Hey Doc, I'm living the walking, talking, singing in the shower proof, that the chance of kidney recovery, is real, while it is a small chance again, I'm the living proof. Was on peritoneal dialysis from 9/2017 to 10/2021. Around the 2nd year things started improving, by 10/2021 I was told I was too healthy for dialysis and too healthy for transplant.
Good for you! The small chance of enough recovery to get off dialysis are restricted to cases of sudden shut down-not when the kidneys have been beaten down for years and years!
True. And fibrosis is scar tissue -ie irreversible. I’m glad you had enough decent kidney left to recover from whatever insult tilted you over to needing dialysis for a while.
@@realkidneytalk Allow me to quote my medical file. Nephrology note: Malignant nephrosclerosis with extensive severe fibrosis, atrophic tubules, global glomerulosclerosis. And increased echogenicity that suggest CKD an addition right renal cyst. Nephrology assessed his kidney injury as "irreversible". Just proves, doctors aren't always 'correct' in their prognosis.
You are so right-doctors aren’t always right. Feel better? (And for others reading this, please know that most of us get a cyst or 2 as we age and they are BENIGN - ie not harmful)
I’m so very glad I’ve found your channel. I’ve been on hemo-dialysis now for a little over three months and am relatively healthy other then kidney failure. I just turned 51 and this is hard, REAL hard. A year ago I would have said , “ I’ll die before I’d go on dialysis! “ until………it actually happens to you ! I really don’t have much to say right now as everything is so new and hit me all at once. Thank you for your competency and kindness. 🙏🏼❤️🙏🏼
I've been on in-center dialysis for two months. I'm 55 and like you, healthy otherwise. I'm going to start training to do home hemo dialysis in two days. I'm anxious but ready. I wish you all the best on this journey.
I started dialysis 3 weeks ago and I feel really good the days I do not get treatment. I see it as a job that takes 3 hours to complete and I am getting help from the goverment (ssi, cash assistance, medicaid gold, unemployment benefits, food stamps for my whole family, and dessability retirement. I am 56 years old.
I have to tap in on this one because I have treated at home doing Hemodialysis "flying solo" (treating alone with no assistance) for more than 2 years and it is a challenge but so much better than in-center. This of course is a subjective view but if anyone needs insight into how to make it work I am glad to offer my view. Every doctor I have ever talked to about treating says they would treat at home, 100% of them have answered this way... just that says a lot. Do your own informal poll and see what answers you get.
A 2011 study (JR Merighi et al, Hemodialysis International) asking nephrologists what kind of dialysis they would choose if transplant wasn't readily available. 93% said they'd choose home dialysis (either peritoneal or home hemodialysis). I heard a past National Kidney Foundation president question the sanity of the 7% who didn't!
You are trained for emergencies and you can always call your support clinic and 911 for help. I personally liked to keep a trustworthy person (informed by me about my situation and given keys) on speed dial just in case also.
@realkidneytalk how do you stop or at least slow down the uncontrollable diaherra that comes with either form of treatment? The Dr's keep gaslighting and saying there is no way dialysis is the cause, therefore ignoring the problem. Please help...any suggestions will be greatly appreciated. I'm so glad I found your channel. ❤
Someone will win the Nobel Prize in Medicine who figures out the reason why kidney tissue does not regenerate and heal once damaged and destroyed, and come up with a solution to that problem. OR (and perhaps with just as much equal intensity) learn why the liver CAN do this, and maybe try to apply those tools to the kidney. ⭐️💯
Short answer: It ain’t so easy because the liver can regenerate because it has 4 cell types (1 major), while the kidney has 16 different & highly specialized cell types organized in a very specific order.
It’s not inher or the medical community best interest to explore other was to treat CKD. Cuts in to profits Dialysis centers rake in the money off of us CLD patients. Remember a patient cured is a customer lost
You are right that dialysis is big business and there are perverse incentives to keep people on dialysis. AND…many of us are working to make the system work best for patients.
@supercaptainbatdoggy Or, because they no there are so few kidneys available for transplant compared to the number of people that need one. Most people die while waiting on transplant list.
I recently read an article about ketosis possibly helping to restore kidney function, it was from NIH or pubmed. I am trying intermittent fasting or actual water only fasting...Viva Cristo Rey! God does the healing!
My dad just died from acute kidney failure one week ago. His kidney doctor literally told me the morning he died that he would get better but that it would take about 3 months of dialysis in a nursing home for it to happen. That afternoon my dad's breathing got so bad they wanted to intubate him. I rushed to the hospital, the dialysis they'd been doing didn't do squat. His kidney function was still at zero, he wasn't eating and he wasn't urinating. And he could barely breathe. he ended up dying that evening. About a half hour before he died the kidney doctor had the audacity to come in and tell me "see, the dialysis has helped his breathing!" Needless to say all it took was one look from me for that doctor to flee the room. I don't know why it didn't work for my dad, I don't know why the kidney doctor told me he'd get better when he clearly wasn't and didn't. Everything I read said acute kidney failure was reversible and that didn't turn out to be true for my dad.
I’m sorry for your loss. Sounds like the situation was a lot more complicated than acute kidney failure. Dialysis is just artificial kidney- it can only do a portion of what normal kidneys do, and does not help real kidneys recover.
Yeah, I guess it was chronic kidney disease, not acute. He fell and was on the floor for about 3 hours and that did some damage. He was 80 years old. He also had a blockage in his liver duct that they they fixed but then the kidneys just would not regain function. His breathing got really bad and things just went downhill from there. They put him on temporary dialysis but he refused to stay on it. I think he had decided it was the end, he had suffered for so long and had had enough. Still not impressed with his kidney doctor though. He was not a good communicator. The nurses were better, they were very honest with me about his condition and that was very much appreciated. I feel like the kidney doctor was overly optimistic when I needed him to be truthful. @@realkidneytalk
May God Continue To Bless You..Thanks Very Much For Your Advice ❤❤❤❤❤❤My Son Is Waiting For A Kidney, hes 42 & eat very healthy all his life. He have Lypus & thats why hes going to dialysis, its been 14 yrs. Im praying that he will receive a kidney real soon & live a good life ( happy) in Jesus Name Amen ❤❤❤❤😊😊
Thank you for creating this channel! If someone is older and doesn't want to take dialysis, and wants to let nature take its course; how long does it take to die and how painful is it? Thank you
what aboat mo treatment ? or t cell treaments i know they do them in switzerland and germany and trails here in uk ,t cell treatment seems they way to go,soo they are keeping treaments back
My dads left kidney is damaged at less tgsn than 10% function. His right kidney is normal ectopic. He has been on dialisis. What other options do we have?
What about "Stem Cells"? The USA has not "approved" of the use of umbilical cord cells for CKD, however several other countries have 60 to 75% rate in lowering the Stage from 5 to as low as 2. Disclaimer: not everyone will achieve this level of success and many may not be a candidate for treatment with stem cells. Do the research and be ultra cautious where and how the cell injection is accomplished.
Which other countries have approved stem cell? Would either Canada or Mexico be one of them? U.S. citizen, (refusing dialysis and transplant), inquiring.
@@joijuaire-darfler4614 Mexico is by far the least expensive, but Sweeden and Japan lead the way in research. There is a new non-invasive form of stem cell enhancement via suppplements, soon available, from a company called S.A.F.E., PMA. More information will be available soon as to how these supplements may enhance adult pluropotent stem cell production.
My dude got 4 stem cells not for his kidney failure, but for his foot. It didn't do anything for his kidney though he got it here in the states it was 10,000 a pop.
@@joijuaire-darfler4614 Mexico has stem cells for kidney disease protocols. Canada follow the USA. Several european countries also have protocols in place, but it is not cheap.
With Peritonial Dislysis they said I would need to have 70 boxeses of fluid to be delivered to my home... and stored in house... not a garage !!!!!! Who has space for this kind of thing.?????. I am 88 with stage 4 kidney disiese... (sp) ..... with 20% function.... This is really , really scary !!!!
@@renerenatorivera9062 I am in my late 70s and has been doing peritonial dialysis for almost 3 yrs now. I still have a very normal life , I go shopping and drive Whenever neede. It’s not 70 boxes. Usually it is only 15 to 17 boxes which are not that big boxes. They are heavy coz it contains 6 bags per box. So far so good , my blood work is always perfect that my Nephro and the whole team at VGH calls their star patient. I follow religiously the food advised my Dietician and everything that my Nephro tells me to do. Never smoked nor drank alcohol in my life. It was my gout meds that ruined my kidneys ..so guys be careful with painkillers. God will heal us .
I lost my left kidney to chronic nephritis (infections); fear was that same would happen to my right one. Never did, but unfortunately, my left was hypoplastic (undersized).
I'm 67. My GFR is 15. I'm not on dialyasis yet ,but have recently gone through initial screening for kidney transplantPeritoneal seems more attractive to me. My big concern is the following:I own a dog , which I rescued after I'd had a stroke and was a bit depressed. He's been with me 5 years and I've grown to love him very much It would break my heart to have to get rid of him. He'll be 11 years old this month(May, 15, 2024). Adoption might be difficult for him at his age.
I have ckd and my kidney function goes up and down sometimes ending up in er the lowest was a gfr if 12 and after hospital I went up to 51 they said I had acute kidney injury
Do they? I think most are driven by fear with few facts. I’m here to provide facts. Agree the content is sad-there’s no way to paint organs dying as rainbows & cotton candy. I’ll do a video about the “latest developments” soon, but it’s interesting to me how people are eager for artificial kidneys etc not realizing what that would entail-like major surgery.
Most people here either are nearing or on dialysis, meaning they most likely have a nephrologist and are aware of this basic info. I agree with original comment, that many are here for most current info on newest research and treatments.
@@realkidneytalk I'm actually not afraid of major surgery since I've already been through it! I don't want to give through it again, but if it meant a kidney or even an artificial one, I'd do it! I'm at stage 3b to 4. It fluctuates. I'm 100 lbs overweight with high blood pressure, medically controlled, and type 2 diabetes, also medically controlled! I want to lose weight and I'm going to try my best to do that! What's your thoughts on the pig kidney transplant?
Sis belive me only way to restore kidney function is purely vegan diet... I am in vegan since 2020 and my creatinine level falls from 2.3 to 1.0...and i am feeling better every day
“Bruh”- Good for you! I talked about vegan diet in my “what do I need to eat to protect my kidneys” video. Agree that vegan diet is helpful for folks with a lot of protein in their urine. But there is such a thing as “irreversible kidney damage” (aka end-stage kidney disease) that no diet can change.
@@fordharrison2649 I just eat raw diet fruits and vegetable.. No packaging food and animal product including diary... Dinner finished between 7pm..and a gap of 16 hrs between dinner and breakfast
This is just your opinion, right? You don't have all the facts. The medical community might be keeping something away from patients. They're not all here to save lives, sometimes is about profit.
Umm…I’m a board-certified nephrologist and could be making near 7 figures in private practice. Instead I do this for free because I want to provide accurate, accessible information. But…feel free to believe conspiracy theorists. 🤷🏽♀️
For me, it just sounds like my purpose in this world will no longer be valid. If the good Lord says it's my time ... I'm ready. So... I wait... Getting affairs in order. *Also, FULL united healthcare doesnt care. It seems.
Hey Doc, I'm living the walking, talking, singing in the shower proof, that the chance of kidney recovery, is real, while it is a small chance again, I'm the living proof. Was on peritoneal dialysis from 9/2017 to 10/2021. Around the 2nd year things started improving, by 10/2021 I was told I was too healthy for dialysis and too healthy for transplant.
Good for you! The small chance of enough recovery to get off dialysis are restricted to cases of sudden shut down-not when the kidneys have been beaten down for years and years!
@@realkidneytalk Cysts and fibrosis didn't form overnight.
True. And fibrosis is scar tissue -ie irreversible. I’m glad you had enough decent kidney left to recover from whatever insult tilted you over to needing dialysis for a while.
@@realkidneytalk Allow me to quote my medical file.
Nephrology note: Malignant nephrosclerosis with extensive severe fibrosis, atrophic tubules, global glomerulosclerosis. And increased echogenicity that suggest CKD an addition right renal cyst. Nephrology assessed his kidney injury as "irreversible".
Just proves, doctors aren't always 'correct' in their prognosis.
You are so right-doctors aren’t always right. Feel better?
(And for others reading this, please know that most of us get a cyst or 2 as we age and they are BENIGN - ie not harmful)
I’m so very glad I’ve found your channel. I’ve been on hemo-dialysis now for a little over three months and am relatively healthy other then kidney failure. I just turned 51 and this is hard, REAL hard. A year ago I would have said , “ I’ll die before I’d go on dialysis! “ until………it actually happens to you ! I really don’t have much to say right now as everything is so new and hit me all at once. Thank you for your competency and kindness. 🙏🏼❤️🙏🏼
I've been on in-center dialysis for two months. I'm 55 and like you, healthy otherwise. I'm going to start training to do home hemo dialysis in two days. I'm anxious but ready. I wish you all the best on this journey.
I started dialysis 3 weeks ago and I feel really good the days I do not get treatment. I see it as a job that takes 3 hours to complete and I am getting help from the goverment (ssi, cash assistance, medicaid gold, unemployment benefits, food stamps for my whole family, and dessability retirement. I am 56 years old.
Raw Maraby has information that is not widely known about kidneys return to function
And no one asks the most important question of all, why so many kidney failures???
You are a very compassionate doctor. Thank you
"That piece of liver grows to be a whole ass liver" is the most hilarious thing I have ever heard a doctor say, bravo Dr.
Liver does regenerate only organ that does that
surgeons can divide 1 liver and transplant for 2 patients and they both will regenerate
Oh I believed her. I just thought the way she said it was amusing. This is still amazing to me though.
oh your talking about liver..she's talking about kidneys
Thank you so much for information
PD patient in Michigan
I have to tap in on this one because I have treated at home doing Hemodialysis "flying solo" (treating alone with no assistance) for more than 2 years and it is a challenge but so much better than in-center. This of course is a subjective view but if anyone needs insight into how to make it work I am glad to offer my view.
Every doctor I have ever talked to about treating says they would treat at home, 100% of them have answered this way... just that says a lot. Do your own informal poll and see what answers you get.
A 2011 study (JR Merighi et al, Hemodialysis International) asking nephrologists what kind of dialysis they would choose if transplant wasn't readily available. 93% said they'd choose home dialysis (either peritoneal or home hemodialysis). I heard a past National Kidney Foundation president question the sanity of the 7% who didn't!
yeah but what if something goes wrong with the equipment at home???
You are trained for emergencies and you can always call your support clinic and 911 for help. I personally liked to keep a trustworthy person (informed by me about my situation and given keys) on speed dial just in case also.
Excellent response. Nothing like the expertise of personal experience.
@realkidneytalk how do you stop or at least slow down the uncontrollable diaherra that comes with either form of treatment? The Dr's keep gaslighting and saying there is no way dialysis is the cause, therefore ignoring the problem. Please help...any suggestions will be greatly appreciated. I'm so glad I found your channel. ❤
Someone will win the Nobel Prize in Medicine who figures out the reason why kidney tissue does not regenerate and heal once damaged and destroyed, and come up with a solution to that problem.
OR (and perhaps with just as much equal intensity) learn why the liver CAN do this, and maybe try to apply those tools to the kidney. ⭐️💯
Short answer: It ain’t so easy because the liver can regenerate because it has 4 cell types (1 major), while the kidney has 16 different & highly specialized cell types organized in a very specific order.
It’s not inher or the medical community best interest to explore other was to treat CKD. Cuts in to profits Dialysis centers rake in the money off of us CLD patients. Remember a patient cured is a customer lost
You are right that dialysis is big business and there are perverse incentives to keep people on dialysis. AND…many of us are working to make the system work best for patients.
Thats probably why my dialysis clinic has little incentive encouraging me to receive a transplant.
@supercaptainbatdoggy
Or, because they no there are so few kidneys available for transplant compared to the number of people that need one.
Most people die while waiting on transplant list.
Thank you for this!
I recently read an article about ketosis possibly helping to restore kidney function, it was from NIH or pubmed. I am trying intermittent fasting or actual water only fasting...Viva Cristo Rey! God does the healing!
Responded to this in my latest video, “Responds to Viewer Comments.”
My dad just died from acute kidney failure one week ago. His kidney doctor literally told me the morning he died that he would get better but that it would take about 3 months of dialysis in a nursing home for it to happen. That afternoon my dad's breathing got so bad they wanted to intubate him. I rushed to the hospital, the dialysis they'd been doing didn't do squat. His kidney function was still at zero, he wasn't eating and he wasn't urinating. And he could barely breathe. he ended up dying that evening. About a half hour before he died the kidney doctor had the audacity to come in and tell me "see, the dialysis has helped his breathing!" Needless to say all it took was one look from me for that doctor to flee the room. I don't know why it didn't work for my dad, I don't know why the kidney doctor told me he'd get better when he clearly wasn't and didn't. Everything I read said acute kidney failure was reversible and that didn't turn out to be true for my dad.
I’m sorry for your loss. Sounds like the situation was a lot more complicated than acute kidney failure. Dialysis is just artificial kidney- it can only do a portion of what normal kidneys do, and does not help real kidneys recover.
Yeah, I guess it was chronic kidney disease, not acute. He fell and was on the floor for about 3 hours and that did some damage. He was 80 years old. He also had a blockage in his liver duct that they they fixed but then the kidneys just would not regain function. His breathing got really bad and things just went downhill from there. They put him on temporary dialysis but he refused to stay on it. I think he had decided it was the end, he had suffered for so long and had had enough. Still not impressed with his kidney doctor though. He was not a good communicator. The nurses were better, they were very honest with me about his condition and that was very much appreciated. I feel like the kidney doctor was overly optimistic when I needed him to be truthful.
@@realkidneytalk
May God Continue To Bless You..Thanks Very Much For Your Advice ❤❤❤❤❤❤My Son Is Waiting For A Kidney, hes 42 & eat very healthy all his life. He have Lypus & thats why hes going to dialysis, its been 14 yrs. Im praying that he will receive a kidney real soon & live a good life ( happy) in Jesus Name Amen ❤❤❤❤😊😊
Thank you for creating this channel! If someone is older and doesn't want to take dialysis, and wants to let nature take its course; how long does it take to die and how painful is it? Thank you
Thank you
Thanks for your good info on this it helps me understand something
Thank you
God bless you DR I have chronic kidney disease stage three, Value 49 Low this means I have to take kidney dialysis?
what aboat mo treatment ? or t cell treaments i know they do them in switzerland and germany and trails here in uk ,t cell treatment seems they way to go,soo they are keeping treaments back
Doc, what's your take on the kidney project, the bio kidney?
My dads left kidney is damaged at less tgsn than 10% function. His right kidney is normal ectopic. He has been on dialisis. What other options do we have?
Do you do virtual visits?
Hi: please comment on kidney regeneration through stem cell therapy. Thanks for your channel!
What about "Stem Cells"? The USA has not "approved" of the use of umbilical cord cells for CKD, however several other countries have 60 to 75% rate in lowering the Stage from 5 to as low as 2.
Disclaimer: not everyone will achieve this level of success and many may not be a candidate for treatment with stem cells. Do the research and be ultra cautious where and how the cell injection is accomplished.
Which other countries have approved stem cell?
Would either Canada or Mexico be one of them?
U.S. citizen, (refusing dialysis and transplant), inquiring.
@@joijuaire-darfler4614 Mexico is by far the least expensive, but Sweeden and Japan lead the way in research.
There is a new non-invasive form of stem cell enhancement via suppplements, soon available, from a company called S.A.F.E., PMA. More information will be available soon as to how these supplements may enhance adult pluropotent stem cell production.
My dude got 4 stem cells not for his kidney failure, but for his foot. It didn't do anything for his kidney though he got it here in the states it was 10,000 a pop.
@@joijuaire-darfler4614 Mexico has stem cells for kidney disease protocols. Canada follow the USA. Several european countries also have protocols in place, but it is not cheap.
With Peritonial Dislysis they said I would need to have 70 boxeses of fluid to be delivered to my home... and stored in house... not a garage !!!!!! Who has space for this kind of thing.?????. I am 88 with stage 4 kidney disiese... (sp) ..... with 20% function.... This is really , really scary !!!!
That is also one of my concerns. I live alone in a small 1 bedroom apt. with very limited space.
@@renerenatorivera9062 I am in my late 70s and has been doing peritonial dialysis for almost 3 yrs now. I still have a very normal life , I go shopping and drive Whenever neede. It’s not 70 boxes. Usually it is only 15 to 17 boxes which are not that big boxes. They are heavy coz it contains 6 bags per box. So far so good , my blood work is always perfect that my Nephro and the whole team at VGH calls their star patient. I follow religiously the food advised my Dietician and everything that my Nephro tells me to do. Never smoked nor drank alcohol in my life. It was my gout meds that ruined my kidneys ..so guys be careful with painkillers. God will heal us .
Make videos on crazy/unusual stories that you lived through & saw during your residency : )
Since we have 2 kidneys, do they both “go down’ equally? If not, could one kidney compensate for the more damaged kidney?
Depends on the cause. A disease that affects the whole body (like diabetes or high blood pressure) is going to affect both kidneys.
I lost my left kidney to chronic nephritis (infections); fear was that same would happen to my right one.
Never did, but unfortunately, my left was hypoplastic (undersized).
I'm 67. My GFR is 15. I'm not on dialyasis yet ,but have recently gone through initial screening for kidney transplantPeritoneal seems more attractive to me. My big concern is the following:I own a dog , which I rescued after I'd had a stroke and was a bit depressed. He's been with me 5 years and I've grown to love him very much It would break my heart to have to get rid of him. He'll be 11 years old this month(May, 15, 2024). Adoption might be difficult for him at his age.
I have ckd and my kidney function goes up and down sometimes ending up in er the lowest was a gfr if 12 and after hospital I went up to 51 they said I had acute kidney injury
U have protein in urine?plz reply
@@dipalijagadale8097 yea
Acute kidney injury?
Or acute kidney disease?
What are your Thoughts on Farxiga in combination with Kerendia and the trials from 2022?
can plant based diet help?
A little
Im following a plant base diet and fruits. And alot exercise, I have came from GFR 5 to 9 already.
There is alot B S out on u tube, l like your style ❤
Your videos are truthful but very depressing.
People already know what you say. We need news about recent developments not old news.
Do they? I think most are driven by fear with few facts. I’m here to provide facts. Agree the content is sad-there’s no way to paint organs dying as rainbows & cotton candy. I’ll do a video about the “latest developments” soon, but it’s interesting to me how people are eager for artificial kidneys etc not realizing what that would entail-like major surgery.
Most people here either are nearing or on dialysis, meaning they most likely have a nephrologist and are aware of this basic info.
I agree with original comment, that many are here for most current info on newest research and treatments.
Exactly she just want views ..there is artificial kidney coming up soon for dialysis people ..but don’t know if this medical field will help release
@@realkidneytalk I'm actually not afraid of major surgery since I've already been through it! I don't want to give through it again, but if it meant a kidney or even an artificial one, I'd do it! I'm at stage 3b to 4. It fluctuates. I'm 100 lbs overweight with high blood pressure, medically controlled, and type 2 diabetes, also medically controlled! I want to lose weight and I'm going to try my best to do that! What's your thoughts on the pig kidney transplant?
Sis belive me only way to restore kidney function is purely vegan diet... I am in vegan since 2020 and my creatinine level falls from 2.3 to 1.0...and i am feeling better every day
“Bruh”- Good for you! I talked about vegan diet in my “what do I need to eat to protect my kidneys” video. Agree that vegan diet is helpful for folks with a lot of protein in their urine. But there is such a thing as “irreversible kidney damage” (aka end-stage kidney disease) that no diet can change.
In how much time your creatinine level start Reducing
could you explain more?
@@ManishChauhan-zj7mu within first month of diet bro
@@fordharrison2649 I just eat raw diet fruits and vegetable.. No packaging food and animal product including diary... Dinner finished between 7pm..and a gap of 16 hrs between dinner and breakfast
This is just your opinion, right? You don't have all the facts. The medical community might be keeping something away from patients. They're not all here to save lives, sometimes is about profit.
Umm…I’m a board-certified nephrologist and could be making near 7 figures in private practice. Instead I do this for free because I want to provide accurate, accessible information. But…feel free to believe conspiracy theorists. 🤷🏽♀️
I know all the facts now
Can you be eligible for PD with a history of abdominal surgeries??
So I missed on how you may get kidney function again? Through dialysis? That’s not encouraging at all
My encouragement is through making decisions based upon realities not hoping against hope.
For me, it just sounds like my purpose in this world will no longer be valid. If the good Lord says it's my time ... I'm ready.
So... I wait... Getting affairs in order.
*Also, FULL united healthcare doesnt care. It seems.
Doctor wehen every nephrologist says, once the kidney is demaged can't resotore again? Any any answer please