The major problem is that ZERO medical idiots have ever heard the word and would have no clue of what to do if a person has these symptoms. I bet there is no one in medicine watching this video! If you are, please make yourself known…
I took Latuda. I got akathisia. I wouldn’t wish it upon my worst enemy. You feel like you have an exoskeleton trying to jump out of your skin, at the same time bugs crawling out of your skin like the movie the mummy, then add in the worst anxiety you could imagine, plus you can tell your body is so tired but your so jittery you can’t sit still, your mind feels like mind is going crazy, and it’s so bad I could see anyone wanting to jump off a building for it to stop. I went to the hospital they gave me both properal and 4mg of Ativan (what the doc in this video mention) for me it barley made a difference. 4mg of Ativan normally knock me out for 2 days. My symptoms lasted 48 hours. Maybe this example will help put it in perspective. I was an opioid addict, I went to rehab, and experienced the terrible withdraws. I would rather go through opioid withdraw for months over 1 day of akathisia. If I had to experience that again for 10 days, I wouldn’t have been surprised if I had killed myself.
Akathisia is the most inhuman horrific injury there is on the planet I've been dealing with it for 7 years now it's so much worse than words can describe
Akathisia is caused by neurotoxicity. Psychiatrists use neurotoxins (psychiatric drugs) to disrupt and damage the normal function of the brain and nervous system. Inducing the same symptoms they claim to treat.
@akalucinda8821 There aren't any words to describe it. Have you ever tried to explain it to someone? It's impossible to explain. It had to come straight from HELL! You've been dealing with it for 7 years. I've been dealing with it for 2 years and 4 months and I don't know what to do. Do you have mental terrors and the movement? Do you see a Doctor or have you found anything that helps? I can't even find a Doctor that understands it.😢
Akathisia is the absolute worst I’ve ever felt in my life. I experienced it from an anti nausea medication called Metoclopramide (Reglan). I only experienced it a couple times and that was more than enough so my heart truly does go out to people that deal with it long term, it’s truly living in a hell like state. Great and informative video!
Reglan bud it did it to me after I recovered from risperidone induced akathisia, it took many months but I had occipital neuralgia and wanted to puke so I went to the ER at UoM and they gave me in IV of Reglan to treat the nausea and I ended up experiencing akathisia very severely in the ICU and because of that, I accidentally said I wanted to die because of how bad I felt I was thrown into the psych unit at the University of Michigan and they put me on the ground in the waiting room because there wasn’t any more seats with a blanket and made me wait there overnight with akathisia, they give me benzo they give me like Ativan or something and even after I waited all night to a see a doctor to see what was wrong with me. they then transported me like like an hour and a half or two hours away from the hospital after waiting an entire night in psych waiting room because there was no more beds. It was very terrifying to experience akathisia from Reglan after what I went through with risperidone, I was 20 years old and in pain, I could’ve died If mental health matters, this is a huge red flag, for a health care industry ti not provide proper and safe etiquette health to everyone should have heads turning, people have lost their lives to akathisia
@@JZGreengo That’s absolutely horrible. I hope you’re recovering now. Some medical professionals really need to be educated on how debilitating Akathisia truly can be.
I took Latuda. I got akathisia. I wouldn’t wish it upon my worst enemy. You feel like you have an exoskeleton trying to jump out of your skin, at the same time bugs crawling out of your skin like the movie the mummy, then add in the worst anxiety you could imagine, plus you can tell your body is so tired but your so jittery you can’t sit still, your mind feels like mind is going crazy, and it’s so bad I could see anyone wanting to jump off a building for it to stop. I went to the hospital they gave me both properal and 4mg of Ativan (what the doc in this video mention) for me it barley made a difference. 4mg of Ativan normally knock me out for 2 days. My symptoms lasted 48 hours. Maybe this example will help put it in perspective. I was an opioid addict, I went to rehab, and experienced the terrible withdraws. I would rather go through opioid withdraw for months over 1 day of akathisia. If I had to experience that again for 10 days, I wouldn’t be surprised if had killed myself.
I had restless legs syndrome and akathisia from Quetiapine (seroquel) and when I was given Pregabalin it stopped. I went off Pregabalin for about a week and I thought it would come back but it didn't. I think high doses of Pregabalin do more harm than good so I've kept it at 75mg twice a day, when the Fibromyalgia is really bad I take an additional 25mg in the evening but go back to the normal dosage when it eases off. My doctor said it may get worse as I get older and wants to keep me on a lower dose for as long as possible so that I don't run out of options and also to prevent the bad side effects from pregabalin which gets worse with higher doses like anything higher than 150mg twice a day. I know someone on 300mg twice a day and think it's too high, if they forget a dose or run out they will have really bad withdrawal symptoms.
My son is having it. They dropped him with all kinds of antipsychotics in prison and now he is like a fox, non stopping walking in the house for almost 24 hours
Yes they give out quitiapine in prisons like candy. Just for a quiet life for the screws. They have no idea the ramifications this filthy poison causes. Worst than heroin apparently worst than benzos which in my experience are the devil. He'll on earth. It's a disgrace.
I m so sorry for your son, I also went through akathisia so I can only imagine what he’s feeling like. Why they give so many people Antypsychotics in prison? To me it sounds like some kind of psychological torture…
His mental state, memory and ability to focus are all going downhill as well; you may want to try to mitigate how many or else his mind goes to waste. This hit my mind so hard if he is not schizophrenic or the diagnosis's you might want them all double checked and make your own judgements.
@@bradm9339I'm sorry your son is going through this ,please get him a doctor who can titrate him off these antipsychotics. He needs to be on a diet that helps restore his dopamine levels in the CNS.
Not a single psychiatrist and ive met 20 + have ever even mentioned it. im actually surprised my current psychiatrist knew what it was, when I described it from what she prescribed. a lot of psychiatrists are clueless about it
I was illegally forced to take antipsychotics against my will when i presented with no symptoms at all. The reason they did so because i asked a controversial question about a certain medical intervention. Ive developed a movement disorder since. Knowing this was also a potential, boils my blood with rage. They should be charged with attempted murder!!!
I’m so fucking happy I don’t have to deal with this anymore. I was put on heavy doses of antipsychotics because I went into deep psychosis after years of drug addiction. They only gave me five 1mg pills of Ativan because I was an addict and they never prescribed them again. I suffered for years with this. My dad thought it was me being high on meth when I couldn’t keep still and he would yell and scream at me to sit down and stop literally flailing my arms and legs around because it was making me further lose my mind. But it was the antipsychotics. I had been a high functioning addict for years before I inevitably went into psychosis. Meth never once did anything like that to me. It caused me so much more added stress having these symptoms on top of the psychosis and the on and off again withdrawal symptoms. Ive been clean for almost two years (will be 2 years on July 12). I’ve been off of my anti psychotics for a year and a half now. Still dealing with delusional thoughts/beliefs and hallucinations but I’ve learnt to coexist with it. Don’t do drugs, kids. Seriously.
if you get that side effect you should absolutely ask for a lower dosage, doctors just want to keep you safe but make it worse, your life is more important than being stable
Thank you Dr. Joseph for this presentation. . Akathisia is an iatrogenic injury, and I experience it as an inability to be at peace. . Do your own research! Millions of individuals, families, and communities have been harmed and devastated by following the advice of psychiatrists. . God bless anyone who has been inaccurately diagnosed and injured by a psychiatrist. I pray for PEACE for anyone experiencing AKATHISIA, and offer my FORGIVENESS to anyone who knowingly or unknowingly prescribes toxins as medicine. Art
Bless you for your kind prayers. I can take pain. Straight forward pain that can be eased somewhat by some means., but akathesia goes beyond agonizing and there's nothing that eases it. There really are no words, but you're right. No peace. No respite for even a second. It's the loneliest suffering too. My prayers are in abundance for anyone suffering but I'll be honest. I have no forgiveness in my heart atm and that's another tragedy. This is no way to live. 😢
Four years ago, i was floxed by cipro during my klonopin taper, two months later,I fainted at home and had a seizure,during my admissions to the hospital,the doctor give me a Benadryl IV drip to stop the convulsion ,upon injection ,it sent me into a non stop pacing for the next 5 months,i nearly end my life because of the mental torture from akathisia . Today i no longer experience akathisia ,though i still have a long route ahead of my recovery from floxing. To those out there going through this mental hellhole,please hang on there ,the akathisia will stop one day .Keep fighting ❤❤️❤️❤️
Akathisia felt terrifying and I wanted to bang my head against the wall. It led me to go to the ER because it was during the weekend and I felt like no one could help me. Benadryl helped me but I remember rocking back and forth crying non stop for 6 hours. I don't know if I made the right choice but I felt like this was a true emergency. After being in the ER I decided fuck it, I am getting myself off this shit before I hurt myself and I never looked back.
@gnarls-OSRS the antinausea meds reglan ( metoclopramide) is the D2 antagonist that gave me symptoms of dystonia, tardive dyskinesia & symptoms of the above😢
I had this for about 6 months prior to entering an integrated mood and anxiety disorder program for 12 weeks at homewood health centre in Guelph Ontario Canada. I am still on medication including benzodiazepine. It was so extremely difficult and no sleep or a sort of half awake sensation about two hours nightly was all sleep I could get. It cost 24000 for the program. No mental health inpatient services are available in Canada covered by universal health care
It's awful, and it nearly led to me walking out onto the motorway. I eventually got help, but no mind was paid as to why it happened, and when the drugs they gave me wore off, the effects came back to about 60%, and didn't fully dissipate until six months later.
Two years i have suffered with akathisia, from a drug fluphenazine. Its been healing but at a very slow pace. I don't know however if it will completely go away. I pray so
Been 3 years, i can say 95% healed. I struggle most when i sleep at night. Tuning back and forth till morning, i hate it. I thank God however that its so much better coz it was deadly in its early stages.
have you tied CDB its plant based, heals the axiety. accesible, no drug, no dangerous chemicals, the industry does not want people to know but cannabis can help a lot with anxiety and children with epilepsy, among cancer too, natural alternitive medicines found in macrobiotic stores are amazing, no side effectes and they crush anxiety fast!@@robertsiatwambo
Omg he is talking about Benzos resolving akathasia but he didn't mention how benzo withdrawal gives you akathasia and how if you take Benzos to stop it out are kindling. Also, he does not mention that you can live months with it.
Most doctors are so ignorant to all of this. The doctor that prescribed me klonopin and prozac doesn't even know what kindling is. He doesn't know anything about protracted withdrawals or tolerance and inner-dose withdrawals. The only thing he knew about Akathesia was the movement part of it. He didn't know anything about the horrible mental terrors and torture. He thought if he slowly tapered me off of the prozac I'd be better, but now 16 months later nothing's better, it's worse. Sleeping a half hour a day and pacing for another eighteen hours isn't living, It's not even existing, It's like the living dead. Where are these idiot doctors getting their schooling, and what morons are giving them licenses to practice medicine?
You are absolutely right, benzos can cause akathisia & this can last weeks, months & sometimes years! It can cause suicidal thoughts & many other symptoms. I'm shocked to hear Dr Josef recommend Benzos for akathisia! 😮😮😮😮
Yep. Benzo withdrawal definitely can cause it. They can cause very bad cases of akathisia. Especially long-term use and rapid tapers and cold turkeys. But I'm telling you first hand that I've had akathisia 3 times in the last 20 years. The first time for an entire year. And without benzos to treat it, I'd be dead for sure. I was on a long list of meds that I've gotten off of, and benzos were the only thing that would calm the akathisia down at its very worst. But it's important to know the risk related with the benzos as well. As soon as I'd notice the akathisia starting to dissapate(I could still feel it underneath the benzo and I could tell when it had started to go away). I'd immediately start doing a slow taper off the benzo. And this worked for me, and like I said, saved my life each time because it was so bad I couldn't stand another second of it. In fact, the first time, I was locked up for 9 months because of multiple suicide attempts.
I was diagnosed with tardive dyskinesia after starting Latuda. With the odd facial movements, it made sense. But the intensity of the need to move, made it feel like my body was hijacked- like my muscles had a mind of their own. It was unbearable. I would spend most of the day bouncing on a yoga ball, or constantly shaking my leg so aggressively, despite my muscles feeling like they were on fire. I barely made it through a month- so my heart goes out to everyone suffering that kind of hell. Especially those who have yet to figure out why. I went years before finding out about akathisia- when the same dr warned me of the side effect when she prescribed a new medicine. Hopefully drs continue educating themselves on these silently dangerous side effects. Prayers to those still trying to find the other side of the struggle
@@kankurozabuza4570how long did it take to resolve your akasthisia? Did you stop taking latuda cold turkey or did you taper? I stopped latuda cold turkey a week ago after developing symptoms of tardive dyskinesia. Now I'm all freaked out I might develop akasthia by stopping cold turkey.
My husband and I both experienced akathisia with latuda, like 40mg. It resolved within 24-48 hours of stopping meds. Just sucked because latuda seemed to really improve our moods and sleep.
@mckenzie3473 Same- I've never had a medicine work so well, my mood was the best it had been in a long time. Despite trying my best, cuz I really wanted it to work itself out- I just couldn't handle the side effects.
I remember having a broken leg... and screamed in pain. Thought it was horrible. I had a baby boy and the child birth was extremely painful.. Akathisia is worse than both. It's extremely unbearable. I never knew something like that existed!
@A long lost memory The physical non stop movement from Akathisia is total Hell, but the mental part - extreme anxiety, agitation, insomnia, terror and obsession with suicide and death is the worst thing I've ever gone through and it still going on after 11 months. I've been through a lot that I thought nothing could be more horrible than, including cancer, surgeries and chemo but this is 1000 times worse!!!
@@L-xj2xs Right you are BL. Keep pushing through. I bet the benzo hell kept you more bed ridden than the chemo. Just keep going. It breaks at some point. Hell on earth buddy...hell on earth.
Benzo withdrawal is hell on earth. Sheer hell. Having got kindled by general anesthetic for a septorhinoplasty then having to reinstate after 7 torturous months and slowly taper off diazepam was fk hell
I've experienced it many years ago after being given a very old (not used anymore?) antipsychotic drug Mellaril (thioridazine HCl). I was given an anti Parkinsons medication? Cogentin to try and help/reverse it. I have also experienced it with the anti-nausea drugs included in some general anesthetics. Luckily in all experiences it has gone away after a number of hours. I would not wish it on my worst enemy....it truly is torture.
Thanks Dr Josef. I'm 15 weeks off benzo's now. I have the deep strange chemical feeling that feels like it's in my solar plexus and internal vibrations in my belly and legs. When I feel it coming on, I completely rest and it usually resolves. I don't get panic with it but it would grow into panic if I didn't remove myself from all stimulus. Jeeez so many symptoms in this whole process !!
@@Tgunnz70 thankyou !! I'm now 5 months off and slowly re entering life again but as a different person, a much calmer person, I no longer stress about stupid things ♥️
Inapsine, Regan, and bentyl all gave me HORRIFYING akathasia. I ripped my Iv out at the hospital. Screaming. I literally felt like I was about to die. Like the scariest feelings of being chased, unable to even sit, and hot/cold flashes! Lasted for 48 hours! One of the scariest days of my life.
So upsetting to see so many people in the comments have this. Jesus, why isn’t anyone doing anything about this? You caused the harm with these meds, you can surely find a cure. Hospitals are the worst place for people with Akathisia. Benzos caused this and the Akathisia will come back when you taper most likely. I’m sorry did he say it would resolve in how long???
Me too. I'm addicted of xanax, mu dr prescribe it to me 17 months ago, then gave me bromazepam, ativan and klonopin to cure my panic attack's. Never said that the benzodiazepins are the worest drugs than heroin! I cannot quit it😢. The withdrawal symptoms are terrifying. I must eat this sh...t, because I can't function daily without it. It's horrible. We all addicted must fight to quit benzos, BUT HOW ??? With hugs for everyone, who suffer of the benzos addiction.😢
I had to live with severe akathisia for over 5 months straight due to having to rely on medications that caused it. On top of that, I have tourettes, which went absolutely haywire. Also, my eyes could not help but notice and focus on every microscopic detail, with severe discomfort if I looked at anything. It was a horrendous nightmare.
Akathisia is like literally being in hell. Funny thing is, you would never know fr9m looking at someone that internally, they are living a nightmare. The last time I had it was after a 2nd surgery in 2 weeks to remove my thyroid. Here I am fresh out of surgery and I’m pacing the hallways all night long like a mad man. I could not sit still. I tried. I tried meditating. I tried Li’s to calming music . I was compelled to move. I’m sure the nurses thought I was nuts. They wanted to give me tramodol and some anti nausea medicine. I declined. Who knows what more medication would do. Luckily, the next morning it started lifting and in three days i was OK. My sympathies to anyone who has or is going through this.
The nurses should already know why you were pacing. Amazing though how many mental health providers are so damn clueless about this crime against humanity!!!
You are kidding, right? I had akathisia for almost four years because of a benzodiazepine. No other drug or psych med. Just a few months on a benzo for a nonmental health issue and I got walloped by akathisia. Constant rumination of ending my life. Walking for hours each day. Constant movement. I know you are an ally of this community but you are sadly misguided in your understanding of akathisia.
Akathisia is a hell experience. I have had it for two years from a drug fluphenazine. I am hopping it completely goes away in about a month. It's been a very very slow healing. What has been helping me endure it is artane. Propranolol did nothing. I don't really know if it will completely go away, im just praying so.
@@robertsiatwambo Can I help you? Can I do a suggestion? I developed akathisia from risperidone. And healed myself with Bromantane. I feel calm inside myself. Look idk if it will work for you! But maybe you want too give it a try.
I'm also shocked. There's no mention of the Horrible Terrors and Anxiety, worse than any nightmare imaginable. Nightmares come to an end but this doesn't. Twelve months of pacing 18 hours a day. Finally so exhausted and have to lie down, then unable to sleep because of the nonstop movements of legs and feet and especially the grinding of my hips. It's not getting any better! Nonstop suicidal thoughts. Why aren't the sadistic doctors that did this, not doing anything about it. Never Will Trust A Doctor Again!!! 😡
It's been four years and four different horrific adverse drug reactions (that resulted in akathisia), and only today did someone tell me the word "akathisia", so I've been googling it and youtubing it. It's indescribably horrible to be given a drug that instantly makes your brain turn on itself (I had to fight my own hands from trying to claw my eyes out, it was hell beyond words). But to make it worse, to not have terminology for it, and not have doctors take it seriously. :( The first time it happened was in 2019 when I was given Compazine. I was truly traumatized for about two days, BUT after two days I felt back to my normal. Several months later I was convinced to try Effexor, and had the same reaction. This time it took about a week of feeling traumatized before I felt back to normal. Third time was when I was convinced to try Prozac, same horrific reaction (this is like escaping a horror movie and thinking you're finally safe, but then finding yourself back in the horror movie). It took longer than a week to feel back to myself, but the scarier thing was that I began having short panic attacks that directly resembled the akathisia (which had never happened without the drug first being given), so it was terrifying that i could now experience the horror randomly. :*( But the worst part is, that after my fourth (and so far final) akathisia attack (to Reglan) in June 2020, I have never been the same since, and it's been three years. :*( Certain things trigger it. Like if I hear beeping, I start to feel terrified and freaked out, and if the beeping continues, I then feel the intense violent urge to claw my eyes out. It's left me with PTSD that I'm still trying to recover from, and having it been three years it's making me wonder if it will always be there. :*( And it's made a bad situation so much worse when all my doctors haven't taken this seriously at all. I am comforted though at least, that I've finally found the word for it about an hour ago, Akathisia. And this is the first video I've watched on it (I plan to watch many more). Thank you for sharing what you know of Akathasia, but just know as someone who's experienced it multiple times and has been left with PTSD from it, that you're describing it very mildly. It'd be like watching a video of what it's like to experience the electric chair, and someone calmly saying, "they experience some discomforting sensations". 😆😆😆 No but for real thank you for sharing your knowledge on this, this is something that needs to be more widely talked about, to both patients and people in the medical community. I've talked about my horrific experiences with two therapists, two psychiatrists, and two neurologists, and none of them understood what happened to me, nor mentioned the word akathisia. I've been going through this hell, and I've been going through it alone. Thankfully I've found the strength to find a way to persevere, but had all my medical professionals that I've desperately sought help from known what Akathisia was and how horrific it really is, perhaps I wouldn't have suffered nearly as much as I did.
My heart goes out to you too!! My 24 year old daughter is suffering immensely as well except she does have her family. Didn’t know what the heck has been going on nonstop all year and as I look back even for the past eight years off and on until just this may 2024 when I was up in the night searching for what could be going on and the word AKATHISIA showed up on my phone! She can have no friends or work etc because of this absolute hell and is declared disabled! From an intelligent vibrant child to not even being able to drive her car. She can’t read anymore watch tv or even really communicate for very long with people before she’s got to “GO” and you’re right that mental health providers are almost all completely ignorant. It floors me!!! I think in the Bible, Revelations states that there will come a time when you will want to die, but you can’t. I wonder if that AKATHISIA and all of the dyskinesias is what it’s talking about in some sense? Because that is absolutely what AKATHISIA is. It’s an atrocity that it’s allowed to continue to go on with no serious serious education out there about it for patients that are being prescribed these medication’s that they know can cause this! It’s just business as usual, nothing to see here folks! God love you!
I still have it almost 10 years after I stopped the Abilify. The, I was hospitalized. But I tend to get a lot of anxiety and a lot of the time it’s a similar feeling of doom as I used to get. It can either cause me to rock back and forth or pace the floor. In fact I was told not to visit my father in the morning due to my sister has meetings almost all day long. It’s a shame. Because, the anxiety can be all day long or just in the afternoons. I can’t help it and feel that maybe I am being a nuisance. The worst thing is that I get these attacks in the afternoon and they can be intense.
Reglan, Compazine and Inapsine do it to me. I have them on my allergy list now and I will never take them again. They were given to me during severe migraines in the ER.
@@kristinsanders1866 I’m so terrified of them and I ask over and over what they are giving me. I try everything in the world NOT to go to the hospital after that experience.
How bad do you have it? Do you have non-stop movements and the horrible mental terrors? Two years and 4 months here, and I can't take it much longer. Is there anything that helps you? Doctors are idiots and they don't understand it. I pace 20 hours a day and then try to sleep and my body still won't stop moving. Only getting about an hour of sleep a week. Go for days at a time without sleep. I'm so worn out from having to move all the time for 2 years. Something keeps making me move but the movements don't help it. Humans weren't supposed to be subjected to having 1 hour of sleep a week and having to move 20 out of 24 hours a day. We're all dying slowly and the rest of us are having to do it on our own. How have you made it through 5 years?
Maybe MS drugs. For encephalitis, or whatever other off label non nerve agent used for auto-immune encephalitis, as tudca, high dose trehalose, geranylgeraniol, or a safe MS drugs as copaxone, iguratimod, bromantane to burn lactic acid, not sure but these are safe and worth to try.
I have had this problem for years and years totally ignored by medical staff, 😅 I found milk of the poppy seeds tea was the best, but I also know that narcotics and lack of sleep and uncleanness, leads to madness in the mind, so please be careful 🙏
Sadly, this is what most psychiatrist will tell you about akathisa! Jordan Peterson, well known Canadian psychiatrist experienced severe akathisa from taking small dosage of benzodiazopine. It took over 2 years to recover! This is malpractice how this person explained this condition!
I really like Doctor Witdoerring but his explanation is a diservice to the community of sufferers. It is horrific, it should not be treated with more Benzos as that is what causes it in the first place and most cases. Omg we truly have no hope. We are on our own. Doctors refuse to listen to us.
Some antipsychotics caused akathisia for me. Risperdone had minor akathisia where I had trouble focusing and staying still and I immediately stopped taking it and it went away. Abilify caused worse akathisia for me and I stopped that too. I’m on Latuda now and I don’t experience any akathisia; however, I have tardive dyskinesia The worst akathisia I’ve experienced was from Benzo withdrawal. It lasted weeks and I would walk 20+ miles a day with 0 sleep. It didn’t go away until I was put on Valium to taper. Benzo withdrawal was absolute torture and I almost killed myself multiple times. I was put on Valium after getting rushed to the ER from a seizure
I had this i literally could not relax i would try to lay down to rest but had to get up and walk. My doctor prescribed me requip and now i dont have it anymore
Thank you for all you do Josef. I have Protracted Withdrawal and still get bouts of intense inner terror/ chemical terror with obsessive negative ruminating thoughts 5 years out. Are you saying Akathisia usually resolves in 2 to 10 days with medication treatment? It’s the long term symptoms that are killing people. I believe any of us who have suffered iatrogenic harm from psych drugs, if told 10 days, can last 10 days. I absolutely support all your work wholeheartedly, but I feel this video does not represent Akathisia well particularly, particularly the recovery timing.
So nobody mentioned no one told me when I start taking Saphris by the way, don’t drink on it well I pretty much quit drinking once I got on Safras but every once in a while I have three or four Mike’s harder lemonade from about 8 o’clock to 12 AM and then I took my Saphris to go to bed and the first time that happened where the akathisia hit I had no idea what was happening I’ve had it happen 17 times…. So basically what happens I will pace from about 12 AM to 5am. It’s the closest that you can get to what psychologically I would think that a person would feel and hell… it is an overwhelming loss of hope…. It’s as if you are actually projected into a abyss of just absolute doom. And I could see or somebody would freak out if that happened to him and they didn’t know what was happening and they commit suicide. I just learned that you just endure for five hours and it goes away that is if you’ve been drinking… off. You have to pace yourself silly till you pass out. I can’t explain it it’s just fucking hell.
what about studying the Ritalin generation and how many of us have lesions scattered throughout our brains, and are now epileptic, or died of seizures unknowingly the long term effects of messing with brain chemistry before the brain is done developing????
This video under plays it it also does not go into detail of the 508 different drugs that can cause it including antibiotics antivirals anti nausea antidepressant antipsychotics just about every kind of drug there is. You can give someone that’s gotten from benzos benzo if they have been abruptly stopped. Drugging makes it worse. It needs to be mentioned that doctors do not know the side effect and misdiagnosis Take place all the time.
The problem is that according to doctors akathisia is a side effect you can only have when you arre ON the drug... so stopping it makes sense... But most of "side effects" described in leadlets are instead toxic effects... and stopping the drug then won"t help or instead will make things worse... It's very confusing to the patients.... So side effects = toxic effect but not always... I got akathisia from STOPPING antidepressant, not from being put ON it....
From one hell to another, if you take benzos. I did cold turkey from 2 ssris. I did not take benzos, even it was hell! I did not want to have more problems!
No f antidepressants benzos are the worst offender by far it’s nasty in benzo withdrawal giving someone a benzo for akathisia is the WORST thing you can do
That happend to me after taking 1/2 a Bactrim. Tachycardia high blood pressure diaphoresis, severe uncontrolled shaking mental agitation. What should I do if I need to take an antibiotic for a UTI ? They could all cause this when one has GABA receptor downregulation apparently ?
I got akathisia as a side effect of a cocktail of meds (which included fluoxetine and bupropion. Don't remember what else, maybe it was just the two, but it must have been something else too. I think aripiprazole. I had the impression that fluoxetine was doing it, but I could be wrong. I had been taking it with mirtazapine with no akathisia, but as soon as I stopped mirtazapine, fluoxetine was really wrong for me on its own (or after a certain period of time, which was 3 months maybe? Not sure.). I don't think it was bupropion or aripiprazole or even the whole combo, but don't remember very well anymore. I was also taking zolpidem at night which was my only relief all day and to which I was looking so much forward.). For me, akathisia was like my whole body was a bag full of squirming worms and also almost like involuntary movement or the need for it, at least to be expressed once in a while (Tourette's comes to mind). I ended up asking my mother to give me cleaning chores because I had to do something with myself. My doctor had said we would see if the combo worked after the 12th day. I lasted 11 days. Maybe I could have lasted 12, but it seemed very unlikely to me that that awful intense feeling would suddenly go away completely after the 12th day. Or that such a beginning would become beneficial once I passed the 12th day mark. It felt pointless and masochistic.
I actually got terrible akathesia after stopping mirtrazapine. It was horrendous and I couldn't believe it was this drug causing it. I had come off of opiates before and this felt just as bad.
Bro. You’re description nailed it on the head. You’re million times stronger than me. My symptoms lasted only 48 hours. No doubt I would have jumped by day 5.
@@ryansteve2893 Yes, I can't imagine the torture for people going through this for longer, even months or years!! They are true warriors. May they be able to persevere until their akathisia eases out. 🙏🏻
On my second day I couldn't sit still without having a tick. My head felt pressure and I felt weird shocks in my head. I felt like a zombie and couldn't even remember what day it was. I felt like my head was in a bubble. Is this what an aura feels like? Third day now and I'm jumping ship❤
A doctor gave me bromide today because I was sick and it made me feel like I had this energy in me that I couldn't contrate in anything and can't stop walking
I have a non-epileptic seizure disorder & every SSRI I tried put me rght into the aura that precedes a seizure. After using Vit.D3 faithfully, depression is gone. We need to realize that everything needed to take care of our bodies & our minds was already HERE. The Lord has provided for us !
8 years. 8 years or writhing torturous hell. Talk about it. Dont pretend like tardive akathisia isnt a real serious problem. You can't just stop a drug that someone has been on for years.
@grv91vr23 it just doesn't go away... I had restless limb syndrome before benzos and other meds and now it's just worse. It's gotten better in the last 6 years but I still have it
@vincemarshall8550 There is not a cure. Benzodiazepines will help. That's what he said. I know from experience that it works. Maybe not for all but for a lot.
Is it possible to get akasthesia from venlafaxine? I developed these symptoms in 2015 after a psychiatrist kept upping my dose of Effexor despite it causing me to develop a movememt disorder as well as psychosis. Alhough I was never diagnosed, I was prescribed clonazepam by a neurologist which in my case was a life saving medication. I eventually lowered my dose to 0.5 mg and have been taking that for years. It's actually entirely possible that my akasthesia has resolved and I may not even need my clonazepam but the thought of quitting it 😢 I'm not an addict who misuses clonazepam but there is no doubt that I'm dependent on it and that I would have horrible withdrawals.
This is incorrect. One of the listed side effects of Effexor can be akathisia at higher doses, Lowering the dose usually resolves it in a day or two. @@hannaheliza3954
Taking Modafinil along with aripiprazole or any other antipsychotics help a lot with the movement disorders in which I don't feel comfortable in any position and I constantly try different positions in search of one comfort position , I have been taking 50mg modafinil in the morning and 10mg aripiprazole at the evening , it has worked perfectly
I had it from both reglan and trying to come off effexor twice it was so bad that I was only on 37.5mg effexor and my doctor swore cold turkey would be okay and it still caused it bad that after 2 weeks I had to go back on it!
It took me 2 years to taper off of effexor. During my taper I was given latuda. Idk if aka started due to getting off effexor , I had been on it 17 years, or if it started cuz of the latuda Just been given propranolol after a couple years of this and I feel good this morning. So far so good. Praying
I tell you a doctor if you want to know what it feels like and I think you should the same way like every police officer knows what it’s like to get tased by getting tased themselves. I would suggest that you take 10 mg of Saphris or and then drink about till your alcohol blood level is about .10. Then you’ll receive the wonderful experience 5 to 6 hours. It’s always temporary if you mix alcohol with Saphris that’s the good news is good news is it goes away
Lithium Carbonate got rid of akathisia. Only needed very low 375mg dose. Lithium regenerates dopamine receptors in movement centres of the brain. I use to get akathisia flares even from serotonin foods!! so lithium probably would work on anyone who got it from serotonin agents. Wish those who suffer this horrible symptom a healthier 2025 ⛅
I think it's to do with your nerve endings? Your nerve endings are somewhat dulled down when on many of these toxins. When you withdraw the nerve endings fire back up again, but in overdrive...hence why it feels like an itchy bone sort of feeling or millions tiny electric shocks. It's only my opinion however...I could be wrong.
Super low dopamine, most likely, given that many of these drugs block the dopamine receptors in the brain. This is why many people report that having sex or masturbating gives them a temporary relief.
@@user-mm6dn9mx4z I disagree. These drugs are not necessary. They are intentionally poisoning us and with holding any other alternative medicines and treatments that are no where near destructive. This field is more than aware of the misery and destruction, they are creating, so what do they do? Create more poisons to prescribe you for sidd effects of the poisons already damaging you. Necessary?....like a hole in the head.
I got from Abilify I didn't have dysphoria though Just not being able to be still And feeling so restless literally After ending the medication it went away
Isn’t this vid past its shelf-life date? Oughta take it down. You’ve gotten hella lotta feedback from ppl suffering from akathisia from being prescribed…wait for it… benzodiazepines. Still recommend prescribing them for akathisia? So we can go from Dante’s 9th circle of hell to the 9th? No typo; can’t get any worse. Presently on long-term Xanax taper & not liking this dark, painful place.
What do you have against akathesia ? Like , me I take a very cold shower , it helps a little bit , I take vitamin B6 and magnesium . sea salt + water glass to drink ... I try anything possible even rife sound frequency
What about the number of suicides caused by this side effect? Nobody talks about it.
The major problem is that ZERO medical idiots have ever heard the word and would have no clue of what to do if a person has these symptoms.
I bet there is no one in medicine watching this video!
If you are, please make yourself known…
Good question!!!
I took Latuda. I got akathisia. I wouldn’t wish it upon my worst enemy. You feel like you have an exoskeleton trying to jump out of your skin, at the same time bugs crawling out of your skin like the movie the mummy, then add in the worst anxiety you could imagine, plus you can tell your body is so tired but your so jittery you can’t sit still, your mind feels like mind is going crazy, and it’s so bad I could see anyone wanting to jump off a building for it to stop. I went to the hospital they gave me both properal and 4mg of Ativan (what the doc in this video mention) for me it barley made a difference. 4mg of Ativan normally knock me out for 2 days. My symptoms lasted 48 hours. Maybe this example will help put it in perspective. I was an opioid addict, I went to rehab, and experienced the terrible withdraws. I would rather go through opioid withdraw for months over 1 day of akathisia. If I had to experience that again for 10 days, I wouldn’t have been surprised if I had killed myself.
The system is distorted
They talk about it. It's written on the box. All you need is a microscope!
Akathisia is the most inhuman horrific injury there is on the planet I've been dealing with it for 7 years now it's so much worse than words can describe
Propranolol helps.
Have you tried pumpkin and sunflowers seeds?
Akathisia is caused by neurotoxicity. Psychiatrists use neurotoxins (psychiatric drugs) to disrupt and damage the normal function of the brain and nervous system. Inducing the same symptoms they claim to treat.
@akalucinda8821 There aren't any words to describe it. Have you ever tried to explain it to someone? It's impossible to explain. It had to come straight from HELL! You've been dealing with it for 7 years. I've been dealing with it for 2 years and 4 months and I don't know what to do. Do you have mental terrors and the movement? Do you see a Doctor or have you found anything that helps? I can't even find a Doctor that understands it.😢
@@brentdean2616 What is it about pumpkin and sunflower seeds?
Akathisia is the absolute worst I’ve ever felt in my life. I experienced it from an anti nausea medication called Metoclopramide (Reglan). I only experienced it a couple times and that was more than enough so my heart truly does go out to people that deal with it long term, it’s truly living in a hell like state.
Great and informative video!
Reglan bud it did it to me after I recovered from risperidone induced akathisia, it took many months but I had occipital neuralgia and wanted to puke so I went to the ER at UoM and they gave me in IV of Reglan to treat the nausea and I ended up experiencing akathisia very severely in the ICU and because of that, I accidentally said I wanted to die because of how bad I felt I was thrown into the psych unit at the University of Michigan and they put me on the ground in the waiting room because there wasn’t any more seats with a blanket and made me wait there overnight with akathisia, they give me benzo they give me like Ativan or something and even after I waited all night to a see a doctor to see what was wrong with me.
they then transported me like like an hour and a half or two hours away from the hospital after waiting an entire night in psych waiting room because there was no more beds. It was very terrifying to experience akathisia from Reglan after what I went through with risperidone, I was 20 years old and in pain, I could’ve died
If mental health matters, this is a huge red flag, for a health care industry ti not provide proper and safe etiquette health to everyone should have heads turning, people have lost their lives to akathisia
@@JZGreengo I'm so sorry it happened to you, reading your story brought me to tears
@@JZGreengo That’s absolutely horrible. I hope you’re recovering now. Some medical professionals really need to be educated on how debilitating Akathisia truly can be.
I took Latuda. I got akathisia. I wouldn’t wish it upon my worst enemy. You feel like you have an exoskeleton trying to jump out of your skin, at the same time bugs crawling out of your skin like the movie the mummy, then add in the worst anxiety you could imagine, plus you can tell your body is so tired but your so jittery you can’t sit still, your mind feels like mind is going crazy, and it’s so bad I could see anyone wanting to jump off a building for it to stop. I went to the hospital they gave me both properal and 4mg of Ativan (what the doc in this video mention) for me it barley made a difference. 4mg of Ativan normally knock me out for 2 days. My symptoms lasted 48 hours. Maybe this example will help put it in perspective. I was an opioid addict, I went to rehab, and experienced the terrible withdraws. I would rather go through opioid withdraw for months over 1 day of akathisia. If I had to experience that again for 10 days, I wouldn’t be surprised if had killed myself.
I experience it from my medication for my schizoaffective disorder
I have Akathisia and have had it since July 2019 due to pregabalin.
It is horrific and I didn’t know something this awful existed.
I had restless legs syndrome and akathisia from Quetiapine (seroquel) and when I was given Pregabalin it stopped. I went off Pregabalin for about a week and I thought it would come back but it didn't. I think high doses of Pregabalin do more harm than good so I've kept it at 75mg twice a day, when the Fibromyalgia is really bad I take an additional 25mg in the evening but go back to the normal dosage when it eases off. My doctor said it may get worse as I get older and wants to keep me on a lower dose for as long as possible so that I don't run out of options and also to prevent the bad side effects from pregabalin which gets worse with higher doses like anything higher than 150mg twice a day. I know someone on 300mg twice a day and think it's too high, if they forget a dose or run out they will have really bad withdrawal symptoms.
My son is having it. They dropped him with all kinds of antipsychotics in prison and now he is like a fox, non stopping walking in the house for almost 24 hours
How us him?
Yes they give out quitiapine in prisons like candy. Just for a quiet life for the screws. They have no idea the ramifications this filthy poison causes. Worst than heroin apparently worst than benzos which in my experience are the devil. He'll on earth. It's a disgrace.
I m so sorry for your son, I also went through akathisia so I can only imagine what he’s feeling like. Why they give so many people Antypsychotics in prison? To me it sounds like some kind of psychological torture…
His mental state, memory and ability to focus are all going downhill as well; you may want to try to mitigate how many or else his mind goes to waste. This hit my mind so hard if he is not schizophrenic or the diagnosis's you might want them all double checked and make your own judgements.
@@bradm9339I'm sorry your son is going through this ,please get him a doctor who can titrate him off these antipsychotics. He needs to be on a diet that helps restore his dopamine levels in the CNS.
The psychiatrist said none of this to me!
Welcome to the real world, where none of their drugs cause any problems, ever.
Not a single psychiatrist and ive met 20 + have ever even mentioned it. im actually surprised my current psychiatrist knew what it was, when I described it from what she prescribed. a lot of psychiatrists are clueless about it
I was illegally forced to take antipsychotics against my will when i presented with no symptoms at all. The reason they did so because i asked a controversial question about a certain medical intervention. Ive developed a movement disorder since. Knowing this was also a potential, boils my blood with rage. They should be charged with attempted murder!!!
I feel this way off my meds. You win some you lose some. 40-40-2 for the season
@Soul_Contract You were illegally forced? Was this in a hospital type setting?
Inner discomfort? I described it as pure hell
I’m so fucking happy I don’t have to deal with this anymore. I was put on heavy doses of antipsychotics because I went into deep psychosis after years of drug addiction. They only gave me five 1mg pills of Ativan because I was an addict and they never prescribed them again. I suffered for years with this. My dad thought it was me being high on meth when I couldn’t keep still and he would yell and scream at me to sit down and stop literally flailing my arms and legs around because it was making me further lose my mind. But it was the antipsychotics. I had been a high functioning addict for years before I inevitably went into psychosis. Meth never once did anything like that to me. It caused me so much more added stress having these symptoms on top of the psychosis and the on and off again withdrawal symptoms. Ive been clean for almost two years (will be 2 years on July 12). I’ve been off of my anti psychotics for a year and a half now. Still dealing with delusional thoughts/beliefs and hallucinations but I’ve learnt to coexist with it. Don’t do drugs, kids. Seriously.
Dear God Please cure my akathisia, i don't want my parents to be sad. Thank you. Amen.
if you get that side effect you should absolutely ask for a lower dosage, doctors just want to keep you safe but make it worse, your life is more important than being stable
Get off your meds, it’s the only way
Lute25 Are you feeling better yet? I also had akathisia three months ago. I prayed for all who go through it. I hope you are better!
Mine was because I came off an anti depressant
@@lisaodendaal629 Thank you, I'm feeling better, hope you are good too.
Thank you Dr. Joseph for this presentation.
.
Akathisia is an iatrogenic injury, and I experience it as an inability to be at peace.
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Do your own research! Millions of individuals, families, and communities have been harmed and devastated by following the advice of psychiatrists.
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God bless anyone who has been inaccurately diagnosed and injured by a psychiatrist. I pray for PEACE for anyone experiencing AKATHISIA, and offer my FORGIVENESS to anyone who knowingly or unknowingly prescribes toxins as medicine.
Art
😢
Bless you for your kind prayers.
I can take pain. Straight forward pain that can be eased somewhat by some means., but akathesia goes beyond agonizing and there's nothing that eases it. There really are no words, but you're right. No peace. No respite for even a second. It's the loneliest suffering too. My prayers are in abundance for anyone suffering but I'll be honest. I have no forgiveness in my heart atm and that's another tragedy.
This is no way to live.
😢
Me too😢😢😢 im destroyed
Four years ago, i was floxed by cipro during my klonopin taper, two months later,I fainted at home and had a seizure,during my admissions to the hospital,the doctor give me a Benadryl IV drip to stop the convulsion ,upon injection ,it sent me into a non stop pacing for the next 5 months,i nearly end my life because of the mental torture from akathisia . Today i no longer experience akathisia ,though i still have a long route ahead of my recovery from floxing. To those out there going through this mental hellhole,please hang on there ,the akathisia will stop one day .Keep fighting ❤❤️❤️❤️
❤❤❤❤
Akathisia felt terrifying and I wanted to bang my head against the wall. It led me to go to the ER because it was during the weekend and I felt like no one could help me. Benadryl helped me but I remember rocking back and forth crying non stop for 6 hours. I don't know if I made the right choice but I felt like this was a true emergency. After being in the ER I decided fuck it, I am getting myself off this shit before I hurt myself and I never looked back.
Thank you
Problem is that bezos also cause akathesia
It’s not nearly as common as an antipsychotic or D2 antagonist side effect. Far more common in children and elderly patients.
@gnarls-OSRS the antinausea meds reglan ( metoclopramide) is the D2 antagonist that gave me symptoms of dystonia, tardive dyskinesia & symptoms of the above😢
I had this for about 6 months prior to entering an integrated mood and anxiety disorder program for 12 weeks at homewood health centre in Guelph Ontario Canada. I am still on medication including benzodiazepine. It was so extremely difficult and no sleep or a sort of half awake sensation about two hours nightly was all sleep I could get. It cost 24000 for the program. No mental health inpatient services are available in Canada covered by universal health care
After taking diazepam inj i got akathisia and suicidal thoughts for 1week😢😭😭
Paradoxical
It's awful, and it nearly led to me walking out onto the motorway.
I eventually got help, but no mind was paid as to why it happened, and when the drugs they gave me wore off, the effects came back to about 60%, and didn't fully dissipate until six months later.
Two years i have suffered with akathisia, from a drug fluphenazine. Its been healing but at a very slow pace. I don't know however if it will completely go away. I pray so
Yes it can, are you free from akathisia now? I'm worried.
Been 3 years, i can say 95% healed. I struggle most when i sleep at night. Tuning back and forth till morning, i hate it. I thank God however that its so much better coz it was deadly in its early stages.
have you tied CDB its plant based, heals the axiety. accesible, no drug, no dangerous chemicals, the industry does not want people to know but cannabis can help a lot with anxiety and children with epilepsy, among cancer too, natural alternitive medicines found in macrobiotic stores are amazing, no side effectes and they crush anxiety fast!@@robertsiatwambo
@@robertsiatwambodid ur akasthisia improved during taper or improved after cold turkey
@kanishgiri6746 it has taken 3 years for it to improve after quitting fluphenazine. It was worse in the first year but its getting better.
Omg he is talking about Benzos resolving akathasia but he didn't mention how benzo withdrawal gives you akathasia and how if you take Benzos to stop it out are kindling. Also, he does not mention that you can live months with it.
Most doctors are so ignorant to all of this. The doctor that prescribed me klonopin and prozac doesn't even know what kindling is. He doesn't know anything about protracted withdrawals or tolerance and inner-dose withdrawals. The only thing he knew about Akathesia was the movement part of it. He didn't know anything about the horrible mental terrors and torture. He thought if he slowly tapered me off of the prozac I'd be better, but now 16 months later nothing's better, it's worse. Sleeping a half hour a day and pacing for another eighteen hours isn't living, It's not even existing, It's like the living dead. Where are these idiot doctors getting their schooling, and what morons are giving them licenses to practice medicine?
He's covered this many, many times in his discussions
I’ve been living with it for years from Benzo withdrawal
You are absolutely right, benzos can cause akathisia & this can last weeks, months & sometimes years! It can cause suicidal thoughts & many other symptoms. I'm shocked to hear Dr Josef recommend Benzos for akathisia! 😮😮😮😮
Yep. Benzo withdrawal definitely can cause it. They can cause very bad cases of akathisia. Especially long-term use and rapid tapers and cold turkeys. But I'm telling you first hand that I've had akathisia 3 times in the last 20 years. The first time for an entire year. And without benzos to treat it, I'd be dead for sure. I was on a long list of meds that I've gotten off of, and benzos were the only thing that would calm the akathisia down at its very worst. But it's important to know the risk related with the benzos as well. As soon as I'd notice the akathisia starting to dissapate(I could still feel it underneath the benzo and I could tell when it had started to go away). I'd immediately start doing a slow taper off the benzo. And this worked for me, and like I said, saved my life each time because it was so bad I couldn't stand another second of it. In fact, the first time, I was locked up for 9 months because of multiple suicide attempts.
I was diagnosed with tardive dyskinesia after starting Latuda. With the odd facial movements, it made sense. But the intensity of the need to move, made it feel like my body was hijacked- like my muscles had a mind of their own. It was unbearable. I would spend most of the day bouncing on a yoga ball, or constantly shaking my leg so aggressively, despite my muscles feeling like they were on fire.
I barely made it through a month- so my heart goes out to everyone suffering that kind of hell. Especially those who have yet to figure out why. I went years before finding out about akathisia- when the same dr warned me of the side effect when she prescribed a new medicine. Hopefully drs continue educating themselves on these silently dangerous side effects. Prayers to those still trying to find the other side of the struggle
same never again
Latuda! That's the name of the medicine I was taking when I had Akathisia. Truly a horrible medicine.
@@kankurozabuza4570how long did it take to resolve your akasthisia? Did you stop taking latuda cold turkey or did you taper? I stopped latuda cold turkey a week ago after developing symptoms of tardive dyskinesia. Now I'm all freaked out I might develop akasthia by stopping cold turkey.
My husband and I both experienced akathisia with latuda, like 40mg. It resolved within 24-48 hours of stopping meds. Just sucked because latuda seemed to really improve our moods and sleep.
@mckenzie3473 Same- I've never had a medicine work so well, my mood was the best it had been in a long time. Despite trying my best, cuz I really wanted it to work itself out- I just couldn't handle the side effects.
Now what about benzodiazepines causing Akathisia?
Hell on earth.
I remember having a broken leg... and screamed in pain. Thought it was horrible. I had a baby boy and the child birth was extremely painful..
Akathisia is worse than both. It's extremely unbearable. I never knew something like that existed!
@A long lost memory The physical non stop movement from Akathisia is total Hell, but the mental part - extreme anxiety, agitation, insomnia, terror and obsession with suicide and death is the worst thing I've ever gone through and it still going on after 11 months. I've been through a lot that I thought nothing could be more horrible than, including cancer, surgeries and chemo but this is 1000 times worse!!!
@@L-xj2xs Right you are BL. Keep pushing through. I bet the benzo hell kept you more bed ridden than the chemo. Just keep going. It breaks at some point. Hell on earth buddy...hell on earth.
Benzo withdrawal is hell on earth. Sheer hell. Having got kindled by general anesthetic for a septorhinoplasty then having to reinstate after 7 torturous months and slowly taper off diazepam was fk hell
I've experienced it many years ago after being given a very old (not used anymore?) antipsychotic drug Mellaril (thioridazine HCl). I was given an anti Parkinsons medication? Cogentin to try and help/reverse it. I have also experienced it with the anti-nausea drugs included in some general anesthetics. Luckily in all experiences it has gone away after a number of hours. I would not wish it on my worst enemy....it truly is torture.
Thanks Dr Josef. I'm 15 weeks off benzo's now. I have the deep strange chemical feeling that feels like it's in my solar plexus and internal vibrations in my belly and legs. When I feel it coming on, I completely rest and it usually resolves. I don't get panic with it but it would grow into panic if I didn't remove myself from all stimulus. Jeeez so many symptoms in this whole process !!
@@Tgunnz70 thankyou !! I'm now 5 months off and slowly re entering life again but as a different person, a much calmer person, I no longer stress about stupid things ♥️
Inapsine, Regan, and bentyl all gave me HORRIFYING akathasia. I ripped my Iv out at the hospital. Screaming. I literally felt like I was about to die. Like the scariest feelings of being chased, unable to even sit, and hot/cold flashes! Lasted for 48 hours! One of the scariest days of my life.
Dont fix problems with more drugs. Especially Benzo's. The drugs are the problem!
So upsetting to see so many people in the comments have this. Jesus, why isn’t anyone doing anything about this? You caused the harm with these meds, you can surely find a cure. Hospitals are the worst place for people with Akathisia. Benzos caused this and the Akathisia will come back when you taper most likely. I’m sorry did he say it would resolve in how long???
Yes ur right 100 percent
I'm going thru this now from prescribed benzo withdrawal even with a taper it's absolutely HELL
He said about 10 days, but for some it takes years
Can we heal from aka if it’s not caused from taking a benzo ?
You didn't mention extreme theror and fear.
I FEEL LIKE IM IN PRISON BY MY OWN BODY!!!
Me too. I'm addicted of xanax, mu dr prescribe it to me 17 months ago, then gave me bromazepam, ativan and klonopin to cure my panic attack's. Never said that the benzodiazepins are the worest drugs than heroin! I cannot quit it😢. The withdrawal symptoms are terrifying. I must eat this sh...t, because I can't function daily without it. It's horrible. We all addicted must fight to quit benzos, BUT HOW ??? With hugs for everyone, who suffer of the benzos addiction.😢
I had to live with severe akathisia for over 5 months straight due to having to rely on medications that caused it. On top of that, I have tourettes, which went absolutely haywire. Also, my eyes could not help but notice and focus on every microscopic detail, with severe discomfort if I looked at anything. It was a horrendous nightmare.
I believe that I suffered from tardive akasthisia. Thank you for your true description
Akathisia is like literally being in hell. Funny thing is, you would never know fr9m looking at someone that internally, they are living a nightmare. The last time I had it was after a 2nd surgery in 2 weeks to remove my thyroid. Here I am fresh out of surgery and I’m pacing the hallways all night long like a mad man. I could not sit still. I tried. I tried meditating. I tried Li’s to calming music . I was compelled to move. I’m sure the nurses thought I was nuts. They wanted to give me tramodol and some anti nausea medicine. I declined. Who knows what more medication would do. Luckily, the next morning it started lifting and in three days i was OK. My sympathies to anyone who has or is going through this.
The nurses should already know why you were pacing. Amazing though how many mental health providers are so damn clueless about this crime against humanity!!!
Mental torture. Inner restlessness. Restless leg syndrome. Its horrible. I had it when starting Prozac.
You are kidding, right? I had akathisia for almost four years because of a benzodiazepine. No other drug or psych med. Just a few months on a benzo for a nonmental health issue and I got walloped by akathisia. Constant rumination of ending my life. Walking for hours each day. Constant movement. I know you are an ally of this community but you are sadly misguided in your understanding of akathisia.
It is brutal and doing harm to people all around the world...
Akathisia is a hell experience. I have had it for two years from a drug fluphenazine. I am hopping it completely goes away in about a month. It's been a very very slow healing. What has been helping me endure it is artane. Propranolol did nothing.
I don't really know if it will completely go away, im just praying so.
It's the worst.
@@robertsiatwambo Can I help you? Can I do a suggestion? I developed akathisia from risperidone. And healed myself with Bromantane. I feel calm inside myself. Look idk if it will work for you! But maybe you want too give it a try.
I'm also shocked. There's no mention of the Horrible Terrors and Anxiety, worse than any nightmare imaginable. Nightmares come to an end but this doesn't. Twelve months of pacing 18 hours a day. Finally so exhausted and have to lie down, then unable to sleep because of the nonstop movements of legs and feet and especially the grinding of my hips. It's not getting any better! Nonstop suicidal thoughts. Why aren't the sadistic doctors that did this, not doing anything about it. Never Will Trust A Doctor Again!!! 😡
It's been four years and four different horrific adverse drug reactions (that resulted in akathisia), and only today did someone tell me the word "akathisia", so I've been googling it and youtubing it.
It's indescribably horrible to be given a drug that instantly makes your brain turn on itself (I had to fight my own hands from trying to claw my eyes out, it was hell beyond words).
But to make it worse, to not have terminology for it, and not have doctors take it seriously. :(
The first time it happened was in 2019 when I was given Compazine.
I was truly traumatized for about two days, BUT after two days I felt back to my normal.
Several months later I was convinced to try Effexor, and had the same reaction.
This time it took about a week of feeling traumatized before I felt back to normal.
Third time was when I was convinced to try Prozac, same horrific reaction (this is like escaping a horror movie and thinking you're finally safe, but then finding yourself back in the horror movie).
It took longer than a week to feel back to myself, but the scarier thing was that I began having short panic attacks that directly resembled the akathisia (which had never happened without the drug first being given), so it was terrifying that i could now experience the horror randomly. :*(
But the worst part is, that after my fourth (and so far final) akathisia attack (to Reglan) in June 2020, I have never been the same since, and it's been three years. :*(
Certain things trigger it.
Like if I hear beeping, I start to feel terrified and freaked out, and if the beeping continues, I then feel the intense violent urge to claw my eyes out.
It's left me with PTSD that I'm still trying to recover from, and having it been three years it's making me wonder if it will always be there. :*(
And it's made a bad situation so much worse when all my doctors haven't taken this seriously at all.
I am comforted though at least, that I've finally found the word for it about an hour ago, Akathisia.
And this is the first video I've watched on it (I plan to watch many more).
Thank you for sharing what you know of Akathasia, but just know as someone who's experienced it multiple times and has been left with PTSD from it, that you're describing it very mildly.
It'd be like watching a video of what it's like to experience the electric chair, and someone calmly saying, "they experience some discomforting sensations". 😆😆😆
No but for real thank you for sharing your knowledge on this, this is something that needs to be more widely talked about, to both patients and people in the medical community.
I've talked about my horrific experiences with two therapists, two psychiatrists, and two neurologists, and none of them understood what happened to me, nor mentioned the word akathisia.
I've been going through this hell, and I've been going through it alone.
Thankfully I've found the strength to find a way to persevere, but had all my medical professionals that I've desperately sought help from known what Akathisia was and how horrific it really is, perhaps I wouldn't have suffered nearly as much as I did.
🙏🏻🙏🏻❤️
All the best and stop taking Medication! Try Nature Medicine
I'm so sorry. There are helpful RUclips videos delving into akathesia. (Angie Peacock , Dr. Mark Horowitz) .❤
Same for me. Same experience. How are you now, it's been a while?
My heart goes out to you too!! My 24 year old daughter is suffering immensely as well except she does have her family. Didn’t know what the heck has been going on nonstop all year and as I look back even for the past eight years off and on until just this may 2024 when I was up in the night searching for what could be going on and the word AKATHISIA showed up on my phone! She can have no friends or work etc because of this absolute hell and is declared disabled! From an intelligent vibrant child to not even being able to drive her car. She can’t read anymore watch tv or even really communicate for very long with people before she’s got to “GO” and you’re right that mental health providers are almost all completely ignorant. It floors me!!! I think in the Bible, Revelations states that there will come a time when you will want to die, but you can’t.
I wonder if that AKATHISIA and all of the dyskinesias is what it’s talking about in some sense? Because that is absolutely what AKATHISIA is. It’s an atrocity that it’s allowed to continue to go on with no serious serious education out there about it for patients that are being prescribed these medication’s that they know can cause this! It’s just business as usual, nothing to see here folks! God love you!
I still have it almost 10 years after I stopped the Abilify. The, I was hospitalized. But I tend to get a lot of anxiety and a lot of the time it’s a similar feeling of doom as I used to get. It can either cause me to rock back and forth or pace the floor. In fact I was told not to visit my father in the morning due to my sister has meetings almost all day long. It’s a shame. Because, the anxiety can be all day long or just in the afternoons. I can’t help it and feel that maybe I am being a nuisance. The worst thing is that I get these attacks in the afternoon and they can be intense.
I feel your pain mine is everyday starting at 3 am-6pm unless I’m stressed 24/7. My family made me leave now I’m by myself
@@Filthycoffin how horrible. This is when you need them the most. My family have trouble dealing with me as well.
@@FilthycoffinGod love you poor soul!!! I’m so sorry your own family did that to you!!! My heart goes out to you!!!
Reglan, Compazine and Inapsine do it to me. I have them on my allergy list now and I will never take them again. They were given to me during severe migraines in the ER.
This comment. Same exact thing w me...all of it! I'm terrified of those drugs and they put it in my IV!
@@kristinsanders1866 I’m so terrified of them and I ask over and over what they are giving me. I try everything in the world NOT to go to the hospital after that experience.
Beware of these, too:
Serotonin (5-HT3) antagonists used for nausea:
ZOFRAN (ondansetron) granisetron, dolasetron, and palonosetron.
@@beannamated I can deal with Zoltan somehow which is great because of migraines
I've had Akathisia for 5 years now with no end in sight.
What caused yours?
How bad do you have it? Do you have non-stop movements and the horrible mental terrors? Two years and 4 months here, and I can't take it much longer. Is there anything that helps you? Doctors are idiots and they don't understand it. I pace 20 hours a day and then try to sleep and my body still won't stop moving. Only getting about an hour of sleep a week. Go for days at a time without sleep. I'm so worn out from having to move all the time for 2 years. Something keeps making me move but the movements don't help it.
Humans weren't supposed to be subjected to having 1 hour of sleep a week and having to move 20 out of 24 hours a day. We're all dying slowly and the rest of us are having to do it on our own. How have you made it through 5 years?
@@sarahpearsall2248 I saw your question asking someone what caused theirs? What caused yours?
Maybe MS drugs. For encephalitis, or whatever other off label non nerve agent used for auto-immune encephalitis, as tudca, high dose trehalose, geranylgeraniol, or a safe MS drugs as copaxone, iguratimod, bromantane to burn lactic acid, not sure but these are safe and worth to try.
I have had this problem for years and years totally ignored by medical staff, 😅 I found milk of the poppy seeds tea was the best, but I also know that narcotics and lack of sleep and uncleanness, leads to madness in the mind, so please be careful 🙏
Sadly, this is what most psychiatrist will tell you about akathisa! Jordan Peterson, well known Canadian psychiatrist experienced severe akathisa from taking small dosage of benzodiazopine. It took over 2 years to recover! This is malpractice how this person explained this condition!
I really like Doctor Witdoerring but his explanation is a diservice to the community of sufferers. It is horrific, it should not be treated with more Benzos as that is what causes it in the first place and most cases. Omg we truly have no hope. We are on our own. Doctors refuse to listen to us.
JP is only a psychologist but was on it for many years while drinking booze. That wouldnt be good for Akithesia
@@dianemorrell9638no he wasn't what are you talking about
He spoke about not knowing the danger but enjoyed single malt whiskey with the evening benzos.
2 mg. Klonapin It wasn't a small dose
Some antipsychotics caused akathisia for me. Risperdone had minor akathisia where I had trouble focusing and staying still and I immediately stopped taking it and it went away. Abilify caused worse akathisia for me and I stopped that too. I’m on Latuda now and I don’t experience any akathisia; however, I have tardive dyskinesia
The worst akathisia I’ve experienced was from Benzo withdrawal. It lasted weeks and I would walk 20+ miles a day with 0 sleep. It didn’t go away until I was put on Valium to taper. Benzo withdrawal was absolute torture and I almost killed myself multiple times. I was put on Valium after getting rushed to the ER from a seizure
I had this i literally could not relax i would try to lay down to rest but had to get up and walk. My doctor prescribed me requip and now i dont have it anymore
The name of the medicine
Thank you for all you do Josef. I have Protracted Withdrawal and still get bouts of intense inner terror/ chemical terror with obsessive negative ruminating thoughts 5 years out.
Are you saying Akathisia usually resolves in 2 to 10 days with medication treatment? It’s the long term symptoms that are killing people. I believe any of us who have suffered iatrogenic harm from psych drugs, if told 10 days, can last 10 days.
I absolutely support all your work wholeheartedly, but I feel this video does not represent Akathisia well particularly, particularly the recovery timing.
I didn’t know there was a word for this!
I cant imagine the pain coming off any Benzodiazepine,i take Ativan 2MG X5
So nobody mentioned no one told me when I start taking Saphris by the way, don’t drink on it well I pretty much quit drinking once I got on Safras but every once in a while I have three or four Mike’s harder lemonade from about 8 o’clock to 12 AM and then I took my Saphris to go to bed and the first time that happened where the akathisia hit I had no idea what was happening I’ve had it happen 17 times…. So basically what happens I will pace from about 12 AM to 5am. It’s the closest that you can get to what psychologically I would think that a person would feel and hell… it is an overwhelming loss of hope…. It’s as if you are actually projected into a abyss of just absolute doom. And I could see or somebody would freak out if that happened to him and they didn’t know what was happening and they commit suicide. I just learned that you just endure for five hours and it goes away that is if you’ve been drinking… off. You have to pace yourself silly till you pass out. I can’t explain it it’s just fucking hell.
what about studying the Ritalin generation and how many of us have lesions scattered throughout our brains, and are now epileptic, or died of seizures unknowingly the long term effects of messing with brain chemistry before the brain is done developing????
This video under plays it it also does not go into detail of the 508 different drugs that can cause it including antibiotics antivirals anti nausea antidepressant antipsychotics just about every kind of drug there is. You can give someone that’s gotten from benzos benzo if they have been abruptly stopped. Drugging makes it worse. It needs to be mentioned that doctors do not know the side effect and misdiagnosis Take place all the time.
You are right.
The problem is that according to doctors akathisia is a side effect you can only have when you arre ON the drug... so stopping it makes sense... But most of "side effects" described in leadlets are instead toxic effects... and stopping the drug then won"t help or instead will make things worse... It's very confusing to the patients.... So side effects = toxic effect but not always... I got akathisia from STOPPING antidepressant, not from being put ON it....
The Akathisia Alliance has excellent info for patients and prescribers.
From one hell to another, if you take benzos. I did cold turkey from 2 ssris. I did not take benzos, even it was hell! I did not want to have more problems!
No f antidepressants benzos are the worst offender by far it’s nasty in benzo withdrawal giving someone a benzo for akathisia is the WORST thing you can do
I’ve been through this horrible situation and I only got through it by going in patient. I had to.
Except when caused by a benzo, then you are in for a trip to death’s door….
That happend to me after taking 1/2 a Bactrim. Tachycardia high blood pressure diaphoresis, severe uncontrolled shaking mental agitation. What should I do if I need to take an antibiotic for a UTI ? They could all cause this when one has GABA receptor downregulation apparently ?
I got akathisia as a side effect of a cocktail of meds (which included fluoxetine and bupropion. Don't remember what else, maybe it was just the two, but it must have been something else too. I think aripiprazole. I had the impression that fluoxetine was doing it, but I could be wrong. I had been taking it with mirtazapine with no akathisia, but as soon as I stopped mirtazapine, fluoxetine was really wrong for me on its own (or after a certain period of time, which was 3 months maybe? Not sure.). I don't think it was bupropion or aripiprazole or even the whole combo, but don't remember very well anymore. I was also taking zolpidem at night which was my only relief all day and to which I was looking so much forward.).
For me, akathisia was like my whole body was a bag full of squirming worms and also almost like involuntary movement or the need for it, at least to be expressed once in a while (Tourette's comes to mind). I ended up asking my mother to give me cleaning chores because I had to do something with myself.
My doctor had said we would see if the combo worked after the 12th day. I lasted 11 days. Maybe I could have lasted 12, but it seemed very unlikely to me that that awful intense feeling would suddenly go away completely after the 12th day. Or that such a beginning would become beneficial once I passed the 12th day mark. It felt pointless and masochistic.
I actually got terrible akathesia after stopping mirtrazapine. It was horrendous and I couldn't believe it was this drug causing it. I had come off of opiates before and this felt just as bad.
Bro. You’re description nailed it on the head. You’re million times stronger than me. My symptoms lasted only 48 hours. No doubt I would have jumped by day 5.
@@ryansteve2893 Yes, I can't imagine the torture for people going through this for longer, even months or years!! They are true warriors. May they be able to persevere until their akathisia eases out. 🙏🏻
On my second day I couldn't sit still without having a tick. My head felt pressure and I felt weird shocks in my head. I felt like a zombie and couldn't even remember what day it was. I felt like my head was in a bubble. Is this what an aura feels like? Third day now and I'm jumping ship❤
2 to 10 days???? Where that from
A doctor gave me bromide today because I was sick and it made me feel like I had this energy in me that I couldn't contrate in anything and can't stop walking
I have a non-epileptic seizure disorder & every SSRI I tried put me rght into
the aura that precedes a seizure. After using Vit.D3 faithfully, depression
is gone. We need to realize that everything needed to take care of our
bodies & our minds was already HERE. The Lord has provided for us !
Tell a schizophrenic to take your god's vitamins and see how it goes.
8 years. 8 years or writhing torturous hell. Talk about it. Dont pretend like tardive akathisia isnt a real serious problem. You can't just stop a drug that someone has been on for years.
Why Ativan ? Why not Xanax or Rivotril?
Can akathisia and other side effects be permanent after poisoning from metoclopramide? Im living in this nightmare for 4 months.
Akathisia or kidney stones, I can't decide what's worse honestly
Ativan only slightly helps, benztropine completely cured my akathisia.
That's what they prescribed for me (Benztropine) and it worked
I've had akathesia for 6 years now from them forcibly taking me off a high dose of clonazapam.
How severe? Seems almost impossible to have it severe 6 years
@grv91vr23 it just doesn't go away... I had restless limb syndrome before benzos and other meds and now it's just worse. It's gotten better in the last 6 years but I still have it
Does a family history of Parkinson’s make one more vulnerable to movement disorders with dopamine blocking medications
I had that crap for 6 months ...i dont trust drs anymore especially in America
Are they better in other countries? Just curious. I hope so.
@@beannamatedno. Allienation and malpractice its out of control worldwide, specially within the criminal field of psychiatry.
no disrespect to you Dr Josef but what is the cure?
@vincemarshall8550 There is not a cure. Benzodiazepines will help. That's what he said. I know from experience that it works. Maybe not for all but for a lot.
What about chronic akathisia
Is it possible to get akasthesia from venlafaxine? I developed these symptoms in 2015 after a psychiatrist kept upping my dose of Effexor despite it causing me to develop a movememt disorder as well as psychosis. Alhough I was never diagnosed, I was prescribed clonazepam by a neurologist which in my case was a life saving medication. I eventually lowered my dose to 0.5 mg and have been taking that for years. It's actually entirely possible that my akasthesia has resolved and I may not even need my clonazepam but the thought of quitting it 😢 I'm not an addict who misuses clonazepam but there is no doubt that I'm dependent on it and that I would have horrible withdrawals.
Slowly tapping...
MICRO taper off the benzo.. look up the Ashton Manual for how-to
No, I am on Effexor and it never causes akathisia. It's usually caused by antipsychotics, not antidepressants.
This is incorrect. One of the listed side effects of Effexor can be akathisia at higher doses, Lowering the dose usually resolves it in a day or two. @@hannaheliza3954
Effexor and all serotonergic drugs are major culprits.
Taking Modafinil along with aripiprazole or any other antipsychotics help a lot with the movement disorders in which I don't feel comfortable in any position and I constantly try different positions in search of one comfort position , I have been taking 50mg modafinil in the morning and 10mg aripiprazole at the evening , it has worked perfectly
I had it from both reglan and trying to come off effexor twice it was so bad that I was only on 37.5mg effexor and my doctor swore cold turkey would be okay and it still caused it bad that after 2 weeks I had to go back on it!
It took me 2 years to taper off of effexor. During my taper I was given latuda. Idk if aka started due to getting off effexor , I had been on it 17 years, or if it started cuz of the latuda
Just been given propranolol after a couple years of this and I feel good this morning. So far so good. Praying
How you doing now?
What is the treatment
Atomized iodine, niacine.... both help with the inner discomfort and loss of life...... faith in God helps also, abandoning a Godless life
I tell you a doctor if you want to know what it feels like and I think you should the same way like every police officer knows what it’s like to get tased by getting tased themselves. I would suggest that you take 10 mg of Saphris or and then drink about till your alcohol blood level is about .10. Then you’ll receive the wonderful experience 5 to 6 hours. It’s always temporary if you mix alcohol with Saphris that’s the good news is good news is it goes away
Just want out of their bodies. So sad😮 these drugs prescribed seem criminal😢
Lithium Carbonate got rid of akathisia. Only needed very low 375mg dose. Lithium regenerates dopamine receptors in movement centres of the brain. I use to get akathisia flares even from serotonin foods!! so lithium probably would work on anyone who got it from serotonin agents. Wish those who suffer this horrible symptom a healthier 2025 ⛅
This why no one should take any benzos on a regular basis
On my worst day of akathesia I walked over 20,000 steps inside my 1700sq ft house in one day.
I believe it.
I'm so sorry ❤
Same, 30,000 or more daily. 6 years now.
Does propranolol help with inner akathisia
I skipped respiradon for two days and my heart started palpitating.lt's still there.Can anyone tell me what is it?
Can it resolve after 10 years ? Drs put my non verbal autistic son on it years ago and more he moved the higher they upped the dose.
I wonder if it’s super low serotonin.
I think it's to do with your nerve endings? Your nerve endings are somewhat dulled down when on many of these toxins. When you withdraw the nerve endings fire back up again, but in overdrive...hence why it feels like an itchy bone sort of feeling or millions tiny electric shocks. It's only my opinion however...I could be wrong.
Opposite
Super low dopamine, most likely, given that many of these drugs block the dopamine receptors in the brain. This is why many people report that having sex or masturbating gives them a temporary relief.
I am happy anyway. Because I had akatisia they found my autism. There came something good out of it.
And let me guess?....more psychiatric drugs? Who d have known?🥴
@@steph7960 No more meds actually 🙂 Taking 25 mg zoloft now and the akathisia is gone at that dose.
@@steph7960I agree psychiatric meds are mostly poison but they can be a necessary evil sadly.
@@user-mm6dn9mx4z I disagree. These drugs are not necessary. They are intentionally poisoning us and with holding any other alternative medicines and treatments that are no where near destructive. This field is more than aware of the misery and destruction, they are creating, so what do they do? Create more poisons to prescribe you for sidd effects of the poisons already damaging you. Necessary?....like a hole in the head.
I'm in so much pain sores in nose eyes itching can't sleep now amitriptyline does this help or make worse. Constant nausau.
had this once, it was horrible.
I got from Abilify
I didn't have dysphoria though
Just not being able to be still
And feeling so restless literally
After ending the medication it went away
Same. I gave up the battle when I went to the ER for it while being on Cogentin for Akathisia.
I have the same experience,is it true you could have setbackss of it from every med cause there is an injury?
Isn’t this vid past its shelf-life date? Oughta take it down. You’ve gotten hella lotta feedback from ppl suffering from akathisia from being prescribed…wait for it… benzodiazepines. Still recommend prescribing them for akathisia? So we can go from Dante’s 9th circle of hell to the 9th? No typo; can’t get any worse. Presently on long-term Xanax taper & not liking this dark, painful place.
They absolutely do
What do you have against akathesia ?
Like , me I take a very cold shower , it helps a little bit , I take vitamin B6 and magnesium . sea salt + water glass to drink ...
I try anything possible even
rife sound frequency
I felt it after abusing tramadol. Horrible
Why use benzo? benzo can cause Akathisia i dont get it?
Can akathisia show up on a CT scan?
No they don’t even really know what causes it.
@@joey4074 Do you have akathisia?
Yes. This. He nailed the description.
It's all in there heads
Wrong. This is not the worst side effect from meds.
No it’s not the worst
Cogentin helped my akathesia after benzo withdrawal