Thank you so much for this Hannah, normally follow you for SW but this was brill! My best friend has MS and I really am trying to understand everything I can, he seems to be really struggling this last few weeks with extreme fatigue, bad eyes and bad legs. The MS society is a good resource but nothing like a personal account to really hit home and help make sense of it. I know every MS diagnosis is different but it shows he's not alone in this and I can understand him so much more. x x x
Aww bless you, well this is exactly what I wanted to get out to the world.. My take on the spoon theory and what's it's like for me to live with this disease.. Definitely some days are better than others.. For example I had a really bad night last night.. So today will be doing nothing and just relaxing.. Storing my spoons for when I need them.. I've had to cancel ballet cause I know it will completely knock me down.. And instead of meeting my friend for lunch in town, she is coming to mine for a dvd day.. I hope your friend starts to feel better soon.. Sometimes this illness is really horrid.. But I'm sure with your support :) he will get there... If you're able to id love for you to share this video or spread the word :) have a lovely day xxx
What a good method to get the point across. I have only known a few people in my life with MS and I was able to witness the effects on them. Most people who are newly diagnosed will quite probably know very little about it so your video would be appreciated I'm sure. Also glad to know you don't carry around a backpack of spoons all day lol...God can you imagine the energy that would use ☺. x
Hehe lol oh yes I can just imagine, not to mention they would jingle about a lot!! Yes, I hope my video gets out there to people who are newly diagnosed or just struggling because I am just starting to learn about my MS.. Thank you so much for your comment xxxxxx
hello Hannah ive just found you on here as on slimming world too....i also hav MS i wanted to just let you know how refreshing it is to listen to somebody who understands and also has the same positive attitude towards it as myself. I was diagnosed 10 years ago this june at age if 26....i still work hav 3 children and also at uni....if you ever fancy a chat or a moan to someone who totally gets it feel free and take care you are doin great! xxx
well done you! I'm with you on this and it is indeed v frustrating when people dont get it. Because most dont. When i say I'm exhausted, I mean I think I am going to drop down dead. And yes, there's a lot of depressing stuff out there about MS! I refuse to watch any of it, and learnt v quickly upon DX that i needed positivity, which was extremely hard when you are so unwell and in and out of hospital. Many many years on, I continue to work full time when I was told I couldn't, which I put down to figuring out how to listen to my body, which is what you have done. And of course a bit of luck, as miraculously, I have ceased using walking aids, and am progressing slowly (well now anyway LOL) Still have bad days but manage it. Take control of what you can, and your physical and mental health will benefit. xx
Aww thank you so much for your kind comments.. Sometimes I feel that I want to show people a "bad day" to show what it is actually like living with this condition.. And then I think.. I don't owe anyone anything lol... And yes being positive is the way forward although sometimes it is hard... Yes I am exactly the same.. When I say I'm tired I mean literally can't do anything need to sit down.. Some people have said "oh you just need to go to bed earlier" or "you must be depressed" (my personal favourites) I think to myself.. If only you knew!! Lol I hope you carry on the upwards path and take care xxx
my mom has Ms and she showed me a normal day for a wife but with her energy. I am only 10 years old and my mom has very little energy do that means we can't do what normal moms do with there kids. This is her spoon thing with 10 spoons. Wake up in the morning and take a shower. there goes two spoons. Go to work for the day. four spoons. Come home and make dinner, two spoons. now, there are two spoons left, clean or play with her kids? your choice. oh and just so you know, my mom doesn't have a job this is just her energy
Elexis's Random stuff aw bless you and your mom.. she sounds amazing and it sounds like she works so hard to just survive each day! it's very hard but I'm sure you're a fabulous daughter and it's so nice to see how much you understand... my sister and her boyfriend don't really understand and they think that I should be at work now... that frustrates me cause I try to explain... we are just trying to survive the days.. have a lovely day xx
hello Hannah ive just found you on here as on slimming world too....i also hav MS i wanted to just let you know how refreshing it is to listen to somebody who understands and also has the same positive attitude towards it as myself. I was diagnosed 10 years ago this june at age if 26....i still work hav 3 children and also at uni....if you ever fancy a chat or a moan to someone who totally gets it feel free and take care you are doin great! xxx
Lisa Preston aww thank you so much for this lovely comment Hun.. yes i try and keep positive as much as possible.. sometimes it is hard though lol and those are the times you just have to try and keep strong.. my partner is amazing with me and so supportive 😊 xxxxxx
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Thank you so much for this Hannah, normally follow you for SW but this was brill! My best friend has MS and I really am trying to understand everything I can, he seems to be really struggling this last few weeks with extreme fatigue, bad eyes and bad legs. The MS society is a good resource but nothing like a personal account to really hit home and help make sense of it. I know every MS diagnosis is different but it shows he's not alone in this and I can understand him so much more. x x x
Aww bless you, well this is exactly what I wanted to get out to the world.. My take on the spoon theory and what's it's like for me to live with this disease.. Definitely some days are better than others.. For example I had a really bad night last night.. So today will be doing nothing and just relaxing.. Storing my spoons for when I need them.. I've had to cancel ballet cause I know it will completely knock me down.. And instead of meeting my friend for lunch in town, she is coming to mine for a dvd day.. I hope your friend starts to feel better soon.. Sometimes this illness is really horrid.. But I'm sure with your support :) he will get there... If you're able to id love for you to share this video or spread the word :) have a lovely day xxx
+Hannah Smith already done and the video you suggested too. Such a brill idea x x
What a good method to get the point across. I have only known a few people in my life with MS and I was able to witness the effects on them. Most people who are newly diagnosed will quite probably know very little about it so your video would be appreciated I'm sure. Also glad to know you don't carry around a backpack of spoons all day lol...God can you imagine the energy that would use ☺. x
Hehe lol oh yes I can just imagine, not to mention they would jingle about a lot!! Yes, I hope my video gets out there to people who are newly diagnosed or just struggling because I am just starting to learn about my MS.. Thank you so much for your comment xxxxxx
hello Hannah ive just found you on here as on slimming world too....i also hav MS i wanted to just let you know how refreshing it is to listen to somebody who understands and also has the same positive attitude towards it as myself. I was diagnosed 10 years ago this june at age if 26....i still work hav 3 children and also at uni....if you ever fancy a chat or a moan to someone who totally gets it feel free and take care you are doin great! xxx
well done you! I'm with you on this and it is indeed v frustrating when people dont get it. Because most dont. When i say I'm exhausted, I mean I think I am going to drop down dead. And yes, there's a lot of depressing stuff out there about MS! I refuse to watch any of it, and learnt v quickly upon DX that i needed positivity, which was extremely hard when you are so unwell and in and out of hospital. Many many years on, I continue to work full time when I was told I couldn't, which I put down to figuring out how to listen to my body, which is what you have done. And of course a bit of luck, as miraculously, I have ceased using walking aids, and am progressing slowly (well now anyway LOL) Still have bad days but manage it. Take control of what you can, and your physical and mental health will benefit. xx
Aww thank you so much for your kind comments.. Sometimes I feel that I want to show people a "bad day" to show what it is actually like living with this condition.. And then I think.. I don't owe anyone anything lol... And yes being positive is the way forward although sometimes it is hard... Yes I am exactly the same.. When I say I'm tired I mean literally can't do anything need to sit down.. Some people have said "oh you just need to go to bed earlier" or "you must be depressed" (my personal favourites) I think to myself.. If only you knew!! Lol I hope you carry on the upwards path and take care xxx
my mom has Ms and she showed me a normal day for a wife but with her energy. I am only 10 years old and my mom has very little energy do that means we can't do what normal moms do with there kids. This is her spoon thing with 10 spoons. Wake up in the morning and take a shower. there goes two spoons. Go to work for the day. four spoons. Come home and make dinner, two spoons. now, there are two spoons left, clean or play with her kids? your choice. oh and just so you know, my mom doesn't have a job this is just her energy
Elexis's Random stuff aw bless you and your mom.. she sounds amazing and it sounds like she works so hard to just survive each day! it's very hard but I'm sure you're a fabulous daughter and it's so nice to see how much you understand... my sister and her boyfriend don't really understand and they think that I should be at work now... that frustrates me cause I try to explain... we are just trying to survive the days.. have a lovely day xx
hello Hannah ive just found you on here as on slimming world too....i also hav MS i wanted to just let you know how refreshing it is to listen to somebody who understands and also has the same positive attitude towards it as myself. I was diagnosed 10 years ago this june at age if 26....i still work hav 3 children and also at uni....if you ever fancy a chat or a moan to someone who totally gets it feel free and take care you are doin great! xxx
Lisa Preston aww thank you so much for this lovely comment Hun.. yes i try and keep positive as much as possible.. sometimes it is hard though lol and those are the times you just have to try and keep strong.. my partner is amazing with me and so supportive 😊 xxxxxx