Thanks for your videos. I used to play guitar and sing, but w/ PD I can no longer type on computer, or play guitar. However, I seem to be getting my singing voice back a bit with speech therapy. It does feel good, as it was such a big part of my life before Parkinson’s. I am going to get my autoharp fixed up and try to use that soon. Take care, and thanks for sharing your PD journey.
Hi Jeremy, I take sinemet 1 tablet 250/25 6am, 10am, 2pm, 6pm and sinemet 200/50 ×2 tablets at 10pm. I find I'm up at 4am with same tremors as you. This seems to be ok for now except for the wearing off times. Thanks heaps for the videos. Cheers Steve nsw Australia
Thanks for the video, Jeremy. I was formally diagnosed in 2009 at the age of 51 but I could have told anyone who cared to listen that something was wrong with me 10 years earlier & a GP mentioned Parkinson's in 2000 from the way I walked into his office. Like you I am on Sinemet as other medications have been a disaster. I worked at a Steel Mill which produced high-manganese steel when my health started to deteriorate, I often wonder if that was a cause. In any case I'm sick of cutting my fingers on sharp knives but try to cook for the kids (it's getting harder though) 😒 I also try to be active & have a busy walking schedule, but everything is catching up with me. I wish you all the best, good luck from Australia & keep up the videos. Paul
@@JeremyMcdonald Yep, I am busy all day with my house and pets. I hope I didn't offend you though on my question about when to stop driving...I don't want to be insensitive to anyone. Today was an emotional day for me. I signed over to my 37 yr old daughter my P.O.A to her. That was a tough pill but necessary for when the time comes
I take Rytary ER 23.75-95MG (slow release) 4 times a day. Works great very little off time.it's expensive but there are organizations to help pay like the PAN Foundation
@@JeremyMcdonald they work okay, but I'm getting more and more off balance, hand tremors and chin tremors (which is the 1st symptom I noticed). Starting to get a lot of joint (knee) pain. Do you have that or similar?
Thx for sharing! How is your sleeping? Mine sucks!! Can’t move, can’t turn..like I use to..I’m not tired during the day, but getting comfortable sucks..can’t do it. Turning into a back sleeper..
Hi Jeremy, have you tried CBD (cannabidiol) against the side effects of levodopa? CBD is a very benign drug in itself (barely noticeable effects) but it is said to neutralize some of the side effects from levodopa. You might find some on the internet, but probably not too much - this is still frontline research. Best regards and stay safe!
@@JeremyMcdonald Ok, I am sorry to hear this. I hope you could try it into the hundreds of milligrams (400 - 600mg). Anyway, it sure didn't do you any harm, so it was - at worst - "a nice try".
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Thanks Jeremy, good to know about all the extra meds we can take, hadn't heard of them.
No problem. Hopefully you'll have better luck!
Be cautious with new medications & please discuss side effects with your doctors.
Thanks for your videos. I used to play guitar and sing, but w/ PD I can no longer type on computer, or play guitar. However, I seem to be getting my singing voice back a bit with speech therapy. It does feel good, as it was such a big part of my life before Parkinson’s. I am going to get my autoharp fixed up and try to use that soon. Take care, and thanks for sharing your PD journey.
No problem, Debbie! Thx for watching!
Wow! A big difference between the two Jeremys! Thanks for the information.
I’m glad it helped! Thx for watching!
I understand about the cognitive issues off medicine and the way I was before being diagnosed and receiving Carbidopa/Levodopa. More power to you Sir.
Thank you, Robert!
Hi Jeremy, I take sinemet 1 tablet 250/25 6am, 10am, 2pm, 6pm and sinemet 200/50 ×2 tablets at 10pm. I find I'm up at 4am with same tremors as you. This seems to be ok for now except for the wearing off times. Thanks heaps for the videos. Cheers Steve nsw Australia
It sounds like you have a system worked out. Peace and love from St. Louis, MO USA!
Thanks for the video, Jeremy. I was formally diagnosed in 2009 at the age of 51 but I could have told anyone who cared to listen that something was wrong with me 10 years earlier & a GP mentioned Parkinson's in 2000 from the way I walked into his office.
Like you I am on Sinemet as other medications have been a disaster.
I worked at a Steel Mill which produced high-manganese steel when my health started to deteriorate, I often wonder if that was a cause.
In any case I'm sick of cutting my fingers on sharp knives but try to cook for the kids (it's getting harder though) 😒
I also try to be active & have a busy walking schedule, but everything is catching up with me.
I wish you all the best, good luck from Australia & keep up the videos.
Paul
Thx, Paul! I would love to visit Down Under, but I think the plane ride would kill me! Stay active, bro.🤠
Thanks Jeremy for the visuals ha ha. I'm with you on the medicine thoughts.
I'd rather be functioning than not. Hope you keep posting 🙂
As always, thanks for watching, Tory! Hope you are staying active.
@@JeremyMcdonald Yep, I am busy all day with my house and pets. I hope I didn't offend you though on my question about when to stop driving...I don't want to be insensitive to anyone. Today was an emotional day for me. I signed over to my 37 yr old daughter my P.O.A to her. That was a tough pill but necessary for when the time comes
@@toryberch I can't see your question about driving. However, I can tell you that if you feel unsafe driving then don't get behind the wheel.
Dawn of the Dead my favorite movie.
It’s a zombie classic!
I take Rytary ER 23.75-95MG (slow release) 4 times a day. Works great very little off time.it's expensive but there are organizations to help pay like the PAN Foundation
I tried Rytary with very poor results. Thx for the info, though!
Hi Jeremy. I also take Sinemet 3 times a day. Also Requip an Amantadine. Lots of balance issues. Cheers!
How do they work for you?
@@JeremyMcdonald they work okay, but I'm getting more and more off balance, hand tremors and chin tremors (which is the 1st symptom I noticed). Starting to get a lot of joint (knee) pain. Do you have that or similar?
@@nanc57 I have started getting a chin tremor in the morning. Plus, the meds have been giving me a lot of side effects.
@@JeremyMcdonald Sorry to hear that. Sometimes I don't know what's meds, what's PD and what's age (64).
Thx for sharing! How is your sleeping? Mine sucks!! Can’t move, can’t turn..like I use to..I’m not tired during the day, but getting comfortable sucks..can’t do it. Turning into a back sleeper..
I always sleep on my back. I have a big glass of wine before bed which seems to help. However, I often wake up and have to go sleep in my recliner.
@@JeremyMcdonald my movement dr said I can try taking a sinimet in the middle of the night to see if that helps..just have to keep battling 🤙🏽
@@GoProGoalieUzi I have started doing that, too.
I sent you the link to my video. We live close to you
Where did you send the link? Nice to meet you!
She's trying to sell you stuff. I'd be cautious.
Hi Jeremy, have you tried CBD (cannabidiol) against the side effects of levodopa? CBD is a very benign drug in itself (barely noticeable effects) but it is said to neutralize some of the side effects from levodopa. You might find some on the internet, but probably not too much - this is still frontline research.
Best regards and stay safe!
I have tried CBD of several different strengths and doses and have zero reaction one way or the other.
@@JeremyMcdonald Ok, I am sorry to hear this. I hope you could try it into the hundreds of milligrams (400 - 600mg). Anyway, it sure didn't do you any harm, so it was - at worst - "a nice try".
Have you looked up supplements that help with
Parkinson's?
I haven't had much luck with supplements. Thanks for watching!
Ha….Brains 🙃 Thank you for the video!
Seriously, I need brains!