I feel for you and I wanted to cry with you. I was diagnosed with MS at 23 and told I would be in a wheelchair soon. I'm 54 now and no wheelchair. Thank you for your story. Chin up!!!
How are you doing now? I have been diagnosed 13yrs, though it's suspected to have been surely going for atleast 25yrs. I am now 43yo and have had no meds and plan to keep it that way no matter what. I was doing exceptionally well considering, worst concern being reoccurring optic neuritis, until I had extreme mobility issues suddenly begin around 2yrs ago. Life stresses were exceptionally extreme during that time and I believe that was my trigger. I have not heard of many who have opted for NO meds. I'm glad for all the good time while it lasted, and I'll extract all that God affords me here on out. I do so hope your outcome is still going strong 💪🏻😊
@@LittleRedHenNat I am pleased that you are doing well but I read your comments and I am wondering if you shouldn't be reconsidering the drugs given you are having mobility issues. I am not on drugs either so I do understand not wanting to be on them. I plan to go on them eventually and mobility issues would cause me to consider going on them even sooner. I respect your judgment and choices however.
I'm sorry to hear of your son's diagnosis. I was diagnosed almost 12 years ago and am almost the same age as your son. If either one of you want to chat or ask a question, feel free to reach out.
I understand exactly what he went through. I've had MS for nearly 15 years now and I've experienced the highs and lows of having this crazy unpredictable disease but with God and good support, you can make it through!
Was diagnosed 1 year ago. My first attack / relapse left me permanently blind in my left eye. I am scared for my future. MS is a horrific disease that I hope we can cure so that nobody has to suffer through this fear. I can expect my body to slowly break down throughout my life, something I had hopped would only happen in my old age. I am not even 30 yet. Thank you for covering this ABC13.
@@mishaalzk6033 my first symptom came out of the blue. Over the span of 1-2 days I went blind in my left eye and even with steroids it never recovered. Prior to this never had a single symptom. Often people with MS experience numbness, tingeling, extreme exhaustion, difficulty walking, muscle twitching, optic neuritis (what I had) - vision issues that occur over the span of a week and then disappear (for most), bladder issues and many others. The problem with MS is it impacts the nervous system - it can quite literally impact anything in your body, that's a reason it is a horrific disease.
Beautiful testimony! I've been living with MS for 10 years and and I have really really really bad days like today. I've lost control of my arms and hands and I can barely walk. I wish I did have someone near me that I could actually talk to.
Me too I’m going to join a support group as hokey as it may sound! ❤ I mean i need a safe space to what I call “hurk and jerk” if you don’t laugh you will cry! I cry and laugh. Take care
I was diagnosed when I was 27 years old, now 47 still working out daily. I remember asking why me when I had to say to myself, why not me? God knew I was strong enough to battle ms.I have lost my eye sight in my left eye which never returned. I am now on Ocrevus infusion once every 6 months. God is great and I know I am blessed and highly favored!
"Raise a Halleluyjah" sung by Bethel Music, Peace Album I raise a halleluyjah, in the presence of my enemies I raise a hallelujah, louder than the unbelief I raise a hallelujah, my weapon is a melody I raise a hallelyjah, Heaven comes to fight for me Chorus I'm gonna sing in the middle of the storm Louder and louder, You're gonna hear my praises roar Up from the ashes, hope will arise Death is defeated, the King is alive Verse 2 I raise a hallelujah,with everything inside of me I raise a hallelujah, I will watch the darkness flee I raise a hallelujah, in the middle of the mystery I raise a hallelujah, fear you lost your hold on me (Bridge) Sing a little louder In the presence of my enemies Sing a little louder Louder than the unbelief Sing a litle louder My weapon is a melody Sing a little louder Heaven comes to fight for me
I just learned after 5 years of complaining! I was rushed to ER Friday after having a stroke also at same time found out I had MS. Just a year ago diagnosed with RA. Finding this all hard to deal with. Thanks for ur story! It help me think about how I just keep trying to go go go
Such a hard battle. Thanks for sharing your story. I was only diagnosed with PPMS 6 years ago but I’m already in a wheelchair and struggling to stay positive. Such a horrible disease.
Me too. Almost to the wheelchair point. Been 6 years since my first symptom. Went 4 years with no diagnosis. I was so active and a big diy'er. I have been in a very dark cloud all this time. Cant seem to find anyone to talk to. Just being honest, I don't see myself living with this disease until it takes me. Im 55 now. Doubting i'll see 60 at this point.
Your story is my story. I understand exactly what you've went through and going through every day. I've been living with multiple sclerosis going on 19 yrs. And it is so hard to cope with most days. Thanks to my amazing husband of 20yrs. For never leaving my side! Because the kids don't understand who are both grown 33 & 26 when I SAY I CAN'T🤦🏾♀️ Bless you and your beautiful family. And you will stay in my prayers🙏🏾🙏🏾🙏🏾🙏🏾
Thank you for having the strength to make this video. I've been diagnosed for a year now and I feel personally someone has stolen me and left just a shell
Same. MS really is a life stealer. I’m pretty healthy but all my body wants to do all day is lay down because I feel like I’ve got like 50 bricks attached to me at all times.
exactly the same, diagnosed a year ago and now permanently blind in my left eye. I fear for my future. My old identity is shattered. Who I thought I was doesn't exist - now I am scared what the next relapse may be. Every day it is in the back of my mind.
My brother in law just got the preliminary possibility that he has MS. Started with optic neuritis, then pins and needles feeling or lack of feeling in his feet. He has two daughters and this video has e me hope, that he will be around to enjoy his young life. God bless you
@@KoalaBeer.do u not feel sensation in them ? How bad is the pins and needles .. pins and needles could be from other causes too I..e iron deficiency or vitamin b12
Im having blurry vision .....my left leg gives out and the top of my left foot has a burning sensation... tingling and numbness... fatigue..and my Dr said my Vitamin D is extremely low.... I had a Contrast MIR I am extremely nervous but I know something is wrong with me
Thank you for sharing. I was diagnosed in the 90’s, but during the last couple of years new symptoms have come up and become more frequent. I wish that I knew what medicine you are on. It’s so inspiring to see you riding your bike and enjoying your family. God bless you 😊 Lord please lead us to the right doctors and give them wisdom. Jesus please be with my dr and I today. 🙏 please give him the right wisdom for me. 🙏✝️
We will keep you in our prayers coach Jeff! You are a great person and Patrick will miss your guidance and awesome coaching skills you have! God Bless The Spencer Family
I just turned 22 years old in September and just a week ago I was diagnosed with MS. Here I am listening to other's stories as I dont know what to expect. I did experience whole-body numbness, but after being given steroids, my legs are no longer numb, but my torso, arms, and hands are still numb. It is just very strange bc i can still move, i have strength, and i can feel hot and cold, but i have no sense of touch. I hope a cure will be found.
Thank you sharing this testimony with us. It just touched me in so many different ways. My heart goes out to you and your family. I truly admire you for being so hopeful and finding your light in what some may see as the end. It also made me appreciate and know that we should be grateful for the smalls things that we assume God will grant us just because. I have a family member who has MS but never really wanted to pry into her MS diagnosis out respect for her privacy. This has given me tremendous insight on what a person may be feeling or dealing with on a daily basis. My prayers are with you. God bless.
Be strong you are a hero and a good role model to all of us. I will keep you and everyone with m.s in my prayers. Hopefully one day in the future there will be technology to cure this disease. You are not alone you all have our support and love
Thank you for this video and for sharing your personal story. My mom was diagnosed with MS in June 2007. All of these years she has had very little issues and symptoms up until about a year ago when she woke up one morning and realized she was having issues walking. Now everyday she walks with a cane because her legs feel weak and she cannot stand for long periods of time. She had to go on unemployment and her neurologist told her she is considered permanently disabled. I can see it in my mother that she still has the potential to be the normal mother she was but this disease has made her feel like there is no way out for her and that she will never be the same again. I am trying to help her set goals and plans for what we can do to make her feel like a normal human again.
Thank you for sharing! I was diagnosed with MS when my boys were very young. You’re right most people don’t understand the fatigue that we experience. I cried listening to you tell your story because I went through the same thing with my boys. My sons are older now. I was also diagnosed with a CVID. I get Privigen infusions every three weeks. They’re IIVIG immunoglobulin infusions. Thankfully, it’s also helped with the MS. May God Bless you! 🙏🏻
The, "I've gotta be strong for my family" is a common personality trait of people with MS. Chronically compulsively being more worried about the feelings of other people than your own. This is a coping mechanism from trauma. This disease and all other autoimmune conditions are caused by trauma. The fact that he admitted that deep down he was terrified yet he's not showing those emotions. He's stuffing them down. When the emotional centers of his brain are no longer doing their job, you know, expressing emotions to keep him from being overwhelmed by stress (cortisol) inducing life events (ie expressing anger to keep toxic people away etc), the other parts of the body start trying to stop you from engaging in those stress inducing behaviors. Your immune system is incredibly intelligent. It will do everything it can to try and wake you up. The only way to go into remission is to listen. This does happen and the only people who go into remission are the ones who learn this lesson.
This is the face of disease no one is going to measure, I have a feeling that this is true and only spiritual practices like meditation will truly help you
@@brendaoro2951 there are many healing modalities. I studied a lot about trauma therapy to heal myself of Rheumatoid Arthritis. I change my whole life.
I believe you I’ve been having more and more symptoms and fatigue and it’s weird because I’m also prescribed stimulants for ADd and depression… along w other meds But I think the stimulants have made things worse because walking is strange now. Without them, I can barely face the day, but I have a feeling they are burning things out faster
Was just diagnosed this month… seeing this broke my heart when talking about wanting to play with your child. As a single mom (fiancé passed away 2 years ago) to a 9 year old boy I can tell he’s scared something is going to happen to me too and it’s heartbreaking. I pray everyday multiple times for Gods healing (if it’s his will) and just strength because I am currently on 3 weeks now of this flare up and symptoms aren’t lessening or just when it does I wake up the next day and they are still there. I just want to feel normal again and start making the healthiest choices and even get involved with support groups. Lord knows I’m going to need them.
Please read cleanse to heal by the medical medium. Do not let the medical industry make you think there's nothing you can do other than take harmful toxic pills, and this is coming from a nurse 🙋🏽♀️ I was having some Ms symptoms myself and I did a 90 day juice fast.
I know how it feels because I have multiple sclerosis for like 4 1/2 or five years and I feel I was working and going to school so I know the pain of fallen and what I’ve been through was people picking on me laughing at me and think it’s funny talking down on me and some people are encouraging, but I had to keep my head up and sometimes I have the cries But I stay encourage and keep my head up to God because he has the last say so and you should do the same. God bless you and your family.
Stay very strong You're doing good I'm 33 this year found out I had multiple sclerosis back in 2017 when I was pregnant I am currently hanging in there myself and also getting through the days cuz I'm watching this video I'm in so much severe pain can't get out of bed but your story touches me and your family and your wife that is hanging on your side and supporting you.
I definitely understand everything he said it is that you have to try to decide you want your career you want your family and then it's sorry because of finances you need to make and unfortunately disability doesn't give you as much as I should so to give up what I can make is the most difficult thing.
Hey sara im 16 and male and just got diagnosed today with ms, as a 16 year old boy it is extremely depressing and i am the rarest kind of ms patient as im also a boy, please stay strong and message me if you need help, im here for you sara.
Sara and Matt, I am so sorry that you both are having to deal with this. When I was first diagnosed a few years ago I thought my world was going to end. Everyone’s story is different, you have to decide who you want to be moving forward and take the steps to become a mindful person who chooses positivity and healing. At the beginning MS took many things from me, the biggest was my mental confidence and mental well being. As time passed I gained it back and learned that MS also gave me more appreciation for the good things in life. I finished my degree with highest honors and have positioned myself for promotions at my job. I’m going back to school to obtain a masters degree as well and I spend more time with my family than I ever did when I was “healthy”, and enjoy working out on my good days. I’m slower than I used to be but I’m still super handsome, lol. Don’t let this disease define you, fight for everything and best of luck to you both!
Ms is a disease in which the immune system eats away at the protective covering of nerves. In MS, resulting nerve damage disrupts communication between the brain and the body. Physical therapy and medications that suppress the immune system can help with symptoms and slow disease progression.
🙏🏽 I needed to hear this thank you, I’m 30 years old I didn’t know what to think I was diagnosed with MS about 4 months ago .I have a 5 year old that keeps me going, I never seen this coming ,I was crushed I cried.. I was playing sports always active hard working man I would give the shirt off my back to anyone, I didn’t understand how or why this happened. I still have my days I get down about it, I would love to know how long it took him to feel better. I’m getting infused every 4 weeks working out everyday I won’t stop until I’m back to myself!!
Diagnosed last year myself I'm 31 this year. I was told most people go on to live a full life, some live 5ish years before a normal healthy person . I was also told someone diagnosed at my age of 29 at the time would usually go on to not need any walking aids for around 25-30 years. It's not a death sentence. Yes there's some pretty shitty symptoms we need to deal with but I refuse to sit and feel sorry for myself I live every day like a normal person with no ms infact I just learned to drive with my ms with all the fatigue and brain fog. Nothing needs to change or stop you got this brother 💪. Live like you didn't get the diagnosis and take anything as it comes for the majority of people it's a very slow progressing disease
@mishaalzk6033 hi mate I wish I could share exactly what my symptoms were but i was actually diagnosed because it was accidently found. I attended hospital for frequent headaches I got an mri and they found 2 lesions in the brain I had a proper just 3 years before and they looked back and noticed it wasn't on the scan then. I don't even know if the headaches were caused by ms but they have definitely calmed down now and are less frequent. Looking back however I can maybe tell you some signs to look for. I actually ended up waking up one day with something called foot drop I couldn't lift my foot . I could if I lifted my legs but my toes wouldn't lift up the way and I couldn't balance on my heel. So nerve damage is one to look out for it can be as bad as that or as simple as the persistent burning sensation I get on the side of my neck. Another sign is vertigo, I get very bad vertigo that comes on randomly and is debilitating but only for a few seconds. I'd say my biggest symptom looking back is memory problems, brain fog and problems recalling things like actors names etc or forgetting what you are saying mid sentence. Muscle weakness or pain in muscles from too much activity. Spasms in calf muscles from walking too much etc .. everyone Is different but I guess they would be my top symptoms so far .. connective tissue problems like pain in the pictorial area when touched with fingers.
Been diagnosed for 15 years now and I worked 10 years after and for the last 5 years ms has takin my life away…. I have my children take care of me but this was not in my plans. I see a lot of people with ms walking around like normal and I say did they forget about me 😢
I was diagnosed with ms too.. I was pregnant when i have this disease, and i wasnt able to raise my first born child. My inlaws did my responsibility. Its so sad, very depressing, i lose my mobility and my independence.Its almost 6 yrs ang half.I have leapy vision and i felt like wading through water constantly.. Everything shakes, this is how i combat everyday .. and its getting worst, sometimes u feel no one cares.But my husbnd didnt fail to remind me that everthing will be okay and he love ang take care of me unconditionally. Thank you sir for sharing your battle.. It inspires me..
Thank you for your testimony. I just want to say it’s very similar to mines. One day I’m perfectly fine and the next I’m diagnosed with RRMS. I too felt like time had stopped in its tracks and I didn’t know how I was going to go on being that there’s no cure for this disease. But since my diagnosis I’m being treated with meds that has slowed its progression down. Now I can see the light at the end of the tunnel again😊
I'm glad yours isn't to terribly aggressive. Hopefully it stays that way for you. But for me mines aggressive and it's been 3 years since diagnoses but probably 5 or 6 since I noticed it. And my vision is starting to split on me and I can't stand up with my eyes closed without falling over cause I can't keep my balance.
@RobdeKlerk-qg6lc I have MS I was diagnosed last year from everything I've read and all my specialists have all told me most people live a full life and some live like 5 years less than the average healthy person . Most people diagnosed at the same age as me don't need walking aids etc for around 25-30 years .. I will be 60 in 30 years. There are a host of horrible symptoms you may need to deal with and overcome but in the long run the outlook is pretty positive .. looking at these comments you would think its a quick killer 🙃
Omg I’m 46 I was diagnosed in 2020. Yes I feel tired, my right leg is my weakness but you know what? Could be worse. I have to be there for my future grandkids. We got this 🙏🏼🙏🏼🙏🏼
Thanks for sharing your story. I'm wondering why you had to have four MRIS? I am currently being tested for MS. My symptoms started during about of covid with tingling in my right leg which spread to my right arm then a couple weeks later jumped to the other side so all four limbs or tingling. Then I began to have Painful uncontrolled muscle cramps, muscle twitches like where my fingers start just moving by themselves. My vision is going out so fast it's incredible. I have terrible fatigue, depression, weakness and muscle wasting. Specifically my group muscles have shrink so much I can feel my bones and the weird thing is I hike miles and miles with my dogs regularly. So I have been very active for many years and suddenly my muscles are just wasting away before my eyes
MRIs are used to check for the presence of active lesions and scarring of the brain and spinal cord. It’s one definitive sign of the disease. Lesions may not show up on a scan in the early stages, so multiple scans are sometimes needed to support an accurate diagnosis. My first scan was clear. My symptoms are progressing now, so I expect to have another. Best of luck to you. I hope you are finding relief. It may be too early, but Happy holidays to you and your family.
I suppose to have a shot tomorrow but I get so sick afterwards 🤧 I'm now in the mind set that I'd be better off without the treatment I've never been so sick or had so many flare ups since taking the treatment.
I was diagnosed in 2001 was on Ocopaxone was doing fine even I forgot sometimes I had it got a flare up 2022 diagnosis came with anxiety, insomnia.I never knew about anxiety and I am always crying this was never me .One day I was on work the next day I was in an emergency room.
I have double vision that comes and goes and sometimes I feel so tired and cannot think clearly, I am searching for answers and I had an MRI of the brain done but they said it was normal. I heard you say that you had 4 MRI's done before they found something. These issues come and go and I just don't know, thanks for posting this video.
I was diagnosed 25 years ago no actual Ms care because there aren't any specialty ms neurologist here but I've been told by 2 orthopedic Drs I'm not supposed to be walking. I want to find what level I am and get medication that can possibly strengthen me you work it may have to be a seated job but that will help my self esteem
It's truly hard without family believing you have this illness my family said I was seeking attention. How can you demonstrate what you don't already know I'm currently learning as I live these symptoms of MS, it truly hurt experiencing this with no support.
The hardest part isnt the pain... it's wanting to play with your children and being unable to think straight
I feel for you and I wanted to cry with you. I was diagnosed with MS at 23 and told I would be in a wheelchair soon. I'm 54 now and no wheelchair. Thank you for your story. Chin up!!!
Had benign m.s. since 31, 56 now. God has me!! No meds!
What is benign MS?
@@thejrc561 It is a controversial term but it refers to people with MS who only have very mild symptoms or even no symptoms at all.
@thejrc561 There is only Primary MS and Secondary MS. 👍
How are you doing now?
I have been diagnosed 13yrs, though it's suspected to have been surely going for atleast 25yrs.
I am now 43yo and have had no meds and plan to keep it that way no matter what.
I was doing exceptionally well considering, worst concern being reoccurring optic neuritis, until I had extreme mobility issues suddenly begin around 2yrs ago.
Life stresses were exceptionally extreme during that time and I believe that was my trigger.
I have not heard of many who have opted for NO meds.
I'm glad for all the good time while it lasted, and I'll extract all that God affords me here on out.
I do so hope your outcome is still going strong 💪🏻😊
@@LittleRedHenNat I am pleased that you are doing well but I read your comments and I am wondering if you shouldn't be reconsidering the drugs given you are having mobility issues. I am not on drugs either so I do understand not wanting to be on them.
I plan to go on them eventually and mobility issues would cause me to consider going on them even sooner. I respect your judgment and choices however.
My beautiful 43 year old son just got diagnosed with with MS. Thank you for posting this video. It gives me hope.
I'm sorry to hear of your son's diagnosis. I was diagnosed almost 12 years ago and am almost the same age as your son.
If either one of you want to chat or ask a question, feel free to reach out.
I can tell your son is lucky to have amazing parents and support ❤
be strong bro wish you all the best I have been living with ms from 2008 and a two time cancer survivor
Sorry if this is a rude question but what is it like are you able to walk??
Wow that’s beautiful may you continue to live a fulfilling life nothing will stop us until the sand stops pouring!!
I understand exactly what he went through. I've had MS for nearly 15 years now and I've experienced the highs and lows of having this crazy unpredictable disease but with God and good support, you can make it through!
Me too. But 25 yrs. Had benign m.s. God has me, I don't take meds. I know people that are on meds and in a wheelchair😢
Was diagnosed 1 year ago. My first attack / relapse left me permanently blind in my left eye. I am scared for my future. MS is a horrific disease that I hope we can cure so that nobody has to suffer through this fear. I can expect my body to slowly break down throughout my life, something I had hopped would only happen in my old age. I am not even 30 yet. Thank you for covering this ABC13.
Was diagnosed In 2021. Scared me to death
are you tasking ocrevus? my wife is on it and has seen positive results and is in remission
@@SweetBerry13do you mind sharing what your first symptoms were
Can you share your symptoms ?
@@mishaalzk6033 my first symptom came out of the blue. Over the span of 1-2 days I went blind in my left eye and even with steroids it never recovered. Prior to this never had a single symptom. Often people with MS experience numbness, tingeling, extreme exhaustion, difficulty walking, muscle twitching, optic neuritis (what I had) - vision issues that occur over the span of a week and then disappear (for most), bladder issues and many others. The problem with MS is it impacts the nervous system - it can quite literally impact anything in your body, that's a reason it is a horrific disease.
Beautiful testimony! I've been living with MS for 10 years and and I have really really really bad days like today. I've lost control of my arms and hands and I can barely walk. I wish I did have someone near me that I could actually talk to.
Me too I’m going to join a support group as hokey as it may sound! ❤ I mean i need a safe space to what I call “hurk and jerk” if you don’t laugh you will cry! I cry and laugh. Take care
@@LearningWithMissSadye untreated celiac disease is what causes MS to start. Gluten wheat actually causes every single auto immune disease to start
I was diagnosed when I was 27 years old, now 47 still working out daily. I remember asking why me when I had to say to myself, why not me? God knew I was strong enough to battle ms.I have lost my eye sight in my left eye which never returned. I am now on Ocrevus infusion once every 6 months. God is great and I know I am blessed and highly favored!
🧡🙏🏾💯🙏🏾💯🙏🏾🧡
Amen my sister in Christ 🙏🏾🙏🏾🙏🏾
"Raise a Halleluyjah" sung by Bethel Music, Peace Album
I raise a halleluyjah, in the presence of my enemies
I raise a hallelujah, louder than the unbelief
I raise a hallelujah, my weapon is a melody
I raise a hallelyjah, Heaven comes to fight for me
Chorus
I'm gonna sing in the middle of the storm
Louder and louder, You're gonna hear my praises roar
Up from the ashes, hope will arise
Death is defeated, the King is alive
Verse 2
I raise a hallelujah,with everything inside of me
I raise a hallelujah, I will watch the darkness flee
I raise a hallelujah, in the middle of the mystery
I raise a hallelujah, fear you lost your hold on me
(Bridge)
Sing a little louder
In the presence of my enemies
Sing a little louder
Louder than the unbelief
Sing a litle louder
My weapon is a melody
Sing a little louder
Heaven comes to fight for me
My first MS relapse also left me permanently blind in my left eye :( Hope you are doing well :)
I’m am so sorry this video just breaks my heart praying for you and your family
I just learned after 5 years of complaining! I was rushed to ER Friday after having a stroke also at same time found out I had MS. Just a year ago diagnosed with RA. Finding this all hard to deal with. Thanks for ur story! It help me think about how I just keep trying to go go go
bad things always happen to good people.
YES THAT'S WHAT IT SEEM LIKE
No my Friend bad things happen to test our Faith in the Lord
@@evecommonsense8013 And what do you get from that faith in the lord? does it bring back the good or peace to what bad thing has happend to you?
Such a hard battle. Thanks for sharing your story. I was only diagnosed with PPMS 6 years ago but I’m already in a wheelchair and struggling to stay positive. Such a horrible disease.
Me too. Almost to the wheelchair point. Been 6 years since my first symptom. Went 4 years with no diagnosis. I was so active and a big diy'er. I have been in a very dark cloud all this time. Cant seem to find anyone to talk to. Just being honest, I don't see myself living with this disease until it takes me. Im 55 now. Doubting i'll see 60 at this point.
Thank you for your testimony!
It touched my heart!
Your testimony giving us hope.
My husband was just diagnosed.
I will be praying for you!
What’s the method of diagnosing?
MRI
Your story is my story. I understand exactly what you've went through and going through every day. I've been living with multiple sclerosis going on 19 yrs. And it is so hard to cope with most days. Thanks to my amazing husband of 20yrs. For never leaving my side! Because the kids don't understand who are both grown 33 & 26 when I SAY I CAN'T🤦🏾♀️ Bless you and your beautiful family. And you will stay in my prayers🙏🏾🙏🏾🙏🏾🙏🏾
Thanks for your kind words. Please keep fighting the good fight and may GOD bless your future! 💪🏾🧡💪🏾
Amen, I am surviving with MS 11 years and going. God Bless you
Thank you for having the strength to make this video. I've been diagnosed for a year now and I feel personally someone has stolen me and left just a shell
Same. MS really is a life stealer. I’m pretty healthy but all my body wants to do all day is lay down because I feel like I’ve got like 50 bricks attached to me at all times.
exactly the same, diagnosed a year ago and now permanently blind in my left eye. I fear for my future. My old identity is shattered. Who I thought I was doesn't exist - now I am scared what the next relapse may be. Every day it is in the back of my mind.
I was diagnosed 18 days ago I've been off work for one year. This video is an inspiration thankyou.
What were your symptoms
@@mishaalzk6033 leg spasms, numbness heavy leg, lack of dorsiflex etc. I recently had massage in affected area this help for a short time.
My brother in law just got the preliminary possibility that he has MS. Started with optic neuritis, then pins and needles feeling or lack of feeling in his feet. He has two daughters and this video has e me hope, that he will be around to enjoy his young life. God bless you
That’s how my feet feel ..sometimes I get double vision blood work was ok. How is this officially diagnosed ? I can’t find answers why feet feel numb
MRI and lumbar puncture to diagnose☺️
@@KoalaBeer.do u not feel sensation in them ? How bad is the pins and needles .. pins and needles could be from other causes too I..e iron deficiency or vitamin b12
@@mishaalzk6033 I do yes just some numbness.. doctor said vitamin B6 high so working on lowering it let’s hope. B6 can cause neuropathy apparently.
Im having blurry vision .....my left leg gives out and the top of my left foot has a burning sensation... tingling and numbness... fatigue..and my Dr said my Vitamin D is extremely low.... I had a Contrast MIR I am extremely nervous but I know something is wrong with me
Thank you for sharing. I was diagnosed in the 90’s, but during the last couple of years new symptoms have come up and become more frequent.
I wish that I knew what medicine you are on. It’s so inspiring to see you riding your bike and enjoying your family.
God bless you 😊
Lord please lead us to the right doctors and give them wisdom.
Jesus please be with my dr and I today. 🙏 please give him the right wisdom for me. 🙏✝️
We will keep you in our prayers coach Jeff! You are a great person and Patrick will miss your guidance and awesome coaching skills you have! God Bless
The Spencer Family
I just turned 22 years old in September and just a week ago I was diagnosed with MS. Here I am listening to other's stories as I dont know what to expect. I did experience whole-body numbness, but after being given steroids, my legs are no longer numb, but my torso, arms, and hands are still numb. It is just very strange bc i can still move, i have strength, and i can feel hot and cold, but i have no sense of touch. I hope a cure will be found.
THANK U FOR YOUR FILM. IT MEANS SO MUCH FOR YOU TO BE AN OPEN BOOK IN SUCH A SHORT PERIOD OF TIME. THANKS AGAIN BRO!
My pleasure!
I bless this beautiful man!!!
Thank you sharing this testimony with us. It just touched me in so many different ways. My heart goes out to you and your family. I truly admire you for being so hopeful and finding your light in what some may see as the end. It also made me appreciate and know that we should be grateful for the smalls things that we assume God will grant us just because. I have a family member who has MS but never really wanted to pry into her MS diagnosis out respect for her privacy. This has given me tremendous insight on what a person may be feeling or dealing with on a daily basis. My prayers are with you. God bless.
Be strong you are a hero and a good role model to all of us. I will keep you and everyone with m.s in my prayers. Hopefully one day in the future there will be technology to cure this disease. You are not alone you all have our support and love
This literally made my day! Thanks my friend!
This is such a great testimony!!! Thanks for sharing
I have MS, and my baby sister and my oldest sister, ❤❤❤
Thank you for this video and for sharing your personal story. My mom was diagnosed with MS in June 2007. All of these years she has had very little issues and symptoms up until about a year ago when she woke up one morning and realized she was having issues walking. Now everyday she walks with a cane because her legs feel weak and she cannot stand for long periods of time. She had to go on unemployment and her neurologist told her she is considered permanently disabled. I can see it in my mother that she still has the potential to be the normal mother she was but this disease has made her feel like there is no way out for her and that she will never be the same again. I am trying to help her set goals and plans for what we can do to make her feel like a normal human again.
🙏🏽🙏🏽
I just got diagnosed it’s so scary and strange and embarrassing!! And isolating ❤
My friend is in the hospital right now, just diagnosed with MS and is saying it is getting worse. So scared for him.
in June i got diagnosed with MS and a brain tumor and i never knew MS could take you off your feet until it happened to me in November
I'm just seeing this, but hang in there and I'll keep you in my prayers for sure.
@@CircleSpin360 Hi Jeff, how're you doing now?
hey how are you doing now
Praying that you are well
I hope u r good man. 😢
I'm so sorry, brother. God bless you. You are a strong man.
This video brung tears to my eyes. Thanknyou for this, its very encouraging.
I have MS at 23 and I'm inspired by this guy!!❤
Thank you for sharing! I was diagnosed with MS when my boys were very young. You’re right most people don’t understand the fatigue that we experience. I cried listening to you tell your story because I went through the same thing with my boys. My sons are older now. I was also diagnosed with a CVID. I get Privigen infusions every three weeks. They’re IIVIG immunoglobulin infusions. Thankfully, it’s also helped with the MS. May God Bless you! 🙏🏻
Making me cry your story is amazing. Thank you
The, "I've gotta be strong for my family" is a common personality trait of people with MS. Chronically compulsively being more worried about the feelings of other people than your own. This is a coping mechanism from trauma. This disease and all other autoimmune conditions are caused by trauma. The fact that he admitted that deep down he was terrified yet he's not showing those emotions. He's stuffing them down. When the emotional centers of his brain are no longer doing their job, you know, expressing emotions to keep him from being overwhelmed by stress (cortisol) inducing life events (ie expressing anger to keep toxic people away etc), the other parts of the body start trying to stop you from engaging in those stress inducing behaviors. Your immune system is incredibly intelligent. It will do everything it can to try and wake you up. The only way to go into remission is to listen. This does happen and the only people who go into remission are the ones who learn this lesson.
Could you elaborate on this please?
This is the face of disease no one is going to measure, I have a feeling that this is true and only spiritual practices like meditation will truly help you
@@brendaoro2951 there are many healing modalities. I studied a lot about trauma therapy to heal myself of Rheumatoid Arthritis. I change my whole life.
No...this is crazy talk...EBV causes MS...
I believe you
I’ve been having more and more symptoms and fatigue and it’s weird because I’m also prescribed stimulants for ADd and depression… along w other meds
But I think the stimulants have made things worse because walking is strange now.
Without them, I can barely face the day, but I have a feeling they are burning things out faster
Was just diagnosed this month… seeing this broke my heart when talking about wanting to play with your child. As a single mom (fiancé passed away 2 years ago) to a 9 year old boy I can tell he’s scared something is going to happen to me too and it’s heartbreaking. I pray everyday multiple times for Gods healing (if it’s his will) and just strength because I am currently on 3 weeks now of this flare up and symptoms aren’t lessening or just when it does I wake up the next day and they are still there. I just want to feel normal again and start making the healthiest choices and even get involved with support groups. Lord knows I’m going to need them.
I pray for you. Truly hope you receive the help when you need it. I totally understand
You got it !!🙏🏽🙏🏽
Please read cleanse to heal by the medical medium. Do not let the medical industry make you think there's nothing you can do other than take harmful toxic pills, and this is coming from a nurse 🙋🏽♀️ I was having some Ms symptoms myself and I did a 90 day juice fast.
This was really touching. Thank you for sharing this.
I know how it feels because I have multiple sclerosis for like 4 1/2 or five years and I feel I was working and going to school so I know the pain of fallen and what I’ve been through was people picking on me laughing at me and think it’s funny talking down on me and some people are encouraging, but I had to keep my head up and sometimes I have the cries But I stay encourage and keep my head up to God because he has the last say so and you should do the same. God bless you and your family.
Stay very strong You're doing good I'm 33 this year found out I had multiple sclerosis back in 2017 when I was pregnant I am currently hanging in there myself and also getting through the days cuz I'm watching this video I'm in so much severe pain can't get out of bed but your story touches me and your family and your wife that is hanging on your side and supporting you.
I definitely understand everything he said it is that you have to try to decide you want your career you want your family and then it's sorry because of finances you need to make and unfortunately disability doesn't give you as much as I should so to give up what I can make is the most difficult thing.
thats fantastic. I felt so happy when i saw him riding that bike. I wish him all the best in the world.
Rest lay down heal amen bless you. Hope your life gets better.
God bless you bro and your family 🙏❤️
I just got the news today I have it please pray for me I'm losing it now crying all alone anyone help me I need to learn More about this disease
Hey sara im 16 and male and just got diagnosed today with ms, as a 16 year old boy it is extremely depressing and i am the rarest kind of ms patient as im also a boy, please stay strong and message me if you need help, im here for you sara.
Sara and Matt, I am so sorry that you both are having to deal with this. When I was first diagnosed a few years ago I thought my world was going to end. Everyone’s story is different, you have to decide who you want to be moving forward and take the steps to become a mindful person who chooses positivity and healing. At the beginning MS took many things from me, the biggest was my mental confidence and mental well being. As time passed I gained it back and learned that MS also gave me more appreciation for the good things in life. I finished my degree with highest honors and have positioned myself for promotions at my job. I’m going back to school to obtain a masters degree as well and I spend more time with my family than I ever did when I was “healthy”, and enjoy working out on my good days. I’m slower than I used to be but I’m still super handsome, lol. Don’t let this disease define you, fight for everything and best of luck to you both!
Ms is a disease in which the immune system eats away at the protective covering of nerves. In MS, resulting nerve damage disrupts communication between the brain and the body. Physical therapy and medications that suppress the immune system can help with symptoms and slow disease progression.
🙏🏽 I needed to hear this thank you, I’m 30 years old I didn’t know what to think I was diagnosed with MS about 4 months ago .I have a 5 year old that keeps me going, I never seen this coming ,I was crushed I cried.. I was playing sports always active hard working man I would give the shirt off my back to anyone, I didn’t understand how or why this happened. I still have my days I get down about it, I would love to know how long it took him to feel better. I’m getting infused every 4 weeks working out everyday I won’t stop until I’m back to myself!!
Diagnosed last year myself I'm 31 this year. I was told most people go on to live a full life, some live 5ish years before a normal healthy person . I was also told someone diagnosed at my age of 29 at the time would usually go on to not need any walking aids for around 25-30 years. It's not a death sentence. Yes there's some pretty shitty symptoms we need to deal with but I refuse to sit and feel sorry for myself I live every day like a normal person with no ms infact I just learned to drive with my ms with all the fatigue and brain fog. Nothing needs to change or stop you got this brother 💪. Live like you didn't get the diagnosis and take anything as it comes for the majority of people it's a very slow progressing disease
@@LordFergiehi, can you share what symptoms u felt that led u to ur diagnosis
@mishaalzk6033 hi mate I wish I could share exactly what my symptoms were but i was actually diagnosed because it was accidently found. I attended hospital for frequent headaches I got an mri and they found 2 lesions in the brain I had a proper just 3 years before and they looked back and noticed it wasn't on the scan then. I don't even know if the headaches were caused by ms but they have definitely calmed down now and are less frequent.
Looking back however I can maybe tell you some signs to look for. I actually ended up waking up one day with something called foot drop I couldn't lift my foot . I could if I lifted my legs but my toes wouldn't lift up the way and I couldn't balance on my heel. So nerve damage is one to look out for it can be as bad as that or as simple as the persistent burning sensation I get on the side of my neck. Another sign is vertigo, I get very bad vertigo that comes on randomly and is debilitating but only for a few seconds.
I'd say my biggest symptom looking back is memory problems, brain fog and problems recalling things like actors names etc or forgetting what you are saying mid sentence. Muscle weakness or pain in muscles from too much activity. Spasms in calf muscles from walking too much etc .. everyone Is different but I guess they would be my top symptoms so far .. connective tissue problems like pain in the pictorial area when touched with fingers.
@@LordFergie thank you ..appreciate it…sending prayers and well wishes for you 🙏
Beautiful family. Blessings.
Thank you! It’s hard for me to put these feelings into words and no one understand anything, u said this so perfectly thank you
What an amazing man . May god bless you ❤
Been diagnosed for 15 years now and I worked 10 years after and for the last 5 years ms has takin my life away…. I have my children take care of me but this was not in my plans. I see a lot of people with ms walking around like normal and I say did they forget about me 😢
Where you put on any dmt for your ms and what kind where you diagnosed with?
Thank you for this video!
I was diagnosed with MS today 😢
Can u share what symptoms u felt that led to your diagnosis
I was diagnosed with ms too.. I was pregnant when i have this disease, and i wasnt able to raise my first born child. My inlaws did my responsibility. Its so sad, very depressing, i lose my mobility and my independence.Its almost 6 yrs ang half.I have leapy vision and i felt like wading through water constantly.. Everything shakes, this is how i combat everyday .. and its getting worst, sometimes u feel no one cares.But my husbnd didnt fail to remind me that everthing will be okay and he love ang take care of me unconditionally. Thank you sir for sharing your battle.. It inspires me..
Hi mam how r u nd how is your eye vision???
Im fine, actually remind myself always that it will be fine, and sooner i will be healed. My vision is still bad. Thank you for your concern
@donaldbasalo5872 you have progressive ms ??? Mam what is pro in your vision I mean blurred or other????
@@krupasanghavi7151 maybe a progressive ms, blurry and a very leapy vision. By the way maam r u a filipino?
@donaldbasalo5872 no mam I am from india. What u mean leapy vision I don't understand mam???? 🤔
Thank you for your video, my Husband has has MS for 20 yrs, he has primacy progressive Ms. God Bless your family
God bless you and yours too my friend! He will beat this thing. 🙏🏾💯🙏🏾
How much time now ms?
Thank you for your testimony. I just want to say it’s very similar to mines. One day I’m perfectly fine and the next I’m diagnosed with RRMS. I too felt like time had stopped in its tracks and I didn’t know how I was going to go on being that there’s no cure for this disease. But since my diagnosis I’m being treated with meds that has slowed its progression down. Now I can see the light at the end of the tunnel again😊
God Bless you and your beautiful family 🙏🏽 Thank you for sharing your story. 💕
Thank you I was just diagnosed with it at the age of 51 today March 26, 2024, but I’m gonna fight for my life
What were your symptoms to make you think you needed to get checked if you don’t mind me asking?
God has you.❤
Thank you so much!! I have ms and two small kids
Thank you for sharing.
Thank you for sharing your story. It makes me (also with RRMS) feel a little more "normal". Blessings to you.
God bless you young man you keep fighting every day❤
Thank you for sharing your perspective on this scary disease. I was dx with PPMS 9 years ago, doing ok - stay positive and keep on truckin 🌻🍀
God bless you sir I've been diagnosed this March support is very important I cry everyday it's definitely an uphill battle
bless you
Thank you so much. ❤️
Beautiful and encouraging my fellow warrior.
Lol I have MS and I am also from Philadelphia and I even ride a cannondale bicycle like this guy too
Nice to see that you can finally live your life to the maximum.
This made me realize I’m not alone. 🙏 thank you!
I'm glad yours isn't to terribly aggressive. Hopefully it stays that way for you. But for me mines aggressive and it's been 3 years since diagnoses but probably 5 or 6 since I noticed it. And my vision is starting to split on me and I can't stand up with my eyes closed without falling over cause I can't keep my balance.
As someone that has ms....all we have is the time that's left for us🥺
Is it deadly ?
@RobdeKlerk-qg6lc I have MS I was diagnosed last year from everything I've read and all my specialists have all told me most people live a full life and some live like 5 years less than the average healthy person . Most people diagnosed at the same age as me don't need walking aids etc for around 25-30 years .. I will be 60 in 30 years. There are a host of horrible symptoms you may need to deal with and overcome but in the long run the outlook is pretty positive .. looking at these comments you would think its a quick killer 🙃
@@RobdeKlerk-qg6lcno just painful
@@RobdeKlerk-qg6lc Not usually but yes it can be deadly especially in the later stages.
@@rosieposie9564 Thank you
this was great to hear thank you for your amazing courage.
I have MS it is a blessing for me
Omg I’m 46 I was diagnosed in 2020. Yes I feel tired, my right leg is my weakness but you know what? Could be worse. I have to be there for my future grandkids. We got this 🙏🏼🙏🏼🙏🏼
I hope he is doing well.
Thanks for sharing your story. I'm wondering why you had to have four MRIS? I am currently being tested for MS. My symptoms started during about of covid with tingling in my right leg which spread to my right arm then a couple weeks later jumped to the other side so all four limbs or tingling. Then I began to have Painful uncontrolled muscle cramps, muscle twitches like where my fingers start just moving by themselves. My vision is going out so fast it's incredible. I have terrible fatigue, depression, weakness and muscle wasting. Specifically my group muscles have shrink so much I can feel my bones and the weird thing is I hike miles and miles with my dogs regularly. So I have been very active for many years and suddenly my muscles are just wasting away before my eyes
MRIs are used to check for the presence of active lesions and scarring of the brain and spinal cord. It’s one definitive sign of the disease. Lesions may not show up on a scan in the early stages, so multiple scans are sometimes needed to support an accurate diagnosis.
My first scan was clear. My symptoms are progressing now, so I expect to have another.
Best of luck to you. I hope you are finding relief. It may be too early, but Happy holidays to you and your family.
@@bmannion511after how much time lesions seen on mri I have symptoms from last three month but I have clear mri
Thank You so much 🙏❤️
omg I also had/have the shaky vision and the stepping into water sign
Prayers
Thank you
I suppose to have a shot tomorrow but I get so sick afterwards 🤧 I'm now in the mind set that I'd be better off without the treatment I've never been so sick or had so many flare ups since taking the treatment.
Which shot is it? Please tell me
Tysabri I'm not sure how to spell it but it's going alot better for me now the first few shots made me sick
I have MS ..my hearing loss 3 years ago because MS..
Thank you for sharing your story. I was diagnosed a week ago. I am so scared.🥺🥺
🙏🏾🙏🏾🙏🏾
I hope the best for you .I'm a 39 year old male and I'm having symptoms ,I have a mri next Thursday ,to see if I have it .hang in there ,love ya !
how'd the MRI go bud? do you have MS? I hope not :)@@burnthecandleatbothendz
@@bartsimpson-k4i it turns out I have virtigo caused by stress and anxiety.
Im 40 and was just diagnosed. My legs are face seem to be affected the most. Its scary.
I was just diagnosed yesterday. I am so angry and afraid of what I’m going to miss out on especially with my kids
This will make you stronger!
I was diagnosed in 2001 was on Ocopaxone was doing fine even I forgot sometimes I had it got a flare up 2022 diagnosis came with anxiety, insomnia.I never knew about anxiety and I am always crying this was never me .One day I was on work the next day I was in an emergency room.
🧡🧡🧡🧡🧡🧡🧡🧡 stay strong my brother 16yrs for me
Can you still walk? My legs feel a little numb and heavy
Yes indeed 🙏🏽
Omg that fatigue is heart breaking... having children makes it more difficult because they just want to play and we can't keep up.
PSA: Look into grounding and earthing if you are suffering from MS and also look in the Paleo Diet.
Prayers for you and your family ❤
I’m 25. Diagnosed with MS in November 2022. Any advice here?
hey dude try and stay strong man much love coming your way ❤
yes..get hsct...only thing that can freeze your ms and stop it from progressing to spms..
see "hsct india"
see "ucirvine hsct for ms"
I have double vision that comes and goes and sometimes I feel so tired and cannot think clearly, I am searching for answers and I had an MRI of the brain done but they said it was normal. I heard you say that you had 4 MRI's done before they found something. These issues come and go and I just don't know, thanks for posting this video.
do you have MS?
I was diagnosed a 2 years ago and for the first time I experienced new symptoms and it’s so scary, I’m only 34yo 😞
Was diagnosed 11/29/06 at 18.
What is the name a the medication that you were administering, also the pill
I was diagnosed 25 years ago no actual Ms care because there aren't any specialty ms neurologist here but I've been told by 2 orthopedic Drs I'm not supposed to be walking. I want to find what level I am and get medication that can possibly strengthen me you work it may have to be a seated job but that will help my self esteem
It's truly hard without family believing you have this illness my family said I was seeking attention. How can you demonstrate what you don't already know I'm currently learning as I live these symptoms of MS, it truly hurt experiencing this with no support.