- Видео 92
- Просмотров 261 769
Laura Irons talks MS
Великобритания
Добавлен 1 май 2020
I was diagnosed with RRMS 15 years ago, I went onto a blinded trial in 2009 (Lemtrada) I currently take no medication for my MS and since 2010 have preferred to use alternative ways to relieve pain or ease the symptoms of my MS - it seems to be working so far.
I put videos out on Monday's (7.30pm GMT) and I share ways that help me to relieve my MS symptoms as well as updating you on my MS progress (possibly future progression) Much of my interest is about brain health.
Most of my experiences/knowledge comes from the professional help that I have received over the 14 years since being on my Lemtrada trial and I owe a great deal to my health care team at the Heath Hospital Cardiff.
All of the money raised from this channel will go to the MS Society. So I'd love you to subscribe so together we can help raise money for research.
I put videos out on Monday's (7.30pm GMT) and I share ways that help me to relieve my MS symptoms as well as updating you on my MS progress (possibly future progression) Much of my interest is about brain health.
Most of my experiences/knowledge comes from the professional help that I have received over the 14 years since being on my Lemtrada trial and I owe a great deal to my health care team at the Heath Hospital Cardiff.
All of the money raised from this channel will go to the MS Society. So I'd love you to subscribe so together we can help raise money for research.
Why I'm taking a break from YouTube
My Multiple Sclerosis Story experience is up to date. I will post on any major changes to my MS and health and I will of course still continue to post updates on my future MRI scan results.
0:00 intro
0:10 what is the reason
0:40 MRI report updates
1:02 smoldering lesions
1:23 thank you
1:46 mental health
2:00 last advice for your MS
Thank you to everyone for your support, I wish everyone good health and happiness 🫶
#msstory #chronicillness #msawareness #brain #brainhealth #mssociety #disability #diseasemanagement #takingabreak #smoulderinglesions #mentalhealth
0:00 intro
0:10 what is the reason
0:40 MRI report updates
1:02 smoldering lesions
1:23 thank you
1:46 mental health
2:00 last advice for your MS
Thank you to everyone for your support, I wish everyone good health and happiness 🫶
#msstory #chronicillness #msawareness #brain #brainhealth #mssociety #disability #diseasemanagement #takingabreak #smoulderinglesions #mentalhealth
Просмотров: 493
Видео
Optic Neuritis in Multiple Sclerosis: My Hospital Update
Просмотров 2673 месяца назад
Optic Neuritis in Multiple Sclerosis: My Hospital Update This video is an update on my hospital appointment for the reoccurring optic neuritis that I experience each year. Last year I put a video out on how I lost vision in one eye with an optic neuritis attack. I saw an eye specialist at the opticians who referred me to the eye hospital to see a doctor there. They advised that they were going ...
I Tried An Acupressure Mat For 5 Days For My MS Back Pain- Did It Work?
Просмотров 2173 месяца назад
I Tried An Acupressure Mat For 5 Days For My MS - Did It Work? I have quite severe intermittent lower back and hip pain down the right hand side of my body. When it's good it's good but when it's bad it's really quite immobilising and painful for me. I'm always looking for ways to relieve my back pain naturally as the only thing that does relieve it is naproxen - and I really don't want to beco...
PIP Assessment Questions Answered
Просмотров 11 тыс.4 месяца назад
I have Multiple Sclerosis. This video answers some of the questions that you have asked around PIP in my last PIP outcome video. #PIP #msawareness #chronicillness #health #multiplesclerosis #disability 0:00 introduction 0:33 can I claim PIP for mental health 2:01 when will I get a decision 2:22 should I fill out my own application 3:20 phone or face to face what's better 4:47 should I prepare 5...
The Impacts Of Multiple Sclerosis on Work
Просмотров 6464 месяца назад
Talking about my personal experience and challenges with having MS whilst working 0:00 introduction 0:20 MS impacts our working life 1:06 why can't I find work? 1:24 my working background 2:43 being diagnosed with MS 4:16 MS takes its toll 5:50 I shouldn't need to justify my illness 7:00 deciding to get back into work 9:10 getting back into work scheme for disabled people #msawareness #employme...
Multiple Sclerosis Fatigue - How Cocoa helps 🍫
Просмотров 3644 месяца назад
Looking into the research on how Cocoa can help with fatigue in Multiple Sclerosis. Around 90% of people who have MS, have experienced or live with fatigue. It's often very debilitating and can be quite invisible to others but has a huge impact on people's lives. Looking for ways to help with symptoms and especially those which are natural is always something that interests me. I have been drin...
My MS Symptoms Before and After Lemtrada Treatment
Просмотров 4725 месяцев назад
Should you take a DMT for your Multiple Sclerosis? My own personal answer to that question is yes. But it's down to everyone to make that decision - only you know what you feel comfortable with. In this video I explain about my MS symptoms pre and post Lemtrada Treatment. 00:00 introduction 00:15 MS statistics 00:47 daunting MS 01:52 my symptoms 03:26 how I feel now 06:32 track your MS 07:00 id...
Epsom Salts - A Miracle Mineral For Multiple Sclerosis?!
Просмотров 3805 месяцев назад
I have been using Epsom Salts for years to help my multiple sclerosis. Magnesium is an important mineral for our bodies and it can be found in a variety of foods. The easiest way to get magnesium into your body is through the skin - hence the Epsom Salts bath. #msawareness It's kind enough for people with MS because the water doesn't have to be hot, sometimes rise in temperature can bring on MS...
Smoking And Its Harmful Effects On MS
Просмотров 3927 месяцев назад
This video talks about smoking and the harmful effects on Multiple Sclerosis Link on smoking and the progression to secondary Multiple Sclerosis Here you will find the link to the Brain - the journal: academic.oup.com/brain/article/145/4/1368/6384574 I have smoked in my time socially but have not been a 'full time' smoker. I feel that having this understanding of the effects of smoking on Multi...
LIVING WITH DEPRESSION
Просмотров 3638 месяцев назад
Learning To Live With Depression was diagnosed with depression officially in 2011, 3 years after my MS diagnosis. I believe this is a side effect of my Multiple Sclerosis, not of not being able to cope but a chemical imbalance and shift in mood of the brain. I don't recall having very low moods, however I do remember at a younger age (possibly 10 or 11) where I knew that sometimes things just d...
My First Month Monetized On YouTube 🙌🧡💰
Просмотров 4419 месяцев назад
From Zero to Monetized: What It Means for Our MS Content This Multiple Sclerosis channel is finally monetised!! Thanks to everyone who watches, shares and subscribes. All the money raised will go to the MS Society to help with research into this often debilitating disease Nothing much to say here apart from Diolch yn fawr iawn (Thank you very much) 😊 0:00 introduction 0:12 The channel is now mo...
Lysine - The Super Supplement For Multiple Sclerosis?!!
Просмотров 19 тыс.10 месяцев назад
#lysine #multiplesclerosis #chronicillness The benefits of Lysine for Multiple sclerosis and other chronic health conditions. I started taking Lysine to help prevent and heal my coldsores about a year ago, and I've seen huge improvements in the amount of coldsores I get and the time they take to heal when I do get one. I started looking into Lysine to find out what it's benefits are and I was s...
From Struggle to Support: Government-Funded Exercise Scheme Revealed for WALES/CYMRU
Просмотров 28110 месяцев назад
#multiplesclerosis #chronicillness #exercise #wales The National Exercise Referral Scheme is funded by the Welsh Government and managed centrally by Public Health Wales. It is designed for inactive adults who are either at risk of poor health or have a pre-existing medical condition. The purpose of the scheme is to promote health and wellbeing by encouraging long term physical activity. How do ...
15-Year Journey: My Life with Multiple Sclerosis
Просмотров 2,1 тыс.11 месяцев назад
15-Year Journey: My Life with Multiple Sclerosis
MRI and Me: Documenting My Multiple Sclerosis Diagnosis April '23
Просмотров 32011 месяцев назад
MRI and Me: Documenting My Multiple Sclerosis Diagnosis April '23
Smouldering MS - How MS can PROGRESS Independent of Relapse Activity (PIRA)
Просмотров 795Год назад
Smouldering MS - How MS can PROGRESS Independent of Relapse Activity (PIRA)
Mobility Matters: Navigating Multiple Sclerosis and Chronic Back Pain
Просмотров 2,6 тыс.Год назад
Mobility Matters: Navigating Multiple Sclerosis and Chronic Back Pain
PIP: A Step-by-Step Guide to Readiness
Просмотров 15 тыс.Год назад
PIP: A Step-by-Step Guide to Readiness
MS 15 Years On: The Big Question Did My Treatment Truly Work?
Просмотров 2,6 тыс.Год назад
MS 15 Years On: The Big Question Did My Treatment Truly Work?
The Painful Reality of Optic Neuritis with Multiple Sclerosis
Просмотров 784Год назад
The Painful Reality of Optic Neuritis with Multiple Sclerosis
Navigating the MS Maze: Feeling 'Lost' Through the System
Просмотров 440Год назад
Navigating the MS Maze: Feeling 'Lost' Through the System
The Gut-MS Connection: Secrets to Boosting Your Health
Просмотров 354Год назад
The Gut-MS Connection: Secrets to Boosting Your Health
My PIP Assessment Decision: What You Need to Know about the Assessor's Criteria
Просмотров 100 тыс.Год назад
My PIP Assessment Decision: What You Need to Know about the Assessor's Criteria
Please Help: Building a World Without Multiple Sclerosis
Просмотров 379Год назад
Please Help: Building a World Without Multiple Sclerosis
Boosting Brain Resilience: Heights Brain Health Supplement for Multiple Sclerosis
Просмотров 1,6 тыс.Год назад
Boosting Brain Resilience: Heights Brain Health Supplement for Multiple Sclerosis
Dry Eyes: Living with Multiple Sclerosis Unseen Challenges
Просмотров 338Год назад
Dry Eyes: Living with Multiple Sclerosis Unseen Challenges
Multiple Sclerosis - Optic Neuritis and Vision Loss
Просмотров 1,2 тыс.Год назад
Multiple Sclerosis - Optic Neuritis and Vision Loss
Multiple Sclerosis: Foods I Eat For Intermittent Fasting Benefits
Просмотров 339Год назад
Multiple Sclerosis: Foods I Eat For Intermittent Fasting Benefits
Unveiling the Reality: The Truth Behind PIP Assessments
Просмотров 3,2 тыс.Год назад
Unveiling the Reality: The Truth Behind PIP Assessments
Managing MS Symptoms: Hot and Cold Therapy Secrets
Просмотров 340Год назад
Managing MS Symptoms: Hot and Cold Therapy Secrets
Few years ago i had a accessment i went there and it was full with people waiting, i was overcome with stress panic anxiety i had to get out of there, i phoned pip told them what happend they reccomenfed a home assessment which iv had helpd me big time fortunate to have understanding pip workers.🎉
So amazing! Came across your RUclips totally by fluke… I was a client of yours a few years ago. You inspired me to take a new career! Thank you and take care. Nye ❤
I'm so sorry to bother you, I applied for pip in march had my phone call 2nd may, had a txt on 3rd may saying my assessment is with the assessor and then a txt on the 20th saying the still haven't made a decision, so I requested my assessment letter and at the back page it says based on the claimant's likely future circumstances it would be appropriate to review the claim in 2 years what does that mean please? Thank you x
You are beautiful
Hi Laura, my name is Kerrick. I live in Pennsylvania. Have MS and similar story, had a very active lifestyle and rode motorcycles, a Black Beauty. 1981 Yamaha 650 Midnight Maxim. Noticed I was loosing my balance when riding, thought it may have something to do with blood pressure, fatigue, whatever. Quickly afterwards went numb from waist down. Went to family doctor about symptoms, he immediately sent me to hospital for testing. All of them including spinal tap, MRI, etc. I thought that it would be temporary at first. Was wrong. Immediately lost all balance in my mobility, walking, speaking, eating, bowels and bladder. Diagnosed 4 years ago, same as when you posted this video. Bummer it took that long for me to discover it especially since I've been doing not much of anything besides watching RUclips since I'm now disabled. Coping has been difficult, I miss the great lifestyle that I had and I'm sure that you do too.
You are better off being an illegal migrant you get everything on a plate no questions asked. England today
Are yoj ok?
It's the twisted brain and emotional issues I have. It's hard to explain.
Since birth? You're not born with it.
When I went for a PIP Appeal, as soon as I reached the minimum necessary points, the assessment was stopped and I was awarded it. As a person might have a stroke or heart attack proceeding I can in one way understand it, but it also stops the person carrying on and being awarded the complete number of points relevant to their case. That is important as PIP could be stopped or questioned as valid if just one issue is reassessed in later interviews, when the person might have had many points more on their claim, rendering that as irrelevant to questioning PIP.
THANK YOU FOR GIVING US ALL THIS INFORMATION, THAT YOU RESEARCHED ABOUT L-LYSINE. I HOPE TO CONTINUE TO LISTEN TO YOUR VEDIO'S ..YOU HAVE A NICE AND CALM VOICE ....THANK YOU. BE BLESSED 🙂
You're welcome, thank you very much
I have optic neuritis in my left eye, i had intermittent vision issues and pain which grew in intensity and frequency over many months. Then it grew to a point where vision in the left eye was badly affected and it no longer hurt. I had lost my mum and dad in the space of four months, so i wasnt in the best of places mentally so didnt take action like i should have done. When i finally did go to the opticians all the layers of my eye had thinned out, the optic nerve was badly damaged and my left eye is not reactive to light. The optician told me there is little chance i will recover sight in that eye. Im now awaiting an urgent referral to eye department in hospital and referral for neurology as MS is suspected.
Oh no, sorry to hear this! Also sorry for the loss of your parents, emotional stress is always the toughest on the body (and unfortunately MS) I do hope that your appointment goes well for you 🙏
Thank you, at the moment I'm finding wearing an eye patch is better as the poor vision in the left eye throws my senses off if that makes sense? I feel like I can see better with the left eye blocked off.
I am always left confused when told to avoid stress. How does one do that? If life is sending so many dreadful and frightening things to navigate, how does one avoid the resulting stress?
When life is stressful and sending us challenging stuff to navigate, the simple answer is that you can't avoid stress. It's as simple as that. You can however step away from situations which might be causing that stress (where and if you can)
@@lauraironstalksms Thank you.
What other medications have you tried
No other medications
Totally cleared up shingles in me in 3 days.... outrageous ... I watched Dave Letterman wait 3 months to get rid of his shingles using some other treatment. Epstein Barr Virus is a Herpavirus ... so... L-Lysine is effective.... My wife has MS and is gaining ground against the symptoms of MS using LYsine
So nice to hear that! I gave a bottle to the lady who owns the manicure place cause she's been suffering from shingles since her second dose. I had a feeling from the little I've read that it would help! She promised to take them and hopefully I'll get some good news soon 😊
How much did you take? I got her the tablets from "now" there's 100tabs and told her to take one a day but perhaps she needs more?
@@aalliaandreadis5109 Its good to go as high as 3000mg per day. you want to be aggressive against such an invasive virus. If that's too much... 1500mg might do it. it depends on her weight and size.
Hi Laura..hope you are ok?x
They are limited as to how many they let through AND get cash for turning you down. The Tory government are a criminal & terrorist organisation. They want to steal from the needy to feed greedy pensionscroungers. The generation that steals off everyone.
I’m looking at using these soon , cutting down my supplements and taking one multivitamin. The b1 and b2 seems quite high. I will only be taking one a day
The benefits of lysine supplementation are more related to its antiviral properties and less about directly influencing MS. There is no significant evidence to suggest that lysine can affect MS directly. On the other hand, BPC-157, a peptide with potential regenerative effects, is known for its healing properties in various tissues, including muscle, tendon, and nervous system tissues. Its regenerative capabilities suggest it could help in repairing the myelin sheath or nerve cells damaged by MS, although direct research on BPC-157 specifically for MS is limited.
Hi, have you heard of low dose naltraxone (LDN)? It's not a normal ms drug but immune system modifier. I'm starting it tonight. There is lots of good results for different autoimmune conditions including ms
Hi, no I haven't, good luck for you though 🤞
@@lauraironstalksms thank you very much
A great deal of the process is how questions are answered, both written and verbal. Never say words like 'sometimes', this is a 50/50, we don't have our conditions 'sometimes'. If asked how many minutes you can walk for, your answer, if you have limited mobility, has to be i don't measure my walking in minutes, but steps. You have to bring your conditions into the environment and let them know what it is like 'most of the time'. The 'enemy' is not the assessor, but the person with no medical background who issues the points for each of the descriptors, from the information provided. Under all circumstances, get a brief summary from your GP's practice manager, this is free and legally should be made available to you and takes no more than a day or 2 to collect. The DWP will not contact your GP, or any other medical team, regardless of what the GP receptionist tells you. If you have no medical papertrail, you will receive 0 points
What a rude dog lol. That would get you 0 points lol
I had a liver transplant and did not get pips
The pips don’t want me to got again ..
Hi since my last assessment I have moved to a bungalow with a wet room , will this go against me ?
I got my decision less than 24 hours after my assessment, this week. Dodgy af
For my first PIP claim I had to have two assessments after mandatory appeal In my first assessment they scored me zero second assessment I scored 4 went to tribunal where there is a judge because it’s a court a doctor and a disability specialist and scored 28 awarded full PIP never give up it’s what they want
Assessors have a target of rejecting 65% of cases. The case manager has no medical experience at all
I had my first episode of optical neuritis this morning. I woke up and all of sudden I felt like my eye was being stabbed. Vision was blurry, but the pain-OMG I couldn’t bear it. I start crying and screaming. My husband ran in our bedroom and no did not know what to do. I went to the ER and they gave me a steroid shot. It definitely helped. But my eye feels like something is in it nonstop. Tomorrow morning I see the specialist eye doctor. I’m scared. I don’t want to lose my sight. Thanks for sharing.
Hello How much time does take to get carars allowance approval letter
Been watching your videos and thanks for your information and advice, by the way gorgeous saluki dog you've got just like you ❤
luck seems to play a big part of the assessment, I got my pip based on my mental health but not on mobility which I am in the process of appealing , I hope My reassessment is a tribunal as I think it will give me a reasonable chance to show I need it ,,
What do I do about these old people, NHS, the Left, Employers and Government people in the benefits department who all conspire with each other deny me jobs and also deny me benefits and try to award me lower amount of benefits? How is a person suppose to survive financially?
Diagnosis should be enough for them. I can't stand having to do this each year. It's like they want you to fake it or lay it on thick in front of them so they can deliberately catch you out if you do. It's a ridiculous and draconian method. My condition worsens year after year. I still only get the basic even though I haven't been able to work since 1999 and have recognised mobility issues by my council and GP , I have never been awarded anything for my mobility from PIP. When I was on mobility with DLA previously for years. I'm suprised that they haven't asked for the money back if PIP claim I have no mobility issues. It's unbearable the stress of being unfortunate enough to have a progressive disabled that you are pressured to prove it when your diagnosis already proves it for you. I have more than 10 major disabilities. I get lowest standard rate on PIP. On DLA Before half my disabilities I received Higher rate care and I think it was mid rate mobility. Before I was diagnosed with 5 physical disabilities on pip . Bog standard for getting progressively worse.
I live next to a pip assessor,who has told me me that after stopping being an assessor. They are not fully trained in anything,apart from reading a computer screen. They get £80 per refusal,and that is better for their pockets. Never say sometimes,maybe,or anything they can twist. These people are profiteering,never trust any of them,they try and be friendly,but really after you to make a mistake they can use against you.
Hi Laura -- Thanks for all your valuable tips which you've been so kind to post. My friend Gretchen has MS, so I watched diligently to learn new tips from you, which I then shared with her. She says "thanks!", and so do I for providing this valuable service. Please come back for updates and just to say Hi, as you're a great communicator. 😊
Hi, I'm happy that some of my information has been of some value to you and to Gretchen. 🙌
Yes itis very difficult to get the PIP and to get the PIP assessment face to face I was apply 2 time and they was declined and the third time application I was right in the filed that I need one person to see my condition and after to take the decision. Then I was there and now i waiting to see what gone happen they was telling me that is for 2 years and after 2 years I have to go again with them . Please if you know how they are working and how much time will take I will like to know . Thanks
Hi, my friend was given pip in 2016, after going to court, and his health has not improved, but if they stop his pip, he said he will fight it in the courts because the decision that they made back in 2016 was wrong and he will pay back all of that money from 2016 even if becomes homeless in doing so
I had a review back in october filled the forms in sent them back and had 1 message off them 2 say they have received my review application but its now apirl still havent heard nothing ..every time i phone them i dont get through so ive got my local mp on to it ..still waiting tho
there’s a symptom that had been affecting my life,it’s numbness,happen to be numb from head to toe,
Did it go away
@@bonita2311 no since my diagnosis,
What a great video. I checked out description and you put everything in the video spelled out. I am taking this as my example and template for fasting
Such a pretty female to have such an awful illness and helping all with good advice. Thank you !
I am going through same I've got leukemia look fine but inside I'm struggling with aches pains and cramps in muscles find it hard to explain
Why do you have to go through this every 3 years? Even if you tick "no change"
Just got mine renewed for 4 years! So relieved because the job centre did me over on my esa!
you were lucky my assessor was a bare faced liar
Do you need a doctors prescription to get this?
Nope, it's a vitamin
Such an informative video, thank you so much for sharing.
Thank you for this comprehensive information on lysine. I’ve taken lysine for years to control cold sores. There have been times when I’ve forgotten to renew my lysine supply and have gotten a cold sore, but of lesser severity (size). During the C19 lockdowns I got shingles during a period where I was not taking lysine. My doctor prescribed the antiviral medication but it still took nearly two weeks to fully recover. I now buy a 250 gram packet of lysine powder and take 1/4 teaspoon every second day. I’ve have been considering whether to get the shingles vaccination but I’m wary about vaccines now, so I’ll just keep taking lysine.
Hi you're welcome, I know you can also get lysine intravenously, I told my sister about this as she gets cold sores in her nose as well as her lips (in was in her eye as a baby) she almost went blind. She can't take the big capsules so that's great to know there is a powder form, thank you. As for the shingles vaccination, here in the UK you are only eligible once you hit 70. Personally I wouldn't have it, I'd just stick to the lysine as it's never let me down.
i was very luck as well to have a lovely lady that helped me feel human and not as anxious i was exspecting something completely differnt i have another one coming up soon and hoping i have a good and fare exsperience good luck to anybody having to claim