I Was Diagnosed With Multiple Sclerosis : My MS Diagnosis Story
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- Опубликовано: 17 фев 2024
- In this video I am sharing what led to my Multiple Sclerosis (MS) diagnosis in 2023. I have scarring and lesions on my spine/spinal cord. At the time of filming this video my symptoms include numbness and tingling, occasional "jolts" or "shocks" on my left side, and fatigue. I forgot to mention that while I was getting imaging and tests done, I was also referred to a Neuro- Ophthalmologist due to a swollen optic nerve and an empty cella. Not exactly sure what that means, but I figured I would mention it lol.
~~WHERE IT ALL STARTED~~
In 2020 my symptoms ranged from dizziness, trouble balancing and changes in vision to extreme limb weakness and trouble walking. I wish I could track the timeline of events better for you, however I wrote a detailed blog post in January 2021 which describes what I was going through at that time. You can read that post by clicking here: www.jenfindsgems.com/more-tha...
PART 2 of this video includes video diaries of myself during that time and a reading from a blog post I wrote. We’re moving to Saturday morning uploads, which means that Part 2 will drop on 2/24.
Subscribe here: / jenfindsgems
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++ Boundary alert: Friends and family I love you and I appreciate you-- but please know that I am strong and I am fine. I appreciate your love and support. The best medicine for me is not your worries, but your prayers. :) With Love, Jen.
I am sharing my story with the intention of helping someone that was diagnosed with MS and may want to hear a similar story or see someone that looks like them. When I was doing research, I found a lot of people that had lesions on their brain or lesions on both their brain and their spine, but not a lot of cases where only spinal lesions were indicated. MS is often referred to as the "snowflake" illness where no two cases are the same, and while I believe this is true, I know how comforting it can be to hear a story that may sound like your own. If you're reading this, I want you to know that healing is not linear but with the right medical care, lifestyle changes and faith, I believe that anything is possible. When I was at my WORST in 2020, I didn't see myself being "me" again. I recovered then and that gives me faith that I will get through the toughest of times ahead. I also want you to know that you are beautiful, you are stronger than you realize, and God is good. Not all of my journey has been scary and I've really learned a lot about myself and how my body operates, and for that I am grateful. I am living and learning everyday, with so much motivation to do all the things (in moderation) lol. I hope that you see that within me because I will be out here LIVING LIFE, okay? LOL.
I am also tracking my journey because one of the "unseen" symptoms of MS is brain fog and a decrease in cognitive function like memory and retention. I want to document my journey to help others, and to help myself.
Tags: MS, livingwithms, msdiagnosis, MS patient, MS symptoms, multiple sclerosis symptoms, multiple sclerosis treatment
I was only diagnosed a few months ago this year myself. I have both brain and spinal lesions. I am not on any medication at present but Ocrevus was recommended by the neurologist. I understand you not wanting to take this medication. There is a three fold increase in the rate of cancer in people on Ocrevus. There is also the risk of serious infections and PML. Like you, I am particularly worried about the spinal lesion thing. I will have to go on some sort of medication soon I think, even as I type this I am getting consistent stabbing sensations in my arm and legs, it must be related to the wheat pasta I have been eating. It has all been quite overwhelming.
Thank you
Have you heard of nicole apelian? She's a botany/ biology phd with MS who reversed most to all her symptoms using plant extracts. She just opened her own apothecary and she has all these protocols on how to tackle root causes/ lessen effects. Most of her protocols use food mushrooms that she extracts in several ways. Reishi ( double extracted), lions mane double extracted. I've used her stuff with family that has degenerative spine stuff and it did help / make a difference in about 2 -3 days of use.
Hi Happybuuny! I haven’t heard of Nicole and her methods of apothecary. I will be researching this heavily, thank you so much for sharing!! How is your family doing now?
please don’t put any faith into people that think they can home remedy their way out of ms, the only treatment that is proven to work are DMTs
Hi Jennifer 👋 I was diagnosed with MS at the end of 2021. I started Ovrevus on last year and it has been ok so far no side affects. I have lesions on my brain and spine.
My middle name is Marie! 🥰 I’m so happy that you’re doing well with no side effects from Ocrevus! How have you been feeling overall?
Aww ☺️ I’ve been good I feel tired a lot. Legs feel heavy from time to time but besides that I’m pretty good
I also have Multiple Sclerosis. Getting that diagnose was devastating at first but you get used to the idea that MS is just as unpredictable as life it self. I wish you the best Jen!
This is so true!! Thanks you for the words of encouragement Brittney, I’m sending you love and praying for healing on your journey too! How are you feeling since your diagnosis?
@@JenFindsGems Thank you so much and thank you for asking! I am feeling better than I thought. Progression is minimal and the only annoying thing is all the doctor appointments since diagnosis but other than that I would say it made me more thankful and a happier person!
Thank you for sharing 🙏🏼
🫶🏾🫶🏾
I have MS. I would recommend following Dr. Aaron Boster. He is an MS specialist with a RUclips channel, with a lot of great information. It sounds like you are taking the right steps.
Thank you for sharing. My daughter is 36. She was diagnosed in 2017.
Hi Michelle, of course, thank you for watching! How is your daughter doing?
@@JenFindsGems You're welcome. I went with her today to see her neurologist. She always refused to take medication or infusions. She's been using a cane off and on. She's finally giving it some thought. She has the relapsing MS.
Praying for a cure.🙏
@@michellelucas7985 I know that coming up with an action plan for treatment can be a difficult decision to make. I’m happy to hear that she is weighing her options and I’m praying that she has a pain free journey. Praying for a cure too. 🧡🧡
Hang in there! I know many of those symptoms all too well. Not fun! I hope things get better real soon
Hi Spencer! Your words of encouragement mean so much, thank you!! I hope that you’re taking care too- How are you feeling these days?
@@JenFindsGems Yeah I'm still stable and doing great 9 years after being diagnosed ... what a wild ride MS can be :)
@metaspencer that’s so good to hear! Praying for a smooth road ahead, it’s so awesome that you are sharing your experiences!
My mom has MS and she’s had it for years now. She’s progressively gotten worse, now to the point where she cannot walk. She’s also afraid of man made medicine. All in all, we’ve changed her diet and seen some improvements, but ultimately I’m hoping to share “earthing” with her, hoping that the grounding (natural grounding) will help resolve some of those electrical impulses that she’s been having. We are naturally electrical beings, if you think about it. When a person grabs an electrical current, even with a pinch, the brain takes that electrical energy and transmits it as its own. So if you pinch and electrical current, you continue to pinch harder and harder… therefore, I’m hoping that earthing (natural grounding) will break the electrical impulses her brain is demanding of her body…. Long story short. I’ve been researching MS for years and stumbled across your video looking up grounding/earthing benefits and MS. I look up health advice for her nearly everyday, with anything from herbs to diets… I haven’t yet researched grounding yet with her, I’ve just ordered a grounding mat today, but watch Tyrone’s video on grounding benefits MS.
Earthing Grounding helps MS and more by Tyrone Magnus
Thank you so much for sharing this James, this is the first that I’ve heard of using grounding techniques for MS healing! I will definitely be checking out his videos, thank you again and sending lots of love and prayers for your Mom!
Hey Jen! I’ve had multiple on and off issues that I haven’t been able to find a reason for that makes sense. I had an MRI of the brain which was basically clear, and figured since many of my symptoms seem brain related, MS wouldn’t be likely. Where on your spine did you find lesions?
I’m so sorry that you’re suffering! I started to feel jolts and then tingling and numbness on my left side (side of my abdomen), kind of in between my breasts and my hips. I believe my Primary Doctor said this was close to the T12 vertebrae which triggered them to do a thorastic spine MRI. Is there a way you can have your medical team run an MRI of your spine as well? Ironically, my brain MRI can back “normal” and it wasn’t until I mentioned the jolts to my neurologist that he started to grow concerned and mentioned MS. Hopefully you find answers and start to feel better soon!
The only place that hasn’t been checked is the thoracic spine. Initially thought I had a left shoulder injury, then neck, now left leg as well. Was supposed to see a neurologist, but the appt got pushed back till April. Thanks for being open and for your willingness to help out! I hope your treatment gives you the best possible outcome
@@tasteechickenleg thank you so much! I’m praying that you get answers in April and hopefully you’re not in too much pain in the meantime. You’re so strong for being an advocate for yourself and following your intuition, I love this for you. 🥹🫶🏾