HORMONE THERAPY and Prostate Cancer: My Experience with Fatigue
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- Опубликовано: 7 сен 2024
- Hi
some thoughts about fatigue and how it effects me.
Thank you for watching this video, I’ve been making these videos as a vlog sharing my journey through Advanced Metastatic Prostate Cancer.
My world literally fell apart on Sept 15th 2021 when I was diagnosed with Advanced Prostate Cancer which according to my Oncologist is incurable (although ive never accepted that) Questions such as how long have I got left how bad is it , in fact, a whole host of frightening thoughts, where sudennly swarming around my mind and exploding at opportune moments when I felt most vulnerable.
If i were to be honest, I was lost and lonely to begin with. People don’t know how to deal with someone who has stage four cancer. It’s a taboo subject. I honestly didn’t know who to turn to for help. It can be a dark place and I only wish I could of found a channel such as this to help me through those early days.
I started writing a blog whilst I was in hospital and recovering at home after the initial treatment phase.
I then decided to make this vlog because it seemed a better way to get my story out there. I want to provide a channel where I would continue telling my story for as long as I can and invite comments from others that can also help and share their own experiences.
Cancer can be a lonely place, and I hope this channel will help someone else who may be a bit lost and feel alone whilst dealing with their own diagnosis and experience.
Nothing is ever as bad as you think it will be, and that seems to the case so far with my experience with Prostate Cancer.
Thank you for watching. Please comment and subscribe if you feel like it, and please share the videos with anyone you think may find them helpful
Woody ❤️
Who better to learn from and trust than someone living and experiencing it? Keep up the wonderful work that you do.
Thanks thats really kind I'm so pleased these videos help others.
Your words are a great help. My husband is a man of few words, bottles things up. He doesn't like to get upset in front of me, and vice versa.He always says he's fine but I know he's not and is struggling at times. He wouldn't go to or join any groups, he gets up in the night sometimes and just sits in the chair. He knows I'm there for him, I don't know what else I can do 😔
I’m a newly diagnosed sufferer of aggressive PC.
Your video was an inspiration and I admire you for opening your heart, in order to help others: Thankyou.
You are very welcome Clive I wish you the best on your journey keep positive as much as possible
Thanks Woody
Been on adt for two years. Had a little fatigue but not too much. Now having a break from adt to see how things go. Been off of it now for three months. Some improvement in energy. Still getting hot flushes. I think it’s important to stay over all your test results as there are a lot of treatments available if your cancer progresses. We’re in this boat together. Crossing over despite the storms. 🙏 God bless. Harry.
Thank you Harry, good luck with the break from ADT
Fatigue is a big, big problem to me, being on testosteron zero for some years without holiday.
God bless us all.
You’re doctor can give you something to help with the hot flashes, Iv been on Lupron for four years and don’t have hardly any
@@rogerembry4777 Do you get anxiety attacks at all?
Thanks brother for your videos, also struggling with side effects. Hard to explain to people since I don’t look sick on the outside. Stay strong and know you’re in my prayers.
I am dealing with the very same issues that you are. I have stage 4 prostate cancer. And yes the fatigue is overwhelming at times. I am on chemotherapy and lupron and a drug called ubequa. Remember to keep going, never give up. You inspire us all, keep going.
Thank you for your updates.
@@conehead44534453 thank you
@@michaelmottice8455 thank you very much
I will never forget the doctor who told me to get ready for death. Four months later I ran the 100th running of the Boston marathon in 1996. He told that only riding a bicycle raises the psa. The psa test is very inaccurate.
Good look in progressive movements!
I forgot to say that as a young adult doctors told me I bad blood pressure. After that I started using my fathers blood pressure machine and it was incredibly lower than at a doctors office!
Get better!
That's encouraging thank you
Woody,
Thanks for this. When I look at the side effects of all the treatments that I am on ( ADT, Radio) fatigue is number one on the list. The way that I deal with it is exercise. It really works for me in so many ways with this condition ( stage 4 diagnosed 7 months ago). I try to get on the bike every day. For my 40 minutes commute to work and at weekends on Saturday and Sunday. Mentally it is great and it nails the fatigue ( OK I get sore legs but that is quite nice) . I also think it helps my body fight this - I am “throwing the kitchen sink” at mine and this is an easy ( and pleasurable) hit for me!
Such a positive post. I believe you are right that exercise is the way to beat fatigue. I always feel it's a struggle to do exercise like walking but when I actually do it I can really feel the benefit. It's the couch to the door that's the hard bit, once the front door is open it's great 😃
Fatigue is really big problem, walking helps, moving helps.
Thank you for sharing your thoughts and experience
Keep smiling 😃, you are also helping other people in this life, I think I am healthy but fatigue taken me over Sleeping during day, I have started painting my house 5 months ago and just can't get round or unwilling to continue painting, but listening to you gives me hope
It's so tough at times just doing the things around the house that were once so easy.
I don't people really understand the impact of cancer fatigue.
Starting my adt next week then radiotherapy in a couple of months it's good to talk to other men going through the same thing. Well done for having the strength to do the videos top man👍
Hang in there buddy, if it wasn’t for my faith in GOD I’m not sure I could have made it this far, going on 10 years
10 years is amazing here’s to another 10 at least 🙏
I'm glad you're sounding better...I worried for you. I belive your resiliency is on a rebound. People don't mention that maintaining resiliency take a great deal of energy to maintain. Blessings.
You are so right , it's important we maintain as much energy as possible in this fight.
Hi. Im in PC 4. For about 2 years.
My Psa was 280. With metastatic points. I did chemo. I m in zytiga now ..
Fatigue isn't easy. But i try to fight.
I walk 5 km every day and 3 times a week workout. If u look me. Its just like a very oldman trying to do something lol.
I just fight. Maibe 1 moth be a 1 weekl less in the bed in the future.
I fight to have some more days . Its just i can have.
God bless u
You are doing amazing walking 5km a day and working out that's got to be tough.
Keep fighting 💪
I've stayed very active to try to beat the side effects of ADT therapy but must admit I'm feeling tired and go to bed early. I'm looking forward to getting some strength back when this ends. Best wishes to you and thank you for your postings which are very helpful.
Thank you, good luck to you going forward
Does it ever end 🤔
@@rogerembry4777 I'm in a prostate support group and there are people at all different stages. Its very helpful to bear the discomfort because there are people to compare with. Its not easy but keep doing what you can and don't stop moving.
Keep fighting and stay strong
Thank you
I am also going through this and feel fatigue is hard to live with. I start radiotherapy in march and i look at this as way to better days, the financia side of this is also a worry but when isn't it. I wish well better days to come.
Happy to see your improved mood and attitude. I understand and share your feelings about fatigue from our treatment. I, and I am sure many of us, experience the same fatigue, and the feeling of being lazy. Consider taking an anti depressant drug, Effexor, which my doc prescribed for hot flashes. You might benefit from that in both areas. I have no good answer for fatigue however, as it kicks my ass routinely.
The hot flushes seem to be getting better which is improving my mood somewhat.
The fatigue I'm determined to fight
Woody, I appreciate your videos. If dealing with fatigue perhaps you can ask your doctor about a prescription of Adderall or Dexedrine. It’s helped me not only with fatigue but, with my mood and motivation as well.
Adderall can bring some not good side effects, emotional detachment.. so it is written.
Understood and explained by my doctor but, for me there are no negative side effects and has reversed my fatigue and elevated my motivation. I’ve tried several stimulants and found Dexedrine to work best. You can always discontinue
Sounds like a really good idea, I will see what they say
Fatigue is hard to deal with. It makes me feel like I can't do a lot of what I used to. I fight through it and push to do a lot. At least I get a feeling of accomplishment when I do get things done
Hormonal castration bring fatigue to body of men. Those who stopped anti-testosterone therapy report that they started new life full of youthfull energy, determination and action.
Woody.hello its your friend from the states.glad to hear your not given in.im still praying and expecting to hear some good news.stay positive and know i got your back.i do believe the lord does miracles.
Thanks Joseph thats kind of you
If I stop it will kill me quickly.
I have a very aggressive form of the disease and the ADT is holding it at bay.
I can put up with a bit of fatigue if it means I get to see my girls grow a few years older.
Mike it's tough, it's almost a case of mind over matter.
Keep pushing on my friend 💪
Thanks Keith
Let us know how you get on with The Hope initiative
Definitely something i would be interested in.
Take care mate
Gary I most definitely will.
I will share all I learn if I think it helps
Been on Lupron for 4 years, the fatigue is crazy, can work out because of a broken back and can’t walk because of bad ankles and hips 🤷♂️
Are those bad ankles and hips caused by the meds
@@Livingwith-prostatecancer hips I think are, ankles are just worn out
@@rogerembry4777 that’s tough, my hips are starting to get painful just recently .
Woody, I went out with a friend last night but fatigue took some of the fun out of it. Woody, I am thinking of having a holiday from ADT after 3 years. Try to keep positive.
That would be interesting, I've heard others who have taken a break.
I'm not sure I can my oncologist says it's too aggressive and I can't let it get the foot back in the door again
@@Livingwith-prostatecancer As my PSA is currently undetectable I am taking the risk but if PSA goes up I will have a PSMAPet Scan & go back on ADT.
@@Livingwith-prostatecancer Woody, did you do chemotherapy as well?
Keep up the good fight buddy!
🙏🏿
Glasgow University is adding Mebendazole to Docetaxel. Do you know why.
Just to cut down sugar supply to mitochondria of cancer cells
@@epc123456 The original research on either Ivermectin iirc, or it could have been fenbendazole, (Now mebendazole is the go to) done by India list at least a dozen different ways these substances block cancer cells, it goes MUCH further than sugar.
Its no fun don't know how much more I can take just about done theres no help
I’m sorry @hardheadjoe I didn’t see this comment, although it’s been a while since you made the comment how are you doing ?
@Livingwith-prostatecancer I live in Newfoundland there is no doctors
I know the pain ,home made stuff helps just take time can't set at kitchen table to much pain
How come you have no doctors is that because of medical insurance reasons , nobody should be left to suffer
G’day from Australia
I’ve just been diagnosed with PC
My PET scan which highlights cancer showed my prostate lit up like a blood moon,filled to the walls & a spot in a vertebrae in my neck
So my hope of benign enlarged prostate didn’t last long
At 57 yrs old it had never at any time occurred to me to get it checked years ago ‘What a tool’
20 yrs ago I was even involved in charity events to raise $$ for research
I’m so pissed at myself for not thinking to watch it as I got older
It frustrates me as I may have avoided it being so bad & therefore requiring the bloody horrid treatment that I’m about to undergo
It’s only been 2 days since the urologist appointment and 12 months since I first had any symptoms
Merry Xmas Woody
Regards Buck
Merry Christmas Buck, good luck and please keep us informed on how things are going at least it sounds it's local and not metastatic which is a small blessing.🎅🙏
What was your psa upon first diagnosis?
@@schmingusss I don’t remember my symptoms were so bad & prostate so large I got a biopsy