Mobility Matters: Navigating Multiple Sclerosis and Chronic Back Pain
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- Опубликовано: 25 фев 2023
- I have been having pain in my lower back since August 22, it has become increasingly more painful and is making walking problematic.
This video explains how and when my symptoms started, who I've seen about it and what the next plan of action is.
#disability #chronicpain #backpain
00:16 Flynn intro
0:16 Back problems
0:30 Hip pain
1:10 problems standing
3:10 who can help?
3:48 physiotherapy appt
5:39 MS appt
6:03 just want to say
7:09 new treatment
8:08 positivity
A reaccuring back problem has now got to the point where its becoming troublesome. It has been picked up as inflammatory and I now have my first MS consultantation with my new hospital team tomorrow morning. I haven't had a face to face consultation since 2019 so I'm hoping that this team will be able to arrange MRIs and come up with a plan of action 👍.
Flynn brushed my wild hair part way through, so we have him to thank for that
Hope you get the answers and treatment you need asap x
@@yvonnecagli8742 Thank you 😍
HELLO BEAUTIFUL!!!
I finally got caught up on all your latest and great videos.
I did hard physical labor for 20+ years. Severe back pain was a common occurrence with me and the people I worked with. I tried everything, and nothing really worked long term. A couple of years ago, when I found out that I had the MS monster. My doctors said my spine looked very good besides all the lesions.😒
While my job was hard on my back, the extreme pain came from the inflammation, spasticity, and the muscles pulling, stretching, and just NOT cooperating with each other.
I hope your appointment went well and you get everything sorted out.
🙏😘
Hello! Do you know, I have been wondering about you for a while now and if you're OK - and if by magic here you are! I hope everything is OK with you?
Yes a few people I know with MS have bad issues with their back, sorry to hear that you did too (did you find anything to resolve your pain by any chance apart from medication?) I refuse to go on naproxen all the time!! Mine is so intermittent at the moment, one day I could wake up like there's no problem and the next day a different story..I'm going to fix this 😂🥕💪 (OK at least make it more comfortable😜) great to hear from you, don't think the channel would be the same without SMOKEXCREEN420 🧡
Yes, Laura, I've been doing well and everything's OK! Thank you for your concerns.
I've been prescribed low doses of Baclofen that helps with my spasticity and nerves in my spine. I wouldn't call it a wonder drug, but it does help, and I tolerate it very well. I'm totally with you on absolutely NOT taking an NSAID, especially for a long period of time. Also, you got it good nutrition and exercise helps.👍
Things that have also helped me are 10-15 minutes of stretching first thing when I wake up and last thing right before I go to sleep. Maintaining good posture even while sleeping is also key. Yes, you know the benefits of massage, but for me, it just didn't help long term. Once in a while, I use a little bit of cannabis. I still have bad days, but don't we all?
With all that in the last 6 months, I've had to come to terms and realize that I'm 42, not 22.😁
Anyway, I'm just waiting for this weather to change. (Hurry up, spring)
Thank you, Laura.
Keep well and stay beautiful.💐😘🙏
Er, since when weren't we 22... No-one told me.. 😂
Seemingly fast approaching 43 🙄 - how did that happen!??
Glad you're doing well and everything is OK. Think I've heard of baclofen yes and I'm really pleased that helps you.
As usual I'm just opting to work this out the non medication way. After having a conversation with my neurologist, to me it feels like the right plan of action, potential the only course of action? But I'm ok with that. So I too am getting back on my stretches, heat pads and anything else I can get my hands on! Today and yesterday was a good day actually so I'm also going to keep a diary and see where the fluctuations might be.
Absolutely hurry up spring! That puts a smile on everyone's faces.
Keep staying well and look after yourself 🧡🙏
Hi Laura, bless you.. Massage is good for back pain.. ❤️
I always have this debate with myself. I am I ignoring something that could be MS, or am I blaming MS for something different. I can never decide(!) 🤦🏻♂
I know exactly what you mean! 😊
Without an MRI scan you'll probably have a "blind measure" for the severity of the lesion; personally I suffered only once from the crippling feeling in my back about 6 months ago, I thought I must've developed some seriously big lesion in my back, but the MRI proved it was merely "a slight lesion", so even if the feeling was terrible and crippling it might be a "slight lesion". P.S I had the crippling feeling after an incident I'm sure it triggered flare-ups.
Sorry you’re struggling Laura. 🙏🏼🧡
Naproxen I also use occasionally. It works for me also. My lower back is definitely feeling inflamed atm.
Thanks Robert, Naproxen has been my godsend! Maybe it's all this cold weather ❄️🥶. Hope your back feels better soon 💪
Agony I no and it's agony. Iv had steroid injections. The steroids have taken the edge of but I'm still in pain. I can't walk far can't stand for long and was told it might b all in my head . Yet an mri scan in 2020 shows its bone disease. So who do I turn to
😔. Not in your head.. If you've had a clear scan showing something then take it further with your GP and push for help/answers and ways to get support to relieve your pain. There is always an answer out there, you just have to NOT GIVE UP
Why you quitted ocrevus? Are you in mavenclad now? All the best
Hi. I wasn't on ocrevus, I was on a trial for campath (Lemtrada) I was on the trial for 13 years so I didn't quit. With lemtrada you only have 2 infusions and that's it. Job done - unless you relapse. I'm not on any medication at all now for my MS.
@@lauraironstalksms lemtrada, yes! I liked this, but I the fact that we need every month make exams made me think of others. I'm considering ocrevus or kesimpta... Are you happy with lemtrada effects in your ms, in your rmis? You still doing exams monthly? Thank you
Hello, yes I understand what your saying. But I think the exams /paperwork is less than it used to be (especially as I was on a trial) I am completely finished now with lemtrada and the trial, so I don't do any paperwork /examinations except I have an MRI every year. Lemtrada was seriously life changing for me and I don't think I'd be as healthy with my MS if I did not take it. Ocrevus is supposed to be good, but personally I wouldn't like the idea of infusions every few months. Lemtrada you have 2 infusions, one each year and you're done. Good luck with whatever you choose. If you need to ask any other questions I'm always here.
@@lauraironstalksms thanks Laura. I'm reading a lot, and I'll go to Neuro next week, and I think we'll choose something f me. I'm a man with no treatment, since diagnostic (3 years ago) I was doing the coimbra protocol. I'll let you know. Cheers!
Really good luck with everything, I think speaking with your Neuro will help to help you determine what's the best route. Please keep me updated 👍
Laura how can I chat with you 121?