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- Опубликовано: 5 сен 2020
- Just a small video based on my journey dealing with Akathisia. I explain to the best of my knowledge the causes, and how I’ve managed to work my way through while dealing with the powerfully uncomfortable sensations. Akathisia is generally misdiagnosed as anxiety, and patients are forced to endure this neurological condition alone, without support or guidance. To anyone out there watching, please don’t give up, healing is progressive and you’ll reach your final destination of true healing ❤️🩹 in time.
I overcame akathesia once before. It took a while but it eventually faded to a point where i could accept it and would forget about it occasionally if i was busy, then after that it faded until it was gone. This process did take a few years and there were some rebounds along the way. I would not wish this condition on my worst enemy.
I’m in my 7 th year of this bullshit , The brick wall I have hit in the lack of education in all fields of mental health professionals is Fn heartbreaking. Good on you mate for taking the time to tell your story.👊🙏❤️
You are a good man - God bless
I have been through this and I agree with everything you have said.
Thank you for this video. I can empathize with you. I developed akathisia 8 years ago from Xanax withdrawal. I’ve been dealing with it since then. I have not been able to work, and am really struggling at uni. I have found it next to impossible to get help for it. Psychiatrists just don’t believe us, they say it cannot last more than a few weeks. I’m slowly on the mend. Akathisia is a special kind of hell.
Hallo Cole, stumbled on your video now. Sort of bring me into the picture on what i have been experiencing, between treating the anxiety and trying to cope and landing worse of when thinking meds will help. Will check out the vids...take care if yourself
I'm going through this now. I just found out what was wrong eith me this whole time. I'm really suffering and I hate that anyone else has experienced this. Effexor and then my dr adding Geodon is what put me over the edge and 2 pills later I'm totally disabled. I'm looking for anything to help as my dr was the same and referred to it as "restlessness". Thank you for sharing, it helps just to hear other people
great video man really helps me in the hardest part of my life.
You’re welcome 😊
Thank you for sharing your journey. I am going through this with my mother at present. This is medical induced epidemic from what I can see and there is such limited help
You’re welcome 😊
Unfortunately there is such little help out there so I’ve made this channel to offer support and hope for others.
Great video, Cole! Liked and shared. So sorry you are suffering from akathisia. We have a lot of people at Benzodiazepine Information Coalition that are benzo harmed experiencing akathisia upon reaching tolerance or from cessation. I really understand your frustration with the medical system. You are not alone.
JC Curle Cheers mate, thanks for the support 😊👍
I 100% believe you have this, but damn are you calm in this video. Hope things are getting better in your healing journey. Thanks for sharing!
Thanks man🙏
Yeah, Akathisia for me has its variations in intensity. I get periods when I can converse for a while quite normally, but you’ll still see me taking in deep breaths in this video for a little bit of relief. I really wish i can be free from this horrible condition in time. 💪
Brave stuff mate. Keep it up
Cheers mate 😊
This process can be brutal. I tapered off a medication called clonazepam for 8 months after 3 yrs prescribed by doctor. Im now 40 MONTHS off and still sick most days. Good luck to you friend.
Hey Cole, I’m Tyler’s mate - I really feel for you and have been through 1% of the symptoms you’ve had with other meds before. Akathisia is the absolute worst. Rooting for you subscribed :)
Thanks Esther, means a lot 😊. Yep Akathisia is a beast, been hit on and off with waves of it for about 4 years now, hoping it subsides as I continually taper down. Cheers 👌
Hi Cole, sorry for what you are going through. Dr. Mark Horowitz is a psychiatrist out of the UK and has great information about the safe tapering of antidepressants. He himself was on them for 20 years and knows the horrors of withdrawal from them.
I encourage anyone considering going off the medication to check him out. Hang in there Coke and we need to believe that we are coping machines and we will get through this.
Thanks for posting this. I am in the same boat. It started after coming off Escitalopram (SSRI) five years ago. I feel like crawling out of my skin. I have: brain zaps, inner restlessness, zapping/crawling sensation under my skin, severe fatigue, sense of impending doom,difficulty concentrating, difficulty doing normal activities, eg, driving, some anxiety, zero motivation. It is truly hideous, and made worse by the fact that doctors and others don't understand or appreciate it. I find low grade exercise like walking can help a tiny bit, as can propranolol, but not a whole lot. It has really wrecked my life. I hope you are doing well and seeing some improvement in your condition.
Hey Matthew I’m very sorry about this. I really hope in time you can see some improvements 🙏. Yeah you’re right, the worst thing about this is that no one who hasn’t experienced this will believe you or really want to understand what’s happening to you. It’s criminal how these doctors dispense these drugs with no informed consent, and get away with it. Thanks very much 😊. The reason I post these videos is to raise awareness, and represent those who are in the same boat. All the best man 💪
Hi Matthew - I came of Escitalopram over a year ago & I'm in the same boat as you. I feel permanently damaged by the drug. If you would like to talk my email is: katanawaves@gmail.com
Matthew im in the same withdrawal hell right now. Its absolutely dreadful waking up with the impending sense of doom. The burning nerve pain. Memory loss, insomnia, my body just wakes up shaking trembling, the horrible suicidal thoughts.
@@1MNUTZ How are you guys doing now? I'm also dealing with this
@@matthewpadilla9825 hey there, still battling day by day. I’m nearly off the drug now, it’s very painful. Akathisia eases at times, but it’s always there for now, but not forever.
Hope you’re going ok 👌 man.
I got my Akathisia from a Paliperidone injection, a jump from 75 dose to 150 which apparently is normal? I developed symptoms within a week. Worst feeling I have ever endured.. I honestly didn't think I would get better. It took me a full year for the inner restlessness to go away which is the true hell we face. I lost my job back in 2019, and have been a mess ever since.
I'm lucky in some way that the main symptoms have gone, but you still don't feel 100%.. moving forward but there is hope depending your health & age! It really can change you as a person if you survive, I can tell people would get suicidal with this because it's a very hard fight, I had to be hospitalised quite a few times since and I have developed a burning throbbing ache in my calves as a result.. doctors don't know what it is..
Honestly drinking alcohol and listening to music all throughout 2020 is what helped me get through it, especially smoking weed to a degree.
How frustrating is it? The longer your in the system for, the better doctor you become. I theorise psychiatrist know about these side-effects, but don't mention it because they will be without a job!
Your not alone man, I will be uploading a podcast soon of my experience and creating more of a voice here in Australia to change our view on mental health treatment!
Thanks 🙏 man. We have to keep fighting and raising awareness. I really hope one day we can heal and live a normal life 😊
All the best.
@@livingunderachemicalinflue5849 Yup linking with Akathisia alliance is a Start.. hope you fully recover dude! It may take more time but you'll get there!
@@livingunderachemicalinflue5849 Hey man, it's sin after sins here.. can't log back into that account but making this new account to announce who I am, I've got one video up and will continue to spread awareness.
I’ve been and I’m still going through it since my PAWS started when I quit my SSRI. I still get it in certain phases of my menstrual cycle 19 months off. It’s the most horrible vile feeling ever. No one can understand so I do not talk about it. It’s incredibly lonely. Thank you for making this video and raising awareness on the severe damage and pain these meds cause.
All the best on your healing journey.
That's the worst part there's no support or understanding from the medical services. You're proscribed these medications without any knowledge of what they can do. When you want to get off them they wash their hands of you.
Hey mate, I'm from Australia too and you inspired me to upload my own experience. I think doing Vlog's about our condition is so important. Our voices need to be heard, we need to start a movement in Australia to lift stigma, and stop psychiatrists ruining lives. They are getting away with murder, and our voices in the community isn't get heard, because we get swept under the rug with our rights taking away. We need CHANGE!
Thanks very much mate 😊 It means a lot to me reaching out to other people and getting them to open up about their own experiences with the medications and the corrupt system itself. Great work getting your experience out there in the open for others to listen and learn from😊🤛
jayden i’m aussie too mate going this hell. do you have a link to your experience.
@@snafu22 Just follow my RUclips channel bro. I’ve got everything there 😊🙏
Yeah here in Australia I try to explain my four years PAWS to Doctors but they look at you with that look of confusion. Cymbalta is the devils drug. I continue to heal slowly but surely. Things improve over along time. Crazy Doctors need education now. I know where the increase of suicide is coming from....the doctors office. Keep going mate good luck 🙏🏻
@@brendansmyth5053 thanks ☺️ mate
Been on multiple antidepressants over 30 plus years. Withdrawal symptoms terrifying so hope I never have to go off.....
Do what’s right for you man 😊
I had akathisia from Valium. Have some videos on my channel. Thank God it's over
Hey man I hope you have fully recovered now.Could you mention the main component of the medication that plunged you into akathisia?
Hey there, unfortunately not man, still fighting hard on the daily. I’d say it was a combination of taking the drug long term, and a very fast withdrawal 🙁. I’m still in the process now of weaning off the offending drug.
I'm going through this right now. It's awful. I'm not coping well.
Hold on tight and keep fighting 🤜🙏🙏 You’ll heal in good time 💪
@@livingunderachemicalinflue5849 thank you so much
So its been two years for you , do you find some improvement since the begining of your problem ? Stay strong
Hey Kromi, the more I taper the more I feel true healing is taking place. Thank you, nearly 50 % tapered 😊🙏
I have this it's torture I also have shaking weakness off balance,😢
Stay strong and hang in there. You’ll heal with time, resilience and perseverance 🙏
l just started taking Lutada and after the second day, l decided to stop the medication imidiatly, because l started developing Akathisia, l felt really bad
Than, after l stopped the medication l started to get back to normal.
l think that the doctors should be more careful before prescribing anything that causes that, because people might feel even worse and start having bigger issues with their mental health.
I'm on meds but was given abilify took one dose and had the restless body syndrome I call it. If I ever get off the meds I'm on WD triggers it too
I had it, Akineton helps
How r you today? I hope everything gets better. I'm experiencing withdrawal from both benzodiazepine & antidepressant. What helps me is changing my diet, have u try it?
Iv heard of folks getting this with simple medications like for nausea
Yes, that is true.
Hi Cole how are you doing now? I pray your healed
Thanks 😊
Akathisia is near non existent at present, just healing from the drug damage now.
Are you taking any supplements check out alternative to medicine in Arizona
I just realize this was 3years ago how are you now?
I take good quality EPA/DHA oil, good quality magnesium for sleep. No more, no less. Yep, akathisia component has done its course, now healing from the traumatic neurological injury. Taking it day by day.
I developed akathisia and body tremors after I got off Xanax and it was literally hell ,to make matters worse I was also floxed by ciprofloxacin which I took when I was on Xanax .Imagine the moment you woke up and couldn't control yourself and feeling the need to start walking involuntarily from morning till sunset for 8 hours every single day ,and the feeling derealization and depersonalisation that makes you feel the world isn't real at all. The only thing I could do after sunset was lying on my bed staring at my room ceiling and cry. I almost tried to end my life because I was feeling so suicidal,am back on valium and zoloft ,Lyrica and I feel a lot better least I could stop the akathisia but this time I'm going to take it slowly to taper it off. Akathisia from what I found out is the loss of dopamine neurons that regulates movement and motivation, and guys stay away from fluoroquinolone antibiotics such as ciprofloxacin , levaquin and avelox, they will make you feel like life is in hell X 10 times worse off than any drugs you have ever take with the possibility of permanent disability or even death.
Thanks for your message. Yep, Akathisia is hell on earth, if you haven’t experienced it you wouldn’t believe it existed. Absolutely, definitely a correlation of down regulation of dopamine neurons, chemical imbalances within the brain caused by synthetic neurotoxins we’ve consumed. Slow tapering is the way to go, allowing the CNS system to stabilise, regulate at its own pace. I wish you the best in your healing journey.
@@livingunderachemicalinflue5849 Thanks pal, I'm gonna take it pretty slow and unfortunately I was floxed at the same time and literally both of these two drugs has similar withdrawal symptoms, I hope you are doing fine , and I hope you could help me spread the awareness of the danger of fluoroquinolone antibiotics such as cipro ,stay away from it,the side effects from taking it can potentially caused permanent physical disabilities. I wish you all the best in your recovery too. Stay safe and keep going.✌️
@@melvyncarrot4741 i was floxed almost 10yrs ago. Took about 2yrs for most of the symptoms to fade. Was lied to by docs and given an anti-depressant mid last year, only took took it for 7days which resulted in several emergency room trips. Been almost 10months now in withdrawal (headaches, tinnitus, hyperacusis, uneasy panic attack like episodes). Stay away from ALL meds, unfortunately only once youve been affected you realize how corrupt the whole system is. Wishing u guys well.
Did you develop akathisia when you were on the med? What med caused it? Are you off now and for how long? How’s your symptoms. Thanks mate
Hey Dustin, I’ve developed Akathisia coming off the drug, Effexor has been the drug which has caused it. I’m still fighting to come off the drug unfortunately, I’m 86 % off the original dosage of 37.5 mg, but it’s taken me 4.5 years and this is my third attempt. Ive been on these meds for 16 years in total, my first drug was citalopram at 40 mg for 9 years.
Symptoms are pretty rough mate, daily severe head pain, ototoxicity ear pain, inner terror from the akathisia, cognitive decline, severe fatigue, gut problems, eye pain, depersonalisation, nausea, irritability, i could go on. Just battling through every day to get through the best I can.
@@livingunderachemicalinflue5849 what about trauma? Are u scared that something that can happen again because of our anxiety? When i am scared of sth i always remember the most brutal withdrawal expirience.
@@mitch5222 after going through this sort of hell and slowly coming out the other side, nothing scares me or puts fear into me anymore. The trauma aspect is something I’ll need to work really hard on, releasing it from my body and healing from this traumatic process. 😊
@@livingunderachemicalinflue5849 i am scared even more cos i know what can happen in future. I wish i had your mindset. Cos i am scared of dying and getting old and i dont like it so how can i be strong? Thanks
Hi. Im not sure if you will get this, but Im going through beyond horrific akathesia and similar experience to you. I need help and support. Is there any way you could help me? Thanks 🙏
I’m sorry but I’m putting all my energy towards survival at this point of time. I make the occasional RUclips to advocate for our community when I’m able to. There’s plenty of support in the online groups and through psych drug coaches. Stay strong 💪 😊.
I know it's hard but you have to put all your focus on God. Claim your victory go to your secret place and keep praising God and keep thanking God for healing you in advance. You have to believe the healing is happening and will happen and eventually over time it fades away. The body is designed to heal itself it just takes putting your focus off the symptoms and rebuking them. I know the fear is the big problem it causes doubt and hesitation but you have to put away the fear and replace it by focusing on the light. You will heal I went through akathisia for over a year pacing 15 hours a day non stop and it went away when I put all my focus on God. I also recommend doing an extended water fast and cutting out all stimulation and stimulants.
Hello, can you help me? I have a Light akathisie but nobody knows about it, no doctoc, nobody. I dont know if i do something wrong. I live in germany. I cant understand english very well, maybe we can exchange Text eachother. Iam lost and have a lot of fear that Not will be stopped each Day. I have 2 Kids (1 und 3 years old) und its very Hard to handle. So i decided to Take 5htp, 50 mg a Day Because i didnt sleep for weeks. I also started smoking , because i thought it will helps a little bit, then i stopped and akathisia was stronger, now iam addicted to cigarettes. I dont know i should tapering smoking or not. I dont know if it stopps when i take 5htp and smoking cigarettes. Wish you all the best, desiree
Hey there, psychotropic drugs caused it for me. I had to slowly over many years taper the drug for my akathisia to improve.
Cigarettes helped take the edge off for me but nothing else. Cold showers and pacing, walks helped me with the inner restlessness, chemical terror.
I’d recommend joining akathisia alliance and getting support, guidance from there.
akathisiaalliance.org/
All the best 😊
What was the antidepressant? Did you taper or cold turkey?
Celexa and Effexor. Both cold turkey, reinstatement to stabilise and taper while dealing with severe paradoxical symptoms, reactions.
how long did you took anit depressant ?
which one you took ?
17 years in total. 9 years on 40mg Citalopram and 8 years on Effexor 75mg including taper down to 0.30mg.
Hey dear have you tried omega 3?
Hey there, yes I’ve taken omega 3 daily for the last 3 years. I’d like to believe it’s helping me 😊
@@livingunderachemicalinflue5849 it's the only thing that has helped me to get back together.. Do you take any other supplements?
@@mv8908 glad to hear it’s helped you.
I also take magnesium glycinate, high strength zinc, N acetyl cysteine, and L theanine along with a healthy diet 😊
This why most people drink heavy on the meds to relax and smoke and use weed
I never did, just leading yourself down another rabbit hole with those approaches. Everyone has their own way of coping with this condition. It was more of a survival game for me. Cold showers, pacing helped out a lot.
@livingunderachemicalinflue5849 hot saunas helped too. I was bad porn addict
And the drs blame and shame relentlessly.
Shame on those who do such things.
Hey Cole how you traveling mate
Hey mate travelling pretty rough, how u going ? 😊
Cole robertson Sorry to hear, still an up and down battle for myself. Keep in mind I’m someone who also stopped taking anything. Have you made much more progress with tapering off? And had any changes with anything
@@antons4419 that’s ok mate. I’m going to drop another 5 % soon, so 65 % in total. If I can be honest mate everyday is a war, the affects are insane, head pain, dizziness, tinnitus, internal tremors, extreme fatigue, it’s like the drug has this psychological grip on your brain and doesn’t want to let it slip. I get these little glimpses of clarity, and confidence so I just hold on to these positive feelings and keep fighting. It might take me another 5 years to feel great again, and for that I won’t give up 💪💪I hope you see some improvement Anton, always here for a chinwag whenever you want to reach out mate 😊👍
Take care and keep fighting 👌
You still work mate? You also have a lot of anger to these drugs companies? Or can you cope with that
Best wishes you look like a nice person. So keep going
@@grv91vr23 hey man, unfortunately unable to work at this moment due to drug damage. I do have a lot of anger towards the medical establishment and pharmaceutical companies which know the dangers of the drugs they prescribe, but only care about profit margins. It’s quite sickening.
At the end of the day the best thing I can do is raise awareness around the topic, and help others in similar situations. This is the best way I cope and free myself from this very difficult and long road to healing, recovery.
All the best mate 😎👌
Can I DM you? I am going through the same thing...Still tapering?
Hey bro no problem 😊 All good 😌
How can I reach out to you?
@@maciejjakubowski8282 feel free to contact me on Facebook messenger if you’d like 👍 Cole Douglas Robertson, you should find me ✅
@@maciejjakubowski8282 hi Maciej how are you?
Are you from Poland? I am Polish and going through withdrawal too. I wish you fast recovery Maciej. If you would like to talk I would be very happy to chat with you.
Take care.
Revelation9:21. Neither repented they of their murders, nor of their sorceries, nor of their fornication, nor of their thefts.
KJV Bible . Sorceries was translated from the Greek word , Pharma. Where pharmasutical comes from.
I believe this. The Bible says in the last days that "Pharmakeia" is what will be used to deceive the masses. I was certainly deceived by them and now I am in a situation identical to Coles. To see who is behind this all we only need to look a little harder at these institutions. Take the medical field for example. Why is the symbol for medicine the "staff of Hermes" with the two serpents intertwining. The staff of Hermes was the rod of the Greek god used as protection over "thieves" and "businessmen" or "commerce". It was also a symbol of alchemy. But to see who is really behind it just search a picture of the baphomet and look at the symbol that is depicted in his belly. It's the rod of Hermes. Pretty ironic. I always found it so eery that people while on these substances that experience hallucinations because of a psych drug often testify that they are demonic in nature. One testimony I remember hearing about was Jordan Petersons daughter who came off of an ssri and I remember she said she saw a demon on her brother. These things are most certainly a tool of the devil. But we know how it ends for him and the devil answers to God. One truth I remind myself of is "no weapon formed against me shall prosper". And I know this is true:
"Neither death nor life, nor angels nor principalities nor powers, nor things present nor things to come, nor height nor depth, nor any other created thing, shall be able to separate us from the love of God which is in Christ Jesus" Romans 8:38-39
Pharmakia.
Akathisia is a nervous condition, it is not anxiety
I know, if you watched the video i said akathisia is an adverse effect, drug induced effect on our central nervous system.
Its actually a sign of brain damage.
I'm on antipsychotics in the same boat.
Yep I know that. The brain is plastic, it has the properties of neuroplasticity and the ability to rewire, heal over time.
influence wasn't being a weapon ,. Just didnt think you knew . Hope your doing well bro keep on trucking .
@@danielcarney3487 influence wasn’t being a weapon ?? Come again ?
Same to you whatever it is you’re going through 👍
@@livingunderachemicalinflue5849 it's a Irish saying means a dick or in Ireland we would say wanker haha and yeh akathisia is the worse . Hope its improving for you though.