7 years ago I had a brain injury that was NOT getting better. After 2 years of working with a neurologist and different medications i was not healing, My husband started to juice Turmeric every day for me with some oranges and a little pepper. After 6 weeks the swelling in my brain diminished and I improved. Now I've started taking it to reduce long covid symptoms like inflammation and help with blood thinning, it has been very helpful.
Tumeric in research reduces not only inflammation but has helped people who don't move much prevent circulation problem clots heart issues etc. I suggest you research Longvida Tumeric
@@RUNDMC1 I still have shortness of breath after 9 months . Can i have low oxygen or hypoxia ? When i measure my oxygen level its between 98% and 99% and I still feel like i can’t breath properly … this happens especially as soon as i wake up. It’s really weird…
@@ljot1 I wake up everyday like this . It’s really scary actually. I wonder if is possible that my oxygen levels drop when I’m sleeping ? I don’t know 🤷🏻♀️
These vacines are causing major health issues to ordinary healthy people 2nd would you want a vacine that doesn’t work wow can’t believe how dumb the people are
I used to take l-arginine (for my blood) when I had long Covid and that seemed to help. I also realized my long Covid was a direct amplification of my bodies stress response from a break up the year before. It sent my adrenal system haywire. It was like my adrenal gland was a valve that was permanently open so I’d get hit with chronic fatigue around 10-11am every morning. It’s only when I started taking supplements to reduce the cortisol and quit sugar and coffee (known stress makers in the body) that I rapidly got better after 8 months of this. Also I can’t emphasize this enough, DESTRESS your system and that includes your mind. Meditation was essential for me to discover the causes of my illness. The inner introspection helped me see what was happening.
That's crazy its pretty similar to me I had a extremely bad break up the year before and although this might not be directly the cause of these symptoms I believe its paves a massive way into these symptoms to affect us. I think if stress is present these treatments won't work as good. Reduce stress with treatment seems like the best way.
Big break up for me too a year before plus lots of other stressful stuff. Stress is a massive booster of symptoms for me. Twice this summer I managed a holiday away from home and I improved every time. What did you use for controlling cortisol?
@@solids1451 it was 6 months for me. Couldnt even read. Lost vision in my eye. Im not 100percent but the brain fog and vision got better. I still get it slightly from time to time.
When all is said and done this virus could actually a blessing in the long run if it helps the poor ME/CFS people that have suffered for years. I’m optimistic what we’re learning at the minute will help more than just the COVID sufferers and that’s a blessing in disguise.amazing what humans can achieve as a collective if we just stop trying to kill each other for a change
Yes those but - Not only them but many other auto-immune diseases which are not given the high profile of Lhers. We are just ignored and told to get on with life despite living with acute bodily pain, extreme fatigue and other symptoms that the 'experts " are trumpeting loud and long about. Had enough of being sorry for Lfers and being ignored
@@jenniferpotter9699 all post viral conditions are caused by low levels of the bodies foundation for health the critical amino acid glutathione which lowers the atp level which lowers all the levels resulting in a weak immune system that cant expel dead viral debris from the system,every time the dead viral debris moves the immune system spits out cytokine storms ,this is the same for long covid with the addition for many of having blood clots caused by the spike protein triggering the blood clotting system ,this is whats causing the vaccine injuries ,a d dimer test revelas the blood clotting level over 500 the person is in real trouble,the problem is when the clotting system breaks down theyw ill then bleed to death ,most auto immune conditions are caused by leaking gut syndrome ,food particles pass through the holes in the gut and get directly into the blood stream that makes the immune system go hay wire its that what causes mcas certain foods trigger that, takea heaped tea spoon of slippery elm bark powder ina glass of water ten minutes before food it takes about ten days to heal the holes in the gut the immune system calms down and the nasty symptoms all disappear ,dead viral debris in the system can be safely removed with one drink of the miracle mineral solution ,tahts the end of cfs me and long covid ,the mms sees the covid spike protein as toxic and removes it that stops the blood clots then take this to address the nutritional deficiencies what got you in trouble take this with food 600mg caps n acetyl cysteine - 1000mg caps cod liver oil and fish oil - 30mg zinc - 5000ius vitd3 /100mcg vit k2 - 100mg magnesium citrate - 200mcg selenium - 2 x 750mg caps beef liver extract - a combined tablet bromelain/papain when you take the first mouthful of food take the bromelain/papain then the supplements then eat the food the brom/pap will make sure its all fully digested the levels rocket and the energy levels rise, many americans have long covid and an auto immune condition mostly caused by eating toxic gm food ,they firstly drink the miracle mineral solution to clear all the dead viral debris out of the system,many symptoms will vanish the other symptoms are caused by leaking gut ,heal that over ten days with slippery elm bark powder then take the protocol here you will regain your health ina few weeks,the miracle mineral solution is chlorine dioxide which is used for making drinking water safe to drink if you used bleach it would kill you,no excuse to be sick all thses conditions are easily healed ,the doctors in charge of our health cant tell you any of this they are a waste of time
I agree w you and see a sliver lining! Chronic flamatory suffering is finally going to get a lot of research funding. And how delicate we are will be more respected.
Ironically had people given more belief in the suffering of ME/CFS patients then more research would have been done prior to Covid arriving and most likely a treatment. But because ME/CFS is one of the most neglected diseases (compared to its suffering level) there is no cure for either them or Long Covid. There could have been a cure already waiting for Long Covid. Meaning that medical neglect on ME/CFS has affected millions of new Long Covid sufferers unnecessarily
Gez you deserve some type of award and special recognition for all you are uncovering to help find answers and help us all. Thank you for everything you do, truly ❤
Yes, you are doing a great job and it is so inspiring to us ME/CFS sufferers to know there are people who really care and are willing to search deeply for a solution. Thank you Gez and Asad!
I just keep thinking how ill he would have gotten for just doing this video. PEM from emotional and cognitive labor is devastating as well. Much appreciated
Watching this evolve is fascinating and really exiting. A social media enabled patient led mass movement. Key people from the patient group rising to leadership roles based on skillsets and bundles of courage. Doctors and researchers prepared to think outside of the box and try treatments. The potential to ease human suffering is just mind blowing, Great stuff as always!
I haven't had covid myself... but for the sake of all those who have, or will, I really hope effective treatments are found for acute and long covid. And if these long covid studies and trials also lead to more knowledge and treatments for non-covid chronic fatigue, etc - even better. We definitely need more research like this, for so many things...
Thank you Gez and Asad for another brilliant and informative video. I can’t even begin to tell you how much these videos have helped in the last year. Hoping we can all recover very soon. Wishing you all the best.
@@RUNDMC1.... How are these people getting help when I still can't get any help or recognition of my issues 20 months after being in ICU with COVID19. It appears that most of your guest speakers are higher up in the pecking order as regards working in the medical profession. I work in the NHS, and I've been totally ignored and put down by my employer and my GP. There has been no follow up, and I'm told there won't be. The so called long hauler / long COVID clinics don't exist, and treatments are not on offer ..... WHY ?? Maybe this is a "real" subject to discuss with your privileged guests. They should remember that we can't (especially us on low wages) afford to jet around the world or pay for private work.
Thank you so much for sticking with this investigation. You were the first person I found who made a real effort to inform us about what was happening with long covid and what might help to remedy it.
Why dont you try ArtemiC ? ruclips.net/video/hnQxWyDF_44/видео.html Some people have had success using ArtemiC Support for Long Covid - its all natural.
Thank you so much for this video. I am a family medicine clinician from the US and have POTS in addition to many new diagnoses post covid and post vaccine. I have been telling clinicians who have evaluated me that I feel that I am not perfusing properly and that it feels that I am clotting improperly on a microvascular level, and have been dismissed so many times because "tests are normal". Hearing another fellow clinician go through what I have gone through and have a hypothesis similar to my own creates hope for the future, for myself and my patients.
Thanks again for all your hard work! Blessing upon blessing for Dr Khan's work! This channel continues to be a wonderful beacon of information and subsequently hope by providing reasoned, caring focus on all the many people suffering this thing and research into it. Even though I'm fortunate enough to have a primary care doctor who listens and cares, I can't help but think that without this channel I'd be in much worse physical, mental and emotional place. So, once again, thank you.
I‘m on anticoagulants medication for 3 month now and my life has changed from bedridden/housebound and unable to work to a nearly normal life. Dr. Jäger and Dr. Pretorius with the research on microclots and the suggestion for tripple therapy simply saved me. I‘m so thankful for this journalistic work
Hi Lena, I am also experiencing some improvement with the “triple” anticoagulant protocol. How long have you been doing it, and are when are you planning on stopping? I get a lot of side effects; not sure how long to keep going.
@@jamiesmith4141 Jamie, I wonder if you would consider sharing with me the specific meds which comprise your current 'triple' anticoagulant protocol? Much obliged.
What a brilliant presentation! Its probably why I feel better when I VASTLY over-hydrate with electrolytes and water......usually about 2-3 GALLONS per day now and tons of anti-histamines I feel so much better.....this kinda explains a lot!
@@honorburza9110 I was offered this quite early on but wasn't given much of a rationale as the LC debate wasn't yet in the public domain. Also the costs of each treatment were prohibitive.
Gez and Dr. Khan, I can't thank you enough for this video and all your advocacy. I signed up for the H.E.L.P. Apheresis waiting list for standby appointments and am confirmed for Feb 21! Thank you so much and hoping this helps me a little bit. At this point I will try just about anything to feel better and be able to walk and have a little bit of a life again. All of these videos give me hope and keep me going to push for recovery.
Hey Katrina. Did you already have some sessions? How did it go? I've got an invitation for Cyprus for end of March and don't know what to do. Are they testing you there for microclots? Thanks!
What I find has significantly helped is the vit c, vit D, zinc, niacin,selenium and quercetin combo from one of your earlier vids helped. Cutting out all processed carnage and stick to whole foods, tomatoes are poison as far as I’m concerned. I went histamine free for 3 weeks then add bits in. A big winner for me is ginger tea with a bit of garlic in there and cinnamon, not powdered processed rubbish, actual ginger roots steeped into teas with a bit of garlic and cinnamon. Epsom salt baths too. I still ache but about 30% of what it was like before. This video goes a long way to explain why it helps. Good video well presented. The science is catching up we just need to weather the storm and minimise our ailment so we can function. Main thing is moral and eating properly like humans should before modern food came along. Good luck to all
I've recently started low histamine diet as well due to inflammation and lots of muscle aches. Was yours due to Covid as well? I've been suffering for 4 weeks now
@@robertharris4661 Why dont you try ArtemiC ? ruclips.net/video/hnQxWyDF_44/видео.html Some people have had success using ArtemiC Support for Long Covid - its all natural.
I’m doing the same with Bromelaine, Nattokinase and serrapeptase thrown in as well to try and break down the Fibrins, a few weeks in and feeling slightly better!
Another great video Gez & Dr Asad, hopefully this is the way forward. Would be great for some of the UK's long covid research money to be spent on this
"Bed bound, not eating, and just giving up on life" yes, add to that depression, falling into worsening habits, smoking a lot, maybe subconscious/conscious self harm. ..... Yep, I already know it's not good.
Thank you so much for your advocating for LH'ers (and others with similar post-viral symptoms such as/or with ME/CFS). I truly hope Dr. Asad Khan (and yourself Gez) will continue to see improvements. I'm 1,5 years in and I'm a lot better especially in terms of energy. Although we're all different and our healing differs, like Dr. Asad says pacing is so important, and a low stress life and proper diet.
@@unknown-ry1tf Personally, I got more energy around the 1-year mark, like you I was extremely tired at 0-9 months and gradually started seeing improvement. I still have days when I need to rest and sleep more than before and have to be careful with mental and physical exertion & stress.
That gives me some hope! For the first 9 months - have you had a good amount of energy on some days and were worse on others? I hear that all the time and it worries me because I feel the same level of fatigue every day and every hour of the day. There are no good days energy-wise for me. I am scared I will never feel energetic or not tired again.
@@unknown-ry1tf I had unrelenting fatigue for many months and very slowly got more energy (with ups and downs). Don't lose hope because it will get better, it just takes a lot of patience and trust!
This is really exciting for me, I suffered post covid DVT and Pulmonary Embolisms from March 2020 and am still suffering. I was on anticoagulants for 12 months so apart from preventing dvt and pe's occurring I'm not sure how this could help with micro clots as I still have terrible fatigue and PEM etc. Life is cruel as all my life I have been a competitive cyclist, the worst thing you could do to me is give me fatigue and PEM! If I could get this treatment I would be all over it. Again @Gez Medinger and Dr Asad, thank you for all that you do .
(Riffing a bit here I as I have time on my hands) - This is really interesting. Having LC, I was asked to test O2 with a pulse Oximeter after moderate exercise. The result was in the acceptable range, and I was advised by my LC clinic that this was typical across LC patients. If the issue is endothelial resulting in problems for tissues absorbing the O2, then O2 circulating in the bloodstream is unlikely to be a problem. i.e. - I have enough oxygen in my bloodstream, but the condition stops that from being useable. If motorway = artery, car = cell - and people = oxygen, then we've had an accident at the junction and people can't get out to their destination (kind of). Obviously, much more complicated than my analogy. I also wonder if the lung / chest issues people are experiencing have been misinterpreted to date. I think people have been looking at the chest issues with LC as a respiratory problem (ability to oxygenate effectively). But what if the issue wasn't so much the lungs ability to get oxygen into the bloodstream - but of oxygen getting back to the lung tissue? This fits with your hypothesis I believe. Anyway, regardless - this is a great update and brings hope to many.
Hi Gez. Just to say that I'm glad to see how healthy you look these days. And just add that, just like your good friend Dr Asad Khan, you appear to be much sharper in thought and speech. Long may you journey back to optimal health continue!
Thankyou for using your energy to help and make these ongoing videos . I really really hope Dr Asad continues to improve , he absolutely deserves to and thankyou for the knowledge and efforts when you're both still unwell . These videos give me hope that one day I will be back to where I was prior to covid .
Dr Khan's looking so much better! I do hope it works out for him long-term; when he was terribly ill he was still advocating and educating, he deserves a reward.
I think this pandemic has shown how limited so many 'experts' are intellectually. Blood clots have been known to be the killer in Covid, almost from the beginning Chinese doctors were revealing this. This work seems really interesting.
Yup, it's why I was rejected from the hospital because I refuse the vent, but they also refused blood thinners and didn't want to do ANYTHING when I refused the vent and runDEATHisNEAR. What was limited, was the PERMISSION and ALLOWANCE of the doctors who were 'on it' from the gate, but they were being canceled, censored, killed, etc. All the way from the start.
Micro clotting really feels like a breakthrough. The forthcoming research will hopefully begin to develop the treatment pathway so many people need and deserve
I had chronic fatigue several years ago and in my attempts to get better I learnt a lot about the ME/CFS world ( plug for Health Rising and Cort Johnson! Like this channel, an incredible selfless resource) With the work of people like Ron Davis et Al at Standord we were making some really significant advances then Covid struck. I really do think a silver lining to this pandemic will be greater compassion and understanding for people suffering from these 'rare' complex diseases which will hopefully lead to better treatments. HIV / AIDS showed us the extraordinary progress that can be made when there is the will to solve a problem and clever people are given the money they need to tackle it.
Nice to hear someone continues research in this area, however sad to hear that things are not working out for those who have a better grasp of what's going on. I can sense the trepidation in the doctors voice (the same feeling I had). The micro-clot theory was one of the initial theories of what was causing the deaths. Anticoagulants were used and people (including a young doctor) died of a brain aneurism following treatment (a state of panic and hopelessness caused an over-reaction by the medical staff on their own doctor). As mentioned, none of the coagulation lab tests indicate the presence of micro-clots to a severe extent (except upon initial infection sometimes), which unfortunately would indicate that the use of a micro-clot filter (which is probably what this type of apheresis involves) will probably not be helpful. In fact, it may be more effective in removing spike proteins, viral debris, etc.. and may be better in functioning in that capacity. What was not mentioned is that microclots are a sequelae of bacterial blood infections as well. These clots which form around bacterial debris may remain in one specific area such as a heart valve and therefore cause cardiac problems. What is also not mentioned is the effect of aspirin on platelet dysfunction and how aspirin would help prevent microclots ONLY IF the clots involve platelets (these would be larger clots). What should also happen if micro-clots were a major concern is kidney problems as kidneys eventually filter these clots and lab tests would indicate some kind of kidney dysfunction. None of this occurs which, unfortunately, means the answer is not micro-clots. Is this research useless-absolutely NOT. What will happen is an "accidental" result will occur due to some random research and a solution will be found. If the apheresis works, then it works--we can find out later how it works... Remember, the TWO shot covid vaccine was found accidentally as was penicillin. As long as research continues, something will come along that works! The sooner, the better.
interesting point, mind you I've done 2 blood donations and through I'm not in the clear I've felt much much better each time after a day or 2. I tried aspirin and it had a very moderate positive result except i ended up getting bruised more easily. I read somewhere the blood group 0 is NOT suseptipal to aspirin as much as blood group AB cause AB is more "clotty". I happen to be group 0 so I thought this as the reason
Thank you Roger for this info. You sound like a medical person? This may help me reassess my own theory on my migraines being caused from micro-clots. (Re: Dr. Graham Hughes) But what about white matter lesions in the brain? Have you seen any research on them and association with migraine and the antiphospholipid antibodies? Would appreciate any links if you have.
Through this whole process, during the actual Covid and afterwards, every few weeks I go through sweats episodes, lasting just 2 or 3 minutes.After each, I feel overall better, although have returning fatigue. The first episode happened two days after being diagnosed. I all ofsudden felt really sick, nauseus and about passout. I called 911, but by the the time they got to the house about 5 minutes later, I was already feeling better, and episode had ended. I stood at the front door with my husband, talking to the responders for about 10 minutes. When I went back to the chair in which I was sitting when I called 911, the cushion was soaked with sweat, as well as the carpet below, where I used paper towels to absorb it dry. The night shirt at the time I had worn I wrung sweat out of it the way you would wring out a soaked wash rag. That was the worst episode, and that was my turning point into recovery. The next sweats episode was about 3 weeks later, but not as severe. This past episode was just a couple days ago, where it was no more than a hot flash for about 5 minutes. After each, I notice improvement. Is anyone else experiencing episodes like these? Is there anything else I should be doing?
Hi, Shelly, thank you. I did experience a weekend of fatigue after a very energetic Friday, as in pre-,covid. Energy, meaning I felt like my pre-Covid self, but tried still to pace myself. Everything else seems to be in order, but going in for some blood tests this week just the same.
Gez and Dr Khan, you are both complete heroes. Thank you for making the real change that we all deserve. Once I am better I would like to dedicate my time to helping others recover from this terrible disease.
In the beginning, for several months after I first had the covid infection I would get these massive bruises on my legs and sometimes other parts of my body, with no apparent cause. I think they were caused by my blood vessels rupturing as a result of these microclotts. I have always thought there was something going on with my blood circulation when these symptoms came on and they were accompanied by POTS as well. Now I haven't had them in a long time, I feel my body has finally been able to mount an adequate immune response to the virus and it is mostly cleared from my body. Still dealing with intense fatigue and low tolerance to physical activity though...
I'm a lot better now. I was able to overcome most of my viral symptoms by taking high doses of reishi, which is a powerful anti-viral and immune stimulant. I had to phase it out very slowly from 16 pills a day to now only 1 pill a day and I hope to stop completely in a few weeks. I tried taking niacin, after I saw so much positive feedback about it on your channel, but it didn't work for me, it gave me horrible side effects. Tried on 3 different occasions always with the same results, so gave that up in the end.
It's so individual what works for each person, we need to really listen to our body. Right now I have days where I feel like a completely normal person, but the fatigue keeps coming back. I'm still not able to spend as much energy as a normal person. I need to be really careful to pace myself, or I crash. In the past, I would get a fever the next day after pushing my body too hard but that's not happening anymore either :)
This procedure certainly does sound very promising, for many patients, with a multitude of health issues, not just long covid. A question i would like to ask is, to what extent is the procedure replacing/supplementing the role of the lymphatic system?
Why dont you try ArtemiC ? ruclips.net/video/hnQxWyDF_44/видео.html Some people have had success using ArtemiC Support for Long Covid - its all natural.
Thanks for the great interview, and for doing the research! I had a question about these microclots not going away "on their own". Given that some long haulers are recovering or seeing improvement, is it possible to get healthy/ier while still having these clots? Could they dissolve or reduce somehow as we heal? If not, could it still pose a long-term health issue to (former) long haulers to have relatively clotted blood? This is perhaps not the most urgent question, compared to that of access to this treatment that can really remove them, but it seems related to the issue of whether we all have microclots as part of this condition and what that means. Thanks again!
Why dont you try ArtemiC ? ruclips.net/video/hnQxWyDF_44/видео.html Some people have had success using ArtemiC Support for Long Covid - its all natural.
Really good question. I know a few stories of people reacting to HELP badly and so I think it's important to understand if this is the gold standard route.....
I remember my first hospital visit when diagnosed with long COVID, 4 weeks in back in January. I remember when the doctor drew blood from me, my symptoms resolved for that short moment, it’s so weird. Even she was confused why I suddenly felt better for an hour after a blood being drawn!
@@juliad8303 Surprisingly not for my individual case, as I had a normal level for a male of 16 hemoglobin (red blood cells) adult men being 14 to 18 gm/dL normal red blood cell range
Gez, I remember a nurse saying my blood was sticky. I called my doctor and she said something about the being insoluble parts of my blood in the tube or something. Oh my goodness...I really really hope the micro clotting thing is legitimate.
@@RUNDMC1 what about people who don't seem to have weirdness with blood? I haven't tested anything, but given blood easily several times of the months, no one mentioned anything?
amazing discovery , i have 3 questions fo you to add into the next session (or answer now if that is possible) 1. will these microclots ever disappear without this treatment ? , 2. will your body eventually over seceral years eradicate these clots as the blood is naturally replenished ?, 3. what would be the effect for blood donation here , for the giver and recipient. ?
Thank you Gez and Dr Asad for your endless efforts. I for one am at my best if I manage to stay as long as I can outdoors in the fresh air, not doing anything special, just staying out of the house. Thanks again ❤
Bingo. Joint pain, heart pains and constant lack of "air". Sounds exactly like what I've been suffering from since getting Covid start of March last year.
This is so exciting! Hopefully it will become more accessible. I was absolutely shocked watching Dr. Khan, who we see often--he was like a new person! I'm very happy for him. Thanks for another wonderful presentation, giving us all hope.
I started the FLCCC Alliance protocol for long hauler and it's helping me tremendously. I suggest taking a look at it and you can find a doctor near you around the world on their website. They're not affiliated other than they will prescribe the necessary medications no matter the political controversy IF it's right for you and your condition of LC. I feel alive again. I still have brain issues, fatigue and pain but no where at the level it had been since 2020!!! Slowly moving in the right direction, FINALLY!
Thanks for the video and your continued work on Long Covid. I had HELP Aphaeresis in Mulheim in July. I know many others that have had HELP treatments as well. Unfortunately my experience was negative, I had a severe worsening of neurological symptoms after 2 treatments. I know many others who have had no benefit or also had a worsening of symptoms, some of these people had 5, 6, 7, 8 treatments. And then some people have seemed to benefit from HELP like Dr Asad. So this treatment may hold some promise for some patients, but like everything with long covid it seems to be a mixed bag. It will be great to get more specific on who exactly this treatment will benefit the most.
@@RUNDMC1 yeah no worries, this is how long covid is. I just think it’s very important for these messages to be balanced and for all experiences to be shared. I dropped everything and spent thousands of dollars to fly from the states to Germany for this treatment and it went horribly for me. I’d hate to see others have the same experience. This is why the work needs to done to try to identify who responds and who is at risk for negative consequences. The person who was originally running the social media groups for this treatment promoted it as a miracle cure with no risk - this was a disservice to the LC community. I think your video was very fair and balanced and doctor asad mentioned not everyone has responded to treatment so I appreciate that. Again, I share my experience so the other side of the coin is shown and people can do their own research to decide if this treatment would be appropriate for them.
I’ve had severe M.E. and POTS for decades now. I’ve always had large bruises on my legs from nowhere & leggings or socks caused bleeding under the skin ( petechial rash ). The last couple of years have presented a new symptom which is a petechial rash from very mild exposure to evening sunlight. It comes on the next day ( without sunburn) ( I’m mostly bed bound/sofa bound so I have only been well enough to do this 3 times over the last couple of years but it’s happened every time). Also I had to stop taking vitamin D spray because it was causing blood blisters on the inside of my cheeks. I wonder if there might be a vitamin D/ immune system connection? I have leaky gut and that definitely corresponds with the severity of my POTS too. Just sharing to add to the data.
@@Jennifer-gr7hn yes, I know about micro clotting but hasn’t something similar been found in pwme too? Both could be endothelial cell diseases. The vaccine has caused severe petechia/bruising & bleeding & so has covid. I think there’s a weird thing going on where both can happen or one leads to the other? For instance, if micro clotting occurs & causes pressure to build up in capillaries, it might make them more fragile & likely to burst resulting in petechiae &/or bruising. I’ve recently discovered that petechiae especially after exposure to sunlight is a symptom of Sjogrens ( I haven’t been tested yet though). Sjogrens, like EDS, is found at a higher rate in pwme & one study found 14% of long covid patients have it. The overlaps between the two illnesses are very interesting.
@@mihakavcic7237 I mention both bc some pwme don’t have pots, so it helps to clarify the subsets that might be going on. Thanks for mentioning it though.
Thanks Gez for another great video. Question, if hypoxia and lack of oxygen are the issues, would things like HBOT, Ozone therapy not work wonders? And for the clotty blood, would blood donation and supplements (nattokinase, serrapeptase) be help ? Or the baby asprin?
Baby aspirin is good, and yes HBOT makes you feel a hell of a lot better! The problem is it doesn’t resolve the underlying cause - so the benefits are temporary
I started nattokinase (2000FU = 1 capsule) 6 days ago and noticed an immediate improvement. I tried 2 pills/day for couple days and notice a slight darkness in one foot which I though might be bruising so I cut back to 1 pill per day. No problems - still improving. I was improving before because I have been working on this post covid syndrome from several angles.
@@hamwhacker -I just wish all commenters would state their "vaccine" status before making specific comments about their conditions/experience. Not holding my breath however.
@@RUNDMC1 It does heal the stroke and issues you had, but yes. I'm in an HBOT chamber. I do think it will help heal the blood vessels in time though from what I am learning. It helps with the new onset reynauds. I'm also doing Dr Bruce Patterson's protocol with Maraviroc, statin, aspirin, etc.
The microclots hypothesis explains my symptoms amazingly well. Recently a vein in my hand simply bled into tissue under the skin turning most of my upper hand dark brown for a week. This was a first. My symptoms are not disabling but they do seem to be slowly getting worse.
I been taking high quality and potency omega 3 fish oil. Vit d3, tocotrienols and pycnogenol for the last 3 months. My long covid is long gone. Also im doing low carb diet with almost no processed foods.
the info is making my head spin 😄😄😄 but thank you for sharing!! after a year of having a casvcade of symptoms, on and off pains, rashes every now & then, headaches, i still am grateful for life. this virus is really making its mark on me & the quality of my day to day living. onwards to full recovery for all long haulers out there!! @-@
Why does this ring a bell so much with me as an ANCA Vasculitis patience of many years? It sounds like a description of the same tiredness symptoms, which I have always had a feeling were something to do with a mitochondria problem, not producing enough energy, such that it is possible to run out of fuel and stall.
I think I have this “micro-clotting.” I have had a clot in the right leg since May 2021 that they “found”, but I’ve always felt I had a lot more clots. I’m on Eliquis for 6 months now. This analysis makes a lot of sense. Now if I could just find a doctor who will take me seriously with Long Covid! So far, I haven’t had much luck here in Oxford, UK! Thank you for this very important information…wish me luck getting into a Long Covid Clinic! I’ve had all the symptoms of LC for 19 months now. But no one seems to think it’s “important” enough to get me in there! I keep getting bumped and bumped by the NHS. Oh well…
Im in Australia and have been watching health podcasts for years and it appears that "function medicine" doctors the ones who really attempt to help people rather than conventional MDs. Hope this is helpful to you.
I have had ME/cfs for over 2 decades now. I noticed several times that my blood seems oddly thick and viscous. So it might very well be a thing in ME too.
Same here. But I had a 23 and me DNA genome Dooby done and I found out that I have Jak 2 mutations which are associated with chronic blood cancer but my blood counts fall within a normal range.
The connections between multiple conditions that seem to have some commonality is intriguing . I now wonder if some of the pain of fibromyalgia may be associated with microclotting . I have found that the areas where I was experiencing fibro pain to feel extremely cold to the touch . I have come across endothelial dysfunction, as a possible cause in some published work on this topic . As a migraine sufferer as well it has been suggested that microclotting could also underlie migraine 'syndrome' headaches this is so interesting. I have multiple allergies and gut problem ...now long covid . I did wonder if I was at risk of post covid issues because of my other conditions its looking like there is some relationship .Thanks for this research it may lead to helping other conditions also .
@@potsbottlejars5551 Really! I've suspected that also due to correlating info however, my blood tests showed high B12. I'm wondering if that could be that the B12 is just staying in theblood and not getting initio the cells?
Hello Autumn, Yes I had Antiphospholipid (APS) antibodies years ago and now migraine headaches pretty much daily. Dr. Graham Hughes (in England) says to apply anticoag therapy even without positive antibodies, becuz of microclotting, but the hematologist I saw would not touch it. So I've been using grated ginger in my drinks daily and it does seem to help the headaches. You can grate and then freeze it for easier use. Also Bilberry, garlic and Gingko for natural anticoag. Need to watch going too long without eating and getting good sleep. Hope this helps you. I'm still working on the circadian rythymn. It's hard! And pacing. Also hard when life has to happen and you just do that one more thing! I just got over CV also, still some subtle symptoms, but it took 6 wks b4 my below "normal" energy came back. Hope you improve steadily!
Gez, I really enjoy your site because you are a great interviewer with amazing guests. You also ask very pertinent questions and have a clear voice and speech so are easy to understand. Thank you for doing this! How you keep improving until your health is completely back to normal.
Yes!!! Now we're getting somewhere. Started taking a supplement called DMG a few months ago, it claims to help the body utilize oxygen better and have noticed -- it really helps! DMG in addition to breathing exercises + cold shower + coffee (vasoconstriction routine, essentially) is part of my regular routine and keeps me out of the woods, but not back to 100% by any means at all.
I want to point out something that's helped me. I take 500mg Niacin in the morning and in the evening. This tremendously lowers the intensity of my normal crashes.
@@asmrfoodieuk7965 I tried non flush and saw no effect. Then tried flush and burned inside badly, I thought it will damage something inside of me. Sadly, that did not have effect at all. I only noticed my right eyesight was worsened, but not sure if it's due to covid or niacin flush maybe.
Flush. Take after eating to avoid the burn if that's too much for you. I hope it's not a coincidence that I've been feeling better while taking it but here's hoping!
Undoubtedly the most compelling theorem yet postulated ! It's more profound than Chronic Fatigue Syndrome, which only affects the nervous system - because it afflicts the vascular system ... causing oxygen starvation system-wide. Great work, guys - this is the Unifying theory of Long COVID !
I have had long covid for 14 months with extreme fatigue and just few days ago I woke to feel a deeper breath that I have not felt for 14 months and my taste has also improved I'm so happy
Very nice for Dr Kahn, he does look better. I would like to see the full range of responses to this treatment. I’ve seen chat among people who have gotten the treatment and know one in particular who did not do well with help apheresis. However, it would be good to know more information to see what real results are.
charborne they are open to scrutiny now - that’s why there’s a trial ongoing with the Stellenbosch team! I will be covering the results as soon as they are public - which won’t be that long.
I am 68 years old, I have auto immune disease including asthma and also suffer with complex ptsd. After being infected with Covid 12 months ago, I have had severe breathing problems, Fatigue, high blood pressure and my anxiety has worsened. For 8 months I have been told - Take your Ventolin, see a physiotherapist, you are having a panic attack, you are Doctor shopping and looking for drugs. I have been ignored, insulted and kicked out of emergency, to the point I felt suicidal. FINALLY I got a referral to an asthma specialist and cardiologist. BAM I have micro clots. I have been put on blood thinners and any other advice would be helpful.
would nattokinase and serrapeptase help with micro clotting? i just took my first capsule right now. thanks for awesome video by the way im on 11 months and ive been watching you since i was on my 2nd month. Your videos helped me not freak out as much as i would have without them.
It's only been a handful of days for me of taking a combo of natto/serra combo but so far I believe it's helping. I did start the serrapetase a bit before the natto, so I think it's primarily the natto that seems to be doing it for me - much better breathing and energy these last two days than I've had in quite a while (19 month long hauler).
Serrapeptase is a very weak clot buster. Its primarily being used as an inflammatory. BOLUOKE lumbrokinase is approximately 17 x more potent than any natto product.
@@ivanjo1933 I’ve been successfully taking Nattokinase for 20 years after having open heart surgery because I was allergic to all forms of blood thinners. I tried Lumbrokinase a few years ago, but it made me feel very strange. I felt out of it and unable to function normally. Have you ever heard of that happening to someone? Thanks
I had such severe palpitations and from covid, I was told I needed a pacemaker. Also given a blood thinner (eliquis) which probably helped any microclotting. And the patches I wore, so have recovered completely. I still get an occasional skipped beat and still use the thinner. And patches. Another brilliant video gez, thank you!
Thanks as ever for the film Gez! Great to see Asad finding some progress. Realise you probably aren't ready to share yet, but wondering how your experience of HELP compares with Asad's?
Great work gentlemen and all makes alot of sense, thankyou. Is anyone form mainstream medicine world wide or for myself the NHS going to run with this in any way? I anticipate a very long wait before the majority of sufferers see any help coming sadly. This is not I hasten to add a criticism of your fantastic efforts Gez and Asad.
Great questions! Hope these 2 Doctors are fully recovered. I would love to know how this Doc is doing now. I also hope anyone reading this is on their way to a full recovery from this debilitating outcome.
Hello Gez and Dr. Khan! I just wanted to say thank you for everything you both have done in helping spread information and awareness for this dreadful illness. I just watched this video and am very interested in exploring this treatment! I have a more general question. Do you have any theories on why some of us seem to be getting worse the longer we carry on this condition? I am at month 20 (contracted the virus on February 14th, 2020), and I am worse now than I was in November 2020. At that point I could still function and even exercise. My fatigue is at an all time high, and I’m bed bound a lot of the time. I’m worried this is a sign that I will be like this permanently, and I’m just not sure how to handle that. Any insight would be greatly appreciated!
This is me 100% sadly!!! I began having COVID symptoms July 2020 & was finally diagnosed positive September 7, 2020. I had a fever & sweat for several months, I didn't know what was happening to me at the time. November 2020 began LC symptoms and im basically bedridden right now.
@@kimrider-orazi9897 I am so sorry! I have autoimmune damage going on, we need the science and the med community to step on it. And GEZ to bring us the helpful news!
Have you been taking Ivermectin or hydroxychloroquine? I was doing well on it but I am now in a bad relapse. I think I caught Covid in Feb 2020. I’ll never know, since testing was non existent then.
I'd also just like to say that to my amateur non-science brain the stiff blood vessel theory would absolutely make sense. I've experienced temporary orthostatic intolerance with dizziness during bad ME/CFS "crashes" before but now that I have severe POTS and very rare ME/CFS crashes my symptoms are completely different i.e. insanely high hr and adrenaline shakes if I'm upright for too long. With the help of midodrine and an effort to rebuild "conditioning" to gravity my bp seems to increase normally on being upright if I've rested enough but can't stay up for that long- again, it depends on rest. Stiff blood vessels might explain why it seems to take so MUCH energy to cause and sustain vasoconstriction but when I overdo it with gravity and/or heat it's not enough for me to feel less energetic or provoke my old typical symptoms of ME/CFS when I then rein it in.
I should have been doing a revision ppt on Blood & Circulation but found this far more interesting! Problem is with Consultants is that they specialise in one narrow discipline. LC needs a multi disciplined approach. Hopefully, the latest research will lead to treatment protocols that can rapidly be put into practise, but agree with your comment that NHS isn't going to provide such specialist treatment anytime soon. Could infra red saunas be a carefully substituted ( under medical supervision), in the meantime, given that they cause: vasodilation and hence increase blood flow to all organs ( but can increase IL1and IL6, which should advise cautioning slowly building up treatment time), dials up mitochondrial function, dials up serotonin and dopamine production, plus, with careful use over time (with LC patients) , will promote a healthy immune system in such patients? Brilliant effort, given you're both still in recovery, excellent work! 👍😊
@@EvelineBlue Great! I've been having them daily for the last 11 days. Have had covid or LC but l must say, it does make you feel great, especially as winter is now upon us. Trick is to build up time SLOWLY, if you feel uncomfortable stop and do no more than maybe 5mins on the first session ( or before this if you feel uncomfortably hot.) All the best with your recovery, Ewa!
@@carolenmarch7445 i had covid , and now LC too ,did infrared sauna and it always made me feel good right after using but unfortunately i think it causes my symptoms to get much worse every time.
Great video Gez. So relived to hear that there’s some objective measurements and evidence involved in substantiating the micro clotting theory; this is what hope looks like.
Boluoke lumbrokinase is an powerful clot buster. Serro is primarily anti inflammatory. And lumbrokinase by Canada RNA is 17x more potent than nattokinase. Vessel sulodexide (Heparan sulfate) is very effective re micro circulation and clot busting.
Long C. here. President Tinnitus seems everlasting. So do imbalance issues. Still have a high D-Dimer, but Ox.levels is 98-99%. Tired. Low physical performance, but still innovative and full of future plans. My PD described Rivaroxaban as desperate, but no clotting was found in advanced MR scans. I am clueless.
About half way through. Excellent so far. Gez, at the 9-month mark I had a huge recovery (minus tinnitus) in which I was able to return to the gym every day for heavy exercise. Thought I was finally past this. Crashed terribly, still sick at 12 months. Could a month-long wellness period suggest it may not be micro-clotting in my case? I know you are not my doctor but even tentative speculation is appreciated. Thanks.
You went back to the gym Heavy probably your body needed more time to heal longer than you expected. A holiday after feeling better makes more sense rather then running back to put strain on your body. Good luck
@RUN-DMC / Gez Medinger Thank you both for that insightfull discussion and @Dr Kahn hope you feel better soon! I am vaccine injured from Pfizer/Biontech with mostly brainfog, off-balance feeling and eye pain. Mechanics behind this are poorly understood but there might be parallels to long covid. I know first hand from one of Dr.Jaegers Patients that she treated post-vax patients sucessfully already. My Question: What are your thoughts on applying this treatment to vaccine injured? And Secondly, more importantly: Why not completey get rid of your plasma in the first place with plasmapheresis? Of course you would do this iteratively. But with one session around 800ml of plasma can be extracted (without substituting). Your body then needs to recreate "fresh" plasma. Wouldnt this be the smarter and quicker option than HELP? Or would it not work?If yes, why not? Thanks and keep up your research. Best, John
Thank God that you raise these issues. It reminds though of similar issues with the differences between M.E, FMS, CFS, PVS and also the diagnosis and treatment comes via functional silos, often hermetically sealed disciplines and never the twain shall meet. As with ME, FMS etc the causes can be different too within the sub groups and patient to patient. A highly complex subject. I guess we all need to keep plugging away. Keep up the good work😊👍
My most troublesome symptom of long covid is, extremely LOUD, debilitating tinnitus. So severe, I set a 12 month time frame and date to end my life. I have been in bed resting for 3 months now. Could you speak on tinnitus? I believe it is platelet /micro clots in the tiny blood vessels of my inner ear. It totally makes sense. Moreover, the tinnitus volume and frequency pitch is greatly exacerbated upon exercise . I define exercise as light activity. For example, to vaccum the house (with hearing protection of course). Thanks for any input. Just an ounce of hope, these sirens in my head will resolve over time or treatment, would be life saving. No pun intended.
I wonder if already not being much of a bleeder adds to the likelihood of long covid? I was able to shorten the amount of time on steroids this flare up with intense cardio, power lifting and tanning. I was pissed that my body would do this to me again so I was determined to get back to a leg press of 590 lbs. That was my starting point when I first started working out 3 years ago and I got back to that in 5 weeks. This is my 25th month of the long C and a meat only diet and no alcohol made me feel incredible but inflation here in the states under Brandon doesn’t really allow for that at the moment.
The idea that Dr. Khan was able to travel is itself amazing. I have a daughter in Germany that I would love to visit, but just driving or riding to the airport sounds way too stressful for me. So THANK YOU for making that sacrifice for all of us! I would love to try an anticoagulant (not heparin as it doesn't work on the type of clots long COVID fabricates) for a few weeks. 13 months in. Using a scooter to try to live a little. Mostly don't go anywhere as getting dressed is exhausting all by itself. Standing and walking are very challenging.
Interesting that you say, heparine does not work with long covid clots, do you have a source for this? Because actually the apheresis Dr. Khan got in Germany, works exactly with heparine!
My long covid friend flew from Canada to Germany to receive Apheresis treatment... Felt better for a while, then symptoms returned... I don't think this is the answer. We're still searching for a working solution... Save your money.
Hi Gez. I picked up a cold/flu thing about a month ago. On top of my worsening LC fatigue condition , it has totally wiped me out. I had mild-ish Covid symptoms in May 2020. Since then, fatigue and some other symptoms have progressively worsened. Unable to work I resorted to a Pacing programme for the last 4 months or so. Since getting this cold/flu I've been rarely out of bed. Have you heard of any others experiencing this kind of condition. Doctors have been little help and deaf to my talk of underlying LC. I'm worried the LC fatigue could progress to more serious long term conditions. Nobody is listening. Cheers Mike Thanks, Needed to vent, back to rest/sleep and wasting away 😁👍 Hope you are progressing with your recovery.
So sorry to hear this Mike. It’s not unusual for another infection of some kind to set you back - it’s basically increased the severity of your LC. Keep pacing yourself and best of luck with your recovery.
Great interview. Thank you. I have a question for a future episode. Is Dr Kahn using venous oxygen saturation merely as a possible useful tool in demonstrating unwellness or is it also an indication of whether one does or doesn’t have micro clots? Can you have normal V02 saturation and still have micro clots?
Great work! Please keep everyone updated as things progress. Perhaps I missed it or didn’t understand it in the video but can you please provide a quick explanation why donating plasma would not have the same affect as HELP apheresis??
Thank you Gez! I‘m wondering if maybe a simple microscopy of blood would reveal microclotting. If so, that‘d be amazing. Then again I‘m sure these doctors would’ve thought of that already😉
The difference compared to last year. Before the onset of joint pain, fatigue. Probably a delta. I had a clear icicle for 3 weeks, without fatigue and other feelings. I'm doing physical work. It wasn't until 4 weeks that I got joint pain and my vocal cords caught and snored without fevers. I went to the doctor for pcr and I was positive. in the second week at home, I lost my sense of smell for a total of 3 weeks at home. And again, after a week of work on the weekend, chills and fever started. I put on a set of vitamins again and I hope we can do it together. So far without vaccination that I don't even consider. That's my story. Greetings to all from the Czech Republic. And thank you for RUN-DMC for his job well done. I'm an asthmatic and a fumator. .) There is not only one path in life that you want to go and the herd goes. When he guarantees that he will provide me with financial compensation for my daughter after the vaccine if the vaccine kills me. Then maybe. I will not play Russian roulette.
Hi Jaroslav, thanks for your story. Vaccination is a very personal decision for long haulers - have a look at my recent film about it if you’ve not seen it already.
Casual observation but Dr Asad does look a lot better. Good work. Gez, as this treatment isn't available in the UK, have you heard anything about intravenous ozone therapy? Ozone wouldn't remove the clots but might (in non medical terms) screw them up a bit. Plus it has other benefits.
I work in water treatment plants (as an automation tech) and ozone is deadly if you breath it. It makes your lungs not be able to take the oxygen in the air. It destroys many bad things in the water, without leaving residue. I am curious about why putting that in your blood would help?
@@alexandrecouture2462 Yes agree, it should never be inhaled. By injecting it into your blood it apparently attacks viruses and bacteria without harming the body. It's been used in Germany for decades and is considered safe if used correctly. I've completed a dozen ozone treatments and currently feel much better... however this is covid, I'm not going to celebrate just yet.
I did ozone therapy and it helps mitochondria to recover. Ask your doctor for it (here not widely available). Hypoxia theory due to mikroclotting affects the mitochondrial function as they need oxigen to produce energy. Therapy that support mitos has helped me quite a bit ! But it’s eventually not curative??
I used to work for a company manufacturing apheresis machines. Not B Braun but similar. I saw what a fight patients with familial hyperlipidemia had to access lipid apheresis treatments in the UK. NHS Blood and Transplant has moved forward with other forms of apheresis these days and it would not be beyond the NHS to provide for and fund this treatment. Normally it takes a few good clinical champions to get this off the ground and some patient lobbying. Fingers crossed!
@@asadik76not surprised. They were the first lipid apheresis centre in the Uk. The unit was started by an amazing doctor. This type of technology is not prohibitively expensive. It could be selectively adopted by the NHS. Hopefully someone will take this on.
@@Dottiebayer Me too, 11 months already. I did not have severe covid, just started having breathing issues on day 5 and doctors told me it's normal for covid and it will get resolved on its own. It did not yet, and probably never will if they don't find the cause so they can fix it.
7 years ago I had a brain injury that was NOT getting better. After 2 years of working with a neurologist and different medications i was not healing, My husband started to juice Turmeric every day for me with some oranges and a little pepper. After 6 weeks the swelling in my brain diminished and I improved. Now I've started taking it to reduce long covid symptoms like inflammation and help with blood thinning, it has been very helpful.
Very interesting!
Tumeric in research reduces not only inflammation but has helped people who don't move much prevent circulation problem clots heart issues etc. I suggest you research Longvida Tumeric
how many mg are you taking daily?
Have you healed your tbi and long covid?
Liza how bad was your tbi?
I really hope Dr Asad gets better. He really deserves it and it will give us so much hope.
Thanks Sami!
@@RUNDMC1 I still have shortness of breath after 9 months . Can i have low oxygen or hypoxia ? When i measure my oxygen level its between 98% and 99% and I still feel like i can’t breath properly … this happens especially as soon as i wake up. It’s really weird…
@@pink0lemonad Same! Often upon waking but not always
@@ljot1 I wake up everyday like this . It’s really scary actually. I wonder if is possible that my oxygen levels drop when I’m sleeping ? I don’t know 🤷🏻♀️
These vacines are causing major health issues to ordinary healthy people 2nd would you want a vacine that doesn’t work wow can’t believe how dumb the people are
I used to take l-arginine (for my blood) when I had long Covid and that seemed to help. I also realized my long Covid was a direct amplification of my bodies stress response from a break up the year before. It sent my adrenal system haywire. It was like my adrenal gland was a valve that was permanently open so I’d get hit with chronic fatigue around 10-11am every morning. It’s only when I started taking supplements to reduce the cortisol and quit sugar and coffee (known stress makers in the body) that I rapidly got better after 8 months of this. Also I can’t emphasize this enough, DESTRESS your system and that includes your mind. Meditation was essential for me to discover the causes of my illness. The inner introspection helped me see what was happening.
That's crazy its pretty similar to me I had a extremely bad break up the year before and although this might not be directly the cause of these symptoms I believe its paves a massive way into these symptoms to affect us. I think if stress is present these treatments won't work as good. Reduce stress with treatment seems like the best way.
Would it be possible to ask you if youd say your fatigue and brain fog has gone and how long it took? Thanks
Big break up for me too a year before plus lots of other stressful stuff. Stress is a massive booster of symptoms for me. Twice this summer I managed a holiday away from home and I improved every time. What did you use for controlling cortisol?
Sounds like me. Thanks
@@solids1451 it was 6 months for me. Couldnt even read. Lost vision in my eye. Im not 100percent but the brain fog and vision got better. I still get it slightly from time to time.
When all is said and done this virus could actually a blessing in the long run if it helps the poor ME/CFS people that have suffered for years. I’m optimistic what we’re learning at the minute will help more than just the COVID sufferers and that’s a blessing in disguise.amazing what humans can achieve as a collective if we just stop trying to kill each other for a change
Seriously. Mecfs needs a cure asap
Yes those but - Not only them but many other auto-immune diseases which are not given the high profile of Lhers. We are just ignored and told to get on with life despite living with acute bodily pain, extreme fatigue and other symptoms that the 'experts " are trumpeting loud and long about. Had enough of being sorry for Lfers and being ignored
@@jenniferpotter9699 all post viral conditions are caused by low levels of the bodies foundation for health the critical amino acid glutathione which lowers the atp level which lowers all the levels resulting in a weak immune system that cant expel dead viral debris from the system,every time the dead viral debris moves the immune system spits out cytokine storms ,this is the same for long covid with the addition for many of having blood clots caused by the spike protein triggering the blood clotting system ,this is whats causing the vaccine injuries ,a d dimer test revelas the blood clotting level over 500 the person is in real trouble,the problem is when the clotting system breaks down theyw ill then bleed to death ,most auto immune conditions are caused by leaking gut syndrome ,food particles pass through the holes in the gut and get directly into the blood stream that makes the immune system go hay wire its that what causes mcas certain foods trigger that, takea heaped tea spoon of slippery elm bark powder ina glass of water ten minutes before food it takes about ten days to heal the holes in the gut the immune system calms down and the nasty symptoms all disappear ,dead viral debris in the system can be safely removed with one drink of the miracle mineral solution ,tahts the end of cfs me and long covid ,the mms sees the covid spike protein as toxic and removes it that stops the blood clots then take this to address the nutritional deficiencies what got you in trouble take this with food 600mg caps n acetyl cysteine - 1000mg caps cod liver oil and fish oil - 30mg zinc - 5000ius vitd3 /100mcg vit k2 - 100mg magnesium citrate - 200mcg selenium - 2 x 750mg caps beef liver extract - a combined tablet bromelain/papain when you take the first mouthful of food take the bromelain/papain then the supplements then eat the food the brom/pap will make sure its all fully digested the levels rocket and the energy levels rise, many americans have long covid and an auto immune condition mostly caused by eating toxic gm food ,they firstly drink the miracle mineral solution to clear all the dead viral debris out of the system,many symptoms will vanish the other symptoms are caused by leaking gut ,heal that over ten days with slippery elm bark powder then take the protocol here you will regain your health ina few weeks,the miracle mineral solution is chlorine dioxide which is used for making drinking water safe to drink if you used bleach it would kill you,no excuse to be sick all thses conditions are easily healed ,the doctors in charge of our health cant tell you any of this they are a waste of time
I agree w you and see a sliver lining! Chronic flamatory suffering is finally going to get a lot of research funding. And how delicate we are will be more respected.
Ironically had people given more belief in the suffering of ME/CFS patients then more research would have been done prior to Covid arriving and most likely a treatment. But because ME/CFS is one of the most neglected diseases (compared to its suffering level) there is no cure for either them or Long Covid. There could have been a cure already waiting for Long Covid. Meaning that medical neglect on ME/CFS has affected millions of new Long Covid sufferers unnecessarily
Gez, you are our own LC rockstar!
Thank you for always keeping us informed 💕
Thanks Alison!
Gez you deserve some type of award and special recognition for all you are uncovering to help find answers and help us all. Thank you for everything you do, truly ❤
Haha, thank you Tracey!
Yes, you are doing a great job and it is so inspiring to us ME/CFS sufferers to know there are people who really care and are willing to search deeply for a solution. Thank you Gez and Asad!
I just keep thinking how ill he would have gotten for just doing this video. PEM from emotional and cognitive labor is devastating as well. Much appreciated
Watching this evolve is fascinating and really exiting. A social media enabled patient led mass movement. Key people from the patient group rising to leadership roles based on skillsets and bundles of courage. Doctors and researchers prepared to think outside of the box and try treatments. The potential to ease human suffering is just mind blowing, Great stuff as always!
Thank you Ronan
I think we could write a book couldn’t we?
Thanks Ronan!
@@asadik76 absolutely, an adventure for sure - just not the sort of adventure any of us wanted!!! 🤔
I haven't had covid myself... but for the sake of all those who have, or will, I really hope effective treatments are found for acute and long covid. And if these long covid studies and trials also lead to more knowledge and treatments for non-covid chronic fatigue, etc - even better. We definitely need more research like this, for so many things...
Just found out that when the SA group visit, a writer is coming with them. She has LC and will be writing a book!
Thank you Gez and Asad for another brilliant and informative video. I can’t even begin to tell you how much these videos have helped in the last year. Hoping we can all recover very soon. Wishing you all the best.
Thank you Josie!
@@RUNDMC1.... How are these people getting help when I still can't get any help or recognition of my issues 20 months after being in ICU with COVID19.
It appears that most of your guest speakers are higher up in the pecking order as regards working in the medical profession.
I work in the NHS, and I've been totally ignored and put down by my employer and my GP. There has been no follow up, and I'm told there won't be. The so called long hauler / long COVID clinics don't exist, and treatments are not on offer ..... WHY ??
Maybe this is a "real" subject to discuss with your privileged guests.
They should remember that we can't (especially us on low wages) afford to jet around the world or pay for private work.
Thank you so much for sticking with this investigation. You were the first person I found who made a real effort to inform us about what was happening with long covid and what might help to remedy it.
Thanks Celia!
Why dont you try ArtemiC ?
ruclips.net/video/hnQxWyDF_44/видео.html
Some people have had success using ArtemiC Support for Long Covid - its all natural.
Thank you so much for this video. I am a family medicine clinician from the US and have POTS in addition to many new diagnoses post covid and post vaccine. I have been telling clinicians who have evaluated me that I feel that I am not perfusing properly and that it feels that I am clotting improperly on a microvascular level, and have been dismissed so many times because "tests are normal". Hearing another fellow clinician go through what I have gone through and have a hypothesis similar to my own creates hope for the future, for myself and my patients.
Thanks again for all your hard work! Blessing upon blessing for Dr Khan's work! This channel continues to be a wonderful beacon of information and subsequently hope by providing reasoned, caring focus on all the many people suffering this thing and research into it. Even though I'm fortunate enough to have a primary care doctor who listens and cares, I can't help but think that without this channel I'd be in much worse physical, mental and emotional place. So, once again, thank you.
Thanks for your support David!
You are far ahead of the docs on utube. Thank you for keeping us ahead and Informed. 🙏
I‘m on anticoagulants medication for 3 month now and my life has changed from bedridden/housebound and unable to work to a nearly normal life. Dr. Jäger and Dr. Pretorius with the research on microclots and the suggestion for tripple therapy simply saved me. I‘m so thankful for this journalistic work
Great to hear you’re getting treatment and getting better Lena!
Do you have PEM? Sorry my english isn't so good. I want dry this anticoagulants, but I'm scared. Please tell me more
Hi Lena, I am also experiencing some improvement with the “triple” anticoagulant protocol. How long have you been doing it, and are when are you planning on stopping? I get a lot of side effects; not sure how long to keep going.
@@jamiesmith4141 Jamie, I wonder if you would consider sharing with me the specific meds which comprise your current 'triple' anticoagulant protocol? Much obliged.
@@eugeniebreida1583 aspirin, clopidogrel, and apixiban.
What a brilliant presentation! Its probably why I feel better when I VASTLY over-hydrate with electrolytes and water......usually about 2-3 GALLONS per day now and tons of anti-histamines I feel so much better.....this kinda explains a lot!
Same here!
What do you means by tons? How many antihistamines do you take daily?
Yeah, adding hydration helps add blood volume which helps POTS symptoms.
I heard a doctor say that one of the first courses of action they tend to offer for long Covid is intravenous hydration.
@@honorburza9110 I was offered this quite early on but wasn't given much of a rationale as the LC debate wasn't yet in the public domain. Also the costs of each treatment were prohibitive.
Gez and Dr. Khan, I can't thank you enough for this video and all your advocacy. I signed up for the H.E.L.P. Apheresis waiting list for standby appointments and am confirmed for Feb 21! Thank you so much and hoping this helps me a little bit. At this point I will try just about anything to feel better and be able to walk and have a little bit of a life again. All of these videos give me hope and keep me going to push for recovery.
Great to hear it Katrina :)
Hey Katrina. Did you already have some sessions? How did it go? I've got an invitation for Cyprus for end of March and don't know what to do. Are they testing you there for microclots? Thanks!
What I find has significantly helped is the vit c, vit D, zinc, niacin,selenium and quercetin combo from one of your earlier vids helped. Cutting out all processed carnage and stick to whole foods, tomatoes are poison as far as I’m concerned. I went histamine free for 3 weeks then add bits in. A big winner for me is ginger tea with a bit of garlic in there and cinnamon, not powdered processed rubbish, actual ginger roots steeped into teas with a bit of garlic and cinnamon. Epsom salt baths too. I still ache but about 30% of what it was like before. This video goes a long way to explain why it helps. Good video well presented. The science is catching up we just need to weather the storm and minimise our ailment so we can function. Main thing is moral and eating properly like humans should before modern food came along. Good luck to all
I've recently started low histamine diet as well due to inflammation and lots of muscle aches. Was yours due to Covid as well? I've been suffering for 4 weeks now
@@robertharris4661 Why dont you try ArtemiC ?
ruclips.net/video/hnQxWyDF_44/видео.html
Some people have had success using ArtemiC Support for Long Covid - its all natural.
@@robertharris4661 how R u doing now?
I’m doing the same with Bromelaine, Nattokinase and serrapeptase thrown in as well to try and break down the Fibrins, a few weeks in and feeling slightly better!
Positive news - thanks Asad, I’m glad your improving and thank you Gez for your continued clear thinking.
Thanks Stephen!
Another great video Gez & Dr Asad, hopefully this is the way forward. Would be great for some of the UK's long covid research money to be spent on this
"Bed bound, not eating, and just giving up on life" yes, add to that depression, falling into worsening habits, smoking a lot, maybe subconscious/conscious self harm. ..... Yep, I already know it's not good.
Thank you so much for your advocating for LH'ers (and others with similar post-viral symptoms such as/or with ME/CFS). I truly hope Dr. Asad Khan (and yourself Gez) will continue to see improvements. I'm 1,5 years in and I'm a lot better especially in terms of energy. Although we're all different and our healing differs, like Dr. Asad says pacing is so important, and a low stress life and proper diet.
How long did it take for you to get a bit of energy back? I'm 7 months in and still exhausted as hell.
@@unknown-ry1tf Personally, I got more energy around the 1-year mark, like you I was extremely tired at 0-9 months and gradually started seeing improvement. I still have days when I need to rest and sleep more than before and have to be careful with mental and physical exertion & stress.
That gives me some hope! For the first 9 months - have you had a good amount of energy on some days and were worse on others? I hear that all the time and it worries me because I feel the same level of fatigue every day and every hour of the day. There are no good days energy-wise for me. I am scared I will never feel energetic or not tired again.
@@unknown-ry1tf I had unrelenting fatigue for many months and very slowly got more energy (with ups and downs). Don't lose hope because it will get better, it just takes a lot of patience and trust!
This is really exciting for me, I suffered post covid DVT and Pulmonary Embolisms from March 2020 and am still suffering. I was on anticoagulants for 12 months so apart from preventing dvt and pe's occurring I'm not sure how this could help with micro clots as I still have terrible fatigue and PEM etc. Life is cruel as all my life I have been a competitive cyclist, the worst thing you could do to me is give me fatigue and PEM! If I could get this treatment I would be all over it.
Again @Gez Medinger and Dr Asad, thank you for all that you do .
Thanks Robert! Best of luck with your recovery
- Dr. Charles Hoffe - Warning - mRNA Spike proteins / micro vascular blood-clotting in the vast majority - - ruclips.net/video/5sIWb9GTbbE/видео.html
I hope you get well. I'm sorry you are suffering through this.
hang in there we making history here!:) I know how you feel, I'm the same- my old body loved sweat now it loves collecting crumbs on the couch!:(
(Riffing a bit here I as I have time on my hands) - This is really interesting. Having LC, I was asked to test O2 with a pulse Oximeter after moderate exercise. The result was in the acceptable range, and I was advised by my LC clinic that this was typical across LC patients. If the issue is endothelial resulting in problems for tissues absorbing the O2, then O2 circulating in the bloodstream is unlikely to be a problem. i.e. - I have enough oxygen in my bloodstream, but the condition stops that from being useable. If motorway = artery, car = cell - and people = oxygen, then we've had an accident at the junction and people can't get out to their destination (kind of). Obviously, much more complicated than my analogy.
I also wonder if the lung / chest issues people are experiencing have been misinterpreted to date. I think people have been looking at the chest issues with LC as a respiratory problem (ability to oxygenate effectively). But what if the issue wasn't so much the lungs ability to get oxygen into the bloodstream - but of oxygen getting back to the lung tissue? This fits with your hypothesis I believe.
Anyway, regardless - this is a great update and brings hope to many.
Thanks Jag!
For this, I'm in a hyperbaric chamber. Helpful!
Hi Gez. Just to say that I'm glad to see how healthy you look these days. And just add that, just like your good friend Dr Asad Khan, you appear to be much sharper in thought and speech. Long may you journey back to optimal health continue!
Thanks Joe!
Thankyou for using your energy to help and make these ongoing videos .
I really really hope Dr Asad continues to improve , he absolutely deserves to and thankyou for the knowledge and efforts when you're both still unwell . These videos give me hope that one day I will be back to where I was prior to covid .
Thanks Ella!
Dr Khan's looking so much better! I do hope it works out for him long-term; when he was terribly ill he was still advocating and educating, he deserves a reward.
He does indeed :)
I think this pandemic has shown how limited so many 'experts' are intellectually. Blood clots have been known to be the killer in Covid, almost from the beginning Chinese doctors were revealing this. This work seems really interesting.
Agree! Plus SA, Saudi, Iranian, Indian doctors
Do you know if them found any type of cure?
Yup, it's why I was rejected from the hospital because I refuse the vent, but they also refused blood thinners and didn't want to do ANYTHING when I refused the vent and runDEATHisNEAR. What was limited, was the PERMISSION and ALLOWANCE of the doctors who were 'on it' from the gate, but they were being canceled, censored, killed, etc. All the way from the start.
Could serapeptais help with micro clots as it gets rid of fibrin if its worth a try what should take in amounts!
Serapeptais How much Could We take and how would it help with micro clots as it works on fibrin so I'm informed ?
Thanks so much for this video! I've been waiting for HELP Apheresis to gain traction. Praying it comes to the US (& UK) soon! 🙌
Thanks Danielle!
Micro clotting really feels like a breakthrough. The forthcoming research will hopefully begin to develop the treatment pathway so many people need and deserve
They have created problems so people turn to them for more help
Expensive patented drugs will be developed to treat it...
@@elisabethmorrison6045 yep
Dr. Charles Hoffe and Dr. Peter McCullough
Yeah so true. Hopefully we will have a medicine(pill) that we can take and get these micro clots removed. Apheresis way would not be affordable by all
I had chronic fatigue several years ago and in my attempts to get better I learnt a lot about the ME/CFS world ( plug for Health Rising and Cort Johnson! Like this channel, an incredible selfless resource) With the work of people like Ron Davis et Al at Standord we were making some really significant advances then Covid struck.
I really do think a silver lining to this pandemic will be greater compassion and understanding for people suffering from these 'rare' complex diseases which will hopefully lead to better treatments.
HIV / AIDS showed us the extraordinary progress that can be made when there is the will to solve a problem and clever people are given the money they need to tackle it.
Nice to hear someone continues research in this area, however sad to hear that things are not working out for those who have a better grasp of what's going on. I can sense the trepidation in the doctors voice (the same feeling I had). The micro-clot theory was one of the initial theories of what was causing the deaths. Anticoagulants were used and people (including a young doctor) died of a brain aneurism following treatment (a state of panic and hopelessness caused an over-reaction by the medical staff on their own doctor). As mentioned, none of the coagulation lab tests indicate the presence of micro-clots to a severe extent (except upon initial infection sometimes), which unfortunately would indicate that the use of a micro-clot filter (which is probably what this type of apheresis involves) will probably not be helpful. In fact, it may be more effective in removing spike proteins, viral debris, etc.. and may be better in functioning in that capacity. What was not mentioned is that microclots are a sequelae of bacterial blood infections as well. These clots which form around bacterial debris may remain in one specific area such as a heart valve and therefore cause cardiac problems. What is also not mentioned is the effect of aspirin on platelet dysfunction and how aspirin would help prevent microclots ONLY IF the clots involve platelets (these would be larger clots). What should also happen if micro-clots were a major concern is kidney problems as kidneys eventually filter these clots and lab tests would indicate some kind of kidney dysfunction. None of this occurs which, unfortunately, means the answer is not micro-clots. Is this research useless-absolutely NOT. What will happen is an "accidental" result will occur due to some random research and a solution will be found. If the apheresis works, then it works--we can find out later how it works... Remember, the TWO shot covid vaccine was found accidentally as was penicillin. As long as research continues, something will come along that works! The sooner, the better.
interesting point, mind you I've done 2 blood donations and through I'm not in the clear I've felt much much better each time after a day or 2. I tried aspirin and it had a very moderate positive result except i ended up getting bruised more easily.
I read somewhere the blood group 0 is NOT suseptipal to aspirin as much as blood group AB cause AB is more "clotty". I happen to be group 0 so I thought this as the reason
Thank you Roger for this info. You sound like a medical person? This may help me reassess my own theory on my migraines being caused from micro-clots. (Re: Dr. Graham Hughes) But what about white matter lesions in the brain? Have you seen any research on them and association with migraine and the antiphospholipid antibodies? Would appreciate any links if you have.
We need to find out what is causing damage to the capillaries and thus clots
What a shame. RUclips removed your 3 replies. How many deaths have been caused by RUclips’s censorship?
This week marks the one year mark for me. I have listened to this channel and videos since and they have been a great help. Thanks so much.
I hit the 1 year mark in a few days as well. Rough road for sure. And yes- this channel has been wonderful. Hang in there, we’re going to get better.
@@mateosalazar5079 I am just slightly better each week and noticably better every month. Hang in there everyone!!
Through this whole process, during the actual Covid and afterwards, every few weeks I go through sweats episodes, lasting just 2 or 3 minutes.After each, I feel overall better, although have returning fatigue. The first episode happened two days after being diagnosed. I all ofsudden felt really sick, nauseus and about passout. I called 911, but by the the time they got to the house about 5 minutes later, I was already feeling better, and episode had ended. I stood at the front door with my husband, talking to the responders for about 10 minutes. When I went back to the chair in which I was sitting when I called 911, the cushion was soaked with sweat, as well as the carpet below, where I used paper towels to absorb it dry. The night shirt at the time I had worn I wrung sweat out of it the way you would wring out a soaked wash rag.
That was the worst episode, and that was my turning point into recovery. The next sweats episode was about 3 weeks later, but not as severe. This past episode was just a couple days ago, where it was no more than a hot flash for about 5 minutes. After each, I notice improvement.
Is anyone else experiencing episodes like these? Is there anything else I should be doing?
I feel like it happens to me during sleep or right before I fall asleep.
@@shelleylannon2245Guaifenesin helps me with shortness of breath
@@RabiesTheBeagle thank you!
Hi, Shelly, thank you. I did experience a weekend of fatigue after a very energetic Friday, as in pre-,covid. Energy, meaning I felt like my pre-Covid self, but tried still to pace myself. Everything else seems to be in order, but going in for some blood tests this week just the same.
Every week, then every day. Now, 3 days in a row and break... oxygen was dropping to 90 and then back to 98.
Gez and Dr Khan, you are both complete heroes. Thank you for making the real change that we all deserve. Once I am better I would like to dedicate my time to helping others recover from this terrible disease.
Any improvement? I will be doing the same thing
In the beginning, for several months after I first had the covid infection I would get these massive bruises on my legs and sometimes other parts of my body, with no apparent cause. I think they were caused by my blood vessels rupturing as a result of these microclotts. I have always thought there was something going on with my blood circulation when these symptoms came on and they were accompanied by POTS as well. Now I haven't had them in a long time, I feel my body has finally been able to mount an adequate immune response to the virus and it is mostly cleared from my body. Still dealing with intense fatigue and low tolerance to physical activity though...
Best of luck with your recovery Sara
Sounds rough. I'm sorry you've experienced that.💔 I hope you feel better/stay better, soon! 🌻
Probably a combination, I've also had these bruises as have family members which no "apparent" symptoms so even asymptomatic is causing other issues.
I'm a lot better now. I was able to overcome most of my viral symptoms by taking high doses of reishi, which is a powerful anti-viral and immune stimulant. I had to phase it out very slowly from 16 pills a day to now only 1 pill a day and I hope to stop completely in a few weeks.
I tried taking niacin, after I saw so much positive feedback about it on your channel, but it didn't work for me, it gave me horrible side effects. Tried on 3 different occasions always with the same results, so gave that up in the end.
It's so individual what works for each person, we need to really listen to our body. Right now I have days where I feel like a completely normal person, but the fatigue keeps coming back. I'm still not able to spend as much energy as a normal person. I need to be really careful to pace myself, or I crash.
In the past, I would get a fever the next day after pushing my body too hard but that's not happening anymore either :)
This procedure certainly does sound very promising, for many patients, with a multitude of health issues, not just long covid.
A question i would like to ask is, to what extent is the procedure replacing/supplementing the role of the lymphatic system?
Why dont you try ArtemiC ?
ruclips.net/video/hnQxWyDF_44/видео.html
Some people have had success using ArtemiC Support for Long Covid - its all natural.
Thanks for the great interview, and for doing the research! I had a question about these microclots not going away "on their own". Given that some long haulers are recovering or seeing improvement, is it possible to get healthy/ier while still having these clots? Could they dissolve or reduce somehow as we heal? If not, could it still pose a long-term health issue to (former) long haulers to have relatively clotted blood? This is perhaps not the most urgent question, compared to that of access to this treatment that can really remove them, but it seems related to the issue of whether we all have microclots as part of this condition and what that means. Thanks again!
Yes! I’m so curious also. Are these just as bad as the big clots that cause aneurysms, strokes etc?
Why dont you try ArtemiC ?
ruclips.net/video/hnQxWyDF_44/видео.html
Some people have had success using ArtemiC Support for Long Covid - its all natural.
Really good question. I know a few stories of people reacting to HELP badly and so I think it's important to understand if this is the gold standard route.....
I remember my first hospital visit when diagnosed with long COVID, 4 weeks in back in January. I remember when the doctor drew blood from me, my symptoms resolved for that short moment, it’s so weird. Even she was confused why I suddenly felt better for an hour after a blood being drawn!
I think it’s erythrocytosis
@@juliad8303 Surprisingly not for my individual case, as I had a normal level for a male of 16 hemoglobin (red blood cells) adult men being 14 to 18 gm/dL normal red blood cell range
@@linuxducky hm 🤔
I have blood drawn and tossed out routinely I feel better quickly but it doesn't last
Gez, I remember a nurse saying my blood was sticky. I called my doctor and she said something about the being insoluble parts of my blood in the tube or something. Oh my goodness...I really really hope the micro clotting thing is legitimate.
You’re not the only one to have had weirdness with blood draws!
@@RUNDMC1 what about people who don't seem to have weirdness with blood? I haven't tested anything, but given blood easily several times of the months, no one mentioned anything?
Could there be different subsets of LHers?
phantomtr1 Yes, definitely
amazing discovery , i have 3 questions fo you to add into the next session (or answer now if that is possible) 1. will these microclots ever disappear without this treatment ? , 2. will your body eventually over seceral years eradicate these clots as the blood is naturally replenished ?, 3. what would be the effect for blood donation here , for the giver and recipient. ?
Would really appreciate if you could answer this gentleman's question. Thank you!
Yes I’d love to hear more on this.
Look into fasting, the clots could lead to brain death
@@assetjet25 how would fasting help? Wish there was a way to know if we have them
I think everyone thinks the same questions,it would be so helpfull to know how to treat
Thank you Gez and Dr Asad for your endless efforts. I for one am at my best if I manage to stay as long as I can outdoors in the fresh air, not doing anything special, just staying out of the house. Thanks again ❤
Thanks Anna!
Fresh outdoor air definitely helps, but in Canada, it is now too cold to stay out for too long! Have a great day!
Bingo. Joint pain, heart pains and constant lack of "air". Sounds exactly like what I've been suffering from since getting Covid start of March last year.
Really like your channel. You're one of a small group of RUclips doctors and scientists that I trust for real Covid-19 information. Huge thank you ⭐⭐⭐
This is so cool, Gez. Thank you for doing this down-to-earth inspiring interview.
Thanks Barbara!
This is so exciting! Hopefully it will become more accessible. I was absolutely shocked watching Dr. Khan, who we see often--he was like a new person! I'm very happy for him. Thanks for another wonderful presentation, giving us all hope.
Thanks Lynn!
Dr Asad looks a lot better in this vid than previous vids. I hope he is onto something.
I hope so too!!
I started the FLCCC Alliance protocol for long hauler and it's helping me tremendously. I suggest taking a look at it and you can find a doctor near you around the world on their website. They're not affiliated other than they will prescribe the necessary medications no matter the political controversy IF it's right for you and your condition of LC. I feel alive again. I still have brain issues, fatigue and pain but no where at the level it had been since 2020!!! Slowly moving in the right direction, FINALLY!
Gez! I've been watching you off and on for many months. totally impressed with your scientific knowledge on COVID.
Thank you Bob!
Thanks for the video and your continued work on Long Covid.
I had HELP Aphaeresis in Mulheim in July. I know many others that have had HELP treatments as well. Unfortunately my experience was negative, I had a severe worsening of neurological symptoms after 2 treatments. I know many others who have had no benefit or also had a worsening of symptoms, some of these people had 5, 6, 7, 8 treatments. And then some people have seemed to benefit from HELP like Dr Asad. So this treatment may hold some promise for some patients, but like everything with long covid it seems to be a mixed bag. It will be great to get more specific on who exactly this treatment will benefit the most.
Important report!
Sorry to hear you didn’t benefit from the treatment Kevin.
@@RUNDMC1 yeah no worries, this is how long covid is. I just think it’s very important for these messages to be balanced and for all experiences to be shared. I dropped everything and spent thousands of dollars to fly from the states to Germany for this treatment and it went horribly for me. I’d hate to see others have the same experience. This is why the work needs to done to try to identify who responds and who is at risk for negative consequences. The person who was originally running the social media groups for this treatment promoted it as a miracle cure with no risk - this was a disservice to the LC community. I think your video was very fair and balanced and doctor asad mentioned not everyone has responded to treatment so I appreciate that. Again, I share my experience so the other side of the coin is shown and people can do their own research to decide if this treatment would be appropriate for them.
@@Kamjd0725 Have you tried Dr Bruce Patterson's protocol?
@@jac1161 yes I was on it for 4 months
I’ve had severe M.E. and POTS for decades now. I’ve always had large bruises on my legs from nowhere & leggings or socks caused bleeding under the skin ( petechial rash ). The last couple of years have presented a new symptom which is a petechial rash from very mild exposure to evening sunlight. It comes on the next day ( without sunburn) ( I’m mostly bed bound/sofa bound so I have only been well enough to do this 3 times over the last couple of years but it’s happened every time). Also I had to stop taking vitamin D spray because it was causing blood blisters on the inside of my cheeks. I wonder if there might be a vitamin D/ immune system connection? I have leaky gut and that definitely corresponds with the severity of my POTS too. Just sharing to add to the data.
POTS is one of the symptom of ME/CFS.
With us, we are not bleeding (bruising), we are clotting. the opposite problem and the one that causes strokes, heart attacks and lethargy from hell.
@@Jennifer-gr7hn yes, I know about micro clotting but hasn’t something similar been found in pwme too? Both could be endothelial cell diseases. The vaccine has caused severe petechia/bruising & bleeding & so has covid. I think there’s a weird thing going on where both can happen or one leads to the other? For instance, if micro clotting occurs & causes pressure to build up in capillaries, it might make them more fragile & likely to burst resulting in petechiae &/or bruising.
I’ve recently discovered that petechiae especially after exposure to sunlight is a symptom of Sjogrens ( I haven’t been tested yet though). Sjogrens, like EDS, is found at a higher rate in pwme & one study found 14% of long covid patients have it. The overlaps between the two illnesses are very interesting.
@@mihakavcic7237 I mention both bc some pwme don’t have pots, so it helps to clarify the subsets that might be going on. Thanks for mentioning it though.
Fascinating. We are all very fortunate to have people of this calibre in medicine and helping us
Thanks John!
Thanks Gez for another great video. Question, if hypoxia and lack of oxygen are the issues, would things like HBOT, Ozone therapy not work wonders? And for the clotty blood, would blood donation and supplements (nattokinase, serrapeptase) be help ? Or the baby asprin?
Baby aspirin is good, and yes HBOT makes you feel a hell of a lot better! The problem is it doesn’t resolve the underlying cause - so the benefits are temporary
I started nattokinase (2000FU = 1 capsule) 6 days ago and noticed an immediate improvement. I tried 2 pills/day for couple days and notice a slight darkness in one foot which I though might be bruising so I cut back to 1 pill per day. No problems - still improving. I was improving before because I have been working on this post covid syndrome from several angles.
But I thought the COVID vaccine caused micro clotting because of the body turning into a spike protein factory???
@@hamwhacker -I just wish all commenters would state their "vaccine" status before making specific comments about their conditions/experience. Not holding my breath however.
@@RUNDMC1 It does heal the stroke and issues you had, but yes. I'm in an HBOT chamber. I do think it will help heal the blood vessels in time though from what I am learning. It helps with the new onset reynauds. I'm also doing Dr Bruce Patterson's protocol with Maraviroc, statin, aspirin, etc.
The microclots hypothesis explains my symptoms amazingly well. Recently a vein in my hand simply bled into tissue under the skin turning most of my upper hand dark brown for a week. This was a first. My symptoms are not disabling but they do seem to be slowly getting worse.
I been taking high quality and potency omega 3 fish oil. Vit d3, tocotrienols and pycnogenol for the last 3 months. My long covid is long gone. Also im doing low carb diet with almost no processed foods.
@@keylanoslokj1806 Thanks for the advice. Will give extra attention to my diet.
@@keylanoslokj1806 Were you suffering POTS ?
@@kp968 idk what pots is
@@keylanoslokj1806 postural orthostatic tachycardia syndrome
the info is making my head spin 😄😄😄 but thank you for sharing!! after a year of having a casvcade of symptoms, on and off pains, rashes every now & then, headaches, i still am grateful for life. this virus is really making its mark on me & the quality of my day to day living.
onwards to full recovery for all long haulers out there!! @-@
Why does this ring a bell so much with me as an ANCA Vasculitis patience of many years? It sounds like a description of the same tiredness symptoms, which I have always had a feeling were something to do with a mitochondria problem, not producing enough energy, such that it is possible to run out of fuel and stall.
I think I have this “micro-clotting.” I have had a clot in the right leg since May 2021 that they “found”, but I’ve always felt I had a lot more clots. I’m on Eliquis for 6 months now. This analysis makes a lot of sense. Now if I could just find a doctor who will take me seriously with Long Covid! So far, I haven’t had much luck here in Oxford, UK! Thank you for this very important information…wish me luck getting into a Long Covid Clinic! I’ve had all the symptoms of LC for 19 months now. But no one seems to think it’s “important” enough to get me in there! I keep getting bumped and bumped by the NHS. Oh well…
Im in Australia and have been watching health podcasts for years and it appears that "function medicine" doctors the ones who really attempt to help people rather than conventional MDs. Hope this is helpful to you.
Sorry to hear this Monica - and best of luck with your recovery!
You can get the treatment at Dr. Jaeger‘s clinic in Mülheim, Germany :)
@@bernadettebecher5668 Can I ask which state and who you see please ? I am in South Australia and just diagnosed with micro clots
Do they do this in the states
This is all very exciting, I hope ME patients get help soon! Who knew a global pandemic would actually be good for some of us?
Let’s cross our fingers!
I have had ME/cfs for over 2 decades now. I noticed several times that my blood seems oddly thick and viscous. So it might very well be a thing in ME too.
Same here. But I had a 23 and me DNA genome Dooby done and I found out that I have Jak 2 mutations which are associated with chronic blood cancer but my blood counts fall within a normal range.
@@ladymuck2 I've had a that test lying around for months now. Sounds I really need to send it! Especially since my mother had cll. 😲
The connections between multiple conditions that seem to have some commonality is intriguing . I now wonder if some of the pain of fibromyalgia may be associated with microclotting . I have found that the areas where I was experiencing fibro pain to feel extremely cold to the touch . I have come across endothelial dysfunction, as a possible cause in some published work on this topic . As a migraine sufferer as well it has been suggested that microclotting could also underlie migraine 'syndrome' headaches this is so interesting. I have multiple allergies and gut problem ...now long covid . I did wonder if I was at risk of post covid issues because of my other conditions its looking like there is some relationship .Thanks for this research it may lead to helping other conditions also .
B12 deficiency
@@potsbottlejars5551 Really! I've suspected that also due to correlating info however, my blood tests showed high B12. I'm wondering if that could be that the B12 is just staying in theblood and not getting initio the cells?
Hello Autumn, Yes I had Antiphospholipid (APS) antibodies years ago and now migraine headaches pretty much daily. Dr. Graham Hughes (in England) says to apply anticoag therapy even without positive antibodies, becuz of microclotting, but the hematologist I saw would not touch it. So I've been using grated ginger in my drinks daily and it does seem to help the headaches. You can grate and then freeze it for easier use. Also Bilberry, garlic and Gingko for natural anticoag. Need to watch going too long without eating and getting good sleep. Hope this helps you. I'm still working on the circadian rythymn. It's hard! And pacing. Also hard when life has to happen and you just do that one more thing! I just got over CV also, still some subtle symptoms, but it took 6 wks b4 my below "normal" energy came back. Hope you improve steadily!
@@lauragott2122 your liver could be dumping it back
@@potsbottlejars5551 Thanks for that. But do you know why?
I'm sure this is a big part of my remaining symptoms as taking nattokinase seems to do me a lot of good
Gez, I really enjoy your site because you are a great interviewer with amazing guests. You also ask very pertinent questions and have a clear voice and speech so are easy to understand. Thank you for doing this! How you keep improving until your health is completely back to normal.
Thank you Laura!
Yes!!! Now we're getting somewhere. Started taking a supplement called DMG a few months ago, it claims to help the body utilize oxygen better and have noticed -- it really helps! DMG in addition to breathing exercises + cold shower + coffee (vasoconstriction routine, essentially) is part of my regular routine and keeps me out of the woods, but not back to 100% by any means at all.
The freezing showers are honestly a miracle
@@InnesOrganics really? Ive heard this before but unsure what it does? Have you fully recovered? What else did you try if you don't mind me asking :-)
Absolutely amazing Gez, I’m still hoping that the research starts to turn up solutions for recovery. Thanks again for your continued in depth reports.
Thanks Ian!
I want to point out something that's helped me. I take 500mg Niacin in the morning and in the evening. This tremendously lowers the intensity of my normal crashes.
Flush or non flush?
@@radicr I've tried both and both have worked for me.
@@asmrfoodieuk7965 I tried non flush and saw no effect. Then tried flush and burned inside badly, I thought it will damage something inside of me. Sadly, that did not have effect at all. I only noticed my right eyesight was worsened, but not sure if it's due to covid or niacin flush maybe.
Wow, that's a pretty high dose. I've been taking 100mg per day but haven't noticed any improvement. Maybe I should be taking more.
Flush. Take after eating to avoid the burn if that's too much for you. I hope it's not a coincidence that I've been feeling better while taking it but here's hoping!
What an interesting discussion. Thank you for sharing your experience and your expertise.
Undoubtedly the most compelling theorem yet postulated !
It's more profound than Chronic Fatigue Syndrome, which only affects the nervous system - because it afflicts the vascular system ... causing oxygen starvation system-wide.
Great work, guys - this is the Unifying theory of Long COVID !
I have had long covid for 14 months with extreme fatigue and just few days ago I woke to feel a deeper breath that I have not felt for 14 months and my taste has also improved I'm so happy
Very nice for Dr Kahn, he does look better. I would like to see the full range of responses to this treatment. I’ve seen chat among people who have gotten the treatment and know one in particular who did not do well with help apheresis. However, it would be good to know more information to see what real results are.
I thought the same. I did a double-take when I heard his voice.
Objective results are coming!
charborne they are open to scrutiny now - that’s why there’s a trial ongoing with the Stellenbosch team! I will be covering the results as soon as they are public - which won’t be that long.
I am 68 years old, I have auto immune disease including asthma and also suffer with complex ptsd.
After being infected with Covid 12 months ago, I have had severe breathing problems, Fatigue, high blood pressure and my anxiety has worsened.
For 8 months I have been told -
Take your Ventolin, see a physiotherapist, you are having a panic attack, you are Doctor shopping and looking for drugs.
I have been ignored, insulted and kicked out of emergency, to the point I felt suicidal.
FINALLY I got a referral to an asthma specialist and cardiologist.
BAM I have micro clots.
I have been put on blood thinners and any other advice would be helpful.
would nattokinase and serrapeptase help with micro clotting? i just took my first capsule right now. thanks for awesome video by the way im on 11 months and ive been watching you since i was on my 2nd month. Your videos helped me not freak out as much as i would have without them.
It's only been a handful of days for me of taking a combo of natto/serra combo but so far I believe it's helping. I did start the serrapetase a bit before the natto, so I think it's primarily the natto that seems to be doing it for me - much better breathing and energy these last two days than I've had in quite a while (19 month long hauler).
Serrapeptase is a very weak clot buster. Its primarily being used as an inflammatory. BOLUOKE lumbrokinase is approximately 17 x more potent than any natto product.
I think it’s definitely worth incorporating to try
@@ivanjo1933
I’ve been successfully taking Nattokinase for 20 years after having open heart surgery because I was allergic to all forms of blood thinners. I tried Lumbrokinase a few years ago, but it made me feel very strange. I felt out of it and unable to function normally. Have you ever heard of that happening to someone? Thanks
I really believe that those who are doing this research are truly onto something here!!! I'm looking forward to more information about this.
I had such severe palpitations and from covid, I was told I needed a pacemaker. Also given a blood thinner (eliquis) which probably helped any microclotting. And the patches I wore, so have recovered completely. I still get an occasional skipped beat and still use the thinner. And patches. Another brilliant video gez, thank you!
Thanks Adele!
Thanks as ever for the film Gez! Great to see Asad finding some progress. Realise you probably aren't ready to share yet, but wondering how your experience of HELP compares with Asad's?
Great work gentlemen and all makes alot of sense, thankyou.
Is anyone form mainstream medicine world wide or for myself the NHS going to run with this in any way? I anticipate a very long wait before the majority of sufferers see any help coming sadly. This is not I hasten to add a criticism of your fantastic efforts Gez and Asad.
It’s going to take a while unfortunately
@@RUNDMC1 Very frustrating, but inevitable.
Great questions!
Hope these 2 Doctors are fully recovered. I would love to know how this Doc is doing now.
I also hope anyone reading this is on their way to a full recovery from this debilitating outcome.
Hello Gez and Dr. Khan! I just wanted to say thank you for everything you both have done in helping spread information and awareness for this dreadful illness. I just watched this video and am very interested in exploring this treatment!
I have a more general question. Do you have any theories on why some of us seem to be getting worse the longer we carry on this condition? I am at month 20 (contracted the virus on February 14th, 2020), and I am worse now than I was in November 2020. At that point I could still function and even exercise. My fatigue is at an all time high, and I’m bed bound a lot of the time. I’m worried this is a sign that I will be like this permanently, and I’m just not sure how to handle that.
Any insight would be greatly appreciated!
This is me 100% sadly!!! I began having COVID symptoms July 2020 & was finally diagnosed positive September 7, 2020. I had a fever & sweat for several months, I didn't know what was happening to me at the time. November 2020 began LC symptoms and im basically bedridden right now.
@@kimrider-orazi9897 I am so sorry! I have autoimmune damage going on, we need the science and the med community to step on it. And GEZ to bring us the helpful news!
Have you been taking Ivermectin or hydroxychloroquine? I was doing well on it but I am now in a bad relapse. I think I caught Covid in Feb 2020. I’ll never know, since testing was non existent then.
All the best with the wonderful work you are doing. I have all my confidence in the work of Prof Pretorius and her team.
Here in the United States it seems like they aren't doing very much to help us long covid sufferers.
Agreed!
All the U.S. is doing is trying to vaccinate. No research into long covid, nat. Immunity, etc.. it's a shame.
I'd also just like to say that to my amateur non-science brain the stiff blood vessel theory would absolutely make sense. I've experienced temporary orthostatic intolerance with dizziness during bad ME/CFS "crashes" before but now that I have severe POTS and very rare ME/CFS crashes my symptoms are completely different i.e. insanely high hr and adrenaline shakes if I'm upright for too long. With the help of midodrine and an effort to rebuild "conditioning" to gravity my bp seems to increase normally on being upright if I've rested enough but can't stay up for that long- again, it depends on rest. Stiff blood vessels might explain why it seems to take so MUCH energy to cause and sustain vasoconstriction but when I overdo it with gravity and/or heat it's not enough for me to feel less energetic or provoke my old typical symptoms of ME/CFS when I then rein it in.
I should have been doing a revision ppt on Blood & Circulation but found this far more interesting!
Problem is with Consultants is that they specialise in one narrow discipline. LC needs a multi disciplined approach. Hopefully, the latest research will lead to treatment protocols that can rapidly be put into practise, but agree with your comment that NHS isn't going to provide such specialist treatment anytime soon.
Could infra red saunas be a carefully substituted ( under medical supervision), in the meantime, given that they cause: vasodilation and hence increase blood flow to all organs ( but can increase IL1and IL6, which should advise cautioning slowly building up treatment time), dials up mitochondrial function, dials up serotonin and dopamine production, plus, with careful use over time (with LC patients) , will promote a healthy immune system in such patients?
Brilliant effort, given you're both still in recovery, excellent work! 👍😊
Oh wow just bought an infrared sauna blanket, definitely will use it now 😉
Infra-red saunas definitely worth a go if you can!
@@EvelineBlue Great! I've been having them daily for the last 11 days. Have had covid or LC but l must say, it does make you feel great, especially as winter is now upon us. Trick is to build up time SLOWLY, if you feel uncomfortable stop and do no more than maybe 5mins on the first session ( or before this if you feel uncomfortably hot.) All the best with your recovery, Ewa!
Have NOT had covid...
@@carolenmarch7445 i had covid , and now LC too ,did infrared sauna and it always made me feel good right after using but unfortunately i think it causes my symptoms to get much worse every time.
Thank you again Gez. Your videos are a reminder that at some point a cure and an understanding of the condition will come.
Thanks Tim
Great video Gez. So relived to hear that there’s some objective measurements and evidence involved in substantiating the micro clotting theory; this is what hope looks like.
Thanks Reece :)
You are the winner of the $64 million dollars question!!! Thank you!!
What about using the enzyme serrapeptase to help dissolve fibrin from the endothelium in addition?
Boluoke lumbrokinase is an powerful clot buster. Serro is primarily anti inflammatory. And lumbrokinase by Canada RNA is 17x more potent than nattokinase. Vessel sulodexide (Heparan sulfate) is very effective re micro circulation and clot busting.
Long C. here. President Tinnitus seems everlasting. So do imbalance issues. Still have a high D-Dimer, but Ox.levels is 98-99%. Tired. Low physical performance, but still innovative and full of future plans. My PD described Rivaroxaban as desperate, but no clotting was found in advanced MR scans. I am clueless.
About half way through. Excellent so far. Gez, at the 9-month mark I had a huge recovery (minus tinnitus) in which I was able to return to the gym every day for heavy exercise. Thought I was finally past this. Crashed terribly, still sick at 12 months. Could a month-long wellness period suggest it may not be micro-clotting in my case? I know you are not my doctor but even tentative speculation is appreciated. Thanks.
You went back to the gym Heavy probably your body needed more time to heal longer than you expected. A holiday after feeling better makes more sense rather then running back to put strain on your body. Good luck
I wouldn’t want to speculate on this - sorry!
@@RUNDMC1 I understand. Thank you for the great work!
I have suffered for over 1 year and 1 month, multiple mysterious symptoms with no end in sight.
@RUN-DMC / Gez Medinger
Thank you both for that insightfull discussion and @Dr Kahn hope you feel better soon!
I am vaccine injured from Pfizer/Biontech with mostly brainfog, off-balance feeling and eye pain. Mechanics behind this are poorly understood but there might be parallels to long covid. I know first hand from one of Dr.Jaegers Patients that she treated post-vax patients sucessfully already.
My Question: What are your thoughts on applying this treatment to vaccine injured? And Secondly, more importantly: Why not completey get rid of your plasma in the first place with plasmapheresis? Of course you would do this iteratively. But with one session around 800ml of plasma can be extracted (without substituting). Your body then needs to recreate "fresh" plasma. Wouldnt this be the smarter and quicker option than HELP? Or would it not work?If yes, why not?
Thanks and keep up your research. Best, John
Yes, I was wondering this as well!
Yes vaccine injured from Pfizer as well and tested positive for Long haul covid from the vaccine. It is a real side effect from the shot
Awesome guys! Thanks so much for all the effort and sharing!
Thank God that you raise these issues. It reminds though of similar issues with the differences between M.E, FMS, CFS, PVS and also the diagnosis and treatment comes via functional silos, often hermetically sealed disciplines and never the twain shall meet. As with ME, FMS etc the causes can be different too within the sub groups and patient to patient. A highly complex subject. I guess we all need to keep plugging away. Keep up the good work😊👍
Thanks Muso!
My most troublesome symptom of long covid is, extremely LOUD, debilitating tinnitus. So severe, I set a 12 month time frame and date to end my life. I have been in bed resting for 3 months now.
Could you speak on tinnitus? I believe it is platelet /micro clots in the tiny blood vessels of my inner ear. It totally makes sense. Moreover, the tinnitus volume and frequency pitch is greatly exacerbated upon exercise . I define exercise as light activity. For example, to vaccum the house (with hearing protection of course). Thanks for any input. Just an ounce of hope, these sirens in my head will resolve over time or treatment, would be life saving. No pun intended.
I wonder if already not being much of a bleeder adds to the likelihood of long covid?
I was able to shorten the amount of time on steroids this flare up with intense cardio, power lifting and tanning. I was pissed that my body would do this to me again so I was determined to get back to a leg press of 590 lbs. That was my starting point when I first started working out 3 years ago and I got back to that in 5 weeks. This is my 25th month of the long C and a meat only diet and no alcohol made me feel incredible but inflation here in the states under Brandon doesn’t really allow for that at the moment.
The idea that Dr. Khan was able to travel is itself amazing. I have a daughter in Germany that I would love to visit, but just driving or riding to the airport sounds way too stressful for me. So THANK YOU for making that sacrifice for all of us! I would love to try an anticoagulant (not heparin as it doesn't work on the type of clots long COVID fabricates) for a few weeks. 13 months in. Using a scooter to try to live a little. Mostly don't go anywhere as getting dressed is exhausting all by itself. Standing and walking are very challenging.
Interesting that you say, heparine does not work with long covid clots, do you have a source for this? Because actually the apheresis Dr. Khan got in Germany, works exactly with heparine!
My long covid friend flew from Canada to Germany to receive Apheresis treatment... Felt better for a while, then symptoms returned... I don't think this is the answer. We're still searching for a working solution... Save your money.
Hi Gez. I picked up a cold/flu thing about a month ago. On top of my worsening LC fatigue condition , it has totally wiped me out. I had mild-ish Covid symptoms in May 2020. Since then, fatigue and some other symptoms have progressively worsened. Unable to work I resorted to a Pacing programme for the last 4 months or so. Since getting this cold/flu I've been rarely out of bed. Have you heard of any others experiencing this kind of condition. Doctors have been little help and deaf to my talk of underlying LC. I'm worried the LC fatigue could progress to more serious long term conditions. Nobody is listening. Cheers Mike
Thanks, Needed to vent, back to rest/sleep and wasting away 😁👍
Hope you are progressing with your recovery.
So sorry to hear this Mike. It’s not unusual for another infection of some kind to set you back - it’s basically increased the severity of your LC. Keep pacing yourself and best of luck with your recovery.
@@RUNDMC1 thanks Gez, it's like how low can you go? Only way is up now eh. Thanks for the work you've done on this. Cheers Mike👍
Great interview. Thank you. I have a question for a future episode. Is Dr Kahn using venous oxygen saturation merely as a possible useful tool in demonstrating unwellness or is it also an indication of whether one does or doesn’t have micro clots? Can you have normal V02 saturation and still have micro clots?
Great work! Please keep everyone updated as things progress.
Perhaps I missed it or didn’t understand it in the video but can you please provide a quick explanation why donating plasma would not have the same affect as HELP apheresis??
I am also very curious for this question! :) Thanks
We speak about this in the film!
Thank you Gez! I‘m wondering if maybe a simple microscopy of blood would reveal microclotting. If so, that‘d be amazing. Then again I‘m sure these doctors would’ve thought of that already😉
The difference compared to last year. Before the onset of joint pain, fatigue. Probably a delta. I had a clear icicle for 3 weeks, without fatigue and other feelings. I'm doing physical work. It wasn't until 4 weeks that I got joint pain and my vocal cords caught and snored without fevers. I went to the doctor for pcr and I was positive. in the second week at home, I lost my sense of smell for a total of 3 weeks at home. And again, after a week of work on the weekend, chills and fever started. I put on a set of vitamins again and I hope we can do it together. So far without vaccination that I don't even consider. That's my story. Greetings to all from the Czech Republic. And thank you for RUN-DMC for his job well done.
I'm an asthmatic and a fumator. .) There is not only one path in life that you want to go and the herd goes.
When he guarantees that he will provide me with financial compensation for my daughter after the vaccine if the vaccine kills me. Then maybe. I will not play Russian roulette.
Hi Jaroslav, thanks for your story. Vaccination is a very personal decision for long haulers - have a look at my recent film about it if you’ve not seen it already.
Casual observation but Dr Asad does look a lot better. Good work.
Gez, as this treatment isn't available in the UK, have you heard anything about intravenous ozone therapy? Ozone wouldn't remove the clots but might (in non medical terms) screw them up a bit. Plus it has other benefits.
I’ve heard of people feeling better after it - anecdotal of course
I work in water treatment plants (as an automation tech) and ozone is deadly if you breath it. It makes your lungs not be able to take the oxygen in the air. It destroys many bad things in the water, without leaving residue. I am curious about why putting that in your blood would help?
@@alexandrecouture2462 Yes agree, it should never be inhaled. By injecting it into your blood it apparently attacks viruses and bacteria without harming the body. It's been used in Germany for decades and is considered safe if used correctly. I've completed a dozen ozone treatments and currently feel much better... however this is covid, I'm not going to celebrate just yet.
I did ozone therapy and it helps mitochondria to recover. Ask your doctor for it (here not widely available). Hypoxia theory due to mikroclotting affects the mitochondrial function as they need oxigen to produce energy. Therapy that support mitos has helped me quite a bit ! But it’s eventually not curative??
I used to work for a company manufacturing apheresis machines. Not B Braun but similar. I saw what a fight patients with familial hyperlipidemia had to access lipid apheresis treatments in the UK. NHS Blood and Transplant has moved forward with other forms of apheresis these days and it would not be beyond the NHS to provide for and fund this treatment. Normally it takes a few good clinical champions to get this off the ground and some patient lobbying. Fingers crossed!
Indeed. Thanks Debbie!
Well Llandough Hospital has a HELP machine.
@@asadik76not surprised. They were the first lipid apheresis centre in the Uk. The unit was started by an amazing doctor. This type of technology is not prohibitively expensive. It could be selectively adopted by the NHS. Hopefully someone will take this on.
I am still suffering of shortness of breath and chest pain, after my severe covid😓
me too
@@Dottiebayer Me too, 11 months already. I did not have severe covid, just started having breathing issues on day 5 and doctors told me it's normal for covid and it will get resolved on its own. It did not yet, and probably never will if they don't find the cause so they can fix it.
Sorry to hear that Michael