Thank you so much for the love and support, friends. Comment below and let me know how you’re feeling today! 🧡 Here’s a post- diagnosis update for you: Multiple Sclerosis Symptoms : Physical, Mental and Emotional Changes I've Noticed ruclips.net/video/rKHxohb9Oek/видео.html
Thank you so much for sharing your story. You will help alot of people. I'm sending you blessings and healing hugs from Ireland. My heart goes out to you Xx
Hi Nicola, of course- thank YOU for watching. I had so many questions and wanted to see more people that look like me in this space, I knew I had to share! 🫶🏾🫶🏾
Would have loved to have heard the rest of your narration of symptoms 😊 from your blog of symptoms. I’m confused though…. How on gods great earth, did a stay in a hospital and multiple doctors, did they miss MS? Did your brain not have lesions?
Aww thank you!! That’s what I’m saying! I remember having an EKG and a few other random tests but not an MRI. I’ll have to check with my neurologist again when I go this summer to confirm if I have any lesions on my brain. When I was diagnosed last year, the focus was on my spine because that’s where I was having the jolts/attacks. If I’m remembering correctly, I haven’t had a brain MRI in a few years.
@@JenFindsGems I'm still waiting for the second MRI.. this testing stage seems to slow.. of course then there's the insurance approval process.. so I still don't have a official diagnosis of what this is for sure.. also for some reason my pain management doctor keeps upping things like lamictal for pain, Wellbutrin for smoking sensation and now Lexapro for stress.. of course there's other medicine but none of this is actually helpful because I am now just sedated.. sleeping more than 12 hours a day! All because of drug abusers they changed all my medications I was on in Kentucky after moving to New York.. neither concoctions was working but at least the concoctions from Kentucky didn't sedate me on this level.. I've not been very functional do to symptoms, medication and the sedation! I don't get this I'm even still fighting for SSD which keeps being denied every time.. left to deal with DSS and them wanting me to work with everything that is going on.. I can't! I'm disabled! DSS threatening to take food stamps at that! So starving me makes my disability go away..? Wow that's going to do a lot of good! This country would rather kill disabled people than give us money to survive! Not like SSD we pay for anything more than just barely survive.. funny how the government and government offices make up rules to keep us way beneath their own and having trouble paying their own bills but us being able to pay all our own bills, not have a car go to repossession, DSS not covering all the rent as well as the addition bills.. electric, gas, sewer, water, ECT. .. when I need SSD to do those things! Sorry I'm really upset with all of this.. I get why so many choose suicide when it comes to any kind of chronic pain so unbearable.. but me doctors basically keep me sedated because my stress is so bad they said it's not good for me.. so I have doctors trying to keep me alive and everything government wishing I'd just die or go away.. oh and starve the disability away!! Riiighttt!!!
I’m in the process of figuring out what is wrong with me. I was diagnosed with vertigo back in 2007. 3 years ago I found out it’s not vertigo because my vision goes black and white. I can’t see anything. Right now all my results are coming back normal.
@@JenFindsGems I had an MRI it came back normal. I had blood work but my doctor thinks it my heart. I just started having a hard time breathing. Am not sure what is going on. They are all passing the buck. I had to demand a different neurologist because he wasn’t listening and only spent 20 minutes for the first consult. My biggest struggle is no one is listening or believing I have these things.
@@desireeandrews6710 Wow, that’s the frustrating part about being a woman in the healthcare system, it’s so hard to find a supportive team of professionals that takes your concerns seriously. You are doing the right thing- stay persistent and keep advocating for yourself until you have answers! I hope you feel better very soon and please please take care of yourself as you’re going through this journey. I know how taxing it can be!
I'm so glad I found your videos. These last past 7 months have been awful for me. I've also been diagnosed with vertigo every since I was a little girl. I'm 36 now. A few years ago, I had all the same symptoms you mentioned. I was hospitalized for 6 days. Those 6 days every test you can think of was ran on me. Went home with ensures and was told to hydrate and take vitamins. A few years past and I started to feel amazing again until Mar. 18th of this year. My left arm went numb and was really heavy. My husband rushed me to the hospital, and they ran a stroke code, which came back negative. Did an MRI and blood work. They found Tarlov Cysts on my spine, which later after my symptoms changed, a Neurologist diagnosed me with FND. Functional Neurological Disorder. I was put on Klonopin 3 times a day and told to see a psychiatrist. After seeing a psychiatrist, I was told I should never have been diagnosed with FND without a full diagnosis. So went back to my primary physician and she mentioned autoimmune disease. She did a ANA test and my results came back positive. Thankfully, it isn't Lupus, but unfortunately more test will have to be ran. For 7 months I've been on a cane, I can no longer work out or work. I have blackouts and pains I can't even describe at times. My fatigue is so bad, I can crash anywhere. I hope to get answers soon. I pray that you get relief as well. You have such a beautiful spirit. Thank you for sharing this journey with us. A lot of us are so lost 😞
Thank you so much for the love and support, friends. Comment below and let me know how you’re feeling today! 🧡 Here’s a post- diagnosis update for you:
Multiple Sclerosis Symptoms : Physical, Mental and Emotional Changes I've Noticed
ruclips.net/video/rKHxohb9Oek/видео.html
I will be praying for you Jen❤
Thank you so much Jules!!
Blessings to you and your MS
Thank you so much MsT! Sending you love right back! 🫶🏾🫶🏾
Your voice is so soothing.
Thank you so much for sharing your story. You will help alot of people. I'm sending you blessings and healing hugs from Ireland. My heart goes out to you Xx
Omg all the way from Ireland? How is your weather today? Thank you so much for sending love and making my day! 🥰🥰
Thank you for sharing your stories
Hi Nicola, of course- thank YOU for watching. I had so many questions and wanted to see more people that look like me in this space, I knew I had to share! 🫶🏾🫶🏾
Would have loved to have heard the rest of your narration of symptoms 😊 from your blog of symptoms. I’m confused though…. How on gods great earth, did a stay in a hospital and multiple doctors, did they miss MS? Did your brain not have lesions?
Aww thank you!! That’s what I’m saying! I remember having an EKG and a few other random tests but not an MRI. I’ll have to check with my neurologist again when I go this summer to confirm if I have any lesions on my brain. When I was diagnosed last year, the focus was on my spine because that’s where I was having the jolts/attacks. If I’m remembering correctly, I haven’t had a brain MRI in a few years.
Do you use or increase melatonin. I heard it helps REmyelination of myelin . Feel better,,,
I have the same symptoms.. doctors check and testing for ms
So sorry I'm late in responding-- how are you feeling now? Sending you lots of love!
@@JenFindsGems I'm still waiting for the second MRI.. this testing stage seems to slow.. of course then there's the insurance approval process.. so I still don't have a official diagnosis of what this is for sure.. also for some reason my pain management doctor keeps upping things like lamictal for pain, Wellbutrin for smoking sensation and now Lexapro for stress.. of course there's other medicine but none of this is actually helpful because I am now just sedated.. sleeping more than 12 hours a day! All because of drug abusers they changed all my medications I was on in Kentucky after moving to New York.. neither concoctions was working but at least the concoctions from Kentucky didn't sedate me on this level.. I've not been very functional do to symptoms, medication and the sedation! I don't get this I'm even still fighting for SSD which keeps being denied every time.. left to deal with DSS and them wanting me to work with everything that is going on.. I can't! I'm disabled! DSS threatening to take food stamps at that! So starving me makes my disability go away..? Wow that's going to do a lot of good! This country would rather kill disabled people than give us money to survive! Not like SSD we pay for anything more than just barely survive.. funny how the government and government offices make up rules to keep us way beneath their own and having trouble paying their own bills but us being able to pay all our own bills, not have a car go to repossession, DSS not covering all the rent as well as the addition bills.. electric, gas, sewer, water, ECT. .. when I need SSD to do those things!
Sorry I'm really upset with all of this.. I get why so many choose suicide when it comes to any kind of chronic pain so unbearable.. but me doctors basically keep me sedated because my stress is so bad they said it's not good for me.. so I have doctors trying to keep me alive and everything government wishing I'd just die or go away.. oh and starve the disability away!! Riiighttt!!!
I’m in the process of figuring out what is wrong with me. I was diagnosed with vertigo back in 2007. 3 years ago I found out it’s not vertigo because my vision goes black and white. I can’t see anything. Right now all my results are coming back normal.
I’m so sorry this is happening!! Do you have a neurologist? Have you had MRIs or bloodwork done?
@@JenFindsGems I had an MRI it came back normal. I had blood work but my doctor thinks it my heart. I just started having a hard time breathing. Am not sure what is going on. They are all passing the buck. I had to demand a different neurologist because he wasn’t listening and only spent 20 minutes for the first consult. My biggest struggle is no one is listening or believing I have these things.
@@desireeandrews6710 Wow, that’s the frustrating part about being a woman in the healthcare system, it’s so hard to find a supportive team of professionals that takes your concerns seriously. You are doing the right thing- stay persistent and keep advocating for yourself until you have answers! I hope you feel better very soon and please please take care of yourself as you’re going through this journey. I know how taxing it can be!
I'm so glad I found your videos. These last past 7 months have been awful for me. I've also been diagnosed with vertigo every since I was a little girl. I'm 36 now. A few years ago, I had all the same symptoms you mentioned. I was hospitalized for 6 days. Those 6 days every test you can think of was ran on me. Went home with ensures and was told to hydrate and take vitamins. A few years past and I started to feel amazing again until Mar. 18th of this year. My left arm went numb and was really heavy. My husband rushed me to the hospital, and they ran a stroke code, which came back negative. Did an MRI and blood work. They found Tarlov Cysts on my spine, which later after my symptoms changed, a Neurologist diagnosed me with FND. Functional Neurological Disorder. I was put on Klonopin 3 times a day and told to see a psychiatrist. After seeing a psychiatrist, I was told I should never have been diagnosed with FND without a full diagnosis. So went back to my primary physician and she mentioned autoimmune disease. She did a ANA test and my results came back positive. Thankfully, it isn't Lupus, but unfortunately more test will have to be ran. For 7 months I've been on a cane, I can no longer work out or work. I have blackouts and pains I can't even describe at times. My fatigue is so bad, I can crash anywhere. I hope to get answers soon. I pray that you get relief as well. You have such a beautiful spirit. Thank you for sharing this journey with us. A lot of us are so lost 😞
❤