This Doctor is a fantastic professor! 👏👏 English is my second language and I have been having problem undestanding some Americans and British accents, but I understood easily 100% of what she said. Literally! She speaks standard English and should be a role model for all lectures who want to present an intelligible lecture on the any international arena!
Patients with Parkinsons do much better under the care of a neurologist than other md's. As soon as my dad's hand tremors started, I got him to a neurologist. He has had Parkinsons for about 10 years & now is 90 years old. He is doing a lot better than some 70 year olds!!! I am in the health care field & understand Parkinsons very well....Also, most patients are slower in the morning. My dad's best time for md appointments is 1:00 pm. Then we go to lunch, maybe stop at Home Depot or Costco, we return home & he is ready for a nap. Don't overschedule & try to do 2 md appointments in one day unless they are in the same building. Costco & lunch are fun things after a doctor appointment. Sometimes he wants to do both. Other days if he is tired, we just do one. Be flexible as a caregiver.
@@davisphinneyfdn Thanks for your reply. I am the lucky one. My dad has always been there for me & has been a wonderful father my entire life. I couldn't ask for better dad. I will do anything I possibly can to try to make his life easier & fullfilling for the rest of his days. I have been blessed & feel very,very fortunate to have him as my dad.
@davisphinneyfdn I'm 36 and just got diagnosed with it, it has started with my short term memory and my wife kept telling me it's fine, its fine your over worked, and stressed and I told her I'm not over worked and somethings off I need to get in and figure this out. We'll I'm kinda getting the answers to these questions.
I was just diagnosed at age 69. Honesty I am scared. I have to say this speaker has done a beautiful job, making an advanced topic be comprehensive. Simply brilliant.
Thank you for your video. My father has Parkinson's Disease caused by Agent Orange while serving in Vietnam. One day my father stopped talking. He would just whisper. He whispered for about 4 months then stopped talking all together. I'd give ANYTHING to hear his sweet-caring voice. 😢 It's awful watching him choke and aspirate while he wastes away. We are doing everything in our power to keep him well and pain free. 🇺🇸
PD impairs: *ability to think flexibly *ability to problem solve *ability to initiate behaviors *behavioral regulations *cognitive problems changes in personality 50% unusual anxiety 90% sleep disturbances autonomic system dysfunction *bladder *constipation *heat problem, temp regulation *saliva/tear production 30% pain syndrome that cant get figured out 5:00 95% experience cognitive changes (in thinking) 25-30% develop some frank dementia; impairments that (temporarily) disrupt routine daily functions. executive and organizational function language and communication executive dysfunction affects *problem-solving *planning/organization *decision-making *retrieval of words (ex when excited) *cognitive flexibility initiation/motivation to engage (ex exercise or socialize) visual spacial dysfunction *depth perception (bump into things) *hallucinations speech/language problems 10:22 memory, difficulty retrieving (ex old memories), but once retrieved does not go lost again as in alzheimers. 11:00 personality changes *greater irritability *difficulty with frustration *anxiety *lack of motivation 13:30 dopamine therapies can cause sleep disorders *random daytime sleep attacks (dangerous in car, at work, if standing/walking) mixed with anti-histamines can cause confusion and higher risk of falls 14:50 you are not crazy or lazy; you have PD 16:15 movement disorder specialists grasp the complexity of PD and how Rx impact it all 19:36 speech therapy 20:20 exercise is as beneficial as any PD Rx 24:22 early DBS treatment may lower need for dopamine therapies later which can relieve/benefit non-motor challenges. DBS deep brain stimulation involves a brain implant invasive surgery.
She managed that I kept on listening until the end of the presentation. It lasted a very long while because I was stopping the video and made plenty of notes. I learned a lot. Awesome presentation. Thanks a lot.
So thankful to be reminded of this reality with Parkinson's Disease. My husband was diagnosed in 2017. Like this presentation, reminders of the "hidden" realities of Parkinson's helps to remind me that my husband is not perposefully choosing to be difficult. I will share this with family and remind them once again that Chuck does not necessarily have control over his resistive responses toward us. Thank you!!
I have exactly the same with my husband. It is very hard to deal with someone who also does not accept help and gets aggressive. Im 59 and he is 73 and we have been together for 34 years. It is his inability to accept his situation, our situation, that is so frustrating for both of us and his behaviour towards me is so different to what he projects to others even our children. I have been trying all of these techniques, I think this video will certainly be very useful for him too. Thank you.
I love this!! I have several clients with Parkinson but 1 with a rare Parkinson. I love working with all walks of life #elders #Parkinson #heavenlynailsonthegospa #love #blessings
I was diagnosed with PD just over 5 years ago and this video explains most of what I personally have gone through. I shared it with my friends and family hopefully they get it and understand it a bit more . All you Parkies out there remember to take ur meds in time and get your buts out of bed stretch, move your muscles , get some sun on your face , drink lots of water and smile cause your not gonna let this PD own you !!!! Ok nap time 😊
Being a Health Care Worker to someone with Parkinson's, i found this to be the most informative video i have seen. She is so well spoken. I am going reccomend this video to anyone i know affected by this complex disease.
A man I very much admire has Parkinson’s. I have been trying for many years to explain my thoughts to him. After watching this, it o cures to me that as important as he has been in my life. I may actually be aggravating his situation by trying too hard to explain how important he has been in my life. This video explains many things that I really didn’t understand about what he going through.
I was diagnosed about a year ago and have to say thank you for addressing these issues. Mostly people look for visible signs and the only ones I had were falling for no reason. You addressed nearly every symptom I experience.
@@chaseme9860Both diseases are dogshit. My grandpa has Parkinson’s and he pretty much isn’t himself anymore and at night he goes full demon mode. Sucks to see the person you love just lose himself and go nutty. He’s not a person you want to be around anymore.
Thank you for that! I’m 38 and I have been told that it’s probably Parkinson’s! Some of the things that you’ve mentioned resonates for well. I’ve always been very healthy, and always been strong guy. Many of the points that you have pointed out have not been addressed with my movement specialist, especially the pain in different parts of my body that have been undiagnosed. No doubt you have truly taken time to think about and analyze this disease. I’m the baby of a eight children and no one else has this disease but me. I appreciate that you truly are trying to understand and sympathize with peoples feelings. Even though it doesn’t seem that you are coping with this disease it’s nice when someone tries to empathize with you. Thank you again,
We are here for you! If you haven't registered already, consider signing up for updates and to receive links for our monthly Meetup: davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/
Hi, very nice presentation. I am 84, and in the “do I or don’t I have Parkinson’s”. I have gone to 4 movement neurologists/Dr’s and are 2 to 2. NEGATIVE DAT scan. I tend to be, I don’t have or I am in denial! I am doing ok, normal disintegration we all have. Trudge on, my main problem is “organization”. Bless you, and I am sure you are doing well. SteveH
I have been struggling WITH everything you have talked about...I wish I had known this, you changed my life...I would just put myself down and say I must be lazy, stupid and a )big baby concerning pain). I was diagnosed two months ago....out of the blue. Thanks to my "abnormal movement's"!
This is the best info on non motor symptoms of P D I hv ever heard. It is concise and clear and gives help to caregiver in learning how to respond and help your loved one.
I found this presentation to be precisely accurate. My wife and I watched it together. I worry that my current neurologist doesn’t seem interested in the non motor aspects of my experience.
Exactly! My movement disorder neurologist is at one of the top five Parkinson's treatment and research facilities in the Country. He is very well respected in the field when it comes to evaluating and treating the non-physical symptoms of the disease but has very little advice regarding non-motor symptoms. Fortunately, I have had a long-term psychiatrist treating my ADHD who has a lot of experience treating people with non-motor symptoms of Parkinson's.
Great lecture. In our opinion not enough discussion and awareness of the difficulty of managing the non motor symptoms, and also the side effects of some of the medications for PD. Thank-you for posting this.
Im 45 & was diagnosed this yr with this. My mood swings, & over all total body exhaustion is really hard to deal with. On maximum dose of medication for it & it helped the 1st month with my mind was clearer & i could think of each step to do thru the day. Now tho I'm already slowing down with thinking again. The anxiety & depression is just so crazy too
Good friend of mine was diagnosed recently and as those of us within his inner circle prepare for the future this was a truly helpful presentation… thank you 🙏
I am very happy to heard someone can explain Parkinson disease so clear and even make us feel secure optimistic, thank you for an excellent explanation! I wish more people can listening specifically those like me that have a son 27 years old now going in our 5th anniversary with PD and discovering so many of the topic she explained this disease is not only a tremor or walking slow is a lot more and definitely we all need to be educated
Lourdes, I'm so glad you got value out of this presentation. We are al about continuing to educate the community on ALL of the symptoms of Parkinson's, not solely the most commonly represented. I hope you continue to find our content valuable.
I was diagnosed last November, 2023. I am 70 years old and have suffered with anxiety and panic attacks all my life. I take meds for that. I am generally a fun happy person but lately I seem to be depressed terribly and I exercise every day, play ping pong, pool, foosball, take a rock steady boxing class twice a week. But my anxiety has really interfered with my daily functions, that scared feeling. I am going to seek help tomorrow to see a psychologist to get help for that. I love your book. It has helped me a lot. I have a sign on my bathroom wall that says rising helix because that is what I want to be for others! God bless you!
As a care partner, it has been difficult for me to be as helpful as I can. Thank you for your detailed explanations along with ways to handle/deal with them as a partner and for my husband as well.
Frans De Cock I was diagnosed 10 Years ago. In a few minutes now I recognised my own non motor disorder. A partnerrelation meanwhile ended because of compulsiivedysorder and family discussions about mental health lay behind.Watched twice in tears. Now time to move on, exercise and work, challenge together.
My dad has it. I'm starting to think i very well do too i have adhd, addiction issues and offers. I'm just like thinking yes yes yes yes, check check check check.
I found this very useful and interesting.....right to the end of video.Im a part time support giver for a friend who is 7yrs down the line with Parkinsons Disease.I recognise much of what was discussed.This learned woman put it into words for me.
I am having my daughter and son-in-law (we live together now for financial and mental support.) watch this video so that we can work together and communicate better concerning my Parkinson’s.
Thank you so much for your Insight and knowledge. I have nursed for 42 years. Your sound advice and humanity is absolutely welcome and astounding.You are a great listener and I will practice your kindness in my work.
Excellent presentation. Unfortunately I confirm many neurologists treating Parkinson limit their work to prescribing drugs to address motor symptoms and don't ever inform the patient and the family of the other symptoms or drugs side effects, so when those happen they are even more terrifying to witness because they are completely unexpected. Actually, I feel often doctors do not even recognize non-motor symptoms as relevant symptoms that can greatly impact the quality of life and should be addressed.
Thank you so much for this talk. Exercise so important.Yes. So many great tips and information. Helps me to know what to do for my husband. Staying active. YEP!
2008 I was diagnosed overactive thyroid problem 8 years ignore this disease 2016 February one day I was watching tv suddenly my both hands was numb I couldn't open my hands I was panic suddenly hear massive sound from my head it was mini stroke my tongue was shaking my face was red ! My thyroid level was high and I'm diagnosed Parkinson disease ! Silent stroke cause Parkinson disease ! Suddenly happened I was shocked unbelieveable
Families ALWAYS develop denial. So glad she included the reaction responses of “ normal” people without the diagnosis. It puts the people diagnosed in a much more humane context. We all have brain tics, n’est ce pas? I like her humble approach to conditions of rather hard facts that can be harsh and disruptive to live with.
I work with people with parkinsons and dementia and this is very interesting and worth watching and learning everything she said is spot on its very hard for someone to live a normal life and its heartbreaking to watch someone with the both parkinsons and dementia it breaks my heart xxx
Thank you for this! I’ve experienced all of these symptoms but couldn’t relay to my neurologist or family. I just thought I was losing my mind. I’ve now discussed this with my spouse and that’s a big help. The most stressful part of PD are family members that say “Well you don’t wobble all around like Michael J Fox so the diagnosis is wrong”. These ☝🏽are the unseen issues that are difficult to deal with.
This is such an informative presentation which we have shared with family and friends to help them understand what their loved one may be experiencing. Thank you!
I was diagnosed with PD 9 months ago but I know now I had symptoms starting about 5 years ago. My tremor is mainly only in my left hand so not a big problem when I am not stressed. I used to be very organized and would enjoy taking on projects. Lately I have given up my volunteer position because I don’t feel I can do a good job any more. This video helped me immensely to understand some of the symptoms I was not aware of.
One of the most difficult[t symptoms is speech and the loss of speech or jumbled speech and not being understood It means I have to carry note paper and trying to get understood . The problem most of life is done at a cracking pace from the supermarkets to getting problems fixed. It is alright if you have someone who does not work that can go with you
Good presentation. I still believe one of the main causes of PD is an infected brain. I had meningitis before. I suffered PD for 9 years and my breakthrough improvement came when I started bio-resonance therapy to eliminate the pathogens. After each treatment I see improvement in my movements and my shaking hand becomes more flexible and less stiff.
@@rickraybourn7456 That comment is truly disgusting and no need to put this here or anywhere for that matter. Try thinking about how it would feel if you had parkinsons and forget what you might think others have, heavens forbid you get it, its horrible truly horrible. There is no need to respond because you have had enough to say as it is.
Have had symptoms for years, and I'm only 60. Started with a tapping rt foot, then the right hand tremor. Then the left side. I'm bedbound because of a bad back which just adds more problems. My wife is my caregiver and she was sent by heaven.
We're glad to hear that your wife is helpful for you! Care partners are angels, indeed. Does she participate in our Care Partner Meetups? davisphinneyfoundation.org/event/parkinsons-care-partner-meetup/
Great info. My husband goes to a cognitive clinic and I think a Parkinson’s clinic doctor would be better at managing his meds. He was diagnosed with Lewy Body Dementia and everything you addressed he has. He does have difficulty walking fast as he did in the past and complains of stiffness in his thigh muscles, .
Wow! Amazing resource for family members or caregivers who have a loved one with Parkinson's Disease. As a caregiver I wish I had discovered this video much sooner. Even though it is ten years old, the info still completely relevant. I deeply regret that I misjudged my husband's behaviors labeling them as spiteful and intentional and that I attributed his lack of commitment to exercise as 'laziness.' I can only imagine the frustration he must feel hearing me say "What?" each time he tries to speak and I don't hear him. The information in this video is very valuable, especially the part about trying not to overbook activities. Thank you for posting it. I hope this link makes it's way into the APDA Connecticut website.
Excelente charla. Reconoce la importancia del ejercicio y además dice la verdad acerca de los agonistas, producen efectos no deseados. Es difícil para los cuidadores y familiares entender los síntomas no motores, pero para el paciente es mucho más difícil ya que tiene que convivir con ellos sin entenderlos tampoco.
Thank you for this lecture.. it has really helped me understand what could be happening to my husband as he undergoes tests for possible Parkinson disease 💕
You're welcome. Please let us know at blog@dpf.org if we can help moving forward. You might find value in this content: davisphinneyfoundation.org/new-diagnosis-aid/
This is great. I was beginning to think I was losing my mind prior to seeing this. Mood regulations, sleep issues, personality changes and cognitive etc were really worrying me
Suzan - Yes, unfortunately, it is common. I'm sorry you are experiencing these symptoms, and I hope you will take a few ideas from this talk and see if they work for you.
I am well acquainted with the Davis Phinney Foundation and I am so impressed by this video. I am experiencing many of the things discussed. My husband sat with me and listened also. Very well done.
people testifying reversal with zeolites. buy natural cellular defense from waiora. you need 8 bottles which will last 2 months. they gave zeolites to 100 people in stage 4 cancer and within 2 months 86 said full remission. also look at infra red sauna, golly gosh, fixes everything, works differently to steam sauna. I have a write up on my website lucykingsportstherapy.com I am also working on a page for PD. reading everything I can and watching videos etc. ruclips.net/video/1_DBnv3Sa1k/видео.html
Thank you, Anne. Joanne will be speaking at our The Victory Summit event in Tucson this December if you'd like to catch her live. She is fabulous. www.davisphinneyfoundation.org/events/victory-summit-tucson/
And here I thought I was just turning into the laziest woman in the world! I've had the strange gift of this diagnosis for two whole weeks. I'm the same person I was before, except I've lost the comfort of my denial. This talk has given me hope.
I live with PD and one of the hardest things is family gatherings for me like holidays. The hard thing is that feeling of pity that comes from family members you have not seen in awhile as they watch you tremor, eat, walk and so on. The facial expressions and stares make the holiday not quite as enjoyable. I am happy to see them but I have to keep reminding myself its they who have the problem not me.
pber57 Imagine if it was one of your relatives with PD. Knowledge is power, and anything that is new to us is new to us, and we don’t know how to respond. Just a thought. I’m sure they must not be aware of their facial expressions. If they did I think they would try and change it. Anyone with staring problems should be talked to. I think if we were more open with each other, it would be so much easier. Maybe explain to them about your general issues, and I’m sure they’d be less curious and more relaxed in your presence. Blessings
@@susiepoo51 I totally agree with that..I have PD...but before i had it I didn't have a clue...I have a friend who has Rhemutoid Arthritis..before I knew her I thought it was creaky joints..its not its pain..all the time..but she complains that no one knows...of course not..why would they...I don't blame people for not getting what is often an invisible illness...on the other hand there is nothing wrong with explaining..not lecturing..and informing people about this...most people think PD is tremors..and we all know..at least the PD people and folks who live with them that is just one part.so Pber57..it is what it is..enjoy yourself..live your life..and like the tree who has a root that stops working find a new path..be an advocate...and tell your relatives about what PD is...and what you are doing in your life to try..against ridiculosuly difficult odds to make it better...good luck to you
Doctors do no want to hear , I read, or I saw this video. I was told 6 years ago I was to young for l dopa. I take Klonopin for the anxiety. I also have spinal stenosis with extreme pain. I have been prescribed several SRI and Tricyclics and wind up in the ER with serotonin syndrome. Where do I go from here??????????
May be be upfront about this. My dad just got diagnosed and I'm.sire he won't want any pity looks! I admire people who manage to stay strong. Live well and thank you for the comment.
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My husband has PD, thank you for explaining there is so much more than the physical symptoms. I would get annoyed & impatient with his constantly asking me to make decisions for him, he gets easily distracted, and conversations with others are very cringe worthy. What I know now, will hopefully make me more patient & understanding towards him. Thank you so much for your presentation!
Hi Cornelia - Thank you for watching. Yes, there's so much more. Parkinson's is misunderstood in many ways. I'm glad you found this informative and that is will allow you to help you and your husband live better with it.
Very informative. Been living with a friend for 15 years, who has Parkinson's and this presentation cleared up a lot of mystery to different behaviors.
1 year ago I was diagnosed of PARKINSON DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including PARKINSON DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an PARKINSON DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from PARKINSON DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ..
I'm in some early tests/investigations for Parkinson's D, due to my signs and to inheritance of it. I have to say that this presentation by Joanne H has helped me finding out where I'm at! Thank you J.H and thanks for posting this video! 🇸🇪
Thank you for making this video.... I think I have Parkinson's... My father and auntie did and I am now on the road to finding out what I have .... I have high CK and I yesterday just woke up and was unable to walk right ... But I have all on these on a very low level... So thank you for giving us this information...... I was in the ER... But will soon be able to talk to my PCP about this.
Best Parkinson disease presentation ever. Now showing it to all my patients and their families who deal with the disease.
This Doctor is a fantastic professor! 👏👏 English is my second language and I have been having problem undestanding some Americans and British accents, but I understood easily 100% of what she said. Literally! She speaks standard English and should be a role model for all lectures who want to present an intelligible lecture on the any international arena!
Thanks for this comment! We'll pass along your feedback.
@@davisphinneyfdn It is appreciated! 👌🙏
Patients with Parkinsons do much better under the care of a neurologist than other md's. As soon as my dad's hand tremors started, I got him to a neurologist. He has had Parkinsons for about 10 years & now is 90 years old. He is doing a lot better than some 70 year olds!!! I am in the health care field & understand Parkinsons very well....Also, most patients are slower in the morning. My dad's best time for md appointments is 1:00 pm. Then we go to lunch, maybe stop at Home Depot or Costco, we return home & he is ready for a nap. Don't overschedule & try to do 2 md appointments in one day unless they are in the same building. Costco & lunch are fun things after a doctor appointment. Sometimes he wants to do both. Other days if he is tired, we just do one. Be flexible as a caregiver.
These are really great strategies for care partners. Your dad is lucky to have you!
@@davisphinneyfdn Thanks for your reply. I am the lucky one. My dad has always been there for me & has been a wonderful father my entire life. I couldn't ask for better dad. I will do anything I possibly can to try to make his life easier & fullfilling for the rest of his days. I have been blessed & feel very,very fortunate to have him as my dad.
Mother is having parkinson for six good yrs.what is ur advice it get worsen daily
@davisphinneyfdn I'm 36 and just got diagnosed with it, it has started with my short term memory and my wife kept telling me it's fine, its fine your over worked, and stressed and I told her I'm not over worked and somethings off I need to get in and figure this out. We'll I'm kinda getting the answers to these questions.
K@@dynoranch1205
I was just diagnosed at age 69. Honesty I am scared. I have to say this speaker has done a beautiful job, making an advanced topic be comprehensive. Simply brilliant.
I had my family watch this as they didn’t believe I had PD as I’m tremor free. Hang in there, Jude.
@@timbiglow9676 thank you so much
Porn you guys can get the car 🎉 nmmmmmmm my uh hey hi hi uuuuuhhjhhhhhh😢😢😢
@@judemorales4Umy
Newly diagnosed as well . Hugs I’m 45
No one has said what I deal with every day so well as this Lady has and made me understand it better. GREAT JOB.
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How did they diagnose u did u have a tremor?
Helpful for my family and I. Finally found out 4 months ago. I've gone through so much and now it's maintenance. I'm 60
This is the best video I’ve found about Parkinson’s. I highly recommend it to anyone who knows anyone with Parkinson’s.
Ok
@@sandrahelmantoler7098 i agree. I dont know how many people ive referred to this video. My husband has watched it a number of times
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@@barbarasherrick3007 io99o0 ooo ooooooiioop8
Hoe is pd se progmode
Thank you for your video. My father has Parkinson's Disease caused by Agent Orange while serving in Vietnam. One day my father stopped talking. He would just whisper. He whispered for about 4 months then stopped talking all together. I'd give ANYTHING to hear his sweet-caring voice. 😢
It's awful watching him choke and aspirate while he wastes away. We are doing everything in our power to keep him well and pain free. 🇺🇸
My husband was just recently diagnosed & this video explained it all… I had SO many questions! Thanks much… valuable info!
1:22 my son in 1:52 law just diagnosed
What can I do to help??
PD impairs:
*ability to think flexibly
*ability to problem solve
*ability to initiate behaviors
*behavioral regulations
*cognitive problems
changes in personality
50% unusual anxiety
90% sleep disturbances
autonomic system dysfunction
*bladder
*constipation
*heat problem, temp regulation
*saliva/tear production
30% pain syndrome that cant get figured out
5:00
95% experience cognitive changes (in thinking)
25-30% develop some frank dementia; impairments that (temporarily) disrupt routine daily functions.
executive and organizational function
language and communication
executive dysfunction affects
*problem-solving
*planning/organization
*decision-making
*retrieval of words (ex when excited)
*cognitive flexibility
initiation/motivation to engage (ex exercise or socialize)
visual spacial dysfunction
*depth perception (bump into things)
*hallucinations
speech/language problems
10:22
memory, difficulty retrieving (ex old memories), but once retrieved does not go lost again as in alzheimers.
11:00
personality changes
*greater irritability
*difficulty with frustration
*anxiety
*lack of motivation
13:30 dopamine therapies can cause
sleep disorders
*random daytime sleep attacks (dangerous in car, at work, if standing/walking)
mixed with anti-histamines can cause confusion and higher risk of falls
14:50 you are not crazy or lazy; you have PD
16:15 movement disorder specialists grasp the complexity of PD and how Rx impact it all
19:36 speech therapy
20:20 exercise is as beneficial as any PD Rx
24:22 early DBS treatment may lower need for dopamine therapies later which can relieve/benefit non-motor challenges. DBS deep brain stimulation involves a brain implant invasive surgery.
How is this different than adhd
Thanks for putting this together. It helps to see it written down, especially in a list format.
Thank you so much
It is incredibly nice of you to do clearly outline thee entire content. Great Appreciation!!
@@lorieauchter5880ex
This is the best video on Parkinson's I've seen because the person knows what they are talking about. And that makes all the difference.
I wish someone had talked to me like this 32 years ago...
Nothing short of brilliant. Twenty-six life altering minutes for some people. Limitless thanks, Dr. Hamilton.
Iiiiuiuuuuiiuuiuuuiuuuiuiuiuuiiuiuuiuiuiuuuiiuuiuuuuiui😅
i agree excellant
She managed that I kept on listening until the end of the presentation. It lasted a very long while because I was stopping the video and made plenty of notes. I learned a lot. Awesome presentation. Thanks a lot.
Thank you for this video…can you provide one for Parkinson’s without tremors?
Loll same. Double sided
So thankful to be reminded of this reality with Parkinson's Disease. My husband was diagnosed in 2017. Like this presentation, reminders of the "hidden" realities of Parkinson's helps to remind me that my husband is not perposefully choosing to be difficult. I will share this with family and remind them once again that Chuck does not necessarily have control over his resistive responses toward us. Thank you!!
😊
I have exactly the same with my husband. It is very hard to deal with someone who also does not accept help and gets aggressive. Im 59 and he is 73 and we have been together for 34 years. It is his inability to accept his situation, our situation, that is so frustrating for both of us and his behaviour towards me is so different to what he projects to others even our children. I have been trying all of these techniques, I think this video will certainly be very useful for him too. Thank you.
@@carolynsole4651 l llll, m,😊😊
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z and guide 😊
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I love this!! I have several clients with Parkinson but 1 with a rare Parkinson. I love working with all walks of life #elders #Parkinson #heavenlynailsonthegospa #love #blessings
I was diagnosed with PD just over 5 years ago and this video explains most of what I personally have gone through. I shared it with my friends and family hopefully they get it and understand it a bit more . All you Parkies out there remember to take ur meds in time and get your buts out of bed stretch, move your muscles , get some sun on your face , drink lots of water and smile cause your not gonna let this PD own you !!!! Ok nap time 😊
Thank you so much for this information
Which video is mentioned in the comments and quotes
,❤
Thank you.❤
😢😢 my husband was just diagnosed. I’m scared of what’s ahead as I’m also sick😢
Well, now I know... no longer in denial 🙌 😌 thank you for explaining everything we are experiencing because of Parkinsons... wow, jaw drop, sigh.
Being a Health Care Worker to someone with Parkinson's, i found this to be the most informative video i have seen. She is so well spoken. I am going reccomend this video to anyone i know affected by this complex disease.
Excellent! I fear I haven’t been diagnosed with PD. I plan to bring it to my physician’s attention as well as my family’s. I must be pro-active.
Thank you for putting this on You Tube. My husband has Parkinson's. This explains so very much. Thank you.....
A man I very much admire has Parkinson’s. I have been trying for many years to explain my thoughts to him. After watching this, it o cures to me that as important as he has been in my life. I may actually be aggravating his situation by trying too hard to explain how important he has been in my life. This video explains many things that I really didn’t understand about what he going through.
I was diagnosed about a year ago and have to say thank you for addressing these issues. Mostly people look for visible signs and the only ones I had were falling for no reason. You addressed nearly every symptom I experience.
This video is filled with helps for a Parkinson’s caregiver. She understands the problems very well.
Great instructional presentation. I sent to my immediate family once I was diagnosed. This explains the internal symptoms
My name is violet. I was diagnosed with Parkinson disease a year ago! Thank God for you! Sometimes I feel so sad and alone!
Always tell yourself, you were fortunate not to get ALS.
@@chaseme9860Both diseases are dogshit. My grandpa has Parkinson’s and he pretty much isn’t himself anymore and at night he goes full demon mode. Sucks to see the person you love just lose himself and go nutty. He’s not a person you want to be around anymore.
@@TheMrPandabeast If they are, then Parkinsons is a dry hard one in the winter, and ALS is explosive diarrhea on a white shag rug.
Thank you for that! I’m 38 and I have been told that it’s probably Parkinson’s! Some of the things that you’ve mentioned resonates for well. I’ve always been very healthy, and always been strong guy. Many of the points that you have pointed out have not been addressed with my movement specialist, especially the pain in different parts of my body that have been undiagnosed. No doubt you have truly taken time to think about and analyze this disease. I’m the baby of a eight children and no one else has this disease but me. I appreciate that you truly are trying to understand and sympathize with peoples feelings. Even though it doesn’t seem that you are coping with this disease it’s nice when someone tries to empathize with you. Thank you again,
We are here for you! If you haven't registered already, consider signing up for updates and to receive links for our monthly Meetup: davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/
Hl
Hi, very nice presentation. I am 84, and in the “do I or don’t I have Parkinson’s”. I have gone to 4 movement neurologists/Dr’s and are 2 to 2. NEGATIVE DAT scan. I tend to be, I don’t have or I am in denial! I am doing ok, normal disintegration we all have. Trudge on, my main problem is “organization”.
Bless you, and I am sure you are doing well. SteveH
I have been struggling WITH everything you have talked about...I wish I had known this, you changed my life...I would just put myself down and say I must be lazy, stupid and a )big baby concerning pain). I was diagnosed two months ago....out of the blue. Thanks to my "abnormal movement's"!
This is the best info on non motor symptoms of P D I hv ever heard. It is concise and clear and gives help to caregiver in learning how to respond and help your loved one.
I found this presentation to be precisely accurate. My wife and I watched it together. I worry that my current neurologist doesn’t seem interested in the non motor aspects of my experience.
Exactly! My movement disorder neurologist is at one of the top five Parkinson's treatment and research facilities in the Country. He is very well respected in the field when it comes to evaluating and treating the non-physical symptoms of the disease but has very little advice regarding non-motor symptoms. Fortunately, I have had a long-term psychiatrist treating my ADHD who has a lot of experience treating people with non-motor symptoms of Parkinson's.
Excellent presentation. I would welcome corresponding with you, Dr. Hamilton. My first indication of PD was "loss of smell."
Great lecture. In our opinion not enough discussion and awareness of the difficulty of managing the non motor symptoms, and also the side effects of some of the medications for PD. Thank-you for posting this.
We need something positive
What a great woman. Brilliant and dedicated.
Wow. This might be the most helpful video I've seen so far. She's amazing. She explains things so perfectly and I felt like she was speaking my story.
Thanks, my mom has Parkinson’s and I’ve been looking for a solid video to educate myself.
Im 45 & was diagnosed this yr with this. My mood swings, & over all total body exhaustion is really hard to deal with. On maximum dose of medication for it & it helped the 1st month with my mind was clearer & i could think of each step to do thru the day. Now tho I'm already slowing down with thinking again. The anxiety & depression is just so crazy too
Best parkinsons video I've seen yet. She done great. What an amazing speaker.
Ll
Good friend of mine was diagnosed recently and as those of us within his inner circle prepare for the future this was a truly helpful presentation… thank you 🙏
Bless you & your friends for making a plan to help. This man is very fortunate.
Bless you. Parkinson’s people are the best people. They always have the biggest heart.
I am very happy to heard someone can explain Parkinson disease so clear and even make us feel secure optimistic, thank you for an excellent explanation! I wish more people can listening specifically those like me that have a son 27 years old now going in our 5th anniversary with PD and discovering so many of the topic she explained this disease is not only a tremor or walking slow is a lot more and definitely we all need to be educated
Lourdes, I'm so glad you got value out of this presentation. We are al about continuing to educate the community on ALL of the symptoms of Parkinson's, not solely the most commonly represented. I hope you continue to find our content valuable.
I was just diagnosed and this really fits me to a T. Best video I have watched so far.
Stop with the BS please
@@rogueveteran77 ANCD
Andshajai3.
I was diagnosed last November, 2023. I am 70 years old and have suffered with anxiety and panic attacks all my life. I take meds for that. I am generally a fun happy person but lately I seem to be depressed terribly and I exercise every day, play ping pong, pool, foosball, take a rock steady boxing class twice a week. But my anxiety has really interfered with my daily functions, that scared feeling. I am going to seek help tomorrow to see a psychologist to get help for that. I love your book. It has helped me a lot. I have a sign on my bathroom wall that says rising helix because that is what I want to be for others! God bless you!
Thanks for your comment. We hope your visit went well and you found it helpful.
what about mobility?
EXCELLENT video. The best I have seen so far.
4+
you are a lovely person ,so many things i recognise with my Parkinson’s
This is an excellent presentation especially for patients and their families recently diagnosed with PD.
Thankyou 💕
Wry clear and rational presentation recognizing many issues of PD.
As a care partner, it has been difficult for me to be as helpful as I can. Thank you for your detailed explanations along with ways to handle/deal with them as a partner and for my husband as well.
Can i ask you question?
This may help, ruclips.net/video/akuAUvYpZ6U/видео.html
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Frans De Cock
I was diagnosed 10 Years ago. In a few minutes now I recognised my own non motor disorder. A partnerrelation meanwhile ended because of compulsiivedysorder and family discussions about mental health lay behind.Watched twice in tears. Now time to move on, exercise and work, challenge together.
Frans, so glad you found value in this video. I hope you realized you are not alone! Don't hesitate to reach out should you have any questions.
Never realized all my symptoms of other things are really part of Parkinson’s. She really has researched Parkinson’s.
My dad has it. I'm starting to think i very well do too i have adhd, addiction issues and offers. I'm just like thinking yes yes yes yes, check check check check.
Studying to be a practical nurse, this was really helpful! Thank you!
ifmy parkinsonsdisease deterioted, do i accting like crazy do i acct violence? tnx.
Help us come
Should be required viewing for every PCP, neurologist, and psychologist who deal with maturing adults!
X
I agree 200 percent.
Excellent presentation. Thank you
I found this very useful and interesting.....right to the end of video.Im a part time support giver for a friend who is 7yrs down the line with Parkinsons Disease.I recognise much of what was discussed.This learned woman put it into words for me.
Thanks...brilliant presentation
Along with the diet , vitamin and minerals have played a huge role in the recovery of clients...
Extremely well done presentation. This lady knows her stuff.
Agreed 100%. I have frontotemporal dementia and I wish I had seen this video before I got the diagnosis.
I am having my daughter and son-in-law (we live together now for financial and mental support.) watch this video so that we can work together and communicate better concerning my Parkinson’s.
Lou Sande
Thank you. Makes so many moments clear for me.
I would have benefited from this 10 years ago.
This is a very good talk. Thank you for posting it.
Thank you so much for your Insight and knowledge. I have nursed for 42 years. Your sound advice and humanity is absolutely welcome and astounding.You are a great listener and I will practice your kindness in my work.
Excellent presentation. Unfortunately I confirm many neurologists treating Parkinson limit their work to prescribing drugs to address motor symptoms and don't ever inform the patient and the family of the other symptoms or drugs side effects, so when those happen they are even more terrifying to witness because they are completely unexpected. Actually, I feel often doctors do not even recognize non-motor symptoms as relevant symptoms that can greatly impact the quality of life and should be addressed.
18:20 18:21
Thank you for the presentation . Helped me and my family
Packed with information and so very helpful.
Thank you so much for this talk. Exercise so important.Yes. So many great tips and information. Helps me to know what to do for my husband. Staying active. YEP!
2008 I was diagnosed overactive thyroid problem 8 years ignore this disease 2016 February one day I was watching tv suddenly my both hands was numb I couldn't open my hands I was panic suddenly hear massive sound from my head it was mini stroke my tongue was shaking my face was red ! My thyroid level was high and I'm diagnosed Parkinson disease ! Silent stroke cause Parkinson disease ! Suddenly happened I was shocked unbelieveable
Thank you, I found this very useful. Three years with PD.
Families ALWAYS develop denial. So glad she included the reaction responses of “ normal” people without the diagnosis. It puts the people diagnosed in a much more humane context. We all have brain tics, n’est ce pas? I like her humble approach to conditions of rather hard facts that can be harsh and disruptive to live with.
Excellent webnair about general "What is Parkinsons
Loss of p0wer in my legs
Killexiaw
@@seanmacentee7214I
Yes indeed, it is both heartbreaking and difficult.
I work with people with parkinsons and dementia and this is very interesting and worth watching and learning everything she said is spot on its very hard for someone to live a normal life and its heartbreaking to watch someone with the both parkinsons and dementia it breaks my heart xxx
Thank you for this! I’ve experienced all of these symptoms but couldn’t relay to my neurologist or family. I just thought I was losing my mind. I’ve now discussed this with my spouse and that’s a big help. The most stressful part of PD are family members that say “Well you don’t wobble all around like Michael J Fox so the diagnosis is wrong”. These ☝🏽are the unseen issues that are difficult to deal with.
Great 🎉presentation 👏 👍.
Thank you very much.
going to show this video to friends and family, maybe they will see what is happening and understand better, thank you
We love this idea, and we hope it is helpful! Thanks for your comment.
This is such an informative presentation which we have shared with family and friends to help them understand what their loved one may be experiencing. Thank you!
❤thanks for the update 🎉❤❤
Thank you, for this fabulously informative video about the many complications of PD I had no idea about.
I was diagnosed with PD 9 months ago but I know now I had symptoms starting about 5 years ago. My tremor is mainly only in my left hand so not a big problem when I am not stressed. I used to be very organized and would enjoy taking on projects. Lately I have given up my volunteer position because I don’t feel I can do a good job any more. This video helped me immensely to understand some of the symptoms I was not aware of.
One of the most difficult[t symptoms is speech and the loss of speech or jumbled speech and not being understood It means I have to carry note paper and trying to get understood . The problem most of life is done at a cracking pace from the supermarkets to getting problems fixed. It is alright if you have someone who does not work that can go with you
Thank you very much madam
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Did you have sleep problem fatigue or smell problem or constipation before any motor symptoms.
I'm 7 years into diagnosis and my progression is steady.
Lord, just let me get my son raised, then I'm ready.
We are for you, now and in the future. As an aside, you might find value in this story:
davisphinneyfoundation.org/family-dynamics-kirste-elliott/
Thank you clarify cognitive issues our gang of specialists never address or mention.
Good presentation. I still believe one of the main causes of PD is an infected brain. I had meningitis before. I suffered PD for 9 years and my breakthrough improvement came when I started bio-resonance therapy to eliminate the pathogens. After each treatment I see improvement in my movements and my shaking hand becomes more flexible and less stiff.
Look at the one about Biden, Joe Biden is sick
@@rickraybourn7456 We have to wait...
Soon Heng Tan - my husband with PD also had meningitis - long previous to his diagnosis.
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@@rickraybourn7456 That comment is truly disgusting and no need to put this here or anywhere for that matter. Try thinking about how it would feel if you had parkinsons and forget what you might think others have, heavens forbid you get it, its horrible truly horrible. There is no need to respond because you have had enough to say as it is.
Have had symptoms for years, and I'm only 60. Started with a tapping rt foot, then the right hand tremor. Then the left side. I'm bedbound because of a bad back which just adds more problems. My wife is my caregiver and she was sent by heaven.
We're glad to hear that your wife is helpful for you! Care partners are angels, indeed.
Does she participate in our Care Partner Meetups? davisphinneyfoundation.org/event/parkinsons-care-partner-meetup/
Great info. My husband goes to a cognitive clinic and I think a Parkinson’s clinic doctor would be better at managing his meds. He was diagnosed with Lewy Body Dementia and everything you addressed he has. He does have difficulty walking fast as he did in the past and complains of stiffness in his thigh muscles,
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*Check: **ruclips.net/video/akuAUvYpZ6U/видео.html*
Wow! Amazing resource for family members or caregivers who have a loved one with Parkinson's Disease. As a caregiver I wish I had discovered this video much sooner. Even though it is ten years old, the info still completely relevant. I deeply regret that I misjudged my husband's behaviors labeling them as spiteful and intentional and that I attributed his lack of commitment to exercise as 'laziness.' I can only imagine the frustration he must feel hearing me say "What?" each time he tries to speak and I don't hear him. The information in this video is very valuable, especially the part about trying not to overbook activities. Thank you for posting it. I hope this link makes it's way into the APDA Connecticut website.
Thanks for your comment. We're glad you found value in this video!
I just learned so much! Thank you! Hopefully I can help improve my Mother in Laws life..
Most helpful explanation of PD I’ve had since being diagnosed. Thank you.
Excelente charla. Reconoce la importancia del ejercicio y además dice la verdad acerca de los agonistas, producen efectos no deseados. Es difícil para los cuidadores y familiares entender los síntomas no motores, pero para el paciente es mucho más difícil ya que tiene que convivir con ellos sin entenderlos tampoco.
Thank you for this lecture.. it has really helped me understand what could be happening to my husband as he undergoes tests for possible Parkinson disease 💕
You're welcome. Please let us know at blog@dpf.org if we can help moving forward.
You might find value in this content:
davisphinneyfoundation.org/new-diagnosis-aid/
Thanks for this presentation very informative answered a lot for me and my Parkinsons issues
Thanks a lot for this upload!
A family member was diagnose one year ago and this video was very helpful.
This is great. I was beginning to think I was losing my mind prior to seeing this. Mood regulations, sleep issues, personality changes and cognitive etc
were really worrying me
Suzan - Yes, unfortunately, it is common. I'm sorry you are experiencing these symptoms, and I hope you will take a few ideas from this talk and see if they work for you.
I am well acquainted with the Davis Phinney Foundation and I am so impressed by this video. I am experiencing many of the things discussed. My husband sat with me and listened also. Very well done.
people testifying reversal with zeolites. buy natural cellular defense from waiora. you need 8 bottles which will last 2 months. they gave zeolites to 100 people in stage 4 cancer and within 2 months 86 said full remission. also look at infra red sauna, golly gosh, fixes everything, works differently to steam sauna. I have a write up on my website lucykingsportstherapy.com I am also working on a page for PD. reading everything I can and watching videos etc. ruclips.net/video/1_DBnv3Sa1k/видео.html
Thank you, Anne. Joanne will be speaking at our The Victory Summit event in Tucson this December if you'd like to catch her live. She is fabulous. www.davisphinneyfoundation.org/events/victory-summit-tucson/
Excellent information. Excellent speaker.
Helpful. Thank you.
The first video I have found which is actually helpful!
Great information.My mom is suffering a lot with this disease.Try to find best treatment for her. Love her so very much😔❤
And here I thought I was just turning into the laziest woman in the world! I've had the strange gift of this diagnosis for two whole weeks. I'm the same person I was before, except I've lost the comfort of my denial. This talk has given me hope.
Good luck Kathy
Has medication helped at all?
Me too! I used to be very physical. I miss it.
This may help, ruclips.net/video/akuAUvYpZ6U/видео.html
So informative & clearly stated. Thanks for always helping.
I live with PD and one of the hardest things is family gatherings for me like holidays. The hard thing is that feeling of pity that comes from family members you have not seen in awhile as they watch you tremor, eat, walk and so on. The facial expressions and stares make the holiday not quite as enjoyable. I am happy to see them but I have to keep reminding myself its they who have the problem not me.
pber57
Imagine if it was one of your relatives with PD. Knowledge is power, and anything that is new to us is new to us, and we don’t know how to respond. Just a thought. I’m sure they must not be aware of their facial expressions. If they did I think they would try and change it. Anyone with staring problems should be talked to. I think if we were more open with each other, it would be so much easier. Maybe explain to them about your general issues, and I’m sure they’d be less curious and more relaxed in your presence. Blessings
@@susiepoo51 I totally agree with that..I have PD...but before i had it I didn't have a clue...I have a friend who has Rhemutoid Arthritis..before I knew her I thought it was creaky joints..its not its pain..all the time..but she complains that no one knows...of course not..why would they...I don't blame people for not getting what is often an invisible illness...on the other hand there is nothing wrong with explaining..not lecturing..and informing people about this...most people think PD is tremors..and we all know..at least the PD people and folks who live with them that is just one part.so Pber57..it is what it is..enjoy yourself..live your life..and like the tree who has a root that stops working find a new path..be an advocate...and tell your relatives about what PD is...and what you are doing in your life to try..against ridiculosuly difficult odds to make it better...good luck to you
Doctors do no want to hear , I read, or I saw this video. I was told 6 years ago I was to young for l dopa. I take Klonopin for the anxiety. I also have spinal stenosis with extreme pain. I have been prescribed several SRI and Tricyclics and wind up in the ER with serotonin syndrome. Where do I go from here??????????
May be be upfront about this. My dad just got diagnosed and I'm.sire he won't want any pity looks! I admire people who manage to stay strong. Live well and thank you for the comment.
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My husband has PD, thank you for explaining there is so much more than the physical symptoms. I would get annoyed & impatient with his constantly asking me to make decisions for him, he gets easily distracted, and conversations with others are very cringe worthy. What I know now, will hopefully make me more patient & understanding towards him. Thank you so much for your presentation!
Cornelia, I'm so glad we could shed some light on this! Please don't hesitate to reach out if you are looking for more information or need resources.
Hi Cornelia - Thank you for watching. Yes, there's so much more. Parkinson's is misunderstood in many ways. I'm glad you found this informative and that is will allow you to help you and your husband live better with it.
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This is 100% on point she nails it. I have pd every moment is a new experience
Very informative. Been living with a friend for 15 years, who has Parkinson's and this presentation cleared up a lot of mystery to different behaviors.
1 year ago I was diagnosed of PARKINSON DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including PARKINSON DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an PARKINSON DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from PARKINSON DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ..
The best explanation I have ever heard. thanks ⚘
She is very good and explains the hidden side with solutions
I'm sure she's been inside brain
Excellent. I learned a lot!
I like this video. Great professional information. It's easy to understand. She explain very well and made it easier to understand. Thank you
Thank you for explaining this!
I'm in some early tests/investigations for Parkinson's D, due to my signs and to inheritance of it. I have to say that this presentation by Joanne H has helped me finding out where I'm at! Thank you J.H and thanks for posting this video! 🇸🇪
Thank you for making this video.... I think I have Parkinson's... My father and auntie did and I am now on the road to finding out what I have .... I have high CK and I yesterday just woke up and was unable to walk right ... But I have all on these on a very low level... So thank you for giving us this information...... I was in the ER... But will soon be able to talk to my PCP about this.