Why ME? - A poem about M.E.

Dear M.E.,
No, scratch that. You M.E. shall never be worthy of the word 'dear'. For you, M.E., are poison in my mouth. Your name fills my very soul with anger, with fear and with pain.So, M.E., would you like to tell me just what you are doing?
What gives you the right to enter our bodies?
What gives you the right to break down our lives, taking most things that mean the world to us and leaving us with so little?
Why do you bring such pain to our bodies, the crippling, squeezing, aching, burning pain? Why do you make heads throb and fuzz, reaching, searching and grabbing at every last coherent thought?
Why do you take every bit of energy from us when we have done so little? Taking our ability to use our bodies how they were intended to be used, and replacing it with wheelchairs and walkers, making it almost impossible for some to even use them. The times we can use them, feeling anxious, self-conscious and the center of attention. Feeling small and vulnerable.
Why do you have to make every day tasks almost impossible? Carers doing things others take for granted, grasping at the last things we can do by ourselves and trying to keep our dignity in tact.
Why do we get so dizzy, so nauseous, just because we want to sit up a little? Why do you have to make the room spin and stomachs clench? Why is everything so hazy and vague? M.E., do you have to make us forget things? Do you have to make words in our heads but not let us speak them?
Do you have to make even just breathing a task?
What do you think you are doing, M.E., taking friends away just because we were lagging behind a little?
Why oh why should we lose loved ones, just because we are a little different to everyone else?
Why do you have to seperate us from normal lives, making us stay put, trapped in time, while everyone else carries on around us?
Do you have to make it so hard for people to understand? Why are you so complicated, M.E.?
Why do you make yourself so hard to believe in? Couldn't you at least explain yourself to doctors, so that we can get the appropriate help we so desperately need?
Oh M.E. look at the damage you've done... Do you not even care that you have destroyed so many lives? Not just the sufferers themselves, but the people around them?
I want to be hugged again. I want to be able to go to college and get qualifications. I want to be able to walk, to do normal things without pain, without suffering. I'm sure that's what everyone wants...
So please, M.E., as I'm asking politely, can you leave? Take your burden and leave. Even if you don't, I won't stop fighting you M.E. I shall never give up. You won't defeat us M.E., you wont defeat ME.
Reign x

[@MyMEStory]

Brilliant. Thank you for being brave and sharing. Love when you say why do you have to be so complicated and hard to understand, M.E.?!

[@ItsBeccaAnne]

This is just so amazing, emotional and powerful all at the same time xxxxx

[@PollyRizzleKicks]

Thank you so so much!!! Xxxx