My husband was diagnosed with Lewy Body Dementia two years ago. He was a pilot, loved to go on very long and strenuous hikes, loved traveling and doing very active things. Now he can't find the bedroom, go to the bathroom by himself, he has major hallucinations, can't dress himself. I'm his 24/7 caregiver. He watched his first wife die of leukemia, loved her till end, took amazing care of her (they were together 37 years). Then he met me. We have been together 12 years. He has given me a wonderful life. I will NEVER put him in a nursing home. I'm beside him every second of the day (he is hallucinating right now). I will be by his side until the end. Lewy Body Dementia (all dementias) is a horrible disease. I have also (in the last ten months) been taking care of my elderly mother and father...I promised them like I promised my husband I would never give up on taking care of them. Thank you for your story. Much respect 💔
@@asafaust6774 thank you for your kind words. I'm just grateful God has granted me the ability and am financially stable...I so feel bad for those unable to do this due to health or finance.
@@chellegriggs u do not need money...u only need God given wisdom and a plant based diet including the incorporation of the additional 7 principles of health....this medical system has duped everyone...ask GOD for wisdom and HE will provide...be blessed.
chelle I understand your passionate fight...I too am going through it with my brilliant husband....we both lost our spouses and were introduced 18 years ago, he also has given us a wonderful, fun life......I feel the same way, I will never let him go into a residential home...he is my love and I will be by his side always.......it is such a heartbreak......nobody understands that the brain is shrinking.......I feel emotionally paralyzed sometimes..but always hide my sadness.....I make him laugh, and lead our lives as normal as possible...my husband is older though, but great fun...so sorry .....
This is a remakable place. I pray that God will give all the care givers of all people with these dreaded diseases the strength they need to care for them. To the medical community and researchers I pray God give them the grace and support to maybe one day soon to find a cure. Bless all of you.
I'm at beginning stages of vascular Dementia and it's very frustrating, I've completely shut down and by that I mean wanting to see friends workout for that I was so addicted to working out 2 hours a day nor do I socialize because I get so so frustrated when explaining what it is or the things I do. I'm very aware of things I do and it really gets to me from leaving my wash in the washing machine forgetting my groceries in my car finding them the evening or even next morning. And when my daughter forgets that I have it and makes me feel as if I don't listen to her because I forget so much. I was watching this and thought it was so interesting and was scrolling on the comments and Damm I've seen it already 11 months ago and even commented on it and I had no idea , Having this is very frustrating but I just keep my faith with God and I truly believe he has a plan for me🙏❤️
Lost my spouses to this. she had it 4.5 years. Anthony I see the date up there 2 years ago you posted. You probably cannot relate here any longer. horrible disease.
I was diagnosed with early onset dementia over 10 yrs ago in my 50s due to extreme forgetfulness and from an MRI scan which showed shrinkage on the brain and other tests. I gave up driving straight away as I believed that was the responsible thing to do as I believe memory problems and the ability to concentrate are linked and I wish more people would be self aware or at least their relatives. The problem is people either aren't self aware or are in denial and will often hide symptoms from their relatives. I'm a widow now and live by myself but I'm still here but my quality of life is questionable. Due to severe scoliosis and arthritis I went from being capable of doing a 5 mile walk to struggling to walk across a room within 2 years. This loss of mobility devastated me so I envy anyone my age who still has good mobility. I'm determined not to end up in a care home and would prefer not to be here if that was my only option. I do however have my mobility scooter as that is the only way I can independently leave my house now and with a max speed of 8mph reduced to 4mph or below in the town centre I'm no danger to anyone.
God bless you. My mom has it and we were very impateint with her, until we as family started to get an idea that something is off with her. Now that we know, its tough, but thats life. I love my mom
My husband had Alzheimer's and I wanted to be with him, so I planned to sell our home and move with him into a care facility. His doctor told me in the strongest terms possible that this was a very bad idea. He said that if my husband died, I would be homeless because I did not have Alzheimer's and therefore, I would not be allowed to stay there by myself. So I would lose my husband and my home at the same time. Fortunately, I listened to him and followed his advice, and I am extremely glad I did because my husband has been dead for 14 years and I cannot imagine where I would now be living if I had sold our home.
@maryannaderson2213 • He Also would not have ever wanted you to end up in that situation I am stuck both parents have died ?I am resident but I have a 15 Year old I got diagnosed with this I freaked out so much I had dopamine blockade in 2016 ?I can’t count I can’t navigate I am flipping exhausted I am calling my son my Brother my Brother my Dad I used to work in optics -But with a child ?He is still a child I have two brothers one is an MP -The other a Professor I feel stuffed my dear ?😢My son was 7 when I got my original brain injury but dementia runs in my Mum’s Family -I was muddling through now I feel like I am turning round backwards in semi circles I am dizzy esp standing on anything or just at random(Using money is not the only problem?A card I lost 15 in one year 😭😭Lost my purse my medication in my own home ?It’s like a computer misfired or all the tabs are on it got some Virus -My Dr told me we will all get it 😢…That’s when I freaked out told him phone my brother not me ?So I was 39 when this started I am 46 Years Old now I worked in Optics now I could not organise anything?Like even food ?
@@EllaBella-76 Oh darling I am so sorry. I hope you have in home care. I too have dementia and cannot walk or talk without medication. I can wash dishes but don't have enough balance to shower myself.
Thank you for sharing this. I worked in a nursing home when I was in my early 20's. Many of the people had dementia. I would go home crying every night. Then I decided the best way to deal with it was to come into work singing. That's what I did everyday. I walked around the hallways singing as loud as I wanted too. The patients loved it. It brought joy to them and to me. We need the dignity that is shown to these people in Denmark right here in America. Can you imagine that? Money does not defined the care you get. It shouldn't. It's about the dignity of life.
ALS and Alzheimers are way different things yes they are both horrible diseases but not nearly the same. My SIL died of ALS at 51 diagnosed at 49. Her cousin died of it in his 20s. Worrying about my brothers children now. We also have MS and Alzheimer's in our family too plus cancer. All these diseases need to find a cute NOW!
@@debraderoos5225 And I have a daughter dying a horrible death because of MS. Primary Progressive MS for 20+years. 46 years old, 5'7" and less than 60lbs with 10 or more bed sores some to the bone.
I do the exact same thing. I work in a group home for developmentally disabled seniors....they all have levels of dementia. I love my job so much & sometimes cant believe they even pay me. I sing to them or have music playing all the time. Especially during bathing & other intimate requirements. They love it....so calming.
He's not slowly turning into another person. He's vanishing. One of the worst things that happens to you once a loved one you have cared for, and watched decline over time, is the relief you feel once it's over. You miss them, but they were not 'them' for a long time and they're finally free...but so are you. And it's hard to forgive yourself for the relief.
One lady told me it's like a enforced divorce..but at least one has closure with divorce..with this, it's like being between life and death.I only watched this today it came up randomly, so I see your 3 comment is 3 years old now..I Do hope you are ok, my mother was recently diagnosed as well..
@mocking intercessor where did u get this from? She NEVER mentioned anything close to this. YOU hav no idea how she was feeling or what she went through. Never assume. Everyone has their own experiences & feelings. How old r u, haven't u figured out not to speak for others???
As a therapist in the US, it brings tears to my eyes to watch this. I wish there were more places like this. A peaceful environment is everything to some one under so much stress and anxiety from this illness. The creators of this are angels!!
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
It looks so peaceful. One has to wonder whether sleeping tablets, antidepressants or perhaps the medications for hypertension (which often include blood thinners), aren't causing early onset dementia.
@@waterbearer6331 I've seen that over and over. I taught in a residential facility for children with disabilities. Severe emotional disorders, etc. It lacked a moral and ethical compass because of its need to hold on to clients(as they were called) longer than they were suppose to be there. I needed the job but was very angry. So, I prayed everyday that it would close. I stayed longer than I had too because I decided the best thing I could do was to teach my students how to become a strong advocate and believe in themselves. I was there for over 9 years. One day I decided to quit. Less than a week later the facility announced it was closing. It had been there since the 1940's. Prayer works.
@@naomiemoore5725 So many people are; I have a family member who started on medication for hypertension and then started having sleeping problems so went onto sleeping tablets. He's tried to come off the sleeping tablets but develops flu-like symptoms almost immediately and can't sleep at all, so he just goes back onto them. I feel he's starting to show signs of cognitive slowness (which is what happened to my mother, who was also on all of these medications and developed dementia at a relatively early age), so I'm terrified that this, Alzheimer's, is also happening to him; he's in his sixties. One doesn't really have a choice when it comes to these medications, and it might not be these medications at all, but I do think each patient should have a history of exactly which medications they were or are on and perhaps eventually the medical world can connect the dots regarding what is *causing* early dementia. They say to keep the brain active, which I try to do, but look at Iris Murdoch: she had a very active mind and developed Alzheimer's anyway. Take care.
@@macclift9956 Thank you so much! That's why I keep detailed records of what I take and why. Hopefully we will get lucky and medical professionals will figure it out. I also believe environmental issues can contribute too, and since each person different, it's hard to pinpoint exactly what might be a contributing cause. Think of our food supply. I knew about glyphosate long before it became an issue, now it's a big deal and extremely polarizing. Camp A says it's just fine. Camp B is totally against it, hence the lawsuits and multimillion dollar verdicts. How much is safe over a lifetime? No one knows. Yet banned almost world wide except in the US. Mind boggling. If I had little children I would be on my soapbox on every corner until someone listens.
My dad had this. His personality completely changed over three years, but the saddest part was he died from mesothelioma, not really knowing any of us. He was in the Navy during WWII and a fire chief. To see his decline was more than heartbreaking.
I cried throughout this whole thing because you loose your loved one while they’re still in the house with you, what an devastating thing to have to witness.
Janet your love for Greg shone through so brightly Greg was a very lucky man to have you by his side I'm so sorry for your loss I hope you are doing ok RIP Greg
@@starquant ...this American is telling you to shut your big trap. Cathyann, was expressing her condolences. Your ignorant tirade was misdirected and inappropriate here.
Starquant...When we are children, we are taught that life is not always fair. As a child, you perceive anything that does not go your way or in your line of thinking, to be unfair. Well starquant, it is time for you to grow up! Cathyann is not the problem, nor is the so called old fart that you referred to, in this video. It is easy for you to pick on them, because you are simply a bully, pretending to have a cause. You are angry with yourself, because you feel helpless and inadequate and you are taking it out on those that don't present themselves as a challenge. Inwardly, the bully perceives themself as a victim. They project onto others. You will not stand up to the real perpetrators, the faulty system, because you are a coward. You must focus your attention and rage onto those that are less intimidating. You don't realize that you are part of the problem. I know that my words are harsh, but you are in need of a wake up call.
@@starquant ...I am in no means, rich. I blame the true sources on a misguided system. I do not go around blaming it's mere citizens, in relation to the system. You are not the brightest bulb. Your misrepresentation of genuine folks is toxic.
I lost my mom recently to this horrible disease. Luckily we kept mom home surrounded by all those who loved her. Mommy you are free now. What a glorious day it will be when we see you again ❤🙏🏼
My dads funeral was today. He had early onset dementia and after having the vax his dementia was off the map. Lots of mounting evidence coming out regarding this
@@fluffyanne1177 I am so sorry Anne. My brother had a stroke on day of his retirement He was in his early 60s. When he got the van he collapsed face down and taken to hospital where it was confirmed he had a stroke. It seems similar to dementia.
@@fluffyanne1177 it apparently (vax) makes symptoms worse for existing conditions, cancer patients coming out of remission, cancer is then aggressive which takes their life. I'm so sorry your Dad went through that. Bad enough without the mandated poison making it worse
My dad has dementia (early) and 5 years after diagnosis he is physically the fittest I’ve EVER seen him. I hate to think of him going to an old folks home. I think he would love this village. Also It was heartwarming to see how Janet and Gregg were so devoted to each other ❤😊
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
Greg basically got what he wanted. He didn't have to live in a facility and was lucky that he escaped the horribleness of alzheimer's end stages. R.I.P. Greg. Condolences to Mrs. Kelly and family.
My landlord is in the Veteran Dementia unit. We have been friends for over 50 years. He is 66 & I'm 64. I just woke up & saw this. Thank you so much. Love all of you involved.
My husband was diagnosed at 65. I saw subtle signs long before his diagnosis. When it was becoming more obvious, I had just completed my annual physical. My doctor asked if I had any other concerns, and I was concerned about may husband. The doctor just dismissed my worries. Six months later, I took my husband in and demanded a mental acuity test. He scored 20/30. The doctor was immediately on the phone with a neurologist and neuropsychologist. Further testing showed he scored on a battery of tests from low-normal to profoundly affected. Three years later, he scored 1/30 on the mental acuity test. He is now in memory care. I can understand only 5% of what he says. He hallucinates, and now his gait is being affected. He is 69. He was an English teacher, then a lawyer, then a CEO. He was good with words, but his speech was the one of the first things to fail.
I see your husband deteriorated within 5 yrs. Is 5 yrs the norm to lose memory and speech after around 5 years? I thought 8 yrs was average to lose memory and speech . It's an awful disease. I hope there will be a cure. I became aware of Alzheimer's when l was told that my friend, who had moved to another province, was in an an advanced stage of Alzheimer's . She passed away at age 72. We phoned every day on the landline until she told me her phone needed to be repaired. I am looking back and l discovered that she couldn't use the cable. He husband had passed away so she was alone. She visited the UK every year but she suddenly stopped travelling overseas telling me she couldn't leave the cat because the neighbour who injected her cat while she was overseas had left the neighbour. Alzheimer's has haunted me since Anne's passing. Fortunately, her husband left her money to lead a comfortable life and her step daughter arranged for her to live in a gated complex in her own home. She had an all day nurse and all night nurse who took her out for walks around the estate. It's scary because many people, myself included, couldn't afford the luxury of a day and night nurse.
I worked on a dementia ward at the end of most individuals lives, I loved my patients but was a job I could not deal with watching and learning how a person used to be to this person led in front of me wasting away because their brain had wasted away and they could no longer eat or sleep, or dealing with aggressiveness because they didn't know where they were or who you was. It's horrific and the thought of this illness reduces me to tears.
What a Beautiful couple, so in love even after 20 years...Janet, I'm so sorry for your loss. 🙏 sending you prayers of comfort during your time of need, from the USA 🇺🇸
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
I worked in a dementia ward for 5 years. It's a cruel ruthless disease that takes no prisoners . The youngest we had was 47. I felt it an honor to care for them actually. And it taught me so much 💔
Thank you July Rain, My father and I just made the decision to put my mom in home (she is getting violent) Knowing that there are people caring for them that care helps. Thank you.
July Rain yes, it takes a truly special, caring, TRAINED and patient person to be a caregiver for Alzheimer’s patients. Sadly, here where I live in the US, even paying $4K a month out of pocket for care, my Dad had SHITTY CARE and had my MOM not been there EVERY SINGLE DAY, there is NO telling how they truly would have taken care of him.
I agree with Greg saying “we are not elderly so don’t put us in an elderly home!” I totally agree. My husband was diagnosed shortly after we were married and he was 55. He was in late stage 3 then. I never want him to go in a home. He is 6’7” 340 lbs and I am 4’11” and 140… I pray I can find the right help at home. He is former Law Enforcement and I’m terrified that if they treat him bad, he will fight and he will end up in restraints. I pray, pray, pray that I find the right care for him in our home. God bless Greg’s wife and rest in peace Greg.
I don't think it's legal to use restraints in the US now. They would be more likely to heavily medicate him for his own safety and the safety of those around him. I strongly suggest you start looking into it now as there are long wait times for almost all services. You should check with his union too.
I've been the Director of Nursing in a very large secured memory care hospital for 20+ years I want you to know you have my deepest respect and he's extremely lucky to have you! Having said that however I need to warn you that with his background and physical stature if/when he gets frustrated or scared you could be in a very scary dangerous situation. My own father who was in the military tried very hard to physically hurt or kill my mom while she was asleep because he awoke suddenly and thought he'd been kidnapped since he didn't recognize her or his house/bedroom. She spent 6 days in the hospital hurt and blindsided not expecting something like that would happen because till that moment he had always been nonviolent even tempered when she was telling me what happened she said she woke up with his hands around her throat screaming at her and because she's only 5'2 to his 6'3 she couldn't do anything to get out of his grip and had no choice but to pray he would come back around and let her go before she passed out and succumbed to the total lack of oxygen which thank God he did just moments before she would've lost consciousness. Only you know what is best for your family I just urge you to consider a situation like ours and many more just like it involving my patients at work while you are planning the course of treatment that is safest for both yourself and your loved one. I send you my warmest solidarity and blessings wherever you are in this moment! I'm here if you ever need someone to talk to or bounce questions with you can email me anytime at blissfullyblessed32@gmail.com my name is Shauna 😊
Just remember if nurses or home healthcare providers aren't safe during one of his episodes you speak about you might not be either so I recommend you having very open communication with his physician about this and that there is a plan in place to ensure safe care for both of you in terms of exactly what to do when it happens the next time ❤
Honestly, losing mental faculties is the most terrifying thing to face as far as I'm concerned. My mother and I have the same thoughts, as soon as you have to wipe my ass, let me die. Saw my grandfather go through it, wouldn't wish it on anyone. To see a once strong and stable man deteriorate to that of an infant, it's heartbreaking.
I’ve lived this story my husband gotAlzheimers when he was in his early80s I was his only care taker and life was horrible for the both of us as he got worse the Drs said he had to go to a managed care place . He was only there for a few weeks when he fell striking his head causing a massive brain bleed he died 2 Days later. Even though he got very mean especially towards me. I miss and love him still. Life for me has gotten a lot easier in the 8 mos he’s been gone but because we were married 62 yrs and had 5 kids togather I still think he should be here .. I know one thing I would never want another husband and I kind of like living alone.
Well done for the care and love you gave him despite the problems. I'm a nurse so know what you would have had to deal with. You deserve to enjoy the time you've got for yourself now😊
America should take a lesson from these. Our senior and dementia care is pretty much non existent. Thank you Janet for sharing you and Greg’s story may he rest in peace 🙏🏻
Here in America instead of this we have billionaires who have to have more houses and cars and stuff. Think of the things that these people could do to help others, to give back to the community, there are so many ways you could change the world if you had that kind of money. Instead, here in America we are obsessed with money to the point of pathology. These kinds of facilities should literally be a necessity, not a luxury and available to anyone who needs it.
I am a retired RN who specialized in Dementia/Alzheimer's. I wish homes like this one would be in every city and town around the globe. What a wonderful gift to have such a loving environment. Rest in Peace. Prayers and blessings ♥️🔆🙏🏼♥️
I think this is wonderful. My partner did not even get out of the hospital. He passedin july 7 of 2019. I am glad for him, i do not know if his fragile body, could have gone through and survive. I was his caregiver for four months, scared me, his progression was changing, almost daily. I watched it happen in front of my eyes, i had a nervous break down. I cannot even still imagine this wicked disease, wicked, i am so much missing him, i still so miss him, i love him so much, it is almost a year, i still am beside myself. Wicked disease!! I hate it.
My husband developed FTD in his late 50s. He was a professor and after only three years of our marriage his personality changed so dramatically that it became clear he could no longer teach. He was 69 when he passed, a stranger whom I didn't know. I longed for him to come back to me years before he died but to no avail. I still love that man and liked the one he became. I couldn't help myself. Thank you for sharing. RIP Greg.
I am so sorry my dear. I believe that this is not the end... our deaths are just a transition over to the spirit world!!! I can hardly wait for mine because I live in chronic pain! I've been researching life after death experiences and I'm convinced that we really don't even die... just our bodies do and once your spirit pops out of your body... YOU'RE FREE!!!! They say that there are people like Jesus and family and friends waiting to greet you in a massively huge room like a lobby that's brightly lit up!!! How cool is that??? Oh they told me much more but you'll enjoy researching it for yourself!!! I'm just saying please don't be sad.... You'll see all your loved ones soon enough... Because our time here on EARTH... is a drop in a bucket in comparison to GOD'S HEAVENLY TIME CLOCK!!! GOD BLESS YOU MY DEAR!!!
Jnia ChildoftheKing I’m very sorry for your loss. 🌹. My husband has advanced Parkinson’s Disease (over 20yrs) and Lewy Body Dementia (10yrs). He entered a good nursing home 4 years ago and I visit daily, with our children visiting weekly. Dementia is Thief and destroys not only the sufferer, but irrevocably alters the lives of loved ones. 💔
I am an 82yo New Zealander married to the most wonderful Filipina lady in the world. I don't have dementia but i have a younger brother and a younger only sister who do. I know i shouldn't cry watching Greg and Janets story, but i did, especially the Kiwi label on Janets jacket told me, they have been here. It was terrible for me to hear of Gregs passing. Poor Janet, be brave, you have to move on, i know it's not easy. God bless you. Bob and Lina. New Zealand.
We lost my grandfather (Papa) January 16, 2021 from dementia. Because he lived in England and it was the height of the pandemic, we could not make it there to be with him in person before he died or to be at his memorial service. We did get to say our goodbyes via video chat but obviously that was all we could do in those circumstances. I miss him every day and knowing places like this exist in the world give me great peace of mind and it puts gratitude and healing into my heart and soul. Thank you for your journey, Greg and thank you for allowing your story to be shared with all of us. You remind me so much of my Papa and what he went through. Love to you and your precious family 🖤
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
What a sad story. What a love story. Greg was so lucky to have such a caring and loving wife until the end. You could tell in her eyes how much she loved him. I'm so sorry for your loss🙏
What a crushing development for both Janet and Craig. I feel terrible that this disease took one too young. I’m 67, retired from a 30 year career in pharmaceutical sales, single and living in Arizona, it scares the hell out of me to think I might be among those who will also be fighting dementia. Janet I wish you the best in life, I’m sorry for your loss.
Dear Bobby........do not be afraid....ask God that u do not develop symptoms of this disease, then do EVERYTHING to prevent it.............see Fransescas post above for tips on prevention..........u could also ask God to send u a loving caretaker.........trust me, He will........also, share what u have.........be blessed
@@holycow3355 ...well I guess someone hates the name of God.........u will not know unless u try it.......so go on now.......u have nothing to lose but everything to gain.......!!!!!
@@shiningstar3312 Yes God will answer. I found a book in a thrift store called "A more excellent way" by henry wright. It is so awesome, their is a cure for most dis-eases, and yes it is through God, He made us and we have to have a sound mind.
I recently saw a long documentary, I wish I could remember what it was called for a reference but it was about this guy named Malcolm and his wife. Malcolm got Alzheimer’s/dementia and within 2-4 years, he was an absolute vegetable! He could not walk, dress, eat by himself. He needed full round the clock care and it ended up being such a strain on his wife who was caring for him all by herself in those first few years. After the first few years he became completely incapacitated and helpless and ended up in a home. He went on to live for 15 years!! And it only took a few years to get him to that “vegetable” point, so he had to spend the next 10-12 years living in a shell of himself and had to drag his poor wife and family through hell. After watching that, I truly believe Greg Kelly and his wife were totally spared by the universe! I know Greg said that the goal was to be one of those people who lasted 25 years, but at what quality of life? I hope his wife is able to move on and find love again. She is still so young and beautiful
I just recently lost my mom to dementia, and terrible health issues that she had. She had very severe symptoms, and acted out tremendously. The fact that she also had an ileostomy made things so much more difficult and complicated. The Healthcare System here in the US failed her! She never even got a diagnosis until she was having severe symptoms. We don't even know how she was really making it. She was a very intelligent woman with a strong mind, and I think that's what got her through for so long. Dementia is such a heartbreaking disease. It just completely Rob's a person of their life, and Rob's their loved ones as well. This story was so sad. I wish that they had Villages like this one everywhere for people with dementia. My mother was badly abused in a Memory Care Facility. She ended up with fractures and bruises all over her. I will live with guilt for the rest of my life because I should have never put my mother there. But I was all alone with no family and help for my mother and her care was extreme. The system here did not allow for me much help and they had a hard time finding a caregiver, and didn't even want to give us enough care. And when you are not well-off or wealthy it makes every bit of difference. As was said in the video, this is so much harder for people who do not have money. What a tragic illness this is. And I'm terrified because I'm starting to have problems with my memory and cognitive abilities as well. I'm only 59 years-old.
I hope you don't have dementia. The dementia home in Denmark was almost free for the patient's because the citizens pay high taxes. The welfare system is excellent with top education for all and free uni. I am also scared about getting dementia. The couple who visited Denmark are probably affluent so they would have the finances to pay a million to obtain permanent residence. His wife who appeared younger would have no problem getting a job .
I'm 61 and have noticed for about a year that my brain just blanks out. Dad had dementia. im still doing good. I had to back off some of my activities because I couldn't remember stuff. that has helped a lot. I just tell myself 1 day at a time. stop worrying about stuff in the future, just live for today. that has helped me too.
@@irenerattray7742 When you look at the overall taxes they pay and then figure out what we pay in the US for taxes and for medical coverage and copayments and the like, they are paying less.
Janet, you and every person who's ever cared for anyone with this illness are true survivors. Greg was very lucky to have you love him the way I'm sure you still do today. Many hugs and much love.
Marian mondta ... Úgy döntöttem, hogy ezt a bejegyzést vagy tanúvallomást nyilvánosságra hozom. A férjemnél tíz évvel ezelőtt diagnosztizálták az Alzheimer-kórt. Nagyon szerettem a férjemet, és szívszorító volt, hogy Alzheimer-kórja kialakult, és mellette állva figyeltem, ahogy csökken a képessége arra, hogy vigyázzon magára, és mindennapi feladatokkal küzd. Elveszi az emlékezetét és végül az alapvető feladatok elvégzésének képességét. Az Alzheimer-kór nem csak a diagnosztizált személyt érinti - gondozójaként is felforgatja a világot, ha a szeretett ember küzd az állapottal. Hogy világos legyen, nincs gyógyszergyógyászat, nincs olyan mágikus tabletta, amely bármilyen jelentős hatást gyakorolna a betegség progresszív lefelé tartó lefolyására. Addig nem, amíg használunk egy BRONGEE nevű gyógynövény gyógyszert, amely véget vet neki. Jól van és a legjobb életét éli. Bár lehet más más lehetőség is. Soha ne titkolja saját sikerútját. Nem lehet szégyen. Lépjen kapcsolatba Dr. Rohannal a dr.rohanronjohn@gmail.com címen. Ez neked is segíthet12:35 PM
I watched my best friend die of early onset dementia. In her early sixties, she went to casually forgetting things, to a quick slide down with no chance of reversal. There were days when she'd rave at me about who I was or why I was ignoring her even though I did not. Her daughter was and still is a saint, she cared for her until the end. I miss her dearly, but I'm also grateful that she's no longer trapped inside her body.
I've heard so many wonderful things about this Village. I watched my Mother-in-Law go thru this dreaded disease. I would not wish this on my worst enemy. It stole her life, her zest, her memories ...
I lost my husband September 2014 its sad t watch them dissapear I was blessed 4half yrs to take care of him at home prayers for all who have gone through this
My mother has dementia and she has a very hard time with it. I just cannot bring myself to take her to a home.She likes her solitude and to have to change yet another thing in her life would kill her. God bless you mom.
I went through same feelings with my mother. My mother wanted to stay home, so I quit my job of 28 years and stayed with her 24/7 care. I'm so happy I did. I worked in nursing homes when younger and it scared me to put my mother in one. My father had advanced Alzheizer's disease and such cruel illnesses to live with, and so hard on loved ones. This show, Greg and Janet, made me want to cry at several points.
My husband died of dementia 5 weeks ago. He was diagnosed 8 years ago. I kept him at home until the 4 last months were I couldn't manage it on my own. It was a hard but also beautiful time. The brain is severely damaged, but the affect and tenderness remain. He spent the last weeks of his life in a nursing home, here in France were we live, and was very very well looked after. I was with him every day and could even sleep there, if I wished. But indeed, it was very expensive, but it didn't matter to me, because I knew he didn't have years to live. I miss him terribly...
Elise im so very sorry to hear, you have to remember, you was with him every step of the way, with this journey, im sure he will be looking down now, thanking you and wanting you to enjoy your life, because this condition puts life into perspective,
United States of America needs to listen to this and do something about our own care they don't do enough for the elderly when a person gets to that stage cost so much just to live with the worst care it's barbaric
@ASG66 What kind of person are you? I may not totally agree with Karen's statement but, I treat everyone with respect. ...except petulant children like yourself.
@@TakaPvP Most facilities are good and some are excellent. I care for my wife at home and promised that I'd keep her there. That said, I have had her stay at a daycare a few times when I had to do something. She enjoyed every minute of it despite my hesitation to leave her there. It was like leaving your child at kindergarten the first time.
Under the present administration, there have been many changes to the dementia care community. I'm on several committees and a congressional delegate to congress as an advocate for caregiver support and long term care options. I am actually planning a care facility similar to this.
How different how similar and how many it is not run like this one I don't think it'll work I thought that you'd be soon nursing homes do not work too many greedy people run them what's up nothing needs a deceitful still have to prove what you say to me
RIP Greg mate. You Sir will LIVE ON in the hearts of all those who loved and still love you. On day I’ll meet you on the other side. Bless you Nicole 🙏🏻
It is very confronting to see this lovely couple, Mr Greg Kelly and his delightful wife, Mrs Janet Kelly of a forty year marriage experience what must have been a terrifyingly horrid stage in their lives. Mr Kelly was quite an imposing man despite his diagnosis and would have intimidated anyone daring enough to get in his way. His wife however seems the opposite and appears as a loving angelic wife whom cared profoundly for him and would have been willing to sacrifice anything to keep her husband from leaving her side to avoid entering a nursing home. The couple's overseas trip to Denmark was an eye opener for any wealthy Western country willing to adopt a similar strategy in dealing with the onset of early Alzheimer's for younger citizens. This documentary has been both a heartwarming and emotionally charged account of fierce independence whilst allowing the viewer the privilege of being educated to matters that we hope will never need to face ourselves. It was sad to learn at the end of the documentary that Mr Kelly had passed away. A documentary of required viewing for anyone wanting an insight to our latent final calamity.😔
my mom got this in her 60s and we took care of her till the Lord called her home I can tell you that if you know the Lord you are much better off than here on earth living with this terrible illness
@@robjohnson8861 It is unfortunate.. but I do tend to agree.. have a friend who worked in dementia care nursing for years who confirmed..as I'm currently living with a relative with dementia.. it peels the layers of societal expectations & uncovers their true personalities.. She said most were sad cases.. but many were not nice underneath it all. I'm currently living with one who is still semi capable of living on his own but is still best off with us..but I am learning so much about the difference between the symptoms of the disease...and who he really is... and how he's been really good at fooling alot of people for a long time.. I am trying very hard to be more understanding.. But when you don't have the emotional attachement..you really do see much clearer... I have SO much respect for all the caregivers who have the patience & kindness & commitment to this vocation..
I am surprised he is STILL DRIVING , he SHOULD of been TOLD or at least ADVISED to STOP AGES ago as he cause SERIOUS to NOT ONLY HIMSELF but other people and sadly HE will get the BLAME because of his health , but sadly he is NO LONGER ALIVE , MY DEEPEST sympthies go out to not only his wife but also his family XX GOD BLESS and take care
The dementia village is so sweet. I would work there if I could. I used to work the LTC wing at a nursing home and the dementia patients had my heart ♥️
My husband diagnose at 58 with Cardio Vascular Dementia,watch him slip away,a strong,honest,hard working man.It stripped him of everything,couldn't speak,didn't know my name,but never did he stop recognizing me,very sad and cruel illnes,has no mercy miss him so much bit grateful for what we shared,my heart breaks for those who suffer from this.And for the familys..
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
My mom was about the same age when she started acting odd, took about 3 years for my dad to finally allow me to take her to the doctor. She was diagnosed with picks disease it’s a frontal lobe dementia. Here in the US care options are limited so my dad took care of her. For about 6 years before he became ill with cancer. She died 2 weeks before him. It’s such an ugly disease, watching your loved one just fade away, not being able to speak, eat, walk...
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
So sorry for your loss. I'm mourning my mom who also passed away from dementia and heart disease on February 23rd. 2019. My deepest sympathy to you and your family. ♥️♥️♥️♥️
The village is such a brilliant place that everyone deserves access to. Especially that their partners/family can stay there too...that's so important!
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
As a dementia specific nurse I love this stories although heartbreaking; it raises awareness to this disease; thank you so much for sharing; rip Greg : xxx
It is very confronting to see this lovely couple, Mr Greg Kelly and his delightful wife, Mrs Janet Kelly of a forty year marriage experience what must have been a terrifyingly horrid stage in their lives. Mr Kelly was quite an imposing man despite his diagnosis and would have intimidated anyone daring enough to get in his way. His wife however seems the opposite and appears as a loving angelic wife whom cared profoundly for him and would have been willing to sacrifice anything to keep her husband from leaving her side to avoid entering a nursing home. The couple's overseas trip to Denmark was an eye opener for any wealthy Western country willing to adopt a similar strategy in dealing with the onset of early Alzheimer's for younger citizens. This documentary has been both a heartwarming and emotionally charged account of fierce independence whilst allowing the viewer the privilege of being educated to matters that we hope will never need to face ourselves. It was sad to learn at the end of the documentary that Mr Kelly had passed away. A documentary of required viewing for anyone wanting an insight to our latent final calamity.😔
My dad got dementia..but he had cancer at the same time...I can really relate to this video and the lovely couple involved, and feel Gregg's pain and Janet who has devoted the rest of Gregg's life with his dementia..I think Denmark has the right way forward to tackle this horrible illness. Bless Gregg and Janet for their positive attitude and the fight to live with dementia.. devotedly together xxx
God bless Greg Kelly, his wife Janet and their family. What an amazing story. Thank you for sharing it with us. And thanks also goes to Australia for creating a village for those of us with dementia!❤
Wow! He passed away only 3-4 years after his diagnosis. It's good through that he lived and worked and provided for himself and his wife a home, and that he did enjoy much of his life and that he had someone there to be there for him until the end. That's a big blessing for someone to have someone else who cares and will be there for the person until the end comes. Many folks have no one, and eventually ends up in a nursing home all alone and no one comes to visit them. So so sad.
What makes me extremely angry is that it took 4 YEARS to diagnose him. Unforgivable. I’ve seen that happen when incompetent drs think it’s not possible for people in their 50’s or even younger to develop dementia.
That village is a brilliant idea. My father died from Dementia related illness, and one of the saddest thing to witness, is the lack of structure and socialization for the patients. Dad had wonderful care where he was, but the patients just languish. What that village offers is a sense of some control over their lives, plus the fact that they have their own apartments, but are still cared for 24-7. And the tracking device is crucial. There are too many stories of Dementia patients who wander away and some perish. I wish we had that here in Canada.
Rest easy dear friend.. Dementia is such a terrifying, earth shattering disease.. My deepest condolences to Mrs. Kelly.. My heart shattered for her when she said she would prefer to nurse him herself and be with him until the end.. life is such a cruel blessing
Who will pay for it all? These things are not cheap. And the dementia residents in Denmark are clearly not very far along in their journey. There sufferers in a whole lot worse condition. They can be violent and unpredictable. They could never live in places like that one in Denmark.
@@michellelammi787 How do you know? Denmark can afford this, because we pay a high tax, and I do it gladly. We have 2 houses 2 cars, so if you have a high income you pay more in taxes. That how it works. I have my grandma in this home. They know how to handle dementia, and therefore the residents does not get upset or afraid.... You know clearly nothing about this.
TM Denmark In UK , people have to sell their homes to pay for their care unless they have unlimited capital or Health Insurance. As we have - at present- got the NHS , many people don’t have Insurance. I completely understand the previous comment.
I really appreciated this film. Thank you for being brave enough to do this. My husband had a heart attack at 69. He had retired at 67 from a very responsible management position. He put the occasional lapses of memory down to that only I felt something was wrong. Over 3 years I took him to several doctors who made me feel very silly. One day I was telling a new dr. who I was seeing on my own behalf a funny story about my husband. He didn’t laugh and said bluntly that he had Alzheimer’s. The next day we went back to his dr. and I demanded a brain scan. He had a large hole in the frontal lobe. We continued together for eight years but over the last 6 months he developed bowel cancer. He went into care 3 weeks ago but is too frail for treatment. Luckily I have his enduring power of attorney as even at nearly 80 his dr. Wanted to give him chemo and radiation. He even wrote me a letter threatening me that he would have that taken off me. I talk to my husband every day by phone and often he sounds quite normal although he never knows what he had for his last meal and can’t picture his home. He feels he is different to the other residents and still asks if he is always going to be in there. It is very sad. I was given an antibiotic 3 months ago called Nitrofuritoin for a bladder infection and it paralysed my feet and some fingers. The nerve damage is irreversible. That is why he had to go into care. Thank you again so much for being brave enough both of you to take this film and for you his wife to share.
It can’t be easy to decide to withhold cancer treatment from your husband but it seems like a wise decision; you need to report that doctor for interfering. You also should talk to an attorney about the injury you got from the antibiotic. Some money would be helpful to you right now.
❤ I am so sorry this has happened to you it is terrible. I agree with Sashazur. Thinking of you hoping your health improves quickly & all in your life gets better alround 🤗❤🙏
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
Dear Janet . Watched your story . My husband had Alzheimer’s , he was also an Accountant , very smart . I kept him at home with me for nine years . I always thought of a place like You are now , but unfortunately we in Canada don’t have one . We have many Nursing homes , but I refused to keep Bert in one . There for I had no other way but keeping him home with me until the day he pass . Two years before he pass he called me his friend , he forgot about who I , his doughter , and granddaughter were , and that is the saddest time of our lives I can understand what you are going through it is devastating Sending love I wish you much strength
Thank you for this glimpse in a place that looks happy and satisfying as compared to the dementia care wings of independent/dependent living apartments that I have seen in Illinois/U.S. I appreciate Janet & Greg's story and hope Janet is doing okay now, having lost the love of her life so soon. What a love story. I wish my story was so uplifting. My 77 yr old husband with Alzheimer's will not admit, accept/go along with in any way his diagnosis. His diagnosis was 6 years ago but I know he had this coming for many years before that. He is at home and I know it will get more and more difficult. I know he will resent anyone else coming to take care of him. He is not social, does not make friends easily and only hobbies were the puttering and fixing of things around the house. He can't do those now as his memory is gone and cannot follow any steps. He is healthy as a horse physically. So what do I do??? I just take him everywhere I can. He needs to get out and see different things. I manage it all at home and try to mitigate any of the troublesome things he might do at home. Fortunately he doesn't walk out of the house. I will watch him forever, partly because of the vow I took 22 years ago to 'in sickness and in health' and the expense of having him go somewhere that he would hate is unreal. Who has $10k a month? Thanks for letting me run on.....
Very Sorry for this Loving Couple. It seems so unfair when you look young that your faculties disappear. It is sad when your life span is taken away so insidiously. My respect to Greg's devoted Wife.
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
I'm retired in Danbury, CT. My younger sister has Lewy Bodies dementia. She lives in Ridgefield, CT, She retired from NBC, in Rockefeller Center, when she was 64. She was a journalist for over 30 yrs. She started forgetting things shortly after retirement. Now 5 yrs later, she is in a wheelchair, being spoon fed, diapers, non verbal, and round the clock care, with caregivers in her home. The other symptom of Lewy Bodies, is Parkinsons, so she shakes. I believe, she is in the final stage. Blessings and prayers to u and your family.
You know it's sad to say this but I'm glad he didn't linger on with this disease and was spared the worst of it! RIP friend may your wife find some peace in all this!
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
Anyone who has a heart who would like to do Dementia caregiving it's a growing profession worldwide. Assisted living residences always can use volunteers as well. Thank you to those Angel's who reach out and care for the most vulnerable among us. 💗
My grandfather passed from dementia and the facilities at the time weren't very well managed I remember the day he left he was opposed to going and he passed the second night he was there It was the GREASTEST loss of my life and I can still see the saddnest in his eyes as he left the house MISS U GRANDPOP EVERYDAY ❤
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
When my father in law had early onset dementia he would run off in the car. He wanted to keep his car keys. I had my mother in law have a car key cut that did not fit & put on his ring. He then would come out & ask us to help, we would offer to drive with our good keys & all was fixed. Jeanne
I was married for 28 years and it ended in divorce but now I’m older and I really don’t think that I ever would want to marry again there’s just too much, I don’t want to care for a spouse and that may seem cold to someone but I have been caring for my daughter since she is severely disabled for my whole adult life and she is now 37 so I know that I do not want to care for anybody else, I just don’t have it in me to do it again. Once I am done being here care for 24 seven I need to start looking at myself and taking care of myself as I’m entering my elderly years
I don’t blame you for feeling like that one bit! I took care of a friend with terminal cancer for only one year and it was a huge drain on my well being. I couldn’t imagine doing it for years - and more than once.
I am an RN. If I had the money, I would ABSOLUTELY build and run one of these in Canada. It seems wonderful. My daughters would help me, I'm sure. I love this set-up! We've spoken of this type of set up alot. Bless those who operate this place and care for these people with utmost respect, patience and care. ❤️
Fellow Canadian here! Our government needs to make long term care homes by OHIP. If you have a health card then you should be able to go live in Long term care if you have dementia. My 64 year old mom currently cares for my 69 yr old dad who has severe vascular dementia. It’s very difficult to care for him at home and she is struggling. They can’t afford a long term care home. Many seniors cant
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
The story is a sad one but also inspiring. He was blessed that he was so loved. And the facility looked like a good one. I judge them by going in unannounced and seeing how the nurses are reponding with patients and if most patients can smile. I might even ask a couple of them if they had a good lunch today. It is something very hard to face if it's us or a loved one going through it. Seems something is wrong in Austrailia, that could be looked into, considering how many cases there are. But what a touching story. Thank you 🙂
My late wife had FTD. She was diagnosed in 2017 many changes. Lost items, personally changes, devastating illnesses. She passed in 2022. At 55. I think being a caregiver for this illness and losing your love one is a tough type of grief. She was a amazing lady.
This was so deeply, darkly & profoundly difficult to watch...I feel almost "empty" inside just imagining the horrific grief families & patients must endure...
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
Black Feel...Your comment couldn't be any more irrelevant to this story!!! What does it have to do with such a sense of profound grief & loss of life the families & friends must be grappling with???
Thank you for sharing this. I am so,so sorry Janet. I cried all the way through and felt what you were feeling. I lost my husband Gerry 23 months ago to early onset Lewy body dementia. I wasn't able to let him out on his own as he also had type 1 diabetes and had no hypo- awareness. He loved to be outside and we tried to do something every day, walking, even though he had Parkinsons with the L.B.D. and gardening But me being his only full time carer he manage to get out of the house, I being exhausted in the early hours didn't hear him leave and to this day has not been recovered. He would not of survived with out his insulin. I too, wanted to be with him to the end and not wanting him to go into a care home. We had a very special love, I can relate to in seeing you and Greg, so lovely together. Like your Greg, my Gerry changed so much from being a funny, caring and loving man, to someone who was so different, it is so hard on the onlooker, us, to see the person you love, slowly disappear before your eyes. I feel like it was yesterday when Gerry left the house alone, but it is nearly 2 years. I am helping myself by remembering all those lovely times we had together and what a wonderful step dad he was to my two children and the special times we had together, not the unbelievable heart breaking end. Janet.... use that as your heeling too, as you will need heeling to get through this. Think of all those wonderful moments, kisses and love you shared, we were lucky to know and experience such love and our special man .... Sending love to you Janet and your family( if you get to read this), Pierette XX
Just to say I have a little film on RUclips creared by some students from Bournemouth university called , Lewy Body Dementia, B.O.L.D colour & sound if you want to have a look X
I learned on Dr. Eric Berg's channel that the latest studies show dementia is accelerated by the shrinking of the hypothalamus in the brain. This happens when your body's natural B1 is depleted. One thing we can do is take extra B1 vitamins every day and eat lots of sprouts and broccoli. I hope you can watch that video, it was very informative.
19:30 I agree. My sister has early onset dementia. I hope if I come down with it, I’m aware and can take myself out. I just do not want to put my family through it. I also do not want to live through certain aspects I’m watching my sister go through. My family knows how I feel.
My aunt had dementia.. highly violent with her kids... she just didn’t know where or who she was or who was who. She was scared. Great story. It just suck to age, you never know what is coming for you at any age.
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
I worked in a nursing home when I was younger and it was a bit different to others, in that if we had a patient with dementia and their partner had the option to also move in with them. One patient I nursed Majorie her husband Bruce lived with her they had a twin room and he was with her all of the time as well as group activities but he didn''t want to be apart from her at any time. Their story was actually truly tragic they had two children and lost one to a drowing when they were 20 and the other to cancer at 42 meaning they had no immediate family left, so they were one anothers everything. Marjorie died aged 86 and Bruce survived her by 2 years. I had the privilege of going with Bruce for his wife's funeral so got to say goodbye to her properly. Bruce had no care needs when he moved in with his wife and minimal care needs when she passed away and chose to return to the home and live out his life in the place he and Marjorie had spent the last ten years of their marriage. This home is in the UK and I was happy during my time there and was relieved at how well the people were looked after and I know it is not always the case even in the UK we have horror stories of elderly abuse and it always breaks my heart to hear it.
My husband was diagnosed with Lewy Body Dementia two years ago. He was a pilot, loved to go on very long and strenuous hikes, loved traveling and doing very active things. Now he can't find the bedroom, go to the bathroom by himself, he has major hallucinations, can't dress himself. I'm his 24/7 caregiver. He watched his first wife die of leukemia, loved her till end, took amazing care of her (they were together 37 years). Then he met me. We have been together 12 years. He has given me a wonderful life. I will NEVER put him in a nursing home. I'm beside him every second of the day (he is hallucinating right now). I will be by his side until the end. Lewy Body Dementia (all dementias) is a horrible disease. I have also (in the last ten months) been taking care of my elderly mother and father...I promised them like I promised my husband I would never give up on taking care of them. Thank you for your story. Much respect 💔
I am very impressed with your compassion, patience and tender care of your husband. Bravo. You are to be commended.
@@asafaust6774 thank you for your kind words. I'm just grateful God has granted me the ability and am financially stable...I so feel bad for those unable to do this due to health or finance.
I know the disease as my daughters father had it. The cruelty was that he was a neurosurgeon and watched his demise sadly, knowing all that he knew
@@chellegriggs u do not need money...u only need God given wisdom and a plant based diet including the incorporation of the additional 7 principles of health....this medical system has duped everyone...ask GOD for wisdom and HE will provide...be blessed.
chelle I understand your passionate fight...I too am going through it with my brilliant husband....we both lost our spouses and were introduced 18 years ago, he also has given us a wonderful, fun life......I feel the same way, I will never let him go into a residential home...he is my love and I will be by his side always.......it is such a heartbreak......nobody understands that the brain is shrinking.......I feel emotionally paralyzed sometimes..but always hide my sadness.....I make him laugh, and lead our lives as normal as possible...my husband is older though, but great fun...so sorry .....
Whoever created this centre in Denmark for dementia patients.... I thank him/her or them with all my heart for providing such an exquisite service !
This is a remakable place. I pray that God will give all the care givers of all people with these dreaded diseases the strength they need to care for them. To the medical community and researchers I pray God give them the grace and support to maybe one day soon to find a cure. Bless all of you.
You dont have to thank them, the families deep pockets do. Woe to the poor thrn.
@@patriciarambert9261 Aaron
🙏🙏🙏🙏🙏🙏😇😇😇😇😇😇😇😇
If you are rich you can buy good care.....if you're poor you're just trash.
I'm at beginning stages of vascular Dementia and it's very frustrating, I've completely shut down and by that I mean wanting to see friends workout for that I was so addicted to working out 2 hours a day nor do I socialize because I get so so frustrated when explaining what it is or the things I do. I'm very aware of things I do and it really gets to me from leaving my wash in the washing machine forgetting my groceries in my car finding them the evening or even next morning. And when my daughter forgets that I have it and makes me feel as if I don't listen to her because I forget so much. I was watching this and thought it was so interesting and was scrolling on the comments and Damm I've seen it already 11 months ago and even commented on it and I had no idea , Having this is very frustrating but I just keep my faith with God and I truly believe he has a plan for me🙏❤️
Ikwñis
Lost my spouses to this. she had it 4.5 years. Anthony I see the date up there 2 years ago you posted. You probably cannot relate here any longer. horrible disease.
I was diagnosed with early onset dementia over 10 yrs ago in my 50s due to extreme forgetfulness and from an MRI scan which showed shrinkage on the brain and other tests. I gave up driving straight away as I believed that was the responsible thing to do as I believe memory problems and the ability to concentrate are linked and I wish more people would be self aware or at least their relatives. The problem is people either aren't self aware or are in denial and will often hide symptoms from their relatives.
I'm a widow now and live by myself but I'm still here but my quality of life is questionable. Due to severe scoliosis and arthritis I went from being capable of doing a 5 mile walk to struggling to walk across a room within 2 years. This loss of mobility devastated me so I envy anyone my age who still has good mobility. I'm determined not to end up in a care home and would prefer not to be here if that was my only option. I do however have my mobility scooter as that is the only way I can independently leave my house now and with a max speed of 8mph reduced to 4mph or below in the town centre I'm no danger to anyone.
@hazel9903 May God Bless you thank you so much for sharing this your Avery strong woman and I Wish you all the Best💜🙏🙏
God bless you. My mom has it and we were very impateint with her, until we as family started to get an idea that something is off with her. Now that we know, its tough, but thats life. I love my mom
My husband had Alzheimer's and I wanted to be with him, so I planned to sell our home and move with him into a care facility. His doctor told me in the strongest terms possible that this was a very bad idea. He said that if my husband died, I would be homeless because I did not have Alzheimer's and therefore, I would not be allowed to stay there by myself. So I would lose my husband and my home at the same time. Fortunately, I listened to him and followed his advice, and I am extremely glad I did because my husband has been dead for 14 years and I cannot imagine where I would now be living if I had sold our home.
That is the dumbest thing I hav ever heard
Good advice - thank you for sharing!
You Doctor was brutally honest. This is what we need as caregivers.
@maryannaderson2213 • He Also would not have ever wanted you to end up in that situation I am stuck both parents have died ?I am resident but I have a 15 Year old I got diagnosed with this I freaked out so much I had dopamine blockade in 2016 ?I can’t count I can’t navigate I am flipping exhausted I am calling my son my Brother my Brother my Dad I used to work in optics -But with a child ?He is still a child I have two brothers one is an MP -The other a Professor I feel stuffed my dear ?😢My son was 7 when I got my original brain injury but dementia runs in my Mum’s Family -I was muddling through now I feel like I am turning round backwards in semi circles I am dizzy esp standing on anything or just at random(Using money is not the only problem?A card I lost 15 in one year 😭😭Lost my purse my medication in my own home ?It’s like a computer misfired or all the tabs are on it got some Virus -My Dr told me we will all get it 😢…That’s when I freaked out told him phone my brother not me ?So I was 39 when this started I am 46 Years Old now I worked in Optics now I could not organise anything?Like even food ?
@@EllaBella-76 Oh darling I am so sorry. I hope you have in home care. I too have dementia and cannot walk or talk without medication. I can wash dishes but don't have enough balance to shower myself.
Thank you for sharing this. I worked in a nursing home when I was in my early 20's. Many of the people had dementia. I would go home crying every night. Then I decided the best way to deal with it was to come into work singing. That's what I did everyday. I walked around the hallways singing as loud as I wanted too. The patients loved it. It brought joy to them and to me. We need the dignity that is shown to these people in Denmark right here in America. Can you imagine that? Money does not defined the care you get. It shouldn't. It's about the dignity of life.
ALS and Alzheimers are way different things yes they are both horrible diseases but not nearly the same. My SIL died of ALS at 51 diagnosed at 49. Her cousin died of it in his 20s. Worrying about my brothers children now. We also have MS and Alzheimer's in our family too plus cancer. All these diseases need to find a cute NOW!
@@4UStevePerry I have 4 siblings with MS
@@debraderoos5225
And I have a daughter dying a horrible death because of MS. Primary Progressive MS for 20+years. 46 years old, 5'7" and less than 60lbs with 10 or more bed sores some to the bone.
@@teresaconiglio3214 I am so sorry to hear that. It's tough for everyone having to deal with this disease.
I do the exact same thing. I work in a group home for developmentally disabled seniors....they all have levels of dementia. I love my job so much & sometimes cant believe they even pay me. I sing to them or have music playing all the time. Especially during bathing & other intimate requirements. They love it....so calming.
He's not slowly turning into another person. He's vanishing. One of the worst things that happens to you once a loved one you have cared for, and watched decline over time, is the relief you feel once it's over. You miss them, but they were not 'them' for a long time and they're finally free...but so are you. And it's hard to forgive yourself for the relief.
Thank you for saying this. We just can’t blame ourselves for the burden it places on us.
I said goodbye to my Dad in January, after spending the last 3 months with him. The firsts words I felt and said was "You're free." 🤍💙
One lady told me it's like a enforced divorce..but at least one has closure with divorce..with this, it's like being between life and death.I only watched this today it came up randomly, so I see your 3 comment is 3 years old now..I Do hope you are ok, my mother was recently diagnosed as well..
@mocking intercessor where did u get this from? She NEVER mentioned anything close to this. YOU hav no idea how she was feeling or what she went through. Never assume. Everyone has their own experiences & feelings. How old r u, haven't u figured out not to speak for others???
@@susanleslie4809 Yes , sadly- she said most of the him she knew was gone , and he had become more aggressive. It’s a tragedy.
As a therapist in the US, it brings tears to my eyes to watch this. I wish there were more places like this. A peaceful environment is everything to some one under so much stress and anxiety from this illness. The creators of this are angels!!
The staffing levels are so much better
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
My mum had dementia. We have nothing like this in the UK. Every country should have facilities like this. 🇬🇧
It looks so peaceful. One has to wonder whether sleeping tablets, antidepressants or perhaps the medications for hypertension (which often include blood thinners), aren't causing early onset dementia.
@@waterbearer6331 I've seen that over and over. I taught in a residential facility for children with disabilities. Severe emotional disorders, etc. It lacked a moral and ethical compass because of its need to hold on to clients(as they were called) longer than they were suppose to be there. I needed the job but was very angry. So, I prayed everyday that it would close. I stayed longer than I had too because I decided the best thing I could do was to teach my students how to become a strong advocate and believe in themselves. I was there for over 9 years. One day I decided to quit. Less than a week later the facility announced it was closing. It had been there since the 1940's. Prayer works.
@@macclift9956 And I take all of those . . .
@@naomiemoore5725 So many people are; I have a family member who started on medication for hypertension and then started having sleeping problems so went onto sleeping tablets. He's tried to come off the sleeping tablets but develops flu-like symptoms almost immediately and can't sleep at all, so he just goes back onto them. I feel he's starting to show signs of cognitive slowness (which is what happened to my mother, who was also on all of these medications and developed dementia at a relatively early age), so I'm terrified that this, Alzheimer's, is also happening to him; he's in his sixties. One doesn't really have a choice when it comes to these medications, and it might not be these medications at all, but I do think each patient should have a history of exactly which medications they were or are on and perhaps eventually the medical world can connect the dots regarding what is *causing* early dementia. They say to keep the brain active, which I try to do, but look at Iris Murdoch: she had a very active mind and developed Alzheimer's anyway. Take care.
@@macclift9956 Thank you so much! That's why I keep detailed records of what I take and why. Hopefully we will get lucky and medical professionals will figure it out. I also believe environmental issues can contribute too, and since each person different, it's hard to pinpoint exactly what might be a contributing cause. Think of our food supply. I knew about glyphosate long before it became an issue, now it's a big deal and extremely polarizing. Camp A says it's just fine. Camp B is totally against it, hence the lawsuits and multimillion dollar verdicts. How much is safe over a lifetime? No one knows. Yet banned almost world wide except in the US. Mind boggling. If I had little children I would be on my soapbox on every corner until someone listens.
My dad had this. His personality completely changed over three years, but the saddest part was he died from mesothelioma, not really knowing any of us. He was in the Navy during WWII and a fire chief. To see his decline was more than heartbreaking.
I cried throughout this whole thing because you loose your loved one while they’re still in the house with you, what an devastating thing to have to witness.
Lose, a ... SPELL check if u r unable to use proper grammar
@@susanleslie4809 Get help. You're angry, that's for sure.
Many go through the process of losing their loved ones twice. They grieve when they need to go into a care home and they grieve when they finally die.
Rest in peace Greg.
Sympathy to his wife Janet and family.
🙏🙏🙏🙏🙏🙏
@Santa N explain that?
When did he die?
@@ValerieGriner2019 he died .
I wonder what caused his death?
Such a tragically sad disease. Watching my mum's decline over 7 yrs before passing - truly heartbreaking. Passing was a bitter-sweet blessing.
Janet your love for Greg shone through so brightly
Greg was a very lucky man to have you by his side
I'm so sorry for your loss
I hope you are doing ok
RIP Greg
@@starquant ...this American is telling you to shut your big trap. Cathyann, was expressing her condolences. Your ignorant tirade was misdirected and inappropriate here.
Cathyann...your comment was gracious. They were a lovely couple.
@Myrt Myrtle...good comment 👌
Starquant...When we are children, we are taught that life is not always fair. As a child, you perceive anything that does not go your way or in your line of thinking, to be unfair. Well starquant, it is time for you to grow up! Cathyann is not the problem, nor is the so called old fart that you referred to, in this video. It is easy for you to pick on them, because you are simply a bully, pretending to have a cause. You are angry with yourself, because you feel helpless and inadequate and you are taking it out on those that don't present themselves as a challenge. Inwardly, the bully perceives themself as a victim. They project onto others. You will not stand up to the real perpetrators, the faulty system, because you are a coward. You must focus your attention and rage onto those that are less intimidating. You don't realize that you are part of the problem. I know that my words are harsh, but you are in need of a wake up call.
@@starquant ...I am in no means, rich. I blame the true sources on a misguided system. I do not go around blaming it's mere citizens, in relation to the system. You are not the brightest bulb. Your misrepresentation of genuine folks is toxic.
I lost my mom recently to this horrible disease. Luckily we kept mom home surrounded by all those who loved her. Mommy you are free now. What a glorious day it will be when we see you again ❤🙏🏼
My dads funeral was today. He had early onset dementia and after having the vax his dementia was off the map. Lots of mounting evidence coming out regarding this
@@fluffyanne1177 I am so sorry Anne. My brother had a stroke on day of his retirement
He was in his early 60s. When he got the van he collapsed face down and taken to hospital where it was confirmed he had a stroke. It seems similar to dementia.
@@fluffyanne1177 it apparently (vax) makes symptoms worse for existing conditions, cancer patients coming out of remission, cancer is then aggressive which takes their life. I'm so sorry your Dad went through that. Bad enough without the mandated poison making it worse
@@janeyd5280 I'm so sorry. Early 60's, the govt needs to pay for their crimes against humanity. I'm hopeful that day will come
My dad has dementia (early) and 5 years after diagnosis he is physically the fittest I’ve EVER seen him. I hate to think of him going to an old folks home. I think he would love this village. Also It was heartwarming to see how Janet and Gregg were so devoted to each other ❤😊
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
@@blackfeel9172 ?
Sorry I don’t understand
Hi man I mean be good morning to
Each other can help renew the world do you believe it
Greg basically got what he wanted. He didn't have to live in a facility and was lucky that he escaped the horribleness of alzheimer's end stages. R.I.P. Greg. Condolences to Mrs. Kelly and family.
Such a horrible thing to have happen to anyone especially someone Young. But what a lovely place, I believe we could use more of those.
Johnson Jack fake
It says he died but not cause of death. It's very possible he committed suicide
@@helzwar007 I would understand completely and do the same thing myself when it started destroying my wife and family.
@chloe 5susan why do u post such stupid sh*t?
My landlord is in the Veteran Dementia unit. We have been friends for over 50 years. He is 66 & I'm 64. I just woke up & saw this. Thank you so much. Love all of you involved.
My husband was diagnosed at 65. I saw subtle signs long before his diagnosis. When it was becoming more obvious, I had just completed my annual physical. My doctor asked if I had any other concerns, and I was concerned about may husband. The doctor just dismissed my worries. Six months later, I took my husband in and demanded a mental acuity test. He scored 20/30. The doctor was immediately on the phone with a neurologist and neuropsychologist. Further testing showed he scored on a battery of tests from low-normal to profoundly affected. Three years later, he scored 1/30 on the mental acuity test. He is now in memory care. I can understand only 5% of what he says. He hallucinates, and now his gait is being affected. He is 69. He was an English teacher, then a lawyer, then a CEO. He was good with words, but his speech was the one of the first things to fail.
I see your husband deteriorated within 5 yrs. Is 5 yrs the norm to lose memory and speech after around 5 years? I thought 8 yrs was average to lose memory and speech . It's an awful disease. I hope there will be a cure. I became aware of Alzheimer's when l was told that my friend, who had moved to another province, was in an an advanced stage of Alzheimer's . She passed away at age 72. We phoned every day on the landline until she told me her phone needed to be repaired.
I am looking back and l discovered that she couldn't use the cable. He husband had passed away so she was alone. She visited the UK every year but she suddenly stopped travelling overseas telling me she couldn't leave the cat because the neighbour who injected her cat while she was overseas had left the neighbour.
Alzheimer's has haunted me since Anne's passing. Fortunately, her husband left her money to lead a comfortable life and her step daughter arranged for her to live in a gated complex in her own home. She had an all day nurse and all night nurse who took her out for walks around the estate. It's scary because many people, myself included, couldn't afford the luxury of a day and night nurse.
Anne's friend who had injected her cat while she was away left the neighbourhood.
Please look into NPH…normal pressure hydrocephalus… person can come back to life if treated properly, even years later..
& if your doc had listened to you you could have begun treatment earlier & staves this off for a period
@ Irene Rattray mayb u should c a dr since u r talking crazy abt a random cat being injected
I worked on a dementia ward at the end of most individuals lives, I loved my patients but was a job I could not deal with watching and learning how a person used to be to this person led in front of me wasting away because their brain had wasted away and they could no longer eat or sleep, or dealing with aggressiveness because they didn't know where they were or who you was. It's horrific and the thought of this illness reduces me to tears.
What a Beautiful couple, so in love even after 20 years...Janet, I'm so sorry for your loss. 🙏 sending you prayers of comfort during your time of need, from the USA 🇺🇸
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
The scariest aspect of dementia is not the loss of who you are and your loved ones, but the awareness and fear knowing you will lose everything
@Fortified Gaze when were u diagnosed with dementia?
I worked in a dementia ward for 5 years. It's a cruel ruthless disease that takes no prisoners . The youngest we had was 47. I felt it an honor to care for them actually. And it taught me so much 💔
July Rain....😔
@@donnarupert4926 💛
Thank you July Rain, My father and I just made the decision to put my mom in home (she is getting violent) Knowing that there are people caring for them that care helps. Thank you.
@@virginiaschott4482 💚
July Rain yes, it takes a truly special, caring, TRAINED and patient person to be a caregiver for Alzheimer’s patients. Sadly, here where I live in the US, even paying $4K a month out of pocket for care, my Dad had SHITTY CARE and had my MOM not been there EVERY SINGLE DAY, there is NO telling how they truly would have taken care of him.
I agree with Greg saying “we are not elderly so don’t put us in an elderly home!” I totally agree. My husband was diagnosed shortly after we were married and he was 55. He was in late stage 3 then. I never want him to go in a home. He is 6’7” 340 lbs and I am 4’11” and 140… I pray I can find the right help at home. He is former Law Enforcement and I’m terrified that if they treat him bad, he will fight and he will end up in restraints. I pray, pray, pray that I find the right care for him in our home. God bless Greg’s wife and rest in peace Greg.
I don't think it's legal to use restraints in the US now. They would be more likely to heavily medicate him for his own safety and the safety of those around him. I strongly suggest you start looking into it now as there are long wait times for almost all services. You should check with his union too.
I've been the Director of Nursing in a very large secured memory care hospital for 20+ years I want you to know you have my deepest respect and he's extremely lucky to have you! Having said that however I need to warn you that with his background and physical stature if/when he gets frustrated or scared you could be in a very scary dangerous situation. My own father who was in the military tried very hard to physically hurt or kill my mom while she was asleep because he awoke suddenly and thought he'd been kidnapped since he didn't recognize her or his house/bedroom. She spent 6 days in the hospital hurt and blindsided not expecting something like that would happen because till that moment he had always been nonviolent even tempered when she was telling me what happened she said she woke up with his hands around her throat screaming at her and because she's only 5'2 to his 6'3 she couldn't do anything to get out of his grip and had no choice but to pray he would come back around and let her go before she passed out and succumbed to the total lack of oxygen which thank God he did just moments before she would've lost consciousness. Only you know what is best for your family I just urge you to consider a situation like ours and many more just like it involving my patients at work while you are planning the course of treatment that is safest for both yourself and your loved one. I send you my warmest solidarity and blessings wherever you are in this moment! I'm here if you ever need someone to talk to or bounce questions with you can email me anytime at blissfullyblessed32@gmail.com my name is Shauna 😊
Just remember if nurses or home healthcare providers aren't safe during one of his episodes you speak about you might not be either so I recommend you having very open communication with his physician about this and that there is a plan in place to ensure safe care for both of you in terms of exactly what to do when it happens the next time ❤
Honestly, losing mental faculties is the most terrifying thing to face as far as I'm concerned. My mother and I have the same thoughts, as soon as you have to wipe my ass, let me die. Saw my grandfather go through it, wouldn't wish it on anyone. To see a once strong and stable man deteriorate to that of an infant, it's heartbreaking.
I feel the same.
I agree.
I’ve lived this story my husband gotAlzheimers when he was in his early80s I was his only care taker and life was horrible for the both of us as he got worse the Drs said he had to go to a managed care place . He was only there for a few weeks when he fell striking his head causing a massive brain bleed he died 2 Days later. Even though he got very mean especially towards me. I miss and love him still. Life for me has gotten a lot easier in the 8 mos he’s been gone but because we were married 62 yrs and had 5 kids togather I still think he should be here .. I know one thing I would never want another husband and I kind of like living alone.
It sounds like you had a good life together and you’re smart not to dwell on what the disease did to him, but remember what he was before.
God Bless you and your husband's memory Mrs. Kennedy.
Well done for the care and love you gave him despite the problems. I'm a nurse so know what you would have had to deal with. You deserve to enjoy the time you've got for yourself now😊
America should take a lesson from these. Our senior and dementia care is pretty much non existent. Thank you Janet for sharing you and Greg’s story may he rest in peace 🙏🏻
Here in America instead of this we have billionaires who have to have more houses and cars and stuff. Think of the things that these people could do to help others, to give back to the community, there are so many ways you could change the world if you had that kind of money. Instead, here in America we are obsessed with money to the point of pathology. These kinds of facilities should literally be a necessity, not a luxury and available to anyone who needs it.
I am a retired RN who specialized in Dementia/Alzheimer's. I wish homes like this one would be in every city and town around the globe. What a wonderful gift to have such a loving environment. Rest in Peace. Prayers and blessings ♥️🔆🙏🏼♥️
I think this is wonderful. My partner did not even get out of the hospital. He passedin july 7 of 2019. I am glad for him, i do not know if his fragile body, could have gone through and survive. I was his caregiver for four months, scared me, his progression was changing, almost daily. I watched it happen in front of my eyes, i had a nervous break down. I cannot even still imagine this wicked disease, wicked, i am so much missing him, i still so miss him, i love him so much, it is almost a year, i still am beside myself. Wicked disease!! I hate it.
I was diagnosed at 50.....just turned 52, and its never a dull moment, which is a sucker punch to the gut EVERYTIME.
So very sorry, my friend....God Bless and keep you!
Hi dear, how are you holding up...?
Thank you for you for you honesty. My hubby was in the same spot.
Keep fighting my friend.
Please, take Vitamin D3 K2 every Day 10.000ib , and Vitamin B12 , Magnesium, OPC
My husband developed FTD in his late 50s. He was a professor and after only three years of our marriage his personality changed so dramatically that it became clear he could no longer teach. He was 69 when he passed, a stranger whom I didn't know. I longed for him to come back to me years before he died but to no avail. I still love that man and liked the one he became. I couldn't help myself. Thank you for sharing. RIP Greg.
I am so very sorry. Sending you love.
I am so sorry my dear. I believe that this is not the end... our deaths are just a transition over to the spirit world!!! I can hardly wait for mine because I live in chronic pain! I've been researching life after death experiences and I'm convinced that we really don't even die... just our bodies do and once your spirit pops out of your body... YOU'RE FREE!!!! They say that there are people like Jesus and family and friends waiting to greet you in a massively huge room like a lobby that's brightly lit up!!! How cool is that??? Oh they told me much more but you'll enjoy researching it for yourself!!! I'm just saying please don't be sad.... You'll see all your loved ones soon enough... Because our time here on EARTH... is a drop in a bucket in comparison to GOD'S HEAVENLY TIME CLOCK!!! GOD BLESS YOU MY DEAR!!!
@@Raminakai blessings
Joann Smith You have to accept Jesus as your personal saviour to have eternal life.He’s coming back soon,time is running out.
Jnia ChildoftheKing I’m very sorry for your loss. 🌹. My husband has advanced Parkinson’s Disease (over 20yrs) and Lewy Body Dementia (10yrs). He entered a good nursing home 4 years ago and I visit daily, with our children visiting weekly.
Dementia is Thief and destroys not only the sufferer, but irrevocably alters the lives of loved ones. 💔
I think that he was blessed to be spared nursing homes like he wanted.
I agree. I would rather die.
I pray for the same ending as GREG. ❤️. So sorry for her loss tho’
I think so too XOXO
So, it was better to burden her. In his mind, it was all about him. Good riddance for her sake.
Yes. It is what he wanted. 😢
I am an 82yo New Zealander married to the most wonderful Filipina lady in the world. I don't have dementia but i have a younger brother and a younger only sister who do. I know i shouldn't cry watching Greg and Janets story, but i did, especially the Kiwi label on Janets jacket told me, they have been here. It was terrible for me to hear of Gregs passing. Poor Janet, be brave, you have to move on, i know it's not easy. God bless you. Bob and Lina. New Zealand.
We lost my grandfather (Papa) January 16, 2021 from dementia. Because he lived in England and it was the height of the pandemic, we could not make it there to be with him in person before he died or to be at his memorial service. We did get to say our goodbyes via video chat but obviously that was all we could do in those circumstances. I miss him every day and knowing places like this exist in the world give me great peace of mind and it puts gratitude and healing into my heart and soul. Thank you for your journey, Greg and thank you for allowing your story to be shared with all of us. You remind me so much of my Papa and what he went through. Love to you and your precious family 🖤
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
This was heartbreaking to watch, as my mother dealt with it as well. Bless Janet for being such a patient, understanding, and loving wife.
What a sad story. What a love story. Greg was so lucky to have such a caring and loving wife until the end. You could tell in her eyes how much she loved him. I'm so sorry for your loss🙏
There are No Words Except Thank You To all the people who made this place happen in Denmark you are Something special to have this Place From the UK
As a caregiver in a Memory Care unit, the family often disappear not knowing how to handle it. It scares them more than the patient.
Scares off family and friends when you need them the most!
I have terminal cancer and find the same thing.
What a crushing development for both Janet and Craig. I feel terrible that this disease took one too young. I’m 67, retired from a 30 year career in pharmaceutical sales, single and living in Arizona, it scares the hell out of me to think I might be among those who will also be fighting dementia. Janet I wish you the best in life, I’m sorry for your loss.
Dear Bobby........do not be afraid....ask God that u do not develop symptoms of this disease, then do EVERYTHING to prevent it.............see Fransescas post above for tips on prevention..........u could also ask God to send u a loving caretaker.........trust me, He will........also, share what u have.........be blessed
Yes same @ Bobby Paluga. I live alone too
@@holycow3355 ...well I guess someone hates the name of God.........u will not know unless u try it.......so go on now.......u have nothing to lose but everything to gain.......!!!!!
@@shiningstar3312 Yes God will answer. I found a book in a thrift store called "A more excellent way" by henry wright. It is so awesome, their is a cure for most dis-eases, and yes it is through God, He made us and we have to have a sound mind.
@@motelman6036 Amen
I recently saw a long documentary, I wish I could remember what it was called for a reference but it was about this guy named Malcolm and his wife. Malcolm got Alzheimer’s/dementia and within 2-4 years, he was an absolute vegetable! He could not walk, dress, eat by himself. He needed full round the clock care and it ended up being such a strain on his wife who was caring for him all by herself in those first few years. After the first few years he became completely incapacitated and helpless and ended up in a home. He went on to live for 15 years!! And it only took a few years to get him to that “vegetable” point, so he had to spend the next 10-12 years living in a shell of himself and had to drag his poor wife and family through hell. After watching that, I truly believe Greg Kelly and his wife were totally spared by the universe! I know Greg said that the goal was to be one of those people who lasted 25 years, but at what quality of life? I hope his wife is able to move on and find love again. She is still so young and beautiful
I just recently lost my mom to dementia, and terrible health issues that she had. She had very severe symptoms, and acted out tremendously. The fact that she also had an ileostomy made things so much more difficult and complicated. The Healthcare System here in the US failed her! She never even got a diagnosis until she was having severe symptoms. We don't even know how she was really making it. She was a very intelligent woman with a strong mind, and I think that's what got her through for so long. Dementia is such a heartbreaking disease. It just completely Rob's a person of their life, and Rob's their loved ones as well. This story was so sad. I wish that they had Villages like this one everywhere for people with dementia. My mother was badly abused in a Memory Care Facility. She ended up with fractures and bruises all over her. I will live with guilt for the rest of my life because I should have never put my mother there. But I was all alone with no family and help for my mother and her care was extreme. The system here did not allow for me much help and they had a hard time finding a caregiver, and didn't even want to give us enough care. And when you are not well-off or wealthy it makes every bit of difference. As was said in the video, this is so much harder for people who do not have money. What a tragic illness this is. And I'm terrified because I'm starting to have problems with my memory and cognitive abilities as well. I'm only 59 years-old.
I hope you don't have dementia. The dementia home in Denmark was almost free for the patient's because the citizens pay high taxes. The welfare system is excellent with top education for all and free uni.
I am also scared about getting dementia.
The couple who visited Denmark are probably affluent so they would have the finances to pay a million to obtain permanent residence. His wife who appeared younger would have no problem getting a job .
I'm 61 and have noticed for about a year that my brain just blanks out. Dad had dementia. im still doing good. I had to back off some of my activities because I couldn't remember stuff. that has helped a lot. I just tell myself 1 day at a time. stop worrying about stuff in the future, just live for today. that has helped me too.
Speak to your doc & start meds to slow
@@irenerattray7742 When you look at the overall taxes they pay and then figure out what we pay in the US for taxes and for medical coverage and copayments and the like, they are paying less.
Janet, you and every person who's ever cared for anyone with this illness are true survivors. Greg was very lucky to have you love him the way I'm sure you still do today. Many hugs and much love.
Marian mondta ... Úgy döntöttem, hogy ezt a bejegyzést vagy tanúvallomást nyilvánosságra hozom. A férjemnél tíz évvel ezelőtt diagnosztizálták az Alzheimer-kórt. Nagyon szerettem a férjemet, és szívszorító volt, hogy Alzheimer-kórja kialakult, és mellette állva figyeltem, ahogy csökken a képessége arra, hogy vigyázzon magára, és mindennapi feladatokkal küzd. Elveszi az emlékezetét és végül az alapvető feladatok elvégzésének képességét. Az Alzheimer-kór nem csak a diagnosztizált személyt érinti - gondozójaként is felforgatja a világot, ha a szeretett ember küzd az állapottal. Hogy világos legyen, nincs gyógyszergyógyászat, nincs olyan mágikus tabletta, amely bármilyen jelentős hatást gyakorolna a betegség progresszív lefelé tartó lefolyására. Addig nem, amíg használunk egy BRONGEE nevű gyógynövény gyógyszert, amely véget vet neki. Jól van és a legjobb életét éli. Bár lehet más más lehetőség is. Soha ne titkolja saját sikerútját. Nem lehet szégyen. Lépjen kapcsolatba Dr. Rohannal a dr.rohanronjohn@gmail.com címen. Ez neked is segíthet12:35 PM
I watched my best friend die of early onset dementia. In her early sixties, she went to casually forgetting things, to a quick slide down with no chance of reversal. There were days when she'd rave at me about who I was or why I was ignoring her even though I did not. Her daughter was and still is a saint, she cared for her until the end. I miss her dearly, but I'm also grateful that she's no longer trapped inside her body.
I've heard so many wonderful things about this Village. I watched my Mother-in-Law go thru this dreaded disease. I would not wish this on my worst enemy. It stole her life, her zest, her memories ...
I lost my husband September 2014 its sad t watch them dissapear I was blessed 4half yrs to take care of him at home prayers for all who have gone through this
My mother has dementia and she has a very hard time with it. I just cannot bring myself to take her to a home.She likes her solitude and to have to change yet another thing in her life would kill her. God bless you mom.
Go to fb page No Drugs Here Fight Alzheimer's Naturally. Keep going back. They are adding more cures daily.
I went through same feelings with my mother. My mother wanted to stay home, so I quit my job of 28 years and stayed with her 24/7 care. I'm so happy I did. I worked in nursing homes when younger and it scared me to put my mother in one. My father had advanced Alzheizer's disease and such cruel illnesses to live with, and so hard on loved ones. This show, Greg and Janet, made me want to cry at several points.
MyHelga1 you’re an angel and your mum is so lucky to have you. Stay strong . Sending love your way .
Nancy Nunke what a lowlife you are
MaryElizabeth99 fair play to you. God forbid if that time ever comes in my life , I would like to do the same for my parents ....
I am so sorry for your loss. My father developed it in 2013 and died from it in 2015. The disease has no mercy or remorse.
My husband died of dementia 5 weeks ago. He was diagnosed 8 years ago. I kept him at home until the 4 last months were I couldn't manage it on my own. It was a hard but also beautiful time. The brain is severely damaged, but the affect and tenderness remain. He spent the last weeks of his life in a nursing home, here in France were we live, and was very very well looked after. I was with him every day and could even sleep there, if I wished. But indeed, it was very expensive, but it didn't matter to me, because I knew he didn't have years to live. I miss him terribly...
Élise je t offre mes sympathies.
Elise im so very sorry to hear, you have to remember, you was with him every step of the way, with this journey, im sure he will be looking down now, thanking you and wanting you to enjoy your life, because this condition puts life into perspective,
United States of America needs to listen to this and do something about our own care they don't do enough for the elderly when a person gets to that stage cost so much just to live with the worst care it's barbaric
You better not give the person who made you, fed you , cleaned you, loved you, cried for you, to a goddamn stranger in a strange home!
@ASG66 What kind of person are you? I may not totally agree with Karen's statement but, I treat everyone with respect. ...except petulant children like yourself.
@@TakaPvP Most facilities are good and some are excellent. I care for my wife at home and promised that I'd keep her there. That said, I have had her stay at a daycare a few times when I had to do something. She enjoyed every minute of it despite my hesitation to leave her there. It was like leaving your child at kindergarten the first time.
Under the present administration, there have been many changes to the dementia care community. I'm on several committees and a congressional delegate to congress as an advocate for caregiver support and long term care options.
I am actually planning a care facility similar to this.
How different how similar and how many it is not run like this one I don't think it'll work I thought that you'd be soon nursing homes do not work too many greedy people run them what's up nothing needs a deceitful still have to prove what you say to me
RIP Greg mate. You Sir will LIVE ON in the hearts of all those who loved and still love you. On day I’ll meet you on the other side. Bless you Nicole 🙏🏻
It is very confronting to see this lovely couple, Mr Greg Kelly and his delightful wife, Mrs Janet Kelly of a forty year marriage experience what must have been a terrifyingly horrid stage in their lives. Mr Kelly was quite an imposing man despite his diagnosis and would have intimidated anyone daring enough to get in his way. His wife however seems the opposite and appears as a loving angelic wife whom cared profoundly for him and would have been willing to sacrifice anything to keep her husband from leaving her side to avoid entering a nursing home. The couple's overseas trip to Denmark was an eye opener for any wealthy Western country willing to adopt a similar strategy in dealing with the onset of early Alzheimer's for younger citizens. This documentary has been both a heartwarming and emotionally charged account of fierce independence whilst allowing the viewer the privilege of being educated to matters that we hope will never need to face ourselves. It was sad to learn at the end of the documentary that Mr Kelly had passed away. A documentary of required viewing for anyone wanting an insight to our latent final calamity.😔
my mom got this in her 60s and we took care of her till the Lord called her home I can tell you that if you know the Lord you are much better off than here on earth living with this terrible illness
Kenneth Russell This isn’t the place to discuss your religion.
S. G. Looks like the vote is 36 to one.
@@user-jc8py7dw7r , and you have no right to tell others what to do . if she wants to talk about the Lord she has every right to .
Oh stop marketing your religion. This is a serious subject.
@@Secular-Serenity Sorry didn't mean it in an offensive way at all. I know exactly what your going through.
Broke my heart when the poor wife started crying. She said she wants to nurse him til the end. What a hideous illness.
My Room I think she knows Greg was going to choose when he checks out.
Its too devastating. Heartbreaking.
He was a selfish ass. It's not all about him. Good riddance and now she is free. Too bad she has his selfishness at the end to remember.
@Andrea Wylie Stop enabling. He clearly knew what he was saying.
@@robjohnson8861 It is unfortunate.. but I do tend to agree.. have a friend who worked in dementia care nursing for years who confirmed..as I'm currently living with a relative with dementia.. it peels the layers of societal expectations & uncovers their true personalities.. She said most were sad cases.. but many were not nice underneath it all. I'm currently living with one who is still semi capable of living on his own but is still best off with us..but I am learning so much about the difference between the symptoms of the disease...and who he really is... and how he's been really good at fooling alot of people for a long time.. I am trying very hard to be more understanding.. But when you don't have the emotional attachement..you really do see much clearer... I have SO much respect for all the caregivers who have the patience & kindness & commitment to this vocation..
I was a R.N. with Alzheimer patients and that village is marvellous for them. It’s make them keeping their dignity!
I am surprised he is STILL DRIVING , he SHOULD of been TOLD or at least ADVISED to STOP AGES ago as he cause SERIOUS to NOT ONLY HIMSELF but other people and sadly HE will get the BLAME because of his health , but sadly he is NO LONGER ALIVE , MY DEEPEST sympthies go out to not only his wife but also his family XX GOD BLESS and take care
Melissa Blanchard Nope, that’s a place in Denmark.
The dementia village is so sweet. I would work there if I could.
I used to work the LTC wing at a nursing home and the dementia patients had my heart ♥️
My husband diagnose at 58 with Cardio Vascular Dementia,watch him slip away,a strong,honest,hard working man.It stripped him of everything,couldn't speak,didn't know my name,but never did he stop recognizing me,very sad and cruel illnes,has no mercy miss him so much bit grateful for what we shared,my heart breaks for those who suffer from this.And for the familys..
We need places like the ones in Denmark,I applaud them,so many will benefit from these programs
How do I prepare my 8 year old twins to lose me from this cruel disease?
This is a place I would want to live should I suffer from dementia. I take my hat off to these people who offer this profound care.
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
@@blackfeel9172
@@marygachwe488 hi baby
My mom was about the same age when she started acting odd, took about 3 years for my dad to finally allow me to take her to the doctor. She was diagnosed with picks disease it’s a frontal lobe dementia. Here in the US care options are limited so my dad took care of her. For about 6 years before he became ill with cancer. She died 2 weeks before him. It’s such an ugly disease, watching your loved one just fade away, not being able to speak, eat, walk...
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
So sorry for your loss. I'm mourning my mom who also passed away from dementia and heart disease on February 23rd. 2019. My deepest sympathy to you and your family. ♥️♥️♥️♥️
What a beautiful idea! Thank you for raising awareness of such things, all people deserve care and this is truly wonderful.
Thank you for showing what’s possible for some, and my condolences to Greg’s Family!❤️🙏
Y
Touching atkry Good passed before covid
The village is such a brilliant place that everyone deserves access to. Especially that their partners/family can stay there too...that's so important!
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
As a dementia specific nurse I love this stories although heartbreaking; it raises awareness to this disease; thank you so much for sharing; rip Greg : xxx
It is very confronting to see this lovely couple, Mr Greg Kelly and his delightful wife, Mrs Janet Kelly of a forty year marriage experience what must have been a terrifyingly horrid stage in their lives. Mr Kelly was quite an imposing man despite his diagnosis and would have intimidated anyone daring enough to get in his way. His wife however seems the opposite and appears as a loving angelic wife whom cared profoundly for him and would have been willing to sacrifice anything to keep her husband from leaving her side to avoid entering a nursing home. The couple's overseas trip to Denmark was an eye opener for any wealthy Western country willing to adopt a similar strategy in dealing with the onset of early Alzheimer's for younger citizens. This documentary has been both a heartwarming and emotionally charged account of fierce independence whilst allowing the viewer the privilege of being educated to matters that we hope will never need to face ourselves. It was sad to learn at the end of the documentary that Mr Kelly had passed away. A documentary of required viewing for anyone wanting an insight to our latent final calamity.😔
@family tea and lots of yarn. Thank you.
My dad got dementia..but he had cancer at the same time...I can really relate to this video and the lovely couple involved, and feel Gregg's pain and Janet who has devoted the rest of Gregg's life with his dementia..I think Denmark has the right way forward to tackle this horrible illness. Bless Gregg and Janet for their positive attitude and the fight to live with dementia.. devotedly together xxx
God bless Greg Kelly, his wife Janet and their family. What an amazing story. Thank you for sharing it with us. And thanks also goes to Australia for creating a village for those of us with dementia!❤
Wow! He passed away only 3-4 years after his diagnosis. It's good through that he lived and worked and provided for himself and his wife a home, and that he did enjoy much of his life and that he had someone there to be there for him until the end. That's a big blessing for someone to have someone else who cares and will be there for the person until the end comes. Many folks have no one, and eventually ends up in a nursing home all alone and no one comes to visit them. So so sad.
What makes me extremely angry is that it took 4 YEARS to diagnose him. Unforgivable. I’ve seen that happen when incompetent drs think it’s not possible for people in their 50’s or even younger to develop dementia.
That village is a brilliant idea. My father died from Dementia related illness, and one of the saddest thing to witness, is the lack of structure and socialization for the patients. Dad had wonderful care where he was, but the patients just languish. What that village offers is a sense of some control over their lives, plus the fact that they have their own apartments, but are still cared for 24-7. And the tracking device is crucial. There are too many stories of Dementia patients who wander away and some perish. I wish we had that here in Canada.
Languish - yes :(
Beautiful caring wife. What a good human being.
Rest easy dear friend.. Dementia is such a terrifying, earth shattering disease.. My deepest condolences to Mrs. Kelly.. My heart shattered for her when she said she would prefer to nurse him herself and be with him until the end.. life is such a cruel blessing
Denmark is amazing, wish we had this in the uk, they have more staff then patients, now that tells you a lot
I was going to say something, I just can't remember
Who will pay for it all? These things are not cheap. And the dementia residents in Denmark are clearly not very far along in their journey. There sufferers in a whole lot worse condition. They can be violent and unpredictable. They could never live in places like that one in Denmark.
@@michellelammi787
How do you know?
Denmark can afford this, because we pay a high tax, and I do it gladly. We have 2 houses 2 cars, so if you have a high income you pay more in taxes.
That how it works.
I have my grandma in this home. They know how to handle dementia, and therefore the residents does not get upset or afraid.... You know clearly nothing about this.
TM Denmark I hope they will build some of these towns in Canada, such a great idea for everyone😊
TM Denmark In UK , people have to sell their homes to pay for their care unless they have unlimited capital or Health Insurance. As we have - at present- got the NHS , many people don’t have Insurance. I completely understand the previous comment.
Is anyone else bursting in tears after watching this???? I'm just grateful to have maybe more time with my loved one now!
I really appreciated this film. Thank you for being brave enough to do this. My husband had a heart attack at 69. He had retired at 67 from a very responsible management position.
He put the occasional lapses of memory down to that only I felt something was wrong. Over 3 years I took him to several doctors who made me feel very silly. One day I was telling a new dr. who I was seeing on my own behalf a funny story about my husband. He didn’t laugh and said bluntly that he had Alzheimer’s. The next day we went back to his dr. and I demanded a brain scan.
He had a large hole in the frontal lobe. We continued together for eight years but over the last 6 months he developed bowel cancer. He went into care 3 weeks ago but is too frail for treatment.
Luckily I have his enduring power of attorney as even at nearly 80 his dr. Wanted to give him chemo and radiation. He even wrote me a letter threatening me that he would have
that taken off me. I talk to my husband every day by phone and often he sounds quite normal although he never knows what he had for his last meal and can’t picture his home. He feels he is different
to the other residents and still asks if he is always going to be in there. It is very sad. I was given an antibiotic 3 months ago called Nitrofuritoin for a bladder infection and it paralysed
my feet and some fingers. The nerve damage is irreversible. That is why he had to go into care. Thank you again so much for being brave enough both of you to take this film and for you his
wife to share.
Macrobid did that to you? Woww
It can’t be easy to decide to withhold cancer treatment from your husband but it seems like a wise decision; you need to report that doctor for interfering. You also should talk to an attorney about the injury you got from the antibiotic. Some money would be helpful to you right now.
❤ I am so sorry this has happened to you it is terrible. I agree with Sashazur. Thinking of you hoping your health improves quickly & all in your life gets better alround 🤗❤🙏
Rest In Peace now Greg , you didn’t have to suffer too much longer . Janet Thankyou for sharing this and I hope life treats you gently now
I lost my husband a few months ago to the same thing. I feel your loss 🙏.
I am so very sorry. I'm sending you hugs and love.
So sorry for your loss. My clever mother-in-law suffered from it for 7 years. It is so sad to slowly lose them.
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
Dear Janet . Watched your story . My husband had Alzheimer’s , he was also an Accountant , very smart . I kept him at home with me for nine years . I always thought of a place like You are now , but unfortunately we in Canada don’t have one . We have many Nursing homes , but I refused to keep Bert in one . There for I had no other way but keeping him home with me until the day he pass . Two years before he pass he called me his friend , he forgot about who I , his doughter , and granddaughter were , and that is the saddest time of our lives
I can understand what you are going through it is devastating
Sending love
I wish you much strength
I would rather die suddenly..and I would wish that on any family member too...so horrible this disease
Did he commit suicide.?
The sudden death.
@@donnabonn1892 I tbought the same thing. But that's better than having to live with the disease and hurt everyone around you in the process.
What a wonderful place, I wish we could of put my mother in a place like this. Denmark knows how to take care of their people!
Thank you for this glimpse in a place that looks happy and satisfying as compared to the dementia care wings of independent/dependent living apartments that I have seen in Illinois/U.S. I appreciate Janet & Greg's story and hope Janet is doing okay now, having lost the love of her life so soon. What a love story. I wish my story was so uplifting. My 77 yr old husband with Alzheimer's will not admit, accept/go along with in any way his diagnosis. His diagnosis was 6 years ago but I know he had this coming for many years before that. He is at home and I know it will get more and more difficult. I know he will resent anyone else coming to take care of him. He is not social, does not make friends easily and only hobbies were the puttering and fixing of things around the house. He can't do those now as his memory is gone and cannot follow any steps. He is healthy as a horse physically. So what do I do??? I just take him everywhere I can. He needs to get out and see different things. I manage it all at home and try to mitigate any of the troublesome things he might do at home. Fortunately he doesn't walk out of the house. I will watch him forever, partly because of the vow I took 22 years ago to 'in sickness and in health' and the expense of having him go somewhere that he would hate is unreal. Who has $10k a month? Thanks for letting me run on.....
Very Sorry for this Loving Couple. It seems so unfair when you look young that your faculties disappear. It is sad when your life span is taken away so insidiously. My respect to Greg's devoted Wife.
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
I'm retired in Danbury, CT. My younger sister has Lewy Bodies dementia. She lives in Ridgefield, CT, She retired from NBC, in Rockefeller Center, when she was 64. She was a journalist for over 30 yrs. She started forgetting things shortly after retirement. Now 5 yrs later, she is in a wheelchair, being spoon fed, diapers, non verbal, and round the clock care, with caregivers in her home. The other symptom of Lewy Bodies, is Parkinsons, so she shakes. I believe, she is in the final stage. Blessings and prayers to u and your family.
You know it's sad to say this but I'm glad he didn't linger on with this disease and was spared the worst of it! RIP friend may your wife find some peace in all this!
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
Anyone who has a heart who would like to do Dementia caregiving it's a growing profession worldwide. Assisted living residences always can use volunteers as well. Thank you to those Angel's who reach out and care for the most vulnerable among us. 💗
My grandfather passed from dementia and the facilities at the time weren't very well managed I remember the day he left he was opposed to going and he passed the second night he was there It was the GREASTEST loss of my life and I can still see the saddnest in his eyes as he left the house MISS U GRANDPOP EVERYDAY ❤
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
When my father in law had early onset dementia he would run off in the car. He wanted to keep his car keys. I had my mother in law have a car key cut that did not fit & put on his ring.
He then would come out & ask us to help, we would offer to drive with our good keys & all was fixed. Jeanne
Thanks for this!
Thankyou for sharing experience with this illness, I want to learn and you presented problem and solution
We could do with more of these 'towns/villages'! I would stay there without doubt.
RIP Mr Greg.
it sounds nice, it will drive you crazy.
God bless you for sharing your story. This is such a sad disease.
I was married for 28 years and it ended in divorce but now I’m older and I really don’t think that I ever would want to marry again there’s just too much, I don’t want to care for a spouse and that may seem cold to someone but I have been caring for my daughter since she is severely disabled for my whole adult life and she is now 37 so I know that I do not want to care for anybody else, I just don’t have it in me to do it again. Once I am done being here care for 24 seven I need to start looking at myself and taking care of myself as I’m entering my elderly years
I don’t blame you for feeling like that one bit! I took care of a friend with terminal cancer for only one year and it was a huge drain on my well being. I couldn’t imagine doing it for years - and more than once.
I am an RN. If I had the money, I would ABSOLUTELY build and run one of these in Canada. It seems wonderful. My daughters would help me, I'm sure. I love this set-up! We've spoken of this type of set up alot. Bless those who operate this place and care for these people with utmost respect, patience and care. ❤️
Fellow Canadian here! Our government needs to make long term care homes by OHIP. If you have a health card then you should be able to go live in Long term care if you have dementia. My 64 year old mom currently cares for my 69 yr old dad who has severe vascular dementia. It’s very difficult to care for him at home and she is struggling. They can’t afford a long term care home. Many seniors cant
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
The story is a sad one but also inspiring. He was blessed that he was so loved. And the facility looked like a good one. I judge them by going in unannounced and seeing how the nurses are reponding with patients and if most patients can smile. I might even ask a couple of them if they had a good lunch today. It is something very hard to face if it's us or a loved one going through it. Seems something is wrong in Austrailia, that could be looked into, considering how many cases there are. But what a touching story. Thank you 🙂
That would be what makes it challenging is the mood swings. Even the most sweetest people can become different!
I just lost my husband on October 17,2022 he was with me at home. He was 57 years old.
My mum was 59 and I was 18 when she died..Today am 37 am soooo sorry
My late wife had FTD. She was diagnosed in 2017 many changes. Lost items, personally changes, devastating illnesses. She passed in 2022. At 55. I think being a caregiver for this illness and losing your love one is a tough type of grief. She was a amazing lady.
This was so deeply, darkly & profoundly difficult to watch...I feel almost "empty" inside just imagining the horrific grief families & patients must endure...
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
Black Feel...Your comment couldn't be any more irrelevant to this story!!! What does it have to do with such a sense of profound grief & loss of life the families & friends must be grappling with???
Hi baby I mean be good morning to
Each other can help renew the world do you believe it
@@poppykok5 hi baby
Hi how are you doing baby
Thank you for sharing this. I am so,so sorry Janet. I cried all the way through and felt what you were feeling. I lost my husband Gerry 23 months ago to early onset Lewy body dementia. I wasn't able to let him out on his own as he also had type 1 diabetes and had no hypo- awareness. He loved to be outside and we tried to do something every day, walking, even though he had Parkinsons with the L.B.D. and gardening But me being his only full time carer he manage to get out of the house, I being exhausted in the early hours didn't hear him leave and to this day has not been recovered. He would not of survived with out his insulin. I too, wanted to be with him to the end and not wanting him to go into a care home. We had a very special love, I can relate to in seeing you and Greg, so lovely together. Like your Greg, my Gerry changed so much from being a funny, caring and loving man, to someone who was so different, it is so hard on the onlooker, us, to see the person you love, slowly disappear before your eyes. I feel like it was yesterday when Gerry left the house alone, but it is nearly 2 years. I am helping myself by remembering all those lovely times we had together and what a wonderful step dad he was to my two children and the special times we had together, not the unbelievable heart breaking end. Janet.... use that as your heeling too, as you will need heeling to get through this. Think of all those wonderful moments, kisses and love you shared, we were lucky to know and experience such love and our special man .... Sending love to you Janet and your family( if you get to read this), Pierette XX
Just to say I have a little film on RUclips creared by some students from Bournemouth university called , Lewy Body Dementia, B.O.L.D colour & sound if you want to have a look X
I learned on Dr. Eric Berg's channel that the latest studies show dementia is accelerated by the shrinking of the hypothalamus in the brain. This happens when your body's natural B1 is depleted. One thing we can do is take extra B1 vitamins every day and eat lots of sprouts and broccoli. I hope you can watch that video, it was very informative.
19:30 I agree. My sister has early onset dementia. I hope if I come down with it, I’m aware and can take myself out. I just do not want to put my family through it. I also do not want to live through certain aspects I’m watching my sister go through. My family knows how I feel.
My aunt had dementia.. highly violent with her kids... she just didn’t know where or who she was or who was who. She was scared. Great story. It just suck to age, you never know what is coming for you at any age.
This was a very enlighting video and also sad. I am sorry for your loss Janet.
Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”
I worked in a nursing home when I was younger and it was a bit different to others, in that if we had a patient with dementia and their partner had the option to also move in with them. One patient I nursed Majorie her husband Bruce lived with her they had a twin room and he was with her all of the time as well as group activities but he didn''t want to be apart from her at any time.
Their story was actually truly tragic they had two children and lost one to a drowing when they were 20 and the other to cancer at 42 meaning they had no immediate family left, so they were one anothers everything. Marjorie died aged 86 and Bruce survived her by 2 years. I had the privilege of going with Bruce for his wife's funeral so got to say goodbye to her properly.
Bruce had no care needs when he moved in with his wife and minimal care needs when she passed away and chose to return to the home and live out his life in the place he and Marjorie had spent the last ten years of their marriage. This home is in the UK and I was happy during my time there and was relieved at how well the people were looked after and I know it is not always the case even in the UK we have horror stories of elderly abuse and it always breaks my heart to hear it.
Denmark has a wonderful attitude about this disease
Watch their RUclips video it's amazing
Losing gray a dementia story is the video
It should be the same here in the UK
A tracker would be good to use BEFORE the wandering starts.
The USA is BIG on tracking its citizens and it's only going to get worse..