POTS and Dysautonomia: Sleeping with the enemy
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- Опубликовано: 28 ноя 2024
- In this video, I share some unique insight into the mechanism by which POTs patients develop extreme fatigue and how tackling sleep disturbances because of exaggerated sympathetic responses can help heal the fatigue and get patients back on the road to recovery
Who would have thought that 4years ago you’d be helping so many long Covid hauler patients understanding what we have/suffering from from this video. Thank you from 2022
FINALLY someone that understands and also can explain why I wake up at 3am in the morning with a racing heart rate.
Just having validation and Hope is amazing.
I am so frustrated and as you said very few Doctors understand the condition
Have they tried you on a nightly dose of Clonidine or Guanfacine to address your insomnia and racing heart? These two help with sleep and tachycardia by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine and Guanfacine highly effective at treating POTS - especially the hyperadrenergic type!
How are you now?
You're alive?
Hope u r better now!
This is the best explanation I’ve ever heard. I have hyper POTS and I wake up constantly at night (if I can get past the adrenaline rushes and fall asleep in the first place). I’m both wired and exhausted all the time. I often tell people that I don’t live my life, I cope with it.
I'm so glad I'm not alone! I'm waiting for a appointment to see a Pots specialist my GP has been supportive but I've not heard anything about severe sleep disturbances. Admittedly I've not seen this video yet. But I saw your comment and had to respond. Words can't express how grateful I am you've shared this. I hadn't heard of POTS and Dysautonomia until a couple of weeks mightve been last week(memory and brain fog you know what I mean). Wishing you all the best.. 🍀☘️💚
@@nellythevegan854 I actually managed to fix my sleep issues after ten long years. I started taking omega-3 and vitamin C supplements and I eliminated processed sugar from my diet - no soda, no candy, no simple carbs. I finally started sleeping like a normal person again! Now I can have some sugars without suffering ill effects. I still have the occasional rough night but it’s rare.
Thank you for making POTS well known. The bit about waking up in pain is a key problem for people with conditions like EDS.
Finally, a doctor who was willing to take the extra time to research this and make his insights freely available.
Excellent , and helpful!
I was 48. Suffered a 6 week viral illness then life changing symptoms of a Dysautonomia. I’m on a journey now to encorporate all aspects of improving my health from natural and western medicine. As an advanced practice nurse I really appreciate you taking the time to explain the disorder.
Thank you so much for your knowledge and expertise!! I have Dysautonomia and after 5 years of suffering I finally started seeing a doctor who understands Dysautonomia really well and he is helping me get through it. What a Blessing!! You’re right, sleeping with the enemy is appropriately titled. I still can’t sleep well and it does exacerbate my symptoms. That’s the only thing. If I could get the sleep under control. I cry when I can’t sleep and I feel irritated throughout the next day. Overall, I’m getting to a place where I can manage symptoms better but It’s tricky, and I feel defeated at times. I’m so glad you touched on this. Your videos have been so helpful!! I’ve been watching your videos for a lot of years. 🙌🏾🙌🏾❤️
I've had severe pots for 6 years now and its wrecked havoc on my body and made life extremely hard. Thank you for your interest in this and actually trying to look for real solutions. Btw for anyone else reading AVOID HIGH SALT as much as possible.(a little is ok just dont go out of your way to intake more) Part of healing pots is healing your endothelium (basically lube for your veins) and a high salt intake DAMAGES endothelium. Pots is so misconstrued and misunderstood that the god damn society for dysautonomia is promoting and selling salt pills. We need more doctors like Dr. Gupta who are 1. actually educated and continue to educate themselves, and 2. trying to treat the root cause rather than the symptoms
Does this still hold true today? They put me on a high salt diet to treat my POTS.
@@DanWActual Hey there, 2 years after writing this I was diagnosed with Lyme disease. Im 100% healthy now. Pots was a misdiagnosis for me
@@blakebingham9993 Thanks for the reply man! Great to hear you are doing better. They did test me for Lyme as well. It is taking forever to figure everything out. lol They think it is POTS. This has been going on for a while. Progressively gotten worse. I feel like I am jumping from doctor to doctor.
What helped you?
@@timmyschannel5 Re aligning my body physically (I also had scoliosis) and deep subconscious and trauma release. After being sick for 8 years I am now 2 years healthy. I also got treated for Lyme disease for a year back in 2019 which did help some. I worked with a shaman and various plant medicines for a year and realized that all the medications were hurting not helping. My real healing began when I made peace with everything in my life and started learning to look at everything with gratitude forgiveness and letting go. Learning to truly love yourself is more powerful than any medication.
I don’t think its a coincidence that most pots people have eds or some sort of scoliosis. The lack of blood flow is quite literally due to it being cut off from the way my hips and shoulders were twisted up. High salt will
Not fix blood flow restrictions stemming from your muscles and joints being out of alignment.
This has been so interesting and useful. I am so glad someone is interested in PoTs in the UK. I have pots and my current gp told me he doesn’t believe in it as a condition even though a cardiologist is the one who said it.. it’s horrid not having professionals take you seriously and now I have no support as no longer under cardiology. I can’t wait to hear your suggestions. This nearly brought a tear to my eye because it means so much (probably partially emotional because so tired though haha) thank you
How horrible for the GP to dismiss this very real condition! I have had POTS (diagnosed) for 25 years. I'm now 44 and it did not get better with age. I hope you find a treatment that helps. Ivabradine helped me the most!
I'm so sorry. To put it bluntly, I hope you found a new doctor. This illness is a pain. :(
I know you post is old but I hope you have found some help and are doing well!
Yeah, my GP’s eyes glaze over, he can’t even hide his contempt for the diagnosis.
@@debcook8411 I’ve found POTS group on Facebook really helpful to feel validated and understood. Over the years not being listened to by the medical profession has been really hard. Your GP sounds so awful to dismiss you like that. Sending love.
Wow this happens to me. When I'm waking up it feels like something just scared me and my heart is beating fast
I go through this exact same thing. Almost like something scared me and I have this intense sense of Anxiety for no reason. My apt. is dark and quiet...
Keyia Parés yes me too! It's the worst feeling, sometimes I get this weird numb feeling in my brain when it happens it's awful!
I also have this same way I have my house so dark and I hate light!
Happens to me a lot.
Wow! I feel the same way 😭😭
My 20 yr old son has EDS- Dysautonomia- and POTS. His main issue is that his body wants to sleep all of the time. Because he can't do that, he feels like a truck ran over him every day. He has depression issues and lethargy daily. The sleep study showed that he is having brain bursts every few minutes. This video is the 1st of anyone explaining why, now we need to know how to fix it.
This is SO amazing! FINALLY, someone is discussing dysautonomia in a relevant, helpful way! Thank you!!!!!
I got pots age 48 after 2 surgeries within one week for a kidney stone and then acquired an ESBL infection...
Life came screeching to an awful halt. Tachycardia air hunger headaches and much more. Pots is an immune dysfunction also mitochondrial dysfunction and brain dysfunction.. It is probably similar to M. E. As a matter of fact approx 25 to 40% of those with M. E have pots. Exercise can be dangerous and even fatal in severe cases. Exercise has been taken off the CDC And NIH website for ME as it usually causes more damage unless you are able to tolerate it. Many can't.. Some can. I've had pots now for about 15 months and I don't exercise.. I do however walk up to 15 to 20 minutes on a good day. This is no joke.. Thank you for the upload and research Dr Gupta.... We need more attention to this dreadful affliction.
I have suspected POTS after orthopedic surgery. From a highly energetic, healthy, active 47 year old to housebound and can't leave the home without a carer and wheelchair. I also manage 20 minutes walking on a good day. Not all at once of course. Its a shock alright. The second shock is people doubting you are sick at all, such ignorance and judgement when you are at your weakest. .I'm waiting for my tilt table test and considering the possibility I may have Ehlers- Danlos Syndrome. I almost feel like a deviant child for not "getting better soon".
There are excersizes you can do while lying down to keep strong. Lying down all the time will make you decondition further .
Do you mean to say that excercising is dangerous with POTs/dysautonomia??? And/or ME? I have both and wheelchair bound mostly. I am also having issues with bp DANGEROUSLY high or too low but mostly high when I eat...each time I eat. Horrible.
6:17 This makes so much sense to me. I used to wake up drenched in sweat with my heartrate high and feeling super alert and awake, every single little noice would let me jump up from my bed when i slept.
Same for me. I never understood why, until now 😢
Thank you so much! I have POTS and my sleep cycle is exactly like you described. I never linked my sleep with Dysautonomia like that. I was always told that it was a buildup of adrenaline and other hormones that would normally get released throughout the day by physical activity, but since I couldn't be physically active, it released slowly at night. But this explanation makes a lot more sense to me
I got it as adrenal fatigue and perimenopause. Sleep and exercise to boost BDNF. Walking an hour a day.
Thank you for making these videos about POTS, it took me a year to get my diagnosis...so I’m incredibly grateful for the publicity you’re giving such an unknown condition
This is such a helpful and informative video! I was diagnosed with POTS when I was 15… they told me not to worry that it would go away in a few years.
It DID NOT go away unfortunately. 😒
I’m 34 and just now finally finding ways to deal with the crazy amount of fatigue and other debilitating symptoms.
Thank you for this video 🖤
how you doing now
Also 34 realizing there is an explanation to all of this
You are so brilliant I can’t believe you’re explaining every single thing I have felt for the last 10 years I’ve been suffering for so long. I wish someone would help me
Can you seriously do a world wide talk about this? I diagnosed myself and I finally found a doctor here in Montreal who confirmed it!!! Yes sleep is recovering and avoiding negativity and stress! Thank you for understanding this debilitating illness!!! God bless you 💖
I was recently diagnosed with POTS. This describes my sleep exactly. Thank you for explaining this so well.
My family has a definite flair for dysautonomia - two of my sons, a daughter, two nieces, my mother and myself all have it. For us it usually starts in early childhood with no infection to trigger, just a gradual tendency towards blackouts and fatigue. It shows up very strongly at times of hormonal stress, like adolescence and perimenopause. We've used birth control pills, salt, water. Florinef, beta blockers, etc. Here's to hoping that we can find more help in this wonderful series! Thank you very much, Dr. Gupta!
Have you ever thought that EDS could be the cause?
@@sabserab We've been evaluated by different doctors and that has not
been considered a possibility since we don't seem to have the connective tissue issues. My son's girlfriend has EDS, so we're very aware of it, we just don't fit the symptoms well. My cardio says that he believes that it's an idiosyncratic genetic issue, since it seems to be a little different from other syndromes.
Are the medications working well? Florinef increased my blood pressure way too much.
Other POTS medications include Ivabaradine, Mestinon, Clonidine, and Guanfacine. Have they tried any of those?
Which type of EDS does your son's girlfriend have? There are 13 different types, which all present somewhat differently from one another. Even patients with the same type can present quite differently from one another. It can be a confusing disorder for doctors to identify or work with.
I wonder if that is what my grandparents used to call dropsy ? I have heard of natural cures for that .
Fantastic! You’ve described my sleep habits perfectly. This is so unknown in my corner of the world, Chicago. Thank you for sharing.
Can't wait to see the other videos. My doctor did a sleep apnea test, but it came back normal. I'm always so tired throughout the day and it's really taking a toll on my life. I know I don't sleep well because I wake up gasping for air all the time. POTS is very frustrating to say the least. Thank you for sharing all these wonderful videos! Definitely means a lot. 💙
I hope you feel better by now.
If you still have this problem, something useful is a Garmin watch, even a cheap one, to mesure your body "battery", your stress level, your sleep, your heart rate variability etc. Useful so you can monitor yourself and show your data to your GP.
Thank you. I’ve suffered from POTS for so long. This is a wealth of information 20 years of having this be so hard to manage. I wake up with my heart going 140-150 bpm in the middle of the night. I knew Thank you thank you Dr. Gupta. I have been to Mayo, Emory, endless specialists and in one RUclips series I finally see the answer. ❤️❤️❤️❤️
Have they tried you on a nightly dose of Clonidine or Guanfacine to improve your sleep and to address your racing heart (tachycardia)? These two help with sleep by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine and Guanfacine highly effective at treating POTS - especially the hyperadrenergic type!
Thank you! Waiting for next videos!! My daughter has pots and she is always tired.
Hey Dr. Gupta, I have been binge-watching your videos for the past hour and I must say what an inspiration you are for a medical student like me. Recently while studying for my cardiology pharmacology exam (what are the odds!) I suddenly started to get palpitations and my BP went as high as 150/100 with a resting heart rate of 116-120bpm. Although I don't really get nervous about exams, I thought maybe this was due to exam anxiety. So after doing extremely well on the exam, I had expected my bp to go down but it would just be about 143/95 all the time and my resting heart rate didn't change at all. So I went to see a GP and a Cardiologist, after an ECG all I was told was that I have sinus tachycardia and I was put on 2.5mg Bisoprolol while the doctors said it's the medical school stress/anxiety despite of me telling them that's total B.S. So now my BP has come down to 118/78 but I am still kind of irked by my HR which on resting is usually 80 but while standing up goes to about 100. Although I am not a MD yet to make a dx myself but I feel I might just be suffering from POTS. I feel like I need to go back to my Cardiologist to have him prescribe low dose Ivabradine to lower my HR, which I can maybe take along with Bisoprolol. Although luckily I don't have any symptoms of POTS, I am just glad to know that at least someone agrees with the fact that it's not the anxiety/stress inducing this.
On a second note, thank you for all of this information, and thank you for teaching me and I hope many other medical students like myself to strive to understand the patient's problems than to just give them a pill and show them the door.
aww thank you so much.it means a lot. Good luck for the exams!!!
It's great to read that a med student appreciates dr. Gupta's working style, may there be many more of your kind!
God Bless you! I have been suffering with post Covid for over a year and diagnosed myself with pots and feel very in the dark. This is so comforting and I thank you for your kindness and compassion.
Besides waking up with a racing heart, my heart rate will jump up when I turn over or change positions.
I also wake up in the morning with tremors or internal body vibrations. My blood sugar is not low, in the mornings, either. It is actually a little over 99, like 101-107, then goes back to normal (below 100). So that’s not a blood sugar problem. And the other night I woke up at 2am with night sweats, drenched. Felt fine though.
Had a tilt table test at a cardiologist and “everything was fine”. Well, I happened to have no symptoms that day.
5:50 MY GOD.
I can’t believe what I’m hearing.
THANK YOU ❤️
Gosh I'm so grateful for this information. I've have been trying to get past this 3 ring circus of Dysautonomia and POTS since 1996 after a EPS av node ablation... Thank you Thank you Thank you!
You have explained POTS in a way that no one else has been able to. Thank you so very much. My hope is that I can now start helping my son get better.
Sorry that your son has POTS. Have his doctors found good treatment options for him? Popular POTS medications include beta blockers, Clonidine, Guanfacine, Ivabradine, or Mestinon. It might take some trials on different medications in order to find what works best for him.
You are the first person who has explained it in a way that makes sense to me. I have seen three Dr. Who do not know that much about POTS and I am at witts end. I am 57 and have had it for 4 years I have had a lot of stress from caregiving for both parents, heat stroke and many tick bites all in one year before I was diagnosed. the only symptom I do not have is dizziness or passing out. I find that strange. I look forward to your next videos. Thank you. You are an angel.
Sorry you experience that. I assume they've tested you for Lyme disease?
Thank you for another informative video.
We need to learn HOW TO MOVE THE PIVOT BACK!! Please hurry with the next video 🙂 thank you!
From mother of a severe POTS daughter who gets very little sleep!
Lindsay Johnson Dr keeps saying it's like we flipped your switch on. Well, someone figure out how to flip the switch back! Need my life back
Have you seen Wim Hoff’s breathing technique? It is said to reset your autonomic system. I just found it and hope it helps my POTsie son.
@@angelinacampos4553 Have they tried you on a nightly dose of Clonidine or Guanfacine to flip the switch off so you can get your life back? These two help with sleep by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine and Guanfacine highly effective at treating POTS - especially the hyperadrenergic type!
@@laurar5480 did it help?
Your videos have been so helpful for me to understand what’s going on with my body.
I went to my cardiologist appointment then came home and watched your videos.
My gratitude is ten fold for your kindness bringing this much needed information.Especially when you are so busy.I agree with you about tiredness, it is a very distressing problem.My son does try yoga and is resilient.Although he has suffered a lot I am now optimistic, so appreciated. Thank you so much DrGupta, you are remarkable and so clever. Thank you for video and blessings and greetings and hugs.xx
Thank you, Dr Gupta!
That simple visual aid demonstrating the balance of the nervous system was brilliant.
I’m definitely going to use that to explain to others my POTS and my body’s reactivity to “normal” stress!
Thank you so much! This is fabulous! I’m so thankful I found your POTS series.
Thanks for this! I suspected I was waking in the night, now I realise at least part of the problem is I stop breathing! Many of you might want to look into sleep apnea too.
Regarding exercise, I would love to but I have ME too (as many of us do), and when I over exert it makes both POTS and ME worse. I try and be as active as I can within my energy envelope :)
Have they tried you on Mestinon to treat your POTS, ME/CFS, and exercise intolerance?:
www.healthrising.org/blog/2016/06/17/mestinon-chronic-fatigue-vagus-nerve-stimulation-exercise/
Dr. Gupta also has an excellent video about using Mestinon to treat POTS.
I've had night terrors for years due to trauma, but have had a massive uptick since having covid. I've just been diagnosed with PoTS after being dismissed as anxious and fatigue for ages, and I guess this explains the link between the increase, the covid and the PoTS!
I’m a nurse and know more than the average person but I have suffered for years. I use to jump up 30 mins into sleep with symptoms. Thank you for explaining so well. I’m currently trying chiropractor care and have learned my cervical spine is a mess thus likely messing up my nervous system. I’m experimenting on myself to see if anything helps!!
Great video! Terrific example that my daughter can share with others to easily explain what's going on with her health. Love advice on other things that will help other than water and salt!
Thank you!
Thank you it’s good to see someone who knows what pots is I’m in Australia and many people don’t know much about it. Australia is very behind. I struggle a lot with my fatigue atm
This is brilliant- I wake through the night constantly- I’ve tried everything and nothing works! Can’t wait for the next video! I literally love you lol
This is me too! Totally unable to fall into sleep every night while I have tried everything, eg. supplements, sleeping pills, daytime exercises, daily sleeping rules, nutritions helping sleep, & visiting the doctors (while they would never study your case, instead, only prescribing sleeping pills as an ordinary treatment way).
I search from the internet to figure out what's wrong with me, & I get this term *Dysautonomia* that sounds like me! 😵
May I know how you have been coping with your sleeping problems for these years? 😬
Have they tried you on a nightly dose of Clonidine or Guanfacine? These two help with sleep by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine and Guanfacine highly effective at treating POTS - especially the hyperadrenergic type!
I feel my eyes getting heavy, I’ll think I’ll go to the loo so that won’t wake me up, then that wakes me up. I’ve been good at getting to sleep, staying asleep and getting good quality sleep. I can not sleep at all for 2 nights, I take a high dose of amitriptyline, but it doesn’t always work. Then by the third night I go to sleep but it’s not quality sleep 🤷🏼♀️
As long as I remember I’ve never slept good
@@lilacscentedfushias1852 Amitriptyline wasn't very reliable for me, either. My doctor was open to trying some other medications, and we found something that works a lot better for me. Perhaps you could talk to your doctor to explore other options?
My daughter is 24 years old.... has had POTS since the age of 12.... she has it really bad and the heat intolerance is unreal and debilitating. She's a warrior but can hardly function normally. We are currently working on getting her full permanent disability
Dr. Gupta, you're a legend (or will be). 💜
thank you for taking the time to share this very insightful information
Definitely looking forward to you next video. I honestly never considered the sleep aspect of this illness I've woken from a total sleep in the middle of the night with my heart beating very fast to the point I didn't even know were I was for a couple of minutes I was in a total panic with no trigger what so ever and I felt like I hadn't slept in days this makes a lot of sense.
How are you now?
You're dead or what?
You may be in pain enough to wake you up but you are used to it. Try Diclofenac gel or hot water bottles on any even slightly painful area before trying to sleep, also maybe eat and glass of milk, paracetamol
Wow...so they should get a sleep study...look forward to hearing your solutions.
This makes sense now, I have Fibromyalgia and I have wondered if I also have POTs for a few months now. I wake up several times at night with my heart beating fast and I feel at my worst when I start my day and and often have to take naps. I feel worse after eating a big meal but I don’t get dizzy or faint when I stand up just breathless a lot of the time when standing or walking.
Have they tried you on a nightly dose of Clonidine or Guanfacine to improve your sleep and to address your fast heart beating (tachycardia)? These two help with sleep by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine and Guanfacine highly effective at treating POTS - especially the hyperadrenergic type!
Respeced sir, I am an Indian and happy to see your video . My quary here is after a month after the diagnosis for hypertension I had black out while standing with mild body coordination issue and chest discomfort and I was diagnosed for TIA but didn't find any defect in MRI ,Ecg, ultrasound/Doppler and EEG.
Never even thought about this. Interesting!
This is so helpful - I have my POTS under control during the day but really struggle with sleep. Will keep watching to learn more!
You got this! thanks for watching. I really appreciate it and it'd mean a tonne if you would consider subscribing to the channel.
Have they tried you on a nightly dose of Clonidine or Guanfacine? These two help with sleep by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine and Guanfacine highly effective at treating POTS - especially the hyperadrenergic type!
That was a fantastic video, Dr. The straw analogy was awesome.
This is really interesting. I have POTS and my sleep study said I woke up over 300 times throughout the night but I didn’t think I woke up at all. I was told by a sleep neurologist that this was in the normal range though and that I was fine.
Thank you , thank you ! I recently was hospitalzed for potts, and everything you describe is what I have been going through , I have insomnia now I understand why , ty !
I got sepsis I nearly died they don’t know what was causing it I have been in icu 4 times then I starting fainting I can’t sleep I was a hair dresser and I can’t work anymore I was told to up my salt in take but I’m on anti sickness injections so I really don’t feel i want to eat because I’m feeling so sick 😷 and my I’m really struggling with my pots and my mental health is not in a good place I was so healthy I was working every day I feel lost and alone in this so thank god and thank you 🙏 I’m glad I found your videos thank you so much I wish you where my cardiologist your a god send 🙏🙏🙏💖💖💖💖💖💖💖💖💖💖
I'm so grateful York hospital is on the ball with POTS. Dr Megarry had me diagnosed in weeks of symptoms starting rather than the years it takes some people. Keep up the good work :)
Wow! Really explains why I am so tired even if I sleep all night! I'm also a chronic pain patient with a full body spinal fusion. I'm just blown away!
Thank you. Can't wait to watch all the episodes, this problem is making my life so difficult.
Thanks for this. You are a gift.
Really enjoyed the video. Great delivery; helpful and concise! Thank you!
This is the best video on POTS I have watched yet! I do exercise but boy my heart really pounds as well, I’m always tired I’m in bed as I write this.
My life has been a nightmare these past 3 years with this condition. I have so much to do, I love life...and I need it back.
You are explaining it very clearly. Thanks
this information just might save my life....... thank you
I’ve told a couple of doctors I swear I have POTS and one told me I didn’t know what I was talking about it’s sjogrens (after 15 vials of blood and a consultation with second doctor I didn’t have sjogrens) and another told me it’s just because I’m fat and lazy and walked out of the appointment room. How can I live in NY and not find a doctor who will give me basic respect much less listen when I have pretty much every symptom of POTS including an already existing cardiac history! It’s refreshing to see doctors talking about this but we need more who know about it and who will listen to patients. I’m suicidal over not finding a doctor to take me seriously to find out if this is what I have because I figure I’m resigned to living a life of misery and what kind of life is that worth living.
I was just diagnosed with this, your video was very helpful.Thank You!
Thank you. Looking forward to your next video on this subject.
Hi doctor. How would you address the following problems. Shortness of breath fatigue and brain fog. Donot you think saline drink or salt in water would increase the bp. Drinking water mixed with salt was suggested by a cardiologist from london. Thanks.
Thanks so much - these videos on POTS and sleep are fascinating. I'm waiting for a POTS diagnosis for my son but there are so many useful ideas to try at home here. You obviously have an amazing understanding of this condition - it would really be worth the POTS UK website referring to your channel.
Wow! This explains so much - thank you
Thank you! Can’t wait to see the next two videos... this is exactly what happens to me when I sleep!
what a great explanation!!!
I had rapid onset, full-body (Non Length Dependent Small Fiber Neuropathy wipe me out five years ago. I burned all over and was extremely weak, and I blacked out when I stood up every time. My doctors said I needed a Psychiatrist! I’ve learned to burn, but definitely have POTS, and the Neurologist refuses to see me! I’m stuck in a U.S. medical group where none of the doctors care.
I bought a sports watch and my blood pressure is 50 when I lie down, 85 sitting, and 120+ standing, and higher during what I call flare ups. But the watch only measures every ten minutes and misses recording the highest highs.
In the beginning, the slightest sound would throw my heart rate up so high I felt like I might die! Probably at least 180! It hurts! Luckily, it does this a lot less now, but I’m in bed for hours each day and cannot leave the house anymore.
When I lie down, I often get a lot of pressure in my chest and the sensation my heart is rolling or quivering. Last night, I was awake with pain and pressure in my chest and neck, and didn’t sleep at all.
I went to my GP months ago about severe, worsening weakness and dizziness/blackouts, and she told me to go to the ER when it happened- an hour away, instead of referring me to a Cardiologist. Why should I have to do that for a regular concern, especially with the hospital full of COVID patients?!!!
Thanks for the videos, I’ll be watching them all!
It’s sad that we’ve become so immune to listening to the patients and Drs. Act as though we have nothing better to do than be ill and lose whole segments of our life
Dr. Gupta, I again thoroughly enjoyed watching your human heart and your academic mind in action. THANK YOU.
I've got a question: who is the sleep scientist you mention in your video? I'm interested because I was (as usual) diagnosed with 3 different illnesses which in my opinion are interconnected (and really the one the same thing): central sleep apnea, some kind of nightly tachycardia and chronic fatigue syndrome. I would call it POTS and Dysautonomia if you ask me, but I can't find a decent physician who is able to connect the dots and treat me, so it would be helpful if I can refer to some academic papers of the sleep expert to explain what this is all about.
I'm going to take an educated guess and bet he's referring to Dr. Alan Pocinki in the US. You can see one of his talks here: ruclips.net/video/97mfCoPwBtU/видео.html
@Honeysuckle Blossom Meanwhile I found out that I'm suffering from perimenopausal symptoms. It really sucks since there is no proper treatment for it. I'm on HRT which takes the edge off a little but I'm still barely able to function.
@@grojandroid Dr. Alan Pocinki does excellent work and research for dysautonomia, POTS, and Ehlers Danlos syndrome! I highly recommend his webinars and research papers as well!
@@Laughinggray Have they tried you on Clonidine to reduce the menopause symptoms - it can especially be effective in treating the hot flash and night sweat aspects of it. Clonidine also helps with sleep by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine highly effective at treating POTS - especially the hyperadrenergic type!
@@Dulcimerist I'm going back to GP soon anyway and will ask about Clonidine. It doesn't appear to affect narrow angle glaucoma. Dr Pocinki said something about this in a talk. The glaucoma in HEDS may be due to not enough blood reaching the brain. I suspected this also. So the brain starts making all these extra blood vessels to get blood there - which is my theory.
Thank you SO MUCH for sharing this information.
It's literally life-saving.
I think you are exactly right about the sleep pattern. I have terrible nightmares. however I also believe that my afib or pots is closely connected to hernia and food triggered. my hernia is from a physical tear lifting and just under my left rib. I am also female. I have been rushed to the hospital twice with no warning of it comming on except all of a sudden very tired like I have no blood in my body.
I agree with you. I crash around 8 PM and literally do not move for about five hours and then I'm restless for the rest of the time. I'm also finding it to be easier to add small amounts of activity throughout the day, rather than an isolated work out, which is mainly because my HR gets into the 190's with some activity. Just passing this along incase it'll help someone else.
Thank you so much for your comment and for watching the video. Please join me for live free chats on my Facebook page (type yorkcardiology@gmail.com in Facebook search) - I will be able to answer your questions there
Can you please do a video specifically on Hyperadrenergic POTS?
Georgia M yes that would be great
Yes!
Yes please!
@@lashawnablanton4649 do you wake up every night with high heart rate
@@kuldeeptalukdar9494 yes I do all night long and covered in sweat and shaking
I wish you were my doctor!! I'm just getting somewhere!! Up to now I've been told I'm anxious constantly xx
I love your videos, thank you for making them. 😊
Thank you brother....love from Your homeland India.....
Wonderful!! I wonder if it is also related to the enteric nervous system (ENS) as three divisions of the entire autonomic nervous system sophisticatedly regulate the body's unconscious actions.
I just watched this and sent the following to my sweetie (summarized): this could explain why the content of my nightmares doesn't seem especially frightening or relevant, but I'm always aware of the anxiety that underlies them. If it's happening even b without my awareness, and I'm usually pretty aware of at least two per night, it makes sense.
But I've had anxiety nightmares for most of my life and POTS for only a few years. I have had ME/CFS for 23 and figure it's all related somehow.
Thank you so much! This gives me hope 🙏🏼
Will be watching out for the next video!
Fascinating! Thank you!!!
God bless you for making these videos!
Thanks!!!! My sleep has gotten much worse and I was probably waking up before that but not aware.
I am looking forward to your videos coming up. I have POTS and would love to learn new ways to manage it.
Thank you so much Doctor.... Thank you so much
Thank you so, so much for this - this sounds like exactly me right now - especially the first part. The extra salt did not help me and I already drank a gallon of water a day and was at an athelete level of fitness. I had a gastrointestinal flu about 3 months ago and now I have been completely disabled with symptoms that seem like POTS. They did a tilt table test on me and I didn't last 12 minutes on it, but they thought it could be VV instead. After being Hospitalized under review they thought it was POTS but my PC doctor insisted it wasn't because my heart rate is normally lower than others, but I think this is common in athletes. I actually can't even walk these days anymore for some reason. It's so bad that I get triggered laying down, too. Also exploring MCAS. I have a sleep study test coming up soon. But I should check my fitbit tracker to see if the times when I wake up at the same time my heart rate has risen. I wake up often at night.
I've been told I have the body of a trained athlete, but actually do little exercise apart from physio exercises. HR 42 when asleep. HR jumps 30 beats from lying down to standing. Told I have POTS.
Wonderful presentation.
The explanation of the sleeping was really informative as I'm now on amitrityline to help my sleep due to fibromyalgia.
Amitriptyline has the potential of aggravating sleep issues and other symptoms in people who have POTS, due to increasing norepinephrine. Are you doing okay on it?
Have they ever tried you on a nightly dose of Clonidine or Guanfacine? These two help with sleep by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine and Guanfacine highly effective at treating POTS - especially the hyperadrenergic type!
Clonidine can also treat fibromyalgia:
www.healthrising.org/treating-chronic-fatigue-syndrome/drugs/clonidine-kataprex-nexiclone-duriclone/
Thank you so much for doing this series!!
Omg, you just explained why I get random heart rate spikes at night...I've been wondering for ages...😮
Thank you for educating! Very well explained.
Thank you so much for your comment and for watching the video. Please join me for live free chats on my Facebook page (type yorkcardiology@gmail.com in Facebook search) - I will be able to answer your questions there
this is so true. pots has affected my sleep 24/7.. got pots after cvid btw
Excellent explanation
Why would they feel dizzy? I've heard many patients complain of many bizarre symptoms, but not dizziness. Which makes sense since complaints of dizziness are often actually "lightheadedness," due to hypotensive presyncope - which shouldn't happen in "orthostatic" conditions, like POTS.