I'm glad to hae found your channel while researching for my own that I will be starting in early 2024 through this account. To find information right from the source of someone actively living through this instead of some medical talk is the kind of community i was lacking when I was just starting to try to recover from a near death experience after my daughter was born. I hope to be watching more content of yours in the near future! Hope you'll check us out too when we get going in January. Much love and light!
Same girl same… It’s annoying isn’t it. I was 13 and taking it for almost a year on a high dosis. I’m almost 15 now and I hate my faceshape. Also my chin is naturally veryyyy thin. So my face looks like a bumpy road😕. When on Prednisone I noticed that people really at me different. “Hamster” “moon face” “a circle” It’s not like I cared that much, but it got pretty annoying. I can’t exercise (cardio etc) because of my weird Crohn symptom. And I’m definitely not fat, that’s why it looks so weird. I hate it.
I started taking prednisone for my recently diagnosed lupus 2 months ago. When 40mg wasn't enough, we went up to 60mg. I don't think I have moon *face* but I have moon *gut*. My body fat went from 14% to 18%, which translates to losing 5 pounds of muscle and gaining 5 pounds of fat, according to the body composition scale at my gym. I actually lost about 10 lbs initially because I was walking so much to try to keep my blood sugar down, but lately my weight came back to my pre-diagnosis level, just with lots of muscle replaced with fat. I hope I don't get moon face too. I want my muscle back!
What are benefits of prednisone?I also have Sjogren,lupus and R.syndrom symptoms..Also have hashimoto and gut problems..Helicobacter infection for years
Hi 😊 I have lupus sle with chillblain, was just wondering how come you always seem be on prednisone? Not questioning doctors or anything, but I have not been on prednisone since I was diagnosed. I know prednisone is really bad if you take it long term, so I’m just surprised. My mom was on prednisone almost her whole life (rheumatoid arthritis) and it really damaged her health. Apologies if my question is out of place, just being curious. 😅
Hi. I have both lupus (2 months ago) and rheumatoid arthritis (for many years). No one wants to be on prednisone. For my RA a long time ago, the doctor thought that as long as the dose was below 5mg, it was Ok to be on it for 10 years or more. If your mother is of a similar age as me, there might not have been better options back then. I took other drugs along with the prednisone, but they didn't completely manage the disease. But there are better drugs now, and for my RA I haven't taken prednisone for a long time. (Yeah!) But for lupus, my current doctor says the goal is to get down to 7.5mg in the future (currently 60mg to "put out the fire") Personally I want to be in remission and be on zero prednisone, but my doctor says that's not always possible. With RA I was taking one drug, but for lupus, it's more like 5 immunosuppressants. Everyone's situation is different but for me, at least in the beginning, lupus is a lot more challenging to manage than RA.
I’m not sure. I’m down to 5 mg and my face is still very full. But, I know that about 8 mg is when I start losing the weight that I gained from being on prednisone for months. Unfortunately, I only lose about half of it, and then I have to fight to lose the rest. Still fighting from three stints of prednisone!
My magic number surprisingly was 5mg was on prednisone for 4 years straight before I could titrate down extremely slowly finally came off but my moon face is permanent
Mine was 10mg when I took it 8-9 years ago. Now I’m on it again and I’m at 9mg and it hasn’t budged. So hopefully it goes down when I get to 5mg. Pray for me😫🙏🏿
It’s annoying . I was 13 and taking it for almost a year on a high dosis. I’m almost 15 now and I hate my faceshape. Also my chin is naturally veryyyy thin. So my face looks like a bumpy road😕. When on Prednisone I noticed that people really at me different. “Hamster” “moon face” “a circle” It’s not like I cared that much, but it got pretty annoying. I can’t exercise (cardio etc) because of my weird Crohn symptom. And I’m definitely not fat, that’s why it looks so weird. I hate it. I didn’t even notice my moon face… and now it looks like it’s permanent
No, I think you got it wrong.. Prednisone is a drug taken to help with lupus symptoms which causes the moon face.. It's not lupus causing it. :) Hope this helps your doubts!
I have Polymyalgia Rheumatica and Giant Cell Arteritis which are inflammatory auto immune conditions. I have a moon face from taking Prednisolone which is the UK version of Prednisone. I do not have lupus so I hope this answers your question.
I was put on 80mg last year. It was very much needed at the time, but getting down and off felt even more amazing. I hope your taper is still going well!
I'm glad to hae found your channel while researching for my own that I will be starting in early 2024 through this account. To find information right from the source of someone actively living through this instead of some medical talk is the kind of community i was lacking when I was just starting to try to recover from a near death experience after my daughter was born. I hope to be watching more content of yours in the near future! Hope you'll check us out too when we get going in January. Much love and light!
at 10mg, the moon face goes away 🙌🏼
In how many months it goes off after being on 10mg
I'm at 8 and it's still here
I am so happy for you. My moon face is permanent.
😢
Same girl same… It’s annoying isn’t it. I was 13 and taking it for almost a year on a high dosis. I’m almost 15 now and I hate my faceshape. Also my chin is naturally veryyyy thin. So my face looks like a bumpy road😕. When on Prednisone I noticed that people really at me different. “Hamster” “moon face” “a circle” It’s not like I cared that much, but it got pretty annoying. I can’t exercise (cardio etc) because of my weird Crohn symptom. And I’m definitely not fat, that’s why it looks so weird. I hate it.
I started taking prednisone for my recently diagnosed lupus 2 months ago. When 40mg wasn't enough, we went up to 60mg. I don't think I have moon *face* but I have moon *gut*. My body fat went from 14% to 18%, which translates to losing 5 pounds of muscle and gaining 5 pounds of fat, according to the body composition scale at my gym. I actually lost about 10 lbs initially because I was walking so much to try to keep my blood sugar down, but lately my weight came back to my pre-diagnosis level, just with lots of muscle replaced with fat. I hope I don't get moon face too. I want my muscle back!
Try the Carnivore diet. It replaces fat with muscles. It’s amazing! HomeSteadHow, Tammy Peterson, and her family Jordan and Mikhaila.
Congratulations!!!!!
Not totally off topic but in relation to medications. I know at one point in time you were using Hero for your medications. Are you still using it?
How long did it take for your moon face to go away? 😭 mines not going away yet, it’s been almost two weeks since I’ve been off of it completely.
That used to happen to me all the time. But at least your healthy
What are benefits of prednisone?I also have Sjogren,lupus and R.syndrom symptoms..Also have hashimoto and gut problems..Helicobacter infection for years
Hi 😊 I have lupus sle with chillblain, was just wondering how come you always seem be on prednisone? Not questioning doctors or anything, but I have not been on prednisone since I was diagnosed. I know prednisone is really bad if you take it long term, so I’m just surprised. My mom was on prednisone almost her whole life (rheumatoid arthritis) and it really damaged her health. Apologies if my question is out of place, just being curious. 😅
Hi. I have both lupus (2 months ago) and rheumatoid arthritis (for many years). No one wants to be on prednisone. For my RA a long time ago, the doctor thought that as long as the dose was below 5mg, it was Ok to be on it for 10 years or more. If your mother is of a similar age as me, there might not have been better options back then. I took other drugs along with the prednisone, but they didn't completely manage the disease. But there are better drugs now, and for my RA I haven't taken prednisone for a long time. (Yeah!)
But for lupus, my current doctor says the goal is to get down to 7.5mg in the future (currently 60mg to "put out the fire") Personally I want to be in remission and be on zero prednisone, but my doctor says that's not always possible. With RA I was taking one drug, but for lupus, it's more like 5 immunosuppressants. Everyone's situation is different but for me, at least in the beginning, lupus is a lot more challenging to manage than RA.
I’m not sure. I’m down to 5 mg and my face is still very full. But, I know that about 8 mg is when I start losing the weight that I gained from being on prednisone for months. Unfortunately, I only lose about half of it, and then I have to fight to lose the rest. Still fighting from three stints of prednisone!
My magic number surprisingly was 5mg was on prednisone for 4 years straight before I could titrate down extremely slowly finally came off but my moon face is permanent
For me, about 10mg to 15mg❤
Any advice for swelling around the eyes?? Please😢 I feel so ugly
Why does swelling go down on more mg of pregnisone
I still had a moon face even when I went down to 10 mg but I had been on a relatively high dose for about two years. I'm really sensitive to it.
I m on 40 mg from 25 days i m slim but my face looks swoon now and had a tiny bumps on my face plz suggest me something that i can get rid of these
Mine was 10mg when I took it 8-9 years ago. Now I’m on it again and I’m at 9mg and it hasn’t budged. So hopefully it goes down when I get to 5mg. Pray for me😫🙏🏿
hi mam I'm 20 yrs old. I'm at 5mg, the face is changing more nd more
It’s annoying . I was 13 and taking it for almost a year on a high dosis. I’m almost 15 now and I hate my faceshape. Also my chin is naturally veryyyy thin. So my face looks like a bumpy road😕. When on Prednisone I noticed that people really at me different. “Hamster” “moon face” “a circle” It’s not like I cared that much, but it got pretty annoying. I can’t exercise (cardio etc) because of my weird Crohn symptom. And I’m definitely not fat, that’s why it looks so weird. I hate it. I didn’t even notice my moon face… and now it looks like it’s permanent
I thought prednisone cause moon face? Correct me if I’m wrong? Based off this video the message that I’m receiving is that lupus causes moon face?
No, I think you got it wrong.. Prednisone is a drug taken to help with lupus symptoms which causes the moon face.. It's not lupus causing it. :) Hope this helps your doubts!
I have Polymyalgia Rheumatica and Giant Cell Arteritis which are inflammatory auto immune conditions. I have a moon face from taking Prednisolone which is the UK version of Prednisone. I do not have lupus so I hope this answers your question.
I’m 11 and I was diagnosed at 9 and I remember when I was on steroids
Wonder if certain face procedures could also Help with Moon face?
😍
25mg = 🌝
I was on 20 I hate it and now I am not taking any more🎉But I still have lupus 😢
im late but for me is 5mg I still dont like it
I was on 80mg for 28 days then taper down 5 mg every week. Im on 30 mg now and cant wait till im down to 10 mg 😔😔😔
I was put on 80mg last year. It was very much needed at the time, but getting down and off felt even more amazing. I hope your taper is still going well!
@@animal_cookie I'm doing better and yes high dose works really well for me its just the weight gain and moon face
80mg 🌚
None
My Sjogren a have dry eyes,nose,mouth,throat,digestive organs,vagina,anus..i dont have sebum and dont sweat
I am so happy for you. My moon face is permanent.
Same here