health insurance providers are going to require prior diagnostic tests (Including imaging) before jumping to an immediate MRI on the basis of suspected MS. And if you're self-pay (no insurance) OR bare minimum Insurance, than count an MRI out all together Not only that, but 'They're' (meaning the medical professionals and health insurance providers alike) strive to rule out any other possibilities BEFORE jumping to a 'working diagnosis' of Multiple Sclerosis.
PS. A "tentative diagnosis" isn't a confirmed diagnosis of MS (Time Stamp 3:10/3:11). I call bs w/ this chick. She's a fake.
The ER would have referred this person to their PCP, Rheumatologist, or Neurologist for further testing. And a 'tentative diagnosis' would be determined at a later date after all other possibilities have been ruled out.
MRI's are one of two specific tools used to CONFIRM someone has MS.
MRI's ARE NOT TENTATIVE measure. And if the MRI is inconclusive (meaning no lesions were found in the 3 SPECIFIC area's that they look at during the utilization of MRI's for a CONFIRMED diagnosis of MS), then they (Meaning a Neurologist that you've been referred) will do one other LAST RESORT test.
@@parallel-galaxy No, MRI is not the last resort test everywhere. I did not have those other tests taken in ER. I got MRI of my head and spine. No lesions were found.
Thank you for sharing. Praying to Jesus for you.
Thank you so much!
Excellent video! And this did give a very good picture of MS flare. And I could relate so well!
Thank you! Although, I'm sorry it was relatable, since that means you have experience with it. My love and best wishes go out to you 🤍
I have been trying to figure out my symptoms for so long. For months I’ve been in this pain and I’ve been in the emergency room twice now and walked away with zero answers. This is uncanny to what I’ve experienced through these months. Sometimes I feel like I’m dying and then I have sudden panic attacks and I have crippling breath and chest pain when that pains.
Now I know what direction to go in. I’m so sorry you’ve been battling this. I know how intoxicating it feels. Thank you for what you said about standing up and fighting it. It makes me feel like I have a fighting chance in this too. ❤
I'm so sorry for what you've been dealing with! Wishing you all the best, especially in trying to figure out what's causing it all. It's so, so tough to walk in that gray area with nothing certain.
Thank you for your comment. You're getting all the prayers and good vibes from me. You've got this!
Have you ever thought about starting treatment? I am next week… I hate the thought of not being able to do what I have always done, being active, running even walking - all the things we take for granted everyday. I have an active form of MS and I am willing to try anything to help slow the progression down. My neurologist strongly advised that I consider this as lesions popping up on scans may not impact us now but in the future they will…
Yes! I started treatment just a few weeks after my first attack, if I recall correctly. How are you doing? My infusions take a lot out of me sometimes, so I hope you've had some decent rest and recovery time.
I agree, the threat of loss of ability is really tough to confront. It's certainly been a journey for me with lots of ups and downs.
Good luck, I wish you the absolute best with your treatment and your journey. ♥
@@NotDefined I was ok after mine thankfully… I didn’t have any symptoms during or after my infusions. I am just taking it as it comes and I guess if it works as we hope it will that is when I will be confident in the decision I have made. Thank you, likewise❤️
I love you and thank you for sharing this, 💛 "opportunities"
Thank you so much!
I go in on the 18th for an MRI to see if I have MS is it bad that I can’t wait for it. I wish it was over with. I’ve had so many things that could be wrong. Vertigo stimulator, neuritis numbness in my arms, my toes, sometimes my feet feel like they are on fire, cold air hurts not heat. Does any else feel that way?
I do
I learned vitamin B1 deficiency affects numbness in finger tips. Peas and lentils have B1. I found it made a big difference.
2% iodine on skin in a small amount daily helped with energy and fogginess.
Vitamin D3 drops under toungue helped with depression caused by SADD.
You might want to look into it.
Thank you! Nutrition is so important!
Thank you for sharing your story, it has helped me see things more positively.
Thank you! No shame when the positive is hard to see. I know that life is excruciatingly difficult sometimes.
Hope you're doing well. Thanks so much for being here.
They're called gremlins just like the film and they like to cause mischief. I'm so sorry for what you're going through. It always happens to the sweetest people.
Loads of hugs.
Haha, terrible little monsters ;) I know I'm late responding, but thank you so much. I really appreciate your comment!
@@NotDefined My pleasure and I hope your doing ok?
You are an inspiration.
Thank you 🙏 so much for making this video! ❤. I’m having similar symptoms and going through various tests, to determine.
Thank for making something uplifting during my time of insecurity
Thank you, I hope you're able to get some solid answers. It can be so tough. I wish you the absolute best. ❤️
This is how I feel every day. I have Raynauds too and am losing feeling in random patches on my hands.
Is that similar to ms ?
You had a diagnosis the same day? I've been struggling for 9 months and just got my mri 5 days agao and still didnt get results
I'm so sorry to hear that! Yes, I happened to be very quickly diagnosed at the ER, based on the MRI. It seems like there's a lot of luck involved, because it's sometimes not clearly MS (as far as I understand). I've heard of people experiencing symptoms for years and years before finally having a diagnosis of MS confirmed or even proposed.
I hope you're able to get some answers for what you are experiencing! It's so frustrating not to know!
I’ve been struggling for years and I was diagnosed with bipolar disorder. I think more than ever, that I might have this.
Hi, I'm currently going through various tests at the moment to figure the cause of similar issues. right hand weakness, and more recently leg weaknesses. Possibly related to the herniated discs in my neck, but I'm going to insist on getting further tests to rule out MS. No signs in my recent MRI scans though. Just annoying that everything is going slow due to covid restrictions :-(
Certainly life is changeable. From being able to cycle 200km's in a day last year, I'm now struggling to walk around the block on crutches :-( Not ideal if you are employed as a mailman!
Hopefully I'll know more soon...
That is really, really tough! I'm so sorry you're experiencing all of that. Keep us posted on how you're doing! I'll be praying for you to be able to find out what's going on and what can be done to help.
@@NotDefined Thank you. I finally have a date for my neurologist appointment. 14th of December. So hopefully I'll know more then!
Just thought I'd give an update. I now have a diagnosis of Functional Neurological Disorder, since on my MRI scans, lumbar puncture and genetic testing eventually back clear....
Your MRI should be a contrasting one to locate white lesions/spots. Check Vitamin B12 absorption also.
Weird I am having some very similar symptoms, tingling in my left hand, also in the back of my left shoulder and left side of my face for 10 days. But no other more serious symptoms that you describe. My doctor sent me for a MRI of my spine, just came up clear. Doctor told me it is probably my vitamin D (strong) deficency, that i should fix (but it will take time). What MRI did you get? brain or spine? was the MS spots obvious on the MRI pictures? with injection or not injection? (looks like injection make new lesions more visible)
The things that I deal with are similar. My vision blurs, struggle with balance, numbness, fatigue, headaches, ALOT of sleep, stuttering, slurring my words, and I struggle to remember things sometimes. What I hate about this is that you don’t really know what to do anymore. If I never had this I would’ve had a job right after HS. Would have my drivers liscense by now and that whole 9 yards…but I don’t.
I am so sorry. It really is the absolute worst to see your body prevent you from what you feel like you should be able to do-that loss of ability or even the future you expected. At least for me, I've had a really tough time sorting through it all.
I feel you!
Thanks for sharing this. It's so important to connect-you're certainly not alone and I'm so glad you're here.
@@NotDefinedis ms curable ! Pls help me dear I am like a crazy person now
Yikes- I have these things a LOT but never diagnosed with MS- even when I kept asking
@@visionvixxen turns out I don’t have MS. But it’s something pretty much identical to it called MOGAD Disease. It’s also neurological disease.
I have had some of these symptoms as soo as i got married
Having learnt that my husband didn't want me ,i think caused soo much stress ,that it initiated the condition ...ms
Fatigue ,body pain, confusion n emotional feelings....
Now 35 yrs later ....after experiencing double vision., headaches, at the age of 45yrs n no doc could diagnose me then ..i only got diagnosed recently....aged 54yrs ...2yrs ago
Tooo late cos vertigo, brain fog, fatigue, more confusion is making my life more complicated....
Consider urself lucky if u have loved ones who help n support u
I have kids who r bullied by their father not to help or support me
But their love in their eyes ...helps me to push ahead n do my best❤
I am so sorry for all the pain and suffering you've gone through. Thank you for being so vulnerable.
You're absolutely right--the loved ones in your life will make all the difference.
I pray and wish you all the best even in such tough circumstances.
@@NotDefined thank u
I hope you are doing better, you are strong ❤
Same life 😢
Great video. Best wishes 😊
Thank you so much!
I have a lot of these symptoms. Even the plugged ear feeling. These symptoms come and go though. Pain randomly in places and tingling in my back, hands and feet. I was told I have fibromyalgia. Makes me wonder if that’s an accurate diagnosis.
I'm so sorry to hear that! I haven't experienced much physical pain due to my MS, and I can only imagine how much harder that would be to deal with in addition to all the other symptoms.
It does seem like MS and fibromyalgia have some overlap of symptoms, but I'm no expert on either.
I hope you're able to get clarity on what you're experiencing.
Did you get mri done?
Get a contrasting MRI and check your Vitamin B12 absorption levels.
I found this on May 5 2024
I have all these symptoms .. I think I have MS
I'm so sorry to hear that you're experiencing of all this, too.
Praying that you'll be able to find answers and a good doctor to help with getting a diagnosis and managing your symptoms. 🤍🙏
@@NotDefined thank you
Woahhhh this sounds exactly like me. I’ve been hestitant going to a doctor cause I feel like they will just think I’m crazy Because it’s so many symptoms.
I hope you're able to find some answers whatever you decide to do. Wishing you the absolute best!
Sounds like my symptom minus the ER doing an MRI when I went there for an MRI
Sorry to hear. Look like MS is an autoimmune system attacking the body of people who are beaten by life already, traumatized people. Gabor Mate has a good book called - When the body says no. I am also having some weird symptoms, even though I don't have a problem with balance or numbness, but I have nerve pain in my hands and nerve twitching. Right away before that, I had massive heart problems as arrhythmias and tachycardias as I had a Covid in July. Perhaps it could be a long covid in my case. But I contacted my GP to check it.
I ran into walls three times today. I’ve also had weeks of migraines and it hurt to hear myself breathe…. I also felt like wind was shifting me around as I walked or jogged… or like I was on a conveyor belt as ai moved.
Have not been diagnosed…and I wonder if this is dopamine related/43”/53; to. Meds or depression or something like MS
Periods of labored breathing… or numb arms, reaching out and thinking I’m grabbing a doorknob but I’m not. Then it goes away and nothing all day
Random itching like crazy
Spasms in back. Hamstrings…
Or difficulty coming out w words
So strange but still not diagnosed as MS
But what IS all this?!?
Seriously so tough!! I'm so sorry for what you're experiencing. Having no answers, no diagnosis, can make things feel like an even harder burden to bear-on top of everything else.
I'm hoping and praying for you that you can get some clarity and relief from all of this. Hang in there. Easier said than done, I know. You've got this, though.
Went through similar things and more. MRI (brain, no contrast) didn't show anything and drs won't help me further. I do believe i have MS though
I'm so sorry! It's so tough when you can't get a clear answer. I wish you the absolute best and hope you can find what you need!
Scared mine wont show anything they are dismissing me as psychosomatic
Try the Mediterranean diet, use Herb's like turmeric, ginger and Asian ginseng and speak to a chiropractor, Blessed Be.
could MS be studied as psychiatric disorder. I have schizophrenia and experience a lot of what I call body insanity that is sometimes similar to MS. I've been tested but I don't have MS. I've had experiences unlike MS like hives, LOTS of dying skin even though skin is moist insane intchiness.
I don't know about that one! I'm no doctor/psychiatrist, but just from my own experience and from reading a little bit about MS, it does seem like there could be overlaps between the medical side and the psychological side. Certainly things like stress and mental health have a huge impact on the body, and I wouldn't be surprised if researchers find other links to MS and the mind. Really interesting idea to study!
100pc a real contributing factor there chronic stress and worry longterm being in fight or flight releasing huge amounts of coritsol will wreak havoc on the nervous system.
surely leave it Fkd Up open to various autoimmune disorders like MS. I got basic bloodwork done came back ok. Getting fobbed off, going to go for a brain MRI private if i have too
I just got out of the ER for left arm numbness. They thought it could be a stroke so they did a MRI but said nothing was out of the ordinary. But 2 days later and the numbness is still there. I feel off balance and have issues with random eye pain, electric shock feelings in my feet and completely exhausted. I feel so out of it. Can't function or concentrate. I also run into things and get vertigo walking down stairs. I have to hold tightly to the rail for fear of falling. What could this be and can't the MRI miss this? Should I have a spinal tap done?
Hey I'm in the same exact position...left arm weakness pain in shoulders hands get numb at times and twitching constantly legs included... I turned down the spinal tap but I think I'm going to go do it because 6 months later the symptoms only worse for me...wish you luck
That sounds awful! I'm sorry you didn't get any good answers from the MRI. I wish I could help. Best of luck as you're working with doctors to figure out what's going on. We're rooting for you!
@@NotDefined thank you. Still no answers. The numbness moved into my leg. More MRI and blood tests. I'm seeing a neurologist that wants to do more tests.
Get a contrasting MRI to spot lesions, also check Vitamin B12 absorption.
Oh Lord🙏pl help us, I have the same just more difficult , it’s 5th month already and still didn’t get my medication 😣
That's the worst! I'm sorry you're not able to get your medication still. I'll be praying for you!
I have a question ... Have you ever taken a Flouroquinolone Antibiotic ?
I don't think so-that doesn't sound familiar ;)
What was the ear plugging from? Was it both ears or one?
That was a really strange one for me! I do think it was all neurological-I can't remember if the doctor specifically addressed it, and it did eventually go away. However, it was more than just an ear being plugged-I remember it being like having the left/right balance changed, kind of like messing with the knobs / settings on a stereo or headphones. My right ear picked up sound more than the left, and it also felt out-of-balance.
The Saturday of my attack, I had a Physical Therapist check out the numbness in my arm and at the end, I mentioned the ears and he made me promise to go to a neurologist asap-I ended up at the ER the next day, so I guess I kept my word, haha.
@@NotDefined when you say numbness, do you mean like true numbness where you can’t feel anything or more tingling/pins and needles?
From what I remember it was more like the pins and needles, especially in my arm. Though I do think there were smaller areas that were actually numb (without feeling) like on my back.
I has ringing bad two weeks prior
Neurotic pain is unbearable but i smile an work an 8 hr job because of my kids ( using a cane). I wish i had my old life back. WHAT TO DO my wife who is a nurse tells me shawnwhat would you rather MS or Als i tell her NONE😂😂
me too like your way of expression but i would like to know abut what you use now because my daughter have already she is diagnose and now under 2 year injection course
Thank you! I've been getting infusions for my medication for almost 3 years now. It didn't seem to be working until the second year (although my MRI was really promising after only the first year). Sometimes it seems like it takes a while for medications to finally take effect, but keeping a close relationship with your doctor is the best way to make sure the right medication is being given at the right time.
Hang in there! I'll be praying for you and your daughter to be able to find the right course of action to take.
me too pray for you to recover soon 00971554793545 if you have whatsup pls add
I’m nervous my mother had mama while pregnant with me and I may have it but I’m not sure going through mri next week for the back pain and getting a cane for the pain it’s bad my left arm had that same numbness and I notice the wall thing too thank you for this video
Mother had MS
I'm so sorry to hear that! I'll be praying for you. Hoping for the best as you're figuring out what's going on. Hang in there!
I need help . I am dying to find a diagnosis i feel i ve ms
Same man same
Look into lion's mane mushroom, Blessed Be.
Awesome video! I know Im late lmao!
Thank you!
🙏🏾🙏🏾🙏🏾
I lovethis cideo nice
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