Thank you for bringing up how hard it is to get referrals and be taken seriously with conditions like this, but also how to advocate for it. Sometimes it really feels like half the battle with long covid is to get help for it in the first place.
Hi again everyone! I just thought of 2 things I'd add that may help some of you. I take CoQ10 every day and if I don't, the tachardyia comes back. Also, grated ginger in my drinks helps the migraines. They are not as frequent. Don't give up. One thing that helps me be determined is hearing about all patients stories and trials and seeing that so many are worse off than I and true warriors! It is heart wrenching to hear and I feel so sorry for them. Can't do this too often or will affect me emotionally which is also a stress and energy zapper. Putting on music that is uplifting and calming is, I've found,a good way to de-stress and gain a little more energy. To your health!!
Thanks I'm trying but it's never enough for people...I use to work for four veterinarians . Animals even stress out in kennels.I wouldn't be shocked if I dropped dead from pots
Thanks so much for this, my teenager was diagnosed privately by Dr Gall 7 months ago, she had been suffering symptoms since early 2019, age 15. After several (4) A&E admissions, where her heart rate was 170, the first thing the Drs said was calm down, and traumatised her and said nothing wrong with her and got really short with her! After I had a heated discussion with a cardiologist on the phone , I felt I had no choice but to go privately - the best thing I ever did. I am dreading it when eventually she will be transferred back to the local hospital where the understanding of POTS is non-existent.
@@prathamrballal1229 That is exactly the problem: in the case of the doctors they tend to be overloaded and have no ability to treat the problem. For better or worse in their world, they send the patient away. Triage comes from the French "trier" meaning to sort; in medicine it is to sort patients into those who can be helped and those who cannot be helped or who don't need help. If the doctor doesn't know what to do or has more urgent cases he turns the patient away. His abilities are non-existent, but the problem is very real.
Thank you so much for putting this on RUclips! I'm in Minneapolis, Minnesota this rings true for those who have developed POTS from a Covid infection all over the globe.
Thanks again Gez! As depressing as it can be, as this thing seems never-ending at times, all this information can only be a good thing imo.. So massive appreciation to you & all involved in providing it! Hope you are doing okay at the mo anyways, All the Best!
@@autumnthomas3923 please donot listen to these fools,its fake pharmasautical science,if you want to heal message me and will type out a protocol that swiftly ends long covid and all the other nonsense that comes with it,long covid and post viral conditions can be completely healed in ten days,if they have damaged gut that heals first ten days and ten days to heal
drink the miracle mineral solution it ends all post viral conditions in less than 12 hours thats why big pharma banned it in america the cost of the miracle 9.20 uk pounds
i am very sorry for everybody, who suffers by POTS because of long covid. But i as a longtime pots woman hope, that this illness will get more attention now. I am having POTS for 20 years now and it took me 15 years even to get a diagnosis. And without searching for a doctor who knows POTS for about 3 years, i wouldn´t have the diagnosis until now.
Thank you!! This was so helpful, I have been so confused about all the different POTS medications and which is the best one to take. I have a much better idea now what to discuss at my next neurology appointment. You guys are doing a fabulous job, I am so grateful for all your efforts putting these videos together while suffering yourself with LC! It really is appreciated!
I appreciate this information. I've been struggling with long covid symptoms ever since October 2021. Doctors keep dismissing it as Anxiety, NOPE! I know my body and Anxiety is the response to me feeling horrible 😭
@@judymiller5154 much better now but I didn't get much relief until February. I was working with my medical Doc & Naturopath This "virus" isn't natural, I have no doubt of that. I hope you get relief soon, Sending Prayers your way
@@ladyvirgo013 thanks. glad to hear you are improving. funny thing, once I addressed histamines my "anxiety" went away! worst I get now days is a stronger pulse if I make a food mistake. God bless ❤🙏❤
My primary physician and a heart specialist both missed this following three fainting (syncope) and ER incidents. A functional holistic doctor knew immediately that it was POTS upon hearing my symptoms. I also have neuropathy in my feet and multiple allergies. Check your blood pressure and heart rate from three positions: sitting, standing and supine. From sitting to standing, my blood pressure dropped and heart rate increased significantly. If you have POTS, research vagus nerve issues. A whiplash injury and frozen shoulder affected the curvature of my neck which in turn affected the vagus nerve. There’s an intriguing treatment that may help that is called Prolotherapy. That will be my next step. It was interesting to hear allergies being discussed. Allergy shots and antihistamines have never affected POTS for me.
i can heal you ,if you want the protocol to over turn all post viral conditions message me,to overcome these conditions you have got to understand whats causing it,address that and you regain your health,takes ten days
@@rudygonzales3589 i think its viral debris in the nervous system ,if it moves the immune system spits out cytokine storms in the nervous system,that will cause inflammation ,i think its a post viral symptom ,drink the mms it will clear the viral debris out of the nervous system and heal long covid too
Had covid from first wave. One of my symptoms are racing heart beat, it races back and forth between 20 to 30 beats . Then something triggers it, and my heart will hit 160 beats , and breathlessness when I am relaxing. Doctors keep telling me, I am ok which is so frustrating and I know I am not. I'm a athlete who can't even run anymore, as my heart instantly jumps to 160 170 before I even warm up 🤬 plus I have crazy fatigue. If I can get rid of these two last symptoms I would be perfect.
please take this to clear the dead virus particles out of your system what your weak immune system cant do,the cause of your problems low atp levels coming from low levels of the bodies foundation for health the bodies most vital critical amino acid the glutathione,if that lowers it causes a catastrophic domino effect on the nutritional levels,the main cause is eating toxic gm food,americas food chain is toxic and so is the uk 90 percent of the animal feed is toxic gm feed,take this to clear the dead virus particles out of your system,its awful to see an athlete sick so i reach out so you can understand whats going on in your own body,take 2 x 1000mg caps liposomal vit c every hour for 12 hours a day do that each day until all symptoms have gone,it doesnot take long in high doses liposomal vit c is a very powerful anti viral and a very powerful immunoimodulator,it calms the immune system right down,its very safe you cannot overdose on high doses liposomal vit c incidentally all you had to do when you first got symptoms was take 2 x 1000mg caps liposomal vit c every hour until all symptoms was gone,when you have cleared the viral debris out of your system you have got to address the low atp levels coming from low glutathione levels this protocol is absolutely complete i can assure you if you take exactly this what i say not all kinds of this and that but exactly what i say you will be running again sooner than you think, to boost immunity take with food 2 x 600mg caps n.a.c.morn/eve this mixes with the selenium in the beef liver extract that makes the critical glutathione - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 kelp tablets - 1 x 1500mg combined caplet quercetin/bromelain morn/eve this protocol is designed to regain health safely and quickly the quercetin/bromelain plays an absolutely critical part in this healing protocol,the low atp levels lowers the digestive enzyme levels ,they cant digest stuff thats where the quercetin/bromelain breaks that viciuos circle that so many are trapped in ,the levels rocket and you regain your health faster,doctors cannot help you because they dont have this knowledge,i share it with you,if you want to regain your health here it is ,the crazy heart beat and the fatigue its the dead virus particles causing that ,the high dose liposomal vit c will clear the dead virus particles out of your system in days safely and all that stuff stops
@@Beekind799 what is atp level? And what is the 600mg of nac? I have the same symptoms and need help. My vitamin d level is 44 just got my results back. I have racing heart and fatigue really bad. I get weak in my legs and arms. All my tests have came back normal for my heart and blood. Can you help me, and are you legitimate! Are you a doctor and where can I find your website. I do t want to hurt my body any more than this covid crap has done. I eat organic and don't eat processed food, well most of the time. Can my stomach take all that vitamin C? Are they coated? I am ordering some from amazon the same C you said to get. I dont know what that other stuff is you said to use. I also am taking 20,000iu of D3. Please help!
@@user-fd1qb7ml2j atp is the fuel that powers your immune system,.n.a.c. is n acetyl cysteine it mixes with the selenium in the beef liver extract that raises he glutathione that raises the atp levels ,go on ebay type in mineral solution set scroll down you are after 2 plastic bottles with a yellow and green cap 2 x 33 ml cost 7.49 uk pounds that s the miracle mineral solution,put 8 drops of sodium solution in the bottom of a glass add 8 drops of citric activator let it mix for 20 seconds it goes dark now fill the glass up with water and drink it slowly on a totally empty stomache,in about 8 hours the dead virus particles will be expelled and you will feel much better,mms isnot bleach ,mms is used for making drinking water safe if you used bleach it would kill you,in 8 hours all the pain misery and suffering all gone and you will say ahh so thats why they call it the miracle mineral solution,when you take that your body will be soar you can take high dose liposomal vit c for that take 2 x 1000mg caps liposomal vit c every hour until you feel better,then take the protocol i said ,high dose liposomal vit c doesnot effect the stomache in any way you wont even know you have taken them then take with food 2 x 600mg capsn.a.c.morn/eve - 1 x 1000mg caps cod liver oil and fish oil - 2 kelp tablets - 2 x 750mg caps beef liver extract morn/eve - 1 x 1500mg combined caplet quercetin/bromelain morn/eve this protocol is complete ,send me a thumbs up in ten days when you are bursting with energy,i have seen mms end post viral conditions that have been in place for over 30 years,in about 8 hours then they have to take the protocol what i say not all kinds of this and that,but what i say,i am a biological systems engineer fully trained on the 5 box immune system,i have forgotten more about the immune system than any doctor is taught ,ebay is where you can get all of it make sure you buy from high feed back sellers ,you can take high dose liposomal vit c every hour for 12 hours aday do tha teach day until all symptoms have gone,the mms is the fastest and easiest route ,make sure the stomache is totally empty,i wouldnot tell someone to take something that was dangerous
@@Beekind799 i think i will do the vitamin C route. But the other items, do I need to do those? Are they immune building minerals? I see you have the nac, and other things. What about beef liver and heart, can I just eat them? Thank you for all your help!
Vidatek, I have the racing heart also, and fatigue. I am taking Metopropol for my heart rate, but it still goes up to 125 when I'm sleeping it wakes me up . Ive had all the tests for my heart and they say everything looks good and that this is covid causing this. Also my fatigue is good one day and then bad for the next. I am asking the gentleman you spoke with what protocol to use. Do you get dizzy also and feel weak arms and legs! I dont get out of breath, I just can't breathe in deep sometimes and get chest pain.
I'm a doctor with long Covid. Your work here on this channel has helped me so much. Thank you. Dysautonomia seems to be the common thread that links most symptoms. I saw this year's ago with CFS patients and although my understanding then was so much less, I was still able to help them much more than most simply because I recognised it as a physiological syndrome rather than a psychological one. I wonder about how regular breathing exercises might help to retrain the autonomic nervous system and what sort of exercises are best. Perhaps they are the exercises that maximally stimulate the vagus nerve. I haven't been able to find any research on this area yet, but I am practicing on myself. Perhaps even just regular vasalva maneuvers, and trying to extend the time of doing this. I wonder if this could be even more effective than the exercises usually prescribed. Do you know anyone doing work in this area?
doctor can you tell me why you have long covid please ,if you cant tell me what causes long covid how are you going to fix it,long covid and all post viral conditions are kept in place by one low level,if that isnot addressed it will be very difficult to regain your health,i have healed post viral conditions that have been in place for over 30 years in less than ten days ,its very easy for me,i am not a trained symptom treater,i am a biological systems engineer fully trained on the 5 box immune system,these fake pharmasautical science people love to talk about the 1001 different dysfunctional reactions what occur with a dysfunctional immune system,this is fake pharmasautical science at its very worst,how about addressing the cause of the dysfunctioal immune system,now theres a novel idea,if you want to heal message me and i will type out the protocol ,most americans have damaged guts from eating gm foods that has to be healed first ,i have healed 1000s of americans
Hi Attila - I have found cold water swimming to be a great help. Its not the swimming but the cold that has the effect. I have suffered from the POTS / anxiety effects of Dysautonomia and have found that cold water immersion can have an immediate and powerful effect. If nothing else it can help get people through the bad times and is at least something positive you can do.
@RUN-DMC - you often mention how much breath work helps you. What breathing exercises do you do specifically? Box breathing? Thank you for all that you are doing - that picture of you in front of the ambulance in the last vid gave me more hope than anything I've seen so far!!
@@markanslow4720 are you a covid long hauler,your weak immune system cant expel the dead virus particles from your system,you have low atp levels tahts what a weak immune system is,low atp is coming from low glutathione levels,eating toxic gm foods has made america the sickest country on earth,when you firts got covid all you had to do was take 2 x 1000mg caps liposomal vit c every hour until all the symptoms where gone,no covid long haulers ,i can tell you how to regain your health,if you have an auto immune condition taht gets healed first that takes ten days then ten days to clear the virus debris out of your system and boost the immune system,theres so many covid long haulers ,its ridiculous,its easily over come if you message me i will type out the protocol ,approx cost 100 dollars for 3 months supply
I think what technique works might depend on the individual. I used my HRV monitor (Elite HRV - CorSense unit) to try personalized resonance breathing - which turned out to be the standard 4/6 pattern. I got dizzy after ~5 min and could not complete a full 20 min session. Here's a video from Elite HRV that includes instructions on how to do it: ruclips.net/video/EIi1Tc5i8s4/видео.html I also tried box breathing - dizzy also. I was about to give up when I tried Andrew Weil's 4-7-8 - I am fortunate to experience the immediate feeling of calm and well-being that Weil describes. I noticed that during my morning HRV reading my heart rate will sometimes go from an abnormally low RHR, like around 48 (normal for me is 58) and then get into a weird spiking pattern (up to 130) even though I don't feel it racing or anything. This pattern would usually occur the day after I had exercised. If I do the 4-7-8 it will normalize. ruclips.net/video/_-C_VNM1Vd0/видео.html A couple of weeks ago I started taking -carnosine- carnitine fumarate and I think that may be helping, that's in addition to ALCAR which I had been taking for years now. I think consuming a lot of purple foods helps (anthocyanins) and also lemon balm in moderation (they improve brain circulation). I stopped exercising for a while and have resumed, but at reduced level. I used to do cardio in the morning fasted since I felt an empty stomach was better in terms of mast cell activation, but after finding out that fatty acid oxidation is much higher in afternoon (see Rhonda Patrick's recent interview with S. Panda), I switched to afternoons. Here's link to the interview: ruclips.net/video/MWngLVQg2Os/видео.html My mast cells have been much calmer of late, so I think that helps me tolerate the afternoon exercise better than I would have in past months.
Excellent as usual Gez and very pertinent for me. I finally managed to get a cardiology referral after complaining to my GP practice manager backed by a supporting email from a Cardiologist colleague. It really shouldn’t be this difficult to access secondary care facilities. Confirmed POTS yesterday but my Cardiologist admitted to not really having an understanding of the condition. Been prescribed a 3 week course of steroids ! Not sure if that’s going to help!! Keep up the great work, you are helping so many people out there 👍
@@stephenhocking9467 I was on 10 mg of Prednisone for two months felt way better almost back to normal. On it, I was walking two miles a day. I could chill with friends. Still feel a bit tired. The side effect was back acne, short temper, anxiety went up. Unfortunately, my blood pressure was through the roof so they took me off it. I also developed food intolerance for carbs and sugar that forced to eat nothing but meat, water, minerals and vitamins. It keeps stably, but unfortunately not functional enough to work or have a social life. I hope it helps 👍🏼
Hypermobile person here and I believe this is the underlying issue that predisposed me to long covid. So good to hear it mentioned here! Compression socks + other compression clothing make a huge difference worth trying for all with long covid. Helps regulate lymph flow etc
Thank you so much for this. Dr. Gall validated many symptoms and diagnoses I have. EBV is a major factor for me I believe, bcuz I had similar symptoms b4 I recently contracted Covid. I am extremely weak still even though it's been a month since the initial infection. So now, I'm praying I don't have long CV along with the ME/CFS. I have listened to sooo many docu videos from the conventional to the functional practitioners and this episode is about the best I've seen tying all the factors together. Neuro pathology I think is probably the main source of so many diverse symptoms. I believe that these viruses can damage nerves as well as the vaccines in autoimmune or immunocompromised people. In the past, I had a reaction to the rubella vaccine. Was mild but very strange muscle/tendon problems which gradually went away. I was advised by a rheumatologist then in 1994, to stay away from vaccines. In 2021 I was diagnosed with autoimmune antibodies that attack the small nerve fibers. The antibodies were named TS-HDS and FGFR3. TS-HDS attacks the natural heparin your body produces and which I assume can cause sticky sludging blood, and also is associated with sensory axons neuropathies. FGFR3 has also been associated with axonal sensory neuropathy as well as sensory ataxia. There are not many studies on them. This may be a reason for some people to not have proper blood flow in the brain and/or disrupted nerve transmission due to the damage, so they get dizzy, etc. ?? Just me trying to put the puzzle together. I hope this info will help others and also induce more research into this broad debilitating syndrome. Many thanks to all in this video!
My daughter started having symptoms of chest aches,palpitations at age 10. She was told she had anxiety and making up stories to get out of PE. Her symptoms further developed into chronic dizziness, nausea, headaches, stomach pain, stomach felt cold, chronic fatigue, neck and back pain, numbness and clammy hands and feet. Her extremities turn purple. She had painful, difficult periods, etc. By 13 she was completely debiltated. She then was told she's depressed and chosing not to eat and avoiding going to school. At 15, her Chinese medicine Dr. Finally referred her to a cardiologist who diagnosed her with Tachycardia/ neurocardiogenic syncope. At one point, when no one believed her or bothered to really look into why she wasn't functioning she became suicidal. She was bed ridden for two years.
Iam 27 years old. I was fit and damn healthy. Took my first covid shield vaccine shot in January, got slight chest heaviness, headache and fever the next day, was fine after that. Then took my second covid shield vaccine shot in March, didn't get any symptoms from this second shot of vaccine. The next month i.e in April I was tested covid positive & in next i.e in may i started to experience a hell lot of symptoms. The series of events are mentioned below:- -> Palpitations for no reason. -> Palpitations in sleep for no stress and anxiety. -> Heart pain and shortness of breath. Due to this I was taken to ER couple of times, where EKG was normal many times, doctors there used to tell me that it's a stress and anxiety, but it was not the case. So I decided to go for heart diagnose. Here TMT, ECHO and other blood test showed normal values. Atlast CT coronary angiography was carried out, here also the report did come normal. Currently I still experienced heart pain and chest discomfort, but there is no shortness of breath. Sometimes I don't have any symptoms while walking, running and climbing the stairs, but even at rest I can feel the heart pain. Currently I am on beta blockers tablets(metoprolol 50g), currently the episode of Palpitations has reduced. God help me from this. Thanks china, for destroying my life and health 😢😭😭😭😭😭😭😭. You can be in contact with me on instagram at instagram.com/shant_sangurdekar/?hl=en
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet. Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
Try Vitamin B1! See the reseach of dr. derrick lonsdale and the yt-channel of eonutrition on high dose thiamin, it has helped me lots, i had similar symptoms and a strong deficit
I have to sleep in my recliner so my head is elevated and my legs are too somewhat. I just feel awful all the time, shortness of breath, tackicardia, headache constantly, sleeplessness, exhaustion, stressed emotional....I just want it to stop!!
I’m not a doctor but I was a neuro specialist occupational therapist, aka a sensory processing Occupational Therapist for 40 years NZ & UK. I also have, I believe LC dysautonomia type. From my experience the POTS signs and symptoms discussed in this talk also fulfil criteria for a number of conditions I treated regularly in myself & others; Sensory modulation disorder, Cervical instability at C1,C2 both present similar clusters and variability of symptoms involving vagus nerve impingement. Not just previous infection but also structural injury and conditions where joint stability is compromised Ehres Danlos Syndrome that the sarscov2 debris seeks to hide. The vagus nerve may also be a conduit between gut and brain as demonstrated in Parkinson’s disease.research. Truely needs a trans disciplinary investigation across practice settings and specialities. Silo thinking just won’t cut it. So frustrating!
Amazing... I've been telling Doctors all these symptoms since March 2021... They said it was anxiety. And it's called aging probably a bit of arthritis and I'm crazy, Like it's all in my head. That the pain moves and it feels as if it's in my blood. Bc the symptoms change. Daily.
Thank you Dr Gall for this very informative video. Thanks Gez and Asad for bringing this to us. There is much power for us in what Dr. Gall has said. I am also very impressed by his attitude and his ability to say Well we don't really know and Yes it is real, you are not mad. And for his recognition that there is a wealth of empirical evidence already in the system and that this needs to be looked at rather than waiting for the Officiial Trial. Thanks so much all of you. 😀❤
Thank you for this! About a month after getting covid, I noticed my feet turning purple. That was at the same time my heart started racing. I went to the ER and the doctor laughed at me, after he looked at my purple feet. He also told me i needed a psychologist. Ugh
Same with my doctor. My hands, feet and genitalia were turning purple. I was basically told to quit smoking, which I had done when I first got sick months before....
I had a similar experience, the doctor called Hypochondriac. Now I have a better doctor that listens to me. To people having the same problem, I’d say don’t settle. Find someone else ASAP
On allergies - suddenly developed a horrendous response to the clothes washing products I’ve been using for years. The scent on the dried clothes brings on itchy throat and choking cough. Changed to smol which are great - sent by post too & cheaper.
Marcher covid, tachycardia started may, bradycardia too Oct, Many trips to A&E I ambulance when I callapsed, alongside Severe head pressure, extreme insomnia, poor temp regulation, fatigue, gi issues..... Overnight significantly better after electro Accupuncture a Japanese tormeter automic nervous system machine and slept through for first time since I'll woke up with clearer head, right temp and no further trips to A&E. Would really recommend.
I have been sick since a virus back in 2017. I total understand what the long covid community is going through. None of my doctors know what to do for me except send my onto the next specialist. Im so sorry yall are going through this but hopefully with all the research going on, we will all make it back out 🤗
drink the miracle mineral solution it ends all post viral conditions in less than 12 hours,you have nutritional deficiencies making your immune system weak,its the dead viral debris in your system thats keeping you sick a drink of the miracle mineral solution ends all that fast
Excellent as always Gez. I download your videos and watch them over and over so I am better equipped to inform my healthcare providers. American doctors are clueless when it comes to caring for long Covid. I'm amazed that they're not even curious! On another note, do you know when the TLC conference will be available online? I paid for the conference as a patient, so I would have access to the conference at a later date, because I was traveling that weekend. I was refunded my money. But I would really like to see the conference. Thank you for all you do and your insatiable curiosity 🤗 By the way, I diagnosed myself with MCAS as a result of your videos. My immunologist didn't agree with me for months, but confirmed MCAS with a tryptase test the last time I had an anaphylactic reaction in his office. Thanks again Jez! You are changing lives💕👍
Wow - I’m glad to have been able to make such a positive difference! I think you might be able to download the conference now - do you have an email contact (maybe Jess?) - in which case drop them a line. Thank you for the support Laura :)
When you look at NHS web site at long Covid symptoms and Anxiety symptoms there is a lot of similarity. It even says on MINDS web site that long Covid symptoms are similar. I guess there is still much to find out. I have long Covid and. anxiety (GAD) and symptoms relating to it but I do feel there is a lot more to this that isn’t known yet
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet. Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
Great video! I was vaccine injured 8.5 months ago after my first shot of Pfizer. Mostly neurological and visual issues as well as sensitive to motion. I am also an athlete and worked out daily for most of my life. When lifting I would get heart rate increases when getting up from a bench and when laying back down my heartrate would drop to normal. I had no idea what was going on and just put up with it. As I had flair ups my symptoms became worse so I started paying more attention to what was going on and actually began researching this issue. I had never hear of POTS before. I now get dizzy when standing at times, and especially when going from laying to standing or pushup position to standing when working out. My neurologist just yesterday diagnosed this condition as Orthostatic Hypotension and told me to up my water intake ( I already drink plenty and have for years). I was also told to increase my salt intake. Again, very interesting video!
Hi, my daughter is in the same boat as you are. She is 15 and has been a competitive swimmer for 7 years. After second dose of pfizer she got sick within 24 hours. She started having heart palpitations, dizziness, shortness of breath. We had many ER visits and specialist appointment and nobody could give us any diagnosis. Then she was getting better and started having regular life. But a month back it came back and heart rate started going sky rocket. So doctor has to put her on her medication and salt and fluid in take high.She could hardly walk and her heart rate was 130/140. One doctor told it could be POTS and trying to treat her with steroid. This is has been so rough and so tough for young kid. I hope more research can be done and medical professionals should be more trained specially when vaccine has been done at mass scale. They should be made aware of all these adverse effects. We are in Canada and we can't even report it to Govt health site .
@@SrabantiChittessschitte Terrible! I am going for a tilt table test next week with a Neurophysiologist. I am currently only working out 30 minutes a day and it's all laying down or sitting in a reclined position. I am signed up for a telehealth conference with Bruce Paterson's team and already have a doctor onboard that has used his protocol. Good luck to your daughter...
I have long covid. Tacacardia then referred to cardiologist. Neuro next. Manyyyyy long haul sytpoms across different syptoms. Im in US. Getting echo cardiogram next but cardiologist told me that there was one medication for POTS and she hasn't seen any insurance cover it and has seen noine who could afford it. Are there other meds I could ask about? I'm so frustrated. There is no formal full circle look at all of is as a whole long covid clinic near me. They are calling it long haul covid but when I ask they say you have a pcp that will.refer you tonspecialist. Well thats always been a role of pcp. Ill be having a very honest I need better care specific to long haul conversation. Cardiologist wants me exerting more. But it makes me completely drained when I do. I feel like this cardiologist is just trying to treat me not even considering long covid. Ok you have POTS now. No meds exercise is the key. Need to see a nutritionist. Bkue cross blue shield want cover unless i have diabetes. What? We may now have all the answers but it doesn't take much common sense that we need to make sure our bodies are being fed proper nutrition and with how we are feeling need help putting a durable plan together so we can ensure we are getting proper nutrition. Now let's talk about all the vitimems. The no insurance coverage cost per months. What we would have to go through and wait period for disability even temporary is an entire different topic. For US. I dont think I will be able to afford to take them after another month. Now let's do echo make sure heart structurally OK. Another thing. Having to wait two months to get to a specialist. When as a long covid patient. There are several needed. Its just a mess. People need help and a more structure case management systems. Its so overwhelming. I feel like I'm having to find answers myself. And it can hardly think. Leaving me with even more headaches and exhaustion. Not to mention I'm a single mom and I have no idea how I'm going to pay my bills soo . Its like long covid isn't real. Please keep adaptation and educating.. we need you.
Forwarding this to a friend who lives in another state. She’s been blacking out at least 3x a day since she had covid. They diagnosed her with POTS but can’t stop the black outs. She’s lost her drivers license & now her job, with 2 small kiddo’s to care for. I wish I could help her but I live, at least, a days drive away, & have severe osteoarthritis in both my hands. Watching also to see if there’s any pointers I can use for my POTS! Only I didn’t have Covid, I have Ehlers Danlos Syndrome.
I have high heart rate issues but am on propranolol. But the worst thing for me is the adrenaline surges. I get them during the day and at night and then I can’t sleep. They went away in the month of June but as of last night are back. Does anyone have any suggestions on how to stop this from happening. I am also taking amitriptyline 25 mg at night.
@@kuldeeptalukdar9494 I still get them. I had them off and on in august and September but very little. They came back with a vengeance this past week. I started getting dizzy last month around my menstrual cycle and the adrenaline surges started back up at night. I am able to fall asleep but usually not till midnight or 1. I think there has to be anxiety involved in this as well as POTS. I have had to learn to deal with the anxiety by doing deep breathing and stimulating vagus nerve and praying and giving all my fears and anxieties over to God. I seek refuge in scripture and that has been my biggest help! Thanks for asking.
@@kp968 I usually have iron levels that are always on the low end. And I know they probably dip around my cycle. I did increase my salt intake this past weekend and the dizziness subsided. I have not had the adrenaline surges for two nights now.
I used to get the tight chest.......with sharp shooting pains in my chest........and the lethargy/feeling faint so much so I had to lie down. A year later Im left with pain in my lower back and still a LOT of lethargy that Ive just had to get used to.......I ended up loosing my job because of this virus and now most days I just sleep the day away and feel exausted when I HAVE to do things. I get good days though where it feels almost like Im 100% recovered.
Thanks for your great work GEZ. What are your thoughts on Bruce Petterson and Dr Been "Spike Proteins In Immune Cells - Dr. Bruce Patterson Discusses COVID Long Haul" video which they postet recently. And have you tried the FLCCC protocol for long haul ? Have you had expierience with statins and CCR5 antagonist medication in combination with IVM ?
I’ve been trying to get a diagnosis for over 2 and a half years. I’m terribly frustrated! I had hyperparathyroidism and it was removed. My GP won’t order me any pain or anxiety meds. He also won’t order a microscopic fluoroscopy to look at my RBC. I’ve been asking for over a year if it could be long Covid. He said “ we don’t know how to diagnose long covid”.
@@RUNDMC1 Dr Peter Rowe in USA, Johns Hopkins, did research decades ago on Dysautonomia, Tilt Table Testing and medication, Florinef and salt. Some of his studies online. Dr. Lawrence B. Afrin, M.D. is an expert in USA on Mast Cell Activation Syndrome. His Book, Never Bet Against Occam. Great Book.
these people cannot tell you whats causing this ,thats why they cant heal it,message me i will tell you what causes long covid and how its easily overcome and all the related problems go away
Could there be hope for me? I’ve had ME/CFS for 40 years - from aged 26. I’ve tried things myself - BUT have had NO help from NHS. All my life. 😢 This sounds like me.
I'm definitely not a young lady suffering this. Gez I have talked to you about this on a different video. I'm still struggling with this. I just sent my Dr a message telling her I really need help with this. I'm getting dizzy and really feel horrible. I'm pretty upset that I'm not being listened to or helped. Thank you for listening
My heart started acting up after I had a bout of mild covid. My symptoms were I had major headache, I was dizzy, blurry eyesight, fever, light body aches, No cough. Then about 2 weeks later I felt better and felt I beat Covid. And about 3rd week my heart started skipping beats and felt like fluttering with a pound or heartbeat. It felt like it fluttered and the beat catches up. Now today my heart rhythm is not the same. I currently have a new heart beat. I also feel dizzy. I sometimes feel POTS when I get up from lying down. The ekg showed PVCs and Nonspecific ST and T Wave abnormalities. Nobody can give me answers as to why or what is happening. My Dr says should go away with time. I was vaccinated and boosted and sadly still I got covid a little over a month after I was boosted. I’m not the same today. I feel awful. Drs still doing test on my heart and really have no answers except they’re explaining that their seeing many new patients with heart irregularities now. And should go away with time. Sadly I’m scared and don’t feel the same with my new heartbeat. My family, sisters, parents, nieces, friends, so many friends, All were also vaccinated and some had covid multiple times. They had mild cold symptoms or flu symptoms but no heart problems. I’m the only one.
So sorry to hear that your life has changed for the worse. I have had all those identical symptoms, but with EBV. In Aug. I got CV, so now super weak still after a month. Do you or have you had any autoimmune disease? I really think that is the difference in us why we don't heal completely like others do. Our immune systems are super busy already with latent infection or autoimmune. Read my other posts. Hoping something in them will help you or put you on a new path to discovery. I've been investigating symptoms, mostly the fatigue, for 30 yrs! Take care and don't give up. There are many who have recovered. Just takes a while with the AI diet and wholistic protocols.
In 2020 I dealt with many of the symptoms and the consequences were debilitating and depressing. At the suggestion of an ER physician I began wearing compression hose. There seemed to be so much wrong that we couldn't get a handle on, but the hose worked on the fluid retention. Results of a full cardio workup were clear with the exception of an enlarged ascending aorta. Two anaphylaxis events in close proximity time frame were clues of a dysfunction of the mitochondria. The possibility of POTS was never explored, but should have been. Adopting an eating plan void of histamine triggering foods, coupled with drastic weight loss, and taking H1 and H2 antihistamines has been the ticket back to excellent health.
Glad to hear it! Yes I'm on a AI Paleo diet and lost 30 lbs without trying. Did allergy drop therapy 4 yrs. Helped with the severity of spring and fall symptoms. What are H1 and H2 antihistamines? May help with mast cell activation. I take quercetin, natural. It also helps tamp down the histamine.
Thank you so much for this amazing informative video. I been 10 times in London A&E and every single time they told me was anxiety. I am an athlete and I would say nobody have anxiety just when sited or standing and it passes when you lying down. After months of frustration my mother took me to Brazil and after one week I was diagnosed with Pots. The Tilt test was essential. I am learning so much from this video but I am wondering why nobody is mentioning temperature. Huge part of my management is using air conditioning at 18-20 degrees C and never eating warm or hot food. In some cases eating sorbet is the quickest form to feel better again because the ingestion of cold food have a quicker response. Can you tell me something about temperature and Pots? Also for how long you can use fludocortisone? Is that limit of 1 year? I much appreciated you all
Very common for temperature regulation to be affected with dysautonomia / POTS - one of the keys roles of the autonomic system is to manage temperature!
I started on Lisinopril and all of my covid symptoms came back after being symptom free for 5 weeks. Now a month after trying lisinopril which I am no longer taking I can barely get out of bed for more than 30 min. Im dizzy, light headed, brain fogged, weak and lethargic. Anxiety is really bad as well. They are saying its long haul covid, but I was fine till I tried lisinopril. Not sure what to do, something is wrong with me and these doctors are not concerned.
I heard that before too. You’re not alone, find a group of long haulers aka Long Covid on Facebook or other websites. They can help you, like I said you’re not alone, thousands of people are going through this
Same symptoms as yours 1 1/2 months after Covid19... No one is ready to understand... Vertigo, dizziness,brain fog, nauseated, racing heart, breathlessness, fatigue,, can hardly walk, post nasal drip,...going thru bad days
Thank you Gez! I was wondering - you talk a lot about 'breath work' - what specific breath work do you do? Box breathing? Yoga breathing? BTW - thanks so much for your Psychology of Long Covid vid - that shot of you standing at the back of the ambulance has done more for my positivity than all the 'Stop, Stop, Stops' I've been trying to do on the GP!
Hey Mark, thanks for the comment! Re breathwork, I most often do an adapted 4/7/8 pattern with a hold after the exhale. I also do a 5/5 sometimes too with no holds. Box breathing is also good!
Something that ties into it, I think has to do with the 2 enzymes that we lack in digesting GMO wheat and gluten. We have little pin holes throughout our intestines and our food etc. leak out into our system and causes massive inflammation. Then there is the over use of antibiotics. Barbara O Neill says to drink bone broth. What do you all say Run-DMC Get Medinger?
Different entirely, but one thing to take into consideration is that a T3 thyroid medication (Amour throid) can cause POTS symptoms in people as a side effect of the med after having taken the medication for years...which was my case. I was diagnosed with POTS by a cardiologist but the typical meds to treat POTS did nothing for me. Dr suggested I take two 100mg tablets of salt per day. The salt tablets gave me migraines every day. The cardiologist had no idea why. I was in a POTS fb group and asked the question....and someone mentioned that thyroid issues go hand in hand with POTS (meaning ppl tend to have both conditions at the same time). A very knowledgeable person mentioned this thing about the natural thyroid T3 pill side effect was POTS symptoms. (I'd been on the T3 med for 8 yrs....we would never have suspected that that med was causing this issue. I had been developing the POTS symptoms on a very, very, slow basis but was always dismissed by drs...'oh, you just need to stand up more slowly'...so after you get that same quip over the course of 20 yrs, I stopped bringing it up. But once I was aware of the thyroid side effect, I mentioned it to my dr...she said yes, definitely. Once I stopped the T3 thyroid rx...the symptoms disappeared. Later she gave me a different T3 rx, POTS symptoms came back. Stopped that rx too. Just for someone to be aware of this possibility. American Alan Policinki has done tons of research with POTS in the hypermobile population. Hypermobility and connective tissue disorders are very undiagnosed. At my insistence and having to wait a yr to see a dr (only one specialist within a 500 mile radius in my state in US)...only diagnosed at age 53 with hypermobility spectrum disorder....it's in the connective tissue disorder family. No cure, drs are reluctant to even diagnose as there is no treatment and they see no reason to diagnose. But other coexisting conditions aren't diagnosed either. Once you get one diagnosed, drs begin to recognize the other coexisting conditions that exist and those conditions are the ones that can be managed like POTS, etc.
After have covid. My heart rate goes from 65 to 150 upon standing. I have passed out multiple times injuring and bruising my face. I have extreme fatigue, joint muscle pain, migraines,serious continuous GI problems, brain fog, numb painful extremities, chest pain, and the feeling that my veins are throbbing and want to explode in my extremities. My GP says I have "anxiety" and has written me off as crazy woman syndrome apparently. How come I don't have anxiety and racing pulse EVER when I lay flat? Here in the states I'm trying to change GP. 3 month waiting period. Our medical system is seriously fucked.
@@r41099 I got pots after covid in 2020. My pots and long covid went undiagnosed, and i didnt know what it was. That was before anyone new covid could cause long standing sickness aka long covid, or connected it to pots. My symptoms of pots/ long covid persisted for 8 months . They alleviated 2 weeks after my second jab. Then in late December 2021 I got covid again. My pots symptoms returned. I am dealing now with a second flare up of pots.
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet. Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
doctors, family, and clients thought i was just depressed of had a conversion disorder. finally, was diagnosed with adrenogenic POTS. am head on pillow most days no matter how hard i try to do exercizes. if i go out,, i collapse within an hour, so i stay home. i do the elctrolytes, K+, salt. water. etc... moringa and spirulina helps a lot but not enough. am hoping that now it is getting more press from long covid, more research will find treatments.
I ended up visiting a cardiologist. My cardiologist told me that my symptoms are caused by the MVP and Mitral and Tricupidal regurgitation. At the same time, he also mentions that I suffer from anxiety disorder. He doesn't seem remotely concerned about my heart diagnosis. He didn't give me any meds for MVP/MVR. He just told me to do a yearly heart echocardiogram. Nothing more, nothing less. What's interesting about my cardiologist is that he links MVP symptoms with anxiety disorder symptoms. He told me that no one will tell you this link between anxiety disorder symptoms and MVP. According to him, anxiety disorder symptoms are just a byproduct of the issue with MVP. In other words, the root problem is actually MVP, according to him.
If you’re suffering from dizziness, nausea, headaches, palpitations, high HR - this can all be dysautonomia (commonly associated with fatigue) without being POTS
Something I hope this POTs Dr realizes (this according to my allergist who is familiar with all these other conditions) is that antiinflammatories may make people with MAST cell reactions feel better, but there is still a reaction going on inside where these MAST cells are still at work, attacking inner organs. I also wonder if all these different conditions may all be neurologic. If Autonomic Neuropathy disregulates automatic functions of the body, couldn't it be linked to many disorders? In fact causing them? Some in specific areas, some in others, and some affecting the entire body?
With sodium what about if have leg swelling and elevated bp with activity. I did notice with slightly inc sodium on more active days swelling decreases with sodium increase in diet
Hi thank you very much for this information. I am wondering if you know if their is any connection between restless leg syndrome/perodic limb movement and Post Covid or POTS? I believe I had a very very slight condition before getting covid in sepetmer 2021 but now I am getting these muscle twitches and shocks that are effecting my sleep a lot. I have also experienced all the other long covid symptoms for the past 6 months, with the heart rate jumping up out of the blue, fatigue, nausea, slight chest discomfort.
I hav the post Covid bs now. Major hair loss in clumps, rapid heart rate from even a LIGHT 10 sec jog, I have the POTS. Most of my issues though relate to my cardio.. Like I WISH I could just RUNNNNN. Ive never been a runner.. But I know if it went away now, I would run everyday. What you take for granite (granted - R&M joke) But I will say Ive had POTS long before Covid. It was off and on and I noticed I only got it when I would be really inactive or sitting and laying a lot. I was really into gaming so I would lay in be with my keyboard on my lap playing my game, and I would eventually have that issue. I think IF Covid didnt cause it, it starts in the gut. If youre having gut issues youre most likely having the pots from that. Or the fact that Covid knocks you down for a long period and causing it. What Ive found to work in this case is CoQ10. It really helps with the fatigue and the POTS, and I feel like the rapid heart rate. BUT I DEFINITELY have more heart skips (cant remember the term) Thats the only downside. So I definitely feel like being on your feet more often will help a lot.
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet. Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
I have an interesting anecdote about a woman with Parkinson's and orthostatic hypotension who reported on a forum (she seems fairly reliable) that her OH resolved after starting Flecainide, a sodium channel blocker (Nav 1.5), for Afib. In addition to cardiomyocytes, Nav 1.5 is also expressed by neurons in brain, not sure if it is expressed by neurons elsewhere. OH in PD is said to be caused by sympathetic denervation of the heart.
If this is an autoimmune condition, then it would seem like sodium would worsen it since there are studies showing that sodium exacerbates autoimmunity and others linking sodium to increased inflammation. On the other hand, there was a trial of multiple sclerosis patients that showed no worsening with increased salt intake. There was also a mouse study for Multiple System Atrophy - not known to be autoimmune, a neurodegenerative disease that causes autonomic dysfunction including OH that showed that although markers of neuroinflammation increased there was not worsening of disease progression with high salt diet. So I would be curious to see a study of long term sodium intake in POTS vs. progression & biomarkers of inflammation (including auto-antibody levels, if these can be identified).
I’ve just had covid and I have had pots for years. My brain fog that I usually get in the mornings has ramped up to all day at the moment. Walking up the stairs was bad but it’s exhausting now. I hope it gets better soon. As for coat hanger/stomach pain, I think pots sufferers naturally tense parts of their body when upright to counteract symptoms (I know I do). I’ve recently heard of the vaccine causing pots now too and those I have seen this in are men interestingly.
There are so many people with POTS following the 💉 and awful long covid type symptoms - me included. Lots of research now calling it vaccine induced long covid
Hi Gez - had my second vaccine in June was feeling better but the IBS and pain/fatigue started to return. I have been taking Coq10 150 mg it had helped but decided to try ubiquinol version of Coq10- 100mg , what difference in 2 days , fatigue and pain massively reduced. Will keep you posted
@@SagarGol sorry there are two forms of coq10 ubiquone and ubiquinol. Ubiquinol helped more for muscle pain but the ubiquone version reduced my tachycardia more.
Can a sudden discontinued use of caffeine ( such as high use of caffeine drinks daily ) cause the autonomic system to become dis- regulated? I noted some Covid survivors stop drinking fluids due to taste issues or just from taking healthier fluids while Ill. The headaches could be withdrawal from caffeine as well…I noted one person having the headaches early in then resolving a couple or so weeks later … Okay, just heard the doctor state that the subjects had been hyper mobile - for the most part - so perhaps the sudden immobility, in some, might affect the automatic regulation to compensate for sudden immobility when Ill? And is the vagus nerve looked at in some of these patients who have been supine for too long ? Anyway, interesting and complex issues for research .
Thank you so much. I have long covid since March 2020 and caught covid again June 2022, 6 weeks on I have this racing heart after coming up stairs (117 beatspm) or going a short walk (125beatspm). Slows down right away if I sit down thankfully. Its horrible and I didn't have this previously as part of my lc symptoms.
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet. Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
@@CelestialTrailblazer i feel worse especially in the first 6 hours after waking up. Additionally foods that increase stomach acid make palpitations worse. I feel more comfortable when I'm hungry. I have had this problem for 4 years and doctors do not understand. What do you suggest me? What kind of treatment do you follow? Please help
I ended up visiting a cardiologist. My cardiologist told me that my symptoms are caused by the MVP and Mitral and Tricupidal regurgitation. At the same time, he also mentions that I suffer from anxiety disorder. He doesn't seem remotely concerned about my heart diagnosis. He didn't give me any meds for MVP/MVR. He just told me to do a yearly heart echocardiogram. Nothing more, nothing less. What's interesting about my cardiologist is that he links MVP symptoms with anxiety disorder symptoms. He told me that no one will tell you this link between anxiety disorder symptoms and MVP. According to him, anxiety disorder symptoms are just a byproduct of the issue with MVP. In other words, the root problem is actually MVP, according to him.
I can't wear those stockings around my neck I get it on the side of my neck to the back where my hand can touch it and it hurts I can't turn my head but it goes away my husband has it in his elbow we're both early 60s
That's the problem. I can't due to an abnormal high pulse rate and shortness of breath. I have MVP with mild regurgitation and mild tricuspid and trace pulmonic regurgitation. All probably, either caused by over exertion since I used to be a weightlifter or from shoveling snow for hours in frigid temperatures or from post cov!d damage. I had zero symptoms until April 2021. Also, a cardiologist will not tell you to stop exercising even though they know that your MVP will progress further if you put yourself in a situation where your heart requires more work. People with MVP with MVR, regardless of stage, will experience abnormal high pulse rate upon slight exertion. (A lot of times they don't notice it or pay much attention to it unless he/she uses a finger pulse oximeter to check). So, even at rest, if you sneeze you will notice that if you use a finger pulse oximeter to check your pulse immediately after a sneeze at rest, you will notice that your resting heart rate is clocking in at 130bpm to 160bpm. (That's what I've noticed in my case). I even experimented with family members who didn't have MVP or any heart/heart rhythm problems. They don't have this abnormally high spike in heart rate from slight exertion or any drastic changes even at rest. Also, a cardiologist in most cases has no idea how it feels to have a 160+ resting heart rate. It's because most never experienced it themselves. They go by what they learned in medical schools. If they knew what the patient feels, then they would've understood that you can't exercise when your heart rate is that high so easily just from slight exertion or movement. You will immediately feel shortness of breath and dizziness and even chest pains. Doctors in the medical field consider MVP in general a non-emergency issue unless the patient reaches a point when they require surgery. I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
I know I have pods I thought it was from my cancer or I had a mild brain stroke but I'm doing good with all those but I just thought was that I'm curious of the age group of women that get I'm 61 I know I haven'tp o tS
How to increase salt intake if you have high bp...I am facing POTs with hypertension and my bp is contanstly high however in evenings when I do long standings sttings and activity it drops
My symptoms are now only depression, insomnia and fatigue. Fatigue comes and goes. It can still be debilitating. What have you found that works most for you?
take 2 x 1000mg caps liposomal vit c every hour 12 hours a day do that each day until all symptoms have gone,it takes a few days ,it will clear the viral debris out of your system and calm the immune system down ,if you want the full healing protocol message me,
@@chenaniahmay4541 yes ,thats whats keeping you stuck in sickness ,if you dont have leaking gut syndrome you can heal in days from this hell ,i will give you 2 very powerful methods to clear viral debris out of your system,take 18mg ivermectin 50mg zinc 1500mg combined caplet quercetin/bromelian take with water on an empty stomache for 4 days ina row,most get a fantastic result about 12 hours after taking the first dose of ivm zinc and quercetin/bromelain if you cant get ivm zinc and quercetin/bromelain take this 2 x 1000mg caps lipsomal vit c every hour for 12 hours a day do that each day until all symptoms are gone,it wont take long both of these have very powerful anti viral mechanisms of action and they are both very safe ,when you have done that you have to address the low atp levels by raising the critical glutathione levels if you take exactly what i say in days the levels will rise and your immune system will have the fuel to work take 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 x kelp tablet morn/eve - 1 x 1500mg combined caplet quercetin/bromelain morn/eve take this with food,the quercetin/bromelain plays an absolutely vital part in this healing protocol it makes sure its all digested and all the levels rocket,donot take this and that you will end up with imbalances ,this protocol is complete,the vitamins are already completed no sunshine needed,vital info for dark skinned folks ,i have healed post viral conditions that have been in place for over 30 years in ten days
Beta blockers - I have some misgivings about them since they have been linked to increased risk of Parkinson's. My father had Multiple System Atrophy and my daughter had neuroleptic malignant syndrome from Reglan, so maybe more of a concern for my family than others.
Thank you for bringing up how hard it is to get referrals and be taken seriously with conditions like this, but also how to advocate for it. Sometimes it really feels like half the battle with long covid is to get help for it in the first place.
It really is, thank you Kat
Hi again everyone! I just thought of 2 things I'd add that may help some of you. I take CoQ10 every day and if I don't, the tachardyia comes back. Also, grated ginger in my drinks helps the migraines. They are not as frequent. Don't give up. One thing that helps me be determined is hearing about all patients stories and trials and seeing that so many are worse off than I and true warriors! It is heart wrenching to hear and I feel so sorry for them. Can't do this too often or will affect me emotionally which is also a stress and energy zapper. Putting on music that is uplifting and calming is, I've found,a good way to de-stress and gain a little more energy. To your health!!
what strength of CoQ10 you take everyday? 100 mg?
@@zulamom It's 250 mg and brand is Triquetra.
Hi Laura,how are you now?
Thanks for sharing. This is very helpful.
Thanks I'm trying but it's never enough for people...I use to work for four veterinarians . Animals even stress out in kennels.I wouldn't be shocked if I dropped dead from pots
Thanks so much for this, my teenager was diagnosed privately by Dr Gall 7 months ago, she had been suffering symptoms since early 2019, age 15. After several (4) A&E admissions, where her heart rate was 170, the first thing the Drs said was calm down, and traumatised her and said nothing wrong with her and got really short with her! After I had a heated discussion with a cardiologist on the phone , I felt I had no choice but to go privately - the best thing I ever did. I am dreading it when eventually she will be transferred back to the local hospital where the understanding of POTS is non-existent.
Very glad to hear you’ve finally got some help Lucinda!
How non- existent
@@prathamrballal1229 Really??? Lets hope you don't get it then as it's as real as it gets!!!
How much did you have to pay to be seen by him?
@@prathamrballal1229 That is exactly the problem: in the case of the doctors they tend to be overloaded and have no ability to treat the problem. For better or worse in their world, they send the patient away.
Triage comes from the French "trier" meaning to sort; in medicine it is to sort patients into those who can be helped and those who cannot be helped or who don't need help. If the doctor doesn't know what to do or has more urgent cases he turns the patient away. His abilities are non-existent, but the problem is very real.
Thank you so much for putting this on RUclips! I'm in Minneapolis, Minnesota this rings true for those who have developed POTS from a Covid infection all over the globe.
Thanks again Gez! As depressing as it can be, as this thing seems never-ending at times, all this information can only be a good thing imo.. So massive appreciation to you & all involved in providing it! Hope you are doing okay at the mo anyways, All the Best!
Thanks Laura! Hope you’re doing ok too :)
@@RUNDMC1 I’m your opinion do you think most have lingering viral debris or is it something to do with our own immune and nervous system
I had a ablation, when it was actually pots not a SVT now live with a dual chamber pacemaker. I’m lucky to be here to be able to talk about it.
Thanks for uploading. Dr Gall is always worth a listen. His honesty about what isn't understood about PoTS and related conditions is refreshing.
Thank you for informing us here in the US Doctors here don't have a Clue on how to treat Patients that's going thru Long Covid
Nope they don't, its frustrating. I would have never found out that I had POTS from Covid if it wasn't for my long covid support group.
@@autumnthomas3923 please donot listen to these fools,its fake pharmasautical science,if you want to heal message me and will type out a protocol that swiftly ends long covid and all the other nonsense that comes with it,long covid and post viral conditions can be completely healed in ten days,if they have damaged gut that heals first ten days and ten days to heal
@@autumnthomas3923 is a Facebook group or forums. Pls let me know, I have the same thing
@@Beekind799 you're misleading people
drink the miracle mineral solution it ends all post viral conditions in less than 12 hours thats why big pharma banned it in america the cost of the miracle 9.20 uk pounds
i am very sorry for everybody, who suffers by POTS because of long covid. But i as a longtime pots woman hope, that this illness will get more attention now. I am having POTS for 20 years now and it took me 15 years even to get a diagnosis. And without searching for a doctor who knows POTS for about 3 years, i wouldn´t have the diagnosis until now.
Really helpful, thank you, including for patients with HEDS/ HSD, and ME/CFS.
Thanks Francesca!
Thank you!! This was so helpful, I have been so confused about all the different POTS medications and which is the best one to take. I have a much better idea now what to discuss at my next neurology appointment. You guys are doing a fabulous job, I am so grateful for all your efforts putting these videos together while suffering yourself with LC! It really is appreciated!
I appreciate this information.
I've been struggling with long covid symptoms ever since October 2021. Doctors keep dismissing it as Anxiety, NOPE! I know my body and Anxiety is the response to me feeling horrible 😭
same here...No, I am anxious BECAUSE my heart is racing and my bp has skyrocketed! How are you doing now?
@@judymiller5154 much better now but I didn't get much relief until February. I was working with my medical Doc & Naturopath
This "virus" isn't natural, I have no doubt of that. I hope you get relief soon, Sending Prayers your way
@@ladyvirgo013 thanks. glad to hear you are improving. funny thing, once I addressed histamines my "anxiety" went away! worst I get now days is a stronger pulse if I make a food mistake. God bless ❤🙏❤
@@judymiller5154 God Bless You too. High Histamine was a major issue for me too
Omg yes yes yes same!
My primary physician and a heart specialist both missed this following three fainting (syncope) and ER incidents. A functional holistic doctor knew immediately that it was POTS upon hearing my symptoms. I also have neuropathy in my feet and multiple allergies. Check your blood pressure and heart rate from three positions: sitting, standing and supine. From sitting to standing, my blood pressure dropped and heart rate increased significantly. If you have POTS, research vagus nerve issues. A whiplash injury and frozen shoulder affected the curvature of my neck which in turn affected the vagus nerve. There’s an intriguing treatment that may help that is called Prolotherapy. That will be my next step. It was interesting to hear allergies being discussed. Allergy shots and antihistamines have never affected POTS for me.
i can heal you ,if you want the protocol to over turn all post viral conditions message me,to overcome these conditions you have got to understand whats causing it,address that and you regain your health,takes ten days
I agree that throwing H1 & H2 blockers at this issue only works for extremely mild cases, at least in my experience.
@@Beekind799 you don’t think it’s from the vagus nerve, you think it’s from viral debris?
How are you doing now? Did this help your pots symptoms?
@@rudygonzales3589 i think its viral debris in the nervous system ,if it moves the immune system spits out cytokine storms in the nervous system,that will cause inflammation ,i think its a post viral symptom ,drink the mms it will clear the viral debris out of the nervous system and heal long covid too
Four months into long Covid and just diagnosed with Dysautonomia. So grateful for this incredibly helpful video!
Best of luck with your recovery Kate!
@@RUNDMC1 Thank you!
@@KateHarmonSiberine how are you doing?
Your lucky to be going to a Dr who is listening to you💞
Had covid from first wave. One of my symptoms are racing heart beat, it races back and forth between 20 to 30 beats . Then something triggers it, and my heart will hit 160 beats , and breathlessness when I am relaxing.
Doctors keep telling me, I am ok which is so frustrating and I know I am not. I'm a athlete who can't even run anymore, as my heart instantly jumps to 160 170 before I even warm up 🤬 plus I have crazy fatigue. If I can get rid of these two last symptoms I would be perfect.
please take this to clear the dead virus particles out of your system what your weak immune system cant do,the cause of your problems low atp levels coming from low levels of the bodies foundation for health the bodies most vital critical amino acid the glutathione,if that lowers it causes a catastrophic domino effect on the nutritional levels,the main cause is eating toxic gm food,americas food chain is toxic and so is the uk 90 percent of the animal feed is toxic gm feed,take this to clear the dead virus particles out of your system,its awful to see an athlete sick so i reach out so you can understand whats going on in your own body,take 2 x 1000mg caps liposomal vit c every hour for 12 hours a day do that each day until all symptoms have gone,it doesnot take long in high doses liposomal vit c is a very powerful anti viral and a very powerful immunoimodulator,it calms the immune system right down,its very safe you cannot overdose on high doses liposomal vit c incidentally all you had to do when you first got symptoms was take 2 x 1000mg caps liposomal vit c every hour until all symptoms was gone,when you have cleared the viral debris out of your system you have got to address the low atp levels coming from low glutathione levels this protocol is absolutely complete i can assure you if you take exactly this what i say not all kinds of this and that but exactly what i say you will be running again sooner than you think, to boost immunity take with food 2 x 600mg caps n.a.c.morn/eve this mixes with the selenium in the beef liver extract that makes the critical glutathione - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 kelp tablets - 1 x 1500mg combined caplet quercetin/bromelain morn/eve this protocol is designed to regain health safely and quickly the quercetin/bromelain plays an absolutely critical part in this healing protocol,the low atp levels lowers the digestive enzyme levels ,they cant digest stuff thats where the quercetin/bromelain breaks that viciuos circle that so many are trapped in ,the levels rocket and you regain your health faster,doctors cannot help you because they dont have this knowledge,i share it with you,if you want to regain your health here it is ,the crazy heart beat and the fatigue its the dead virus particles causing that ,the high dose liposomal vit c will clear the dead virus particles out of your system in days safely and all that stuff stops
@@Beekind799 what is atp level? And what is the 600mg of nac? I have the same symptoms and need help. My vitamin d level is 44 just got my results back. I have racing heart and fatigue really bad. I get weak in my legs and arms. All my tests have came back normal for my heart and blood. Can you help me, and are you legitimate! Are you a doctor and where can I find your website. I do t want to hurt my body any more than this covid crap has done. I eat organic and don't eat processed food, well most of the time. Can my stomach take all that vitamin C? Are they coated? I am ordering some from amazon the same C you said to get. I dont know what that other stuff is you said to use. I also am taking 20,000iu of D3. Please help!
@@user-fd1qb7ml2j atp is the fuel that powers your immune system,.n.a.c. is n acetyl cysteine it mixes with the selenium in the beef liver extract that raises he glutathione that raises the atp levels ,go on ebay type in mineral solution set scroll down you are after 2 plastic bottles with a yellow and green cap 2 x 33 ml cost 7.49 uk pounds that s the miracle mineral solution,put 8 drops of sodium solution in the bottom of a glass add 8 drops of citric activator let it mix for 20 seconds it goes dark now fill the glass up with water and drink it slowly on a totally empty stomache,in about 8 hours the dead virus particles will be expelled and you will feel much better,mms isnot bleach ,mms is used for making drinking water safe if you used bleach it would kill you,in 8 hours all the pain misery and suffering all gone and you will say ahh so thats why they call it the miracle mineral solution,when you take that your body will be soar you can take high dose liposomal vit c for that take 2 x 1000mg caps liposomal vit c every hour until you feel better,then take the protocol i said ,high dose liposomal vit c doesnot effect the stomache in any way you wont even know you have taken them then take with food 2 x 600mg capsn.a.c.morn/eve - 1 x 1000mg caps cod liver oil and fish oil - 2 kelp tablets - 2 x 750mg caps beef liver extract morn/eve - 1 x 1500mg combined caplet quercetin/bromelain morn/eve this protocol is complete ,send me a thumbs up in ten days when you are bursting with energy,i have seen mms end post viral conditions that have been in place for over 30 years,in about 8 hours then they have to take the protocol what i say not all kinds of this and that,but what i say,i am a biological systems engineer fully trained on the 5 box immune system,i have forgotten more about the immune system than any doctor is taught ,ebay is where you can get all of it make sure you buy from high feed back sellers ,you can take high dose liposomal vit c every hour for 12 hours aday do tha teach day until all symptoms have gone,the mms is the fastest and easiest route ,make sure the stomache is totally empty,i wouldnot tell someone to take something that was dangerous
@@Beekind799 i think i will do the vitamin C route. But the other items, do I need to do those? Are they immune building minerals? I see you have the nac, and other things. What about beef liver and heart, can I just eat them? Thank you for all your help!
Vidatek,
I have the racing heart also, and fatigue. I am taking Metopropol for my heart rate, but it still goes up to 125 when I'm sleeping it wakes me up . Ive had all the tests for my heart and they say everything looks good and that this is covid causing this. Also my fatigue is good one day and then bad for the next. I am asking the gentleman you spoke with what protocol to use. Do you get dizzy also and feel weak arms and legs! I dont get out of breath, I just can't breathe in deep sometimes and get chest pain.
Thanks Gez and Asad!
Thanks Edward, for your continued support!
I'm a doctor with long Covid. Your work here on this channel has helped me so much. Thank you. Dysautonomia seems to be the common thread that links most symptoms. I saw this year's ago with CFS patients and although my understanding then was so much less, I was still able to help them much more than most simply because I recognised it as a physiological syndrome rather than a psychological one. I wonder about how regular breathing exercises might help to retrain the autonomic nervous system and what sort of exercises are best. Perhaps they are the exercises that maximally stimulate the vagus nerve. I haven't been able to find any research on this area yet, but I am practicing on myself. Perhaps even just regular vasalva maneuvers, and trying to extend the time of doing this. I wonder if this could be even more effective than the exercises usually prescribed. Do you know anyone doing work in this area?
doctor can you tell me why you have long covid please ,if you cant tell me what causes long covid how are you going to fix it,long covid and all post viral conditions are kept in place by one low level,if that isnot addressed it will be very difficult to regain your health,i have healed post viral conditions that have been in place for over 30 years in less than ten days ,its very easy for me,i am not a trained symptom treater,i am a biological systems engineer fully trained on the 5 box immune system,these fake pharmasautical science people love to talk about the 1001 different dysfunctional reactions what occur with a dysfunctional immune system,this is fake pharmasautical science at its very worst,how about addressing the cause of the dysfunctioal immune system,now theres a novel idea,if you want to heal message me and i will type out the protocol ,most americans have damaged guts from eating gm foods that has to be healed first ,i have healed 1000s of americans
Hi Attila - I have found cold water swimming to be a great help. Its not the swimming but the cold that has the effect. I have suffered from the POTS / anxiety effects of Dysautonomia and have found that cold water immersion can have an immediate and powerful effect. If nothing else it can help get people through the bad times and is at least something positive you can do.
@RUN-DMC - you often mention how much breath work helps you. What breathing exercises do you do specifically? Box breathing? Thank you for all that you are doing - that picture of you in front of the ambulance in the last vid gave me more hope than anything I've seen so far!!
@@markanslow4720 are you a covid long hauler,your weak immune system cant expel the dead virus particles from your system,you have low atp levels tahts what a weak immune system is,low atp is coming from low glutathione levels,eating toxic gm foods has made america the sickest country on earth,when you firts got covid all you had to do was take 2 x 1000mg caps liposomal vit c every hour until all the symptoms where gone,no covid long haulers ,i can tell you how to regain your health,if you have an auto immune condition taht gets healed first that takes ten days then ten days to clear the virus debris out of your system and boost the immune system,theres so many covid long haulers ,its ridiculous,its easily over come if you message me i will type out the protocol ,approx cost 100 dollars for 3 months supply
I think what technique works might depend on the individual.
I used my HRV monitor (Elite HRV - CorSense unit) to try personalized resonance breathing - which turned out to be the standard 4/6 pattern. I got dizzy after ~5 min and could not complete a full 20 min session. Here's a video from Elite HRV that includes instructions on how to do it:
ruclips.net/video/EIi1Tc5i8s4/видео.html
I also tried box breathing - dizzy also. I was about to give up when I tried Andrew Weil's 4-7-8 - I am fortunate to experience the immediate feeling of calm and well-being that Weil describes. I noticed that during my morning HRV reading my heart rate will sometimes go from an abnormally low RHR, like around 48 (normal for me is 58) and then get into a weird spiking pattern (up to 130) even though I don't feel it racing or anything. This pattern would usually occur the day after I had exercised. If I do the 4-7-8 it will normalize. ruclips.net/video/_-C_VNM1Vd0/видео.html
A couple of weeks ago I started taking -carnosine- carnitine fumarate and I think that may be helping, that's in addition to ALCAR which I had been taking for years now. I think consuming a lot of purple foods helps (anthocyanins) and also lemon balm in moderation (they improve brain circulation).
I stopped exercising for a while and have resumed, but at reduced level. I used to do cardio in the morning fasted since I felt an empty stomach was better in terms of mast cell activation, but after finding out that fatty acid oxidation is much higher in afternoon (see Rhonda Patrick's recent interview with S. Panda), I switched to afternoons. Here's link to the interview: ruclips.net/video/MWngLVQg2Os/видео.html
My mast cells have been much calmer of late, so I think that helps me tolerate the afternoon exercise better than I would have in past months.
Excellent as usual Gez and very pertinent for me. I finally managed to get a cardiology referral after complaining to my GP practice manager backed by a supporting email from a Cardiologist colleague. It really shouldn’t be this difficult to access secondary care facilities. Confirmed POTS yesterday but my Cardiologist admitted to not really having an understanding of the condition. Been prescribed a 3 week course of steroids ! Not sure if that’s going to help!! Keep up the great work, you are helping so many people out there 👍
Let us know how you get on on the steroids - what’s the dose?
Prednisolone 35mg per day for 3 weeks. I’ll keep you posted.
Update - steroids made me feel worse and put me into a big crash. No effect on the POTS and definitely didn’t help with fatigue. Stopped after a week.
@@stephenhocking9467 I was on 10 mg of Prednisone for two months felt way better almost back to normal.
On it, I was walking two miles a day. I could chill with friends. Still feel a bit tired.
The side effect was back acne, short temper, anxiety went up.
Unfortunately, my blood pressure was through the roof so they took me off it.
I also developed food intolerance for carbs and sugar that forced to eat nothing but meat, water, minerals and vitamins. It keeps stably, but unfortunately not functional enough to work or have a social life.
I hope it helps 👍🏼
@@stephenhocking9467 wow, according to flccc that is the protocol. How are you doing now, please respond
Lovely and heart warming to listen to pleasant kind and CARING doctor thank you so much...thank you Gez for intro good to learn of you cheers
Hypermobile person here and I believe this is the underlying issue that predisposed me to long covid. So good to hear it mentioned here! Compression socks + other compression clothing make a huge difference worth trying for all with long covid. Helps regulate lymph flow etc
How are you now
Thank you so much for this. Dr. Gall validated many symptoms and diagnoses I have. EBV is a major factor for me I believe, bcuz I had similar symptoms b4 I recently contracted Covid. I am extremely weak still even though it's been a month since the initial infection. So now, I'm praying I don't have long CV along with the ME/CFS. I have listened to sooo many docu videos from the conventional to the functional practitioners and this episode is about the best I've seen tying all the factors together. Neuro pathology I think is probably the main source of so many diverse symptoms. I believe that these viruses can damage nerves as well as the vaccines in autoimmune or immunocompromised people. In the past, I had a reaction to the rubella vaccine. Was mild but very strange muscle/tendon problems which gradually went away. I was advised by a rheumatologist then in 1994, to stay away from vaccines. In 2021 I was diagnosed with autoimmune antibodies that attack the small nerve fibers. The antibodies were named TS-HDS and FGFR3. TS-HDS attacks the natural heparin your body produces and which I assume can cause sticky sludging blood, and also is associated with sensory axons neuropathies. FGFR3 has also been associated with axonal sensory neuropathy as well as sensory ataxia. There are not many studies on them. This may be a reason for some people to not have proper blood flow in the brain and/or disrupted nerve transmission due to the damage, so they get dizzy, etc. ?? Just me trying to put the puzzle together. I hope this info will help others and also induce more research into this broad debilitating syndrome. Many thanks to all in this video!
Another superb piece thank you. Are these messages getting to the Royal Colleges, NHSE & NICE?
Thank you. This is really helpful. I now feel more optimistic that I can do something about these symptoms
My daughter started having symptoms of chest aches,palpitations at age 10. She was told she had anxiety and making up stories to get out of PE. Her symptoms further developed into chronic dizziness, nausea, headaches, stomach pain, stomach felt cold, chronic fatigue, neck and back pain, numbness and clammy hands and feet. Her extremities turn purple. She had painful, difficult periods, etc. By 13 she was completely debiltated. She then was told she's depressed and chosing not to eat and avoiding going to school. At 15, her Chinese medicine Dr. Finally referred her to a cardiologist who diagnosed her with Tachycardia/ neurocardiogenic syncope. At one point, when no one believed her or bothered to really look into why she wasn't functioning she became suicidal. She was bed ridden for two years.
So sorry to hear about this Holly :(
Iam 27 years old. I was fit and damn healthy.
Took my first covid shield vaccine shot in January, got slight chest heaviness, headache and fever the next day, was fine after that.
Then took my second covid shield vaccine shot in March, didn't get any symptoms from this second shot of vaccine.
The next month i.e in April I was tested covid positive & in next i.e in may i started to experience a hell lot of symptoms.
The series of events are mentioned below:-
-> Palpitations for no reason.
-> Palpitations in sleep for no stress and anxiety.
-> Heart pain and shortness of breath.
Due to this I was taken to ER couple of times, where EKG was normal many times, doctors there used to tell me that it's a stress and anxiety, but it was not the case.
So I decided to go for heart diagnose.
Here TMT, ECHO and other blood test showed normal values.
Atlast CT coronary angiography was carried out, here also the report did come normal.
Currently I still experienced heart pain and chest discomfort, but there is no shortness of breath.
Sometimes I don't have any symptoms while walking, running and climbing the stairs, but even at rest I can feel the heart pain.
Currently I am on beta blockers tablets(metoprolol 50g), currently the episode of Palpitations has reduced.
God help me from this.
Thanks china, for destroying my life and health 😢😭😭😭😭😭😭😭.
You can be in contact with me on instagram at instagram.com/shant_sangurdekar/?hl=en
Why did you take the “vaccine”? These shots are known to have severe adverse reactions. Much worse than COVID itself for young, healthy people.
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet.
Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
Try Vitamin B1! See the reseach of dr. derrick lonsdale and the yt-channel of eonutrition on high dose thiamin, it has helped me lots, i had similar symptoms and a strong deficit
I have to sleep in my recliner so my head is elevated and my legs are too somewhat. I just feel awful all the time, shortness of breath, tackicardia, headache constantly, sleeplessness, exhaustion, stressed emotional....I just want it to stop!!
I’m not a doctor but I was a neuro specialist occupational therapist, aka a sensory processing Occupational Therapist for 40 years NZ & UK.
I also have, I believe LC dysautonomia type.
From my experience the POTS signs and symptoms discussed in this talk also fulfil criteria for a number of conditions I treated regularly in myself & others;
Sensory modulation disorder,
Cervical instability at C1,C2 both present similar clusters and variability of symptoms involving vagus nerve impingement.
Not just previous infection but also structural injury and conditions where joint stability is compromised Ehres Danlos Syndrome that the sarscov2 debris seeks to hide.
The vagus nerve may also be a conduit between gut and brain as demonstrated in Parkinson’s disease.research.
Truely needs a trans disciplinary investigation across practice settings and specialities.
Silo thinking just won’t cut it. So frustrating!
Amazing... I've been telling Doctors all these symptoms since March 2021... They said it was anxiety. And it's called aging probably a bit of arthritis and I'm crazy, Like it's all in my head. That the pain moves and it feels as if it's in my blood. Bc the symptoms change. Daily.
Thank you Dr Gall for this very informative video. Thanks Gez and Asad for bringing this to us. There is much power for us in what Dr. Gall has said. I am also very impressed by his attitude and his ability to say Well we don't really know and Yes it is real, you are not mad. And for his recognition that there is a wealth of empirical evidence already in the system and that this needs to be looked at rather than waiting for the Officiial Trial. Thanks so much all of you. 😀❤
An absolute pleasure
Thank you for this! About a month after getting covid, I noticed my feet turning purple. That was at the same time my heart started racing. I went to the ER and the doctor laughed at me, after he looked at my purple feet. He also told me i needed a psychologist. Ugh
You need a new doctor!
I moved and I now have much better doctors.
Same with my doctor. My hands, feet and genitalia were turning purple. I was basically told to quit smoking, which I had done when I first got sick months before....
How is ur pots now
I had a similar experience, the doctor called Hypochondriac.
Now I have a better doctor that listens to me. To people having the same problem, I’d say don’t settle. Find someone else ASAP
On allergies - suddenly developed a horrendous response to the clothes washing products I’ve been using for years. The scent on the dried clothes brings on itchy throat and choking cough. Changed to smol which are great - sent by post too & cheaper.
Marcher covid, tachycardia started may, bradycardia too Oct, Many trips to A&E I ambulance when I callapsed, alongside
Severe head pressure, extreme insomnia, poor temp regulation, fatigue, gi issues..... Overnight significantly better after electro
Accupuncture a Japanese tormeter automic nervous system machine and slept through for first time since I'll woke up with clearer head, right temp and no further trips to A&E. Would really recommend.
I have been sick since a virus back in 2017. I total understand what the long covid community is going through. None of my doctors know what to do for me except send my onto the next specialist. Im so sorry yall are going through this but hopefully with all the research going on, we will all make it back out 🤗
are you still recovering from the virus you got in 2017?!
drink the miracle mineral solution it ends all post viral conditions in less than 12 hours,you have nutritional deficiencies making your immune system weak,its the dead viral debris in your system thats keeping you sick a drink of the miracle mineral solution ends all that fast
I second that wholeheartedly!
@@headfullofmusic422 Yes
Excellent as always Gez. I download your videos and watch them over and over so I am better equipped to inform my healthcare providers. American doctors are clueless when it comes to caring for long Covid. I'm amazed that they're not even curious!
On another note, do you know when the TLC conference will be available online? I paid for the conference as a patient, so I would have access to the conference at a later date, because I was traveling that weekend. I was refunded my money. But I would really like to see the conference.
Thank you for all you do and your insatiable curiosity 🤗
By the way, I diagnosed myself with MCAS as a result of your videos. My immunologist didn't agree with me for months, but confirmed MCAS with a tryptase test the last time I had an anaphylactic reaction in his office. Thanks again Jez! You are changing lives💕👍
Wow - I’m glad to have been able to make such a positive difference! I think you might be able to download the conference now - do you have an email contact (maybe Jess?) - in which case drop them a line. Thank you for the support Laura :)
When you look at NHS web site at long Covid symptoms and Anxiety symptoms there is a lot of similarity. It even says on MINDS web site that long Covid symptoms are similar. I guess there is still much to find out. I have long Covid and. anxiety (GAD) and symptoms relating to it but I do feel there is a lot more to this that isn’t known yet
The NHS is still wildly behind even it’s own specialists like Dr Gall unfortunately
If you go onto pots U.K. website there is a lot of information about pots and dysautonomia. Dr gall is my consultant he’s amazing
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet.
Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
@@CelestialTrailblazer what’s important is you got rid of them. They are so horrible. That’s very good
Great video! I was vaccine injured 8.5 months ago after my first shot of Pfizer. Mostly neurological and visual issues as well as sensitive to motion. I am also an athlete and worked out daily for most of my life. When lifting I would get heart rate increases when getting up from a bench and when laying back down my heartrate would drop to normal. I had no idea what was going on and just put up with it. As I had flair ups my symptoms became worse so I started paying more attention to what was going on and actually began researching this issue. I had never hear of POTS before. I now get dizzy when standing at times, and especially when going from laying to standing or pushup position to standing when working out. My neurologist just yesterday diagnosed this condition as Orthostatic Hypotension and told me to up my water intake ( I already drink plenty and have for years). I was also told to increase my salt intake. Again, very interesting video!
Best of luck with your recovery!
Hi, my daughter is in the same boat as you are. She is 15 and has been a competitive swimmer for 7 years. After second dose of pfizer she got sick within 24 hours. She started having heart palpitations, dizziness, shortness of breath. We had many ER visits and specialist appointment and nobody could give us any diagnosis. Then she was getting better and started having regular life. But a month back it came back and heart rate started going sky rocket. So doctor has to put her on her medication and salt and fluid in take high.She could hardly walk and her heart rate was 130/140. One doctor told it could be POTS and trying to treat her with steroid. This is has been so rough and so tough for young kid. I hope more research can be done and medical professionals should be more trained specially when vaccine has been done at mass scale. They should be made aware of all these adverse effects. We are in Canada and we can't even report it to Govt health site .
@@RUNDMC1 Thanks for the video.
@@SrabantiChittessschitte Terrible! I am going for a tilt table test next week with a Neurophysiologist. I am currently only working out 30 minutes a day and it's all laying down or sitting in a reclined position. I am signed up for a telehealth conference with Bruce Paterson's team and already have a doctor onboard that has used his protocol. Good luck to your daughter...
@@1cavscout160 hello How are you?
I have long covid. Tacacardia then referred to cardiologist. Neuro next. Manyyyyy long haul sytpoms across different syptoms. Im in US. Getting echo cardiogram next but cardiologist told me that there was one medication for POTS and she hasn't seen any insurance cover it and has seen noine who could afford it. Are there other meds I could ask about? I'm so frustrated. There is no formal full circle look at all of is as a whole long covid clinic near me. They are calling it long haul covid but when I ask they say you have a pcp that will.refer you tonspecialist. Well thats always been a role of pcp. Ill be having a very honest I need better care specific to long haul conversation. Cardiologist wants me exerting more. But it makes me completely drained when I do. I feel like this cardiologist is just trying to treat me not even considering long covid. Ok you have POTS now. No meds exercise is the key. Need to see a nutritionist. Bkue cross blue shield want cover unless i have diabetes. What? We may now have all the answers but it doesn't take much common sense that we need to make sure our bodies are being fed proper nutrition and with how we are feeling need help putting a durable plan together so we can ensure we are getting proper nutrition. Now let's talk about all the vitimems. The no insurance coverage cost per months. What we would have to go through and wait period for disability even temporary is an entire different topic. For US. I dont think I will be able to afford to take them after another month. Now let's do echo make sure heart structurally OK. Another thing. Having to wait two months to get to a specialist. When as a long covid patient. There are several needed. Its just a mess. People need help and a more structure case management systems. Its so overwhelming. I feel like I'm having to find answers myself. And it can hardly think. Leaving me with even more headaches and exhaustion. Not to mention I'm a single mom and I have no idea how I'm going to pay my bills soo . Its like long covid isn't real. Please keep adaptation and educating.. we need you.
Forwarding this to a friend who lives in another state. She’s been blacking out at least 3x a day since she had covid. They diagnosed her with POTS but can’t stop the black outs. She’s lost her drivers license & now her job, with 2 small kiddo’s to care for. I wish I could help her but I live, at least, a days drive away, & have severe osteoarthritis in both my hands. Watching also to see if there’s any pointers I can use for my POTS! Only I didn’t have Covid, I have Ehlers Danlos Syndrome.
I have high heart rate issues but am on propranolol. But the worst thing for me is the adrenaline surges. I get them during the day and at night and then I can’t sleep. They went away in the month of June but as of last night are back. Does anyone have any suggestions on how to stop this from happening. I am also taking amitriptyline 25 mg at night.
I would suggest reduce your amitriptyline as it can cause tachycardia
How are you now?
@@kuldeeptalukdar9494 I still get them. I had them off and on in august and September but very little. They came back with a vengeance this past week. I started getting dizzy last month around my menstrual cycle and the adrenaline surges started back up at night. I am able to fall asleep but usually not till midnight or 1. I think there has to be anxiety involved in this as well as POTS. I have had to learn to deal with the anxiety by doing deep breathing and stimulating vagus nerve and praying and giving all my fears and anxieties over to God. I seek refuge in scripture and that has been my biggest help! Thanks for asking.
@@carolhurt4087 Thats sounds like low iron ( ferritin levels )
@@kp968 I usually have iron levels that are always on the low end. And I know they probably dip around my cycle. I did increase my salt intake this past weekend and the dizziness subsided. I have not had the adrenaline surges for two nights now.
I used to get the tight chest.......with sharp shooting pains in my chest........and the lethargy/feeling faint so much so I had to lie down. A year later Im left with pain in my lower back and still a LOT of lethargy that Ive just had to get used to.......I ended up loosing my job because of this virus and now most days I just sleep the day away and feel exausted when I HAVE to do things. I get good days though where it feels almost like Im 100% recovered.
How are you now? How do u know u have pots?
Amazing. So very insightful. A hundred thank yous for your time.
It’s a pleasure Rose!
Thanks for your great work GEZ. What are your thoughts on Bruce Petterson and Dr Been "Spike Proteins In Immune Cells - Dr. Bruce Patterson Discusses COVID Long Haul" video which they postet recently. And have you tried the FLCCC protocol for long haul ? Have you had expierience with statins and CCR5 antagonist medication in combination with IVM ?
Hi Georg, I’ve not watched that video or tried the protocol yet so you’ll have to let me come back to you!
I’ve been trying to get a diagnosis for over 2 and a half years. I’m terribly frustrated! I had hyperparathyroidism and it was removed. My GP won’t order me any pain or anxiety meds. He also won’t order a microscopic fluoroscopy to look at my RBC. I’ve been asking for over a year if it could be long Covid. He said “ we don’t know how to diagnose long covid”.
How are your POTS symptoms Gez? If it wasn't for my POTS symptoms I'd probably feel somewhat normal
My pots symptoms are the only symptoms that are still lingering. I'm afraid it will never go away.
I’m fairly dysautonomic but not very POTS-y
@@RUNDMC1 Dr Peter Rowe in USA, Johns Hopkins, did research decades ago on Dysautonomia, Tilt Table Testing and medication, Florinef and salt. Some of his studies online. Dr. Lawrence B. Afrin, M.D. is an expert in USA on Mast Cell Activation Syndrome. His Book, Never Bet Against Occam. Great Book.
these people cannot tell you whats causing this ,thats why they cant heal it,message me i will tell you what causes long covid and how its easily overcome and all the related problems go away
@@Beekind799 you just keep trolling!
Could there be hope for me? I’ve had ME/CFS for 40 years - from aged 26. I’ve tried things myself - BUT have had NO help from NHS. All my life. 😢 This sounds like me.
So sorry to hear this Elaine :(
I'm definitely not a young lady suffering this. Gez I have talked to you about this on a different video. I'm still struggling with this. I just sent my Dr a message telling her I really need help with this. I'm getting dizzy and really feel horrible. I'm pretty upset that I'm not being listened to or helped.
Thank you for listening
Have you watched my films with Dr Boon Lim?
My heart started acting up after I had a bout of mild covid. My symptoms were I had major headache, I was dizzy, blurry eyesight, fever, light body aches, No cough. Then about 2 weeks later I felt better and felt I beat Covid. And about 3rd week my heart started skipping beats and felt like fluttering with a pound or heartbeat. It felt like it fluttered and the beat catches up. Now today my heart rhythm is not the same. I currently have a new heart beat. I also feel dizzy. I sometimes feel POTS when I get up from lying down.
The ekg showed PVCs and Nonspecific ST and T Wave abnormalities. Nobody can give me answers as to why or what is happening. My Dr says should go away with time.
I was vaccinated and boosted and sadly still I got covid a little over a month after I was boosted. I’m not the same today. I feel awful. Drs still doing test on my heart and really have no answers except they’re explaining that their seeing many new patients with heart irregularities now. And should go away with time.
Sadly I’m scared and don’t feel the same with my new heartbeat.
My family, sisters, parents, nieces, friends, so many friends, All were also vaccinated and some had covid multiple times. They had mild cold symptoms or flu symptoms but no heart problems. I’m the only one.
So sorry to hear that your life has changed for the worse. I have had all those identical symptoms, but with EBV. In Aug. I got CV, so now super weak still after a month. Do you or have you had any autoimmune disease? I really think that is the difference in us why we don't heal completely like others do. Our immune systems are super busy already with latent infection or autoimmune. Read my other posts. Hoping something in them will help you or put you on a new path to discovery. I've been investigating symptoms, mostly the fatigue, for 30 yrs! Take care and don't give up. There are many who have recovered. Just takes a while with the AI diet and wholistic protocols.
I feel the same way except I wasn't vaccinated.
In 2020 I dealt with many of the symptoms and the consequences were debilitating and depressing. At the suggestion of an ER physician I began wearing compression hose. There seemed to be so much wrong that we couldn't get a handle on, but the hose worked on the fluid retention.
Results of a full cardio workup were clear with the exception of an enlarged ascending aorta. Two anaphylaxis events in close proximity time frame were clues of a dysfunction of the mitochondria. The possibility of POTS was never explored, but should have been.
Adopting an eating plan void of histamine triggering foods, coupled with drastic weight loss, and taking H1 and H2 antihistamines has been the ticket back to excellent health.
How is ur pots now?
how were you able to lose weight with pots? i’m struggling right now
Hi so did your pots resolve by doing those things?
Glad to hear it! Yes I'm on a AI Paleo diet and lost 30 lbs without trying. Did allergy drop therapy 4 yrs. Helped with the severity of spring and fall symptoms. What are H1 and H2 antihistamines? May help with mast cell activation. I take quercetin, natural. It also helps tamp down the histamine.
Thank you
Thank you so much for this amazing informative video. I been 10 times in London A&E and every single time they told me was anxiety. I am an athlete and I would say nobody have anxiety just when sited or standing and it passes when you lying down. After months of frustration my mother took me to Brazil and after one week I was diagnosed with Pots. The Tilt test was essential.
I am learning so much from this video but I am wondering why nobody is mentioning temperature.
Huge part of my management is using air conditioning at 18-20 degrees C and never eating warm or hot food. In some cases eating sorbet is the quickest form to feel better again because the ingestion of cold food have a quicker response.
Can you tell me something about temperature and Pots?
Also for how long you can use fludocortisone? Is that limit of 1 year?
I much appreciated you all
Very common for temperature regulation to be affected with dysautonomia / POTS - one of the keys roles of the autonomic system is to manage temperature!
I started on Lisinopril and all of my covid symptoms came back after being symptom free for 5 weeks. Now a month after trying lisinopril which I am no longer taking I can barely get out of bed for more than 30 min. Im dizzy, light headed, brain fogged, weak and lethargic. Anxiety is really bad as well. They are saying its long haul covid, but I was fine till I tried lisinopril. Not sure what to do, something is wrong with me and these doctors are not concerned.
I heard that before too.
You’re not alone, find a group of long haulers aka Long Covid on Facebook or other websites. They can help you, like I said you’re not alone, thousands of people are going through this
Same symptoms as yours 1 1/2 months after Covid19... No one is ready to understand... Vertigo, dizziness,brain fog, nauseated, racing heart, breathlessness, fatigue,, can hardly walk, post nasal drip,...going thru bad days
B1 B6 B12 ,,are the treatment of POTS
How many mgs of each to take. Did it help your pots?
Thanks a lot I had that after covid any dr understand what happened to me I hope I will heal as soon as possible
Glad you are starting to feel a lot better recently.
Thanks Gez for doing this.
It’s a pleasure John :)
Thank you Gez! I was wondering - you talk a lot about 'breath work' - what specific breath work do you do? Box breathing? Yoga breathing? BTW - thanks so much for your Psychology of Long Covid vid - that shot of you standing at the back of the ambulance has done more for my positivity than all the 'Stop, Stop, Stops' I've been trying to do on the GP!
Hey Mark, thanks for the comment! Re breathwork, I most often do an adapted 4/7/8 pattern with a hold after the exhale. I also do a 5/5 sometimes too with no holds. Box breathing is also good!
I’m ten months out since the virus and my pots symptoms keep me in bed I’m 28… and I’m so scared
Something that ties into it, I think has to do with the 2 enzymes that we lack in digesting GMO wheat and gluten. We have little pin holes throughout our intestines and our food etc. leak out into our system and causes massive inflammation. Then there is the over use of antibiotics. Barbara O Neill says to drink bone broth. What do you all say Run-DMC Get Medinger?
Great work guys. Thanks 👍
Thanks Andy!
Different entirely, but one thing to take into consideration is that a T3 thyroid medication (Amour throid) can cause POTS symptoms in people as a side effect of the med after having taken the medication for years...which was my case. I was diagnosed with POTS by a cardiologist but the typical meds to treat POTS did nothing for me. Dr suggested I take two 100mg tablets of salt per day. The salt tablets gave me migraines every day. The cardiologist had no idea why. I was in a POTS fb group and asked the question....and someone mentioned that thyroid issues go hand in hand with POTS (meaning ppl tend to have both conditions at the same time). A very knowledgeable person mentioned this thing about the natural thyroid T3 pill side effect was POTS symptoms. (I'd been on the T3 med for 8 yrs....we would never have suspected that that med was causing this issue. I had been developing the POTS symptoms on a very, very, slow basis but was always dismissed by drs...'oh, you just need to stand up more slowly'...so after you get that same quip over the course of 20 yrs, I stopped bringing it up. But once I was aware of the thyroid side effect, I mentioned it to my dr...she said yes, definitely. Once I stopped the T3 thyroid rx...the symptoms disappeared. Later she gave me a different T3 rx, POTS symptoms came back. Stopped that rx too. Just for someone to be aware of this possibility.
American Alan Policinki has done tons of research with POTS in the hypermobile population. Hypermobility and connective tissue disorders are very undiagnosed. At my insistence and having to wait a yr to see a dr (only one specialist within a 500 mile radius in my state in US)...only diagnosed at age 53 with hypermobility spectrum disorder....it's in the connective tissue disorder family. No cure, drs are reluctant to even diagnose as there is no treatment and they see no reason to diagnose. But other coexisting conditions aren't diagnosed either. Once you get one diagnosed, drs begin to recognize the other coexisting conditions that exist and those conditions are the ones that can be managed like POTS, etc.
Tell me plz we can’t take inderal 10 mg with antihistamine h1 like citrizen?
After have covid. My heart rate goes from 65 to 150 upon standing. I have passed out multiple times injuring and bruising my face. I have extreme fatigue, joint muscle pain, migraines,serious continuous GI problems, brain fog, numb painful extremities, chest pain, and the feeling that my veins are throbbing and want to explode in my extremities.
My GP says I have "anxiety" and has written me off as crazy woman syndrome apparently.
How come I don't have anxiety and racing pulse EVER when I lay flat? Here in the states I'm trying to change GP. 3 month waiting period. Our medical system is seriously fucked.
That’s awful - I’m so sorry Aubrae. Hope you can find a new GP quickly.
@@RUNDMC1 I'm waiting for a new patient appointment, but they are booked out until may.
@@aubraehersel7720 u got pots after covid or after getting jabbed?
@@r41099 I got pots after covid in 2020. My pots and long covid went undiagnosed, and i didnt know what it was. That was before anyone new covid could cause long standing sickness aka long covid, or connected it to pots. My symptoms of pots/ long covid persisted for 8 months . They alleviated 2 weeks after my second jab. Then in late December 2021 I got covid again. My pots symptoms returned. I am dealing now with a second flare up of pots.
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet.
Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
doctors, family, and clients thought i was just depressed of had a conversion disorder. finally, was diagnosed with adrenogenic POTS. am head on pillow most days no matter how hard i try to do exercizes. if i go out,, i collapse within an hour, so i stay home. i do the elctrolytes, K+, salt. water. etc... moringa and spirulina helps a lot but not enough. am hoping that now it is getting more press from long covid, more research will find treatments.
I ended up visiting a cardiologist. My cardiologist told me that my symptoms are caused by the MVP and Mitral and Tricupidal regurgitation. At the same time, he also mentions that I suffer from anxiety disorder. He doesn't seem remotely concerned about my heart diagnosis. He didn't give me any meds for MVP/MVR. He just told me to do a yearly heart echocardiogram. Nothing more, nothing less.
What's interesting about my cardiologist is that he links MVP symptoms with anxiety disorder symptoms. He told me that no one will tell you this link between anxiety disorder symptoms and MVP. According to him, anxiety disorder symptoms are just a byproduct of the issue with MVP. In other words, the root problem is actually MVP, according to him.
I get discomfort sensation in the neck and shoulders.is this pots my doctor don't know what causing it.what can I do to help myself
Can fatigue cause those symptoms without actually having the diagnosis of pots? Thanks for your videos!
If you’re suffering from dizziness, nausea, headaches, palpitations, high HR - this can all be dysautonomia (commonly associated with fatigue) without being POTS
Something I hope this POTs Dr realizes (this according to my allergist who is familiar with all these other conditions) is that antiinflammatories may make people with MAST cell reactions feel better, but there is still a reaction going on inside where these MAST cells are still at work, attacking inner organs.
I also wonder if all these different conditions may all be neurologic. If Autonomic Neuropathy disregulates automatic functions of the body, couldn't it be linked to many disorders? In fact causing them? Some in specific areas, some in others, and some affecting the entire body?
With sodium what about if have leg swelling and elevated bp with activity. I did notice with slightly inc sodium on more active days swelling decreases with sodium increase in diet
Hi thank you very much for this information. I am wondering if you know if their is any connection between restless leg syndrome/perodic limb movement and Post Covid or POTS? I believe I had a very very slight condition before getting covid in sepetmer 2021 but now I am getting these muscle twitches and shocks that are effecting my sleep a lot. I have also experienced all the other long covid symptoms for the past 6 months, with the heart rate jumping up out of the blue, fatigue, nausea, slight chest discomfort.
Try upping your potassium. I have found that if I don’t get a decent amount of potassium into me that my POTS symptoms get worse
I hav the post Covid bs now. Major hair loss in clumps, rapid heart rate from even a LIGHT 10 sec jog, I have the POTS. Most of my issues though relate to my cardio.. Like I WISH I could just RUNNNNN. Ive never been a runner.. But I know if it went away now, I would run everyday. What you take for granite (granted - R&M joke) But I will say Ive had POTS long before Covid. It was off and on and I noticed I only got it when I would be really inactive or sitting and laying a lot. I was really into gaming so I would lay in be with my keyboard on my lap playing my game, and I would eventually have that issue. I think IF Covid didnt cause it, it starts in the gut. If youre having gut issues youre most likely having the pots from that. Or the fact that Covid knocks you down for a long period and causing it. What Ive found to work in this case is CoQ10. It really helps with the fatigue and the POTS, and I feel like the rapid heart rate. BUT I DEFINITELY have more heart skips (cant remember the term) Thats the only downside. So I definitely feel like being on your feet more often will help a lot.
What type of coq10? Ubiquinol or ubiquinone?
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet.
Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
My watch says I have a fast heart rate stand up. I’m not doing anything I even checked it on one of those hand things it does the same thing.
I have this from having lyme for many yrs and it is very debilitating. Vegus nerve has something to do with this.
Thank you…
I have an interesting anecdote about a woman with Parkinson's and orthostatic hypotension who reported on a forum (she seems fairly reliable) that her OH resolved after starting Flecainide, a sodium channel blocker (Nav 1.5), for Afib. In addition to cardiomyocytes, Nav 1.5 is also expressed by neurons in brain, not sure if it is expressed by neurons elsewhere. OH in PD is said to be caused by sympathetic denervation of the heart.
Any one here is experiencing dry nose and less and less muco?
If this is an autoimmune condition, then it would seem like sodium would worsen it since there are studies showing that sodium exacerbates autoimmunity and others linking sodium to increased inflammation. On the other hand, there was a trial of multiple sclerosis patients that showed no worsening with increased salt intake. There was also a mouse study for Multiple System Atrophy - not known to be autoimmune, a neurodegenerative disease that causes autonomic dysfunction including OH that showed that although markers of neuroinflammation increased there was not worsening of disease progression with high salt diet. So I would be curious to see a study of long term sodium intake in POTS vs. progression & biomarkers of inflammation (including auto-antibody levels, if these can be identified).
I’ve just had covid and I have had pots for years. My brain fog that I usually get in the mornings has ramped up to all day at the moment. Walking up the stairs was bad but it’s exhausting now. I hope it gets better soon.
As for coat hanger/stomach pain, I think pots sufferers naturally tense parts of their body when upright to counteract symptoms (I know I do). I’ve recently heard of the vaccine causing pots now too and those I have seen this in are men interestingly.
There are so many people with POTS following the 💉 and awful long covid type symptoms - me included. Lots of research now calling it vaccine induced long covid
How are you doing now?
My loved one seemed to get this after the Covid vaccine! The cure turned out worse than the disease!
This isn’t unheard of unfortunately
So did I. I can’t believe the Alt-Right folks were right. My life is over.
It’s intentional I fear
Hi Gez - had my second vaccine in June was feeling better but the IBS and pain/fatigue started to return. I have been taking Coq10 150 mg it had helped but decided to try ubiquinol version of Coq10- 100mg , what difference in 2 days , fatigue and pain massively reduced. Will keep you posted
Glad to hear you’re doing better!
did it also helped with POTS? specially tachycardia part? :)
@@SagarGol was about to update it seems help more with muscle pain the normal coq10 helped more for tachy seems odd.
@@kp968 didn't quite get you pal..did it help with tachy or it didn't? :)
@@SagarGol sorry there are two forms of coq10 ubiquone and ubiquinol. Ubiquinol helped more for muscle pain but the ubiquone version reduced my tachycardia more.
Fantastic talk thank you🙏🙏🙏🙏🙏🙏🙏🙏
Can a sudden discontinued use of caffeine ( such as high use of caffeine drinks daily ) cause the autonomic system to become dis- regulated? I noted some Covid survivors stop drinking fluids due to taste issues or just from taking healthier fluids while Ill. The headaches could be withdrawal from caffeine as well…I noted one person having the headaches early in then resolving a couple or so weeks later …
Okay, just heard the doctor state that the subjects had been hyper mobile - for the most part - so perhaps the sudden immobility, in some, might affect the automatic regulation to compensate for sudden immobility when Ill? And is the vagus nerve looked at in some of these patients who have been supine for too long ? Anyway, interesting and complex issues for research .
Thank you so much. I have long covid since March 2020 and caught covid again June 2022, 6 weeks on I have this racing heart after coming up stairs (117 beatspm) or going a short walk (125beatspm). Slows down right away if I sit down thankfully. Its horrible and I didn't have this previously as part of my lc symptoms.
I got rid of my random panic attacks after I started to sleep at a 35 degree incline. Meaning, the whole mattress needs to be at an incline. I just simply placed a medium firm memory foam pillow below my mattress to make the whole mattress stay at a 35 degree incline. (I can easily do this because I have a twin-sized bed.) Also, placing another pillow just below my foot, so that the blood doesn't get pooled up at the bottom due to the incline. Afterwards, I started to notice a drastic improvement in my resting heart rate, shortness of breath and GERD. I noticed the difference within a few weeks. Now, I know that GERD and inflammation caused by my stomach acid to my esophagus and gastroesophageal junction is what triggers those panic attacks. Also, I have reason to believe that sleep apnea, GERD or silent GERD in my case is also what caused a random spike in heart rate immediately after waking up. I saw drastic improvements overall after making changes to my sleeping position and diet.
Having said that, I do have shortness of breath. Although it is 20% less intense than before after making those changes I mentioned, I think this shortness of breath is probably linked to my MVP/MVR issue. Prior to having any symptoms of shortness of breath, I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
@@CelestialTrailblazer how are you now? I have the same things as you
@@atakan760 I am now doing much better. It took me almost 2.5 years to see some meaningful improvement.
@@CelestialTrailblazer i feel worse especially in the first 6 hours after waking up. Additionally foods that increase stomach acid make palpitations worse. I feel more comfortable when I'm hungry. I have had this problem for 4 years and doctors do not understand. What do you suggest me? What kind of treatment do you follow? Please help
Dr. Blair grub at the Mayo Clinic study 900 girls 15 to 30. Largest study on pots great reference
My Cardio dr said I had mild leaky valve & very non chalant about it He prescribed double water pills
I ended up visiting a cardiologist. My cardiologist told me that my symptoms are caused by the MVP and Mitral and Tricupidal regurgitation. At the same time, he also mentions that I suffer from anxiety disorder. He doesn't seem remotely concerned about my heart diagnosis. He didn't give me any meds for MVP/MVR. He just told me to do a yearly heart echocardiogram. Nothing more, nothing less.
What's interesting about my cardiologist is that he links MVP symptoms with anxiety disorder symptoms. He told me that no one will tell you this link between anxiety disorder symptoms and MVP. According to him, anxiety disorder symptoms are just a byproduct of the issue with MVP. In other words, the root problem is actually MVP, according to him.
I can't wear those stockings around my neck I get it on the side of my neck to the back where my hand can touch it and it hurts I can't turn my head but it goes away my husband has it in his elbow we're both early 60s
Gez, How recovered are you after a year of long hauling? 80 90% ??
he’s zero percent recovered
If 100% was running marathons, I’m still some way short of that.
RUN-DMC still very impressive. Im glad your doing well. Gives us hope
That's the problem. I can't due to an abnormal high pulse rate and shortness of breath. I have MVP with mild regurgitation and mild tricuspid and trace pulmonic regurgitation. All probably, either caused by over exertion since I used to be a weightlifter or from shoveling snow for hours in frigid temperatures or from post cov!d damage. I had zero symptoms until April 2021.
Also, a cardiologist will not tell you to stop exercising even though they know that your MVP will progress further if you put yourself in a situation where your heart requires more work. People with MVP with MVR, regardless of stage, will experience abnormal high pulse rate upon slight exertion. (A lot of times they don't notice it or pay much attention to it unless he/she uses a finger pulse oximeter to check). So, even at rest, if you sneeze you will notice that if you use a finger pulse oximeter to check your pulse immediately after a sneeze at rest, you will notice that your resting heart rate is clocking in at 130bpm to 160bpm. (That's what I've noticed in my case). I even experimented with family members who didn't have MVP or any heart/heart rhythm problems. They don't have this abnormally high spike in heart rate from slight exertion or any drastic changes even at rest.
Also, a cardiologist in most cases has no idea how it feels to have a 160+ resting heart rate. It's because most never experienced it themselves. They go by what they learned in medical schools. If they knew what the patient feels, then they would've understood that you can't exercise when your heart rate is that high so easily just from slight exertion or movement. You will immediately feel shortness of breath and dizziness and even chest pains.
Doctors in the medical field consider MVP in general a non-emergency issue unless the patient reaches a point when they require surgery.
I used to always put my body under a lot of stress. I used to always push my body to an absolute limit. Especially when it comes to weightlifting, exercising etc. I simply didn't know the impact it could have on my heart over time. The human heart is very fragile. It is possible, because of the intense physical stress, I eventually damaged my heart valve. Another possibility could be it was cov!d that damaged my heart valve and altered my heart's electrical system. Prior to all of this, I had zero pre-existing condition related to my heart. Also, there is zero family history of heart disease.
Thank you
People with long covid and long vaccine injury should not be abandoned.
I know I have pods I thought it was from my cancer or I had a mild brain stroke but I'm doing good with all those but I just thought was that I'm curious of the age group of women that get I'm 61 I know I haven'tp o tS
How to increase salt intake if you have high bp...I am facing POTs with hypertension and my bp is contanstly high however in evenings when I do long standings sttings and activity it drops
57:13 Dr Gall is obviously a great doctor - no hubris, listens to patients.
Agreed!
Dr Blair Grubb seems to be worth talking to. He seems to have the most answers on the condition.
Has anyone fully recoverd from this?
My symptoms are now only depression, insomnia and fatigue. Fatigue comes and goes. It can still be debilitating. What have you found that works most for you?
take 2 x 1000mg caps liposomal vit c every hour 12 hours a day do that each day until all symptoms have gone,it takes a few days ,it will clear the viral debris out of your system and calm the immune system down ,if you want the full healing protocol message me,
@@Beekind799 I'm 15 months in. Do you think there's any viral debris still?
@@chenaniahmay4541 yes ,thats whats keeping you stuck in sickness ,if you dont have leaking gut syndrome you can heal in days from this hell ,i will give you 2 very powerful methods to clear viral debris out of your system,take 18mg ivermectin 50mg zinc 1500mg combined caplet quercetin/bromelian take with water on an empty stomache for 4 days ina row,most get a fantastic result about 12 hours after taking the first dose of ivm zinc and quercetin/bromelain if you cant get ivm zinc and quercetin/bromelain take this 2 x 1000mg caps lipsomal vit c every hour for 12 hours a day do that each day until all symptoms are gone,it wont take long both of these have very powerful anti viral mechanisms of action and they are both very safe ,when you have done that you have to address the low atp levels by raising the critical glutathione levels if you take exactly what i say in days the levels will rise and your immune system will have the fuel to work take 2 x 600mg caps n.a.c.morn/eve - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve - 2 x kelp tablet morn/eve - 1 x 1500mg combined caplet quercetin/bromelain morn/eve take this with food,the quercetin/bromelain plays an absolutely vital part in this healing protocol it makes sure its all digested and all the levels rocket,donot take this and that you will end up with imbalances ,this protocol is complete,the vitamins are already completed no sunshine needed,vital info for dark skinned folks ,i have healed post viral conditions that have been in place for over 30 years in ten days
@@chenaniahmay4541 at what months mark your POTS resolved?
The latest research (Feb 2022) by Blair Grubb shows in many pots patients, pots is an auto-inflammatory/auto-immune problem.
Validating :) thank you
Any time Katy!
Yes!! Huge reach!!
Beta blockers - I have some misgivings about them since they have been linked to increased risk of Parkinson's. My father had Multiple System Atrophy and my daughter had neuroleptic malignant syndrome from Reglan, so maybe more of a concern for my family than others.
I had POTS after glandular fever 20 years ago. Now I have it again after second dose of Pfizer. It is disabling.
So sorry to hear about that Kendall. POTS is massively disabling
How did you resolved it back then?
Did it go away the first time
Salt use himalayan or gold
Thanks gentlemen 😁👍
Thanks Richard!
Hyperadrenergic pots presents as anxiety because of the effect on adrenal
It is still controversial because it mainly targets young women who are still not being taken seriously by doctors.