The Impacts Of Multiple Sclerosis on Work
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- Опубликовано: 2 июн 2024
- Talking about my personal experience and challenges with having MS whilst working
0:00 introduction
0:20 MS impacts our working life
1:06 why can't I find work?
1:24 my working background
2:43 being diagnosed with MS
4:16 MS takes its toll
5:50 I shouldn't need to justify my illness
7:00 deciding to get back into work
9:10 getting back into work scheme for disabled people
#msawareness #employment #chronicillness
#multiplesclerosis #mssymptoms #disability #mssociety #raisingmoney
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So amazing! Came across your RUclips totally by fluke… I was a client of yours a few years ago. You inspired me to take a new career! Thank you and take care. Nye ❤
Having MS can hugely impact your working life, in this video I explain my own challenges when I was diagnosed and now even 15 years on
It was mostly my bladder, and fatigue that did me in. I was a teacher and you already have limited access to the bathroom. Add neurogenic bladder and it’s a recipe for disaster.
Pretty informative Laura,
The main cause of employers not calling back after knowing you have M.S is probably this: "a healthy and active employee works more,their absence is less", so they output more effort.
I think the more you target a virtual job that doesn't require physical activities (like driving) the more you'll be fortunate in finding a job.
As for politicians, I think the main problem is that they don't understand M.S, there's a stereotype that if you don't have cancer or a fatal disease, you're OK.
Take care
Thanks Mohammed agreed on pretty much everything you said! Hope you're well
Much appreciated
It's the twisted brain and emotional issues I have. It's hard to explain.
Hello, not yet been diagnosed with MS, but hope to see a neurologist soon to explain all these neurological symptoms I am having that are very much like MS. I already have other disabilities. I was made redundant from my job in January 2023. And - oh lord - 180 applications, 2.5 interviews and 1 work coach later ... I got nowhere. It is exactly 1 year further on. Exactly the same story as you. As soon as you let them know about your disabilities, you never hear anything back. Or the interview goes wonderful, but they run a mile on the disability thing. (Also, it is illegal for them to ask if you have a disability during an interview by the way.) And on top of that, the development of AI is in such a way that my career path is down the drain (I used to do websites, e-mails, ecommerce, digital design), because AI will take my "job" away in the next year or two. So, back to the drawing board. Reschooling like you do perhaps (I always wanted to be a pet behaviourist), but once qualified, will I be able to uphold the path I have chosen with my disabilities? Especially with all these relapses and uncertainty that is coming with it? On the other hand .... you have to start somewhere. I was always told that if you do something you love (read: work, study, or a hobby, or participate in something) you will find more of it and do more of it, and it should lead you to better possibilities. But like you, I too am stuck. I think I will just reschool and see what is happening. Perhaps - over time - another suggestion will be made to me I can use. As for the government, no use to look to them for help. Try - if you can - and help yourself as much as possible.
Hi, wow you beat me on the application number. Sorry to hear all this is going on for you 😔. I hope that you get some answers to what your symptoms are and if it is MS, know that you have a huge community of support around you with this long term illness.
A dog behaviourist sounds like a nice job. Maybe you could get the qualifications and train others so as to limit the amount of physical activity for yourself? There's lots of online behaviourists now too. Where there's a will and all that.
I agree about doing more of what you enjoy and what makes you happy, I think naturally it leads you to paths of work that you'll enjoy and get lots of satisfaction from.
Keep me updated on your diagnosis and good luck.
You should take your own advice a little too (where there is a will ...). :) There are plenty of professions in social and other health care that work in part or fully online too. Or where you don't have to travel far and wide for it. I guess time will tell. But, I truly start to believe that applying for jobs on the current job market as is (and it is getting worse!), is just not going to work. I really have to discuss these matters with my job coach and perhaps others, as I am going a little desperate. Can I ask: when you are more stressed, or when there is more pressure on you (good or bad), are you prone to have a relapse? Or do you feel it could come at any time? Personally, I get the idea it is mainly coming when I am stressed or indeed under pressure (or just coming out of it). My symptoms started in 2020/2021 with the famous eye problems (part blind, pain in eye, double vision - and no real answers from any specialist, etc.) up to the point that I end up with spasms, no feeling in my feet, pins and needles in hands and feet, and weakness in my right arm and both legs. And various other problems. My GP indeed thinks about MS or possibly a stroke I had in the past. My own "work theory" for now is MS until I finally can see the neurologist. I live in Scotland, and it can take up to a year before you see a neurologist! I understand Wales is pretty much the same. I have been waiting since August 2023. Anyway, enough about me. Thank you so much for sharing your "rant" as you called it. To me it is not a rant, it is just expressing your thoughts regarding the matter. I really feel less alone. Please, keep making your videos. I signed up last week, and I really appreciate them. I think many others can learn from you too. Good luck with your journey, and I hope we can chat a little again in the future. xx
I have Lyme disease in Ireland I had to fly to Armin labs in ausburg germany to find it these hidden infection s don't show up in UK or Ireland
Thanks for your comments, sorry you have Lymes disease, my friend has this so I know how debilitating it is.
Thanks for your concern re my dogs, but they don't have ticks and it's ticks that carry the disease. There IS also NO evidence that they spread the infection directly to their owners.
@@lauraironstalksms you should get checked out by my Dr in Dublin for hidden infection, Armin labs Germany sometimes ms is undiagnosed crypto infection very difficult to find , I'd doctor .eu best infection Dr in eu
@@lauraironstalksms I'f you go on green juice diet for 12 months you should cure your ms it's either hidden infection or toxicity
If only green juice was the solution to an MS cure 🙄
@@lauraironstalksms you need to find out what's causing it there is always a cause and cure in nature , you should contact armin labs in Germany or prof jack Lambert in matter hospital dublin , look up dr bob bransfield microbes and mental illness, infection cause a lot more then the people relis
do u live in the UK ?
I live in Wales 🏴