Isn't it a beautiful thing when a cardiologist is open and willing to consider and work with other health and healing modalities. A professional with his eyes open. Now that's care!
There is a difference between true professionals / real doctors vs typical arrogant uneducated people with medical degrees. This guy is a true doctor which is rare in the united states
@@mrscpc1918 Thanks for the info. Looking at trying CBD drops, however the online choice is mind-boggling. Have you found a particular type or strength that is effective?
@@moon_struck6573 Whatever CBD you might choose, be sure it's reliable and third party tested. CBDistillery's products are my personal recommendation.
I have been dealing with this waking in the night feeling WIRED but TIRED. I've just had a week of the best sleep I've had in half a year by this: I take 1000g of apple cider vinegar capsules at bedtime. It seems to control the blood sugar spike that was happening in the middle of my sleep. No more racing heart if I DO wake, go right back to sleep, and Dawn Effect happens at an appropriate hour. I hope this helps others. (Oops, forgot to say Thank You for this and so many other videos that have helped me immensely.)
Nothing drives anxiety like not being able to sleep knowing you have to work the next day. I am no stranger to Insomnia but just recently realized how much adrenaline plays a part...so much so that I have to be aware of what I read, watch on TV or the internet and what music I listen to before bed. Much more sensitive now than when I was younger.
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet.
I did the exact thing to elevate the head of my bed after having 4” blocks under the legs at the head of the frame. I could unroll it to make it less of an incline. I also put a piece of wood at the foot to prevent everything from sliding down. I had LPR from faulty upper and lower sphincters allowing pepsin vapours to travel beyond my upper esophagus. I have hEDS. I’ve had to do a number of things to manage my symptoms. Look up LPR as it’s not the same as GERD.
As a chronic fatigue patient who is connected to the community, we have tried everything and all we can agree on is that rest helps and that exercise makes us sick. During sleepless nights, if I meditate, in a cold, dark room with earbuds in for the full 8 hours, I feel just as refreshed as I normally am when I’m sleeping normally
I've noticed when I exercise it causes a CFS attack but when I take it easy my energy builds up to a level of being able to go to the store but if I exercise by the next day I am down for a week.
I am so thankful you post these videos. I have m.e. fybro and suspected pots, after symptoms and sitting to standing test by the GP. My heart rate shot up over 30bpm and my blood pressure dropped low, the Gp was going to give me a propranolol prescription but cancelled it ashe said my blood pressure dropped so low it might be dangerous. 8 months later I had my cardio appointment which I thought was further told test I'd been referred to. This was one week ago. The Dr staredat me wnd said why are you here. Explained sit tostand test and allthe symptoms and suspected pots. What's pots he asked? Said pots is... then he looked at me and said what do you expect me to do? I'm not interested in any other symptoms except if you're dizzy? Are you dizzy? How dizzy? How often? I also said I have m.e. and as there is an overlap of symptoms my m.e. clinic are wondering how much is m.e.but could it also be pots and that there are treatments for pots. The reply Igot was, what's m.e. So I explained. He just stared at me and said what is your expectation. I said what do you mean? I thought I washaving a tilt test for pots. He them said I am not going to make you better. I am not interested in any ofthat or any other symptoms except dizziness. Your hearts healthy. This is a cardio hospital. I actually tried not to tear up, I'd waiting 8 months for this, being often bedbound, no life, unable to function. Unable to work, trying to stay positive. He then said why are you getting emotional. I was a mixture of upset and angry but sat silently, obviously visible I felt I was being gauged. He then suggested I have anxiety. Are you anxious? Do you get anxious a lot? At that point I said if you had spent 6 months mostly in bed,unable to parent your 9yr old child,watching your life and health go down the toilet, I think you would feel anxious. I am not suffering from anxiety. I am not depressed. I am a very strong woman who despite all this happening maintain a positive outlook and yes I am upset now because I have waited for 8 months to be told you are not interested in my condition. I think anybody would be upset don't you. He then said OK I will send you fora tilt test. And that was that. I felt so incredibly let down. It took 2 years of being told nothing was wrong with me before I even got a referral for m.e. I feel like I have to fight for help all the time it's just so disheartening. Soto hear you speak about patient care and empowering is just incredible and gives me great hope. I have just done the sleepstation referral. I'd not heard of it sothank you for your videos.
The seeming dysautonomia I had over the past year (successively worsening after an incident of heat stroke, then gastroparesis following tick bites and doxycycline, then covid) was so weird how it made adrenaline so terrifyingly toxic. Simple stimuli and thoughts that used to be pleasant for l me now became terrifying triggers of a runaway train of adrenaline, heart palpitations leading to panic attacks. Magnesium glycinate, coenzyme Q10, improved exercise and sleep helped me turn the corner. One amazingly powerful sleep aid I found, turned out to be this--to simply take a walk in the sunset.
I am doctor working at a cannabis Clinic in Auckland NZ and we often treat patients with Pots, sleep problems, pain etc. We do find that CBD + THC prescribed appropriately can be very beneficial for these patients . Understanding the endocannabinoid system can help with the understanding that medicinal cannabis can improve multiple symptoms and problems with a single plant. Mike Foster
Mike, is CBD alone enough ? I was taking some cannabis oil with THC in the US when I lived there and found it very helpful but I've since tried just cbd on it's own with no effect
CBD and THC both work on different receptors and have different functions but they work better together than separately...the so called entourage effect...so it is not surprising that CBD alone did not work for you. Having said that CBD alone can work for other individuals as we are all wired differently. I hope this helps.
LDN saved my life! I suffered with POTS & sleep disturbances for over 50 years. LDN & CBD have made such a difference in my life. Also drinking as much water as I can stand helps so much. Thank you for your wonderful videos!
Thank you dr. Gupta for your videos. As a POTS-patient myself I can hardly sleep as well. Still can’t but I started a low carb diet (sometimes Keto) and I must admit that after a week a noticed so much differents in my symptoms. 1. My brainfog got less. 2 . more energy. 3. More focus/concentration. 4. Lost weight easily 5. Blood marks looked so much better (healthy cholesterol ). 6. Blood pressure went down. I feel so much better that I do not focus so much on my lack of sleep. It’s worth to try and if you stick to the diet without carbs you ll notice the good result in a week. Best regard from Peter (Netherlands) and keep on going with your good work. Thank you.
I also went low carb and also many ppl with pots have hypoglycemia and so do I , and I noticed Almost instant results although I did not cut out healthy carbs in vegetables like most keto ppl do. I eat some potatoe and banana aba Ezekiel bread . Now my blood sugars at stable and lost the weight I wanted to . Diet also so important but like she says I still find starchy food at night helping me sleep . But instead of regular bread and cake like I used to eat I replaced with Whole Foods .
As a doctor and a person who suffered from long Covid for almost half a year (2022, 3 times vaccinated and a very “mild” case), unable to feel rested and feeling like I only work and sleep, Melatonin 2 mg every evening until I felt much better was a game changer. I didn’t have any problem to fall asleep anyway but I never felt rested before. I only needed to take Melatonin for two months until I almost forgot that I used to feel so tired. I was already taking Montelukast for my asthma and Levocetiricine for my allergies as well as Vitamin D for my overall health so those weren’t very different compared to before. Update, April 2023: Allmost all the symptoms are gone, only a slight reduction in the sense of smell and a slightly changed taste sense left. My cognitive function seems to be back to normal. I still take my Montelukast and Levocetiricine, which isn’t a chore because I have allergic asthma anyway. Vitamin D and K2 are my daily companion as well.
The thing that has helped me the most was taking care of the true underlying causes of my POTS (not just taking care of the symptoms like drinking liquid IV etc which does help). The underlying cause for me was trauma and post viral illness: so inflammation and autonomic nervous system completely out of whack. For the inflammation I went vegetarian and take things that help with inflammation. I also drink celery juice. For the trauma and shot nervous system, shot adrenal function: I take a tincture that helps calm me down, adrenal support natural supplements (both given by my doctor). I take cold showers or do cold exposure. Meditation and somatic therapy which gets the stuck trauma out of your body through movement I stopped fainting since doing all of the above. My heart rate is now in the 65-85 range with only rare occasions when it goes to maybe 125. Before it was almost always at 130-180, blood pressure was painfully low and I always fainted. I hope more doctors help with peoples underlying causes rather than here is some medication or a drink to help with the symptoms. POTS is an awful thing to navigate life with and for so many years I felt awful. I hope everyone gets the help they deserve and truly need
Thanks for the useful info. Glad to read you have found a way forward. I'd like to try cold water swimming. The tincture and adrenal support natural supplements sound good - where to find a doc in UK who specialises and prescribes such remedies is not easy.
@@moon_struck6573 I definitely can understand that, if you can try and find a good naturopath. Not sure if they have naturopaths in England but I’m in the US and have found one here and also I go to Canada 🇨🇦
@@KTB77777 Thanks for the tips, will try. Woke up at c.4am with the room flying round, heart pounding - terrifying. Not sure what it was, maybe a form of vertigo migraine, years ago had it a couple of times before but when awake - felt rough all day. For some us, trying to maintain health can be so challenging.
@@moon_struck6573 i’m so sorry that you’re having those rude awakenings. That was some of my issue and waking up sometimes more than once in the night time. I don’t know if it’s a coincidence or if the fact that I started blood flow restriction therapy while I’m working out… My husband had a serious leg injury and a lot of dudes in the military like him have used that method and had great results. My husband didn’t lose his sixpack and his leg did not atrophy when it was in a cast due to the blood flow restriction. Again, I am not sure if it’s a coincidence or not, but I started the blood flow restriction therapy as well as the celery juice and my high blood pressure and all of those other weird issues seem to have resolved. I don’t take any medication for these things either which is a miracle. I liked with someone said above about your vitamins. I take magnesium at night and that has also assisted me. I am in the Pacific Northwest where it’s dark most of the time during the winter and it is imperative to take your multivitamins with the D3. Sunlight is so important LOL. Eating right and making sure that you get your probiotics daily help as well. I wish you great health and I’m so sorry that you’re struggling at night.. when I wake in the middle of the night I believe it’s the Lord telling me I need to pray for someone that is struggling on the other side of the world where it is daytime. 🙏🙏♥️♥️♥️
I've had POTS and sleep problems for over thirty years. To fall asleep I have to self hypnotise by slowly praying a Rosary (or counting backwards from twenty repeatedly) and paying attention to breathing rhythmically. Praying the Rosary in Latin works best for me! Thank you for all your videos.
I’ve started looking at your video’s again recently and I’m even more impressed. You’re so right in your intro. ‘Anecdotal evidence’ is generally unreasonably pooh-poohed and most people don’t realise how dubious the findings of some of the more ‘evidence based’ research actually are. I feel you’re acknowledging that without generalising, which I think is great! You’re doing fantastic work by providing your knowledge and insights with your videos for free. I have certainly benefited from your presentations and I’m confident most people following you have! 🙏🙏🙏
I just discovered you Doctor! Thank you because you exist! I am from România , But I live in USA, for 31 years. I have 67 years , and all the Women’s from my family had some form of heart disease. I have palpitations, all kind of them, but when I am listening to you , you are my therapist, plus you inform me so much! Thank you
Thank you so much for this site. Had a heart attack 6 months ago and had never heard of dysautomnia so have had 6 months of hell and panic attacks. It might seem 'out there' for some, but I get relief listening to 'Frequency music' (different htz) on You Tube at night for re-setting or stabilising the Vagus Nerve - or frequency music for stimulating the parasympathetic nervous system. Hope this helps someone else x
I had a cardiac episode where my troponin levels elevated to .26. It’s considered a mild heart attack. I had no heart damage. I was very stressed out and had panic attacks. I agree with frequency music. Chanting and humming helps with the vagus nerve too.
Good morning from Montreal dear Mr. Gupta, I'm always glad to see a new video from you, i have a heart condition and strongly think dysautonomia plays a part. I take my heart advice from a british like you and an american, Ford Brewer. I get my education from both of you as my cardiologist who is very nice and that i happen to like has no time or interest or maybe even complete knowledge to communicate to me what i consider important. Thank you very much for your dedicated humanitarianism in helping other humans often far away from you and sharing your precious time with us. This said i am sure it is very good for you to as a person. Have a very, hopefully dry , nice day in watery England. M.M.
I had long covid insomnia "wired but tired" as I saw someone write below. I hadn't smoked weed in over 2 months since i'd had covid and decided to give it a go again...best sleep in weeks and have not had any wired feelings in the middle of the night since. Been a month now and feeling more relaxed and no longer tired during the day. Thanks THC ;)
Thank you so much for collaborating with other medical approaches…. It is so needed and so very much appreciated… I find diet and supplements the most helpful approach for me. I have Hypermobility, PoTS, ADHD… and I have recently been diagnosed with SIBO and a parasite called B Hominis… going on the FODMAP diet improved not only my sleep and my energy, I got rid of persistent nausea and flatulence… I take among other things Magnesium, Vitamin D, CBD Oil, and supplements to improve my digestion and oils to get rid of the parasite. Also I find that pacing, sleep hygiene, Vagus nerve stimulation, earplugs and blackout mask are very helpful. And when I can’t sleep I meditate on a Psalm or scriptures in my heart as this takes my focus away from not sleeping and gives me such reassurance, peace and comfort, as my Lord and Shepherd is always with me…. God bless you all… 💞🙏🏼 xxx
Not exactly on topic but might help someone...Draining your legs before bed helps me, lay in bed with your legs up the wall while reading a book for fifteen minutes then go and pee. It has stopped me waking up for the three am pee.
Thanks very much for making this video! The suggestions and recommendations offered here may really be helpful to many people suffering from these conditions like Dysautonomia, POTS and Long Covid... I can only speak for myself really but I found your suggestions helpful particularly in terms of suffering from Long Covid/Dysutonomia Sleep Disturbance which has been going on for about 3 years now. Sleep Hygiene, Integrative Treatments like Acupuncture and also Herbal Supplements can really help as you mentioned. Thanks again for making and posting this particular video!
Thank you so much for these information videos ❤! If I take Mestinon too close to bedtime it makes me wired. Im using surgical tape on my mouth at night it has helped me so much - no toilet visits during the night. There is plenty of research done on this method! -Use only the nose for breathing - mouth should be closed whilst sleeping HRT makes a huge difference for women from age of 40 and onwards I use HRT and Melatonin, magnesium with b6 Lavender oil on my face chest and feet before bed I use the CALM app that have lots of sleep stories and meditations it’s fantastic when I wake up wired - I can put a sleep story on and just lay without getting stressed that I’m not sleeping and after a short while I drift of again. I have POTS, fibromyalgia, postcovid, hyper mobility syndrome , adhd, and I’m in menopause - that’s quite a challenge to say the least 😅
Thank you for your generosity in sharing this information. It gives me more options to take control of my health than from my actual doctor - ETA who is great but understandably not so deeply knowledgeable about dysautonomia.
As a lifelong insomniac who is now 70 yo suffering from long covid and CKD stage 5 on peritoneal dialysis, I currently take low-dose naltrexone (not sure of any benefits so far), slow-release melatonin 10 kg/night, and CBD oil blend "Comfortably Numb"and Ashwagandha to lower my high cortisol. TheCBD really helps to fall asleep, as does the ashwagandha, but it is very shallow sleep with numerous awakenings throughout the night resulting in maximum of only a few hours sleep if I am lucky - often none. Thank you for this video.
Amitriptyline has helped my sleep, headaches, depression, anxiety. Still feel the ectopic beats in the morning and still have dizziness on standing through day. I have woken to a pounding heart. Keeping a health journal to keep track of headaches and how i slept.
We need more research into sleep. I have paroxysmal Afib and I've noticed changes in my sleep like waking up at 3 or 4 am then not being able to go back to sleep several days in a row will precipitate an episode several days later.
@@terryaguirre8271 yes, I'm on Sotalol 2 X 160mg daily. I've found when an episode occurs I advance taking my meds by a few hours can help it resolve earlier.
Thanks, Dr. Gupta, for bringing in to this discussion, other possibilities for wellness. I too, have the rapid heat beat upon awakening. With a pace maker, and a diagnosis of afib, not sure what to do. I worry about taking blood thinners, but decided to take them, based on family history. Still trying to cut down on stress, and go to bed a little earlier to calm myself before sleeping. I don't get tired at night, but if I decide to watch something on RUclips, I go right to sleep. I have to laugh at that... more to come...
Lovely video. Personally I have found that acupuncture does seem to lower my heart rate and relax my nervous system in general, leading to improved sleep.
The lady’s point about sleep quality being impacted by over activity in the day so true. Counter intuitive but over tired = poor sleep for. But on other hand some physical activity during day helps. Will definitely try to pre bed banana routine! Many thanks Sanjay.
I think I have Sleep Apnea, and about to get sleep study done. I am so far being told by my doctor that he doesn't think it is Apnea, but my chronic sinusitis and allergies...but I am now taking Singulair and Cetirizine for those. I guess we'll see..won't we.
Thank you, Dr. Gupta for your blessed work! Recently learned lifelong and current breathing patterns contribute to all systems function, especiallythe ANS/PNS balance, vagal health ... recc. book: Breath by James Nestor, wonderful engaging read, learn value of and how to nose breathe, and trial mouth strips to train nighttime nose breathing, has changed sleep quality so very fast!
I recently started drinking a few ounces of electrolyte solution when I get up to go to the bathroom at night, instead of water. Doesn’t cause additional bathroom trips, and prevents the skin wrinkling of dehydration in the morning.
I found the following helped greatly with my Long Covid CFS/POTS - Thiamine TTFD 100mg, Benfothiamine 200mg, Activated B Complex (with Choline) EAA/BCAA 1 scoop twice a day in a litre of coconut water (for potassium) CoQ10 300mg twice a day, Magnesium threonate 400mg morning, Magnesium Glycinate 400mg nightly. I no longer get the dizzyness upon standing, HR is slightly elevated when standing still from resting 70 up to standing 90 but it’s so much better than when it was 120bpm plus. I can exercise again and 9mg of melatonin helps me get to sleep. In case of emergency I have clonazepam to keep the adrenaline surges under control.
Lemon Balm tea helps me to relax at night...yes magnesium is helpful. Also stop electronic devices a few hours before your bedtime...use blublockers eyewear to block the blue light...EMF I believe is really creating havoc to humans. And those "smart meters" that they have attached to homes are truly disturbing so don't have your bed against the wall where one is installed. So many things affecting the more sensitive humans...blessings to all.
Yes, I have definitely noticed that simple sugar snacks at night have helped me fall asleep. Sometimes, though, I still wake up with a start at times, and feel I need a second sugar snack to get back to sleep. Also Cannabis with THC is most helpful -even a bit in the middle of the night to go back to sleep.
For the past couple of days, my husband has set the alarm to wake me up in the middle of the night. My heart rate seems to be going up due to crashing BP. So he wakes me and I drink electrolytes, take 1 g salt pill, and take a few gulps of a protein shake. Then I repeat this when the alarm goes off in the morning. The alarm wakes me up before I naturally wake up and I think for some reason that helps too. I also get the adrenaline rush when I nap.o
That’s so interesting I just did this and set a alarm in middle night u Wokeup for few min to catch my breathe and drink and move abit the in morning I did feel bit better
@@Thelittleclipstore I recently found out I also have inappropriate sinus tachycardia. My doc prescribed me Corlanor. I also now wear thigh to waist high compression tights 20-30 mmhg and have about 7-10 g of salt per day. Now I don’t have to wake up in the middle of the night. I really like Trioral rehydration drink mix in the morning right when I wake up. Or course, talk to your doc before trying anything new, but this has really helped reduce my heart palpitations and low bp.
I was suffering from insomnia for so many years. I tried almost everything i find on google and medicinal research. Somewhere I read onion could help in go to sleep etc. unfortunately when i started keeping my food note i found that the eating onion was keeping me awake till late night. I stopped eating and it improved a bit. Then i remember my grandmother used to give us nutmug with water. I tried that and withing 3 to 4 days my sleep improved 80%. Then used reiki and I had absolutely good result and insomnia become a past.
@@marvenjeannis5914 Reiki is a healing process. It means spiritual life-force energy. When you connected to the energy of reiki during the treatment it gently flows through you initiating your body’s own natural ability to heal itself and re-balance. Reiki releases energy to blocked chakras and allows it to flow freely.
I've had ME for 28 years and for 3:years possibly POTS for a few hours in the morning and omg I so wish you were my doctor. I fall asleep quickly but cannot stay asleep. I have great sleep hygiene, no phone, nothing stimulating before bed, go to be at the same time; I can manage about 7-7.5 hours sleep but as you describe I wake up often according to my Fitbit and am aware of long spells awake. I read, stay relaxed and eventually I fall asleep again. I find a weighted blanket stops me being restless and a long wedge pillow helps with my standing up first thing in the morning.
I’m historically a mathematician and more recently biostatistician, until I was recently ”let go” by a large international agency. What you say sounds very familiar to a long Covid sufferer. In particular the reactive hypoglycaemia, which I more or less stumbled onto after discovering the enthusiasm of some cyclists for very high carbohydrate diets. My experience of cycling relied mostly on water and bars, but post Covid even a short hill was terrifying. Once I started shovelling down rice and bananas, I could ride up several hundred metres again. My suspicion is that this relates to the degradation of aerobic cell function with Covid, so consuming vast quantities of simple carbs seem to bypass this, at least for a day or two. This was traumatic after years working alongside nutritionists who waffled on about ”empty carbs” without looking at conversion efficiencies. Anyway, swinging between 11 hours and 2 hours sleep seems too familiar, as do the issues with fluid consuption, getting up several times in the night to pee, being wired and tired, and several other issues that my brain fog is hiding from me :-( Pooling of fluid in the gut and the lower limbs, for eg. All this while cycling 100+ km one day and not leaving the house a day later, which synchronises with a lower gut that expands or contracts. Have you looked at patients who monitor their blood glucose? This now seems esential for high level cycling and has overturned some of the received notions relating high sugars to insulin resistance... Regards, Graham
SARS-COV-2 is bioengineered to strategically target all body systems but since not everyone is the same and has stronger and weaker composition factors, the pre and post covid symptoms are different and similar at the same time. No virus in human history has caused nor had the capacity to cause the degree of damage that SARS-COV-2 has which SHOULD raise eyebrows as to it's TRUE origin.
Sublingual vit D drops have been the most useful to treat my POTS symptoms. To sleep, I use CBN in a tincture I make. Cbn is the sleep cannabinoid. Game changer!!!
I swear Dr. Gupta made this video for me.. 🤣🤣 Because for the first time in a good little while ive been having some problems sleeping over the last several nights. and thought to myself what's going on? And I just happened to open RUclips this morning and there he was doing a video about sleep. 👌👌👍
You mention that B blockers at night can drop the HR too low. I feel this may be a problem for me. My pre sleep HR on B blocker can be 48. What happens during sleep then? Occasionally I get woken with PAF. What’s the mechanism? Thank you 🙏
I find many people these days are speaking so quickly that i do not catch all the words. The young lady’s speech here sounds as if you have sped up the audio.
I think we automatically subconsciously feel doctors are very busy and unable to spend time talking to us. Statistics show, the average time spent with the doctor at visit is less than 9 minutes. My guess is she's exhibiting "pressured speech" because her doctor(s) spend very little time talking to her.😕 To be profitable, doctors have to double book and work fast.🤑
Good morning. I have POTS and Sever ME. Have been almost bed ridden for 10 years. For me the only thing that made a good lasting difference is being on a carnivore diet. The complete removal of all carbs and caffeine. With that other things like pacing help. Craniosacral can help. Not taking supplements. Either too much or not enough salt. When I was taking electrolytes for my pots I could not sleep. There is research on keto/ketovore/carnivore/lion diet. I'm now in the light in the day and get a few hours out of bed most days. There are some experts in those diets like Dr ken Berry MD, myzerocablife and mikela Peterson. Dr Berry wrote a book called lies my doctor told me full of medical myths around diet and covers the research its a great resource. He currently writing the proper human diet. I think you will find some really helpful information to help with your insomnia and patients. Thanks for the great question.
I find I can’t sleep at all but a few hours a night. I have insomnia & I sleep for a few hours then wake up and repeat all night. The thing is I can wake up and have no fatigue or tired or anything my sleep cycle is bizarre I wake up refreshed and not fatigued at all which is even more bizarre. I can get several hours of sleep off and on all night wake up and ready to go for 12 hours 😌 no problem
My phone and watching TV makes me wired but I feel addicted to the phone. I need to put it down way earlier before bed. I will try to be strict about it this week.
I wake up and begin sweating profusely . I gave up shopping because the horrible sweating is so embarrassing. My feet and hands get a burning sensation at night. The tachycardia is very unpredictable and has wakened me and was terrifying. I went to hospital a couple of times . But they just said I didn’t have a heart attack. So I dread sleep fearing it may happen again. I also drink water at night for dry mouth. Thank you Dr for So Much help and understanding.
I just listened to a podcast about thiamine deficiency causing pots, dysautonomia and much more. Burning hands and feet is a symptom. Also heart issues.
I've been diagnosed with Cardiogenic Dysautonomia. The past year has been hell. I passed out most times I've stood up. I've fractured my ankle, knee, and finger. I can fall asleep but can't stay asleep. I've been in the ICU 5 times with either extremely low or high blood pressure and heart rate. I've been defibrilated, and now have a pacemaker which has completely resolved the syncope upon standing. I still can't regulate my body temp, have GI issues, and horrible insomnia, Vtach at times. This is still a nightmare.
HERE'S A STORY FOR FOOD FOR THOUGHT: This sleep thing is something that I have understood very late in my undiagnosed POTS story (I'm 50 now and not able to work full-time anymore since my late 30s). My fundamental problem is that I could never feel insomnia. I cannot feel being tired. For three weeks I did when I stopped my betablockers in my late 30s, then it went back to the normal hyperactive thing. I'm likely to have the hyperadrenal type with a possible complication in my late 30s of autoimmune disease (my autoimmune markers were at the borderline but presented with bad enough hip joint pain that did subsume and started just being migratory small joint pains. At this point my skin tone started to change and has since gone back to normal, suggestive of pseudo-Addisons disease). I knew I was not sleeping. Ever. As a child it took me two hours to fall asleep. In my childhood I tried to stay quiet in order not to disturb others when I was awake at odd hours. At adulthood I avoided sleeping with men, because I knew I never could. Now that I think back, it often was that my body could not cope with their bodily heat, if they were the cuddling type. My heart rate would just be so elevated that I could not sleep because of that. My inability to manage my body temperature has been a major issue (I measured this at the point when I thought my problems were because of my low thyroid). At max the separation between rectal and armpit temperature was 2C degrees. Normal separation was above 1C. It was not very surprising because I had learnt as a child that armpit was not a thing to do, because it would always be 35.5-36.8 C, no matter how sick I was. On average I probably slept about 6-7 hours as a child. I had constipation at the age of 2-weeks and always after that. In addition, I have always had low red cell count since child and by now I've lost the little hair I ever had. When I finally was taken seriously (after I had started vomiting in my mid 40s -- before this I had gone through multiple Holter tests in two countries with the same benign tachycardia results over 15 years) the sleep test result was that I slept less than I thought. As in I thought I slept 6-7 hours but what I actually slept was less than that, because I was awake during the night without realising it. My life has been a story of being wired. At least for a decade in my early adulthood I remember sleep being about fluctuating between sleep and obsession (as in having to do this or that the next day). I worked as a manager in a global company and did two Ph.Ds. Probably all down to the stress hormones just not letting me rest. I developed perfect time manegement skills in order to allow me to sleep the best I could and was able to get rid of that obsessive thing about having things to do. Buut today I cannot sleep more the five hours without EXCERCISE. Just for reference: I also went through the full psychiatric testing that cleared me from any anxiety, depression or personality disorders that could have caused my behavior for other reasons. I'm a very secure person psychologically and was lucky to have the parents I have. *** OK, back to the sleep thing. My advice is this: I you are young and do not have EDS, do the max exercise you can without getting huge adverse effects. You know what that limit is. And go on a quasi-keto diet. I know the difference between a pizza and life is a difficult one, but it is a choice we have to make. And never forget that being half-comatose is also rest. Think of it as meditation just as long as your mind is not racing to plan for the next day. ***
Earthing sheet on my bed has improved quality of sleep but limited in aiding amount of sleep. Currently considering CBD oil. Àcupuncture has been helpful, Bach's remedies also helpful but so far nothing has solved insomnia outright. Can tolerate being bimodal but I am continually fatigued. Valuable discussion. Thankyou
I’ve been referred to sleep station and awaiting a care plan. Also taking a small dose of OTC Phenergan helps me sleep, but it can cause a bit of a hangover effect.
Hello m’dear and thank you. I have EHLERS-Danlos Syndrome and have steadfastly ignored advice from the NHS for many years. I was a nurse and midwife but had to retired. I have sleep very badly since aged 18.
Hey! Fellow EDS-er here. I struggle to sleep too! I also have inappropriate sinus tachycardia & a host of other illnesses. Just thought I'd say you aren't alone in the sleep front with EDS. It seems to be a common theme xx
I was told the same thing. That the hypoglycemia was reactive to too many carbs. I started eating more towards keto with lots of veggies and that has helped me a lot.
I have had that waking with an adrenaline rush -usually around 3am. It led to me dreading or feeling scared to go to sleep. I put it down to anxiety and found the DARE app which had info on palpitations from Dr Gupta. Which led me here. It is reassuring to find others also have this dilemma but that you don’t brush them off. It can feel like a living nightmare because you wonder what’s wrong, can’t find answers, can’t get answers so then Google and get more anxiety. Mine only happens at night so I wonder if it is to do with blood sugar somehow or napping during the day due to previous bad night’s sleep?
This is happening to me too. Last days I've been thinking it has to do with low blood pressure? Becouse it is even worst when I am on my periode. I waken up 10 times a hour of fast heartbeat and feeling I am fainting or throwing up. Sadly it has not happened when I have EGK on. They only say I have some SVES . But it is destroying my life for the last 3 years. Its hell. Torture. And the next they my heart is crazy all day.
@@Max-dd6ep A banana and electrolytes right before you go to sleep also help. I've started keeping a banana available on my nightstand that I can eat in the middle of the night in case I wake up. It contains potassium and is supposed to raise the blood pressure a little. I don't know yet if it's coincidence, but I think it helps. Will try zyrtek🙏 Also drinks at least 2 liters of water per day
Hi! Is there an update on your symptoms? For the past few weeks I’ve been waking up nightly sweaty and with rapid heart rate. It causes me to lay awake for a few hours until I fall back asleep. I’ve been prescribed a beta-blocker as needed. Haven’t been diagnosed yet but my provider thinks I may have pots. (I’ve also been dizzy throughout the day) I used to sleep so well! But not I’m up nightly, came looking for tips. I also need to get my b12 checked.
I had been eating a mostly low carb diet to lose weight & did lose 20 pounds. But had to add back some carbs, especially at night, or I'd wake at 2 AM and could not go back to sleep. Someone said it's because low insulin causes a spike in cortisol levels. Another medical professional said insulin is needed for production of various hormones that regulate sleep. I don't know, but if I don't eat a carb rich snack in the evening, I don't sleep well.
Good morning. I have now learned that that the older I get (I'm73 male) the adrenaline issue must be a reality. The moment I go to bed with a problem on my mind, the earlier I tend o wake up. And, thank you for your great concern on most issues.👍👍
I have a personal theory that my REM sleep cycle is one of my many Sympathetic Nervous System (SNS) triggers. When I wake up in the middle of the night or early morning sweating with tachycardia, nausea, etc, it is always during my REM sleep cycle when I am dreaming. It’s the same way my thoughts, daydreams can trigger my SNS during the day.
High doses of sublingual vit d have been wildly helpful for me to help control pots symptoms. In terms of sleep, the cannabinoid called cbn has been a game changer for me! I'm getting a full solid, restful 10+ hours of sleep every single night. 1st time in my life & I'm 49 years old. I used to get 2-5 hrs of sleep a night if I were lucky!
My sympathetic nervous system is upregulated due to complex regional pain syndrome and a spinal fluid leak. I lost the ability to sleep. I listen to yellow brick cinema. I try to soak in a hot bath. The only thing that works is tizanadine and clonidine. I have to take Lyrica too. I'm in agonizing pain. Why has the chemical composition of tizanidine changed?
Hi Dr Sanjay I always watch your yt vids. Helps me calm down from episodes of Mobitz1 as diagnosed by my EPS. I would love to know more about mobitz1 and your reassurance that im just fine and other people who need information about it. More power to you. Thank you in advance Dr Sanjay Gupta.
I find myself most alert between two or 3 AM. I heard that maybe there are some biological processes that are going on at that time like liver detox. Does anyone know if this is the case?
My POTS and fatigue is really bad. I can't work because I can only stand upright or sit up for 2 or 3 minutes and I have to lay back down. I take Beta blocker and magnesium before bed. I have sleeping problems. If I don't drink water throughout the night I get bad tremors and other symptoms in the morning. Also, I've been to a neurologist just last week and he yelled at me. Im scared to go to the cardiologist cuz I'm trying to come out of another relapse due to getting yelled at and what's going to happen next. Most doctors say it's in my head. The abuse is so sad, which makes it all worse.
Yes, some arrogant doctors (those either thinking that they have all the answers or none at all) can add on to your problem not solve them. You come out of their clinic with your problem exacerbated because they are not willing to work with yo on your journey. Finding the right medical personnel is key to your medical predicament.
Dear Beth have you had any further referrals? I live in the UK. Waited over 2 years to see a neurologist only to have her yell at me, with my son present and the 2nd visit she was just as short tempered then resigned. This caused me to go into a deep relapse. The second neurologist wasn’t convinced I had epilepsy which was a secondary complication to my original diagnosis. I have a very complicated medical history so I’m used to getting the occasional consultation with an arrogant physician. Please don’t give up or give in to patient bullying. Keep detailed records of your daily life. Record your sleep schedule, pain levels, triggers, diet, symptoms, good days, ( if any) bad days etc. Get statements signed or phone videos from friends or family. Go in armed with proper information and diary journals or record sheets which can be downloaded from CFE/ME websites, epilepsy websites and MS websites. This will also assist your anxiety levels as you can see for yourself you are NOT IMAGINING your difficult symptoms and syndromes. It is unforgivable that unfortunately there are people still employed in the medical profession with these attributes. I know of people who have literally jumped I’m front of a train or taken their lives in other ways due to these reactions from medical professionals. Please keep knocking on your doctors door until you can be referred to the correct specialist/specialists until a diagnosis is found and some type of treatment offered. After another 2 year wait, in January I was seen by the head of the pain management team. She looked at all my underwear chronic conditions, saw the word Fibromyalgia in my notes and a gleam of light shone from her eyes. I also asked her to assist me coming off oxycodone after being prescribed it after ischemia of the ilium. I had a heart attack ( my 3rd at age 65) and 6 hours later the rhesus consultant, was going to discharge me home as no beds during Covid but after listening to my sister, sent me for an urgent CT Scan discovered that 3 feet of my ilium had died operated and 3 days later woke up out of a coma. So much happened after that. But had my sister not insisted on the consultant investigation as she knows I never complain as an ex nurse, she inadvertently along with the team of specialist surgeons especially called in from their rest day on a Sunday at 1.40am saved my life. She was informed I had 2 cardiac arrests during surgery. I had asked to be resuscitated before I went to theatre having a discussion why with the brilliant young surgeon on the way to theatre why it would be necessary ( I’m the head of an orphaned disabled family ). To cut a long story short my insomnia increased dramatically. Unable to sleep more than 1 hour a night for the past 3 years, developed narcolepsy and seizure’s( no wonder?!) unless usually due to catching another viral bacterial infection my ME/Fibromyalgia kicked in ) then I could not stay out of bed for 3 to 5 days at a time living on shakes or liquid diet. The pain management doctor prescribed me Duloxetine at 60 mg which I take at 8 am. This has a direct affect on neuropathic pain receptors in the brain 🧠 apparently. Well the first 2 weeks I couldn’t keep awake I was like a zombie but my anxiety levels started to drop after 6 weeks and the last 2 weeks I set alarms on my clock to trigger my brain into thinking 10 pm is bedtime ( or I’d sit in my mobility chair either researching for hours or watching Netflix subtitled movies to retrain my lost memories abilities etc and let my brain know it was time to interrupt a 72 hour non sleeping adrenaline session. It’s working thanks be to God. Alarm ⏰ goes off every six hours instead of 4 hourly for my oxycodone. Cut out sugar free squash at night on my sisters advice, as I was getting up every hour to pass water for past 3 years so I have 1% milk or milkshake instead. It works! On a bad night I will watch RUclips Chinese subtitled ancient mythology films or my Sufi Shaykh’s video live lectures if my meditation doesn’t settle me or my pain levels are acute due to increased gradual activity as advised by my consultant. I have suffered with chronic perspiration for decades having to change bedding/ night wear every half and hour on bad nights. But now having starting to sleep for up to 4 hours I wake up saturated instead but after an hour the pain meds start to kick in and I’m able to once dried off again drift back to sleep which is a first for me. My circulation is poor so it’s difficult to maintain an even temperature at night having to wear bed socks even in summer or my feet are ice cold and go into severe cramps if I try leaving them off and this stops me sleeping as well. I was prescribed baclafon for my MS/ME muscle spasms at Barts hospital London by professor Pinching as it was the only treatment I was willing to try in 2000. As I was frightened of losing control taking them. But they changed my life at that time and I was able to continue working. The same neurologist who shouted and ranted at me took me off them as she decided they were causing all my symptoms, demanding I read the screen she turned round for me to see of the side affects ( I couldn’t read it as I was registered partially sited due to double white cataracts 😅) which made her even more angry 😤. I came off them immediately as she insisted and suffered the most terrible agonizing stiffening of my entire body I’ve ever had since before taking them. My family were just as distraught but I had faith she knew what she was doing. After being off them for over a year I still have the same symptoms I had when I was on them with additional ramipril as my BP went too high instead of her predicted low BP on postural readings. I digress ….. So I had thyrotoxicosis in February last year which took 4 months to discover as Covid had cut down on face to face consultations with my regular GP. I lost 35 pounds in a short period and felt I was slipping away. But 15 months on I’m down to half my dosage of levothyroxine, my angina is stabilizing, my chronic asthma coming under control, my SPO 2 reading are stabilizing at 97% from 82% on aversfec
Part 2. Stabilizing. I have been referred to a pain management psychologist seeing them May 2023 so everything is looking up at long last. Pray you are doing well and making some headway. It is wonderful we have such an caring cardiologist on RUclips so open compassionate and understanding. There are many RUclips videos by him that offer advice and support which have been very be beneficial to my recovery and understanding my conditions. Love and light to all Mehvish xxx
I've never had sleep issues until l fairly recently. What has been working for me, if I can't seem to get my mind to shut down is taking 25 mg of Trazadone. The pills I have are 50 but I found that was too much so I cut them in half.
If my partner is awake, I massage &scratch his back 10 min or so and I reap the benefit by then nodding out! I will get up and eat or drink and play my ukulele softly. Also lay on yoga mat and touch my face and ears then return to bed
I wake up to heart Pounding but already have low blood pressure ..does it work? As my heart rate already low ... could this be a mast cell response histimine or sugar response to waking up? Also l have to ask ANYONE HAVE VIBRATIONS IS THIS LYME?? HEARD TEST HAS TO BE ILADS TEST TO CONFIRM WHICH MOST DONT USE
I struggle with the same. Its hell😢 do you know if it is more when you are on your period? It is for me. And I feel like fainting or heart is pounding. And then I feel really sick the next day. Some time I wake up feeling I am going to wommit/throw up. Sorry for my english.
The Beta blocker helps so much to calm my heart, but sleep is a problem. Some nights I get only 2 hours. I tried melatonin, but it gave me terrible side effects. Melatonin rich foods (tart cherries, goji berries) didn’t help either. I had to stop taking the beta blocker. After several months now my heart started acting up again, because of stress. I don’t know what to do …
I had covid. It got into my thyroid. I got a very fast heart beat. The'drs' said it was arrythymia then afib. I had no thiamine in my blood. No iodine in my diet. Took supplements for both. Got terrible fatigue and high blood pressure. Took ginger for bp. Then took magnesium taureate. Works best at night. Bp normal for me now. Melatonin for sleep gave me headaches. So, going to gym works. Not perfect, took iron probiotic for the fatigue, I'm 90% better now. I hope this helps you.
@@yogiyogesh815 , i took the smallest dose recommended, I tried several times, but my brain reacted to it in a weird way. I supposeI am just very sensitive to this Hormon. I’m glad it works for you!!
For me what seems to work is to take iron and magnesium not long before going to bed, on the top of my usual 3mg melatonin. It has been only for 4 nights now but for the first time in years I didn't wake up with my heart pounding, high anxiety, knife-like pain in the chest.
I am a physician suffering from POTS and inappropriate sinus tachycardia. There are times when I just cannot sleep and other times when I sleep for days. I was Rx Modafinil 200mg without relief. I am going to ask for 400mg…we shall see.
I am in the same boat. I’ve found that hydroxyzine 25 and magnesium citrate 250 with (food to prevent diarrhea) are the best treatments to get sleep and reset. Caffeine and other stimulants can make the cardiac symptoms worse
I tried LDN with high hopes that it would stop the night time adrenaline surges. Not only did it not work for me, but it made my sleep worse. I'm back at the drawing board again.
I have pots i think. HR goes from low 70s to over 100 standing. When i lay down my HR can drop into the 50s and i get a feeling of anxiety and palatations. Maybe my body is trying to get my HR up by releasing adrenaline.
May be the trigger for disautonomia symptoms are ,,low temperature agglutinine,, Low temperature of perifereal blood, especially at sleep, theoretically,can increase blood viscousity by,,sludge,,at low temperature. A dropp of fresh blood agglutinate on a cold glass lamela If,,low temperature agglutinine,, exist at some patients.(at microscope erytrocyte aggregation like coin rolls can be seen)
I think a commit ly profit size thing like self stetheling where you want a baby so bad and you can’t get pregnant I think the same thing can happen with sleep I think sometimes wanting something too bad can be a horrible thing to kind of make things worse getting the mind off the focus of needing to sleep because they’re at a point where they need it I’m sure Not to mentally fixate on needing to sleep find other things to do that would create an induced sleepless sleepy sleepiness like activities that are calming and everything before bedtime far before bedtime staying away from certain stimulants good sleep hygiene like she said but also I notice like some people need to do more activity through the day tend to sleep at night too like exercise
My 22 y/o son has palpitations and gastric reflux since his 2nd covid injection. He’s seen a cardiologist and he doesn’t know if it Bigeminy or something else. His gastroenterologist says he has reflux but his gastroscope was NAD. The ENT said his oesophagus is inflamed which makes me thinks it’s an inflammatory response so I’ve got him on Phenerghan at night and Loratadine in the morn. It seems to ease his throat but he gets more palpitations from the antihistamine so is afraid to keep taking it. I don’t know what else to do to help him.
Found out Life Extensions, Neuro-Mag has Magnesium L Theronate, the only one that crosses the blood brain barrier, and it helped me with the frozen thoughts I had with the brain fog, 3 times a day with l-glutathione & NAC. Takes 3 weeks initially, but an added side effect from long hauler the weight gain, was I started a small weight loss.
Isn't it a beautiful thing when a cardiologist is open and willing to consider and work with other health and healing modalities. A professional with his eyes open. Now that's care!
There is a difference between true professionals / real doctors vs typical arrogant uneducated people with medical degrees. This guy is a true doctor which is rare in the united states
A medical doctor saying anecdotal information is important 🥲
@@SpectrumOfChange ❤
What I find most wonderful about you is your willingness to say other systems of healing have value. Because they definitely do.
I use CBD (patches and orally) and magnesium and turmeric and Chinese Gooseberry ( Amla )
@@mrscpc1918 Thanks for the info. Looking at trying CBD drops, however the online choice is mind-boggling. Have you found a particular type or strength that is effective?
Yes and that he is humble and says we don’t have all the answers!!! We want to work with you and look at research! Now this is a good doctor! ❤️
@@moon_struck6573 Whatever CBD you might choose, be sure it's reliable and third party tested. CBDistillery's products are my personal recommendation.
Drns is for ppl not a le to sleep. 😊
I have been dealing with this waking in the night feeling WIRED but TIRED. I've just had a week of the best sleep I've had in half a year by this: I take 1000g of apple cider vinegar capsules at bedtime. It seems to control the blood sugar spike that was happening in the middle of my sleep. No more racing heart if I DO wake, go right back to sleep, and Dawn Effect happens at an appropriate hour. I hope this helps others. (Oops, forgot to say Thank You for this and so many other videos that have helped me immensely.)
That's a really interesting idea!
Hi Patti Smithurs, Is it one (1) gram or one thousand (1000) gram ?
@@yogiyogesh815 Thats what i want to know too.
@@yogiyogesh815 A thousand grams is one kilogram, which is 2.2 pounds! So I guess Patti means 1000 mg, which is one gram.
@@kathleenward6268 noted with thanks ❤️
Nothing drives anxiety like not being able to sleep knowing you have to work the next day. I am no stranger to Insomnia but just recently realized how much adrenaline plays a part...so much so that I have to be aware of what I read, watch on TV or the internet and what music I listen to before bed. Much more sensitive now than when I was younger.
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet.
I did the exact thing to elevate the head of my bed after having 4”
blocks under the legs at the head of the frame. I could unroll it to make it less of an incline. I also put a piece of wood at the foot to prevent everything from sliding down. I had LPR from faulty upper and lower sphincters allowing pepsin vapours to travel beyond my upper esophagus. I have hEDS.
I’ve had to do a number of things to manage my symptoms. Look up LPR as it’s not the same as GERD.
Do you raise the head of the bed?
As a chronic fatigue patient who is connected to the community, we have tried everything and all we can agree on is that rest helps and that exercise makes us sick. During sleepless nights, if I meditate, in a cold, dark room with earbuds in for the full 8 hours, I feel just as refreshed as I normally am when I’m sleeping normally
I've noticed when I exercise it causes a CFS attack but when I take it easy my energy builds up to a level of being able to go to the store but if I exercise by the next day I am down for a week.
I am so thankful you post these videos. I have m.e. fybro and suspected pots, after symptoms and sitting to standing test by the GP. My heart rate shot up over 30bpm and my blood pressure dropped low, the Gp was going to give me a propranolol prescription but cancelled it ashe said my blood pressure dropped so low it might be dangerous. 8 months later I had my cardio appointment which I thought was further told test I'd been referred to. This was one week ago. The Dr staredat me wnd said why are you here. Explained sit tostand test and allthe symptoms and suspected pots. What's pots he asked? Said pots is... then he looked at me and said what do you expect me to do? I'm not interested in any other symptoms except if you're dizzy? Are you dizzy? How dizzy? How often? I also said I have m.e. and as there is an overlap of symptoms my m.e. clinic are wondering how much is m.e.but could it also be pots and that there are treatments for pots. The reply Igot was, what's m.e. So I explained. He just stared at me and said what is your expectation. I said what do you mean? I thought I washaving a tilt test for pots. He them said I am not going to make you better. I am not interested in any ofthat or any other symptoms except dizziness. Your hearts healthy. This is a cardio hospital. I actually tried not to tear up, I'd waiting 8 months for this, being often bedbound, no life, unable to function. Unable to work, trying to stay positive. He then said why are you getting emotional. I was a mixture of upset and angry but sat silently, obviously visible I felt I was being gauged. He then suggested I have anxiety. Are you anxious? Do you get anxious a lot? At that point I said if you had spent 6 months mostly in bed,unable to parent your 9yr old child,watching your life and health go down the toilet, I think you would feel anxious. I am not suffering from anxiety. I am not depressed. I am a very strong woman who despite all this happening maintain a positive outlook and yes I am upset now because I have waited for 8 months to be told you are not interested in my condition. I think anybody would be upset don't you. He then said OK I will send you fora tilt test. And that was that. I felt so incredibly let down. It took 2 years of being told nothing was wrong with me before I even got a referral for m.e. I feel like I have to fight for help all the time it's just so disheartening. Soto hear you speak about patient care and empowering is just incredible and gives me great hope. I have just done the sleepstation referral. I'd not heard of it sothank you for your videos.
The seeming dysautonomia I had over the past year (successively worsening after an incident of heat stroke, then gastroparesis following tick bites and doxycycline, then covid) was so weird how it made adrenaline so terrifyingly toxic. Simple stimuli and thoughts that used to be pleasant for l me now became terrifying triggers of a runaway train of adrenaline, heart palpitations leading to panic attacks. Magnesium glycinate, coenzyme Q10, improved exercise and sleep helped me turn the corner. One amazingly powerful sleep aid I found, turned out to be this--to simply take a walk in the sunset.
What did each supplement help you with?
I am doctor working at a cannabis Clinic in Auckland NZ and we often treat patients with Pots, sleep problems, pain etc. We do find that CBD + THC prescribed appropriately can be very beneficial for these patients . Understanding the endocannabinoid system can help with the understanding that medicinal cannabis can improve multiple symptoms and problems with a single plant. Mike Foster
I had a terrible experience with Delta 8.
Mike, is CBD alone enough ? I was taking some cannabis oil with THC in the US when I lived there and found it very helpful but I've since tried just cbd on it's own with no effect
@@pipgalea1376 CBDandTHC both work on d
CBD and THC both work on different receptors and have different functions but they work better together than separately...the so called entourage effect...so it is not surprising that CBD alone did not work for you. Having said that CBD alone can work for other individuals as we are all wired differently. I hope this helps.
@@mikefoster6169 thank you! I'm checking in with my Naturopath for this today. I need relief, thanks for this information
LDN saved my life! I suffered with POTS & sleep disturbances for over 50 years. LDN & CBD have made such a difference in my life. Also drinking as much water as I can stand helps so much. Thank you for your wonderful videos!
What is LDN?
@@micahclothier Low-dose naltrexone
how long did it take for the ldn to start helping you? and do you take it at night or in the day?
Where do you get it?
Snap, same with me
Thank you dr. Gupta for your videos. As a POTS-patient myself I can hardly sleep as well.
Still can’t but I started a low carb diet (sometimes Keto) and I must admit that after a week a noticed so much differents in my symptoms. 1. My brainfog got less. 2 . more energy. 3. More focus/concentration. 4. Lost weight easily 5. Blood marks looked so much better (healthy cholesterol ). 6. Blood pressure went down. I feel so much better that I do not focus so much on my lack of sleep. It’s worth to try and if you stick to the diet without carbs you ll notice the good result in a week. Best regard from Peter (Netherlands) and keep on going with your good work. Thank you.
I also went low carb and also many ppl with pots have hypoglycemia and so do I , and I noticed Almost instant results although I did not cut out healthy carbs in vegetables like most keto ppl do. I eat some potatoe and banana aba Ezekiel bread . Now my blood sugars at stable and lost the weight I wanted to . Diet also so important but like she says I still find starchy food at night helping me sleep . But instead of regular bread and cake like I used to eat I replaced with Whole Foods .
As a doctor and a person who suffered from long Covid for almost half a year (2022, 3 times vaccinated and a very “mild” case), unable to feel rested and feeling like I only work and sleep, Melatonin 2 mg every evening until I felt much better was a game changer. I didn’t have any problem to fall asleep anyway but I never felt rested before. I only needed to take Melatonin for two months until I almost forgot that I used to feel so tired.
I was already taking Montelukast for my asthma and Levocetiricine for my allergies as well as Vitamin D for my overall health so those weren’t very different compared to before.
Update, April 2023: Allmost all the symptoms are gone, only a slight reduction in the sense of smell and a slightly changed taste sense left. My cognitive function seems to be back to normal. I still take my Montelukast and Levocetiricine, which isn’t a chore because I have allergic asthma anyway. Vitamin D and K2 are my daily companion as well.
The thing that has helped me the most was taking care of the true underlying causes of my POTS (not just taking care of the symptoms like drinking liquid IV etc which does help). The underlying cause for me was trauma and post viral illness: so inflammation and autonomic nervous system completely out of whack. For the inflammation I went vegetarian and take things that help with inflammation. I also drink celery juice.
For the trauma and shot nervous system, shot adrenal function: I take a tincture that helps calm me down, adrenal support natural supplements (both given by my doctor). I take cold showers or do cold exposure. Meditation and somatic therapy which gets the stuck trauma out of your body through movement
I stopped fainting since doing all of the above. My heart rate is now in the 65-85 range with only rare occasions when it goes to maybe 125. Before it was almost always at 130-180, blood pressure was painfully low and I always fainted. I hope more doctors help with peoples underlying causes rather than here is some medication or a drink to help with the symptoms. POTS is an awful thing to navigate life with and for so many years I felt awful. I hope everyone gets the help they deserve and truly need
Thanks for the useful info. Glad to read you have found a way forward. I'd like to try cold water swimming. The tincture and adrenal support natural supplements sound good - where to find a doc in UK who specialises and prescribes such remedies is not easy.
@@moon_struck6573 I definitely can understand that, if you can try and find a good naturopath. Not sure if they have naturopaths in England but I’m in the US and have found one here and also I go to Canada 🇨🇦
The celery juice first thing in morning really helps. If I focus on diaphragmatic breathing through the day it helps a ton.
@@KTB77777 Thanks for the tips, will try. Woke up at c.4am with the room flying round, heart pounding - terrifying. Not sure what it was, maybe a form of vertigo migraine, years ago had it a couple of times before but when awake - felt rough all day. For some us, trying to maintain health can be so challenging.
@@moon_struck6573 i’m so sorry that you’re having those rude awakenings. That was some of my issue and waking up sometimes more than once in the night time.
I don’t know if it’s a coincidence or if the fact that I started blood flow restriction therapy while I’m working out… My husband had a serious leg injury and a lot of dudes in the military like him have used that method and had great results. My husband didn’t lose his sixpack and his leg did not atrophy when it was in a cast due to the blood flow restriction. Again, I am not sure if it’s a coincidence or not, but I started the blood flow restriction therapy as well as the celery juice and my high blood pressure and all of those other weird issues seem to have resolved.
I don’t take any medication for these things either which is a miracle. I liked with someone said above about your vitamins. I take magnesium at night and that has also assisted me. I am in the Pacific Northwest where it’s dark most of the time during the winter and it is imperative to take your multivitamins with the D3. Sunlight is so important LOL. Eating right and making sure that you get your probiotics daily help as well.
I wish you great health and I’m so sorry that you’re struggling at night.. when I wake in the middle of the night I believe it’s the Lord telling me I need to pray for someone that is struggling on the other side of the world where it is daytime. 🙏🙏♥️♥️♥️
I've had POTS and sleep problems for over thirty years. To fall asleep I have to self hypnotise by slowly praying a Rosary (or counting backwards from twenty repeatedly) and paying attention to breathing rhythmically. Praying the Rosary in Latin works best for me!
Thank you for all your videos.
Me too! 🙏❤️🙏please Pray a rosary for Dr. Guptas father, as he is in Kenya right now taking care of his father!
Praying the rosary--introduced to me by a dear, caring friend--has terminated stress/panic-triggered tachcardia for me three times.
I did the same. The rosary calmed me down.
Thank you for having me on :)
I absolutely love your knowledge and openness. Thank you for all you do 🙏
Remarkable doctor and human being much respect. You are absolutely right if it works for the patient who is to say anything against it…
I’ve started looking at your video’s again recently and I’m even more impressed. You’re so right in your intro. ‘Anecdotal evidence’ is generally unreasonably pooh-poohed and most people don’t realise how dubious the findings of some of the more ‘evidence based’ research actually are. I feel you’re acknowledging that without generalising, which I think is great! You’re doing fantastic work by providing your knowledge and insights with your videos for free. I have certainly benefited from your presentations and I’m confident most people following you have! 🙏🙏🙏
@thelegendarybastard - that's an excellent observation
I just discovered you Doctor!
Thank you because you exist!
I am from România , But I live in USA, for 31 years. I have 67 years , and all the Women’s from my family had some form of heart disease. I have palpitations, all kind of them, but when I am listening to you , you are my therapist, plus you inform me so much!
Thank you
Thank you so much for this site. Had a heart attack 6 months ago and had never heard of dysautomnia so have had 6 months of hell and panic attacks.
It might seem 'out there' for some, but I get relief listening to 'Frequency music' (different htz) on You Tube at night for re-setting or stabilising the Vagus Nerve - or frequency music for stimulating the parasympathetic nervous system.
Hope this helps someone else x
I had a cardiac episode where my troponin levels elevated to .26. It’s considered a mild heart attack. I had no heart damage. I was very stressed out and had panic attacks. I agree with frequency music. Chanting and humming helps with the vagus nerve too.
Good morning from Montreal dear Mr. Gupta, I'm always glad to see a new video from you, i have a heart condition and strongly think dysautonomia plays a part. I take my heart advice from a british like you and an american, Ford Brewer. I get my education from both of you as my cardiologist who is very nice and that i happen to like has no time or interest or maybe even complete knowledge to communicate to me what i consider important.
Thank you very much for your dedicated humanitarianism in helping other humans often far away from you and sharing your precious time with us. This said i am sure it is very good for you to as a person.
Have a very, hopefully dry , nice day in watery England. M.M.
I had long covid insomnia "wired but tired" as I saw someone write below. I hadn't smoked weed in over 2 months since i'd had covid and decided to give it a go again...best sleep in weeks and have not had any wired feelings in the middle of the night since. Been a month now and feeling more relaxed and no longer tired during the day. Thanks THC ;)
Thank you so much for collaborating with other medical approaches…. It is so needed and so very much appreciated…
I find diet and supplements the most helpful approach for me. I have Hypermobility, PoTS, ADHD… and I have recently been diagnosed with SIBO and a parasite called B Hominis… going on the FODMAP diet improved not only my sleep and my energy, I got rid of persistent nausea and flatulence… I take among other things Magnesium, Vitamin D, CBD Oil, and supplements to improve my digestion and oils to get rid of the parasite. Also I find that pacing, sleep hygiene, Vagus nerve stimulation, earplugs and blackout mask are very helpful. And when I can’t sleep I meditate on a Psalm or scriptures in my heart as this takes my focus away from not sleeping and gives me such reassurance, peace and comfort, as my Lord and Shepherd is always with me…. God bless you all… 💞🙏🏼 xxx
Love this guy so honest ❤❤❤❤
Not exactly on topic but might help someone...Draining your legs before bed helps me, lay in bed with your legs up the wall while reading a book for fifteen minutes then go and pee. It has stopped me waking up for the three am pee.
Magnesium Glycamate 400mg ,Fish Oil 1000mg bed time ..helps me with sound sleep ..9am to 4am..7hours .Night dinner 1egg n 1. Banana 2glass of water..
Thanks very much for making this video! The suggestions and recommendations offered here may really be helpful to many people suffering from these conditions like Dysautonomia, POTS and Long Covid... I can only speak for myself really but I found your suggestions helpful particularly in terms of suffering from Long Covid/Dysutonomia Sleep Disturbance which has been going on for about 3 years now. Sleep Hygiene, Integrative Treatments like Acupuncture and also Herbal Supplements can really help as you mentioned. Thanks again for making and posting this particular video!
Thank you so much for these information videos ❤!
If I take Mestinon too close to bedtime it makes me wired.
Im using surgical tape on my mouth at night it has helped me so much - no toilet visits during the night. There is plenty of research done on this method! -Use only the nose for breathing - mouth should be closed whilst sleeping
HRT makes a huge difference for women from age of 40 and onwards
I use HRT and Melatonin, magnesium with b6
Lavender oil on my face chest and feet before bed
I use the CALM app that have lots of sleep stories and meditations it’s fantastic when I wake up wired - I can put a sleep story on and just lay without getting stressed that I’m not sleeping and after a short while I drift of again.
I have POTS, fibromyalgia, postcovid, hyper mobility syndrome , adhd, and I’m in menopause - that’s quite a challenge to say the least 😅
Thank you for your generosity in sharing this information. It gives me more options to take control of my health than from my actual doctor - ETA who is great but understandably not so deeply knowledgeable about dysautonomia.
As a lifelong insomniac who is now 70 yo suffering from long covid and CKD stage 5 on peritoneal dialysis, I currently take low-dose naltrexone (not sure of any benefits so far), slow-release melatonin 10 kg/night, and CBD oil blend "Comfortably Numb"and Ashwagandha to lower my high cortisol. TheCBD really helps to fall asleep, as does the
ashwagandha, but it is very shallow sleep with numerous awakenings throughout the night resulting in maximum of only a few hours sleep if I am lucky - often none. Thank you for this video.
Amitriptyline has helped my sleep, headaches, depression, anxiety. Still feel the ectopic beats in the morning and still have dizziness on standing through day. I have woken to a pounding heart. Keeping a health journal to keep track of headaches and how i slept.
I’m on 25mg as well and I think it helps but also experience dizziness at times and pounding heart wakes me …
Jody, anything help with the pounding heart?
We need more research into sleep. I have paroxysmal Afib and I've noticed changes in my sleep like waking up at 3 or 4 am then not being able to go back to sleep several days in a row will precipitate an episode several days later.
I have the same problem.
Do you take meds?
@@terryaguirre8271 yes, I'm on Sotalol 2 X 160mg daily. I've found when an episode occurs I advance taking my meds by a few hours can help it resolve earlier.
Cold showers and Cold plunging were huge in my Long Covid dysautonomia journey!
Thanks, Dr. Gupta, for bringing in to this discussion, other possibilities for wellness. I too, have the rapid heat beat upon awakening. With a pace maker, and a diagnosis of afib, not sure what to do. I worry about taking blood thinners, but decided to take them, based on family history. Still trying to cut down on stress, and go to bed a little earlier to calm myself before sleeping. I don't get tired at night, but if I decide to watch something on RUclips, I go right to sleep. I have to laugh at that... more to come...
True - so true
@♜ Pinnedby York cardiology this is a scammer do not contact them!
Lovely video. Personally I have found that acupuncture does seem to lower my heart rate and relax my nervous system in general, leading to improved sleep.
@♜ Pinnedby York cardiology GO AWAY SCAMMER
The lady’s point about sleep quality being impacted by over activity in the day so true. Counter intuitive but over tired = poor sleep for. But on other hand some physical activity during day helps. Will definitely try to pre bed banana routine! Many thanks Sanjay.
I think I have Sleep Apnea, and about to get sleep study done. I am so far being told by my doctor that he doesn't think it is Apnea, but my chronic sinusitis and allergies...but I am now taking Singulair and Cetirizine for those. I guess we'll see..won't we.
Thank you, Dr. Gupta for your blessed work! Recently learned lifelong and current breathing patterns contribute to all systems function, especiallythe ANS/PNS balance, vagal health ... recc. book: Breath by James Nestor, wonderful engaging read, learn value of and how to nose breathe, and trial mouth strips to train nighttime nose breathing, has changed sleep quality so very fast!
I recently started drinking a few ounces of electrolyte solution when I get up to go to the bathroom at night, instead of water. Doesn’t cause additional bathroom trips, and prevents the skin wrinkling of dehydration in the morning.
I found the following helped greatly with my Long Covid CFS/POTS - Thiamine TTFD 100mg, Benfothiamine 200mg, Activated B Complex (with Choline) EAA/BCAA 1 scoop twice a day in a litre of coconut water (for potassium) CoQ10 300mg twice a day, Magnesium threonate 400mg morning, Magnesium Glycinate 400mg nightly. I no longer get the dizzyness upon standing, HR is slightly elevated when standing still from resting 70 up to standing 90 but it’s so much better than when it was 120bpm plus. I can exercise again and 9mg of melatonin helps me get to sleep. In case of emergency I have clonazepam to keep the adrenaline surges under control.
Lemon Balm tea helps me to relax at night...yes magnesium is helpful. Also stop electronic devices a few hours before your bedtime...use blublockers eyewear to block the blue light...EMF I believe is really creating havoc to humans. And those "smart meters" that they have attached to homes are truly disturbing so don't have your bed against the wall where one is installed. So many things affecting the more sensitive humans...blessings to all.
Such a clear listening voice and so much wise information ...Thank you .
Being open-minded to all options and feeling supported helps you to cope and have hope with any condition.
Before I was diagnosed with dysautonomia I was on clonidine for a while (psychiatrist had prescribed it for anxiety) and it seemed to help.
Yes, I have definitely noticed that simple sugar snacks at night have helped me fall asleep. Sometimes, though, I still wake up with a start at times, and feel I need a second sugar snack to get back to sleep.
Also Cannabis with THC is most helpful -even a bit in the middle of the night to go back to sleep.
Lovely Doctor
For the past couple of days, my husband has set the alarm to wake me up in the middle of the night. My heart rate seems to be going up due to crashing BP. So he wakes me and I drink electrolytes, take 1 g salt pill, and take a few gulps of a protein shake. Then I repeat this when the alarm goes off in the morning. The alarm wakes me up before I naturally wake up and I think for some reason that helps too. I also get the adrenaline rush when I nap.o
That’s so interesting I just did this and set a alarm in middle night u Wokeup for few min to catch my breathe and drink and move abit the in morning I did feel bit better
@@Thelittleclipstore I recently found out I also have inappropriate sinus tachycardia. My doc prescribed me Corlanor. I also now wear thigh to waist high compression tights 20-30 mmhg and have about 7-10 g of salt per day. Now I don’t have to wake up in the middle of the night. I really like Trioral rehydration drink mix in the morning right when I wake up. Or course, talk to your doc before trying anything new, but this has really helped reduce my heart palpitations and low bp.
I was suffering from insomnia for so many years. I tried almost everything i find on google and medicinal research. Somewhere I read onion could help in go to sleep etc. unfortunately when i started keeping my food note i found that the eating onion was keeping me awake till late night. I stopped eating and it improved a bit. Then i remember my grandmother used to give us nutmug with water. I tried that and withing 3 to 4 days my sleep improved 80%. Then used reiki and I had absolutely good result and insomnia become a past.
Use nutmeg in moderation.Google search about nutmeg and side effect.
@@Margaret-kw8rg yes, you right. For take it’s a half of the pinch. I make a paste of nutmug and use it on my forehead.
Good afternoon, what’s a ( reiki plz need to have an ldea ?
@@marvenjeannis5914 Reiki is a healing process. It means spiritual life-force energy. When you connected to the energy of reiki during the treatment it gently flows through you initiating your body’s own natural ability to heal itself and re-balance. Reiki releases energy to blocked chakras and allows it to flow freely.
Yes, warm milk with cardamom and nutmeg.
I've had ME for 28 years and for 3:years possibly POTS for a few hours in the morning and omg I so wish you were my doctor. I fall asleep quickly but cannot stay asleep. I have great sleep hygiene, no phone, nothing stimulating before bed, go to be at the same time; I can manage about 7-7.5 hours sleep but as you describe I wake up often according to my Fitbit and am aware of long spells awake. I read, stay relaxed and eventually I fall asleep again. I find a weighted blanket stops me being restless and a long wedge pillow helps with my standing up first thing in the morning.
I’m historically a mathematician and more recently biostatistician, until I was recently ”let go” by a large international agency. What you say sounds very familiar to a long Covid sufferer. In particular the reactive hypoglycaemia, which I more or less stumbled onto after discovering the enthusiasm of some cyclists for very high carbohydrate diets. My experience of cycling relied mostly on water and bars, but post Covid even a short hill was terrifying. Once I started shovelling down rice and bananas, I could ride up several hundred metres again.
My suspicion is that this relates to the degradation of aerobic cell function with Covid, so consuming vast quantities of simple carbs seem to bypass this, at least for a day or two. This was traumatic after years working alongside nutritionists who waffled on about ”empty carbs” without looking at conversion efficiencies.
Anyway, swinging between 11 hours and 2 hours sleep seems too familiar, as do the issues with fluid consuption, getting up several times in the night to pee, being wired and tired, and several other issues that my brain fog is hiding from me :-( Pooling of fluid in the gut and the lower limbs, for eg. All this while cycling 100+ km one day and not leaving the house a day later, which synchronises with a lower gut that expands or contracts.
Have you looked at patients who monitor their blood glucose? This now seems esential for high level cycling and has overturned some of the received notions relating high sugars to insulin resistance...
Regards, Graham
SARS-COV-2 is bioengineered to strategically target all body systems but since not everyone is the same and has stronger and weaker composition factors, the pre and post covid symptoms are different and similar at the same time. No virus in human history has caused nor had the capacity to cause the degree of damage that SARS-COV-2 has which SHOULD raise eyebrows as to it's TRUE origin.
Sublingual vit D drops have been the most useful to treat my POTS symptoms. To sleep, I use CBN in a tincture I make. Cbn is the sleep cannabinoid. Game changer!!!
All about calming the nervous system
Thank you both, this is excellent
I swear Dr. Gupta made this video for me.. 🤣🤣
Because for the first time in a good little while ive been having some problems sleeping over the last several nights. and thought to myself what's going on? And I just happened to open RUclips this morning and there he was doing a video about sleep. 👌👌👍
You mention that B blockers at night can drop the HR too low. I feel this may be a problem for me. My pre sleep HR on B blocker can be 48. What happens during sleep then? Occasionally I get woken with PAF. What’s the mechanism? Thank you 🙏
I find many people these days are speaking so quickly that i do not catch all the words.
The young lady’s speech here sounds as if you have sped up the audio.
Lol!!! I thought I was the only one having a hard time understanding her.
I think we automatically subconsciously feel doctors are very busy and unable to spend time talking to us. Statistics show, the average time spent with the doctor at visit is less than 9 minutes. My guess is she's exhibiting "pressured speech" because her doctor(s) spend very little time talking to her.😕 To be profitable, doctors have to double book and work fast.🤑
@@shelleywoolf9693 Yup! I had an appointment recently and it was under 9 mins. I was like ......huh?
What just happened?
You can slow down the speaking in the settings
Good morning. I have POTS and Sever ME. Have been almost bed ridden for 10 years. For me the only thing that made a good lasting difference is being on a carnivore diet. The complete removal of all carbs and caffeine. With that other things like pacing help. Craniosacral can help. Not taking supplements. Either too much or not enough salt. When I was taking electrolytes for my pots I could not sleep. There is research on keto/ketovore/carnivore/lion diet. I'm now in the light in the day and get a few hours out of bed most days. There are some experts in those diets like Dr ken Berry MD, myzerocablife and mikela Peterson. Dr Berry wrote a book called lies my doctor told me full of medical myths around diet and covers the research its a great resource. He currently writing the proper human diet. I think you will find some really helpful information to help with your insomnia and patients. Thanks for the great question.
I find I can’t sleep at all but a few hours a night. I have insomnia & I sleep for a few hours then wake up and repeat all night. The thing is I can wake up and have no fatigue or tired or anything my sleep cycle is bizarre I wake up refreshed and not fatigued at all which is even more bizarre. I can get several hours of sleep off and on all night wake up and ready to go for 12 hours 😌 no problem
My phone and watching TV makes me wired but I feel addicted to the phone. I need to put it down way earlier before bed. I will try to be strict about it this week.
I wake up and begin sweating profusely . I gave up shopping because the horrible sweating is so embarrassing. My feet and hands get a burning sensation at night. The tachycardia is very unpredictable and has wakened me and was terrifying. I went to hospital a couple of times . But they just said I didn’t have a heart attack. So I dread sleep fearing it may happen again. I also drink water at night for dry mouth. Thank you Dr for So Much help and understanding.
I just listened to a podcast about thiamine deficiency causing pots, dysautonomia and much more. Burning hands and feet is a symptom. Also heart issues.
Hi Mary, which podcast was that?
For me vasovagal exercises, sleep hygiene, ear plugs, vitamin D, magnesium and eating dinner early and not exercising too close to bed time.
I've been diagnosed with Cardiogenic Dysautonomia. The past year has been hell. I passed out most times I've stood up. I've fractured my ankle, knee, and finger. I can fall asleep but can't stay asleep. I've been in the ICU 5 times with either extremely low or high blood pressure and heart rate. I've been defibrilated, and now have a pacemaker which has completely resolved the syncope upon standing. I still can't regulate my body temp, have GI issues, and horrible insomnia, Vtach at times. This is still a nightmare.
So interesting I listened twice. Sleep is a huge issue, especially nowadays.
@♜ Pinnedby York cardiology you're a scammer and I've reported you.
There might be sleep apnea in way more people than diagnosed I have it and I struggle with the CPAP therapy
HERE'S A STORY FOR FOOD FOR THOUGHT:
This sleep thing is something that I have understood very late in my undiagnosed POTS story (I'm 50 now and not able to work full-time anymore since my late 30s). My fundamental problem is that I could never feel insomnia. I cannot feel being tired. For three weeks I did when I stopped my betablockers in my late 30s, then it went back to the normal hyperactive thing. I'm likely to have the hyperadrenal type with a possible complication in my late 30s of autoimmune disease (my autoimmune markers were at the borderline but presented with bad enough hip joint pain that did subsume and started just being migratory small joint pains. At this point my skin tone started to change and has since gone back to normal, suggestive of pseudo-Addisons disease).
I knew I was not sleeping. Ever. As a child it took me two hours to fall asleep. In my childhood I tried to stay quiet in order not to disturb others when I was awake at odd hours. At adulthood I avoided sleeping with men, because I knew I never could. Now that I think back, it often was that my body could not cope with their bodily heat, if they were the cuddling type. My heart rate would just be so elevated that I could not sleep because of that.
My inability to manage my body temperature has been a major issue (I measured this at the point when I thought my problems were because of my low thyroid). At max the separation between rectal and armpit temperature was 2C degrees. Normal separation was above 1C. It was not very surprising because I had learnt as a child that armpit was not a thing to do, because it would always be 35.5-36.8 C, no matter how sick I was.
On average I probably slept about 6-7 hours as a child. I had constipation at the age of 2-weeks and always after that. In addition, I have always had low red cell count since child and by now I've lost the little hair I ever had.
When I finally was taken seriously (after I had started vomiting in my mid 40s -- before this I had gone through multiple Holter tests in two countries with the same benign tachycardia results over 15 years) the sleep test result was that I slept less than I thought. As in I thought I slept 6-7 hours but what I actually slept was less than that, because I was awake during the night without realising it.
My life has been a story of being wired. At least for a decade in my early adulthood I remember sleep being about fluctuating between sleep and obsession (as in having to do this or that the next day). I worked as a manager in a global company and did two Ph.Ds. Probably all down to the stress hormones just not letting me rest. I developed perfect time manegement skills in order to allow me to sleep the best I could and was able to get rid of that obsessive thing about having things to do.
Buut today I cannot sleep more the five hours without EXCERCISE.
Just for reference: I also went through the full psychiatric testing that cleared me from any anxiety, depression or personality disorders that could have caused my behavior for other reasons. I'm a very secure person psychologically and was lucky to have the parents I have.
*** OK, back to the sleep thing. My advice is this: I you are young and do not have EDS, do the max exercise you can without getting huge adverse effects. You know what that limit is. And go on a quasi-keto diet. I know the difference between a pizza and life is a difficult one, but it is a choice we have to make. And never forget that being half-comatose is also rest. Think of it as meditation just as long as your mind is not racing to plan for the next day. ***
Thank you both,I think walking helps and prayer.
Just don't walk close to bedtime.
Earthing sheet on my bed has improved quality of sleep but limited in aiding amount of sleep. Currently considering CBD oil. Àcupuncture has been helpful, Bach's remedies also helpful but so far nothing has solved insomnia outright. Can tolerate being bimodal but I am continually fatigued. Valuable discussion. Thankyou
I’ve been referred to sleep station and awaiting a care plan. Also taking a small dose of OTC Phenergan helps me sleep, but it can cause a bit of a hangover effect.
Hello m’dear and thank you. I have EHLERS-Danlos Syndrome and have steadfastly ignored advice from the NHS for many years. I was a nurse and midwife but had to retired. I have sleep very badly since aged 18.
Hey! Fellow EDS-er here. I struggle to sleep too! I also have inappropriate sinus tachycardia & a host of other illnesses. Just thought I'd say you aren't alone in the sleep front with EDS. It seems to be a common theme xx
Carbs not protein for sugar drops??? I was informed protein not carbs as carbs peak and dip fast and protein keeps sugar levels stable longer.
I was told the same thing. That the hypoglycemia was reactive to too many carbs. I started eating more towards keto with lots of veggies and that has helped me a lot.
I have had that waking with an adrenaline rush -usually around 3am. It led to me dreading or feeling scared to go to sleep. I put it down to anxiety and found the DARE app which had info on palpitations from Dr Gupta. Which led me here. It is reassuring to find others also have this dilemma but that you don’t brush them off. It can feel like a living nightmare because you wonder what’s wrong, can’t find answers, can’t get answers so then Google and get more anxiety. Mine only happens at night so I wonder if it is to do with blood sugar somehow or napping during the day due to previous bad night’s sleep?
This is happening to me too. Last days I've been thinking it has to do with low blood pressure? Becouse it is even worst when I am on my periode. I waken up 10 times a hour of fast heartbeat and feeling I am fainting or throwing up. Sadly it has not happened when I have EGK on. They only say I have some SVES . But it is destroying my life for the last 3 years. Its hell. Torture. And the next they my heart is crazy all day.
1 Zyrtec, once a day, a couple hours before bed, has stopped my night time adrenaline rushes
@@Max-dd6ep A banana and electrolytes right before you go to sleep also help. I've started keeping a banana available on my nightstand that I can eat in the middle of the night in case I wake up. It contains potassium and is supposed to raise the blood pressure a little. I don't know yet if it's coincidence, but I think it helps. Will try zyrtek🙏 Also drinks at least 2 liters of water per day
Hi! Is there an update on your symptoms? For the past few weeks I’ve been waking up nightly sweaty and with rapid heart rate. It causes me to lay awake for a few hours until I fall back asleep. I’ve been prescribed a beta-blocker as needed. Haven’t been diagnosed yet but my provider thinks I may have pots. (I’ve also been dizzy throughout the day) I used to sleep so well! But not I’m up nightly, came looking for tips. I also need to get my b12 checked.
@@Lamejoralexa9987 one zyrtec daily, about two hours before bed, greatly improved the wake ups and adrenaline for me
Meditation especially the one taught in Inner Engineering, walking in nature in the evening, and tart cherry juice
Try some tryptophan or 5-htp. Amino acids. look into Trudy Scott.
I had been eating a mostly low carb diet to lose weight & did lose 20 pounds. But had to add back some carbs, especially at night, or I'd wake at 2 AM and could not go back to sleep. Someone said it's because low insulin causes a spike in cortisol levels. Another medical professional said insulin is needed for production of various hormones that regulate sleep. I don't know, but if I don't eat a carb rich snack in the evening, I don't sleep well.
Good morning. I have now learned that that the older I get (I'm73 male) the adrenaline issue must be a reality. The moment I go to bed with a problem on my mind, the earlier I tend o wake up. And, thank you for your great concern on most issues.👍👍
I have a personal theory that my REM sleep cycle is one of my many Sympathetic Nervous System (SNS) triggers. When I wake up in the middle of the night or early morning sweating with tachycardia, nausea, etc, it is always during my REM sleep cycle when I am dreaming. It’s the same way my thoughts, daydreams can trigger my SNS during the day.
High doses of sublingual vit d have been wildly helpful for me to help control pots symptoms. In terms of sleep, the cannabinoid called cbn has been a game changer for me! I'm getting a full solid, restful 10+ hours of sleep every single night. 1st time in my life & I'm 49 years old. I used to get 2-5 hrs of sleep a night if I were lucky!
What is CBN?
CBN is one of the endocannabinoids like CBD. There are many different components in the CBD and THC medicinal cannabis
My sympathetic nervous system is upregulated due to complex regional pain syndrome and a spinal fluid leak. I lost the ability to sleep. I listen to yellow brick cinema. I try to soak in a hot bath. The only thing that works is tizanadine and clonidine. I have to take Lyrica too. I'm in agonizing pain.
Why has the chemical composition of tizanidine changed?
Sorry forgot love your videos you have helped me a lot be safe
Hi Dr Sanjay
I always watch your yt vids. Helps me calm down from episodes of Mobitz1 as diagnosed by my EPS. I would love to know more about mobitz1 and your reassurance that im just fine and other people who need information about it. More power to you. Thank you in advance Dr Sanjay Gupta.
I find myself most alert between two or 3 AM. I heard that maybe there are some biological processes that are going on at that time like liver detox. Does anyone know if this is the case?
If every Dr thought like Sanjay the NHS would be saved and Boris would be out of lies
My POTS and fatigue is really bad. I can't work because I can only stand upright or sit up for 2 or 3 minutes and I have to lay back down. I take Beta blocker and magnesium before bed. I have sleeping problems. If I don't drink water throughout the night I get bad tremors and other symptoms in the morning. Also, I've been to a neurologist just last week and he yelled at me. Im scared to go to the cardiologist cuz I'm trying to come out of another relapse due to getting yelled at and what's going to happen next. Most doctors say it's in my head. The abuse is so sad, which makes it all worse.
Yes, some arrogant doctors (those either thinking that they have all the answers or none at all) can add on to your problem not solve them. You come out of their clinic with your problem exacerbated because they are not willing to work with yo on your journey. Finding the right medical personnel is key to your medical predicament.
By chance they put me on Doxocicline and Colchicine and it took away my terrible Symptoms.
Try it for a week.
Dear Beth have you had any further referrals? I live in the UK. Waited over 2 years to see a neurologist only to have her yell at me, with my son present and the 2nd visit she was just as short tempered then resigned. This caused me to go into a deep relapse. The second neurologist wasn’t convinced I had epilepsy which was a secondary complication to my original diagnosis. I have a very complicated medical history so I’m used to getting the occasional consultation with an arrogant physician. Please don’t give up or give in to patient bullying. Keep detailed records of your daily life. Record your sleep schedule, pain levels, triggers, diet, symptoms, good days, ( if any) bad days etc. Get statements signed or phone videos from friends or family. Go in armed with proper information and diary journals or record sheets which can be downloaded from CFE/ME websites, epilepsy websites and MS websites. This will also assist your anxiety levels as you can see for yourself you are NOT IMAGINING your difficult symptoms and syndromes. It is unforgivable that unfortunately there are people still employed in the medical profession with these attributes. I know of people who have literally jumped I’m front of a train or taken their lives in other ways due to these reactions from medical professionals.
Please keep knocking on your doctors door until you can be referred to the correct specialist/specialists until a diagnosis is found and some type of treatment offered.
After another 2 year wait, in January I was seen by the head of the pain management team. She looked at all my underwear chronic conditions, saw the word Fibromyalgia in my notes and a gleam of light shone from her eyes. I also asked her to assist me coming off oxycodone after being prescribed it after ischemia of the ilium. I had a heart attack ( my 3rd at age 65) and 6 hours later the rhesus consultant, was going to discharge me home as no beds during Covid but after listening to my sister, sent me for an urgent CT Scan discovered that 3 feet of my ilium had died operated and 3 days later woke up out of a coma. So much happened after that. But had my sister not insisted on the consultant investigation as she knows I never complain as an ex nurse, she inadvertently along with the team of specialist surgeons especially called in from their rest day on a Sunday at 1.40am saved my life. She was informed I had 2 cardiac arrests during surgery. I had asked to be resuscitated before I went to theatre having a discussion why with the brilliant young surgeon on the way to theatre why it would be necessary ( I’m the head of an orphaned disabled family ). To cut a long story short my insomnia increased dramatically. Unable to sleep more than 1 hour a night for the past 3 years, developed narcolepsy and seizure’s( no wonder?!) unless usually due to catching another viral bacterial infection my ME/Fibromyalgia kicked in ) then I could not stay out of bed for 3 to 5 days at a time living on shakes or liquid diet.
The pain management doctor prescribed me Duloxetine at 60 mg which I take at 8 am. This has a direct affect on neuropathic pain receptors in the brain 🧠 apparently. Well the first 2 weeks I couldn’t keep awake I was like a zombie but my anxiety levels started to drop after 6 weeks and the last 2 weeks I set alarms on my clock to trigger my brain into thinking 10 pm is bedtime ( or I’d sit in my mobility chair either researching for hours or watching Netflix subtitled movies to retrain my lost memories abilities etc and let my brain know it was time to interrupt a 72 hour non sleeping adrenaline session. It’s working thanks be to God. Alarm ⏰ goes off every six hours instead of 4 hourly for my oxycodone. Cut out sugar free squash at night on my sisters advice, as I was getting up every hour to pass water for past 3 years so I have 1% milk or milkshake instead. It works! On a bad night I will watch RUclips Chinese subtitled ancient mythology films or my Sufi Shaykh’s video live lectures if my meditation doesn’t settle me or my pain levels are acute due to increased gradual activity as advised by my consultant. I have suffered with chronic perspiration for decades having to change bedding/ night wear every half and hour on bad nights. But now having starting to sleep for up to 4 hours I wake up saturated instead but after an hour the pain meds start to kick in and I’m able to once dried off again drift back to sleep which is a first for me.
My circulation is poor so it’s difficult to maintain an even temperature at night having to wear bed socks even in summer or my feet are ice cold and go into severe cramps if I try leaving them off and this stops me sleeping as well.
I was prescribed baclafon for my MS/ME muscle spasms at Barts hospital London by professor Pinching as it was the only treatment I was willing to try in 2000. As I was frightened of losing control taking them. But they changed my life at that time and I was able to continue working. The same neurologist who shouted and ranted at me took me off them as she decided they were causing all my symptoms, demanding I read the screen she turned round for me to see of the side affects ( I couldn’t read it as I was registered partially sited due to double white cataracts 😅) which made her even more angry 😤. I came off them immediately as she insisted and suffered the most terrible agonizing stiffening of my entire body I’ve ever had since before taking them. My family were just as distraught but I had faith she knew what she was doing. After being off them for over a year I still have the same symptoms I had when I was on them with additional ramipril as my BP went too high instead of her predicted low BP on postural readings.
I digress …..
So I had thyrotoxicosis in February last year which took 4 months to discover as Covid had cut down on face to face consultations with my regular GP. I lost 35 pounds in a short period and felt I was slipping away. But 15 months on I’m down to half my dosage of levothyroxine, my angina is stabilizing, my chronic asthma coming under control, my SPO 2 reading are stabilizing at 97% from 82% on aversfec
Part 2. Stabilizing. I have been referred to a pain management psychologist seeing them May 2023 so everything is looking up at long last.
Pray you are doing well and making some headway. It is wonderful we have such an caring cardiologist on RUclips so open compassionate and understanding. There are many RUclips videos by him that offer advice and support which have been very be beneficial to my recovery and understanding my conditions.
Love and light to all Mehvish xxx
I love your posts.
I've never had sleep issues until l fairly recently. What has been working for me, if I can't seem to get my mind to shut down is taking 25 mg of Trazadone. The pills I have are 50 but I found that was too much so I cut them in half.
It helps me drift off to sleep but I still have middle of the night abrupt awakenings.
If my partner is awake, I massage &scratch his back 10 min or so and I reap the benefit by then nodding out!
I will get up and eat or drink and play my ukulele softly.
Also lay on yoga mat and touch my face and ears then return to bed
I wake up to heart Pounding but already have low blood pressure ..does it work? As my heart rate already low ... could this be a mast cell response histimine or sugar response to waking up?
Also l have to ask ANYONE HAVE VIBRATIONS IS THIS LYME?? HEARD TEST HAS TO BE ILADS TEST TO CONFIRM WHICH MOST DONT USE
I struggle with the same. Its hell😢 do you know if it is more when you are on your period? It is for me. And I feel like fainting or heart is pounding. And then I feel really sick the next day. Some time I wake up feeling I am going to wommit/throw up. Sorry for my english.
The Beta blocker helps so much to calm my heart, but sleep is a problem. Some nights I get only 2 hours. I tried melatonin, but it gave me terrible side effects. Melatonin rich foods (tart cherries, goji berries) didn’t help either. I had to stop taking the beta blocker.
After several months now my heart started acting up again, because of stress.
I don’t know what to do …
I had covid. It got into my thyroid. I got a very fast heart beat. The'drs' said it was arrythymia then afib.
I had no thiamine in my blood. No iodine in my diet. Took supplements for both. Got terrible fatigue and high blood pressure. Took ginger for bp. Then took magnesium taureate. Works best at night. Bp normal for me now. Melatonin for sleep gave me headaches. So, going to gym works. Not perfect, took iron probiotic for the fatigue, I'm 90% better now. I hope this helps you.
@@TrustMeiamaD.R. , thank you so much for the info!!
Hi Madame Curious, For me 1mg of Melatonin works well…. without any side effects…. Please share the dosage of Melatonin you took.
@@yogiyogesh815 , i took the smallest dose recommended, I tried several times, but my brain reacted to it in a weird way. I supposeI am just very sensitive to this Hormon.
I’m glad it works for you!!
For me what seems to work is to take iron and magnesium not long before going to bed, on the top of my usual 3mg melatonin. It has been only for 4 nights now but for the first time in years I didn't wake up with my heart pounding, high anxiety, knife-like pain in the chest.
Going to try magnesium. Read a lot about its goodness. Thank you.
I can fall asleep any time . 6 hrs I’m done wide awake . Don’t feel tired or down , some of us 6 hrs we done
I am a physician suffering from POTS and inappropriate sinus tachycardia. There are times when I just cannot sleep and other times when I sleep for days. I was Rx Modafinil 200mg without relief. I am going to ask for 400mg…we shall see.
I am in the same boat. I’ve found that hydroxyzine 25 and magnesium citrate 250 with (food to prevent diarrhea) are the best treatments to get sleep and reset. Caffeine and other stimulants can make the cardiac symptoms worse
I tried LDN with high hopes that it would stop the night time adrenaline surges. Not only did it not work for me, but it made my sleep worse. I'm back at the drawing board again.
I have pots i think. HR goes from low 70s to over 100 standing. When i lay down my HR can drop into the 50s and i get a feeling of anxiety and palatations. Maybe my body is trying to get my HR up by releasing adrenaline.
was that pots ?
May be the trigger for disautonomia symptoms are ,,low temperature agglutinine,,
Low temperature of perifereal blood, especially at sleep, theoretically,can increase blood viscousity by,,sludge,,at low temperature.
A dropp of fresh blood agglutinate on a cold glass lamela If,,low temperature agglutinine,, exist at some patients.(at microscope erytrocyte aggregation like coin rolls can be seen)
I think a commit ly profit size thing like self stetheling where you want a baby so bad and you can’t get pregnant I think the same thing can happen with sleep I think sometimes wanting something too bad can be a horrible thing to kind of make things worse getting the mind off the focus of needing to sleep because they’re at a point where they need it I’m sure Not to mentally fixate on needing to sleep find other things to do that would create an induced sleepless sleepy sleepiness like activities that are calming and everything before bedtime far before bedtime staying away from certain stimulants good sleep hygiene like she said but also I notice like some people need to do more activity through the day tend to sleep at night too like exercise
My 22 y/o son has palpitations and gastric reflux since his 2nd covid injection. He’s seen a cardiologist and he doesn’t know if it Bigeminy or something else. His gastroenterologist says he has reflux but his gastroscope was NAD. The ENT said his oesophagus is inflamed which makes me thinks it’s an inflammatory response so I’ve got him on Phenerghan at night and Loratadine in the morn. It seems to ease his throat but he gets more palpitations from the antihistamine so is afraid to keep taking it. I don’t know what else to do to help him.
loratadine has stronger anticholinergic effects, it made my pots / palpitations worse. cetirizine seems to cause me much less issues than loratadine.
How’s your son now? We’re the same age and I’m dealing with the same issues
Mestanon ??? What's the medicine he mentioned??
Melatonin ??
I think it is a steroid….Google Mastenon drostanolone .
@@mfdixon2265 oh my...it says it's a steroid used by body builders
@@BarryMaskell thank u but it wasnt melatonin. See the name below
Hi Margo Mack, It’s Mestinon Pyridostigmine the other medication he mentioned is Naltrexone , also CBD Oil n Magnesium
VITAMIN B1 !!!!!!!!!!!!
Please explain
Found out Life Extensions, Neuro-Mag has Magnesium L Theronate, the only one that crosses the blood brain barrier, and it helped me with the frozen thoughts I had with the brain fog, 3 times a day with l-glutathione & NAC. Takes 3 weeks initially, but an added side effect from long hauler the weight gain, was I started a small weight loss.
What caused the weight gain??
I tried that product this week at night. It gave me terrible headache. 2 nights. I was super sleepy though but can’t do the headaches
Sleep station is only free if you're on NHS. I'm in South Africa $149 is a lot of money for us to outlay.