Is (Micro)clotting Causing Long Covid? | The Role of HELP Apheresis as Treatment

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  • Опубликовано: 10 июн 2024
  • At the end of my last film, I promised I'd be talking about what I think is causing Long Covid. Well, it made sense to cover this rather hot new topic at the same time - microclotting.
    What is it? Why is it happening? What symptoms happen as a result? And how can we stop it?
    Well, I've spoken to my good friend, Dr Asad Khan - who's out in Germany at the moment undergoing HELP Apheresis, to learn more about it.
    ----------------------------------------------------------------------
    The Long Covid Handbook (Oct 2022), by Gez Medinger and Professor Danny Altmann and published by Penguin Books is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition since early 2020, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. The Long Covid Handbook is available from the following links:
    US: a.co/d/0gvkJCU
    UK: amzn.eu/d/9KjurGb
    -------------------------------------------------------------------
    Contents:
    0:00 Introduction
    0:32 What's Causing Long Covid?
    4:19 The Proposed Pathophysiology
    7:14 What is HELP Apheresis?
    10:00 The Mechanism for PEM
    12:08 Dr Khan's experience with HELP
    15:25 Do all Long Haulers have Microclots?
    18:20 Testing / Why are clotting results normal?
    21:53 Venous Oxygen Saturations
    25:44 Where is HELP Apheresis available?
    27:53 What %age does HELP help?
    29:42 What Research is Happening?
    33:50 What can LHers discuss with their doctors?
    38:14 Further Questions?
    39:34 Conclusion
    References/Resources:
    To sign up to HELP Apheresis waiting list
    apheresisassociation.org/
    FB group
    / 659008718403141
    Dr Beate Jaeger’s website (in German)
    beatejaeger.com/
    Drs Jaeger & Khan BBC interview
    • BBC News - Dr Beate Ja...
    The Pretorius papers
    www.resiapretorius.net/
    resiapretorius/st...
    Other interesting papers on microthrombi:
    www.biorxiv.org/content/10.11...
    www.mdpi.com/1999-4915/13/10/...
    Delphi consensus guideline on management of Long Covid by 33 doctors (29 with the illness including myself)
    bjgp.org/content/bjgp/71/712/...
    CDC guidance on management of Long Covid
    www.cdc.gov/coronavirus/2019-...
    World Physio briefing paper
    world.physio/sites/default/fi...
    POTS U.K. website- valuable info on self testing, nonpharmacological measures, specialists
    www.potsuk.org/
    Long COVID Physio
    longcovid.physio/
    Royal College of Occupational Therapists Resources on Long COVId
    www.rcot.co.uk/post-covid-syn...
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Комментарии • 1 тыс.

  • @devilsadvocatetrolledition3183
    @devilsadvocatetrolledition3183 2 года назад +216

    When all is said and done this virus could actually a blessing in the long run if it helps the poor ME/CFS people that have suffered for years. I’m optimistic what we’re learning at the minute will help more than just the COVID sufferers and that’s a blessing in disguise.amazing what humans can achieve as a collective if we just stop trying to kill each other for a change

    • @ikyathay2998
      @ikyathay2998 2 года назад +15

      Seriously. Mecfs needs a cure asap

    • @jenniferpotter9699
      @jenniferpotter9699 2 года назад +13

      Yes those but - Not only them but many other auto-immune diseases which are not given the high profile of Lhers. We are just ignored and told to get on with life despite living with acute bodily pain, extreme fatigue and other symptoms that the 'experts " are trumpeting loud and long about. Had enough of being sorry for Lfers and being ignored

    • @Beekind799
      @Beekind799 2 года назад +8

      @@jenniferpotter9699 all post viral conditions are caused by low levels of the bodies foundation for health the critical amino acid glutathione which lowers the atp level which lowers all the levels resulting in a weak immune system that cant expel dead viral debris from the system,every time the dead viral debris moves the immune system spits out cytokine storms ,this is the same for long covid with the addition for many of having blood clots caused by the spike protein triggering the blood clotting system ,this is whats causing the vaccine injuries ,a d dimer test revelas the blood clotting level over 500 the person is in real trouble,the problem is when the clotting system breaks down theyw ill then bleed to death ,most auto immune conditions are caused by leaking gut syndrome ,food particles pass through the holes in the gut and get directly into the blood stream that makes the immune system go hay wire its that what causes mcas certain foods trigger that, takea heaped tea spoon of slippery elm bark powder ina glass of water ten minutes before food it takes about ten days to heal the holes in the gut the immune system calms down and the nasty symptoms all disappear ,dead viral debris in the system can be safely removed with one drink of the miracle mineral solution ,tahts the end of cfs me and long covid ,the mms sees the covid spike protein as toxic and removes it that stops the blood clots then take this to address the nutritional deficiencies what got you in trouble take this with food 600mg caps n acetyl cysteine - 1000mg caps cod liver oil and fish oil - 30mg zinc - 5000ius vitd3 /100mcg vit k2 - 100mg magnesium citrate - 200mcg selenium - 2 x 750mg caps beef liver extract - a combined tablet bromelain/papain when you take the first mouthful of food take the bromelain/papain then the supplements then eat the food the brom/pap will make sure its all fully digested the levels rocket and the energy levels rise, many americans have long covid and an auto immune condition mostly caused by eating toxic gm food ,they firstly drink the miracle mineral solution to clear all the dead viral debris out of the system,many symptoms will vanish the other symptoms are caused by leaking gut ,heal that over ten days with slippery elm bark powder then take the protocol here you will regain your health ina few weeks,the miracle mineral solution is chlorine dioxide which is used for making drinking water safe to drink if you used bleach it would kill you,no excuse to be sick all thses conditions are easily healed ,the doctors in charge of our health cant tell you any of this they are a waste of time

    • @pbanther3902
      @pbanther3902 2 года назад +4

      I agree w you and see a sliver lining! Chronic flamatory suffering is finally going to get a lot of research funding. And how delicate we are will be more respected.

    • @brobinson8614
      @brobinson8614 2 года назад +17

      Ironically had people given more belief in the suffering of ME/CFS patients then more research would have been done prior to Covid arriving and most likely a treatment. But because ME/CFS is one of the most neglected diseases (compared to its suffering level) there is no cure for either them or Long Covid. There could have been a cure already waiting for Long Covid. Meaning that medical neglect on ME/CFS has affected millions of new Long Covid sufferers unnecessarily

  • @lizagarcia2117
    @lizagarcia2117 2 года назад +42

    7 years ago I had a brain injury that was NOT getting better. After 2 years of working with a neurologist and different medications i was not healing, My husband started to juice Turmeric every day for me with some oranges and a little pepper. After 6 weeks the swelling in my brain diminished and I improved. Now I've started taking it to reduce long covid symptoms like inflammation and help with blood thinning, it has been very helpful.

    • @RUNDMC1
      @RUNDMC1  2 года назад +2

      Very interesting!

    • @theancientsancients1769
      @theancientsancients1769 2 года назад +6

      Tumeric in research reduces not only inflammation but has helped people who don't move much prevent circulation problem clots heart issues etc. I suggest you research Longvida Tumeric

    • @GK-8
      @GK-8 2 года назад

      how many mg are you taking daily?

    • @TheBushRanger.
      @TheBushRanger. 2 года назад

      Have you healed your tbi and long covid?

    • @TheBushRanger.
      @TheBushRanger. Год назад

      Liza how bad was your tbi?

  • @f0ster444
    @f0ster444 2 года назад +97

    I used to take l-arginine (for my blood) when I had long Covid and that seemed to help. I also realized my long Covid was a direct amplification of my bodies stress response from a break up the year before. It sent my adrenal system haywire. It was like my adrenal gland was a valve that was permanently open so I’d get hit with chronic fatigue around 10-11am every morning. It’s only when I started taking supplements to reduce the cortisol and quit sugar and coffee (known stress makers in the body) that I rapidly got better after 8 months of this. Also I can’t emphasize this enough, DESTRESS your system and that includes your mind. Meditation was essential for me to discover the causes of my illness. The inner introspection helped me see what was happening.

    • @solids1451
      @solids1451 2 года назад +6

      That's crazy its pretty similar to me I had a extremely bad break up the year before and although this might not be directly the cause of these symptoms I believe its paves a massive way into these symptoms to affect us. I think if stress is present these treatments won't work as good. Reduce stress with treatment seems like the best way.

    • @solids1451
      @solids1451 2 года назад

      Would it be possible to ask you if youd say your fatigue and brain fog has gone and how long it took? Thanks

    • @turkdouglas
      @turkdouglas 2 года назад +3

      Big break up for me too a year before plus lots of other stressful stuff. Stress is a massive booster of symptoms for me. Twice this summer I managed a holiday away from home and I improved every time. What did you use for controlling cortisol?

    • @mjenks85
      @mjenks85 2 года назад

      Sounds like me. Thanks

    • @mjenks85
      @mjenks85 2 года назад +3

      @@solids1451 it was 6 months for me. Couldnt even read. Lost vision in my eye. Im not 100percent but the brain fog and vision got better. I still get it slightly from time to time.

  • @samikassou2944
    @samikassou2944 2 года назад +69

    I really hope Dr Asad gets better. He really deserves it and it will give us so much hope.

    • @RUNDMC1
      @RUNDMC1  2 года назад +3

      Thanks Sami!

    • @pink0lemonad
      @pink0lemonad 2 года назад +6

      @@RUNDMC1 I still have shortness of breath after 9 months . Can i have low oxygen or hypoxia ? When i measure my oxygen level its between 98% and 99% and I still feel like i can’t breath properly … this happens especially as soon as i wake up. It’s really weird…

    • @ljot1
      @ljot1 2 года назад +3

      @@pink0lemonad Same! Often upon waking but not always

    • @pink0lemonad
      @pink0lemonad 2 года назад +1

      @@ljot1 I wake up everyday like this . It’s really scary actually. I wonder if is possible that my oxygen levels drop when I’m sleeping ? I don’t know 🤷🏻‍♀️

    • @brianholt8575
      @brianholt8575 2 года назад +4

      These vacines are causing major health issues to ordinary healthy people 2nd would you want a vacine that doesn’t work wow can’t believe how dumb the people are

  • @alisonreed4408
    @alisonreed4408 2 года назад +56

    Gez, you are our own LC rockstar!
    Thank you for always keeping us informed 💕

    • @RUNDMC1
      @RUNDMC1  2 года назад +5

      Thanks Alison!

  • @traceydiamonddesigns
    @traceydiamonddesigns 2 года назад +27

    Gez you deserve some type of award and special recognition for all you are uncovering to help find answers and help us all. Thank you for everything you do, truly ❤

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Haha, thank you Tracey!

    • @lauragott2122
      @lauragott2122 Год назад +3

      Yes, you are doing a great job and it is so inspiring to us ME/CFS sufferers to know there are people who really care and are willing to search deeply for a solution. Thank you Gez and Asad!

    • @bethharris9150
      @bethharris9150 8 месяцев назад

      I just keep thinking how ill he would have gotten for just doing this video. PEM from emotional and cognitive labor is devastating as well. Much appreciated

  • @isabelhona1982
    @isabelhona1982 2 года назад +5

    Thank you so much for this video. I am a family medicine clinician from the US and have POTS in addition to many new diagnoses post covid and post vaccine. I have been telling clinicians who have evaluated me that I feel that I am not perfusing properly and that it feels that I am clotting improperly on a microvascular level, and have been dismissed so many times because "tests are normal". Hearing another fellow clinician go through what I have gone through and have a hypothesis similar to my own creates hope for the future, for myself and my patients.

  • @ronanboyle2006
    @ronanboyle2006 2 года назад +82

    Watching this evolve is fascinating and really exiting. A social media enabled patient led mass movement. Key people from the patient group rising to leadership roles based on skillsets and bundles of courage. Doctors and researchers prepared to think outside of the box and try treatments. The potential to ease human suffering is just mind blowing, Great stuff as always!

    • @asadik76
      @asadik76 2 года назад +12

      Thank you Ronan
      I think we could write a book couldn’t we?

    • @RUNDMC1
      @RUNDMC1  2 года назад +6

      Thanks Ronan!

    • @ronanboyle2006
      @ronanboyle2006 2 года назад +7

      @@asadik76 absolutely, an adventure for sure - just not the sort of adventure any of us wanted!!! 🤔

    • @LindaGailLamb.0808
      @LindaGailLamb.0808 2 года назад +2

      I haven't had covid myself... but for the sake of all those who have, or will, I really hope effective treatments are found for acute and long covid. And if these long covid studies and trials also lead to more knowledge and treatments for non-covid chronic fatigue, etc - even better. We definitely need more research like this, for so many things...

    • @asadik76
      @asadik76 2 года назад +15

      Just found out that when the SA group visit, a writer is coming with them. She has LC and will be writing a book!

  • @martinsanders5418
    @martinsanders5418 2 года назад +7

    "Bed bound, not eating, and just giving up on life" yes, add to that depression, falling into worsening habits, smoking a lot, maybe subconscious/conscious self harm. ..... Yep, I already know it's not good.

  • @josiet5217
    @josiet5217 2 года назад +47

    Thank you Gez and Asad for another brilliant and informative video. I can’t even begin to tell you how much these videos have helped in the last year. Hoping we can all recover very soon. Wishing you all the best.

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thank you Josie!

    • @kiwipics
      @kiwipics 2 года назад +1

      @@RUNDMC1.... How are these people getting help when I still can't get any help or recognition of my issues 20 months after being in ICU with COVID19.
      It appears that most of your guest speakers are higher up in the pecking order as regards working in the medical profession.
      I work in the NHS, and I've been totally ignored and put down by my employer and my GP. There has been no follow up, and I'm told there won't be. The so called long hauler / long COVID clinics don't exist, and treatments are not on offer ..... WHY ??
      Maybe this is a "real" subject to discuss with your privileged guests.
      They should remember that we can't (especially us on low wages) afford to jet around the world or pay for private work.

  • @megsarna7429
    @megsarna7429 2 года назад +7

    You are far ahead of the docs on utube. Thank you for keeping us ahead and Informed. 🙏

  • @melaniegreen4217
    @melaniegreen4217 2 года назад +8

    Another great video Gez & Dr Asad, hopefully this is the way forward. Would be great for some of the UK's long covid research money to be spent on this

  • @ambera.-c9653
    @ambera.-c9653 2 года назад +31

    I think this pandemic has shown how limited so many 'experts' are intellectually. Blood clots have been known to be the killer in Covid, almost from the beginning Chinese doctors were revealing this. This work seems really interesting.

    • @asadik76
      @asadik76 2 года назад +6

      Agree! Plus SA, Saudi, Iranian, Indian doctors

    • @ivan07z583
      @ivan07z583 2 года назад +1

      Do you know if them found any type of cure?

    • @Jennifer-gr7hn
      @Jennifer-gr7hn 2 года назад +2

      Yup, it's why I was rejected from the hospital because I refuse the vent, but they also refused blood thinners and didn't want to do ANYTHING when I refused the vent and runDEATHisNEAR. What was limited, was the PERMISSION and ALLOWANCE of the doctors who were 'on it' from the gate, but they were being canceled, censored, killed, etc. All the way from the start.

    • @lynlawley8903
      @lynlawley8903 Год назад

      Could serapeptais help with micro clots as it gets rid of fibrin if its worth a try what should take in amounts!

    • @lynlawley8903
      @lynlawley8903 Год назад

      Serapeptais How much Could We take and how would it help with micro clots as it works on fibrin so I'm informed ?

  • @ianseaweed
    @ianseaweed 2 года назад +1

    Absolutely amazing Gez, I’m still hoping that the research starts to turn up solutions for recovery. Thanks again for your continued in depth reports.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Thanks Ian!

  • @barbarawarren9443
    @barbarawarren9443 2 года назад +3

    This is so cool, Gez. Thank you for doing this down-to-earth inspiring interview.

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Barbara!

  • @garethmorgan3665
    @garethmorgan3665 2 года назад +3

    I had chronic fatigue several years ago and in my attempts to get better I learnt a lot about the ME/CFS world ( plug for Health Rising and Cort Johnson! Like this channel, an incredible selfless resource) With the work of people like Ron Davis et Al at Standord we were making some really significant advances then Covid struck.
    I really do think a silver lining to this pandemic will be greater compassion and understanding for people suffering from these 'rare' complex diseases which will hopefully lead to better treatments.
    HIV / AIDS showed us the extraordinary progress that can be made when there is the will to solve a problem and clever people are given the money they need to tackle it.

  • @davidhanselman9050
    @davidhanselman9050 2 года назад +17

    Thanks again for all your hard work! Blessing upon blessing for Dr Khan's work! This channel continues to be a wonderful beacon of information and subsequently hope by providing reasoned, caring focus on all the many people suffering this thing and research into it. Even though I'm fortunate enough to have a primary care doctor who listens and cares, I can't help but think that without this channel I'd be in much worse physical, mental and emotional place. So, once again, thank you.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Thanks for your support David!

  • @lynnmcbride9236
    @lynnmcbride9236 2 года назад +1

    This is so exciting! Hopefully it will become more accessible. I was absolutely shocked watching Dr. Khan, who we see often--he was like a new person! I'm very happy for him. Thanks for another wonderful presentation, giving us all hope.

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Lynn!

  • @stephenhocking9467
    @stephenhocking9467 2 года назад +7

    Positive news - thanks Asad, I’m glad your improving and thank you Gez for your continued clear thinking.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Thanks Stephen!

  • @celiad6012
    @celiad6012 2 года назад +12

    Thank you so much for sticking with this investigation. You were the first person I found who made a real effort to inform us about what was happening with long covid and what might help to remedy it.

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Celia!

    • @CBEACH
      @CBEACH Год назад

      Why dont you try ArtemiC ?
      ruclips.net/video/hnQxWyDF_44/видео.html
      Some people have had success using ArtemiC Support for Long Covid - its all natural.

  • @EllaSloman
    @EllaSloman 2 года назад +6

    Thankyou for using your energy to help and make these ongoing videos .
    I really really hope Dr Asad continues to improve , he absolutely deserves to and thankyou for the knowledge and efforts when you're both still unwell . These videos give me hope that one day I will be back to where I was prior to covid .

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Ella!

  • @adrevanschalkwyk9718
    @adrevanschalkwyk9718 2 года назад +1

    All the best with the wonderful work you are doing. I have all my confidence in the work of Prof Pretorius and her team.

  • @nicolademosthenous1345
    @nicolademosthenous1345 2 года назад +1

    Gez and Dr Khan, you are both complete heroes. Thank you for making the real change that we all deserve. Once I am better I would like to dedicate my time to helping others recover from this terrible disease.

    • @TheBushRanger.
      @TheBushRanger. Год назад +2

      Any improvement? I will be doing the same thing

  • @lenad6614
    @lenad6614 2 года назад +5

    I‘m on anticoagulants medication for 3 month now and my life has changed from bedridden/housebound and unable to work to a nearly normal life. Dr. Jäger and Dr. Pretorius with the research on microclots and the suggestion for tripple therapy simply saved me. I‘m so thankful for this journalistic work

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Great to hear you’re getting treatment and getting better Lena!

    • @laiag713
      @laiag713 2 года назад +1

      Do you have PEM? Sorry my english isn't so good. I want dry this anticoagulants, but I'm scared. Please tell me more

    • @jamiesmith4141
      @jamiesmith4141 2 года назад +1

      Hi Lena, I am also experiencing some improvement with the “triple” anticoagulant protocol. How long have you been doing it, and are when are you planning on stopping? I get a lot of side effects; not sure how long to keep going.

    • @eugeniebreida1583
      @eugeniebreida1583 2 года назад

      @@jamiesmith4141 Jamie, I wonder if you would consider sharing with me the specific meds which comprise your current 'triple' anticoagulant protocol? Much obliged.

    • @jamiesmith4141
      @jamiesmith4141 2 года назад +1

      @@eugeniebreida1583 aspirin, clopidogrel, and apixiban.

  • @DanielleLegacy
    @DanielleLegacy 2 года назад +5

    Thanks so much for this video! I've been waiting for HELP Apheresis to gain traction. Praying it comes to the US (& UK) soon! 🙌

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Danielle!

  • @kfamilyvideos1
    @kfamilyvideos1 2 года назад +2

    This week marks the one year mark for me. I have listened to this channel and videos since and they have been a great help. Thanks so much.

    • @mateosalazar5079
      @mateosalazar5079 2 года назад

      I hit the 1 year mark in a few days as well. Rough road for sure. And yes- this channel has been wonderful. Hang in there, we’re going to get better.

    • @kfamilyvideos1
      @kfamilyvideos1 2 года назад

      @@mateosalazar5079 I am just slightly better each week and noticably better every month. Hang in there everyone!!

  • @joebusa6620
    @joebusa6620 2 года назад +2

    Hi Gez. Just to say that I'm glad to see how healthy you look these days. And just add that, just like your good friend Dr Asad Khan, you appear to be much sharper in thought and speech. Long may you journey back to optimal health continue!

  • @Jablicek
    @Jablicek 2 года назад +6

    Dr Khan's looking so much better! I do hope it works out for him long-term; when he was terribly ill he was still advocating and educating, he deserves a reward.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      He does indeed :)

  • @_elfifle_
    @_elfifle_ 2 года назад +5

    Thank you so much for your advocating for LH'ers (and others with similar post-viral symptoms such as/or with ME/CFS). I truly hope Dr. Asad Khan (and yourself Gez) will continue to see improvements. I'm 1,5 years in and I'm a lot better especially in terms of energy. Although we're all different and our healing differs, like Dr. Asad says pacing is so important, and a low stress life and proper diet.

    • @unknown-ry1tf
      @unknown-ry1tf 2 года назад

      How long did it take for you to get a bit of energy back? I'm 7 months in and still exhausted as hell.

    • @_elfifle_
      @_elfifle_ 2 года назад

      @@unknown-ry1tf Personally, I got more energy around the 1-year mark, like you I was extremely tired at 0-9 months and gradually started seeing improvement. I still have days when I need to rest and sleep more than before and have to be careful with mental and physical exertion & stress.

    • @unknown-ry1tf
      @unknown-ry1tf 2 года назад

      That gives me some hope! For the first 9 months - have you had a good amount of energy on some days and were worse on others? I hear that all the time and it worries me because I feel the same level of fatigue every day and every hour of the day. There are no good days energy-wise for me. I am scared I will never feel energetic or not tired again.

    • @_elfifle_
      @_elfifle_ 2 года назад

      @@unknown-ry1tf I had unrelenting fatigue for many months and very slowly got more energy (with ups and downs). Don't lose hope because it will get better, it just takes a lot of patience and trust!

  • @olgasantiago-agirlfriendsguide
    @olgasantiago-agirlfriendsguide 2 года назад +2

    I started the FLCCC Alliance protocol for long hauler and it's helping me tremendously. I suggest taking a look at it and you can find a doctor near you around the world on their website. They're not affiliated other than they will prescribe the necessary medications no matter the political controversy IF it's right for you and your condition of LC. I feel alive again. I still have brain issues, fatigue and pain but no where at the level it had been since 2020!!! Slowly moving in the right direction, FINALLY!

  • @supenskylesko
    @supenskylesko 2 года назад

    I really believe that those who are doing this research are truly onto something here!!! I'm looking forward to more information about this.

  • @annapetursdottir5326
    @annapetursdottir5326 2 года назад +3

    Thank you Gez and Dr Asad for your endless efforts. I for one am at my best if I manage to stay as long as I can outdoors in the fresh air, not doing anything special, just staying out of the house. Thanks again ❤

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Thanks Anna!

    • @alexandrecouture2462
      @alexandrecouture2462 2 года назад +1

      Fresh outdoor air definitely helps, but in Canada, it is now too cold to stay out for too long! Have a great day!

  • @123456BobJackson
    @123456BobJackson 2 года назад +3

    Gez! I've been watching you off and on for many months. totally impressed with your scientific knowledge on COVID.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Thank you Bob!

  • @lauragott2122
    @lauragott2122 Год назад

    Gez, I really enjoy your site because you are a great interviewer with amazing guests. You also ask very pertinent questions and have a clear voice and speech so are easy to understand. Thank you for doing this! How you keep improving until your health is completely back to normal.

    • @RUNDMC1
      @RUNDMC1  Год назад

      Thank you Laura!

  • @kateandjames759
    @kateandjames759 2 года назад +1

    Awesome guys! Thanks so much for all the effort and sharing!

  • @devilsadvocatetrolledition3183
    @devilsadvocatetrolledition3183 2 года назад +22

    What I find has significantly helped is the vit c, vit D, zinc, niacin,selenium and quercetin combo from one of your earlier vids helped. Cutting out all processed carnage and stick to whole foods, tomatoes are poison as far as I’m concerned. I went histamine free for 3 weeks then add bits in. A big winner for me is ginger tea with a bit of garlic in there and cinnamon, not powdered processed rubbish, actual ginger roots steeped into teas with a bit of garlic and cinnamon. Epsom salt baths too. I still ache but about 30% of what it was like before. This video goes a long way to explain why it helps. Good video well presented. The science is catching up we just need to weather the storm and minimise our ailment so we can function. Main thing is moral and eating properly like humans should before modern food came along. Good luck to all

    • @robertharris4661
      @robertharris4661 2 года назад

      I've recently started low histamine diet as well due to inflammation and lots of muscle aches. Was yours due to Covid as well? I've been suffering for 4 weeks now

    • @CBEACH
      @CBEACH Год назад

      @@robertharris4661 Why dont you try ArtemiC ?
      ruclips.net/video/hnQxWyDF_44/видео.html
      Some people have had success using ArtemiC Support for Long Covid - its all natural.

    • @aphysique
      @aphysique Год назад

      @@robertharris4661 how R u doing now?

    • @jedbennett4912
      @jedbennett4912 Год назад

      I’m doing the same with Bromelaine, Nattokinase and serrapeptase thrown in as well to try and break down the Fibrins, a few weeks in and feeling slightly better!

  • @milrond6943
    @milrond6943 2 года назад +21

    What a brilliant presentation! Its probably why I feel better when I VASTLY over-hydrate with electrolytes and water......usually about 2-3 GALLONS per day now and tons of anti-histamines I feel so much better.....this kinda explains a lot!

    • @barbaradonalson9196
      @barbaradonalson9196 2 года назад

      Same here!

    • @momof2shk304
      @momof2shk304 2 года назад

      What do you means by tons? How many antihistamines do you take daily?

    • @meganking8535
      @meganking8535 2 года назад

      Yeah, adding hydration helps add blood volume which helps POTS symptoms.

    • @honorburza9110
      @honorburza9110 2 года назад

      I heard a doctor say that one of the first courses of action they tend to offer for long Covid is intravenous hydration.

    • @hebejeebee
      @hebejeebee 2 года назад +1

      @@honorburza9110 I was offered this quite early on but wasn't given much of a rationale as the LC debate wasn't yet in the public domain. Also the costs of each treatment were prohibitive.

  • @katrinakrulla290
    @katrinakrulla290 2 года назад +2

    Gez and Dr. Khan, I can't thank you enough for this video and all your advocacy. I signed up for the H.E.L.P. Apheresis waiting list for standby appointments and am confirmed for Feb 21! Thank you so much and hoping this helps me a little bit. At this point I will try just about anything to feel better and be able to walk and have a little bit of a life again. All of these videos give me hope and keep me going to push for recovery.

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Great to hear it Katrina :)

    • @ralucanechita3526
      @ralucanechita3526 2 года назад

      Hey Katrina. Did you already have some sessions? How did it go? I've got an invitation for Cyprus for end of March and don't know what to do. Are they testing you there for microclots? Thanks!

  • @johnswimcat
    @johnswimcat 2 года назад +2

    Fascinating. We are all very fortunate to have people of this calibre in medicine and helping us

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks John!

  • @Johannes-wj5ri
    @Johannes-wj5ri 2 года назад +20

    Micro clotting really feels like a breakthrough. The forthcoming research will hopefully begin to develop the treatment pathway so many people need and deserve

    • @elisabethmorrison6045
      @elisabethmorrison6045 2 года назад +1

      They have created problems so people turn to them for more help

    • @barbarawarren9443
      @barbarawarren9443 2 года назад +2

      Expensive patented drugs will be developed to treat it...

    • @Beekind799
      @Beekind799 2 года назад

      @@elisabethmorrison6045 yep

    • @jwhite5396
      @jwhite5396 2 года назад

      Dr. Charles Hoffe and Dr. Peter McCullough

    • @girishpasupathy1709
      @girishpasupathy1709 2 года назад +6

      Yeah so true. Hopefully we will have a medicine(pill) that we can take and get these micro clots removed. Apheresis way would not be affordable by all

  • @robertgrimes4072
    @robertgrimes4072 2 года назад +9

    This is really exciting for me, I suffered post covid DVT and Pulmonary Embolisms from March 2020 and am still suffering. I was on anticoagulants for 12 months so apart from preventing dvt and pe's occurring I'm not sure how this could help with micro clots as I still have terrible fatigue and PEM etc. Life is cruel as all my life I have been a competitive cyclist, the worst thing you could do to me is give me fatigue and PEM! If I could get this treatment I would be all over it.
    Again @Gez Medinger and Dr Asad, thank you for all that you do .

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Thanks Robert! Best of luck with your recovery

    • @ghwk-phd2784
      @ghwk-phd2784 2 года назад +2

      - Dr. Charles Hoffe - Warning - mRNA Spike proteins / micro vascular blood-clotting in the vast majority - - ruclips.net/video/5sIWb9GTbbE/видео.html

    • @robertharris4661
      @robertharris4661 2 года назад +2

      I hope you get well. I'm sorry you are suffering through this.

    • @marky5493
      @marky5493 2 года назад

      hang in there we making history here!:) I know how you feel, I'm the same- my old body loved sweat now it loves collecting crumbs on the couch!:(

  • @rev.rachel
    @rev.rachel 2 года назад

    Holy cow, even through video I can see how much this is helping Dr. Khan. Amazing! Are there trials happening in the US, too? I’m definitely going to be bugging my docs about this.

  • @ellapenrapiti7596
    @ellapenrapiti7596 4 месяца назад

    What an interesting discussion. Thank you for sharing your experience and your expertise.

  • @neldejesus1760
    @neldejesus1760 2 года назад +3

    the info is making my head spin 😄😄😄 but thank you for sharing!! after a year of having a casvcade of symptoms, on and off pains, rashes every now & then, headaches, i still am grateful for life. this virus is really making its mark on me & the quality of my day to day living.
    onwards to full recovery for all long haulers out there!! @-@

  • @reecejacobmusic
    @reecejacobmusic 2 года назад +4

    Great video Gez. So relived to hear that there’s some objective measurements and evidence involved in substantiating the micro clotting theory; this is what hope looks like.

    • @RUNDMC1
      @RUNDMC1  2 года назад +2

      Thanks Reece :)

  • @MrHappyBats
    @MrHappyBats 2 года назад

    I see my LC doctor on Monday, going to be bringing this up. Thanks!

  • @markanslow4720
    @markanslow4720 2 года назад +2

    Thanks as ever for the film Gez! Great to see Asad finding some progress. Realise you probably aren't ready to share yet, but wondering how your experience of HELP compares with Asad's?

  • @turbostream7925
    @turbostream7925 2 года назад +4

    Dr Asad looks a lot better in this vid than previous vids. I hope he is onto something.

    • @asadik76
      @asadik76 2 года назад +2

      I hope so too!!

  • @RK-yg5zr
    @RK-yg5zr 2 года назад +7

    This is all very exciting, I hope ME patients get help soon! Who knew a global pandemic would actually be good for some of us?

    • @RUNDMC1
      @RUNDMC1  2 года назад +3

      Let’s cross our fingers!

  • @davidrobinson8947
    @davidrobinson8947 2 года назад +1

    I have had long covid for 14 months with extreme fatigue and just few days ago I woke to feel a deeper breath that I have not felt for 14 months and my taste has also improved I'm so happy

  • @krg9942
    @krg9942 Год назад

    Great questions!
    Hope these 2 Doctors are fully recovered. I would love to know how this Doc is doing now.
    I also hope anyone reading this is on their way to a full recovery from this debilitating outcome.

  • @mrrat216
    @mrrat216 2 года назад +4

    Great work gentlemen and all makes alot of sense, thankyou.
    Is anyone form mainstream medicine world wide or for myself the NHS going to run with this in any way? I anticipate a very long wait before the majority of sufferers see any help coming sadly. This is not I hasten to add a criticism of your fantastic efforts Gez and Asad.

    • @RUNDMC1
      @RUNDMC1  2 года назад +2

      It’s going to take a while unfortunately

    • @mrrat216
      @mrrat216 2 года назад

      @@RUNDMC1 Very frustrating, but inevitable.

  • @robinhood4640
    @robinhood4640 2 года назад +14

    This procedure certainly does sound very promising, for many patients, with a multitude of health issues, not just long covid.
    A question i would like to ask is, to what extent is the procedure replacing/supplementing the role of the lymphatic system?

    • @CBEACH
      @CBEACH Год назад

      Why dont you try ArtemiC ?
      ruclips.net/video/hnQxWyDF_44/видео.html
      Some people have had success using ArtemiC Support for Long Covid - its all natural.

  • @lesliec8069
    @lesliec8069 2 года назад +2

    You are the winner of the $64 million dollars question!!! Thank you!!

  • @comicbossone2411
    @comicbossone2411 2 года назад

    Thank you so much for the work that you are doing.

  • @chenaniahmay4541
    @chenaniahmay4541 2 года назад +13

    Gez, I remember a nurse saying my blood was sticky. I called my doctor and she said something about the being insoluble parts of my blood in the tube or something. Oh my goodness...I really really hope the micro clotting thing is legitimate.

    • @RUNDMC1
      @RUNDMC1  2 года назад +9

      You’re not the only one to have had weirdness with blood draws!

    • @phantomtr1
      @phantomtr1 2 года назад +3

      @@RUNDMC1 what about people who don't seem to have weirdness with blood? I haven't tested anything, but given blood easily several times of the months, no one mentioned anything?

    • @phantomtr1
      @phantomtr1 2 года назад +3

      Could there be different subsets of LHers?

    • @RUNDMC1
      @RUNDMC1  2 года назад +4

      phantomtr1 Yes, definitely

  • @cabanford
    @cabanford 2 года назад +4

    Bingo. Joint pain, heart pains and constant lack of "air". Sounds exactly like what I've been suffering from since getting Covid start of March last year.

    • @cabanford
      @cabanford 2 года назад

      Really like your channel. You're one of a small group of RUclips doctors and scientists that I trust for real Covid-19 information. Huge thank you ⭐⭐⭐

  • @dakrontu
    @dakrontu 2 года назад +2

    Why does this ring a bell so much with me as an ANCA Vasculitis patience of many years? It sounds like a description of the same tiredness symptoms, which I have always had a feeling were something to do with a mitochondria problem, not producing enough energy, such that it is possible to run out of fuel and stall.

  • @timc2010
    @timc2010 2 года назад +2

    Thank you again Gez. Your videos are a reminder that at some point a cure and an understanding of the condition will come.

  • @judyjones5089
    @judyjones5089 2 года назад +8

    Through this whole process, during the actual Covid and afterwards, every few weeks I go through sweats episodes, lasting just 2 or 3 minutes.After each, I feel overall better, although have returning fatigue. The first episode happened two days after being diagnosed. I all ofsudden felt really sick, nauseus and about passout. I called 911, but by the the time they got to the house about 5 minutes later, I was already feeling better, and episode had ended. I stood at the front door with my husband, talking to the responders for about 10 minutes. When I went back to the chair in which I was sitting when I called 911, the cushion was soaked with sweat, as well as the carpet below, where I used paper towels to absorb it dry. The night shirt at the time I had worn I wrung sweat out of it the way you would wring out a soaked wash rag.
    That was the worst episode, and that was my turning point into recovery. The next sweats episode was about 3 weeks later, but not as severe. This past episode was just a couple days ago, where it was no more than a hot flash for about 5 minutes. After each, I notice improvement.
    Is anyone else experiencing episodes like these? Is there anything else I should be doing?

    • @RabiesTheBeagle
      @RabiesTheBeagle 2 года назад +4

      I feel like it happens to me during sleep or right before I fall asleep.

    • @RabiesTheBeagle
      @RabiesTheBeagle 2 года назад +1

      @@shelleylannon2245Guaifenesin helps me with shortness of breath

    • @shelleylannon2245
      @shelleylannon2245 2 года назад

      @@RabiesTheBeagle thank you!

    • @judyjones5089
      @judyjones5089 2 года назад

      Hi, Shelly, thank you. I did experience a weekend of fatigue after a very energetic Friday, as in pre-,covid. Energy, meaning I felt like my pre-Covid self, but tried still to pace myself. Everything else seems to be in order, but going in for some blood tests this week just the same.

    • @allakolosova2744
      @allakolosova2744 Год назад

      Every week, then every day. Now, 3 days in a row and break... oxygen was dropping to 90 and then back to 98.

  • @JagHiroshi
    @JagHiroshi 2 года назад +13

    (Riffing a bit here I as I have time on my hands) - This is really interesting. Having LC, I was asked to test O2 with a pulse Oximeter after moderate exercise. The result was in the acceptable range, and I was advised by my LC clinic that this was typical across LC patients. If the issue is endothelial resulting in problems for tissues absorbing the O2, then O2 circulating in the bloodstream is unlikely to be a problem. i.e. - I have enough oxygen in my bloodstream, but the condition stops that from being useable. If motorway = artery, car = cell - and people = oxygen, then we've had an accident at the junction and people can't get out to their destination (kind of). Obviously, much more complicated than my analogy.
    I also wonder if the lung / chest issues people are experiencing have been misinterpreted to date. I think people have been looking at the chest issues with LC as a respiratory problem (ability to oxygenate effectively). But what if the issue wasn't so much the lungs ability to get oxygen into the bloodstream - but of oxygen getting back to the lung tissue? This fits with your hypothesis I believe.
    Anyway, regardless - this is a great update and brings hope to many.

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Jag!

    • @jac1161
      @jac1161 2 года назад +1

      For this, I'm in a hyperbaric chamber. Helpful!

  • @clairehigham3465
    @clairehigham3465 2 года назад +1

    Super video. Let's hope it's a crucial part of the pathophysiology. Wondering in the up & coming research if family history of issues with blood clotting will be looked at? Are there generic reasons why some are more prone to clotting?

    • @MR-fn7rw
      @MR-fn7rw 2 года назад +1

      Yes, there are some genetic reasons. Also, your blood type plays a roll in your in your risk of clotting.

  • @snufkin544
    @snufkin544 2 года назад

    Thank you both.

  • @tabithaspeelman7327
    @tabithaspeelman7327 2 года назад +29

    Thanks for the great interview, and for doing the research! I had a question about these microclots not going away "on their own". Given that some long haulers are recovering or seeing improvement, is it possible to get healthy/ier while still having these clots? Could they dissolve or reduce somehow as we heal? If not, could it still pose a long-term health issue to (former) long haulers to have relatively clotted blood? This is perhaps not the most urgent question, compared to that of access to this treatment that can really remove them, but it seems related to the issue of whether we all have microclots as part of this condition and what that means. Thanks again!

    • @LVCoffeeLVer
      @LVCoffeeLVer 2 года назад +4

      Yes! I’m so curious also. Are these just as bad as the big clots that cause aneurysms, strokes etc?

    • @CBEACH
      @CBEACH Год назад

      Why dont you try ArtemiC ?
      ruclips.net/video/hnQxWyDF_44/видео.html
      Some people have had success using ArtemiC Support for Long Covid - its all natural.

    • @noordinaryexperience7815
      @noordinaryexperience7815 Год назад

      Really good question. I know a few stories of people reacting to HELP badly and so I think it's important to understand if this is the gold standard route.....

  • @agylena
    @agylena 2 года назад +4

    Great interview. Thank you. I have a question for a future episode. Is Dr Kahn using venous oxygen saturation merely as a possible useful tool in demonstrating unwellness or is it also an indication of whether one does or doesn’t have micro clots? Can you have normal V02 saturation and still have micro clots?

  • @MariettaFarley
    @MariettaFarley Год назад +1

    The idea that Dr. Khan was able to travel is itself amazing. I have a daughter in Germany that I would love to visit, but just driving or riding to the airport sounds way too stressful for me. So THANK YOU for making that sacrifice for all of us! I would love to try an anticoagulant (not heparin as it doesn't work on the type of clots long COVID fabricates) for a few weeks. 13 months in. Using a scooter to try to live a little. Mostly don't go anywhere as getting dressed is exhausting all by itself. Standing and walking are very challenging.

    • @verenaholm1573
      @verenaholm1573 10 месяцев назад

      Interesting that you say, heparine does not work with long covid clots, do you have a source for this? Because actually the apheresis Dr. Khan got in Germany, works exactly with heparine!

  • @gabrielarangel8644
    @gabrielarangel8644 2 года назад

    @RUN-DMC Thank you so much Gez and Dr. Khan! It is so good to see you feeling better. This is amazing and so informative, I had thought that plasmapheresis would work because I had watch a documentary of a Doctor doing this to treat PANDAS and it seem that I would be beneficial for Long Covid. Then you sent me to this interview. This is amazing, that there is hope to clear the root cause and not only medicate the symptoms. Do you know if anyone in the US is onboard doing the HELP Aspheresis?

    • @RUNDMC1
      @RUNDMC1  2 года назад

      It’s not happening in the US yet unfortunately!

  • @musoseven8218
    @musoseven8218 2 года назад +3

    Thank God that you raise these issues. It reminds though of similar issues with the differences between M.E, FMS, CFS, PVS and also the diagnosis and treatment comes via functional silos, often hermetically sealed disciplines and never the twain shall meet. As with ME, FMS etc the causes can be different too within the sub groups and patient to patient. A highly complex subject. I guess we all need to keep plugging away. Keep up the good work😊👍

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Thanks Muso!

  • @twocanplay7976
    @twocanplay7976 2 года назад +8

    Hello Gez and Dr. Khan! I just wanted to say thank you for everything you both have done in helping spread information and awareness for this dreadful illness. I just watched this video and am very interested in exploring this treatment!
    I have a more general question. Do you have any theories on why some of us seem to be getting worse the longer we carry on this condition? I am at month 20 (contracted the virus on February 14th, 2020), and I am worse now than I was in November 2020. At that point I could still function and even exercise. My fatigue is at an all time high, and I’m bed bound a lot of the time. I’m worried this is a sign that I will be like this permanently, and I’m just not sure how to handle that.
    Any insight would be greatly appreciated!

    • @kimrider-orazi9897
      @kimrider-orazi9897 2 года назад

      This is me 100% sadly!!! I began having COVID symptoms July 2020 & was finally diagnosed positive September 7, 2020. I had a fever & sweat for several months, I didn't know what was happening to me at the time. November 2020 began LC symptoms and im basically bedridden right now.

    • @eugeniebreida1583
      @eugeniebreida1583 2 года назад

      @@kimrider-orazi9897 I am so sorry! I have autoimmune damage going on, we need the science and the med community to step on it. And GEZ to bring us the helpful news!

    • @artsiecrafty4164
      @artsiecrafty4164 2 года назад

      Have you been taking Ivermectin or hydroxychloroquine? I was doing well on it but I am now in a bad relapse. I think I caught Covid in Feb 2020. I’ll never know, since testing was non existent then.

  • @ThreeFineWonders
    @ThreeFineWonders 2 года назад

    Paying another visit here looking for an update on Dr Asad and the Apherisis research. Thanks again for your good work and hope you’re doing ok Gez.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Updates will be coming when they’re ready! Dr Khan is doing well.

  • @helenbarrett9347
    @helenbarrett9347 2 года назад +1

    I'd also just like to say that to my amateur non-science brain the stiff blood vessel theory would absolutely make sense. I've experienced temporary orthostatic intolerance with dizziness during bad ME/CFS "crashes" before but now that I have severe POTS and very rare ME/CFS crashes my symptoms are completely different i.e. insanely high hr and adrenaline shakes if I'm upright for too long. With the help of midodrine and an effort to rebuild "conditioning" to gravity my bp seems to increase normally on being upright if I've rested enough but can't stay up for that long- again, it depends on rest. Stiff blood vessels might explain why it seems to take so MUCH energy to cause and sustain vasoconstriction but when I overdo it with gravity and/or heat it's not enough for me to feel less energetic or provoke my old typical symptoms of ME/CFS when I then rein it in.

  • @rogerv4398
    @rogerv4398 2 года назад +17

    Nice to hear someone continues research in this area, however sad to hear that things are not working out for those who have a better grasp of what's going on. I can sense the trepidation in the doctors voice (the same feeling I had). The micro-clot theory was one of the initial theories of what was causing the deaths. Anticoagulants were used and people (including a young doctor) died of a brain aneurism following treatment (a state of panic and hopelessness caused an over-reaction by the medical staff on their own doctor). As mentioned, none of the coagulation lab tests indicate the presence of micro-clots to a severe extent (except upon initial infection sometimes), which unfortunately would indicate that the use of a micro-clot filter (which is probably what this type of apheresis involves) will probably not be helpful. In fact, it may be more effective in removing spike proteins, viral debris, etc.. and may be better in functioning in that capacity. What was not mentioned is that microclots are a sequelae of bacterial blood infections as well. These clots which form around bacterial debris may remain in one specific area such as a heart valve and therefore cause cardiac problems. What is also not mentioned is the effect of aspirin on platelet dysfunction and how aspirin would help prevent microclots ONLY IF the clots involve platelets (these would be larger clots). What should also happen if micro-clots were a major concern is kidney problems as kidneys eventually filter these clots and lab tests would indicate some kind of kidney dysfunction. None of this occurs which, unfortunately, means the answer is not micro-clots. Is this research useless-absolutely NOT. What will happen is an "accidental" result will occur due to some random research and a solution will be found. If the apheresis works, then it works--we can find out later how it works... Remember, the TWO shot covid vaccine was found accidentally as was penicillin. As long as research continues, something will come along that works! The sooner, the better.

    • @marky5493
      @marky5493 2 года назад

      interesting point, mind you I've done 2 blood donations and through I'm not in the clear I've felt much much better each time after a day or 2. I tried aspirin and it had a very moderate positive result except i ended up getting bruised more easily.
      I read somewhere the blood group 0 is NOT suseptipal to aspirin as much as blood group AB cause AB is more "clotty". I happen to be group 0 so I thought this as the reason

    • @lauragott2122
      @lauragott2122 Год назад

      Thank you Roger for this info. You sound like a medical person? This may help me reassess my own theory on my migraines being caused from micro-clots. (Re: Dr. Graham Hughes) But what about white matter lesions in the brain? Have you seen any research on them and association with migraine and the antiphospholipid antibodies? Would appreciate any links if you have.

    • @morning7star
      @morning7star Год назад

      We need to find out what is causing damage to the capillaries and thus clots

    • @daisymae749
      @daisymae749 3 месяца назад

      What a shame. RUclips removed your 3 replies. How many deaths have been caused by RUclips’s censorship?

  • @linuxducky
    @linuxducky 2 года назад +8

    I remember my first hospital visit when diagnosed with long COVID, 4 weeks in back in January. I remember when the doctor drew blood from me, my symptoms resolved for that short moment, it’s so weird. Even she was confused why I suddenly felt better for an hour after a blood being drawn!

    • @juliad8303
      @juliad8303 2 года назад

      I think it’s erythrocytosis

    • @linuxducky
      @linuxducky 2 года назад

      @@juliad8303 Surprisingly not for my individual case, as I had a normal level for a male of 16 hemoglobin (red blood cells) adult men being 14 to 18 gm/dL normal red blood cell range

    • @juliad8303
      @juliad8303 2 года назад

      @@linuxducky hm 🤔

    • @hmterbune
      @hmterbune 9 месяцев назад

      I have blood drawn and tossed out routinely I feel better quickly but it doesn't last

  • @pennymustart9837
    @pennymustart9837 2 года назад

    Thank you for this amazing video!!!

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Penny!

  • @denisefirth6141
    @denisefirth6141 2 года назад +1

    So interesting and the best explanation of the relapse episodes I’ve heard. Don’t suppose you have a transcript? Tried making notes but got a bit lost in the scientific terms. Once again thanks very much Jez.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Hi Denise, we don’t have a transcript but RUclips should have subtitles if it makes life any easier!

  • @monicaashton
    @monicaashton 2 года назад +5

    I think I have this “micro-clotting.” I have had a clot in the right leg since May 2021 that they “found”, but I’ve always felt I had a lot more clots. I’m on Eliquis for 6 months now. This analysis makes a lot of sense. Now if I could just find a doctor who will take me seriously with Long Covid! So far, I haven’t had much luck here in Oxford, UK! Thank you for this very important information…wish me luck getting into a Long Covid Clinic! I’ve had all the symptoms of LC for 19 months now. But no one seems to think it’s “important” enough to get me in there! I keep getting bumped and bumped by the NHS. Oh well…

    • @bernadettebecher5668
      @bernadettebecher5668 2 года назад +2

      Im in Australia and have been watching health podcasts for years and it appears that "function medicine" doctors the ones who really attempt to help people rather than conventional MDs. Hope this is helpful to you.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Sorry to hear this Monica - and best of luck with your recovery!

    • @janaszarka9033
      @janaszarka9033 2 года назад

      You can get the treatment at Dr. Jaeger‘s clinic in Mülheim, Germany :)

    • @carolashlee8002
      @carolashlee8002 Год назад

      @@bernadettebecher5668 Can I ask which state and who you see please ? I am in South Australia and just diagnosed with micro clots

    • @annepalacios1303
      @annepalacios1303 7 месяцев назад

      Do they do this in the states

  • @MaxPlaysFIFA
    @MaxPlaysFIFA 2 года назад +39

    Amazing work as usual Gez, first off, thank you! I’d almost given up hope before this recent breakthrough
    Now for my questions 😂
    I know there isn’t a blood test atm to check for these clots but am I able to pay a premium for a lab study on my blood to confirm it? or do you just have to be lucky enough to get involved in these trials
    Secondly, assad seemed to say pretty confidently that anti coagulants would not be effective on micro blood clots? But you replied to a comment on this video confirming baby aspirin was a good one to try? So I’m not sure wether to give aspirin a go or not
    Thanks again for all your work mate

    • @RUNDMC1
      @RUNDMC1  2 года назад +19

      I take aspirin daily and feel better for it, if it’s of any consequence!

    • @MaxPlaysFIFA
      @MaxPlaysFIFA 2 года назад +2

      @@RUNDMC1 interesting!, do you take 75mg?

    • @RUNDMC1
      @RUNDMC1  2 года назад +6

      100mg, but 75 is fine

    • @asadik76
      @asadik76 2 года назад +25

      Hi- yes it's true that the microclots were found to be resistant to lysis in vitro by Prof Pretorius. However microclots aren't the only form of coagulation in LC- there will also be clots that aspirin and other anticoagulants will potentially act on. Also it's important to prevent further thrombus formation- hence the use of aspirin and anticoagulants

    • @MaxPlaysFIFA
      @MaxPlaysFIFA 2 года назад +12

      @@asadik76 thanks for taking the time to reply Assad!, one thought i also had for a potential benefit of aspirin outside of what you have mentioned, given these micro clots are reducing the oxygen getting to the tissues, maybe having thinner blood generally would reduce the effect of the micro clots ? As the thinner blood might offset it a bit? So imagine a river with water and pebbles as opposed to a river with gloopy water and pebbles, both have pebbles but the river with more free flowing water can still pass through and do its job more effectively
      I hope that made sense

  • @honorburza9110
    @honorburza9110 2 года назад

    Thank you both 🙏

  • @Israr1946
    @Israr1946 2 года назад +1

    Very informative and eye opener

    • @asadik76
      @asadik76 2 года назад

      Danke Daddy!

  • @EdHunteR87
    @EdHunteR87 2 года назад +16

    Thanks Gez for another great video. Question, if hypoxia and lack of oxygen are the issues, would things like HBOT, Ozone therapy not work wonders? And for the clotty blood, would blood donation and supplements (nattokinase, serrapeptase) be help ? Or the baby asprin?

    • @RUNDMC1
      @RUNDMC1  2 года назад +11

      Baby aspirin is good, and yes HBOT makes you feel a hell of a lot better! The problem is it doesn’t resolve the underlying cause - so the benefits are temporary

    • @Pipananda1
      @Pipananda1 2 года назад +4

      I started nattokinase (2000FU = 1 capsule) 6 days ago and noticed an immediate improvement. I tried 2 pills/day for couple days and notice a slight darkness in one foot which I though might be bruising so I cut back to 1 pill per day. No problems - still improving. I was improving before because I have been working on this post covid syndrome from several angles.

    • @hamwhacker
      @hamwhacker 2 года назад +2

      But I thought the COVID vaccine caused micro clotting because of the body turning into a spike protein factory???

    • @saintmikey9103
      @saintmikey9103 2 года назад +2

      @@hamwhacker -I just wish all commenters would state their "vaccine" status before making specific comments about their conditions/experience. Not holding my breath however.

    • @jac1161
      @jac1161 2 года назад +1

      @@RUNDMC1 It does heal the stroke and issues you had, but yes. I'm in an HBOT chamber. I do think it will help heal the blood vessels in time though from what I am learning. It helps with the new onset reynauds. I'm also doing Dr Bruce Patterson's protocol with Maraviroc, statin, aspirin, etc.

  • @priscillaallen5276
    @priscillaallen5276 2 года назад +5

    The microclots hypothesis explains my symptoms amazingly well. Recently a vein in my hand simply bled into tissue under the skin turning most of my upper hand dark brown for a week. This was a first. My symptoms are not disabling but they do seem to be slowly getting worse.

    • @keylanoslokj1806
      @keylanoslokj1806 2 года назад +2

      I been taking high quality and potency omega 3 fish oil. Vit d3, tocotrienols and pycnogenol for the last 3 months. My long covid is long gone. Also im doing low carb diet with almost no processed foods.

    • @priscillaallen5276
      @priscillaallen5276 2 года назад

      @@keylanoslokj1806 Thanks for the advice. Will give extra attention to my diet.

    • @kp968
      @kp968 2 года назад

      @@keylanoslokj1806 Were you suffering POTS ?

    • @keylanoslokj1806
      @keylanoslokj1806 2 года назад

      @@kp968 idk what pots is

    • @kp968
      @kp968 2 года назад

      @@keylanoslokj1806 postural orthostatic tachycardia syndrome

  • @jerryiwanski256
    @jerryiwanski256 2 года назад +2

    Great work! Please keep everyone updated as things progress.
    Perhaps I missed it or didn’t understand it in the video but can you please provide a quick explanation why donating plasma would not have the same affect as HELP apheresis??

    • @JohnSmith-kl3uk
      @JohnSmith-kl3uk 2 года назад

      I am also very curious for this question! :) Thanks

    • @RUNDMC1
      @RUNDMC1  2 года назад

      We speak about this in the film!

  • @andrewmilligan5656
    @andrewmilligan5656 2 года назад

    Thank you both so much.

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Andrew!

  • @gtwhome
    @gtwhome 2 года назад +5

    Undoubtedly the most compelling theorem yet postulated !
    It's more profound than Chronic Fatigue Syndrome, which only affects the nervous system - because it afflicts the vascular system ... causing oxygen starvation system-wide.
    Great work, guys - this is the Unifying theory of Long COVID !

  • @owenlloyd593
    @owenlloyd593 2 года назад +4

    I'm sure this is a big part of my remaining symptoms as taking nattokinase seems to do me a lot of good

  • @barbaradonalson9196
    @barbaradonalson9196 2 года назад +2

    Really great , thank you and good to see Dr A feeling a genuine improvement. My question would be around gut issues having undergone an endoscopy which predictably was clear my gastroenterologist said he knew nothing about long covid , rejecting my thoughts on that as the cause of my issues and rejecting the use of antihistamines/famotidine etc.. ( but will be emailing him the consensus guidelines- great!) and now I diagnosed with ibs.. how do i unpick this further?!!

    • @momof2shk304
      @momof2shk304 2 года назад

      Why don't you just try h1 and h2 antihistamines on your own to see if it works. You don't need your doc for these over the counter meds

  • @Getmelolly
    @Getmelolly 2 года назад

    This is incredible. I’m so moved by the work you are both doing to support and make changes for not just LC but ME and CFS suffers. I think you both deserve MBEs! I’ve been taking herbal treatments for circulation since LC started back summer last year along with a very strict lifestyle change. I’ve seen huge improvements. Looking forward to seeing what this research finds. All the best, I’ll be praying 🙏🏾

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Thanks Lolly!

    • @asadik76
      @asadik76 2 года назад

      Thank you! Feel free to nominate there is an online form! But honestly we think we are just doing what we can using our profiles

  • @cyclona23
    @cyclona23 2 года назад +4

    Yes!!! Now we're getting somewhere. Started taking a supplement called DMG a few months ago, it claims to help the body utilize oxygen better and have noticed -- it really helps! DMG in addition to breathing exercises + cold shower + coffee (vasoconstriction routine, essentially) is part of my regular routine and keeps me out of the woods, but not back to 100% by any means at all.

    • @InnesOrganics
      @InnesOrganics 2 года назад +1

      The freezing showers are honestly a miracle

    • @isadorasegura9314
      @isadorasegura9314 2 года назад

      @@InnesOrganics really? Ive heard this before but unsure what it does? Have you fully recovered? What else did you try if you don't mind me asking :-)

  • @Kamjd0725
    @Kamjd0725 2 года назад +5

    Thanks for the video and your continued work on Long Covid.
    I had HELP Aphaeresis in Mulheim in July. I know many others that have had HELP treatments as well. Unfortunately my experience was negative, I had a severe worsening of neurological symptoms after 2 treatments. I know many others who have had no benefit or also had a worsening of symptoms, some of these people had 5, 6, 7, 8 treatments. And then some people have seemed to benefit from HELP like Dr Asad. So this treatment may hold some promise for some patients, but like everything with long covid it seems to be a mixed bag. It will be great to get more specific on who exactly this treatment will benefit the most.

    • @eugeniebreida1583
      @eugeniebreida1583 2 года назад

      Important report!

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Sorry to hear you didn’t benefit from the treatment Kevin.

    • @Kamjd0725
      @Kamjd0725 2 года назад +3

      @@RUNDMC1 yeah no worries, this is how long covid is. I just think it’s very important for these messages to be balanced and for all experiences to be shared. I dropped everything and spent thousands of dollars to fly from the states to Germany for this treatment and it went horribly for me. I’d hate to see others have the same experience. This is why the work needs to done to try to identify who responds and who is at risk for negative consequences. The person who was originally running the social media groups for this treatment promoted it as a miracle cure with no risk - this was a disservice to the LC community. I think your video was very fair and balanced and doctor asad mentioned not everyone has responded to treatment so I appreciate that. Again, I share my experience so the other side of the coin is shown and people can do their own research to decide if this treatment would be appropriate for them.

    • @ThreeFineWonders
      @ThreeFineWonders 2 года назад

      As a long hauler who was interested in Help Apheresis I appreciate your upfront review. I’ve had a hard time finding any reviews even through the official facebook page.
      All the best of health to you.

    • @jac1161
      @jac1161 2 года назад

      @@Kamjd0725 Have you tried Dr Bruce Patterson's protocol?

  • @wmichaelh29
    @wmichaelh29 2 года назад +1

    I'm not a medical person, nor science related in any way. But I've wondered about this "long hauler's" syndrome and greatly empathize with the sufferers having survived but still suffering greatly. My ignorance does not stop my hypothesizing. In my minds eye I see viral fragments remaining and with that keeping the immune system in a state of hyper-vigilance like a fan set to medium. In a youtube video I watched a few years ago a young doctor who had worked in Africa with Ebola patients and caught the disease himself, testified to his experiences. He was flown back to the states in very poor condition but survived eventually due to plasma donated to him from a friend who had survived the disease. However, after a short period he began to have searing pain in his head and in one of his eyes. Investigation found his eye to be full of the Ebola virus. He was treated and the eye though damaged was saved. I related this story to a doctor and he said people make up stories. The doctor seemed genuine to this skeptic and the interview which was quite long seemed genuine. So imagine a virus taking refuge or hiding out. Like the Ebola virus and the AIDS virus. Fascinating and terrifying.

  • @boxerdogmum583
    @boxerdogmum583 2 года назад +1

    Good luck Asad ❤️

  • @nicolaholmes2531
    @nicolaholmes2531 2 года назад +3

    Thank you SO much, Gez and Asad. So appreciate your ongoing generosity and dedication to research, data gathering, advocacy, and education with regards to this condition.
    We TOTALLY understand that Asad needs to protect his energy and not respond to personal messages - keep pacing and healing and regenerating, Asad!
    Questions for a possible follow up interview:
    1. Is it generally ok for anyone to take and test out baby aspirin, or is even that considered 'self-medicating' with anti-coagulation agents and not advised without GP approval?
    2. It's helpful for me to consider that my heart pain (more occasional now than it used be, thankfully) may be due to tissue hypoxia - that makes sense, and my mind likes having some understanding of what is happening. Other than rest, is there anything else I can do to help episodes resolve, through the lens of this micro-clotting theory?
    3. Gez, how is your recovery going? I always appreciate hearing your anecdotal updates, if you wish to share.
    Sending my absolute best wishes and my gratitude to you both.
    P.S. And so excited to print out the Delphi consensus paper and to have that to take to my new GP to support him with his clinical learning and working with me: I do think we have to do a LOT of self-advocacy with this condition!

    • @RUNDMC1
      @RUNDMC1  2 года назад

      Thanks Nicola!

  • @sara_sofia_1984
    @sara_sofia_1984 2 года назад +28

    In the beginning, for several months after I first had the covid infection I would get these massive bruises on my legs and sometimes other parts of my body, with no apparent cause. I think they were caused by my blood vessels rupturing as a result of these microclotts. I have always thought there was something going on with my blood circulation when these symptoms came on and they were accompanied by POTS as well. Now I haven't had them in a long time, I feel my body has finally been able to mount an adequate immune response to the virus and it is mostly cleared from my body. Still dealing with intense fatigue and low tolerance to physical activity though...

    • @RUNDMC1
      @RUNDMC1  2 года назад +5

      Best of luck with your recovery Sara

    • @gothic7821
      @gothic7821 2 года назад +2

      Sounds rough. I'm sorry you've experienced that.💔 I hope you feel better/stay better, soon! 🌻

    • @asmrfoodieuk7965
      @asmrfoodieuk7965 2 года назад +4

      Probably a combination, I've also had these bruises as have family members which no "apparent" symptoms so even asymptomatic is causing other issues.

    • @sara_sofia_1984
      @sara_sofia_1984 2 года назад +2

      I'm a lot better now. I was able to overcome most of my viral symptoms by taking high doses of reishi, which is a powerful anti-viral and immune stimulant. I had to phase it out very slowly from 16 pills a day to now only 1 pill a day and I hope to stop completely in a few weeks.
      I tried taking niacin, after I saw so much positive feedback about it on your channel, but it didn't work for me, it gave me horrible side effects. Tried on 3 different occasions always with the same results, so gave that up in the end.

    • @sara_sofia_1984
      @sara_sofia_1984 2 года назад +4

      It's so individual what works for each person, we need to really listen to our body. Right now I have days where I feel like a completely normal person, but the fatigue keeps coming back. I'm still not able to spend as much energy as a normal person. I need to be really careful to pace myself, or I crash.
      In the past, I would get a fever the next day after pushing my body too hard but that's not happening anymore either :)

  • @raveness74
    @raveness74 5 месяцев назад

    Yes u nailed it. Finally some brains here. Ty.

  • @collagegirl
    @collagegirl 2 года назад +1

    Thank you for informing us about all of this. Some of us with ME benefit from mag sulphate IM. I'm wondering if magnesium sulphate can dissolve the microclots? Although I use a small amount every day and still have v severe ME! Look forward to hearing more.

  • @scripturethroughancienteye1509
    @scripturethroughancienteye1509 2 года назад +5

    About half way through. Excellent so far. Gez, at the 9-month mark I had a huge recovery (minus tinnitus) in which I was able to return to the gym every day for heavy exercise. Thought I was finally past this. Crashed terribly, still sick at 12 months. Could a month-long wellness period suggest it may not be micro-clotting in my case? I know you are not my doctor but even tentative speculation is appreciated. Thanks.

    • @solids1451
      @solids1451 2 года назад +1

      You went back to the gym Heavy probably your body needed more time to heal longer than you expected. A holiday after feeling better makes more sense rather then running back to put strain on your body. Good luck

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      I wouldn’t want to speculate on this - sorry!

    • @scripturethroughancienteye1509
      @scripturethroughancienteye1509 2 года назад +1

      @@RUNDMC1 I understand. Thank you for the great work!

  • @autumnb7135
    @autumnb7135 2 года назад +9

    I’ve had severe M.E. and POTS for decades now. I’ve always had large bruises on my legs from nowhere & leggings or socks caused bleeding under the skin ( petechial rash ). The last couple of years have presented a new symptom which is a petechial rash from very mild exposure to evening sunlight. It comes on the next day ( without sunburn) ( I’m mostly bed bound/sofa bound so I have only been well enough to do this 3 times over the last couple of years but it’s happened every time). Also I had to stop taking vitamin D spray because it was causing blood blisters on the inside of my cheeks. I wonder if there might be a vitamin D/ immune system connection? I have leaky gut and that definitely corresponds with the severity of my POTS too. Just sharing to add to the data.

    • @mihakavcic7237
      @mihakavcic7237 2 года назад

      POTS is one of the symptom of ME/CFS.

    • @Jennifer-gr7hn
      @Jennifer-gr7hn 2 года назад

      With us, we are not bleeding (bruising), we are clotting. the opposite problem and the one that causes strokes, heart attacks and lethargy from hell.

    • @autumnb7135
      @autumnb7135 2 года назад +1

      @@Jennifer-gr7hn yes, I know about micro clotting but hasn’t something similar been found in pwme too? Both could be endothelial cell diseases. The vaccine has caused severe petechia/bruising & bleeding & so has covid. I think there’s a weird thing going on where both can happen or one leads to the other? For instance, if micro clotting occurs & causes pressure to build up in capillaries, it might make them more fragile & likely to burst resulting in petechiae &/or bruising.
      I’ve recently discovered that petechiae especially after exposure to sunlight is a symptom of Sjogrens ( I haven’t been tested yet though). Sjogrens, like EDS, is found at a higher rate in pwme & one study found 14% of long covid patients have it. The overlaps between the two illnesses are very interesting.

    • @autumnb7135
      @autumnb7135 2 года назад

      @@mihakavcic7237 I mention both bc some pwme don’t have pots, so it helps to clarify the subsets that might be going on. Thanks for mentioning it though.

  • @swalexander6218
    @swalexander6218 2 года назад

    I´m very glad to see Dr. Khan`s improvement. May I ask what HELP Apheresis can do for people with D-Dimer over 3300?

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Watch the section where we talk about d dimer results!

  • @jaroslavskola9069
    @jaroslavskola9069 2 года назад

    The difference compared to last year. Before the onset of joint pain, fatigue. Probably a delta. I had a clear icicle for 3 weeks, without fatigue and other feelings. I'm doing physical work. It wasn't until 4 weeks that I got joint pain and my vocal cords caught and snored without fevers. I went to the doctor for pcr and I was positive. in the second week at home, I lost my sense of smell for a total of 3 weeks at home. And again, after a week of work on the weekend, chills and fever started. I put on a set of vitamins again and I hope we can do it together. So far without vaccination that I don't even consider. That's my story. Greetings to all from the Czech Republic. And thank you for RUN-DMC for his job well done.
    I'm an asthmatic and a fumator. .) There is not only one path in life that you want to go and the herd goes.
    When he guarantees that he will provide me with financial compensation for my daughter after the vaccine if the vaccine kills me. Then maybe. I will not play Russian roulette.

    • @RUNDMC1
      @RUNDMC1  2 года назад +1

      Hi Jaroslav, thanks for your story. Vaccination is a very personal decision for long haulers - have a look at my recent film about it if you’ve not seen it already.

  • @teeboytel
    @teeboytel 2 года назад +4

    Thank you Gez! I‘m wondering if maybe a simple microscopy of blood would reveal microclotting. If so, that‘d be amazing. Then again I‘m sure these doctors would’ve thought of that already😉