Multiple Sclerosis Bladder Issues: Three Most Common Problems
HTML-код
- Опубликовано: 2 июн 2024
- In this video explain the three most common MS bladder problems, correlating them to bladder anatomy. If you want to better understand WHY people have urgency & frequency, hesitancy or BOTH, then start watching this MS educational video right now!
Please share you experiences, opinions, questions and your comments below!
***********************************************************
LEARN about MS with me, Aaron Boster MD! I started this channel to help my own MS patients learn between clinic visits. I use easy-to-understand language to provide accurate and approachable Multiple Sclerosis education. So, if you’re impacted by MS and want to up your game, make sure to SUBSCRIBE to my channel right now!
RING the notifications bell so you don’t miss any of my future MS educational content!
***********************************************************
SHARE this video: • Multiple Sclerosis Bla...
SHARE video on 2 Bladder Pro Tips: • Multiple Sclerosis Bla...
SHARE video on Better Bladder Control: • Multiple Sclerosis Bla...
***********************************************************
FOLLOW on Twitter: / aaronbostermd
FRIEND on Facebook: / aaronbostermd
SUBSCRIBE on RUclips: / aaronbostermd
VISIT US on the web: bosterms.com/
VISIT us on web: BosterMS.com
***********************************************************
NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
Stellar video Dr B! I Learned allot about the kidneys and bladder from my kidney stones 4 months ago not fun! 🤯🙃😨
yikes!! ouchie!!
@@AaronBosterMD Correct! Haha and right before round 2
wow!!! blech! #MSWarrior
MATT Z same 😬
yikes!
As an MS patient, I thank you. Sometimes it’s all three, or they vary day to day depending on the mood my bladder is in.
I have awful retention. I feel like I have to “go”. Nearly all the time. When I try to go nothing comes out. Very frustrating and sooo uncomfortable.
Lots of treatment options for that Richard, ranging from pills to intermittent self catheterization. Talk to your provider please!
I need to show my Manager this video.
Thank you for your videos, this one especially. I have both problems. I struggle with walking so it’s been a nightmare when I have to rush to go use the restroom. I’ve had accidents so I reduced my water intake. Now I go to the bathroom & feel like I didn’t completely empty it & have to sit back down. It is very frustrating!!
I've been searching high and low for this information!! Thank you soooo much. As a nurse I still learned a lot!!
I have literally most of the ms symptoms, seeing a neurologist in a few weeks, pins, needless, fatigue, numbness etc. I see most diagnosed live fairly normal lives, if that in fact that is my case
How did your appointment go? :)
So not diagnose with ms but 2 yrs ago developed trigeminal neuralgia and since then have had a multitude of symptoms pop up. Severe fatigue, vertigo, numbness, tingling, and a weird crawling sensation. One of my biggest complaint is now whenever I need to urinate, it comes on suddenly and I sometimes can’t make it to the bathroom. I’m 40 yrs old and am thinking about adult diapers already. I have had so many accidents in the last two yrs. I’m public, in the car, etc... it’s humiliating. I have always joked that I had to pee a lot and in the past had recurring uti and bladder infections but years had passed and then suddenly I’m peeing my pants. At any given time I cannot be far from a restroom
did you ever get any help? your story from 3 years ago is similar to my present life!
I really appreciate these short and to the point videos.
Glad you like them!
That was so helpful for me! I often have to go and sit there forever trying. Sometimes my bladder feels empty after I do go and sometimes not. It's very frustrating! Thank you so much for sharing your knowledge!🙏🧡
Thank you for this video. I am waiting for a bladder scan. I did have an urgency issue but now I have an "I can't pee" issue. I also have numbness in my feet, shins and hands. Doctors thinks they are separate issues and is only interested in the bladder issue. Suspects kidney stones but nothing has passed yet. I hope the scan will shed light on it.
I like the suit. As funny as it sounds, gray is my favorite color.
copy that - another stellar video Dr. B! note to self - speak to neurologist about this.
TY runneranu!
Oh, one more thing! - When I was diagnosed, I was very low on Vitamin D (like most others) and hence started taking Vitamin D supplements. But after a few months started noticing sediments in my urine - the urologist confirmed that it was bladder stones. It never bothered me, so I didn't seek further assistance. But, later during conversation with another Dr., I found out that Vitamin D supplements had the tendency to show up as stones. My neurologist or my urologist gave this answer - as to why I was having it in the first place!! Thought, I'd comment this here in case someone is watching the video and reading the comments!
Howdy MS Geek! It's important to follow levels with vitamin D, so that we don't over treat the person. Generally speaking we shoot for ranges between 50-100 in most folks.
Neurogenic. i have had bladder issues for so long. I can take ages to empty my bladder. then i might need to go 4 or 5 times a night. Then i get urgency and quite often dont make it. I HATE my bladder lol. I have to take an antibiotic every night to maintain as i was getting infections regularly because of not emptying, but urologist didnt want me to have a catheter as my bladder is all over the place. thanks for your video it really helped.
When i did a flow test my urologist said it was one of the slowest he had seen lol.
Excellent vid. Have had neurogenic bladder for 30 years and no one has explained it to me. Had to learn on my own. My only question is about the meds. Sometimes, I feel like I am put on a new med just to feed big pharma. Don't know if docs get financial compensation but it feels like they are drug pushers! Meds are critical for me and I supplement with medical marijuana, which I discovered helps my bladder immensely.
Which strain helps your bladder issues?
Thank you for the much needed clarification! Since 80 - 90 percent of people with MS have either urinary or bowel issues, one of the first commandments is "Thou shalt make friends with your urologist"! FAST! When I first went to mine, a great guy, I told him "I should have married a urologist!" To which he added, "And a neurologist"! All rolled into one! We had a good laugh together! I take Oxybutinin now and Tamolusen (spelling?) and both have worked well for me, but we have to watch our diets and what we drink as well and when. I only drink decaf teas, mostly herbal! But , recently I drank too much Almond milk not realizing that the second ingredient is WATER! Sometimes, it feels like Niagara Falls below, but I'm working all the time to get a handle on the situation! Remember that old famous camp song, "How dry I am, how wet I'll be if I don't get to find the bathroom key! I found the door, I found the key, but it's too late, it's on the floor"! I've always had a weak bladder and my surologist said that's hereditary! Having given birth three times also contributes to a weak pelvic floor. My three daughters and granddaughters have the same problem, a weak bladder! When I went to Europe at age 20 I made sure I knew how to ask "Where's the bathroom" in different languagages! Bet you also know where all the bathrooms are all over the place as well!
Very informative, thanks.
Great video, thank you! I was just wondering how do we know if the symptoms that we have are from a UTI or caused by the impact that ms has on the bladder? Some of the symptoms (like urgency, or frequent urination) are very similar. Thank you!
Thanks for your explanation
Thanks for educating us, Dr
I must say, after 5 or 6 years, i got so used to Bladder urgencies, first thing I do when visiting new place is, scope new office, Conference Rooms etc & enquire about location of rest rooms - Yes, Urologist did the Ultrasound (Just before & after) for which I hate him for the inconvienience :-))
Thinking about it, I got used to many symptoms of MS - Double vision (Eye exercise), handwriting (O.T), walking difficulty (Walker), Fatigue (Naps), Bladder (Plan) etc - My Dr says do not drug yourself for individual symptoms, unless a big negative impact on lifestyle, "Learn to live with it" (Lifestyle Modifications)
Raguraman, I agree that lifestyle/behavioral modification is super important. Oftentimes behavioral modifications AND medications can have synergistic (1+1=3) impact on nasty symptoms.
Thank you Dr. B! This was very informative.
Thank you
Oh em gee. Doc, I've been watching your videos this morning. I am now in tears. Thank you thank you. Again, foolish to self diagnose, but when G.d brings answers, I listen.
G.d bless.
That was SO informative- thank you so much! I’m just wondering, is it possible to fluctuate between these 3 problems, because I feel like I do.
Thank you. I needed this information. I've been going through this for almost 10 months.
Thank you for this information, it helps me identify my issue.
Thank you. I’m scheduled for a scan in February and this really helped me understand what will happen.
Thanks for this info as it's the night before the home visit for bladder scan and catheter instruction
Thank you.
YW April
I like revisiting older videos by you. Thank you for all you do here! I have an underactive bladder, not sure which is worst out of over or under bladder issues. My urologist says for me to force evacuate several times daily though I don't feel urges to go. It's either that or cathing. So I am a HUGE water consumer, about 90 to 100ozs/day. That w/a cup of decaf as my heart beats too fast so decaf is ok. Even before MS i consumed this much water, no bubbles though I like San Pelligrino. Having Crohn's keeps bubbles away.lol I even installed an app on my phone for keeping track of water intake along w/breathing exercises to relax. Pretty neat! Its 4pm now & I'm up to 80oz already. Yet my bladder still doesn't think it's beyond full. As long as I force evacuate it helps against UTIs of which I get some but not as much as I use to. Happy water drinking!!!🤗✌🙏💧👏
Thank you for the video! How would MS make the bladder smaller? I thought the signals to the bladder are bad that makes your bladder think it's small but it's not. I rarely make it to the bathroom without leaking. I go fron zero to 100. I don't feel I have to go and then suddenly I can't hold it.
I can completely relate to this. I've had to learn to gauge distances and time for when the possibility of me having to go is. Sometimes I don't make it. Because the urgency just hits and then I suddenly get goosebumps and then I start leaking.
I love the chickens especially when they talk to whoever is filming them. The cooing @ the end is so interesting they seem to be happy. Thanks for the info.
Molly, when they are done molting (why chickens molt in winter is beyond me) I'll grab some more chicken footage! I joked with my family we should start a chicken YT channel!
@@AaronBosterMD I would enjoy a chicken yt channel especially if there was a factual narrative to explain care, breeds & other facts. Hope the lovely ladies have names.
They certainly do! I'll discuss it over dinner soon!
Last night i woke an hour into sleep with terrible bladder cramps and it was harder to go. When i woke the next morning things were fine
Very educational and easy to understand. Thanks! I did not know that flomax was being used for this, especially in women. Good to know.
yep! #WeHaveMS
Great and informative overview! Currently seeing a Urologist for this issue and on Flomax. I have some side effects but the medication is working.
Glad to hear it's helping!
Thanks for the info. Thumb's up~John
High Five!
Another brilliant video, thank you so much. I am learning so much from you. No one has ever told me my kidney infections - bladder issues had anything to do with MS. :-(
Oh no AK! I'm hopeful this video charges you up to talk to your provider!
@@AaronBosterMD definitely
Great video and all true in my case. I knew where every bathroom was located on my way to work. This went on for years. I had a urologist stretch the urethra but he said it usually doesn’t last and he was right.
ugg. #MSWarrior
Why only at work? I have an app on my mobile which shows me where the next public bathroom is located and I usually don't forget the location and access to a bathroom I've ever used. Some are tricky, like the one at Bayerischer Hof (five star hotel in Munich), where you might have to greet an employee and pretend you belong. It's always very clean, though and has these fluffy towels. :-)
I was just officially diagnosed but all these issues have impacted me-- for quite some time. Urgency as if UH OH gotta go!! Can’t hold it!!!! WT...
Talk to your provider for sure LA W
Thank you! Spastic bladder haunts me. I'm hoping to see a urologist soon.
Love the chickens!❤
Great info 👍 love the chickens 😁🐔🐣🐔💛
TY. They are currently all molting and look so silly!
@@AaronBosterMD .. I live out in the country, I've always wanted chickens. But it's way to much work for me.. yours are beautiful 💛🐔😁💛🐔😁💛🐔😁💛🐔😁🎅
Thank you Cheri!
Thanks Doctor! I was too embarrassed to ask my doctor.
my bladder story is before hesitancy ，is just not straight for years.
learn so much from this video,thank you dr .B
YW Nancy!
I also learned a lot over the last few weeks I had terrible annoying urgency. And thought uh oh here we go! But then came the pain and knew instantly what was wrong. Kidney stones. I was SO sick end ended up in the er, but at the same time I was relieved it wasn’t a new ms Symptom! Having a ct scan of the area was extremely interesting. Now have to redo my kidney function test before starting tecfidera 👍
Hang in there L C!
Dr. Boster.... great information on bladder problems. Do you Recommend your patients see a specialist if the problems continue?
Yes, a Urologist and a Pelvic Floor PT are two super valuable village members for sure!
I haven't completely been diagnosed with MS but my neurologist said it's pointing that way and has ordered multiple scans. This video explains a lot if that's the case though. For years I've had problems making it to the bathroom or find adequate area to urinate, seeing I work out in the open. I travel a lot for work and have had to learn to gauge distance and time in between urination, because the urgency suddenly hits, then I get goosebumps and then start leaking. Unfortunately sometimes the math doesn't always add up and I have accidents. Then there's the issue of never being able to fully drain out the bladder completely. I can stand there for minutes after I'm done and soon as I put up the equipment I leak out.
Many will find this video enlightening
Really excellent
Reminded me to buy a new hat as well, thanks
TY Mr Knowles! love the hat comment!
Lmao 😂
Yes I do have that problem now.
hang in there Suzanne
Thank God for you Dr! I have both problems 😭😭😭😭
Can I take medication for both at the same time?
Excellent info! But self-cathing can work when the bladder neck is tight?
Will MS cause the loss of feeling for the bladder and bowel? Where I can't feel myself go?
Great video yet again Dr. Have you ever seen a patient to be unlucky enough to have Ms and HSP ? My Neurologist has told me that I'm in that situation 🙄 The plan now is to start treatment in the new year, Rituximab seems to be the likely drug. He seems to be concerned that the treatment might do little for me cause if the presence of SPG4 (HSP).
I personally think it's worth trying! just my 2 cents
@@AaronBosterMD I fully agree :-)
fist bump!
Seems I have dysenergy. If Dr. Zaitoon doesn't help, I may be taking a ride from SW PA to Columbus, Ohio. I hope to that before gas hits $10/gallon.
Hi Dr. Boster! Is the bladder neck tight because of the brain telling the muscles to contract and not relax?
thats the question i wold like to see ansewered
I love the confused looks I get from the pharmacist when I go to pick up my monthly supply of Flomax. Getting botox injections in a few weeks so I hope that helps. According to my urologist, problem #2 that you described can also cause PGAD.
Flomax for a woman?!? LOL
@@AaronBosterMD "Flomax for a woman? Inconceivable!" (said in the voice of Vizzini from The Princess Bride)
LOL!!! LMAO!
Dr. Boster
I have secondary progressive MS and I’ve been diagnosed with interstitial cystitis. My neurologist and urologist disagree as to whether it’s MS related! What say you? Thank you in advance.
Christina
Greetings from Austria again ;-) Good VDO Dr. B and informative. Even though I do not have M.S. I find your vlogs helpful. Since my onset of Transverse Myelitis, it has left me with a neurogenic bladder and unable to pee plus a host of other things. I was lucky that I was a good candidate for Interstim, I have the newer version now, so now I have double implants. With the Interstim most all of my symptoms have been eliminated by the Interstim and I rarely have uti's and now I'm able to pee with little concentration. So my question is, has anyone with ms ever have the Interstim implant to help them pee so they don't have to cath themselves. Having the Interstim has given me some of my old life back. Thank you once again for your vdo's.
Thank you! Such great info as always and now I’m so much more confident going to a urologist!
I am in the uk I tried one medication for frequency but the side effects were worse than the frequency problem i.e constipation so after 2 weeks stopped taking it don't know if it's different in America
Dr B, is urinary hesitancy due to a tight outflow track? One thing that I didn't hear, but I'm curious is - how does the bladder problems (such as frequency, urgency, hesitancy etc.) correspond to demyelination in CNS. Personally, I have had the problem of hesitancy for more than 15-20 years before I was diagnosed with MS. But I never thought once there might be an issue my nerves :) - Thanks for the great video BTW!
YW MS Geek!
Thanks. Does the physical defects always exist or just happen iver time. Is there always a tight bladder/small bladder? Has the urethra always been narrow or closed small or does this just happen at the on set?
Thanks for the like, but no answers?
I have chronic UTIs that are asymptomatic that ended in me getting sepsis! Is this normal in MS? I have seen a Urologist and they have kinda just given up to the point that they just gave me self caths and a pamphlet and let me be on my way.
What are your thoughts on botox for the sphincter? I have an issue with retaining urine, complicated by the fact that my sphincter seems to close up after voiding about 4 oz., never more than 10 or so if I really need to go and have been able to hold it. The sphincter has also made it difficult to pass a catheter, so that hasn't worked to empty. I take myrbetriq to manage urgency.
Even though I'm retaining urine, it does seem to get out easily, especially after it's been a while. I haven't had a UTI or anything in about a year, knock on wood.
I'm in a wheelchair and am managing everything with a male urinal, and really trying to avoid having to install a suprapubic tube. One doctor mentioned Botox in the urethra as something that could help me empty more fully. What are your thoughts? Thanks for this!
I am still suffering Aaron. I may lose my job. 🤦🏾♂️🤦🏾♂️🤦🏾♂️
My bladder was neurogenic for the most part. Unfortunately no medication helped and I ended up having a urostomy.
#MSWarrior
How are you doing with a urostomy?
Let's not forget that many, many men get an enlarged prostate which can squeeze the urethra, completely independent from MS.
I definently understand this problem, but it's difficult when my anxiety appears distinctly causative of the problem despite no physical anomally besides lack of optimal privacy. Shy bladder is one of the worst things to accompany MS. I'm never certain it's my brains irreverant function or neurological disfunction causing the issues. I don't want to medicate or investigate the problem since just the investigation period with a urologist would probably give me a clinically significant anxiety disorder to accompany MS which I can't accept right now or ever. I need to work on this through investigating my self and determine what processes besides avoidance and installing more convienient bathrooms, for thousands of dollars, would be helpful to me.
I think I had scenario 3 before treatment and I was retaining 500ml on ultrasound. I've been self catheterising for a few years now and have bladder Botox injections every year. I now have my life back but remember the utter misery of retention. I've blogged about the experience if anyone's interested.
Dave, can you post a link to your blog here for us please?
@@AaronBosterMD Hi. It's davesmagicalbrain.wordpress.com There should be a tag cloud to select 'bladder', for instance.
Link, please, Dave :)
@@lada8595 Hi. It's davesmagicalbrain.wordpress.com and look for 'bladder' in the tag cloud. Thanks for your interest :-)
TY Dave!
It’s hard for me to tell what’s going on with my bladder. I take, Tizazadine. So, I don’t know if it’s my medication that is bothering me or if I have a bladder problem. 🤷🏻♀️🤦🏻♀️
Howdy Squatch Box, might be worthwhile to talk to your provider to help you sort it out! #WeHaveMS
I have a problem initiating urination. Gets very bad when I'm stressed. I also have to sit down to pee as I can't concentrate on keeping my balance and trying to pee at the same time.
Just posted your bladder vids to my FB MS group: MS & Me: Ladies Only Multiple Sclerosis Group
Recommended your website.
I need Flowmax!!
totally talk to your doc!
Does the bladder area ache with this too?
it can
@@AaronBosterMD My rheumatologist has been treating me for pelvic pain, urgency to urinate, numb feet and lower legs - he wants me to go see a neurologist because I am not getting any better. Thank you.
Just got SPC.
Is it helping?
Hi Dr Boster, so if I or one of your patients have both issues, you would treat with both Flomax and a drug like Sanctura concurrently? Thank you
There are times when we do end up using BOTH, yes
Marlon Brando had a flock of pet chickens
And he loved cats....
🚽🧻🚽🧻can I watch my water or liquid in take or will I still got go.
Long term use of oxybutynin can create cognitive issues
🙂
I pee in my pants often, constipation is more often
Botox!!!!
Very informative. Thank you.