I’m going through this now and long covid. 31 on the process for SSDI. My job pushed me to a time of no return. Thank you. Mentally trying to heal from this
I've got POTS too. this TEDtalk is so important for those without invisible illnesses to help them understand those who look "normal" but are suffering on the inside.
Wow this is uncanny. This is almost exactly what I went through in the past month and a half with my POTS; going to the ER, seeing tons of doctors, the fatigue, the pain. When I go back to school in a month, I'll have to use a wheelchair. It's comforting to see someone else like me.
I am extremely glad you made this talk. I have a chronic disability that is dismissed everyday by the healthy or normal population. Or they downplay my symptoms and say they go through it too. When they have no idea. People who aren’t around me all the time wouldn’t know that I am disabled. I have a service dog. I get asked all the time oh are you training her for someone else? No she’s mine. Why do I have to explain myself and my personal information to someone who I don’t even know? Just a frustrating world right now.
I have POTS also I have had it since I was 15 but was not diagnosed until recently I am now 48. I was constantly told by doctors that I was having anxiety attacks. I am so glad you spoke up about this because there are so many people including doctor's who have no idea of this.
Wow, awesome talk! You even made me cry, because you voiced so many of the struggles I have been facing for years with my disability. Thank you so much!
I had an "invisible illness" for 8 years (ulcerative colitis) and I did feel the shame and embarrassment mentioned in this video. Everyone needs to really listen to this message.
Thank you for this wonderful talk. You did not mince your words, and I think you were very clear in helping all of us understand that the disability community is large and diverse. I have electromagnetic hypersensitivity -- an invisible disability that because of our cultures rampant use of wireless technology -- drastically limits my freedom to leave the confined of my EMF-shielded room. This condition is widely not believed in or recognized by my doctors who keep trying to diagnose it as something else. I resonated with everything you said in one way or another. Thanks for sharing your truth so eloquently. I learned a lot and I value your message.
I am on the hunt for my pots diagnosis. I have al of this. I would call my pots mild. I get extreme fatigue and have often times said my body forgets to do things like breathing. Good news is im going to go to a neurologist soon and ill talk with them about it. I was constantly struggling with standing when waiting for the bus so i got a walker. It does help. Im pretty sure i got mine just after a miscarriage. Thats when i remember my symptoms started. It does decide which one i have
Hope to watch and read comments when able I talked to doc about this and asked about some meds I heard might help He said he would look into them But I need to remind him and I have forgotten what meds were suggested by others I need a power chair My arms are too weak I can not stand and talk like she is doing Or sit upright and talk Or lie down
Ren (who was wrongfully diagnosed with lyme) wrote in 1 of his songs disability benefits? Whats the benefit of disability its irrelevant. Definitely an artist to check out
I’m going through this now and long covid. 31 on the process for SSDI. My job pushed me to a time of no return. Thank you. Mentally trying to heal from this
"I didn't believe you could wake up one day, and be sick for the rest of your life." Great presentation! Thank you!
I've got POTS too. this TEDtalk is so important for those without invisible illnesses to help them understand those who look "normal" but are suffering on the inside.
As someone with chronic illnesses and chronic pain I applaud 👏🏼 you for this video if only more people understood!
Wow this is uncanny. This is almost exactly what I went through in the past month and a half with my POTS; going to the ER, seeing tons of doctors, the fatigue, the pain. When I go back to school in a month, I'll have to use a wheelchair. It's comforting to see someone else like me.
I am extremely glad you made this talk. I have a chronic disability that is dismissed everyday by the healthy or normal population. Or they downplay my symptoms and say they go through it too. When they have no idea. People who aren’t around me all the time wouldn’t know that I am disabled. I have a service dog. I get asked all the time oh are you training her for someone else? No she’s mine. Why do I have to explain myself and my personal information to someone who I don’t even know? Just a frustrating world right now.
I have POTS also I have had it since I was 15 but was not diagnosed until recently I am now 48. I was constantly told by doctors that I was having anxiety attacks. I am so glad you spoke up about this because there are so many people including doctor's who have no idea of this.
You summed up exactly how it is to live with POTS. Thank you.
Wow, awesome talk! You even made me cry, because you voiced so many of the struggles I have been facing for years with my disability. Thank you so much!
I had an "invisible illness" for 8 years (ulcerative colitis) and I did feel the shame and embarrassment mentioned in this video.
Everyone needs to really listen to this message.
I have POTS too. Thanks for telling your story. I'm struggling to get treatment because no cardiologist will treat me.
I just nodded all the way through this. Great and so true. I am In the UK with chronic pain but still undergoing more tests for more diagnosis. Xx
Thank you for this wonderful talk. You did not mince your words, and I think you were very clear in helping all of us understand that the disability community is large and diverse. I have electromagnetic hypersensitivity -- an invisible disability that because of our cultures rampant use of wireless technology -- drastically limits my freedom to leave the confined of my EMF-shielded room. This condition is widely not believed in or recognized by my doctors who keep trying to diagnose it as something else. I resonated with everything you said in one way or another. Thanks for sharing your truth so eloquently. I learned a lot and I value your message.
Thank you so very, very much for your talk. I suffer with several chronic illnesses and can relate so much. Thank you! 💕
Thank you for this - you changed my life
Damn girl that was fierce! Rock on sista!!!
Perfectly said! Probably the best I’ve heard. Thank you for speaking the pure truth!! ❤️
Bravo, excellent talk and right on point
I wish that this was labeled as dysautonomia/pots ...I had to search hard to find a ted talk on this. (I have pots)
So true!! Thank you for sharing
Definitely needs to be shared more 💜 I really needed to hear this today
Thank you Vicky 🙌😘
Agree with everything.
I am on the hunt for my pots diagnosis. I have al of this. I would call my pots mild. I get extreme fatigue and have often times said my body forgets to do things like breathing. Good news is im going to go to a neurologist soon and ill talk with them about it. I was constantly struggling with standing when waiting for the bus so i got a walker. It does help.
Im pretty sure i got mine just after a miscarriage. Thats when i remember my symptoms started. It does decide which one i have
Hope to watch and read comments when able
I talked to doc about this and asked about some meds I heard might help
He said he would look into them
But I need to remind him and I have forgotten what meds were suggested by others
I need a power chair
My arms are too weak
I can not stand and talk like she is doing
Or sit upright and talk
Or lie down
I got this due to my lyme-disease infection.
me too 😕
@@jessicah3450 💚
The conspiracy theorists in the comments are the reason people are scared to go out in their wheelchairs when they need one
conspiracy theories = Qanon are hate crimes against the disability. not doubt.
Ren (who was wrongfully diagnosed with lyme) wrote in 1 of his songs disability benefits? Whats the benefit of disability its irrelevant. Definitely an artist to check out
total recovery from chronic conditions? Many anecdotes on Raelan Agle's RUclips channel, worth watching?
Check vitamin b12 (active b12 MMA) levels and vitamin D3 and iron profile.
POTS is a symptom of something else, get a functional doctor, allopathic doctors will not look for the cause
sometimes it is idiopathic sometimes it is a secondary condition i know i live with it and research it to see if there are any new treatments
borrelia infection.
Lol she can stand for like 3 to 4 min, if I get that much I would never ever complain in life