I Was Diagnosed With Multiple Sclerosis : My MS Diagnosis Story

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  • Опубликовано: 21 ноя 2024

Комментарии • 84

  • @JenFindsGems
    @JenFindsGems  2 месяца назад

    I want to thank everyone that has shared their love, stories and support since I posted this video. Sending you all virtual hugs! Check out my updated video on life since my diagnosis, here: ruclips.net/video/rKHxohb9Oek/видео.html. Don't forget to watch the MS playlist for updates! Xo

  • @dianataylor8311
    @dianataylor8311 6 месяцев назад +31

    I'm going into my 28th year with MS. Keep your attitude positive, I'm still mobile and walking. Sorry you have to be a member of this club. Welcome Warrior! We are here for you😊

    • @JenFindsGems
      @JenFindsGems  5 месяцев назад +6

      Hi Diana! I wanted to make a video to respond to you personally but life has kept me so busy. I will be filming and posting that video soon but I couldn’t let another day go by without thanking you and acknowledging this sweet comment. Your words are so comforting and I sincerely thank you. We ARE warriors and you being on this journey for 28 years shows how strong you are! Thank you for being such a light, I’m here for you too and I’m so grateful that you’re a part of this community. 🧡

    • @dianataylor8311
      @dianataylor8311 5 месяцев назад +4

      You're so welcome, sister . We and I got you through the good,bad and ugly❤❤

    • @scores718
      @scores718 3 месяца назад

      ​@@davidking6617hi david. Ppms 35+ yrs. No cant run, bad foot drop . You?

  • @BeulahMahaney
    @BeulahMahaney 5 месяцев назад +6

    I was diagnosed three months short of my 63rd bd, two years ago this July. Also I'm a black female, had no medical insurance, after a few ER visits with them telling me because you can't afford the tests needed, go home and suffer. I researched my symptoms and came to the conclusion I had MS. Note, worked in medical field for over 25 years, MLT, Histo Asst, OR Tech, MA, Phlebotomist. Finally was able to get Medicaid, MRI and spinal tap later, it's MS. No DMTs, I exercise everyday, get 8+hrs of sleep, no processed foods and I smoke cannabis hourly, I keep my mind and body moving at all times. I'm self retired but I'm still able to do everything I've always done, but a little slower. #mswarrior

    • @internetfriend1861
      @internetfriend1861 3 месяца назад

      Hey, thank you for sharing your story. Would you mind sharing your symptoms? I am also in the medical field and also believe I have MS but am getting nowhere..

  • @Sonializ0127
    @Sonializ0127 7 дней назад

    I've had MS for 26 years, possibly more. I started the DMDs and found I was not getting better. So I stopped DMDs and followed Dr. Wahls. Removed Sugar, Coffee and eat a non-inflammatory diet. All my symptoms disappeared. I may get a tiny flair, due to heatwaves. I have been living my best life since I started following Dr. Walls and realized what works for my body and immune system and what doesn't. I'm stillI working and feel so reat! I wish you all the best!❤

  • @victoriaieshia
    @victoriaieshia 4 месяца назад +4

    Thank you so much for sharing your story! I hope you’re doing well. I was diagnosed with MS in September 2023 so it’s been almost a year. We need more black women and men sharing their story on social media.

    • @JenFindsGems
      @JenFindsGems  Месяц назад

      Hi Victoria! I agree 100% - I wanted to share my experience because I didn’t find as many people that look like us. My Neuro even said MS was once thought to be an illness that only affected White women and I thought that was super interesting! How are you feeling now? I posted an update video and I’m excited to bring more conversations like this to the channel. Thank you so much for being here and I hope that you’re feeling and healing well. 🫶🏾🫶🏾🧡

  • @happybuuny
    @happybuuny 8 месяцев назад +5

    Have you heard of nicole apelian? She's a botany/ biology phd with MS who reversed most to all her symptoms using plant extracts. She just opened her own apothecary and she has all these protocols on how to tackle root causes/ lessen effects. Most of her protocols use food mushrooms that she extracts in several ways. Reishi ( double extracted), lions mane double extracted. I've used her stuff with family that has degenerative spine stuff and it did help / make a difference in about 2 -3 days of use.

    • @JenFindsGems
      @JenFindsGems  8 месяцев назад +1

      Hi Happybuuny! I haven’t heard of Nicole and her methods of apothecary. I will be researching this heavily, thank you so much for sharing!! How is your family doing now?

    • @redacted-oo7ne
      @redacted-oo7ne 7 месяцев назад

      please don’t put any faith into people that think they can home remedy their way out of ms, the only treatment that is proven to work are DMTs

  • @BrittneyTalks
    @BrittneyTalks 7 месяцев назад +8

    I also have Multiple Sclerosis. Getting that diagnose was devastating at first but you get used to the idea that MS is just as unpredictable as life it self. I wish you the best Jen!

    • @JenFindsGems
      @JenFindsGems  7 месяцев назад +1

      This is so true!! Thanks you for the words of encouragement Brittney, I’m sending you love and praying for healing on your journey too! How are you feeling since your diagnosis?

    • @BrittneyTalks
      @BrittneyTalks 7 месяцев назад +1

      @@JenFindsGems Thank you so much and thank you for asking! I am feeling better than I thought. Progression is minimal and the only annoying thing is all the doctor appointments since diagnosis but other than that I would say it made me more thankful and a happier person!

    • @Ane127
      @Ane127 6 месяцев назад +1

      Get a homeopath

    • @martinmatko6401
      @martinmatko6401 6 месяцев назад

      What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters
      CCSVI is definitely one of the causes of MS.
      The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI:
      * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos)
      * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel
      * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction
      So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases.
      A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment.
      The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed).
      For information: Dr. Domenico Ricci cell.3393828399
      MRI IN MS VASCULAR PATHOLOGY
      www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
      This quantification of the disease pathology will help!
      #CCSVI
      Venous Hypertension
      >microbleedings
      >iron
      >inflammation
      >free radicals
      >neurodegeneration
      #multiplesclerosis
      M.S. - Mystery Solved
      Mysterious Autoimmunity
      = CCSVI Neurodegeneration
      M.S. - Mystery Solved
      Mysterious Autoimmunity
      = CCSVI Neurodegeneration
      Keep in mind!
      Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI
      Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated!
      If you hadn't noticed
      Who Knew??
      #BloodFlowMatters
      What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
      Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS
      Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
      #Healthcare game changer when the cause
      The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease.
      -THOMAS EDISON
      Best possiblity easing/eliminating cause of SymptoMS!
      You can relate!
      If your veins are blocked they should be opened if you have SymptoMS or not!
      MRI IN MS VASCULAR PATHOLOGY
      www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
      Who Knew??
      #BloodFlowMatters
      What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
      Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS!
      Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
      #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated!
      The doctor of the future will give no medicine, but will interest his patient in the care of the
      human frame, in diet and in the cause and prevention of disease.
      -THOMAS EDISON
      Best possiblity easing/eliminating cause of SymptoMS!
      You can relate!
      If your veins are blocked they should be opened if you have SymptoMS or not!
      A Vascular problem led to the crippling nightmare of Multiple Sclerosis
      The real Multiple Sclerosis nightmare started at the point of NeuroDx
      The disaster of diagnosis being made by general physical observation over time,.
      Especially when Time is something you can’t afford #CCSVI
      Multiple Sclerosis is strong and you often need help.
      Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪
      #Symptoms often ease/DISAPPEAR
      Facilitate Collaboration Neurovascular Disease Research! #CCSVI
      FB Group: MSS
      facebook.com/groups/4939355…!
      - Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍
      ---------------------------------------------------------------
      # The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ...
      # Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal.
      People who have diabetes or who have had a heart attack are most likely to develop silent ischemia ..
      ----------------------------------------------
      # Risk factors :
      - People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include :
      use
      1- Diabetes
      2- High blood cholesterol
      3- High blood pressure
      4- A family history of heart disease
      5- Age (after age 45 for men and age 55 for women, risk increases)
      6- A sedentary lifestyle
      7- Obesity
      8- Unmanaged stress
      --------------------------------------------
      # To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do :
      1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke .
      2- Prevent diabetes or manage it if you have it .
      3- Prevent or manage high blood pressure .
      4- Prevent or treat high blood cholesterol and triglyceride levels .
      5- Exercise regularly (talk to your doctor about what type of exercise is right for you) .
      6- If you’re overweight, lose weight; maintain a healthy weight .
      7- Eat a heart-healthy diet .
      8- Take steps to reduce stress in your life, and learn how to manage stress .
      9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions .
      ------------------------------------------------------
      By : Kareem Blinder
      Reference : www.beaumont.org/conditions/silent-ischemia
      ---------------------------------------------------------------
      #coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا

    • @martinmatko6401
      @martinmatko6401 6 месяцев назад

      ​@@JenFindsGemsWhat is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters
      CCSVI is definitely one of the causes of MS.
      The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI:
      * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos)
      * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel
      * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction
      So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases.
      A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment.
      The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed).
      For information: Dr. Domenico Ricci cell.3393828399
      MRI IN MS VASCULAR PATHOLOGY
      www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
      This quantification of the disease pathology will help!
      #CCSVI
      Venous Hypertension
      >microbleedings
      >iron
      >inflammation
      >free radicals
      >neurodegeneration
      #multiplesclerosis
      M.S. - Mystery Solved
      Mysterious Autoimmunity
      = CCSVI Neurodegeneration
      M.S. - Mystery Solved
      Mysterious Autoimmunity
      = CCSVI Neurodegeneration
      Keep in mind!
      Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI
      Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated!
      If you hadn't noticed
      Who Knew??
      #BloodFlowMatters
      What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
      Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS
      Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
      #Healthcare game changer when the cause
      The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease.
      -THOMAS EDISON
      Best possiblity easing/eliminating cause of SymptoMS!
      You can relate!
      If your veins are blocked they should be opened if you have SymptoMS or not!
      MRI IN MS VASCULAR PATHOLOGY
      www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
      Who Knew??
      #BloodFlowMatters
      What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
      Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS!
      Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
      #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated!
      The doctor of the future will give no medicine, but will interest his patient in the care of the
      human frame, in diet and in the cause and prevention of disease.
      -THOMAS EDISON
      Best possiblity easing/eliminating cause of SymptoMS!
      You can relate!
      If your veins are blocked they should be opened if you have SymptoMS or not!
      A Vascular problem led to the crippling nightmare of Multiple Sclerosis
      The real Multiple Sclerosis nightmare started at the point of NeuroDx
      The disaster of diagnosis being made by general physical observation over time,.
      Especially when Time is something you can’t afford #CCSVI
      Multiple Sclerosis is strong and you often need help.
      Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪
      #Symptoms often ease/DISAPPEAR
      Facilitate Collaboration Neurovascular Disease Research! #CCSVI
      FB Group: MSS
      facebook.com/groups/4939355…!
      - Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍
      ---------------------------------------------------------------
      # The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ...
      # Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal.
      People who have diabetes or who have had a heart attack are most likely to develop silent ischemia ..
      ----------------------------------------------
      # Risk factors :
      - People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include :
      use
      1- Diabetes
      2- High blood cholesterol
      3- High blood pressure
      4- A family history of heart disease
      5- Age (after age 45 for men and age 55 for women, risk increases)
      6- A sedentary lifestyle
      7- Obesity
      8- Unmanaged stress
      --------------------------------------------
      # To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do :
      1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke .
      2- Prevent diabetes or manage it if you have it .
      3- Prevent or manage high blood pressure .
      4- Prevent or treat high blood cholesterol and triglyceride levels .
      5- Exercise regularly (talk to your doctor about what type of exercise is right for you) .
      6- If you’re overweight, lose weight; maintain a healthy weight .
      7- Eat a heart-healthy diet .
      8- Take steps to reduce stress in your life, and learn how to manage stress .
      9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions .
      ------------------------------------------------------
      By : Kareem Blinder
      Reference : www.beaumont.org/conditions/silent-ischemia
      ---------------------------------------------------------------
      #coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا

  • @thenerveofmyms
    @thenerveofmyms 4 месяца назад +3

    Thank you so much for sharing your story we need more black women sharing their story because MS effects a lot of us more than the community knows. I wish you well. Stay blessed 🙏🏾🥰

    • @JenFindsGems
      @JenFindsGems  Месяц назад

      I’m so happy that you’re here, thank you!! We’re MS sisters now and I’m happy that we can relate and share stories together. Praying for you Boo! 🫶🏾🧡✨

  • @juliemacias6156
    @juliemacias6156 5 месяцев назад +2

    I've suffered for decades without doctors taking Mr seriously. Finally, I have good doctors... though maybe too late. Otherwise, our stories are similar. Your video helps me cope.
    Thank you.

  • @kimstewart2281
    @kimstewart2281 9 месяцев назад +4

    Thank you for sharing 🙏🏼

  • @noblesiner
    @noblesiner 2 месяца назад +1

    You are incredible and your family is beautiful. I would say keep thriving but I already know you are. Thanks for inspiring me to do the same 💪

    • @JenFindsGems
      @JenFindsGems  2 месяца назад

      Your words have touched me-thank you so much! 🥹 Sending love and support your way, please continue taking great care of yourself! I hope to keep seeing you here! 🧡🧡✨✨

  • @michellelucas7985
    @michellelucas7985 9 месяцев назад +2

    Thank you for sharing. My daughter is 36. She was diagnosed in 2017.

    • @JenFindsGems
      @JenFindsGems  9 месяцев назад +1

      Hi Michelle, of course, thank you for watching! How is your daughter doing?

    • @michellelucas7985
      @michellelucas7985 9 месяцев назад +2

      @@JenFindsGems You're welcome. I went with her today to see her neurologist. She always refused to take medication or infusions. She's been using a cane off and on. She's finally giving it some thought. She has the relapsing MS.
      Praying for a cure.🙏

    • @JenFindsGems
      @JenFindsGems  8 месяцев назад +1

      @@michellelucas7985 I know that coming up with an action plan for treatment can be a difficult decision to make. I’m happy to hear that she is weighing her options and I’m praying that she has a pain free journey. Praying for a cure too. 🧡🧡

  • @ScoobyScoobyDo
    @ScoobyScoobyDo 3 месяца назад +2

    I hope you're doing well

    • @JenFindsGems
      @JenFindsGems  Месяц назад

      You’re so sweet, thank you! I posted an update video! How are you feeling?

  • @dejahr8181
    @dejahr8181 2 месяца назад +1

    I was diagnosed on Sep. 3rd and confirmed on 9th of this year. I think I’m still in shock.

    • @JenFindsGems
      @JenFindsGems  2 месяца назад +1

      Take all the time that you need to process and think of a plan from here. There is a whole community of people here ready to support you, and offer advice, resources and love. In my latest video, I talk about how life has been since my diagnosis and honestly, I’m doing a lot better than I thought I would be. Here if you have questions or just someone to talk to! 🧡✨

  • @ScoobyScoobyDo
    @ScoobyScoobyDo 3 месяца назад +4

    I was diagnosed this May 2024 I have so much anxiety. 😢

    • @JenFindsGems
      @JenFindsGems  Месяц назад

      I totally get that feeling, I was in shock and then…overwhelmed and anxious. How are you feeling now?

  • @MorangJames
    @MorangJames 9 месяцев назад +5

    My mom has MS and she’s had it for years now. She’s progressively gotten worse, now to the point where she cannot walk. She’s also afraid of man made medicine. All in all, we’ve changed her diet and seen some improvements, but ultimately I’m hoping to share “earthing” with her, hoping that the grounding (natural grounding) will help resolve some of those electrical impulses that she’s been having. We are naturally electrical beings, if you think about it. When a person grabs an electrical current, even with a pinch, the brain takes that electrical energy and transmits it as its own. So if you pinch and electrical current, you continue to pinch harder and harder… therefore, I’m hoping that earthing (natural grounding) will break the electrical impulses her brain is demanding of her body…. Long story short. I’ve been researching MS for years and stumbled across your video looking up grounding/earthing benefits and MS. I look up health advice for her nearly everyday, with anything from herbs to diets… I haven’t yet researched grounding yet with her, I’ve just ordered a grounding mat today, but watch Tyrone’s video on grounding benefits MS.

    • @MorangJames
      @MorangJames 9 месяцев назад

      Earthing Grounding helps MS and more by Tyrone Magnus

    • @JenFindsGems
      @JenFindsGems  9 месяцев назад +2

      Thank you so much for sharing this James, this is the first that I’ve heard of using grounding techniques for MS healing! I will definitely be checking out his videos, thank you again and sending lots of love and prayers for your Mom!

  • @SpencersMSStory
    @SpencersMSStory 7 месяцев назад +5

    Hang in there! I know many of those symptoms all too well. Not fun! I hope things get better real soon

    • @JenFindsGems
      @JenFindsGems  6 месяцев назад

      Hi Spencer! Your words of encouragement mean so much, thank you!! I hope that you’re taking care too- How are you feeling these days?

    • @metaspencer
      @metaspencer 6 месяцев назад

      @@JenFindsGems Yeah I'm still stable and doing great 9 years after being diagnosed ... what a wild ride MS can be :)

    • @JenFindsGems
      @JenFindsGems  6 месяцев назад

      @metaspencer that’s so good to hear! Praying for a smooth road ahead, it’s so awesome that you are sharing your experiences!

  • @TheMarie0213
    @TheMarie0213 6 месяцев назад +1

    Hi Jennifer 👋 I was diagnosed with MS at the end of 2021. I started Ovrevus on last year and it has been ok so far no side affects. I have lesions on my brain and spine.

    • @JenFindsGems
      @JenFindsGems  6 месяцев назад

      My middle name is Marie! 🥰 I’m so happy that you’re doing well with no side effects from Ocrevus! How have you been feeling overall?

    • @TheMarie0213
      @TheMarie0213 6 месяцев назад

      Aww ☺️ I’ve been good I feel tired a lot. Legs feel heavy from time to time but besides that I’m pretty good

  • @rosieposie9564
    @rosieposie9564 6 месяцев назад +4

    I was only diagnosed a few months ago this year myself. I have both brain and spinal lesions. I am not on any medication at present but Ocrevus was recommended by the neurologist. I understand you not wanting to take this medication. There is a three fold increase in the rate of cancer in people on Ocrevus. There is also the risk of serious infections and PML. Like you, I am particularly worried about the spinal lesion thing. I will have to go on some sort of medication soon I think, even as I type this I am getting consistent stabbing sensations in my arm and legs, it must be related to the wheat pasta I have been eating. It has all been quite overwhelming.

    • @dianataylor8311
      @dianataylor8311 6 месяцев назад +1

      Definitely get on a therapy very important. Now, with any medications, you are monitored closely. I'm 28yrs on this roller-coaster ride and going strong. You got this warrior

    • @JenFindsGems
      @JenFindsGems  5 месяцев назад

      Hi Rosie, I’m so sorry you’re going through this. I understand your feelings of overwhelm, a new diagnosis is scary. How are you feeling now? Have you decided to start a treatment plan or self manage? I must say that I respect your decision and concerns either way and I have straddled both sides- I still do. Of course I am not a professional but my MS specialist did caution me about the risk of “doing nothing”. Did your neurologist have any suggestions for ways to relieve the pain/ discomfort in the meantime and alternatives if you decide against Ocrevus? I have been okay since starting, and while the tingling is still there, I am hopeful that the slow of progression is working. I’ll be posting an update video soon and after I receive my next MRI, I’ll be sharing those results too. When I agreed to start Ocrevus, I was scheduled to have an appointment with someone from their team and they shared a presentation on how it works, what to expect, possible side effects, etc. I brought lots of questions to the table, one of which was the cancer concern. I forgot their exact explanation but I think it was something along the lines of the patients in the study were already at risk due to their age, genetics, etc but because it showed up, they had to include it in the findings of the study. Hopefully you have the opportunity to meet with someone from the O team to ask the questions that you have too. I will be posting a video replying too but didn’t want more time to pass before I replied. Here if you have any questions or need support and like Diana said, you are not alone!

    • @rosieposie9564
      @rosieposie9564 5 месяцев назад

      @@JenFindsGems Hi Jen, great to see you around here and I hope you are doing very well. I am gradually adjusting to the diagnosis. Some days are better than others. My neurologist is an MS specialist but he is rather old and I am not sure to what extent that affects his advice. He thinks I have had MS (undiagnosed) for some years now and he thinks that it seems 'stable' despite the massive relapse that led to the eventual diagnosis. I am already vegetarian (almost vegan) but he suggested healthy eating, vitamin d, exercise including weight training (I now have a physiotherapist) and stress management.
      Even though he mentioned the Ocrevus as an option, he really was not pushing it which is rather different from the more aggressive treatment approach recommended by the much younger neurologist who first saw me. For the time being the plan is that I will have more frequent than normal MRIs and monitoring. I am on medication for the neuropathy and I will have another MRI in a few weeks to see what is going on with the lesions. I am really pleased that the Ocrevus is not causing you any unpleasant effects. I will look more closely at how these Ocrevus research studies were conducted because I am really not sure that being without treatment is very wise. Please do an updated video soon and all the best.

    • @deborahjandle1207
      @deborahjandle1207 2 месяца назад

      Me 2

  • @ReelHugs
    @ReelHugs 5 месяцев назад

    Thank you so much for sharing 🙏🏾💛

  • @DeeDauredding
    @DeeDauredding 5 месяцев назад +2

    Hi I just seen your video I am very new to having MS I have my second MRI tomorrow, I'm scared I don't like them at all. But in your video you said you wad having joults in your side and then numbness that's how mine stared and always asked if anyone ever felt that. Also do you have any tips on feeling more comfortable in the MRI.. thank you for sharing sending you prayers 🙏🏼

    • @JenFindsGems
      @JenFindsGems  5 месяцев назад +1

      Hi Dee, thank you for sending prayers, you’re such a sweetheart. I’m so sorry that you’re going through this and I want you to know that regardless of the outcome, you are not alone! Getting officially diagnosed was overwhelming but my life has changed so much for the better since then. I’ll be sharing an update video soon. :) Just know that with a few lifestyle changes and a treatment plan, you can still live a beautiful, quality life- a diagnosis is not a death sentence. As far as your MRI, you are going to do great! Try to relax and stay as still as possible and it will be over before you know it. Don’t let the loud noise of the machine scare you, try to zone out and listen to the music they play in your headphones. You’ve got this!! I’m here if you have any questions or need any support and in the meantime, check out this video I posted on how to prepare for an MRI: www.tiktok.com/t/ZTL7f2cwh/
      Sending you love and praying for you too!

  • @Lovewar27
    @Lovewar27 3 месяца назад +3

    It’s the fact that they take years to diagnosis us but want us to start medication immediately once finding out .

    • @JenFindsGems
      @JenFindsGems  2 месяца назад

      This! This is the comment! I wish I could pin this 100 times!! 🙌🏾

  • @feystrange
    @feystrange 6 месяцев назад

    Great video! Thanks for sharing very helpful

    • @JenFindsGems
      @JenFindsGems  5 месяцев назад

      I’m so happy that it helped! Thank YOU for watching! 🧡

  • @BernadetteDevlin-l6w
    @BernadetteDevlin-l6w 5 месяцев назад

    I would really like to know off your first symptoms were as I’m seeing a neurologist he’s doing a muscle biopsy .. you are a beautiful lady 🙏🏻🙏🏻❤️❤️😘😘

  • @baronghede2365
    @baronghede2365 18 дней назад

    Look into lion's mane mushroom as well.

  • @Flytv345
    @Flytv345 Месяц назад

    I was diagnosed with TM, am still waiting on my spinal tap results

    • @JenFindsGems
      @JenFindsGems  Месяц назад

      I remember the waiting period being the hardest. Please check in with yourself and do something that makes you happy to bring yourself peace during this time. Here if you need to talk. 🫶🏾

  • @martinmatko6401
    @martinmatko6401 6 месяцев назад

    What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters
    CCSVI is definitely one of the causes of MS.
    The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI:
    * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos)
    * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel
    * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction
    So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases.
    A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment.
    The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed).
    For information: Dr. Domenico Ricci cell.3393828399
    MRI IN MS VASCULAR PATHOLOGY
    www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
    This quantification of the disease pathology will help!
    #CCSVI
    Venous Hypertension
    >microbleedings
    >iron
    >inflammation
    >free radicals
    >neurodegeneration
    #multiplesclerosis
    M.S. - Mystery Solved
    Mysterious Autoimmunity
    = CCSVI Neurodegeneration
    M.S. - Mystery Solved
    Mysterious Autoimmunity
    = CCSVI Neurodegeneration
    Keep in mind!
    Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI
    Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated!
    If you hadn't noticed
    Who Knew??
    #BloodFlowMatters
    What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
    Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS
    Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
    #Healthcare game changer when the cause
    The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease.
    -THOMAS EDISON
    Best possiblity easing/eliminating cause of SymptoMS!
    You can relate!
    If your veins are blocked they should be opened if you have SymptoMS or not!
    MRI IN MS VASCULAR PATHOLOGY
    www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0
    Who Knew??
    #BloodFlowMatters
    What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters
    Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS!
    Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI
    #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated!
    The doctor of the future will give no medicine, but will interest his patient in the care of the
    human frame, in diet and in the cause and prevention of disease.
    -THOMAS EDISON
    Best possiblity easing/eliminating cause of SymptoMS!
    You can relate!
    If your veins are blocked they should be opened if you have SymptoMS or not!
    A Vascular problem led to the crippling nightmare of Multiple Sclerosis
    The real Multiple Sclerosis nightmare started at the point of NeuroDx
    The disaster of diagnosis being made by general physical observation over time,.
    Especially when Time is something you can’t afford #CCSVI
    Multiple Sclerosis is strong and you often need help.
    Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪
    #Symptoms often ease/DISAPPEAR
    Facilitate Collaboration Neurovascular Disease Research! #CCSVI
    FB Group: MSS
    facebook.com/groups/4939355…!
    - Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍
    ---------------------------------------------------------------
    # The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ...
    # Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal.
    People who have diabetes or who have had a heart attack are most likely to develop silent ischemia ..
    ----------------------------------------------
    # Risk factors :
    - People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include :
    use
    1- Diabetes
    2- High blood cholesterol
    3- High blood pressure
    4- A family history of heart disease
    5- Age (after age 45 for men and age 55 for women, risk increases)
    6- A sedentary lifestyle
    7- Obesity
    8- Unmanaged stress
    --------------------------------------------
    # To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do :
    1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke .
    2- Prevent diabetes or manage it if you have it .
    3- Prevent or manage high blood pressure .
    4- Prevent or treat high blood cholesterol and triglyceride levels .
    5- Exercise regularly (talk to your doctor about what type of exercise is right for you) .
    6- If you’re overweight, lose weight; maintain a healthy weight .
    7- Eat a heart-healthy diet .
    8- Take steps to reduce stress in your life, and learn how to manage stress .
    9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions .
    ------------------------------------------------------
    By : Kareem Blinder
    Reference : www.beaumont.org/conditions/silent-ischemia
    ---------------------------------------------------------------
    #coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا

    • @JenFindsGems
      @JenFindsGems  5 месяцев назад

      Thank you for sharing! I’ll have to dissect this and circle back!

  • @tasteechickenleg
    @tasteechickenleg 8 месяцев назад

    Hey Jen! I’ve had multiple on and off issues that I haven’t been able to find a reason for that makes sense. I had an MRI of the brain which was basically clear, and figured since many of my symptoms seem brain related, MS wouldn’t be likely. Where on your spine did you find lesions?

    • @JenFindsGems
      @JenFindsGems  8 месяцев назад

      I’m so sorry that you’re suffering! I started to feel jolts and then tingling and numbness on my left side (side of my abdomen), kind of in between my breasts and my hips. I believe my Primary Doctor said this was close to the T12 vertebrae which triggered them to do a thorastic spine MRI. Is there a way you can have your medical team run an MRI of your spine as well? Ironically, my brain MRI can back “normal” and it wasn’t until I mentioned the jolts to my neurologist that he started to grow concerned and mentioned MS. Hopefully you find answers and start to feel better soon!

    • @tasteechickenleg
      @tasteechickenleg 8 месяцев назад

      The only place that hasn’t been checked is the thoracic spine. Initially thought I had a left shoulder injury, then neck, now left leg as well. Was supposed to see a neurologist, but the appt got pushed back till April. Thanks for being open and for your willingness to help out! I hope your treatment gives you the best possible outcome

    • @JenFindsGems
      @JenFindsGems  8 месяцев назад

      @@tasteechickenleg thank you so much! I’m praying that you get answers in April and hopefully you’re not in too much pain in the meantime. You’re so strong for being an advocate for yourself and following your intuition, I love this for you. 🥹🫶🏾

  • @MM-qp4pd
    @MM-qp4pd 5 месяцев назад

    Do you use or increase melatonin. I heard it helps REmyelination of myelin . Feel better,,,

  • @DaniiGiRRRl
    @DaniiGiRRRl 6 месяцев назад

    Thank you

  • @baronghede2365
    @baronghede2365 18 дней назад

    Try the Mediterranean diet, use Herb's like turmeric, ginger and Asian ginseng and speak to a chiropractor.

  • @angieking8868
    @angieking8868 4 месяца назад

    Look up Dr Sean O’mara

  • @MSChelleRx24
    @MSChelleRx24 3 месяца назад

    Hello Jennifer. I have had Multiple Sclerosis (23 years) AND I'm a practicing pharmacist . I understand you and I would like to invite you to my new RUclips channel so we can do this together.

    • @JenFindsGems
      @JenFindsGems  2 месяца назад

      It’s so nice to meet you! Absolutely, we need more people that look like us having these conversations! ❤️

  • @angc1456
    @angc1456 2 месяца назад +2

    we need vitamin d!

    • @JenFindsGems
      @JenFindsGems  2 месяца назад

      Absolutely!! I started taking vitamin d drops and gummies but I may need to move to prescription strength soon!

  • @Ane127
    @Ane127 6 месяцев назад

    Just get a homeopath.

    • @JenFindsGems
      @JenFindsGems  5 месяцев назад

      I may need to look into this!!

    • @Ane127
      @Ane127 5 месяцев назад

      @@JenFindsGems If you do so, you will be more than fine. Can’t say more because censorship.