My experience with radiation therapy
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- Опубликовано: 28 май 2019
- Yay! Brain tumors. Plus I make a lamp. May 30th is the 1 year anniversary of my surgery, so currently accepting brain shaped piñatas.
NEW MERCH ALERT! I have added a bunch of stuff to my store: teespring.com/stores/simone-g...
Thanks to my freeeens who drove me to my appointments. And to everybody on Patreon for helping me get through this period of not-a-whole-lot of work and a whole load of health problems.
Have gotten a lot of questions about the "outer space is closer than Antarctica" print. It is made by the amazing Michelle Ott who lent a print of it to us: michelleott.com/
👇 places where I post things 👇
TWITTER: / simonegiertz
FACEBOOK: / simonegiertz
INSTAGRAM: / simonegiertz
PATREON: / simonegiertz
MUSIC CREDIT
Electrodoodle by Kevin MacLeod is licensed under a Creative Commons Attribution license (creativecommons.org/licenses/...)
Source: incompetech.com/music/royalty-...
Artist: incompetech.com/ 
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Just imagine the conversation this "conversation starter" will start:
- "Hey that's a cool lamp, where did you get it?"
- "I had a brain tumor"
- "..."
that would be a "great" conversation.
Oh that’s cool... *hol up*
Don’t be a dick lol I also have had a brain tumor and needed brain surgery so it’s like it’s your choice meds or brain surgery, she probably feels more better now though since her surgery I would say “Give me the name of 1 surgeon of the many you have had working on you. Because my surgery I’m still recovering 25 months since I had it so anyways I’m trying to say that it’s tough to recover after you’ve had the kind of surgery that we’ve been through but worth it because in the end we will be not only recovered, but stronger from having the surgery
Ben Jeck ruclips.net/video/Rzksry49xCA/видео.html
@@chadredmon7364 huh
"For the last three weeks I've been tripping balls on Alzheimer's medicine." --SImone Giertz, 2019
Ya but that constipation is a real buzz kill.
I legitimately cackled when she said that.
TBA&M dropped their first album last week. It hit the charts with a bullet...A bullet.
Put it on a T-shirt and I'll be the first one to buy it!
@@nhreef Nah... Just wash them down with some prune juice. ;)
The story about your friends taking you to radiation therapy had me in tears.
Damn onion cutting ninjas in here
INSTANTLY! Super crazy
Holy crap, same. I have only just discovered this channel and yeah... instantly teary.
Got something in both eyes. Man... that message hit me right in the feels...
Same here
Thanks for your openness about this topic!
In medical physics internships I calibrated these electron accelerators. The purpose of all the moving around and the fixation mask is to concentrate as much of the radiation as possible on just the tumor by radiating from different angles onto the exact same spot (thus giving high radiation doses on the tumor and low on other tissue, especially vulnerable tissue). So the radiation beam is shaped differently from every angle and a computer calculates the dose from each angle in order to optimize this.
This works better as fast-growing tumor cells die faster than slower-growing healthy tissue.
As a med. physicist in 1970 I had to plan treatments with gamma rays from Cobalt 60. The doctor would draw an outline of the head on paper, then draw where he thought the tumour was. I was limited to two fixed beams of variable width and had to plan what width for each and at what angles they had to be placed to maximise the tumour dose. All done with stencils, pencil and paper. The modern tech. is phenomenal in comparison.
Yea, having my strong physics background, I was talking to the folks giving me my treatment today, and they showed me the console display. I don't know how well it turned out, as I have not looked at the video yet... but later this week, I may get them to show me again if did not turn out well. The folks at UVA are so great about all this!!! (and far better than the folks I had when I was being treated for a different form of cancer when I was 11).
This is incredible! Medical technology never ceases to amaze me and thank you so much for whatever part you have to play in it!
@@cinnion WOW !!!! You are a real fighter!! Cancer at 11 years of age must have been very scary for you and your family. I had stage 4 prostrate cancer, went through Radiation Therapy and so far all is good. I couldn't even imagine having cancer at 11 years of age. And now you are fighting it again, you Rock man!! Keep up the good fight.
Thank you for explaining this. It, and Simone's videos are helping me be less afraid about what's coming ahead of me. ❤
Your transparency and authenticity is needed on a global scale. Thank you for sharing your heart with us.
Tendi foi nada
Authenticity yes, transparency not really. You don't need to spread your life for everyone to see/hear.
Yes!
anonymous anonymous That’s not transparency. That’s oversharing. I’m a transparent person but I don’t run around telling everyone everything. It’s just - I have no secrets. In conversation, I’m fine with revealing sensitive information, and I will answer your questions. That sort of thing.
I think she is more of an extrovert than I am though
It's the super power that she had all along.
"i did not get any superpowers" Totally sounds like someone that got superpowers would say. Just saying.
Also its awesome to see you back and making stuff! That lamp was amazing,
I would argue being able to resume what you love to do 2 months after radiation treatment for a brain tumor, after having a sizable portion of your brain scooped out with the tumor, a superpower of its own!
@@MatthewSmith-sz1yq b
Chemo has gotten rid of my immune system. Hopefully it gets rid of the cancer next
Fingers crossed!! Gute Besserung
Hey, you still here? Hope your better!
@@hsmacaraig no response. uh oh.
ah, chemo. a fever on steroids. losing patients to hoping the drugs kill the cancer before they kill you since the 1940s
Hope your doing better
Thank you for making this- and sharing! I still have my rads mask from 2005- I had cancer in my teens. I remember teasing my radiation nurses that they could have made a better living as S& M dominatrixes, bolting masked people to a table naked and giving them tattoos. ( I got 7 dot shaped tattoos as guide points.) I had to joke because it was such a rough process- I had upper and lower mantle radiation and it made me so ill for so long. So much more draining and difficult than chemotherapy. I also remember asking my doctor after a session “ what smells like microwaved chicken nuggets in here?” And he said... you. XD
Life can be quite hard for people like us. I too was diagnosed with cancer (stage 2) i got the chemo version and whenever they injected the medicine the blood vessels hurts so bad that your whole body starts to feel . Anyways what i want to say is that it's hard to start a normal life again even after you're diagnosed/kinda healed .
Tripping balls on Alzheimer's medicine is a pretty good name for a funk band
Punk *
T.P.O.A.M for short, might be a rock band after all 🤔
Burn my brain tissues- the first single
@@lanatsif T."P".O.A.M. ? Tripping "palls" [...]?
It's a pretty good name for any band, imho.
Today I learned:
•how to make weird art
•to dare to ask for help
•Antarctica is further away than space
So true. xD
*eat fiber
Me too and how to say 40 in French 😊
The capitol of my state is further than space.
@@anacarranzagzz5430Already knew it, because I'm FRENCH !
Mouahahahahah !
snails.
When I watched this the first time it seemed so far away from my life. 2 months later I had a diagnosis... And now, watching it again, in 3 days I finish the last of my radiation treatment. It just stuns me how different this video feels to me now.
So grateful for people that help. So grateful for people sharing their stories. Thank you Simone!
How are you doing now? I hope you’re well.
"i've just been tripping balls on alzheimer's medicine"...
my nose is still stinging from spitting me tea through it...
love you lots!
"didnt get any super-powers out of it"
Implying you didnt already have super-powers
Also, that lamp is terrifying
It's a bit like freaky friday just with colors.
"I've been tripping balls on Alzheimer's medicine" - Simone Giertz, 2019
Sage Rocket for 3 weeks
Once you go back you never come back, oh... what is this? Once you go back you never come back, oh... what is this...
Memantine is a hell of drug
My dad was recently diagnosed with cancer. And he’s been having such a rough time. His isn’t even terminal, and he just wants to give up all of the time. So yes, it’s very sad.
Brittney Newton many of us will get cancer in our lifetimes. it is just a part of aging...our cells are constantly exposed to damage, and sometimes a few cells slip through the checks and balances and run rampant. i hope your dad is doing okay.
"It's a girl with a brain tumor" is one of the darkest and best jokes I have ever heard.
Its been a long time since I laughed this hard. Kudos Simone!
Thanks Simone for making cancer and radiation therapy less of a taboo thing.
Best of luck to you. You look great!
@@Reelix people try to not talk about cancer and radiation therapy. It's seen as a topic that's too shocking to just discuss
@@Reelix - They are reminders of our mortality.
@@christines3638 Yeah. That also reminds me of the death positivity movement and how it aims to help people have healthier and candid discussions about death. It can help make the grieving process more manageable and less isolating.
Stuff like how it's a good idea to think of advance directives and end-of-life arrangements while you're still alive/well and discuss that with those close to you. Because without said discussion - their guesses on what you want is often only as good as a stranger's. They may not know that you /don't/ want to bankrupt them with fancy funeral packages or unnecessary medical expenses.
As well as it being a good idea to be [compassionately] honest to children if someone they know and cares about dies.
It's a reminder that it's possible to just randomly get a life threatening illness and there's nothing you can do to prevent it. That thought terrifies me, that even perfectly healthy people can just get sick and die for no reason other than our body randomly fucking up and creating a cancerous cell that then spreads. I could get cancer, the people I love could get cancer, literally anyone can get cancer and no one can prevent it, and that's really scary to me. The best we can do is just get checked by the doctor often, especially if you have family history of cancer (In the future I'll have to get checked regularly for ovarian cancer because my aunt died of it), and just catch it early and kill it if you do get it.
That said, it should be talked about way more. People always seem (understandably) grim when talking about cancer, but we really have to cope with these things better. Coincidentally, I heard that laughter actually helps the cancer fighting cells in our bodies, so maybe we should laugh more? I don't know if that's true, but it's not like it could hurt. Depression isn't good for your health on it's own, so it definitely wouldn't help to have cancer and be depressed.
She has cancer?
"Dared to ask for help and dared to let people help me"
I love that
Andrea Boots I work in end of life care, and it’s truly incredible how many of my patients are unable to let go and be comfortable with asking for or accepting the help they need. The line I’ve used over and over to great effect is, “you’ve taken care of people your whole life, now it’s time to let us take care of you.” If it’s that hard for people in their 80s, 90s, even 100s, it’s so much harder for the young and vital. In short, it really is daring to flout the societal value of self reliance, even when self reliance isn’t a viable option.
I mean, I agree with you. I love that quote, too
I've been dealing with anxiety and depression the past few months. I haven't been so emotionally affected by a video until this video. I'm out of words. Your strength and bravery and smile and confidence in yourself and vulnerability is so powerful. Thank you for this video.
Hey try cbd oil. I have shakes that affect my whole body and it makes them go away - although I live in Australia with a dick at the head of our country so I have to smuggle it in. But if you can find it? Give it a go. Rock on little trooper!!
Actually you know what? Let's just rock our worlds like we don't care. Get out there little buddy and dance your way through your day. After all we all ending up in ground one day and we all idiots at heart. Celebrate your weirdness like a boss. I do. Cause I figure I have nothing to lose. Rock on little trooper.
Simone is a poor role model for you!
Faroskalin Simone is a horrible role model for you!
Honestly I took a lot of comfort out of her talking about daring to ask for help. Maybe mental illness isn't seen as serious as a brain tumor but it's still your brain being messed up. And it takes great strength to know that you need help and ask for it. Anyway, hope you're doing a bit better 3 years on.
I will soon start my 30 days journey. Every time I feel I can't do it I watch this video again. Thank you.
"Elegant" really equates to "lots of editing"
😂
I'm still not sure what I'm going to do with my radiotherapy mask. Next time I see my oncologist I'm going to try to get a copy of my brain scan so I can 3d print it in glow in the dark green and put it in the mask.
And put it on the top of the tree come Xmas.
If I live that long.
Best wishes for a long life ❤
marsupialdungbucket sorry hear about your situation praying for you and maybe you should make RUclips channel and give updates.
I need to see this. 😆
@@kajsamelen If/when it happens I'll post a link here :-)
@@annomaly751 Thank you, but a RUclips channel is probably not a good idea. Since the cancer diagnosis my sense of humour has turned very dark. For instance the theme song for my chemo treatments was this: ruclips.net/video/dfmhoA0x0ss/видео.html. I listened on headphones but it was hard not to sing along sometimes...
@Simone, idea: 3D print some kind of a brain and you can position it inside the head. Then that will have a nice 3D brain shadow as the LEDs light up.
It'd be super morbid, but you could probably model something from the CT scan.
You'd have to cut open the epoxy base to insert the brain then redo it somehow, and figure out how to attach the brain.
@@Ratchet4647 I thought there's enough opening left at the neck portion. I can imagine 3D printing 2 parts, then inserting it through the neck opening and glueing it together while inside. Then the only question is how it'll hover. Is magnetic levitation applicable in case the brain has some magnetisable metal mesh?
> I did not go alone a single time
I'm crying. Goddamn it, Simone.
This is such a perfect balance of positivity, raw honesty, and the usual silliness we know and love
Girl, you've made a grown man cry into his Lunchable. I'm so glad you're feeling better and that you've gotten through this challenge with such a strong support system.
Okay, I'm gonna go tell my friends I appreciate them. Love you, Simone!
Unsure which to feel more strongly about, the crying or the eating of Lunchables by a "grown man". 😁
@@Tw3akst3r the great thing about being a grown ass adult is that you can buy your own Lunchables, any time you want. It's great. :D
@@Rosibean You make a VERY good point!
@@Tw3akst3r Lunchables... Hands down. I mean it takes no more than 5 minutes to just make a couple of sandwiches... and you get to put whatever you want on those. I'm a make a big pot on Sun for the week kinda guy... sandwiches and hotdogs mixed in throughout the week.
@@cavv0667 I just always felt there wasn't enough there, I'm 125lbs but I can put away a pretty large amount of food in a sitting and unless I'm eating about, (probably all) of it at once it just won't suffice.
The story about your friends taking you to the hospital is so beautiful, I'm so happy that they were there for you during your treatment. Every few weeks I have to have an IV of medicine and I'm always so touched when my friends offer to come and sit with me during it :)
In 2020, my dad had a cancerous brain tumor removed from his frontal lobe. Due to the type of tumor, there was never any chance of recovery and due to the location, he could never really find the words to explain the process of the (futile) radiation he went through to help prevent regrowth. But I remember one day when he showed me his radiation helmet they'd let him keep and I'd forgotten about it until stumbling across this video. He's been gone for over a year, but it's kind of nice in a way to hear more about what his experience was since he couldn't describe it himself. Thanks, Simone.
All along the real superpower was the friendship and bonding on the way to hospital.
People don't need genetic mutations to fight the evil of the world; they need friends to support and get support from.
The positive side is, it leaves you with a glowing complexion.
Positively Radiant!
Alonzo Branson great comment 5/5 stars😂😂
5/7 great comment
Not too bad, not too great either
@@MisterMooo I understood that reference
I've never seen you before today. I appreciate your Honesty and transparency but on top of that, your over all personality and way you carry yourself. I look forward to looking back on your previous AND future content!
Apparently, your comment was 9 months ago. I was literally thinking the exact same thing today. I finally stumbled across Simone's channel today (4/10/2020 Coronavirus stay at home like a good little sheep nonsense, but I digress). I've been watching her content on and off all day, and I keep coming back for more. Simone is a walking, talking ray of sunshine. Funny, smart, and your buddy's kid sister kind of hot. Can't get enough.
@@Str8Raiser Oh dude, she's totally hot! Girl next door has always been my favorite look 😂
I lost my shit at "It's a girl with a brain tumor!" 😂😂 5:56
Simone-2 Brian-0 Good luck and may life be less stressful from now on.
Brian is the worst!
@@atriyakoller136 r/whoooosh
I hope this means Brian has successfully been burned!
All the best for you, Simone. You bring us so much joy. 💛
"The best thing about my radiation treatment... I'm so happy that I dared to ask people for help" I would bet that is probably second best after not having a brain tumor and dying from cancer. But also congrats on making it through, and glad you have the support you need.
From a TBI survivor. I realise this is an older vid but I only discovered your channel several months ago. Just wanted to say that you, me and many thousands of others who have recovered from a potentially fatal thing/condition, do have a super power. We have the ability to appreciate all the good and amazing things about life and know how to live it to the full.
I fix those machines! You'll be happy to know that the TrueBeam you were treated on is state of the art and the absolute best option you could have been treated with.
Thank you for doing the work you do. Keeping these machines functional saves lives. Also, how did you get into that career? And do you get exposed to any radiation?
@@Leroset I spent 5 years in the US Navy working on submarines. When I got out I put my resume online, and the company found me and trained me how to fix their machines.
There is some minor radiation exposure, but nothing too extreme. The machine is a linear particle accelerator that creates a megavolt x-ray through coincident pulses of an electron gun and a RF amplifier. When the machine is turned off it isn't radioactive except for a couple of isolated components that cool off in about 18 hours and are easily avoided.
That is so cool! What’s a small world! Thank you for saving lives and for your service😁
@@theflava oh that's funny. I almost went into that job while in the Navy, but went into subs instead.
"a linear particle accelerator that creates a megavolt x-ray through coincident pulses of an electron gun and a RF amplifier" Coincident pulses, (nodding head), I totally understood this sentence.
Haha love it! Glad the treatment is completed, hopefully it worked. Those side effects wow; I don’t think I could survive not being able to taste salt.
Hey I just had an idea! (Hence the edited comment) what if I made a charred “Brian” and sent it to you? Could maybe go well with the sculpture?
Shame she never asked you to do it. You'd rig something up from all that uranium ore
The Virtual Scotsman actually my x-ray gun probably has just as much power as the machine they used on her. Not sure if the beam would be right though.
Cody'sLab Cody who are you kidding it will be your next video lol
not being able to taste salt would really suck
@@theCodyReeder I'm on the same reply thread as Cody'sLab!! :D Btw, Simone, I admire how honest you are about the treatment. You da bomb!
I know it's years later but I really appreciate you sharing this and about your I guess struggle to ask for help? It's so great seeing so many ppl in the comments saying you helped them when they were dealing with cancer as well. I'm the kind of person that also would not ask friends for help b/c I technically don't need it, and I feel like hearing you talk about it can speak to a lot of ppl- something you have a gift for. Also I definitely teared up hearing about Scott helping make a schedule of all your friends- I don't know how you weren't crying the whole episode.
I feel you so much on the asking for help. I had bacterial meningitis that really messed me up 10 years ago. I was 29. So for 10 years I have been kinda shutoff to the world and all my friends and family. I don't know how to get out of it even when people offer.
Two months ago we bought a bus to turn into a skoolie. I want to get out of this bed and see the country!
However my husband works a ton and again I get weak easily.
We have made slow progress. I started watching your channel to get me motivated watching an amazing woman build amazing things.
Now you have given me new motivation to accept help and or don't be afraid to ask for it. Hopefully that will help us get this build going. Thanks for the inspiration ❤ peace, love and well wishes for good health being sent your way xo
Yep, asking for help,. Same for me. Funny how the hospital always seems to be the vehicle for getting people that can't ask for help, to be forced to ask for help. It couldn't be a coincidence could it?
@@Maxid1 sorry for such a long post. Just really wanted to try to let you know I hear you and can empathize.
@@illbeyourstumbleine One of the things I learned in addition to the importance of asking for help was the opposite of what I needed: When the IV drip is on the other foot: If there's someone in need, don't offer help, give it. Most people are like us, we don't want to impose (dig into that feeling deep enough and you'll find it's veiled pride). If someone is serious about offering help, pick a thing to do and do it. If there's something after that, do that too..Keep doing what they need until they don't need it anymore. Or don't offer in the first place if you're just saying it to be nice. They don't need nice, they need help. From watching people help others I've found that most people only want to do one thing (or nothing at all), not stick till the end. I know who my real friends are, and can help the ones that weren't in a way I wouldn't have been able to do before.
@@Maxid1 everything you said is so true and on point. The pride, the not asking and just doing. Amazing and insightful. You are a beautiful soul.
Last year they told me I had cancer and I tought about you, the way you are dealing with it and it helped me so much. I went trough a lot of chemo therapie and they had to remove my knee (because of a aggressive bone tumor) so now I have a prosthetic knee. So.... I am now a shitty cyborg and you got a shitty lamp.
(Btw I’m cured now but as you said I’m also still dealing with the side effects and my mental state)
That sounds hella spooky. Hope you're doing alright 💚
Hey Cindy, not sure if it helps at all, but know that there is a person whom you've never talked with before, but he wishes you a quick recovery and a cancer free, long and happy life!
Hugs and more hugs. :)
Merloo that’s sweet, thank you ;)
Cindy Schroer awe. i hope you’re feeling okay. 💗
@@cindyschroer9233 Aww please do tell how are you feeling and are you entirely clean of it?
Love you Simone! You're such an inspiration for so many people!
Your next t-shirt should say "rad-hard tested, no SEUs"
(for those not in aerospace: radiation hardening are techniques to build hardware that can be flown in high radiation areas such as outer space. SEUs are Single Event Upsets, non permanent and recoverable damage to a component)
I had 6 months of chemotherapy at 23 for stage 4 Hodgkins so I can completely sympathise with what you had to go through with radiation, I never had radiation but from what I’ve heard they’re equally as shitty as each other! So glad you’re doing well and I love your channel, just subscribed 👌🏻
Had 6 months chemo and radiation for hodgkins too! I mean not that it's a good thing for either of us but it's always interesting to hear someone who went through the same thing. Hope your health is better now.
Thank you for your transparency in how shit it really is to have the condition you are currently dealing with. But also thank you for continuing to make bomb content. Respect👊🏻
Maybe the best super power was friendship all along...
My little pony was right !
“i dared to ask for help, and dared to let people help me” woof i needed to hear that… something i’m working on! thanks for being a good influence :)
I was just told that my tumor (same type) has grown. Thank you for making the process less scary. And letting me see there is life on the other side! ❤❤❤
I pray that you'll fully recover from every health issue and live a strong healthy life. Love ya
She has the holy spirit and God loves her.
Amen to that. Simone is amazing and the world needs people like her. :)
Best. Ad. Ever.
Hey. Im in a tree.
I. Know. Right. 😍😍😍.
Simone could be the next "Old Spice Guy". :)
I'm staring down two major surgeries on top of each other and I really needed to watch this today. Thank you so much for sharing part of your experience.
my mum used to work in radiation therapy and one of the bittersweet stories she came home with was that one of her patients had family in another country and they wanted to help as much as they could. so since they couldn’t be there to drive the patient, the family gifted them an uber voucher to help with uber/taxi fees to and from the hospital which was sweet in the shitty situation
It broke my heart seeing you cry 😢
.... even though crying is TOTALLY ok.
"Trippin' Balls on Alzheimer Meds" should be the name of your Rock Band!!!
TBA&M cut an album last week.
Where you been?
Went number one on the UK charts with a bullet.... A bullet.
i can definitely tell you this isnt 'shitty art". a lot of art grows out of adversity and making something beautiful about bad situations and exploring your feelings on a topic in a way that is aesthetically pleasing. This is exactly that! it explores your feelings on your radiation treatment in a way that is both functional and beautiful! I adore your work and your personality, don't be so hard on yourself!
I have colon cancer, have had two major abdominal surgeries to remove a baseball-sized tumor in 2016 and finally the remainder of my large intestine (colon) in 2017, and have been through two 6-month stints of chemotherapy. Although I didn't go through radiation therapy and I don't have a brain tumor, I completely understand the weird side effects, as I still feel some of the effects from the first chemo go-around! I LOVE your sense of humor (we joke a lot about my cancer), your sentiment, and especially your perseverance in getting through this and understanding that sometimes you need help, even when you are such an independent person. I honestly could not have gotten through all I went through by myself; my family has been there for me all the way, especially my wife and two young boys who have been nothing short of amazing! Keep on keepin' on!!
I had the same kind of experience last december where i was hospitalized with a pretty huge tumor at the back between my 2 brain halfes. After a month in the hospital and 4 surgeries on taking 8 hours they removed the whole tumor. Afterwards i needed to go to 30 radiation sessions and i also still have the mask! I also openly talk about the situation and it really helps to see another individual be so open about this.
Allot of strength to you!!!
Hope you're doing well now 😊
I have had a similar experience being a living organ donor, telling others the importants of donating organs when we die, and of being a living donor for, organs, blood platelets, blood, etc, as well makes me feel like I am having an impact on others.
Same here after 3 year again niw readation thrypy nex week .can u tell me how u feeling how is expernce. Did side affict or not please
“Michael Myers?”
“...Austin POWERS?”
OH BEHAVE!
Baby Driver!!!!!!!
That is exactly what I thought when someone first said that to me!! XD
Someone is old enough to remember The Spy Who Shagged me but not old enough to remember Halloween.
@@IRex-wm9pd I dunno, it's been almost twenty years since the last Austin Powers film and they made a Halloween sequel last year.
"For these last three weeks I've just been tripping balls on alzheimers medicine."
A great video that gives me a few ideas for my masks. My last radiation treatment out the kibosh on my already screwed up short term memory. I’m going to be putting together some sort of long hike/camping tour to help raise awareness for brain tumors.
Aww, the real superpowers were the friends she made along the way.
Also the power to trip on Alzheimer's medicine.
EffinStephen 🤣 ❤️ Thank you
glad youre feeling better.
i missed you.
welcome back.
you are amazing.
Пусть поправляется и чтобы всё у неё было хорошо.
What?!
Роман Рыжаков what?
I’ve only started watching your videos for like 30 minutes, basically all your brain tumour videos. And when you started counting in Swedish I was like: “damn she can really pronounce Swedish numbers really well.” And then you kept doing it, and I was all: “wait.. is she Swedish??” And I check your “about” and I’m like: 😱❤️
I am so glad you let your friends go to radiation treatment with you. Before I went through treatment I talked to someone who did everything by themselves and had a complete breakdown afterwards. My husband came with me to everything and I as so grateful to have had him. The treatment even though it doesn’t hurt is scary to say the least. You are a bad ass and don’t forget it!
I am glad you have great friends to help you out. as you get older... you will realize this is more precious than gold or diamonds.
I see that you are subtlety nudging HBO for another sponsorship for the upcoming season of Westworld
The Westworld Amazon Echo tho...
I have a brain tumor and mine has caused me not to be able to smell or taste for over 3 years. Those are the minor symptoms. Thanks for sharing your journey.
I only just found your channel through the truckla video and just wanted to say, I love your videos, your personality really shows well through what you make, and it's great how open you are in videos like this, it could really help a lot of people.
Thank you.
my radiation was WAY EASIER THEN THIS. good on you girl, this seemed hard. proud of you
I'm sure it wasn't easy though, good on you for getting through it x
It all must be hard, glad you all got through it💛💛💛
Georgia Mundy glad you’re here. Hope you’re doing alright now!
You made me cry... In a good way, but I cried. Blessings to you for a long and (now) healthy life!
Joanne Hart I teared up too.
Your an inspiration. My dad had a brain tumor in 2009, had to have surgery to have it removed. Then my mom had one in 2016, had to have surgery to have it removed. My sister's and I now have an 85% chance of getting one. It's scary, so your an inspiration to me. Be well and happy.
My mom has a brain tumor, stage four cancer. I just found your channel out of nowhere and this has made me so happy. Just knowing that you are doing well now gives me a bit of hope for her future. Being a 16 year old caregiver to my single parent mom isn't easy but neither is cancer. We will both fight through this together!
Well thanks to 5g we will soon all have our very own brain tumor
MY ALEXA WAS ON VOLUME 9 and she it said Quarant loud as shit in the middle of the night XD
Lmao same shit just happened to me had me shook
My google home just sat there, all quiet. I think maybe, perhaps, it just doesn't know French?
Same! my parents are asleep, and my alexa is like "THIS IS HOW YOU SAY 40 IN FRENCH"
@@DanStarktheReal Or maybe it doesn't respond to "Alexa"? Stop stealing alzheimer's medicine lol...
@@AniketBhatP When this thing responds to music and movies, maybe it has been stealing the Alzheimer's meds... Silly Google.
I admire you so much! The way you used the mask for you treatment to make something and the way you joke about the tumor and the way you dealt with everything. I hope you feel better soon. Love from Brazil 🇧🇷
I've known you for about 30 minutes... I already know your super power... Being able to look at something shit, and turning it into something extraordinary. I'd heard of this girl cutting the roof off her tesla, but I had no idea you'd been through cancer. You are an inspiration to your millions of subscribers and you've just gained another one in me. (Noti bell is on) 😉
Thank you Simone for being so open about what you're going through. (And you bringing your own sense of comedy) My father passed in 92 from Stage 4 Cancer. From the day we all found out, he was gone in less then a month. In 2009 my mom passed from Lewy Body Disease after her 1.5yr battle of slowly wasting away. I'm sharing today to remind everyone...life is precious. Take today for today. Focus on what really is important.
You are a strong girl, Simone ! Must be that Viking blood, or something like that....
Takes bravery to admit that you need help, and real friends to give it unconditionally. Stay safe and stay positive.
I had testicular cancer in the year 2000, and also underwent radiation therapy with one of those linear accelerators. Seeing one in this video brought back frightening memories.
I know this video is old now, but, I hope you won your battle.
I got goosebumbs when you said how your friends have been able to be at your side, that is so so great!!
"You're doing great i can see the head" 5:52
"NGGGGGH" *"OH..."*
This was so under appreciated 😂😂
You were extremely adorable on this video. I'm so happy to see you again around here! 🤗🤗
I approve!
My brother died at 53 with a glioblastoma - the bad kind of brain tumor.
You are courageous to share. I appreciated it 👍🙏
I'm a year late but it's awesome you have an amazing support group. I truly believe that it makes all the difference in the world.
LED string light hair - please!
You are rocking it with the positive attitude.
There's a pickup line. "Hey. I'm in a tree."
So smooth
Getting to hear your story has been comforting. Thank you for making these videos! ♥️
Hello!- I am SO! HAPPY! and Glad to hear you have made it through your HORRIBLE situation. I kind of know what you have gone through - not so much me but my wife of 25 yrs (33yrs total) died of a GBM in 20011 at the age of 47 it was on her brain stem and could not be removed it was without a doubt the WORST news I have EVER HEARD but I NEVER left her side ( We met in Jr High at the age of 15 I am now 55) I found you through Cody's Lab I really do not know what I wanted to say other than I am so SO HAPPY for you!!! and I had to post to let you know I know (almost) what you are going through--God Bless you and remember Life is short make every day count because every second is So Special! But you ALREADY know that!!!
So that lamp is going to be a Curie-o?
...But seriously I'm glad you're done; you matter a lot to all of us.
That was a terrible pun. I applaud you, good sir.
Just found your channel thanks to Truckla...you're awesome...cant wait to see all your vids 🤩
XHD ULTRAWALK me too lol
Dude, literally the exact same thing. LOL.
XHD ULTRAWALK same
XHD ULTRAWALK sameeeeeeeee
Me too!
You're amazing and brave and just an awesome human. I'm glad you had your friends to help you through it all xx
You are such a cool & inspirational person. Love your attitude to it all & freaking love that light its so so cool.
Wish you all the best & lots of love & healing x
There's a reason you have so many amazing friends. You're an amazing person. That you can go through this and still keep any humour about the situation is incredible.
Keep going.
"Hey.... I'm in a tree." Well I'm sold.
Haha, great so see you up on your feet, Simone. You are a wonderful person and I'm glad you exist.
Good to see, you made it through the year. Your friends are amazing. Great idea to ask them. Very encouraging!
Thank you for sharing your story with us. Your positivity throughout your journey is inspiring! Best of luck to you on the road ahead. Love your videos!
You set off my Alexa when you asked what 40 was in French and I almost had a heart attack 😂
TIL: I’ve been to Afghanistan twice...and you’re still tougher than me.
Keep kicking ass! Love your work.
Love the positivity, and the relationship between you and your friends.
I'm years late, but so happy you made such a great comeback. Your inventions ... who knows what they are, but I'm here for all of it.