Multiple Sclerosis: Mother living in Aged Care
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- Опубликовано: 25 июл 2016
- Rachelle McIntyre is 42 and has Multiple Sclerosis. A lack of appropriate services has resulted in her living in an aged care facility. She feels isolated and wants to be around people her own age and live with her teenage sons… but first there are many challenges she must confront and overcome.
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This poor lady has no Quality of life it's like she is being punished for having the audacity to be ill with MS.
This is an absolute travesty. She's basically been institutionalized for having a disability. It doesn't affect her mind, so ripping her away from her kids and only giving her an hour a week with them is beyond ludicrous. There's no excuse for it. A 43 year old mother of 2 should not be abadoned in a nursing home.
Everyone is cheerleading her on, but is anyone really listening to her? I feel like she’s depressed, and trying to reach out but nobody is listening.
Alex Von P Shermanshe needs on going therapy, life coach and financial support
Why doesn't someone from her family help her? This is so awful.
I am a CNA. I would care for this woman in a heartbeat. She deserves to be at home and be with her children.
Jenna Alissa same!!! I'd take her in!
Also, there is a lot more help here in the USA compared to other places. I've been sick since 93, but I'm not in a chair. MS effects everyone differently. There is more than 1 type of MS. I deal with pain and fatigue daily. If you know someone with MS, contact MS focus and the MS national society. Call 1 800 FIGHT MS.
So sweet of you to say that you would care for her. I hope she is able to return home. There is no place like HOME.
It’s just diet. MS is a lipid metabolism disorder. Look up diets by Roy Swank, George Jelinek, and Terry Wahls.
That was my first thought too..
She can come and live with me.
I have MS too we can help each other
Im 42 and have MS....I couldn't even imagine living in a nursing home at this age, my heart goes out to her ❤
My mother tried to put me in a home 3 times after I got sick. I was 23 when it started. I was and still hurt.
I was supposed to be in one at 22 year old
I’m 51 and it might be my fate soon. My husband became abusive, would leave me on the floor when I fell. Now I live with my daughter: She’s worn-out from my falls, plus, her home isn’t handicapped accessible. This isn’t how I want to live the remainder of my life. Of course, neither does she. Her boys seem like they’ve become so distant from her. That in itself is heartbreaking.
This woman needs to be in her own home with carers going in and helping her through out the day when it's needed.
and are u paying for careers ?
Are you paying for it? 10K plus per month minimum
I can’t think of a worse time for someone to divorce. Or a colder way to do it. Shameful. I understand the fatigue of being a caregiver and for your spouse but talk about pulling the rug out from under someone.
+Rebecca Adams it might have only played a part in the divorce. I font agree with it myself,but there might be more factors other than just the pressure of ms
I agree but try telling that to medicaid. They would rather pay for a nursing home
Without knowing the full context of her separation from her husband, I can't help but judge him for not loving her enough. You never abandon the woman you love.
😢
@Gengar Phantom For richer or poorer, for better or worse, in SICKNESS and in health, till death do us part...why bother making the vows if you can't stand by them? Not like she chose this condition. I guess all will be made right, though. When the ass is old and decrepit, no one will want him around. I guess then he'll learn his lesson about being a narrow minded brat.
@Gengar Phantom ....Then you better never make a vow that you'll love your partner for better or worse, because you'd be lying.
@Gengar Phantom Respect and agree are drastically different. You can respect by simply letting people choose, but that doesn't mean you have to agree, and likewise, disagreeing with someone doesn't make a person a "snowflake". Grow up and get an adult vocabulary!
Gengar Phantom I’ll never respect that. But I respect those who chose to respect that..but I simply can’t. And snowflakes are irrelevant. It’s pretty cut and dried. Disagree and respect? No. Not when there’s respect left for the many partners who stay and are full time careers till the end. Those are the only ones demanding of respect and the only ones getting mine.
I'm fortunate my husband is my caretaker. I've lived with MS for the past 25 years and he married me knowing what was was in our future together.
My finacce is my care taker. He does most of shopping and all the cooking.
Those that have partners that take care of them are extremely lucky.
I'm alone and always took care of myself until I was diagnosed with MS.
Now I am being forced to sell my precious house 😭.
That is what love is supposed to be. He's a keeper!
Somebody wanted her out of the way, no reason for her to be in that hell hole home before she had to be! The school board needs to hire her back she would be awesome for the disabled hildren
Agreed, she would be fantastic with disabled children
The reality of this is very real for me my mother has MS second progressive and only has 5% use of one hand. Nothing else, she has been affected in being legally blind. My father divorced my mother when I was 19 and I have an older brother who lived in china at the time, I dropped out of college to stay at home and take care of her since no one else would, I was putting my life at 19 on hold for my mothers. Changing her diapers, transferring her in and out of her wheelchair and more. I buckled under the pressure after working a full time job at a medical clinic. My mother had to be put somewhere where she would be taken care of. She went to assisted living. They then kicked her out because she needed too much help and said they would be liable if they couldn't get her out in an emergency. There was not anyone who wanted my mother "out of the way" you have no idea how hard all of our lives are when MS is apart of it. No one wants to be there. Especially at a young age. But dont you dare say these people did not care.
Does she not have a friend or someone who could offer to take her to see her kids more at their sporting events etc? Just seems so sad that she misses her boys so much and can hardly see them. She's being forced to waste her last semi capable years away in a home which must be horrible and depressing for her. She deserves so much better.
BBand3DG agree. Seems like she has nobody.. but why are the boys not visit her more either???
I dont get this??
OMG SOOOO much better. I wish they too would make more effort. I hope they don't regret it later.
I think my family would dump me in one of these places too.
Bastard treacherous husband, if he was ill she would have cared for him I'm sure. I'm also living in a housing facility for elderly people, because I'm a full time wheelchair user and need the facilities provided here like acessible shower etc. Unfortunately I have no family nearby so I'm not doing well emotionally at the moment. Xxx
Sandra Clark if ever you need a shoulder, don’t hesitate to message me xx
How are you?
Sorry about that Sandra. I will be your friend!
Somebody hug her! Her tears are streaming... 💔
Her boys see her once a week...if it fits into their sports schedules. When they are older I think they will have immense guilt over this situation, that is if they grow up to be decent people.
EXACTLY - there will be NO escaping it for them.
I completely agree! That's so sad!
How dare you judge their situation unless you have been in it. Your remark is disgusting and judgemental. Their mother being sick has taken enough of their childhood and has effected their life enough. now you wanted them to stop their sports to visit their mom more? Im sure she wouldnt want that.
Melissa that's the worst reply EVER. I HOPE a) u dont have children or b) ur joking.
Really. When they grow up and all they can say is... I really dont know my mother or tell you anything about grandma bc she was wasting away alone while I played... they will be horrified. Again, if they're descent.
Brian HL it’s not the children’s fault they’re too young, to drive her to be a bigger part in her mother‘s life. It is her ex husband‘s fault all the way. I hope the boys do not grow up with guilt. Maybe resent their father for putting their mother away, and then he walks away. He’s a jerk, Karma will come around this way
I will be 43 in August and I have Multiple Sclerosis and have been suffering with symptoms for 15 years. Multiple Sclerosis in the blink of an eye can change your health. One of the hardest things to accept is being “normal” to instantly disabled. I’ve noticed that people are more prone to helping me when they believe I’m under the influence than me being disabled. I understand that we all in our own way don’t want to be disabled but we need to understand that we all have limitations and it doesn’t change our core strength to accept help from others.
I was diagnosed with MS Sept last year and i am grateful I am still able to walk. I had an MRI and they told me that my lesions are now on my spine. I just don't know how i would cope if i couldn't walk. Definitely counting my blessings because this could be me. I pray this lady was able to be home with her family.
You learn to cope with family support ,I would dread to living the way that poor girl .I'm lucky I've good family support when I need it .
seeing her cry within the first minute is so sad and literally sobbing 4 minutes in is just not right, it's awful that she has to live in an aged care facility at such a young age.
Definitely a heartbreaking story!
grace l many head injuries in their 20s and 30s are stuck in nursing homes.
That's just wrong. She should be able to be home with her kids and have a care-giver in her home to help her.
That is not an option, she needs to be with her family and her kids needs her💔
My partner has progressive ms. We live in the U.K. And Mark gets funding to have full time live in care at home. Watching this makes me feel so grateful for the British health system. I'm so sorry you are having to live like this 😢
Thanks for your comment Debbie, hopefully things improve for her!
Debbie Sanderson
My mom also has MS and we live in the UK... I could not imagine her being stuck in a care home such as that either.
Debbie Sanderson we are definitely fortunate.
The US would rather pay for individuals to stay home because it is cheaper then a nursing home which comes to thousands a month! I do not understand how she is in a nursing home. She can apply for an assisted living apartment where a nurse will visit her everyday.
I live with M.S. And I am so thankful for my family and support system. I wish everyone would have a great support system. My husband is wonderful he helps me to do as much as I can on my own but is always there if I need help. My children are very helpful and loving as well.
Thank you for sharing your story Vegangirl29! We hope you enjoyed the episode!
You are blessed Silver. Not everyone has a strong support system. There are many self centered people in this world.
My mother has had MS since I was 4. I am now almost 25. It is heartbreaking to watch her slowly deteriorate.
I know my daughter loves me but she just doesn't understand what is actually going on.
She never asks any questions or attends any doctor appointment with me.
When I try to talk to her about it she changes the subject.
I say I've been in bed for an entire week and I get an eye roll
I am unable to work anymore and waiting for my Disability . I worked for 25 years in the same field.
I don't want to leave my home.
My daughter asks oh did you list the house yet...
My sister said the same thing.
I can't even take care of myself and I'm supposed to get a house I've been living in for 20 years ready to sell by myself??!
No people I didn't list my house.
And I am going to live where??!
Do what is best for you.
I guess I'm lucky. I was dx in 1995. I been in a wheelchair for 14 years. I changed my position at work to a desk job, accounting. I didn't need to walk and continued to work until last October. My husband takes care of me. If he didn't I would be in a care home. He still works and sets me up with everything I need until he gets home. It works very well. My kids were 13 and 15 when I was dx and were adults by the time I couldn't walk. Best wishes to you Rachelle.
Thanks for sharing Linda 😊
My heart surely goes out to Rachelle and her sons! You are such a wonderful mom to them, even though you are apart. My thoughts and prayers are with you!!
Hope you enjoyed the episode ! Thanks for watching!
Her husband is dead wrong...
I hope that her boys help her out when they are grown up. The health care system sounds awful!
Wow she is so young to be there I really don't understand why she can't be home with a home nurse, I'm going to send her a prayer
This woman is a fighter i am telling you, her eyes are bright opened, when life is so ruff on you and you keep swimming and smiling no matter what, only good can hapened next, she needs to be back in society of active where she belongs with her kids around more often. This woman in the wheelchair asking her about her plans for the future is her best meeting the sunshine she needed to see through, I love her. Attitude you are the Best !!!
Hope you enjoyed the episode ! Thanks for watching!😀
I am very glad I came across this video and stopped to watch it from beginning to end, as it left on a very positive note. I am in the beginning of my own journey with MS and the depression it's giving me, I found some encouragement today in seeing Rochelle make her personal goals despite the disease, and having the support she found in Marie and Huhuna. I hope anyone in this position also finds ways to become motivated to continue living positively despite the diagnosis, Multiple Sclerosis is not easy to deal with at any age, but it doesn't mean the end of our lives completely.
Hope you enjoyed this episode Macarena! Thanks for watching!
I'm on Facebook if you want to reach out.
I am 66 and have MS. It's been a long journey. I thank God every day for my loving, devoted husband of 34 years. He is amazing. I have had fibromyalgia which is the pain. Bless you if you have that.
I am 42. I was diagnosed with multiple sclerosis in 2011. My husband left me 60 days later. I suffered for 6 years before they figured it out. I will not let this beat me.
Babytots I’m so sorry your husband took ‘the easy way out’, I have a few ailments, RA and Fibro plus Advanced Osteoarthritis and neurological pain and back injury from C7 right down to S1. About to go into wheelchair, and my husband tossed me aside to in my early stage. They are so shallow and weak but I feel for you as well. I, at least have a relationship with a man who didn’t walk away. X
Kerri Vidler thank you so very much for your comment. I feel like I am just damaged goods and I don’t deserve the magical wonderful loving marriage that last 30 + years. I am aging of course and none of us ever know when our time it was going to come but I have a really a hard time commenting on your comment because I’m literally doing this through tears. I have always thought that I’m a good person and I was deserving of love and respect and all the wonderful things that people get. I’m a horrible judge of character and I always pick the men that are wife beaters and abusers and then I’m alone again with so much more baggage.
Babytots I understand and wish I had the right words but please don’t let your ex win. Work on healing your heart because there is always a chance you’ll find the one. When you no longer look is when someone shows up. I just hope you be kind to yourself because you DO deserve love and I truly hope you find the right person who deserves you
Kerri Vidler Oh my goodness I want to say that you are just a wonderful person and reading that and replying not once have I lost this smile on my face. You know it’s like I tell myself these things ha ha ya sure feel a lot stronger when someone else is saying it too. Thank you so very much. Sure makes me feel real good when someone doesn’t even know you and they want to see you succeed.
Babytots that’s so sweet of you to say and you’re welcome! I wish you all the best for your health and your happiness :)
Unfortunately, this is common for people with MS who don't have financial means, even in the US. Nursing homes are often their only option. I'm surprised they don't have places that provide long term care for them, it seems unfair that they are mixed in with the elderly, and have to tolerate all the dementia behaviors going on around them. Nursing homes are known for being understaffed, and don't really have activities that cater to people who are alert and oriented mentally.
Thanks for watching Chainsaw Kitten!Hope you enjoyed our channel!
First I want to express my frustrated feelings for her having to live amongst elderly when she just above 40. On the other hand I can see her close ones side of the PPMS. When one In the family gets it it puts the whole family’s lives at an edge. I know. I’m 44, I’ve got PPMS and my body is deteriorating quicker and quicker. I watch my family’s lives being affected; my hubby needs to do everything after work many of our days and I’m not the mom for my kids that I want to be and they need me to be. BUT I know when or if there’ll be a time when our everyday life doesn’t work well be helped by the state so I can live at home. Even if our marriage crasches I will be able to get a new home and help in that place - I won’t have to live in an elderly home. It aches in me watching her story. And I do truly understand her longing to be able to work. I do too. I wish to send all my love to her and all other fighters in the MS-clan!❤️
I hope she gets out of there....she will deteriorate faster in there due to stress and depression....shes a young lady with kids....I hope something can be arranged for her to get her own little place and have care in the home,
Hope you enjoyed the episode Kattie! Thanks for watching!😀
i am so sorry for her ...i wish you the best ...i am also a 43 years old mom with 2 children ..
I also have MS and when I was 43 I had to put myself in a care home and have been here 6 years now, I have to put up with palliative people all around me and The noise of dementia floor above me, so I know exactly how you feel, it feels like an existence not an life,
Thank you for sharing your story Sam Geller! We hope you enjoyed the episode!
I care, and I hope things get better for you Sam. Best of luck :)
Jack Shields thank you Jack it means a lot to know other people cared too
Sam Geller I hope something comes around for you that you can be in a better environment for yourself. Take care :)
Sam Geller my dream was to buy a huge Victorian home and live with individuals with physical disabilities.
I'd be lying if I said that was an easy watch. I'm a 36 year old MS Warrior still struggling with the loss of my former self. I've had MS for 3 years now. I was crying along with you watching this. I hope it has gone well for you all these years later since filming this.
Scared a lot scared
this breaks my heart i work in aged care and this would be hell on earth for someone her age poor woman i see the staff are just as caring as my facility couldn't give two hoots so sad
Thanks for watching Bree may
This is the truth.
I'm scared this will happen to me.
Beautiful story. I was born with with and oestioperosis . A few months ago I was diagnosed with hsp hereditary spastic paraplegia . For yrs they said its was ms like disorders because the protein around my Milan sheath had been attacked. Now hsp , my specialist looked me in the eye and said its time to start looking at long term care. I am devisated . This story gives me hope thank you xoxox
Thanks for watching Molly, glad our video could give you some inspiration
i really hope for her to go back home with her family! My mother had M.S. , she was diagnosed when she was 23. She was very sick, couldn't do anything on her own, my grandma and me used to take care of her (my father left us) , in 2009 my grandma died and 2 years later my mom died too. One day in november 2014 i woke up and i wasn't able to move my limbs, and i was diagnosed with M.S. too ... i was 23 (life, what a prankster!) i was studying to become a nurse, but i decided to give up 'cause i still can't really feel anything with my hands and i have truble moving fast , i've done several jobs in this 2 years and now i've decided i want to go back to university . i wish Rachel good luck and i hope she can fulfill her dream!
Hi sofiagaia91 - Thanks for sharing that with us, we wish you all the best! 😀
wow sorry to hear that
You are a sweet soul! Sending you love💖
I wish I lived in NZ. I would totally transport her to see her kids free of charge. It breaks my heart that she can't be at home with her family.
I would love an update on her situation. Bless her.
She should be able to get back to the home and have a home nurse.
So happy she is taking steps to get out of the home.
and are u going to pay for nurse ?
I’m 45 with M.S. this is so sad. My husband is my life along with my kids. She doesn’t deserve this.
Thank you for sharing your story. I am a nursing student and I am learning about MS. I will forever remember you.
The complete change in her face and body and demeanour when she went back to the school is amazing. She needs to be enabled to go back to work. She does not need to be around the ungrateful husband or even her boys. She has the human right to access work. It's one of the basic human rights
Basic human rights??? What planet do you live on? Go visit a few nursing homes and get a taste of reality.
She could volunteer and read to the kiddos. All kids love to be read to.
We had a family member with MS, she also had two boys. She lived at home and had nurses all day every day. She saw her boys and husband every day! She sadly passed away 3 years ago.
Where is her husband??? Why is she not home. So sad! Her husband is caca!
Thanks for sharing your story Bianca! Hope you enjoyed the episode
My grandfather has this. He is disabled in everything but his neck and right arm. He is over 80 years old now. He is a strong man. He is at home still after all these years, my grandma still cares for him. When he was in a nursing home for a week while my grandmother got knee surgery and couldn’t handle it. Once he got home he got better again. It will all work out my friend, you have a world ahead of you. This is not the end, it’s the beginning of anew. MS is hard. God Bless them. Always keep an open heart, nothing is over, you fight this please.
He forgets he tells us things, so I will finish with a joke that he tells us every year, at least twice.
“She was only a moonshiners daughter, but I love her still” (Think about it, you’ll get it.)
This woman deserves to be among her family. Living the way she is now, in a nursing home is no way for her to live.
My aunt has MS. One of my aunts died from MS. I hope this lady is living proper. 💕
This poor lady, so strong and definitely no need to be in a care facility
Just shattered for them! Much love ❤❤
I know exactly how this is.. when I was 9 my mom passed away from MS. It was the same for her. I fought through it until them and was always by her side. when she passed I hardly wanted to continue with life. I have a chance of getting it. hinestly I wouldn't care what happens to me. I would care what it does to the people that care for me. because it is.. heartbreaking..
Thanks for sharing Voorhees! Hope you enjoyed!
Saddened. With all the technology available this is not fair
Thanks for watching James, hope you enjoyed!
No it’s not
Attitude why would we enjoyed this is heartbreaking
There is some hope with immuno-modulator drugs currently in some phase of clinical trials. They may not halt progression of the disease entirely but they could slow it down significantly.
Wonder if she accomplished her goals . She's a lovely person and good to see others reaching out and offering to help !
Thanks for watching celestialcircledance, hope you enjoyed!
I cannot stand her husband. It’s like he dumped her off in a nursing home and went on with his life. She does not need to be living in a nursing home especially at her age. There have to be resources out there through social services to get her in her own home or apartment. I wish she could sue her husband for every penny he had. I don’t know about marriages anymore I don’t think I would even marry again. The husbands almost always are the ones to leave when there is a health issue. My doctors told me the divorce rate is 72% high and he was right. I was married 35 years then divorce over a neck injury I feel that is taking my independence away. And other small problems that were going on in my marriage but this was the the stick that broke the camels back. So he cost me $40,000 in divorce. I did get the house. But it just shows how selfish and self-centered they are. But if something happens to the husband or the kids, the wife or mother does it all, and does not. Does not run away from her family. My heart breaks for her, so much, Karma will come around for her ex-husband. I’m so happy she has two sons and I hope they’ll never do a woman like their father has done. And I hope to be there every step of the way with their mother. I hope is out of the. Nursing home and living independently with help. I could not live that way. God bless you. Pray for your health and happiness. 🙏🏻🙏🏻
I was diagnosed with MS May 25, 2011, my sons 14 birthday. My husband left me 60 days later and filed for divorce. He paid me temporary spousal support. He used to call me and write me emails wishing death upon me. I got angry once and wished death upon him. But only after he paid his last spousal support payment. He paid me January 15, 2013 my last payment. He passed away March 15, 2013. Exactly 60 days later. There is a god.
Babytots hah!
Wow, that was karma.
@@bellesparks4374 That’s what I said. It’s too bad that some people are paid back in ways that will never see but this one I wear like a badge of honor
Nice one
I was touched really touched. I have met a lot of other people with MS. They had almost none of the problems i struggle with. Here is a person - sorry Rachelle!! - that are so similar to my life. So many things I recognise and understand. Being alone with one's thoughts. Sending a virtuel geat long hug!
Thanks for watching Thomas 😊
❤
Breaks my heart to see. My mum moved into aged care in her fourties with early onset dementia. My dad was an alcoholic and couldn't take care of himself let alone mum, and I couldn't spend my days taking care of mum at my house as I had to work to support my young family and she was not safe on her own. The support just wasn't avaible to make that situation work. I lived down the road and tried to get in every single day but still, and always will live with the immense guilt of not being able to have mum.live with me in her final years.
Don't feel bad. Sometimes we are in impossible situations. I have MS which is progressive by now. I love my young adult daughters with all my heart but I feel so much better watching them evolve and grow and get the best out of their lives. This road is hard I don't want them to miss out on their lives.
I am sitting here watching this in tears. I have MS and feel about as abandoned as she had been. I hope she's doing better now. I know here in the US finding home care is impossible, especially at age 53. Some days a nursing home seems like a wonderful place even though I understand its not a good option.
I'm 48 and I've had made since I was 23.
It really breaks my heart seeing people going through all these rare conditions, and for real I have never paid much attention to people with disabilities until maybe God decided to let me see what they go through and I had stroke and now depend on people to do certain things but I'm glad I'm almost recovered and I have vowed to dedicate the rest of my life caring for the disabled because I have been there so I feel the pains and quite understand what they go through,may God help us all
What kind of care facility is that when she is awake at 8 and they haven't even gotten her out of bed at 11? Doesn't the poor woman need the loo? For goodness sakes, that is a shitty place...
raerae1281 many care homes do that. Nurses make their rounds with medication and other routines. Each resident takes about 30 mins
Did I miss the country this is?
@@missmicheleo England 🇬🇧
NZ
Wonderful story. I had an uncle with MS who chose to just hole up in his apartment after his diagnosis. Years later one of my aunts was diagnosed with it too and she pushes herself very hard to be as independent as possible. She travels, exercises and has a great attitude. Dr. Hannah was very inspirational in this story and helped Rachelle get her goals in order. And Marie is such a great friend to help her achieve her long term goals.
Thanks for watching TuckerSP2011!Hope you enjoyed our channel!
My prayers are with you. ❤️
😭I have multiple sclerosis 46 and I pray for you 🙏🙏😣😭
So SAD! She belongs home with her family!!!!😞
I'm 42 and was just diagnosed in February
This is a worry of mine later down the road. I have a family that thankfully would care for me instead of having to be in one myself. It's not an easy road
I'm sorry once a week to see your parent is absolutely a shame. Stay strong dear
This I can't imagine living in a Nursing home.. I'm 43 with MS, gosh this is frightening. Prayers to this mother😢
There are alot of people at home alone with this disease !
my mom got diagnosed with Ms at 38 she was in a nursing home for 10 Years, & passed away at 48. I wish I knew more resources to help her.
that is awful... shouldn't happen. Nursing homes are for dying... everyone around you would be dying... how hopeless... I am so sorry.
Y'all tossed her in a home for 10 years? What she got diagnosed and she was then useless? Pitiful I bet she could have spent a couple more years at home with family.
swampmammytheone it was her mom. As a child, you get no say. How exactly would her father work to pay the bills and house payments if he has to stay at home all day to take care of her? It's literally a 24/7 caretaker job. Children are also in school, so who do you think would be around to help her to the bathroom or get her food and give medications? Don't judge, you are ignorant.
mindyschocolate Screw you! it's called care givers you Bitch!!!!!!
Emily Gilbey she did not choose thisher worthless husband did
I would hope that this country would adopt laws such as the Americans With Disabilities Act. Before laws like the ADA, the greatest fear of disabled Americans was to be confined to a home for the aged. Things have changed greatly for the better now, because the disabled and their allies fought hard for the changes.
It does not really matter if a nation state has laws against Disability discrimination or not. If the only state funding provision is for that level of care is a nursing home; that is what you will get. You can of course challenge the form you receive care in in the courts. However; any court must weigh up the States budget concerns from taxation revenue against the complaint.
If it cannot reasonably allocate funds it does not have for home care at that level then; it is not discrimination. Without a public mandate to raise taxation to cover it or cuts to other services it's simply not doable. The Government cannot manufacture money out of thin air without consequences however much fractional reserve banking conspiracy theorists will try to tell you otherwise.
Being disabled, she is eligible for home health care services... A provider, assistant etc. At least here, in the U.S. This is a disgrace and my biggest fear as I live alone and I am childless. I have a degenerative muscular/ spinal condition. I am NOT going to a nursing home!
Lucky for her everything’s remote now. Hopefully she’s gotten a good job
I feel bad for her. She could still be out there interacting and going to their sporting events. Those two boys will probably end up resenting their father on some level in the future. I hope they have mental health care. For better or for worse, not until you become an inconvenience.
I have secondary progressive MS and epilepsy and I struggle with other health issues that affect my mobility, and issues with my cognition, memory, and ability to process and learn new information. I slowly have been getting worse even with DMT, and I have to prepare myself for what could happen by the time I’m 50-55 years old, and 42 right now. I’m unable to work, and I’ve been married to my soul mate for close to 20 years.
I told him that once and if it gets to the point that I’m wheelchair bound and unable to transfer myself, or bathe myself, etc, I want him to put me into long term care/nursing home. I cannot, and will absolutely refuse to put that burden on him. He says he wants to take care of me, but I used to work as a nurse and im hear to tell you, even the most loving and supportive spouses get burnt out and I can’t think of anything worse then becoming a burden for him. He never knew this would happen when we got married, and even though he doesn’t like the idea of me going to a nursing home, I feel it would more beneficial in the long run.
I wonder if her family takes her out of that place on the weekend? This lady needs to be home and maybe on In-Home Care.
When I was diagnosed with MS, I begged my wife to leave me. We weren't married yet. I didn't want to throw this disease on her and felt it wasn't fair to her. What did she do? She married me. Though, I can see how much it breaks her sometimes. I try to ask for help as little as possible n do most things on my own. I dont want to be a burden. I don't go down easy. I currently work 2 jobs, but, my MS is starting to take a toll on me, and getting worse. I see both sides. The hurt in my loved ones eyes, or having to sometimes help me. But, as the one with MS, I feel their hurt as well.
She is a young women. I hope life turns in her favor. She needs the dignity of being home with her children
Thank you for sharing this story. I hope there will be a cure for MS in the future. My ex gf had MS which did scare me a lot. She didn't talk about it much herself which i do understand, but it didn't make it easier. This condition is truly devastating in part due to how unpredictable it is.
I think you’re an amazing person! You’re ongoing spirit it beautiful!
your children should have you at home. ugh. I have ms PP pray my daughter keeps me home.
Thanks for watching Margo, hope you enjoyed!
no I didnt. it's seriously sad
She is a very strong person, l Pray that soon Rachel will have what she so desperately wants and needs! She seems so charming with a sweet pretty face and disposition!’ My Prayers for her and the boys ! Take Care Sweetie things will improve for you Amen ‘🙏💕🙏💕🥰❤️
this really touched me this lady I pray she found happiness n love any update on her?
Such a beautiful human being. I wonder how Rochelle is doing these days?
Omg……I’m heartbroken she is living in an elderly nursing home. Fgs are there not more suitable places for younger people? In UK she would have home care at the very least. I’ve nursed ppl with MS and the NHS and Council provide equipment etc. We also have volunteers to do shopping, housework etc. Truly sad for this poor lady. Another thing having children doesn’t guarantee they will be there for you. Yes we all say they should but you can’t force them. However the ex husband could and should do more to encourage his sons to see their mum more.
my mom has ms and in the worst condition.. pain.. I'm crying everyday, I'm glad I graduated school but I'm worried and sad my whole life
This is heartbreaking
Oh man that is So Sad , I’m speechless
I care for mom with MS. This is so sad. I wish I could take care of this lady too. How heartbreaking.
I’m sorry that you have to be in the position of being a caretaker. I refuse to let MS cause my son to stop his life for me. He never asked for it, and I’d never expect it either.
Dear lady she deserves better she should have help at home not be in here it's not right shame on her husband she needs a life with her kids
This breaks my heart yo I swear
I can’t understand way spouses are quick to leave when the other person gets sick ...ya it’s hard to deal with but you married that person because on Love ! No one wants to be alone and this wonderful women should not be dumped in a care home she’s so young ...I’ve worked in a care home for 15 years now and yes it’s stressful and depressing on younger patients ....I look after my mum as well and moved her in with me because she deserves it !...would love an update on this story 🥰
Physical Therapy, I just started, with such weak muscles, I fight this.
Unfortunately, this isn't a rare thing..I worked in several nursing homes, and I've seen this twice. Worse cases than this lady here even, unfortunately. Its a cowardly thing to do to someone with whom you're married too, and have children with. Its very sad, but it wasn't anything we could do. When its the other way around,(the man being the disabled) I've never seen a women do that to her husband, but that doesn't mean it doesn't happen, just extremely rarer. Its such a selfish thing to do, and it should be illegal to do that if you have kids together. They should have right allotted to them, they're basic human rights as a mother, to have reasonable, and regular visitation!
How did things turn out for Rochelle? Did she get her own home? This makes me so frustrated for her. She didn’t deserve to be dumped like that.
God bless you. Amen
Just worked out this was about 5 years ago, l hope things have improved with accomodation and her relationship with the boys.
Bless you.