My Multiple Sclerosis Diagnosis Story
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- Опубликовано: 19 май 2024
- How I Got My Multiple Sclerosis Diagnosis
I received my Multiple Sclerosis Diagnosis in July 2008 - I have MS. A Diagnosis of Multiple Sclerosis (MS) is different for everyone. This is my story and I hope by sharing it I can bring awareness of MS and what people go through. Diagnosis is a hard thing to accept, but in some ways, knowing that you have a condition makes it easier to manage. This is my story of my Diagnosis.
0:00 Introduction
0:15 desperate to get an answer
0:37 Diagnosis is different for everyone
1:20 My Diagnosis in 2008
1:45 Call to tell me I had MS
3:02 Hospital Call
4:45 How will I tell my family
5:56 This will change my life
7:43 Support with MS
#multiplesclerosis #mssymptoms #brain #diagnosis #mystory
my story is very different, my mum had MS in the70ies to the 90ies when her body had had enough, I was diagnosed oct 7 2020, that was the date on the letter i got it mid october
What type of MRI scan did you have? Thanks
Hi, I had a scan of my brain with contrast.
@@hellomynameis5520 when I was first diagnosed they injected me with something to highlight the brain and spinelcorn, a few months ago I had a follow up scan, no injection on a standard 3 phase MRI
@@lauraironstalksms was it 1.5 Tesla strength or 3 Tesla strength thanks
I have no idea, it wasn't a private scan it was arranged through the hospital so I wouldn't know sorry. I don't think I've ever been told what strength the MRI scan machine is?!
You’re great. Thank you Laura.
Thank you Brian 😊
Thank you Laura!!!
Thank you for watching, if there's anything you want to ask or share please do.
Thank you so much xx
I will say you're welcome (for whatever you may be thanking me for 😊) x
@@lauraironstalksms MS Sharing your experiences to reassure people with MS xx
You're very welcome Brenda 🧡 x
I was similar when I was diagnosed over 10 years back. The nurse and Neuro was weirded out that the diagnosis news didn’t effect me. Even to this day I try not let it effect me. I just try think of alternative ways to do things that I cannot do now.
Hi, it's funny you should mention this. I was thinking about it the other day and wondering why the diagnosis didn't freak me out when, for many people it's very traumatic news. My conclusion is that everyone is different in the way that they accept things but I think it's the way you approach it that matters. I'm glad that you try not to let it effect you, we have MS yes but it's taught me so many things and made me value stuff so much more. 10 years, wow so you are a longy as well 😊. If you come up with any alternative ways, share it about. Share the love 🧡
@@lauraironstalksms Hey, even to this day when I tell extended family members and friends about the MS, they always give me sympathetic comments and comment on how they’d be depressed everyday if they had it. I think like you said everyone handles it their own way. Last year, I went to an food therapist who assessed my diet and did various blood tests on me. She was finding out if viruses led to my symptoms. Interesting that! I was given a list of concoctions to take to rid the viruses. I will see her again in 2021 sometime when everything returns back to normality.
I’m a vegetarian, since birth, so I’m not sure if that has helped me.
@@mrms6524 Yep I get the same comments! Although I always say that people don't actually know how they are going to react or feel until they actually go through it 😊. Wow that's interesting about the virus thing, I wonder that too. Did you ever have glandular fever? You'll have to let me know how it goes with the concoctions when you get round to getting them in 2021.
@@lauraironstalksms Yeh! I had ‘The Kissing Disease’ / glandular fever in 2008. It totally floored me and I was hospitalised for a week. I can’t even remember how many drip bags I went through. I probably used up every single one at the hospital! 😂
I got the list of viruses from her a week after she got them tested and what to take for them. The UK doesn’t have the machines to test for them, so they were sent to Germany. Epstein Barr was picked up too, hardly surprising
Hi Laura, what type and strength of MRI Scanner did you have? Was it 1.5 Tesla with our without contrast? Thank you for sharing your story!
Thank you for posting these. They are very informative. This is Ed, noodles5150
Hi Ed, thanks for watching and being here. I'm glad you are finding the videos informative. Keep well 🙏😊
I got my diagnoses in the post (yey)
Diagnosis.. Do you mean they posted it to you!?
@@lauraironstalksms yep thats how i got my conformation of MS, i already new,there was little room for dout,
i have just got back from the hospital, eyes there after a base line, for the future, even though i'v had several in the past, the eye doctor was surprised, they didnt follow the MS up 12 years ago