The meticulous planning of every single action solely to optimize the energy usage to have more for later feels like it takes up a spoon all on its own 🥄 😥 Our brains work far too hard on other stuff to be able to manage everyday tasks reasonably. Ugh...
I got hit with fibromyalgia at 25, a year after after PTSD hit me. I'm 35 now. While I still have chronic pain and doubt it will ever entirely go away, managing my stress levels has helped with the pain A LOT. Stay strong, spoonies 💜🥄
This made me cry with joy... Having those around me understand that I deal with my illness everyday makes all the difference in the world for my life... The last third of this talk hits on the most critical element... Please listen to this short talk if you have anyone in your life who has a chronic invisible illness... Mine is mastocytosis btw... Thank you!
Crying🫶🏽❤️🙏🏽 Yes as A spoonie I have felt with discrimination with family friends work and it’s so hard to deal with silently and alone in isolation with no support 😢 She Nailed this 💪🏽💪🏽🫶🏽🙏🏽
To surround myself with people who don’t rob my spoons only needed me to move to the other side of the planet. But really. South east asians might not understand spoon theory or offer to buy spoons for you, but they usually just leave you alone when they see that you have not enough energy. They just accept that i forget their names or come late. They seem to feel you
I am late with this, as I just arrived. I admit I am a normie, but I do feel and have compassion for you and others with limited spoons. I wish I could help you. I don't need to know someone to care about them. And I do care about you.
As a spoonie I’m okay with people not really understanding. Long as my husband helps me I’m okay. I don’t expect anyone else to really notice or care. 😅
Don't you just love the medical advice lol Even from some Drs even tho they have your chart and you've done everything short of rubbing dog poop on you if someone said it worked lol
I’m a spoonie! Thank you for speaking up, for us!
The meticulous planning of every single action solely to optimize the energy usage to have more for later feels like it takes up a spoon all on its own 🥄 😥 Our brains work far too hard on other stuff to be able to manage everyday tasks reasonably. Ugh...
completely agree. I'd say 2 spoons.
Yep, a spoon just for planning, maybe even 2 on bad days for me.
Fellow Spoony here! Wonderful talk, thank you 💙
This is so helpful, coming from a 24 year old that got diagnosed with Fibromyalgia on college. Thank you!
Hey, I’m 23 and I have fibromyalgia too. I’m here if you want to talk. 💙
16 with it, stay strong spoonie sister
I got hit with fibromyalgia at 25, a year after after PTSD hit me. I'm 35 now. While I still have chronic pain and doubt it will ever entirely go away, managing my stress levels has helped with the pain A LOT. Stay strong, spoonies 💜🥄
This got me in tears. Thanks, fellow spoonie, for putting this message into words that make it much easier to convey
This made me cry with joy... Having those around me understand that I deal with my illness everyday makes all the difference in the world for my life... The last third of this talk hits on the most critical element... Please listen to this short talk if you have anyone in your life who has a chronic invisible illness... Mine is mastocytosis btw... Thank you!
Thanks for sharing. I use the spoon theory to explain my mental health struggles
Crying🫶🏽❤️🙏🏽 Yes as A spoonie I have felt with discrimination with family friends work and it’s so hard to deal with silently and alone in isolation with no support 😢 She Nailed this 💪🏽💪🏽🫶🏽🙏🏽
To surround myself with people who don’t rob my spoons only needed me to move to the other side of the planet. But really. South east asians might not understand spoon theory or offer to buy spoons for you, but they usually just leave you alone when they see that you have not enough energy. They just accept that i forget their names or come late. They seem to feel you
Not all of us are DIAGNOSED, so the normies REALLY have ZERO compassion for us. 😭
Yeah you're absolutely right
So real
I am late with this, as I just arrived. I admit I am a normie, but I do feel and have compassion for you and others with limited spoons. I wish I could help you. I don't need to know someone to care about them. And I do care about you.
Thank you for the directions to help make conversations possible!
Absolutely wonderful talk, thank you!
As a spoonie I’m okay with people not really understanding. Long as my husband helps me I’m okay. I don’t expect anyone else to really notice or care. 😅
Thank you for sharing your story :)
A spoonie, thanks for this talk !
Inspiring.
Yep, I have this too. Today, my GP told me about the Spoon Theory.
I wonder if dry fasting and cold therapy would help
Spoon theory is helpful. Being labeled a “spoonie?” Erm, not for everyone… Cheers all.
Thank you ❤
Don't you just love the medical advice lol Even from some Drs even tho they have your chart and you've done everything short of rubbing dog poop on you if someone said it worked lol
LMAO so true
You're beautiful btw :D