POTS (a remarkable condition) - Talk by Dr Sanjay Gupta

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  • Опубликовано: 16 июл 2024
  • Dr Sanjay Gupta, heart specialist and consultant cardiologist in York Teaching Hospital, is giving a presentation on POTS and answering questions from the audience.
    POTS is a syndrome that many people living with ME/CFS and fibromyalgia suffer from.
    This talk was hosted by the Sheffield ME and Fibromyalgia Group.
    www.sheffieldmegroup.co.uk/
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Комментарии • 174

  • @HodaMcClymont
    @HodaMcClymont 10 месяцев назад +69

    I had a little cry hearing this angel of a Dr speak. He understood! He understood! How lucky are those POTS patients who get him as the Dr.

    • @alisontrenter8293
      @alisontrenter8293 5 месяцев назад

      Me too!!!

    • @adiadouglas7615
      @adiadouglas7615 2 месяца назад +2

      I too had a cry and I believe it was because of this doctor's sweet manner and genuine concern for people struggling with this.

  • @LexaWinter-vj5ef
    @LexaWinter-vj5ef 9 месяцев назад +32

    I love how he admits he went from a doctor with knowledge on how to treat people to a doctor with knowledge on how to care for people, that’s the shift we need to see from many in healthcare professionals.

  • @liltunafish1471
    @liltunafish1471 11 месяцев назад +41

    “Patients come first, definition comes after that”. Mad respect Dr. Gupta. I wish more doctors think like you do. We need to be reminded that definition criteria, tests/ investigations all have the potential of false negative and missing the outliers. Thanks for this amazing session

  • @jom6320
    @jom6320 2 года назад +49

    Understanding and listening is comfort for patients, so many are misdiagnosed and dismissed. Thank you

  • @humaalimd6004
    @humaalimd6004 11 месяцев назад +26

    Wow just wow 🤩 dr. Gupta
    I’m a personalized precision medicine doctor who treats such patients
    This is the most comprehensive resource I’ve found
    I’m so grateful for all your efforts

  • @asmrbrat471
    @asmrbrat471 2 года назад +33

    Omgggg how beautiful he grew so much as a doctor !! 🥺 I love this so much. ❤️ I just got diagnosed after 4 years of educating myself and begged for doctors to listen and I knew it was pots the whole time. Ugh there’s nothing like haven’t your life taken and a doctor loving you like there family to help fight with you.

    • @jackya
      @jackya Год назад +2

      I diagnosed myself...after 15 years. If you haven't read about leaky gut syndrome please add it to your list. I'm certain it is related to POTS. The diet saved my life. Thank you for being a doctor who takes the time and sorry you had to learn the hard way

  • @bazia7927
    @bazia7927 2 года назад +25

    What a beautiful & kind heart you have!
    May you be contagious to Drs everywhere!
    Thank you from the bottom of my heart.
    21 years heath journey with #Myalgicencephalomyelitis #POTS #MCAS

  • @brainwithani5693
    @brainwithani5693 9 месяцев назад +10

    I love this man's spirit. I wish he was my doctor

    • @dva62004
      @dva62004 16 дней назад

      @brainwithani5693 . . I wish that this Cardiologist could be my POTS Cardiologist, too. Dr. Sanjay Gupta is phenomenal💗

  • @gloriaanngomez3238
    @gloriaanngomez3238 10 месяцев назад +10

    You have such a good heart dr Gupta!!! 😊Apparently many drs don’t want to bother learning about this malady let alone treating it! I have experienced POTS off and on for several years now and have ME/CFS. Now my granddaughter has POTS really bad and was blacking out multiple times a day and no one would believe her and help her until she started having seizures. They all thought it was psychological because she’s a teenager. I was absolutely incredulous that no one except the school nurse was taking this seriously!

    • @ClaireGraceMarshall-jr5mm
      @ClaireGraceMarshall-jr5mm 4 месяца назад +2

      I have three children with special needs including my son who is severely disabled and in a wheelchair. I would be hopping mad that nobody but the school nurse was taken by it seriously. She should've been receiving better care than that from those dr's, as a parent that's appalling not to mention disgraceful.

  • @mollasima3251
    @mollasima3251 6 месяцев назад +12

    This was tremendously helpful. I cried during certain parts bc i have been struggling with this for years with doctors dismissing me. It started a few years ago with either COVID or i had a surgery that removed my ovaries and then was put on estrogen/progesterone hormone replacement - i don't know if was covid or the hormones bc they were at the same time. I had all these symptoms to a lesser degree all my life (i thought everyone struggled with them! 🙄). But when those events happened in my life - this condition became literally debilitating. I thought i might be dying. As i listened to this, i cried with relief and validation. Thank you🙏💜

  • @lilaworley8935
    @lilaworley8935 2 года назад +7

    Is it possible to Love a doctor, you've never met, that is half way across the globe because he understands your problems more than any professional you've ever sat with?
    Why yes.... Yes it is.
    So you ever visit the USA?
    I would travel to meet you to just say thank you.

  • @amybass560
    @amybass560 2 года назад +10

    May God bless you. There sure aren't many doctors left like you!

  • @SparkVisionHub
    @SparkVisionHub 11 месяцев назад +8

    Was diagnosed today, great info. Been walking around clueless since 2019

  • @AlbaLynxQueen
    @AlbaLynxQueen 5 месяцев назад +2

    Wow. What a doctor. I wish I met such a doctor just once.

  • @jojogurl83021
    @jojogurl83021 2 года назад +5

    That would be me! 2 years of ER visits and constant research! Today I realize this is what I'm experiencing for the past 2 years.

    • @alyssagwynne421
      @alyssagwynne421 Год назад

      Me too! I feel this so much! Really hits home!

  • @barnbrac2452
    @barnbrac2452 Год назад +7

    What an amazing example of patient centred care and a clinician that actually wants to help those suffering. POTS is a common symptom in long term (greater than 3 weeks) benzodiazepine use (tolerance, withdrawal, post acute withdrawal syndrome, benzodiazepine induced neurological dysfunction)

    • @AlbaLynxQueen
      @AlbaLynxQueen 5 месяцев назад

      Oh. God. I started having POTS after a 10 days benzo use. All doctors dismiss and gaslight me. But I had no tachycardia at all prior to benzoes. Now it's been more than a year since then, my HR standing up is 130. When I lie down it's always 60-70. 4 months before benzoes I went off ssri rapidly. It might have contributed to me developing POTS

    • @dva62004
      @dva62004 16 дней назад

      @@AlbaLynxQueen, which SSRI did you take? I am hoping that Zoloft will help me. Sea salt does not ALWAYS bring my BP up enough. I am now on saline solution, but it ONLY works while I have the saline put straight into the IV, and I feel ALMOST normal (without bloat, without dizziness, not passing out, good bowel movement, less headaches and body aches, BP & HR is pretty normal. . Yes, almost back to normal.). When the the Saline IV comes out, it’s back to feeling POTSY🙄🙄🙄

    • @AlbaLynxQueen
      @AlbaLynxQueen 16 дней назад

      @@dva62004 I took Paxil. No POTS prior! When I went off, a few months later I started having tachycardia when standing. Paxil caused a horrible withdrawal and a cascade of new symptoms and health problems!

  • @charmainethane5301
    @charmainethane5301 2 года назад +8

    I love his honesty 🙏 & integrity

  • @autumnrose_noseinabook
    @autumnrose_noseinabook 2 года назад +9

    I'm currently seeking a diagnosis but since some friends have brought POTS to my attention I feel like there is finally hope!!! I have had a mountain of symptoms for 11 years, starting when I was 16. I have been to so many doctors and taken so many trips to the ER but always get turned away without answers. I have been diagnosed with anxiety disorder, but I've always felt there was something more to it. I had covid in September and had horrible brain fog and fatigue that never went away. My other symptoms have worsened as well. In November I had a really bad spell of high heart rate (reached 180 at one point) and extreme lightheadedness and dizziness on top of the worse brain fog and fatigue I've ever experienced. I thought I was dying. I think covid brought out my underlying condition which I'm 100% positive is POTS. That possibility connects ALL of the dots for me, especially all of the things I thought were unrelated such as foot pain & extreme photo sensitivity. My PCP thankfully knew about POTS and was very supportive of me wanting to investigate POTS further and gave me a referral to the cardiologist, so now I'm waiting to see seen by them.

    • @lizinawe
      @lizinawe Год назад +1

      DR ROB WILSON AT CLEVELAND CLINIC HAS BASICALLY SAVED MY SANITY AND MY LIFE.

  • @sueregan2782
    @sueregan2782 5 месяцев назад +1

    I am 79 years old, have had ME/CFS for 50+ years, but acquired POTS (including all those other dysfunctions on the list) a couple years ago when my PCP put me on a diuretic for B/P. He then wanted me on a reconditioning exercise program. I refused, and had a blood test done through another doctor: my electrolytes were severely depleted. Discontinuing the B/P meds and concentrating on intense restoration of electrolytes and other depleted nutrients has helped reduce the POTS heart rate, eliminate IBS, improve sleep.

  • @user-iw2vn2vn3y
    @user-iw2vn2vn3y 7 месяцев назад +3

    He is the best doctor ever! God bless Dr Gupta!!!

  • @kayladekraker8917
    @kayladekraker8917 2 года назад +12

    Thank you so much! I developed severe pots after the covid vaccine, but I have had raynauds, ibs, anxiety, and hyper mobility my whole life.

  • @angelar.2088
    @angelar.2088 2 года назад +18

    Wow ! Finally a diagnosis that fits me to the point . All this time I’ve been suffering ( 18 months with no diagnosis or treatment plan. Meds after meds that had nothing to do with the my symptoms , agony . My B12 and Immune system is very high w/inflammation where I am sensitive to too much heat and cold . On top of everything I have neuropathy and a swollen esophagus that feels like I am carrying 50 pounds around my neck . I need peace 😢

    • @alisaharris1381
      @alisaharris1381 2 года назад +3

      Thank you for taking time to help us. It’s hard to deal with , honest human being willing to help .

    • @courtneyr6645
      @courtneyr6645 Год назад +2

      Look up MCAS

  • @allisong2159
    @allisong2159 2 года назад +18

    I have been suffering with this my entire life! It’s so refreshing to hear a doctor who actually listens instead of dismissing patients who have difficult medical issues! I was told I had fibromyalgia when I was in my 20’s and have carried that diagnosis around since then. It seemed to fit some things but not all my symptoms. My daughter was just diagnosed with EDS and is being sent to a geneticist. It answers all of our symptoms finally! And Dysautonomia is a comorbidity of EDS! Thank you for this information! Maybe now I can take some of this info to my dr and see where we go from here…..wow

    • @TheBushRanger.
      @TheBushRanger. 2 года назад +1

      Look up dr Sarno TMS for your fibromyalgia

    • @NuLiForm
      @NuLiForm Год назад

      Same

    • @joanneclark8256
      @joanneclark8256 Год назад +1

      What tests what company ?
      Do you remember price?
      Did you ge tested and daughter?
      What helps you ?
      Do you at all experience internal vibrations?
      Would love some help

    • @susanclowser1207
      @susanclowser1207 8 месяцев назад

      Wow! I have suffered my entire life too! Drs just give me the look.. it is miserable

    • @Truerealism747
      @Truerealism747 3 месяца назад

      ​@@TheBushRanger.Yes with asperger's were sarnos.ultra perfectionist s

  • @_Julie_Bee
    @_Julie_Bee 2 года назад +3

    Wow. This apology made me tear up. Thank you.

  • @alyssagwynne421
    @alyssagwynne421 Год назад +4

    I really want to add also that with my experience in reading a lot of people's symptoms, that I've noticed most patients with pots or dysautonomia have low heart rate variability. (HRV) not heart rate, but the variability. Low heart rate variability is crucial in this illness. It causes the exhaustion, the irritability the lack of get up! It directly relates to the autonomic nervous system. I got an apollo watch, that seemed to help with it. But I still have HRV in the low 20s most days! There are so many facets to this illness and I'm so glad it is getting the recognition it deserves! There are so many of us suffering that have been diagnosed with anxiety for way too long. It's a debilitating feeling and I am praying that soon I will be able to find a Dr who will help me. Who will listen and not just tell me to drink more water which I already do 😓

    • @joanneclark8256
      @joanneclark8256 Год назад

      How do we find put our heart rate variable? Low? Does it worsen at night?

    • @lizinawe
      @lizinawe Год назад

      EVEN WHEN I DO CARDIO, IN THE EARLIER DAYS, I COULD NOT GET MY HEART RATE UP TO 120. I THINK YOU HAVE A VALID POINT HERE!!!

  • @Teddys_Adventures
    @Teddys_Adventures Год назад +5

    This is amazing. Thank you so much. I was diagnosed two weeks ago by a cardiologist. Wafted a few years of being told by everyone (family and GP!) that I had anxiety.

  • @lilibethporal4322
    @lilibethporal4322 6 месяцев назад +1

    You made me cry Dr Gupta, you are sooo compassionate. God Blessed you!!!

  • @judee.baland6526
    @judee.baland6526 11 месяцев назад +1

    If not forDr Gupta I would have never had a clue what was wrong! Eternally grateful! ❤

  • @MelismaTheEnigma
    @MelismaTheEnigma 10 месяцев назад +2

    I love this man!! What a hero!!

  • @irenenavarrette1918
    @irenenavarrette1918 Год назад

    Thank you so much Dr. Gupta! For this video.

  • @michellee6812
    @michellee6812 2 года назад +2

    Thank you Dr Gupta 😘

  • @angelikasusanne2830
    @angelikasusanne2830 9 месяцев назад

    Thank you so much!

  • @jrose4209
    @jrose4209 Месяц назад

    Outstanding video. The most helpful thing I’ve heard applauding you Dr.Sanjay

  • @heatherr1141
    @heatherr1141 Год назад +6

    Awesome presentation. Very clear and well understood. Thank you for caring for the person and take time to make videos an helpful advocation. We need more Drs like you. I wish I could come to you as my Dr. Where are you located?

  • @marianacadore9245
    @marianacadore9245 11 месяцев назад +1

    Fantastic interview, thanks 🙏

  • @peggymicsky8607
    @peggymicsky8607 9 месяцев назад

    Amazing minds and Leaders are rarely satisfied with the Status Quo, especially when there are so many questions and much unknown. And more to be done. Dr. Gupta is one of those people. He's always searching for more. Mediocracy is not his thing. Thank God for people like him in the Medical Field. He sacrificed and worked hard to become the doctor he is. He will never stop growing. 🙏

  • @CatsityUk
    @CatsityUk 5 дней назад

    Wow you are an amazing Dr , I am a 3rd generation within my family, with fibromyalgia, hypermobility, gastrointestinal and ibs issues, we are constantly anemic and we are getting worse especially my mum

  • @donaldblevins1762
    @donaldblevins1762 2 года назад

    Thank you!!!

  • @KK-ex3ej
    @KK-ex3ej 4 месяца назад

    This is incredible thankyou so much for sharing your expertise

  • @kyleszczepanik6392
    @kyleszczepanik6392 Год назад

    Thank you

  • @georgiarelman
    @georgiarelman 11 месяцев назад +1

    It’s important to know that preemies experience dysautonomia because their automatic reflexes do not coordinate well, this often does does ‘catch-up’ especially if you were born less than 32 weeks GA. Under stress or stimulation of any kind they experience orthostatic hypotension (bradycardia), while late preterm (34-37 weeks) experience tachycardia.
    Abnormal Baroreflex sensitivity,
    Whereby the baroreflex does not coordinate with the parasympathetic or sympathetic reflexes, resulting in episodes of hypertension (tachycardia) and/or hypotension (bradycardia).
    This helps explain avoidant behavior-must stop, rest, recover.

  • @peggymicsky8607
    @peggymicsky8607 8 месяцев назад

    A Remarkable Doctor!

  • @marcialawing761
    @marcialawing761 7 месяцев назад

    Wonderful doctor wish they were more

  • @peggymicsky8607
    @peggymicsky8607 2 месяца назад

    Please put another video on RUclips!! This one is for Pots patients and there are many more of us with other problems who enjoy your presentations.

  • @larablackburn9649
    @larablackburn9649 7 месяцев назад

    he's soooo nice. i want to cry

  • @mrs.v4565
    @mrs.v4565 5 месяцев назад

    WOW FINALLY SOME ONE WHO TRULY UNDERSTANDS POTS

  • @peggymicsky8607
    @peggymicsky8607 Год назад +4

    This was an excellent presentation, Dr. Gupta! Long overdue and much needed. Thank you for being the Doctor who was willing and dedicated enough to take it on. A curious, hard working and caring Cardiologist!

  • @carolwilliams383
    @carolwilliams383 5 месяцев назад +1

    I didn’t get POTS Til I was 52 had to diagnose myself til I went to Cleveland Clinic and was finally diagnosed by a Cardiologist there, three Cardiologist in California said it was panic attacks 🤷‍♀️

  • @MaryinOmshanti
    @MaryinOmshanti 5 месяцев назад +1

    Thank you ~ it's not a disease, it's a condition. I can't take those meds because I have low bp and ischaemic heart disease. I have Dysautonomia (worse than ever) following a Covid infection. There are SO many of us.

  • @corrinneloudon525
    @corrinneloudon525 2 месяца назад

    Thank you for a most informative talk! In the 15+ years that I’ve had POTS, I’ve never heard any of this, or had any help from my GPs. Self help and Dr Google have been my only remedy. Some of the advice given is in direct opposition to that given for managing my heart failure and damaged mitral valve, e.g. use of diuretics/gliflozins. I think I’ll just have to carry on putting up with the POTS 🙃

  • @traceyhilder6640
    @traceyhilder6640 4 месяца назад

    What a wonderful doctor the world would be a better place with more Dr Gupta
    I’ve had rapid heart rates I’ve got CFS and fibromyalgia
    My son is experiencing the same he’s been checked and heart is ok but they don’t know why he’s generally not well daily

    • @Truerealism747
      @Truerealism747 3 месяца назад

      Do your muscles hurt everyday sure fybromyalgia is a symptom of cfs

  • @AlbAy537
    @AlbAy537 5 месяцев назад

    My favorite Doctor

  • @shilohvanderkooi7784
    @shilohvanderkooi7784 Год назад +4

    I wish I lived in England. I ironically live in Calgary Albert where Dr Raj is located but not only does he not have any time for his patients but he doesnt seem to give a single shit AT ALL about us. I wish I could see Dr Gupta. 😢 I dont even want to be alive anymore because this illness has stolen everything from me and no one has been willing to help me for 3 years now. I'm in a prison that is literally my own bed.

    • @Truerealism747
      @Truerealism747 Год назад

      Been there and living it still 26 years HDS Asperger's add how are you now have you got much pain check out Dr lenz Dr schubiner where us Dr Raj based England is not good for these conditions

    • @katierobertsfnp6403
      @katierobertsfnp6403 Месяц назад

      Good Doctor,
      You are making this world a much better place. I wanted to report that I sustained triple negative breast cancer in 2013, 2013 while leukoplenic caught a respiratory infection. This post-viral illness segued into ME (myalgic encephalomyelitis). 2014 advanced basal cell whilst immunocompromised on my left scalp>split thickness skin graft to approximate the head wound slightly larger than the size of an adults palm. 2016 triple negative breast cancer chest-wall recurrence. Bedridden for 8 years. Severe chronic pain.
      Hence CIPN chemotherapy induced peripheral neuropathy, Dysautonomia, right-sided low atrial pressure, negative full cardiac work up but continued with incessant, sharp, chest pain.
      Now, finally to the point!! My ME/CFS MD in Boston, Ma, David Murray Systrom and his PA have RX’d Pyridostigmine (Mestinon) now for over three years. Chest pain 100% treated. My current dose is 30mg three times a day. I feel much better, can be somewhat active-ish, and drive again. You and Dr. Systrom are of the same cloth>practicing patient-centered medicine. Respectfully, Katie

    • @OvercomingPOTS-zd5ql
      @OvercomingPOTS-zd5ql 22 дня назад

      Your comment broke my heart. I also saw Dr. Raj but he didn’t have any advice for me other than the basics.
      I had to become carnivore. Only beef and salt. It’s changed my life. It is awful, but I can stand for many hours now. It took 3 months to adapt and it was really hard. I also treated a double MTHFR mutation, went to NUCCA to realign C1 and C2.
      Don’t give up! We are all laying in our beds crying with you. You aren’t alone! We all will keep fighting to get better and fighting for more solutions!

  • @deborahakey9308
    @deborahakey9308 4 месяца назад

    Thanks so much my prayer is : MORE Dr.s like u!!!!!! 🫶🏿

  • @colleencooper535
    @colleencooper535 2 года назад +4

    I wish he could be my doctor. Developed POTS due to Covid and none of the doctors I see can help me.

  • @maletero9888
    @maletero9888 24 дня назад

    It was only after LAD stenting did my heart beat strong enough to feel the pulse in my head did I realize what was happening. As I stand, my heartrate skyrockets and my blood pressure plummets

  • @inframinced6698
    @inframinced6698 10 месяцев назад +1

    It seems like Dr. Sanjay Gupta has mostly come to his senses around recommending IV Saline and that's great to see. I was concerned when he thought it was a good solution.

  • @denisetaylor-crommett4781
    @denisetaylor-crommett4781 11 месяцев назад +1

    I was fine, about to hike 4000ft mountains. Athletic all my life. At 56 last year got Covid twice and Lyme disease, Bells Palsy. in between that. Never been the same. So long Covid? But my symptoms fit into POTS and MCAS. I take walks but have to walk slow or my heart tachs right up. Forget going up hills. Fatigue, chest pain, guts are a mess and sleep sucks. I am hoping things improve in time but underneath I am don’t believe I will ever be the same. I am trying to learn to live my new normal. I did have to take 6 months off from work because the fatigue and symptoms were too much. I am back to work but can only tolerate a 25hr week. It’s really hard as I am a type A busy kind of person.

  • @Savannah-ed4rv
    @Savannah-ed4rv 8 месяцев назад

    I'm not sure what award Dr. Gupta should get, but he should get something for being such a warm and caring and dedicated physician! I greatly admire his attitude and his work and it's wonderful that he's helped so many people with this condition. I believe I had pots or dysautonomia at a young age maybe around 8 years old because I started to have near fainting episodes when I would stand up too quickly it went on until I was about 50 or 55 years old just maybe 10 years ago. I think because my blood pressure naturally went up as I aged it took care of that near fainting. I never had tachycardia, but I do have intermittent atrial fibrillation and I have a histamine intolerance now. It's all kind of coming together and I've also suffered neurologic pain syndrome. If I had had a doctor like Dr Gupta my life probably would have been a lot different.

  • @jestinadawkins6517
    @jestinadawkins6517 Год назад +1

    Watching from the US . Enjoyed the education. You are not only a great Doctor but an incredible human being. God richly bless you as you take care of his children. What happens if you have high blood pressure and on a sodium restricted diet regarding sodium intake? Thanks so much.

  • @kellyofthehead
    @kellyofthehead Год назад +4

    I wish I could get an appointment with you, I'm so frustrated with my GP. It took me 6 years to finally get an M.E diagnosis, and the last few years (worse now) I've been having dysautonomia symptoms, POTS especially. Pounding heart just from standing, often losing my balance and feeling really sick. My heart rate raises from 80 bpm to 130 just standing. I also get the pounding heart after eating, and night time anxiety. 6 years of feeling ill and not being believed . 😞

  • @Kb-mx8lv
    @Kb-mx8lv 2 года назад +3

    I have suffered since a teenager. No doctor could tell me what wrong. Started doing my own research and came across POTs. I was relieved. I was already taking propranolol for fast heart rate and told it would help my anxiety.

    • @MaxPayne-fi1mz
      @MaxPayne-fi1mz 4 месяца назад

      Has it helped??

    • @Kb-mx8lv
      @Kb-mx8lv 4 месяца назад

      @@MaxPayne-fi1mz yes it does

    • @MaxPayne-fi1mz
      @MaxPayne-fi1mz 4 месяца назад

      @@Kb-mx8lv Do you think you will have to be on beta blocker for life?

  • @ruthiea2789
    @ruthiea2789 8 месяцев назад

    I had terrible tachycardia that landed me in the hospital after taking nortriptyline for neuropathy. Never understood what happened there and the doctor didn’t either but watching this made me realize I think I might have POTS. dizzy fatigue tachycardia random episodes but also postural. Tachycardia wakes me up in the middle of the night sometimes. It all makes sense now. I’m a nurse always suspected I had an issue with vascular laxity, don’t seem to adjust physiologically to a change in posture though my BP is fine my heart rate shoots up. And seem to be sensitive to anything that increases my adrenaline meds caffeine stress. I’m also quite hyper mobile. Too many symptoms more to list here but this has been eye opening. Interestingly I started ballet 8 years ago and always feel better with the symptoms on days I do class or am physically active. If I’m sick and lying around for a couple days the palpitations get so much worse.

  • @aaltimore522
    @aaltimore522 2 года назад +4

    I feel I also have this, started after COVID in November 2020. A year ago after much researching multiple symptoms, my PCP basically laughed at me and said no way. Mine start when I wake up and walk to bathroom, by the time I get to the toilet I am tingling from head, down my arms, across my chest feeling as if I am on fire, start pouring sweat and have actually passed out several times, losing control of my body and functions. I am constantly tired, do not sleep well or normal at all. Have a flutter in my sternum often and heart rate goes up and down regardless of what I'm doing. It's scary and debilitating. Actually my chiropractor and his naturopathic brother have told me they're sure this is what I have.

    • @aaltimore522
      @aaltimore522 2 года назад

      Anyone else have these or similar symptoms?

    • @Catlily5
      @Catlily5 10 месяцев назад +1

      ​@@aaltimore522Yes, I have very similar symptoms and I am diagnosed with POTS

    • @aaltimore522
      @aaltimore522 10 месяцев назад

      I was able to maintain mine with clean eating and exercise, haven't had an episode since June of 2022....when I'm not eating well I can feel it creeping in and it gets me back on track in a flash. I never ever want to feel like that ever again.

  • @Lyf-3276
    @Lyf-3276 3 месяца назад +1

    This is the most detailed thorough explanation of living with pots I’ve ever heard.

  • @anneedmunds3440
    @anneedmunds3440 2 года назад +9

    Dr Sanjay Gupta, Thank you so much for taking the time to help educate/inform us♡. This was an excellent presentation.
    #drsanjaygupta

  • @DeeDee-44
    @DeeDee-44 2 месяца назад +2

    POTS isn't a heart condition. It's a problem with the Vagus nerve.

  • @donnaslack6203
    @donnaslack6203 4 месяца назад

    I wish my daughter could find a doctor like you in San Diego. They all want you to fit in their box for their specialty. It has taken a year to even get an appointment. Most doctors just don't care or won't take the time it takes. The patients aren't able to fit into a 15 minute appointment.

  • @yvonnejohnson1004
    @yvonnejohnson1004 9 месяцев назад

    I spent over 14 years saying that I thought I’d got Pots. No one listened to me and no one believed me they thought that the Cardiologists knew best. I was like a broken record but I never gave gave up. Then two doctors individually in A&E told me that that’s what I’d got. One said that I had symptoms that I didn’t know about and the other one gave me a print out. What did my doctor do? She sent me to a cardiologist for two years and when I told him what the two doctors had said he said “What do they know?” and he kept prescribing medications which made me so ill. I made an appointment with my doctor. She asked me how I’d got on and said that he can be a bit strange. I said that I still thought that I’d got Pots and she said “So do I.” But she didn’t know where to send me. I told her that I wanted to be referred to Cardiology at the LGI. I saw a doctor with a special interest in Pots and he diagnosed me. He also wrote a letter that I could take to A&E asking if they’d give me IV fluids. No one had heard of Pots. I’m relieved that some Pots sufferers don’t have to fight as long as I did these days.

  • @mrsanjayjethwa
    @mrsanjayjethwa 11 месяцев назад +1

    Consider having your iron levels checked, anaemia can cause similar symptoms.

  • @LifeOnHoth
    @LifeOnHoth Год назад

    How interesting that it was first described - that it was soldiers (men).

  • @angelsplace
    @angelsplace Месяц назад +4

    Who's still alive in 2024

  • @AjcgMe
    @AjcgMe 2 года назад +1

    Can you please send the slides from the talk? I can’t see it on your website thanks 🙏🏽

  • @spirit5278
    @spirit5278 14 дней назад

    I’ve had POTS for over 25 years and still can’t find a way to control it.

  • @imvincentblair8911
    @imvincentblair8911 2 года назад +2

    I have every symptom listed. Raced professional motocross for 15 years and get winded carrying my 8 month old to the car now. What got me was when you stated patients complain of palpitations when standing still but go away when walking. Testing today my heart rate was 60 bpm sitting with my feet up. I stood up and walked around and it went to 115-120. As soon as I stopped walking I felt pressure in my body and my heart went to 140. It took a couple minutes for the racing to stop and as soon as I stated walking again it would go back to 90. It's so frustrating. I wonder if it goes down when walking because muscles contract and vessels pump the blood back to the brain and heart easier. Also could the delay in vasoconstriction cause too much adrenaline to be released giving anxiety attacks?

  • @susanclowser1207
    @susanclowser1207 8 месяцев назад

    I’ve been to many Doctors and have all of the symptoms and no diagnosis. I truly believe I suffer from this
    I also get flushing and no one can explain that either

  • @maletero9888
    @maletero9888 24 дня назад

    I am diabetic, they blamed diabetes. It may be related but I quit drinking after years when it first happened because I always feel drunk. It may be related to malnutrition due to a defective gut biome. My doctors have barred me for questioning their resolve

  • @vynedvyne59
    @vynedvyne59 11 месяцев назад

    Exercise that helps me
    Classical stretch floor exercise

  • @CandycaneBeyond
    @CandycaneBeyond 6 месяцев назад

    31:25 I'm listening to this during Christmas 🎄 season. I look over at my phone and see the Grinch 😂😂

  • @lizinawe
    @lizinawe Год назад +1

    in addition, i think i am having a normal day, go out, and suddenly my energy drops and i am done for the day or two. often need help returning home. i do not have diabetes nor pre=

  • @skyechambers1968
    @skyechambers1968 Год назад +1

    This man is Dr God .........x

    • @carolwilliams383
      @carolwilliams383 5 месяцев назад +1

      He is not a god at all

    • @peggymicsky8607
      @peggymicsky8607 5 месяцев назад

      Thats not for you to say. He's a wonderful Doctor and a God to some!

    • @carolwilliams383
      @carolwilliams383 5 месяцев назад +1

      @@peggymicsky8607 it is for me to say there’s only one God creator of heaven and earth. I would never call a man a God.🙄

  • @jennybarrionuevo6428
    @jennybarrionuevo6428 2 года назад

    How can I get an appointment with Dr. Gupta, we are in Los Angeles California. Please provide us with the date And time for an appointment as soon as possible.
    God bless you.

  • @SuzanSemore-ce8nc
    @SuzanSemore-ce8nc Месяц назад

    Im a 73 year old woman. I got covid for the 3rd time in march. Sence than i have been suffering fron all the systomes you talked about. It has taken all my energy to type this. What is going on. I was VERY active 3 months ago i could out work any man. Now im weak as a kitten.

  • @barbaragdisis4606
    @barbaragdisis4606 Месяц назад

    Is there a c1q deficiency connection? My daughter also has mass cell disease and ehlers danlos, now lupus

  • @lamestreammedia0
    @lamestreammedia0 11 месяцев назад

    I'm seeing Optic Nerve Atrophy at age 51 after decades of random visual dimming. Any connection to lack of blood to brain and a die off of Optic Nerve? Referral to Neuro-Opthamology, but 4 month wait list.

  • @terminallyballisticM855A1
    @terminallyballisticM855A1 Год назад

    I need to find a doctor in Central wisconsin that can test me for this, it seems obvious , the cold, n back neck and headaches , stomach aches , it makes sense

  • @judee.baland6526
    @judee.baland6526 11 месяцев назад +2

    I had all the symptoms for many years. I would go shopping and sweat so profusely that it was embarrassing. Waking at night with a racing heart going to ER and being told nothing was wrong. Having inflammatory bowel disease most of my life. I do wonder if I had this as a child? I was always tired always with diarrhea as a child. Blood pressure will go up very high then back down, If I lie down and put ice on my face and neck. Does anyone else have the sweating?

    • @myrtleesther8855
      @myrtleesther8855 10 месяцев назад

      yes I do so profusely from my head especially on standing up, any exertion and if temps are even a little higher than normal. I look like I went for a swim!

    • @denisel.2790
      @denisel.2790 10 месяцев назад

      Yes, I hate it!

  • @botsareeverywhere
    @botsareeverywhere 2 месяца назад +1

    I NEED TO FIND A DOCTOR WHO UNDERSTANDS THIS CONDITION 😡 😢

  • @thedoopa3169
    @thedoopa3169 Год назад

    I had a loop recorder inserted, I have to get a tooth removed because i fell on my face and broke it, I cant stand for longer that 30 minutes, my digestive track isnt working, my gag reflex are acting for no reason, im sweating tons, my eyes are dry. Life is hell, its been 5 months of cardiology and neurologist and I still dont have a diagnosis. Theyre saying disautotomnia but not officially, i had to quit my job as a sues chef, been demoted to dishwasher and i still cant keep up.

  • @elizabethdesmet89
    @elizabethdesmet89 5 месяцев назад

    Where does Dr Gupta practice?

  • @aaliak4499
    @aaliak4499 11 месяцев назад +1

    Could I have POTS?
    Ive been suffering terribly since my mid teens after a hepatitis infection from working in a restaurant.
    * extream fatigue
    * dignosed ADHD
    * IBS-D
    * chronic bladder issues
    * extream palpitations & PVCs with standing
    * often feel like blacking out when i stand
    * low endurance
    * shortness of breath
    * frequent insomnia
    * feel very faint standing still or walking slowly.
    * heat intolerance
    * after a day of normal activity i have to spend a day or more in bed with a headache that becomes much worse with standing.
    I bought a pulse oximeter a few days ago and have been doing the standing test.
    Half of the time my BPM do increase by more then 30, but other times only by 20-27.
    Every time though my heart beats very erratically with standing with excessive PVCs. In one test I decided to count them and had 40 PVCs in 5 mins, some were 2-3 in a row. My heart always went back to normal very quickly after laying down again.
    Could this be POTs, or something else since my BPM didnt always go up 30 or more?
    I know I cant be diagnosed online Im just looking for possibilities while waiting to see if my doctor will get me tested.

  • @barbaratrepka5896
    @barbaratrepka5896 2 месяца назад

    I have pots and my blood pressure drops when I stand and my heart speeds up
    I take metoprolol and feel so much better

  • @jenniferwatson9323
    @jenniferwatson9323 Год назад

    Have you looked into EDS and mast cell activation syndrome? I was diagnosed with with those and POTS

    • @Truerealism747
      @Truerealism747 Год назад

      I have hdd not sure if eds lot of confusion between drs and maybe the same I've had CFS pots now fybromyalgia all started v1997 after a fall now found out I have Asperger's add like my son been diagnosed my mum obviously has it undiagnosed and has severe ms.

  • @kellyfogg7398
    @kellyfogg7398 Год назад

    I think I have got pots because I have got most of these symptoms and I would like some help please

  • @user-yl9ck9ob5t
    @user-yl9ck9ob5t 2 года назад +4

    I have this since I got covid

    • @marlenehofmayr430
      @marlenehofmayr430 2 года назад +1

      Same it's hell

    • @Truerealism747
      @Truerealism747 Год назад

      @@marlenehofmayr430 any pain?

    • @brendabrenner2891
      @brendabrenner2891 6 месяцев назад

      ​@@Truerealism747whole body pain norm after covid, USA, 3 covids, 10drs don't know what I'm talking about in RI, pain moves around, it's vasculitis.. google all top Drs, covid centers , keep diary🙏❤️

  • @karishmadhaver881
    @karishmadhaver881 7 месяцев назад

    Gosh I have been I hospital for 10 days already n all I hear is I need a heart transplant coz I have a sick heart . I have been trying to figure out why did I get difib the first time I had a 3min hot shower and 5mins down the line I felt my heart rate go up and I got difib . Then a week later I had to do a revision on my difib lead and went under general anaesthetic then a week later I remembered going to the loo often that night and was very hungry all night when I got up at 6am and stood up I felt my kidneys vibrate along with my heart rate going up and got difib around 20times on my way to hospital Advance Life Support was on scene but couldn't do anything much to help me . When my electro cardiologist got to me he said to put a magnet on so it would stop shocking me . I think I have Pots . Im afraid of going home as my difib might do it again . I'm all the way in South Africa n don't know of any doctor that can help me .

  • @aspiringalchemist8398
    @aspiringalchemist8398 10 месяцев назад +1

    Yes!!! Glandular fever… A.k.a. mononucleosis! I had it at 17 and instead of getting better I just went right into chronic fatigue. And now at 55 I still have never fully recovered.

  • @CandycaneBeyond
    @CandycaneBeyond 6 месяцев назад

    1:07:23 aren't rigid veins associated with heart disease?

  • @peggymicsky8607
    @peggymicsky8607 2 года назад +17

    You're a Doctor, Sanjay! If POTS didn't peak your interest, you fail as a Doctor. Most good doctors want to "fix" (cure) everything! Routine is boring and how good doctors get burnt out. A good doctor can be a pioneer and discover/invent great things. A good doctor can cure these discoveries! Keep searching, Sanjay!

    • @pamelawilson2301
      @pamelawilson2301 Год назад +1

      My Granddaughter has Dysautonomia/ POTS you obviously did not listen to the complete video!!!!!!!

    • @peggymicsky8607
      @peggymicsky8607 Год назад

      If talking to me, please explain? I don't have POTS but I think I understand what Dr. Gupta is saying.

  • @tracystandish3420
    @tracystandish3420 23 дня назад

    Is there a easy way to figure out if it's pots or anxiety? The symptoms are almost exactly the same?

    • @sheffieldmefibromyalgiagroup
      @sheffieldmefibromyalgiagroup  23 дня назад

      Hello, PoTS UK has some useful advice about how the condition is diagnosed: www.potsuk.org/about-pots/diagnosis/, which would identify if it is PoTS or something else.